Back From Madness: The Struggle For Sanity
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0:00 - 0:03(dramatic orchestral music)
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0:03 - 0:06(static hissing)
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0:16 - 0:20(somber orchestral music)
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0:34 - 0:35>> It's hard to imagine
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0:35 - 0:38what it's like to lose your sanity.
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0:40 - 0:44To watch helplessly as you
change from normal to mad -
0:44 - 0:47and then hope you can change back.
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0:54 - 0:56For the better part of the century,
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0:56 - 1:00psychiatric patients were
relegated to the back wards -
1:00 - 1:04and given crude and desperate treatments.
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1:09 - 1:13That was the best medical
science could offer. -
1:16 - 1:18Severe mental illness,
once thought to be caused -
1:18 - 1:22by bad parents or evil spirits,
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1:22 - 1:25is now viewed as the
result of faulty genes, -
1:25 - 1:28illness within the brain itself.
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1:35 - 1:37Because of a recent
revolution in neuroscience -
1:37 - 1:39there are new biological treatments
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1:39 - 1:42for the millions who are needy enough
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1:42 - 1:44and brave enough to try them.
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1:44 - 1:46(medical machine beeping)
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1:46 - 1:48Yet despite all the advances,
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1:48 - 1:52the struggle to find the way
back from madness continues. -
1:52 - 1:53>> Can you tell us
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1:53 - 1:55what is that that's bothering you?
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1:55 - 1:58>> I lost my mind.
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1:58 - 1:59>> You lost your mind?
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1:59 - 2:02How can we help you with that?
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2:05 - 2:07(patient mumbles)
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2:07 - 2:07I'm sorry, I can't--
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2:07 - 2:09>> Give it back.
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2:09 - 2:11>> Give it back to you?
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2:29 - 2:31(siren blaring)
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2:42 - 2:45>> I want a cup of coffee with dog food.
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2:45 - 2:46>> Okay.
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2:46 - 2:50>> That puts me in (stammering) it's true.
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2:50 - 2:52Dog food, that's what, I'm a dog!
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2:52 - 2:54I was born as a dog!
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2:54 - 2:57I want you to start my Haldol back.
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2:57 - 3:00(doctors and patients chattering)
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3:00 - 3:02Ooh, there's a spider.
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3:02 - 3:06>> Look, there's a spider.
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3:06 - 3:08(patients chattering)
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3:08 - 3:11>> I'm not paranoid schizophrenia.
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3:11 - 3:14I just know what I'm talking about.
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3:14 - 3:17It's not my fault, blame Jesus.
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3:18 - 3:21>> Like I said yesterday, all
I wanted them to embrace me. -
3:21 - 3:23'Cause, like, I'm lost
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3:23 - 3:26because people in here don't accept me
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3:26 - 3:29and people out there don't accept me.
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3:29 - 3:33It's like the only one
that accepts Todd is Todd. -
3:33 - 3:36'Cause I can see society, you know?
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3:36 - 3:37And it's just like this.
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3:37 - 3:38(tapping on window)
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3:38 - 3:41That's keepin' me from them, you know?
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3:41 - 3:45'Cause like, I'm in a glass
cage lookin' out at them -
3:45 - 3:48and I can't be out there
with them, you know. -
3:54 - 3:57>> I know whose it is.
-
3:57 - 3:59They come up with a--
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3:59 - 4:02>> This doctor thinks
there's this voice in my head -
4:02 - 4:04named Andrew, you know, that's tellin' me
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4:04 - 4:06to do all these things, you know.
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4:06 - 4:09She's supposedly my doctor, you know,
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4:09 - 4:12and you see the big
doctor-client trust we have. -
4:12 - 4:17>> If he goes back out
on the streets untreated -
4:17 - 4:18on the wrong medicines
-
4:18 - 4:23that he's in danger of
hurting somebody pretty badly. -
4:23 - 4:26The interesting thing is
when he did take medication -
4:26 - 4:30that he was in much better shape.
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4:30 - 4:31>> There's a state law.
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4:31 - 4:33I can refuse medications.
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4:36 - 4:37>> Medication.
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4:38 - 4:39Medication!
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4:39 - 4:43>> She basically wants to get
me on four different drugs -
4:43 - 4:45and I don't want that to happen.
-
4:45 - 4:47You know what it's like to take Haldol?
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4:47 - 4:48Do you know what it's like to take
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4:48 - 4:51some of the other psychiatric
drugs they give you? -
4:51 - 4:52Turns you into a zombie.
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4:52 - 4:55You sleep 14 hours a day.
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4:55 - 4:57You can't sit down in one spot.
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4:57 - 4:59You can't sit down in one spot.
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4:59 - 5:02When I was on Haldol here
for 15 minutes at a time -
5:02 - 5:06you get so jittery your hands clamp up.
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5:09 - 5:11Give Todd a break.
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5:11 - 5:13I'll be out of Massachusetts' hair.
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5:13 - 5:15Just let me outta those doors.
