WEBVTT 99:59:59.999 --> 99:59:59.999 I know exactly what you're saying when you 99:59:59.999 --> 99:59:59.999 say when you're sitting at home writing 99:59:59.999 --> 99:59:59.999 and you're not like, I'm deaf, I'm deaf 99:59:59.999 --> 99:59:59.999 I say the same for me When I'm 99:59:59.999 --> 99:59:59.999 sitting down doing my makeup 99:59:59.999 --> 99:59:59.999 uh I'm blind, I'm blind 99:59:59.999 --> 99:59:59.999 It's like, I'm not thinking about my 99:59:59.999 --> 99:59:59.999 blindness, I'm just living my life 99:59:59.999 --> 99:59:59.999 because this is our normal (Music) 99:59:59.999 --> 99:59:59.999 Hello everybody, we are back 99:59:59.999 --> 99:59:59.999 with my series , when I sit down 99:59:59.999 --> 99:59:59.999 with another person 99:59:59.999 --> 99:59:59.999 from the disability community 99:59:59.999 --> 99:59:59.999 and we disscuss all things 99:59:59.999 --> 99:59:59.999 life and disability related 99:59:59.999 --> 99:59:59.999 and this one is probably the 99:59:59.999 --> 99:59:59.999 more requested that I've seen 99:59:59.999 --> 99:59:59.999 so we finally have Jessica 99:59:59.999 --> 99:59:59.999 and I'm gonna let you say your 99:59:59.999 --> 99:59:59.999 last name 99:59:59.999 --> 99:59:59.999 (Laughs) Jessica Kellgren-Fozard 99:59:59.999 --> 99:59:59.999 It's ok, I know, it's a difficult surname 99:59:59.999 --> 99:59:59.999 we literally went over this before 99:59:59.999 --> 99:59:59.999 we started filming 99:59:59.999 --> 99:59:59.999 We've just been like talking on 99:59:59.999 --> 99:59:59.999 Google Meet 99:59:59.999 --> 99:59:59.999 And I was like, practicing the name 99:59:59.999 --> 99:59:59.999 and I was like no, you know what, 99:59:59.999 --> 99:59:59.999 I got here, I was too deep, 99:59:59.999 --> 99:59:59.999 I was like, I'm jumping 99:59:59.999 --> 99:59:59.999 out of the pool. 99:59:59.999 --> 99:59:59.999 She'll take over. So thank you- 99:59:59.999 --> 99:59:59.999 It's complex. The Kellgren bit is Swedish, 99:59:59.999 --> 99:59:59.999 the Fozard is my wife's surname, 99:59:59.999 --> 99:59:59.999 it's from Normandy, smush it together, 99:59:59.999 --> 99:59:59.999 it's complicated for everyone. 99:59:59.999 --> 99:59:59.999 Or Jessica Out Of The Closet, 99:59:59.999 --> 99:59:59.999 which I think is a brilliant name 99:59:59.999 --> 99:59:59.999 because not only are you one of 99:59:59.999 --> 99:59:59.999 the most fabulous fashionistas 99:59:59.999 --> 99:59:59.999 that I follow on social media, 99:59:59.999 --> 99:59:59.999 but you are also in fact out of 99:59:59.999 --> 99:59:59.999 the closet, and so I think it's just 99:59:59.999 --> 99:59:59.999 such a fun username. 99:59:59.999 --> 99:59:59.999 (Laughs) Yeah, 99:59:59.999 --> 99:59:59.999 out of the closet in many ways. 99:59:59.999 --> 99:59:59.999 Out of the gay closet, out of the 99:59:59.999 --> 99:59:59.999 disability closet, just living life open. 99:59:59.999 --> 99:59:59.999 That's the way to live life. 99:59:59.999 --> 99:59:59.999 Being your best, most authentic, 99:59:59.999 --> 99:59:59.999 confident queen self. And that is 99:59:59.999 --> 99:59:59.999 exactly what you do. 99:59:59.999 --> 99:59:59.999 I watch your videos and I 99:59:59.999 --> 99:59:59.999 legitimately laugh out loud. 99:59:59.999 --> 99:59:59.999 Like you're one of, not only the most 99:59:59.999 --> 99:59:59.999 fashionable people I follow but one of 99:59:59.999 --> 99:59:59.999 the funniest people I follow, 99:59:59.999 --> 99:59:59.999 and I think that you, just by simply 99:59:59.999 --> 99:59:59.999 being you, break so many disability 99:59:59.999 --> 99:59:59.999 stereotypes and misconceptions, 99:59:59.999 --> 99:59:59.999 and I think it's so fabulous for just- 99:59:59.999 --> 99:59:59.999 so thank you for just exisiting 99:59:59.999 --> 99:59:59.999 on the internet. 99:59:59.999 --> 99:59:59.999 (Laughs) I mean, I could say 99:59:59.999 --> 99:59:59.999 the same thing about you, Molly. 99:59:59.999 --> 99:59:59.999 I woke up this morning and I was like, 99:59:59.999 --> 99:59:59.999 OK, Molly, you have to try to look, like, 99:59:59.999 --> 99:59:59.999 a little bit half fabulous 99:59:59.999 --> 99:59:59.999 because you're going to be sitting next to 99:59:59.999 --> 99:59:59.999 Jessica in a video and it's going 99:59:59.999 --> 99:59:59.999 to be embarrassing. 