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I know exactly what you're saying when you
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say when you're sitting at home writing
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and you're not like, I'm deaf, I'm deaf
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I say the same for me When I'm
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sitting down doing my makeup
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uh I'm blind, I'm blind
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It's like, I'm not thinking about my
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blindness, I'm just living my life
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because this is our normal (Music)
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Hello everybody, we are back
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with my series , when I sit down
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with another person
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from the disability community
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and we disscuss all things
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life and disability related
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and this one is probably the
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more requested that I've seen
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so we finally have Jessica
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and I'm gonna let you say your
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last name
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(Laughs) Jessica Kellgren-Fozard
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It's ok, I know, it's a difficult surname
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we literally went over this before
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we started filming
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We've just been like talking on
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Google Meet
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And I was like, practicing the name
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and I was like no, you know what,
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I got here, I was too deep,
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I was like, I'm jumping
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out of the pool.
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She'll take over. So thank you-
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It's complex. The Kellgren bit is Swedish,
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the Fozard is my wife's surname,
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it's from Normandy, smush it together,
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it's complicated for everyone.
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Or Jessica Out Of The Closet,
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which I think is a brilliant name
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because not only are you one of
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the most fabulous fashionistas
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that I follow on social media,
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but you are also in fact out of
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the closet, and so I think it's just
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such a fun username.
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(Laughs) Yeah,
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out of the closet in many ways.
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Out of the gay closet, out of the
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disability closet, just living life open.
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That's the way to live life.
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Being your best, most authentic,
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confident queen self. And that is
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exactly what you do.
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I watch your videos and I
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legitimately laugh out loud.
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Like you're one of, not only the most
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fashionable people I follow but one of
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the funniest people I follow,
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and I think that you, just by simply
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being you, break so many disability
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stereotypes and misconceptions,
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and I think it's so fabulous for just-
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so thank you for just exisiting
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on the internet.
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(Laughs) I mean, I could say
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the same thing about you, Molly.
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I woke up this morning and I was like,
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OK, Molly, you have to try to look, like,
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a little bit half fabulous
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because you're going to be sitting next to
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Jessica in a video and it's going
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to be embarrassing.
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Oh no, I think you are incredibly stylish,
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I must say. I always enjoy
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your Instagram as well.
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Thank you, I appreciate it.
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So, I know a ton of my audience
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knows and loves your content already
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but for those who don't, would you like to
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kind of give the brief introduction of who
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Jessica is in a nutshell.
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My goodness, okay, the elevator pitch
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of me, then, I guess.
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So, I'm Jessica, I'm a YouTuber,
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content creator. I make content that is
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generally fun, informative, educational,
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amusing, around things that are to do with
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disability, chronic illness, and LGBTQ+
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issues. So I have two genetic conditions,
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hereditary neuropathy with pressure
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palsies, which means that there are gaps
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in the myelin sheaths around your nerves.
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For me that means that I can paralyze
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parts of myself, that my nerves are more
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easily damaged, which does things like
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affect my hearing and I have loss of
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vision in one eye because of it, and it
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can do things like my hands don't have
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any feeling because I paralyzed both of
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my arms for a year and a half when I was
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a teenager. And they came back to a
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certain degree, but they can't now feel
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anything, so it's like wearing gloves
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all of the time. And I don't get hot and
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cold, any of those kinds of things,
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or wet. Which is really annoying when
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you're trying to hang up the washing,
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'cause you're like, is this wet?
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Is this dry? Absolutely no idea.
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And I end up having to like, press my face
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to all of my laundry to see whether it's
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dry or not. Very strange thing.
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And then you just get a random cheek stain
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or random foundation stain on the side
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of your white shirt.
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I mean, I should add, I only do this when
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I'm not wearing makeup. (Laughs)
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Pro tip.
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And then I also have Ehlers Danlos
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Syndrome, which is about my connective
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tissue, and means that not only am I
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hyper mobile, and very flexible and bendy,
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which most people think is like, whoa,
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what a great party trick, and it is,
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it's a pretty good party trick that I
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perhaps overused when I was a child.
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I dislocated various things just to prove
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to people that I could. Don't do that.
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That's a terrible idea. Don't do that.
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But it also affects connective tissue in
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things like my internal organs,
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so I have some issues with my heart, and
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I have postural orthostatic tachycardia
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syndrome, which comes from that,
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which is just a regulating blood pressure
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issue, so I faint a lot. And I can't exert
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myself too much, basically I go up two
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flights of stairs and I'm like, oh gosh,
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there's a heart attack coming.
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Ok, wonderful, and then I've got to lie
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on the floor for half an hour.
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And the vintage fashion is just a layer
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over the top, just to make everything look
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gorgeous while we're here.