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5:16 - 5:18I'm goin' back to Ft. Lauderdale, Florida
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5:18 - 5:22to enjoy paradise like everybody
else that lives down there. -
5:22 - 5:24You know, all those rich people
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5:24 - 5:25that got all those boats, those yachts
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5:25 - 5:29and they got names for
their yachts, you know. -
5:29 - 5:30>> You're not gonna have that,
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5:30 - 5:32though, if ya go.
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5:32 - 5:35>> I won't have a yacht
but I'll have myself -
5:35 - 5:38and I'll be free and
that's what I'll have. -
5:38 - 5:39>> John, there's a spider
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5:39 - 5:41right near you.
>> Lonesome Cowboy Paul -
5:41 - 5:44>> Cowboy Paul.
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5:44 - 5:48>> (mumbles) smile.
>> Smile. -
5:54 - 5:56>> Ordering a swiss burger, medium rare,
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5:56 - 5:59and a chicken salad
sandwich on whole wheat. -
5:59 - 6:01(bell dings)
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6:01 - 6:05(restaurant patrons chattering)
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6:05 - 6:08Sometimes at work I do hear voices
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6:08 - 6:11and actually people having a conversation
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6:11 - 6:12make the hallucination worse.
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6:12 - 6:14>> We're having a really good time.
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6:14 - 6:17(diners laughing)
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6:17 - 6:18>> I start confusing human voices
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6:18 - 6:21with the voices of the psychoses.
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6:22 - 6:25And I can't really, and the voices
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6:25 - 6:28just start all blending together.
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6:30 - 6:32Sometimes it's really
difficult to tune them out, -
6:32 - 6:35but I really, I just
sort of bite my tongue -
6:35 - 6:37and I just keep going.
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6:39 - 6:40What?
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6:40 - 6:41>> I said I think that oughta be plenty.
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6:41 - 6:43>> Okay.
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6:43 - 6:44(diners chattering)
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6:44 - 6:46>> Nice.
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6:46 - 6:48It looks very good.
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6:48 - 6:51(diners chattering)
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7:00 - 7:03Probably about two years
ago I felt like somebody -
7:03 - 7:05was, like, watching me do my homework
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7:05 - 7:08and then I just started hearing
these voices from the sky. -
7:08 - 7:10I was in my dorm room for three days.
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7:10 - 7:12I didn't eat, I didn't sleep
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7:12 - 7:16and I went from being a really
functional, outgoing student, -
7:18 - 7:20I had a complete nervous breakdown.
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7:20 - 7:22I couldn't cross the street.
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7:22 - 7:25I almost got killed by a bus.
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7:26 - 7:30Eight hours would go by,
it seemed like a minute. -
7:30 - 7:32I'd just be in, like, this
trance in this little world -
7:32 - 7:36and you couldn't talk to me
and I couldn't hear anybody. -
7:38 - 7:39I did my work.
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7:39 - 7:41I turned my papers in on
time, but I'd be alone -
7:41 - 7:45in my solitude and I'd just
be crying all the time. -
7:45 - 7:46I got to the point where I was like
-
7:46 - 7:48I can't live this way and I would swallow
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7:48 - 7:50a box of sleeping pills
and then I'd change my mind -
7:50 - 7:52and I'd make myself throw them up.
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7:52 - 7:55And I never told anybody
but I'd always get up -
7:55 - 7:58the next day and I'd take
a shower and comb my hair -
7:58 - 8:02and turn in my Greek
homework and nobody knew. -
8:04 - 8:06Nobody knew I was having problems.
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8:09 - 8:11>> I met you last week.
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8:11 - 8:12>> Mm-hm.
>> Yes. -
8:14 - 8:15Okay.
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8:19 - 8:21>> Has there been a period of time
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8:21 - 8:24where you've gone a week
or more without voices? -
8:24 - 8:26>> No, I hear them all the time.
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8:26 - 8:28>> So it's a constant
daily struggle for you. -
8:28 - 8:29>> Yeah.
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8:29 - 8:33>> What we're gonna do
is start Clozapine today. -
8:34 - 8:36Everything seems fine.
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8:36 - 8:38Your white blood cell count is fine,
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8:38 - 8:39which means that we can go ahead
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8:39 - 8:41and start the Clozapine, okay?
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8:41 - 8:44So, the most important
side effect is the risk -
8:44 - 8:46of the medication lowering
your white blood cell count. -
8:46 - 8:47>> Right.
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8:47 - 8:50>> So that's why when
you return to school, -
8:50 - 8:52you'll have to get a
blood test once a week. -
8:52 - 8:55See the doctor and get your medication.
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8:55 - 8:57>> You just wanna pull your sweater up.
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8:57 - 9:01>> Naomi is someone who
seems to have schizophrenia. -
9:01 - 9:05Clozapine is a new
medication that we have found -
9:05 - 9:09to be superior to all other
antipsychotic medications, -
9:09 - 9:14so if there's any hope for
Naomi to remain functional, -
9:14 - 9:15Clozapine is it.