99:59:59.999 --> 99:59:59.999 Oh no, I think you are incredibly stylish, 99:59:59.999 --> 99:59:59.999 I must say. I always enjoy 99:59:59.999 --> 99:59:59.999 your Instagram as well. 99:59:59.999 --> 99:59:59.999 Thank you, I appreciate it. 99:59:59.999 --> 99:59:59.999 So, I know a ton of my audience 99:59:59.999 --> 99:59:59.999 knows and loves your content already 99:59:59.999 --> 99:59:59.999 but for those who don't, would you like to 99:59:59.999 --> 99:59:59.999 kind of give the brief introduction of who 99:59:59.999 --> 99:59:59.999 Jessica is in a nutshell. 99:59:59.999 --> 99:59:59.999 My goodness, okay, the elevator pitch 99:59:59.999 --> 99:59:59.999 of me, then, I guess. 99:59:59.999 --> 99:59:59.999 So, I'm Jessica, I'm a YouTuber, 99:59:59.999 --> 99:59:59.999 content creator. I make content that is 99:59:59.999 --> 99:59:59.999 generally fun, informative, educational, 99:59:59.999 --> 99:59:59.999 amusing, around things that are to do with 99:59:59.999 --> 99:59:59.999 disability, chronic illness, and LGBTQ+ 99:59:59.999 --> 99:59:59.999 issues. So I have two genetic conditions, 99:59:59.999 --> 99:59:59.999 hereditary neuropathy with pressure 99:59:59.999 --> 99:59:59.999 palsies, which means that there are gaps 99:59:59.999 --> 99:59:59.999 in the myelin sheaths around your nerves. 99:59:59.999 --> 99:59:59.999 For me that means that I can paralyze 99:59:59.999 --> 99:59:59.999 parts of myself, that my nerves are more 99:59:59.999 --> 99:59:59.999 easily damaged, which does things like 99:59:59.999 --> 99:59:59.999 affect my hearing and I have loss of 99:59:59.999 --> 99:59:59.999 vision in one eye because of it, and it 99:59:59.999 --> 99:59:59.999 can do things like my hands don't have 99:59:59.999 --> 99:59:59.999 any feeling because I paralyzed both of 99:59:59.999 --> 99:59:59.999 my arms for a year and a half when I was 99:59:59.999 --> 99:59:59.999 a teenager. And they came back to a 99:59:59.999 --> 99:59:59.999 certain degree, but they can't now feel 99:59:59.999 --> 99:59:59.999 anything, so it's like wearing gloves 99:59:59.999 --> 99:59:59.999 all of the time. And I don't get hot and 99:59:59.999 --> 99:59:59.999 cold, any of those kinds of things, 99:59:59.999 --> 99:59:59.999 or wet. Which is really annoying when 99:59:59.999 --> 99:59:59.999 you're trying to hang up the washing, 99:59:59.999 --> 99:59:59.999 'cause you're like, is this wet? 99:59:59.999 --> 99:59:59.999 Is this dry? Absolutely no idea. 99:59:59.999 --> 99:59:59.999 And I end up having to like, press my face 99:59:59.999 --> 99:59:59.999 to all of my laundry to see whether it's 99:59:59.999 --> 99:59:59.999 dry or not. Very strange thing. 99:59:59.999 --> 99:59:59.999 And then you just get a random cheek stain 99:59:59.999 --> 99:59:59.999 or random foundation stain on the side 99:59:59.999 --> 99:59:59.999 of your white shirt. 99:59:59.999 --> 99:59:59.999 I mean, I should add, I only do this when 99:59:59.999 --> 99:59:59.999 I'm not wearing makeup. (Laughs) 99:59:59.999 --> 99:59:59.999 Pro tip. 99:59:59.999 --> 99:59:59.999 And then I also have Ehlers Danlos 99:59:59.999 --> 99:59:59.999 Syndrome, which is about my connective 99:59:59.999 --> 99:59:59.999 tissue, and means that not only am I 99:59:59.999 --> 99:59:59.999 hyper mobile, and very flexible and bendy, 99:59:59.999 --> 99:59:59.999 which most people think is like, whoa, 99:59:59.999 --> 99:59:59.999 what a great party trick, and it is, 99:59:59.999 --> 99:59:59.999 it's a pretty good party trick that I 99:59:59.999 --> 99:59:59.999 perhaps overused when I was a child. 99:59:59.999 --> 99:59:59.999 I dislocated various things just to prove 99:59:59.999 --> 99:59:59.999 to people that I could. Don't do that. 99:59:59.999 --> 99:59:59.999 That's a terrible idea. Don't do that. 99:59:59.999 --> 99:59:59.999 But it also affects connective tissue in 99:59:59.999 --> 99:59:59.999 things like my internal organs, 99:59:59.999 --> 99:59:59.999 so I have some issues with my heart, and 99:59:59.999 --> 99:59:59.999 I have postural orthostatic tachycardia 99:59:59.999 --> 99:59:59.999 syndrome, which comes from that, 99:59:59.999 --> 99:59:59.999 which is just a regulating blood pressure 99:59:59.999 --> 99:59:59.999 issue, so I faint a lot. And I can't exert 99:59:59.999 --> 99:59:59.999 myself too much, basically I go up two 99:59:59.999 --> 99:59:59.999 flights of stairs and I'm like, oh gosh, 99:59:59.999 --> 99:59:59.999 there's a heart attack coming. 99:59:59.999 --> 99:59:59.999 Ok, wonderful, and then I've got to lie 99:59:59.999 --> 99:59:59.999 on the floor for half an hour. 99:59:59.999 --> 99:59:59.999 And the vintage fashion is just a layer 99:59:59.999 --> 99:59:59.999 over the top, just to make everything look 99:59:59.999 --> 99:59:59.999 gorgeous while we're here.