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9:32 - 9:37>> Right now, like I'm really
sick, so, it's frightening. -
9:38 - 9:40You know, I hear voices
and the more stressed -
9:40 - 9:43and worried I am the harder
they are to deal with -
9:43 - 9:47because then the voices
tend to be very negative. -
9:47 - 9:49So that, like, the more I
worry and the more I stress, -
9:49 - 9:53the more negative they are,
the more distracting they are. -
9:55 - 9:58I think it's just a downward cycle.
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10:06 - 10:11There's nothing worse in this
world than losing your sanity. -
10:11 - 10:12I grew up with it.
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10:12 - 10:14I was used to seeing it.
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10:14 - 10:16All I knew was insanity.
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10:16 - 10:19(somber orchestral music)
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10:19 - 10:21My father has manic depression.
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10:21 - 10:24My middle brother is
also a manic depressive -
10:24 - 10:27and my mom is schizophrenic.
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10:27 - 10:30My mom was committed after I was born.
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10:30 - 10:32She had shock treatments.
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10:33 - 10:36She's been sick my whole life.
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10:39 - 10:40I was used to it.
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10:40 - 10:42I was used to her screaming obscenities
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10:42 - 10:46and talking to herself
and carrying around knives -
10:46 - 10:49and I could never understand why.
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10:49 - 10:50I never understood, why don't you stop it?
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10:50 - 10:52Why don't you stop it and be my mommy.
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10:52 - 10:54Why are you saying all
these irrational things -
10:54 - 10:55I can't understand.
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11:05 - 11:07What frightens me the most is that,
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11:07 - 11:10you know, that I end up like my mother.
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11:15 - 11:16I wanna leave my mark on the world.
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11:16 - 11:19Not a big mark, just a
little mark, you know. -
11:19 - 11:21I wanna be an English professor,
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11:21 - 11:23so maybe like an old dusty
book in a library somewhere -
11:23 - 11:27that nobody reads, a
few classes, you know. -
11:31 - 11:34And there's just certain
things I just wanna fulfill -
11:34 - 11:36and it's frightening sometimes.
-
11:36 - 11:38I don't know if I can do it.
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11:46 - 11:47>> Glen?
>> Yeah. -
11:47 - 11:48>> Hi, I'm Kathy Moony.
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11:48 - 11:50I'm one of the nurses
here in the holding area -
11:50 - 11:51and I'm gonna take you
in and get you ready -
11:51 - 11:52for surgery, okay?
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11:52 - 11:54>> Okay.
>> So come with me. -
12:01 - 12:06(patients and doctors chattering)
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12:06 - 12:10Okay, I'm just gonna have you
remove your bathrobe, okay? -
12:10 - 12:12Yeah, and you can get
right up onto this bed -
12:12 - 12:14and I'll cover you up with a blanket.
-
12:14 - 12:15>> This is the frame you're gonna wear
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12:15 - 12:17when we do the MR scan.
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12:17 - 12:20It's not too heavy, and we just put it
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12:20 - 12:22right on your head like so.
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12:22 - 12:23Get it over your nose.
>> I've been -
12:23 - 12:25a photographer all my life.
-
12:25 - 12:30About three years ago I had to
give it up due to my illness. -
12:30 - 12:34>> If you feel any sharp
pain, you just let us know. -
12:34 - 12:35We can put some more freezing--
-
12:35 - 12:38>> I have obsessive compulsive disorder
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12:38 - 12:43and you can't have OCD
and be a happy person. -
12:43 - 12:45It just doesn't work that way.
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12:45 - 12:47>> Just on the left.
>> Just on the left side? -
12:47 - 12:50>> Because you do things that you know
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12:50 - 12:53are actually very stupid
and you know better -
12:54 - 12:57and you just can't stop it.
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12:58 - 13:02I can look at things and I
don't believe what I see. -
13:02 - 13:05And therefore I don't double check,
-
13:05 - 13:09I check 10, 15, 20, 30
times the same thing. -
13:10 - 13:14I check things because
everything has to be perfect. -
13:15 - 13:19I have to make sure my shoes
are laced up exactly perfect. -
13:20 - 13:23I'll go into my closet and
I gotta check to make sure -
13:23 - 13:24that it's my coat.
-
13:24 - 13:25Well, nobody lives with me.
-
13:25 - 13:27Naturally it's my coat.
-
13:29 - 13:31I wanna stay clean.
-
13:33 - 13:36A little is good, more is better
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13:36 - 13:40so the hotter the water,
the cleaner my hands. -
13:41 - 13:45The more soap I use, the cleaner my hands.
-
13:46 - 13:49And I would say in a day I use anywhere
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13:49 - 13:52from a bar of soap to a
bar and a half of soap. -
13:52 - 13:55I could be back here
anywhere from a minute -
13:55 - 13:58to an hour doing the same thing.
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14:00 - 14:03Sometimes I walk out and I will decide
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14:03 - 14:06to take my shoes off and come back in
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14:06 - 14:08and repeat the whole thing again.
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14:09 - 14:12Like, I've lost all my confidence
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14:12 - 14:14in the mechanics of the camera.
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14:16 - 14:20I would be checking everything so much
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14:20 - 14:24that finally the dad or the
groom would yell down to me, -
14:24 - 14:26"Would you take your damn picture?"
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14:26 - 14:30(somber orchestral music)
-
14:32 - 14:34When I was growing up I was very shy
-
14:34 - 14:38and at a very young age
never wanted to get dirty. -
14:39 - 14:42I knew something wasn't right.
-
14:43 - 14:47And it's reasons, I've
been divorced twice. -
14:50 - 14:54My girlfriend is the real
reason I'm here today, -
14:54 - 14:58kinda risking my life
to have this operation. -
15:06 - 15:09I'm pretty nervous now
and I'm pretty scared. -
15:09 - 15:11And a lot of things could go wrong
-
15:11 - 15:13that would be a thousand times worse
-
15:13 - 15:15than just washing my hands.
-
15:15 - 15:16>> Here you can see
-
15:16 - 15:18the selected target site in the cingulum.
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15:18 - 15:22And the tip of our electrode
will be inserted down -
15:22 - 15:24to this point and the lesion will be made
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15:24 - 15:27in the anterior cingulum just like so.
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15:27 - 15:30One on the right, one on the left.
-
15:32 - 15:36The cingulotomy is an
operation on the brain. -
15:36 - 15:37We actually destroy a small part
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15:37 - 15:41of the brain that is hyperactive.
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15:41 - 15:45(suspenseful orchestral music)
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15:46 - 15:48Now Glen, this shouldn't hurt.
-
15:48 - 15:50You may feel some
pressure, but it shouldn't -
15:50 - 15:51hurt you at all, okay?
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15:51 - 15:52>> All right.
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15:52 - 15:54>> In the past surgery procedures
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15:54 - 15:56that were done were crude.
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15:58 - 16:01That's not hurting you, right?
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16:01 - 16:03You just hear a sound and a vibration?
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16:03 - 16:05The lobotomies that were performed
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16:05 - 16:06in the '30s and '40s were done
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16:06 - 16:09because there was no
other effective treatment, -
16:09 - 16:10but five to 10 percent of the people
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16:10 - 16:12died from the operation.
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16:12 - 16:15(dramatic orchestral music)
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16:15 - 16:19It was a procedure that was
almost indiscriminately applied. -
16:19 - 16:20>> Transorbital lobotomy
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16:20 - 16:23has further advantages in
that it leaves no scar. -
16:23 - 16:25It is performed through an operating field
-
16:25 - 16:28that is normally sterile
and the stiff tarsal plate -
16:28 - 16:29forms an ideal reinforcement--
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16:29 - 16:30>> There were tremendous side effects
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16:30 - 16:33associated with the procedure.
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16:33 - 16:36There was cognitive impairment, seizures,
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16:36 - 16:39memory disturbance, personality change.
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16:43 - 16:46The cingulotomy is a very safe procedure.
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16:46 - 16:49(soft orchestral music)
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16:49 - 16:52First we're gonna insert the probe.
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16:53 - 16:55Can you wiggle your toes, Glen, again?
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16:55 - 16:57Good.
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16:57 - 16:59Okay, we're gonna start the lesion.
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16:59 - 17:00Get a temperature.
-
17:00 - 17:02>> (mumbles) degrees.
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17:02 - 17:04>> Okay, we're making the lesion.
-
17:04 - 17:06Make the lesion.
-
17:06 - 17:07Temperature going up.
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17:10 - 17:12How you doing, Glen?
-
17:12 - 17:13>> Okay.
>> You okay? -
17:13 - 17:15>> Yeah.
-
17:16 - 17:17>> We're almost done now, all right?
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17:17 - 17:20You've done very, very well.
-
17:20 - 17:22Everything's gone just fine.
-
17:24 - 17:25We're almost done.
-
17:25 - 17:28We're just closing the skin.
-
17:28 - 17:28We'll get this frame off your head
-
17:28 - 17:30and put a little bandage on and get you
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17:30 - 17:32onto a more comfortable bed.
-
17:35 - 17:36I got your neck.
-
17:38 - 17:41Oh, watch his nose.
-
17:41 - 17:45Okay, now get him a pillow,
get him a comfy pillow here. -
17:45 - 17:47Great, wiggle your fingers for us.
-
17:47 - 17:49Great.
-
17:49 - 17:50You did very well.
-
17:50 - 17:51You can still play the piano.
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17:51 - 17:51>> Still play the piano.
-
17:51 - 17:52>> Great.
-
17:52 - 17:53>> Could you play it before?
-
17:53 - 17:55>> No.
(doctors and nurses chuckle) -
17:55 - 17:57>> Glen, everything went very nicely
-
17:57 - 17:58and you did very well, okay?
-
17:58 - 17:59>> Huh?
-
17:59 - 18:00>> Everything went very nicely.
-
18:00 - 18:01>> Huh?
>> (chuckles) You did well. -
18:01 - 18:04(nurses chuckling)
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18:22 - 18:25(orchestral music)
-
18:33 - 18:34>> Over the last two years
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18:34 - 18:38there's been a very serious depression.
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18:41 - 18:42Then over the last six months
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18:42 - 18:45it's gotten increasingly worse.
-
19:04 - 19:06Physically it gets to the point
-
19:06 - 19:09where all I can do is lay in bed all day.
-
19:09 - 19:12And mentally and emotionally
it gets to the point -
19:12 - 19:16where I'd rather be dead
than living the way I am. -
19:17 - 19:22It's not such an active
feeling of death or suicide. -
19:22 - 19:23There's just a feeling that
nothing can be worse than that -
19:23 - 19:28and the only way to alleviate
the pain is to be dead. -
19:31 - 19:34I'm holding off a real
attempt towards suicide -
19:34 - 19:36because if I do try it again,
-
19:37 - 19:39I don't want it to be
something that fails. -
19:39 - 19:42I want it to be something
that'll be successful, -
19:42 - 19:45so I won't have to go through the trouble
-
19:45 - 19:49or the misery of having to
face everyone if it failed. -
19:54 - 19:58I'm a musician and I
haven't been able to play. -
19:58 - 20:00All I see is the thing
that I've prepared to do -
20:00 - 20:03my whole life is just not going anywhere.
-
20:03 - 20:06(orchestral music)
-
20:06 - 20:09The first time I ever played music I guess
-
20:09 - 20:13was when I was two I used to
crawl up and play the piano. -
20:15 - 20:18I started playing viola when I was nine.
-
20:18 - 20:22I went to Juilliard for my Masters Degree.
-
20:22 - 20:23I played with the Juilliard Orchestra
-
20:23 - 20:25in New York and in France and I played
-
20:25 - 20:27with the Tanglewood
Music Center Orchestra, -
20:27 - 20:29the Boston Philharmonic Orchestra.
-
20:29 - 20:33It's just the thing
I've always wanted to do -
20:35 - 20:39and it's not gonna be
possible if I'm like this. -
20:42 - 20:44It feels like this is my last hope
-
20:44 - 20:48for something that can
completely make me well. -
20:50 - 20:51>> Come on in and we're
gonna do the treatment -
20:51 - 20:52in a couple of minutes.
-
20:52 - 20:54>> Okay.
-
20:54 - 20:57(machines beeping)
-
21:02 - 21:06>> Doctor Drop is going to
inject your medications, -
21:06 - 21:08a short acting sleeping medication
-
21:08 - 21:10and then a muscle relaxant.
-
21:10 - 21:13For you it's gonna be like
taking a five minute nap. -
21:13 - 21:14>> Okay.
>> All right? -
21:14 - 21:18You're gonna be going to
sleep in a few seconds. -
21:21 - 21:22Okay, you're gonna start to feel yourself
-
21:22 - 21:25getting a little sleepy now.
-
21:25 - 21:28(machine beeping)
-
21:39 - 21:41Electroconvulsive therapy is simply
-
21:41 - 21:44the intentional induction
of a grand mal seizure -
21:44 - 21:48under very controlled circumstances.
-
21:48 - 21:51For some reason seizure
normalizes brain chemistry -
21:51 - 21:54through mechanisms that we
really don't understand. -
21:54 - 21:57The treatment electrodes are going on.
-
21:58 - 21:59Looks good.
-
22:01 - 22:03Now, if we didn't medicate
the patient first, -
22:03 - 22:05it would be a violent treatment
-
22:05 - 22:08and it was when it was first invented.
-
22:08 - 22:11(somber orchestral music)
-
22:14 - 22:17During the post-war era,
the treatment was overused -
22:17 - 22:20and sometimes indiscriminately used.
-
22:29 - 22:32Patients frequently had bone fractures
-
22:33 - 22:38during this treatment before
the use of muscle relaxants. -
22:38 - 22:41In the past ECT was done with a technique
-
22:41 - 22:45which caused a great deal
of memory disturbance. -
22:45 - 22:48And consequently I think
many people experienced -
22:48 - 22:52severe impairment of their
memory and their intellect. -
22:55 - 22:58It's a different
treatment now technically. -
23:01 - 23:02Here's the stimulus.
-
23:10 - 23:15>> We're at .75 seconds stimulus duration.
-
23:15 - 23:18(machine beeping)
-
23:23 - 23:26>> Good seizure, good generalization.
-
23:30 - 23:33And that's the end of the seizure.
-
23:33 - 23:33>> Done.
-
23:36 - 23:37>> You had your treatment.
-
23:37 - 23:39You're all done, okay?
-
23:39 - 23:42Probably feelin' a little
bit groggy right now. -
23:42 - 23:45All right, but that's from the medication.
-
23:53 - 23:57>> I've been feeling very
bad for about two years. -
24:03 - 24:07And now I had my ECT, my first
ECT treatment two days ago -
24:08 - 24:11and now I feel miraculously better
-
24:12 - 24:15and that isn't just an
adverb to go with it. -
24:15 - 24:17It really is miraculous.
-
24:17 - 24:19I think, um...
-
24:23 - 24:25Just everything, I mean,
-
24:27 - 24:30the way I'm thinking, the way I feel,
-
24:30 - 24:33the way I look at everything and can see
-
24:33 - 24:36and perceive everything is different now.
-
24:39 - 24:42(viola music)
-
25:07 - 25:09(viola music goes out of tune)
-
25:09 - 25:11Oh, I can't do this.
-
25:11 - 25:14(viola music)
-
25:15 - 25:16I can't do this.
-
25:18 - 25:22(out of tune viola music)
-
25:40 - 25:44It makes me sad that I can't
play my viola. (exhales) -
25:49 - 25:50But I don't know.
-
25:50 - 25:54I just don't know how
I'm supposed to feel now. -
26:02 - 26:03>> So it's been awhile.
-
26:03 - 26:05>> Yeah.
>> Yeah. -
26:05 - 26:07About almost three months really.
-
26:07 - 26:08>> Yeah.
-
26:08 - 26:11>> The medication, what's it been like?
-
26:11 - 26:13The Klonopin.
>> I've had, like, -
26:13 - 26:15a really hard time with it.
-
26:15 - 26:16>> Yeah.
>> It's just very hard -
26:16 - 26:17for me to get up in the morning.
-
26:17 - 26:22I'm very sick in the morning
and I'm still hearing voices. -
26:22 - 26:25I took a harder schedule than I should've.
-
26:25 - 26:26I was fine.
-
26:26 - 26:28Like, I went to school and
I had the psychotic symptoms -
26:28 - 26:30and stuff, but my classes weren't,
-
26:30 - 26:32I mean, I learned a lot, they were hard,
-
26:32 - 26:34but they weren't as hard as this.
-
26:34 - 26:36So, I'm gonna have to
take incomplete or two -
26:36 - 26:41and falling a little behind,
but I'm dealing with it. -
26:41 - 26:43Like, people need their solitude?
-
26:43 - 26:45Like, I don't feel like
I have a private life -
26:45 - 26:48or any sort of solitude at all.
-
26:49 - 26:52>> Okay, so it's a really hard time.
-
26:52 - 26:53>> Yeah.
>> Yeah. -
27:19 - 27:22>> Are you still optimistic?
-
27:22 - 27:24>> I don't know, I guess
should be 'cause they say -
27:24 - 27:26part of it is psychological.
-
27:26 - 27:28Like, you have to want the
medicine to work to work, -
27:28 - 27:32so I guess I should be,
but I'm a little skeptical. -
27:32 - 27:33>> I mean, I am a little,
-
27:33 - 27:37this is, like, the fifth
medicine I've been on. -
27:39 - 27:43I want it to work but at the same time
-
27:43 - 27:46I sort of wonder if I'm
gonna have to live this way -
27:46 - 27:48for the rest of my life.
-
27:53 - 27:56(siren blaring)
-
28:13 - 28:14>> Hi, Naomi?
-
28:20 - 28:24I just wanna make sure you're
clear on what's happening. -
28:25 - 28:29You know from what I've
heard from your roommate, -
28:29 - 28:32you know, and also from your brother,
-
28:32 - 28:34Harry called me as well.
-
28:34 - 28:35I know that things apparently got
-
28:35 - 28:38out of control in the apartment.
-
28:42 - 28:44Apparently at this point we're gonna
-
28:44 - 28:46have to try something different.
-
28:48 - 28:50Unfortunately, the Clozaril just wasn't
-
28:50 - 28:53doing what we hoped it would.
-
28:54 - 28:56All right, I know you don't wanna talk
-
28:56 - 29:00and so I don't wanna push you about that.
-
29:00 - 29:02Okay, but we will try
to do whatever we can -
29:02 - 29:04to make you comfortable.
-
29:05 - 29:08You know, if you have
questions please ask. -
29:08 - 29:12If you have questions about
what's going on, please ask. -
29:12 - 29:14We'll explain it to you.
-
29:15 - 29:17You know, and as we come up with a plan
-
29:17 - 29:19about what to do about the medication
-
29:19 - 29:22to try to control the symptoms,
-
29:22 - 29:25you know obviously we'll go over that
-
29:25 - 29:27and explain that with you also.
-
29:27 - 29:31(somber orchestral music)
-
29:32 - 29:35Is there anything you
want to say or ask me? -
29:43 - 29:43Okay.
-
29:47 - 29:50Okay, so I'm gonna be going now.
-
30:02 - 30:05(waves crashing)
-
30:15 - 30:17>> This is nice isn't it?
-
30:17 - 30:19It's beautiful.
-
30:19 - 30:22They've got goldfish, turtles,
-
30:23 - 30:25minnows, guppies.
-
30:26 - 30:27This is paradise.
-
30:27 - 30:29To me this is medication, you know.
-
30:29 - 30:31Makes me wanna sing.
-
30:32 - 30:34♫ Edel-vine
-
30:34 - 30:37♫ Edel-vine
-
30:37 - 30:40♫ Dance may you bloom and grow
-
30:40 - 30:44♫ Bloom and grow forever
-
30:49 - 30:53You might wanna catch the
front and see the eagle. -
30:56 - 31:00The truth is I get high
without taking my medications. -
31:01 - 31:04Anybody that's addicted to highs
-
31:04 - 31:05doesn't wanna give it up.
-
31:05 - 31:06Nobody wants to come down.
-
31:06 - 31:08I don't wanna come down.
-
31:08 - 31:09I am still alive!
-
31:11 - 31:14I'd rather live with my disease
than take these damn pills. -
31:14 - 31:17I've struggled with this
bastard disease my whole life. -
31:17 - 31:20>> What are you doin' up there, Todd?
-
31:20 - 31:21>> Being me.
-
31:21 - 31:25It's like this big huge
rock that I have to carry. -
31:25 - 31:28And I don't ask no one to
help me carry this rock. -
31:28 - 31:30I'll carry my own self.
-
31:31 - 31:32That's beauty.
-
31:32 - 31:34That's an eagle!
-
31:34 - 31:34Woo!
-
31:36 - 31:39I don't have anybody
tellin' me what to do. -
31:39 - 31:42I don't have to do nothing.
-
31:43 - 31:45I do what Todd wants to do.
-
31:49 - 31:50I control my life.
-
31:51 - 31:52Go guys!
-
31:52 - 31:53Suppertime!
-
31:57 - 32:01I like these seagulls
better than I do humans. -
32:01 - 32:05(somber orchestral music)
-
32:08 - 32:11>> When he was younger he
was just kinda carefree -
32:11 - 32:12like any other baby.
-
32:14 - 32:16He didn't start changing until he had
-
32:16 - 32:19to start nursery school at age four.
-
32:20 - 32:22And then he found it a little hard
-
32:22 - 32:24to adjust to other children.
-
32:26 - 32:29He just became overwhelmed easily.
-
32:32 - 32:34You know, he was a cute little guy.
-
32:34 - 32:35Real cute.
-
32:36 - 32:41You know, real playful and
he was extremely athletic. -
32:41 - 32:43He was very active,
always wanted to travel -
32:43 - 32:46'cause he was kind of a restless boy.
-
32:57 - 32:59And then he was real, real good in sports
-
32:59 - 33:02in high school and that he lived for.
-
33:04 - 33:06He did real well with that
up until his sophomore year -
33:06 - 33:10when he had a real bad
race 'cause he fell down. -
33:10 - 33:11He fell down at the state meet
-
33:11 - 33:15and the coach thought he was on drugs.
-
33:15 - 33:16And of course it was totally devastating
-
33:16 - 33:19and then he, all the kids,
he wasn't voted captain -
33:19 - 33:22the next year and so he quit.
-
33:22 - 33:24So it was very traumatic for him.
-
33:26 - 33:29(somber orchestral music)
-
33:31 - 33:33We're a middle class working family
-
33:33 - 33:35and you don't expect these things
-
33:35 - 33:38to happen to your children.
-
33:38 - 33:40You don't expect to have a child go out
-
33:40 - 33:44in the street and sleep
and that's very hard. -
33:47 - 33:49>> I donate plasma.
-
33:49 - 33:51I get Social Security.
-
33:51 - 33:55And, uh, I go to churches and
I basically ask, you know. -
33:56 - 33:58>> And how much do you
get for donating plasma? -
33:58 - 34:00>> $10, that's it.
-
34:00 - 34:03And you get colds like
you wouldn't believe. -
34:03 - 34:07You get colds, you get
sick, you feel drained. -
34:07 - 34:11Sometimes you feel like you
wanna pass out, you know? -
34:11 - 34:13But ya need money, you know?
-
34:13 - 34:14Ya need to survive.
-
34:15 - 34:18And if they found out I was mentally ill
-
34:18 - 34:20they'd cut me off just like that.
-
34:22 - 34:26Come follow me and I'll show you my home.
-
34:27 - 34:29I live right behind the
Greyhound Bus station. -
34:29 - 34:30That's my home.
-
34:36 - 34:37Come on.
-
34:37 - 34:38This is my patio.
-
34:42 - 34:43And this is my home.
-
34:43 - 34:45Home sweet home.
-
34:48 - 34:50It doesn't bother me.
-
34:50 - 34:51Maybe it bothers my body.
-
34:51 - 34:53My body might break down
but my mind doesn't mind, -
34:53 - 34:55you know what I mean?
-
34:55 - 34:57>> What's that over there on the wall?
-
34:57 - 34:59>> That's feces.
-
34:59 - 35:00It's shit.
-
35:01 - 35:03It's how I mark my territory.
-
35:03 - 35:05>> What do those marks mean?
-
35:05 - 35:07>> You're not welcome.
-
35:07 - 35:09They're already checkin'
us out, we should go. -
35:09 - 35:10>> Who's checkin' us out?
>> That guy did. -
35:10 - 35:11Let's go.
-
35:11 - 35:13>> Does he know you sleep there?
-
35:13 - 35:14>> No.
-
35:17 - 35:19My freedom is the most
meaningful thing of my life. -
35:19 - 35:22I'm not gonna give it up for nobody.
-
35:24 - 35:27You don't understand that I'm at war.
-
35:27 - 35:29Let's bail, gentlemen.
-
35:29 - 35:29I'm at war.
-
35:32 - 35:33And I'm winning.
-
35:34 - 35:37You see me locked in a nut ward?
-
35:37 - 35:38I am winning.
-
35:43 - 35:46(airplane rumbling)
-
35:58 - 36:01>> Well, I came here
from Seattle to follow up -
36:01 - 36:05on my surgery and I brought
my girlfriend, Maureen, -
36:05 - 36:08for company and because I was nervous.
-
36:08 - 36:10>> Have you noticed any improvement,
-
36:10 - 36:12any worsening in any way?
-
36:15 - 36:19>> When he's with me he seems okay.
-
36:19 - 36:20>> Yeah.
-
36:20 - 36:24>> I think the biggest
disappointment in it for me -
36:24 - 36:28is that in my private life
when Maureen is not around -
36:30 - 36:34and I'm in my own apartment and whatever,
-
36:34 - 36:37is that I'm no different than I was.
-
36:37 - 36:38I'm no different.
-
36:39 - 36:41>> I think I see an improvement.
-
36:41 - 36:45Well, when I first met Glen
he could not shoot anymore. -
36:45 - 36:47We now do weddings together
-
36:49 - 36:53and before he could not trust his f-stop.
-
36:55 - 36:57>> Clearly the underlying illness has not
-
36:57 - 37:01been dramatically changed,
although there are some modest, -
37:01 - 37:04I guess you would agree
maybe modest improvements. -
37:04 - 37:07Having said that, there
is a percentage of people -
37:07 - 37:09that will get better after a second
-
37:09 - 37:10and after a third procedure.
-
37:10 - 37:14The operation is exactly
the same as the first one. -
37:14 - 37:16The lesions we make on the first time
-
37:16 - 37:19are fairly small, and the second procedure
-
37:19 - 37:20we simply enlarge that.
-
37:20 - 37:24What would you think
about a second procedure? -
37:25 - 37:29>> Not right away because
the first procedure -
37:31 - 37:33was so painful that I still
-
37:35 - 37:36remember it.
>> You remember it. -
37:36 - 37:37>> So vividly.
-
37:39 - 37:40And also...
-
37:43 - 37:44it's too soon.
-
37:44 - 37:47>> It's easy for me to
say, but it seems like -
37:47 - 37:50to go this far and not
pursue it to the end -
37:50 - 37:52would seem kind of futile.
-
37:55 - 37:58>> Okay, that's good right there.
-
37:58 - 38:00Lower your head down just a little bit.
-
38:00 - 38:01That's fine.
-
38:01 - 38:03(camera clicks)
-
38:03 - 38:03>> Great.
-
38:03 - 38:04Pose me.
-
38:04 - 38:05>> I'll be gettin' one more.
-
38:05 - 38:09>> When I first met Glen,
his hands were cracked -
38:09 - 38:13and bleeding and bleeding
all over the cameras. -
38:13 - 38:15>> I'm gonna bracket a couple.
-
38:15 - 38:18>> Now they look much better.
-
38:20 - 38:23My fear is that he'll give up.
-
38:23 - 38:24>> That's it.
-
38:25 - 38:26>> I keep tellin' him,
-
38:26 - 38:29you're not out to pasture yet.
-
38:29 - 38:30You can improve.
-
38:31 - 38:32>> That's what I want, just like that.
-
38:32 - 38:34I just end up going back
and forth to doctors. -
38:34 - 38:36Things just keep creepin' up
-
38:36 - 38:39and I get older everyday and
pretty soon I'm thinkin', -
38:39 - 38:41you know, by the time I,
if I ever do get cured, -
38:41 - 38:43I'll be so old I'll probably
die within three days -
38:43 - 38:45after I get cured.
-
38:45 - 38:47That's beautiful.
-
38:47 - 38:49Hold on a second.
-
38:49 - 38:52(camera clicks)
-
38:53 - 38:55With the windsurfer.
-
38:55 - 38:57(camera clicks)
-
39:01 - 39:02>> I don't know.
-
39:02 - 39:05I don't know what I'm doing with my life.
-
39:06 - 39:10Right now I just wanna
get through college. -
39:11 - 39:13Well, since I've been in the hospital
-
39:13 - 39:15I slowly started getting better.
-
39:15 - 39:17I was really frightened
and paranoid for awhile. -
39:17 - 39:19I wouldn't talk to anybody
-
39:19 - 39:21and they put me on Depakote and Risperdal.
-
39:21 - 39:23Then I slowly started getting better.
-
39:23 - 39:25I started feeling better.
-
39:28 - 39:29>> What's going on now
-
39:29 - 39:31in terms of hearing voices?
-
39:31 - 39:33>> I don't hear any voices.
-
39:37 - 39:39>> You don't hear any voices at all?
-
39:39 - 39:43>> I hear two, but they're
not, they're pleasant. -
39:43 - 39:47And they're very vague and
they're very far removed from me. -
39:50 - 39:53I'm working at the Barnard
Book Forum right now. -
39:53 - 39:56It's right across the
street from my school. -
39:56 - 39:58According to this it's $2.95.
-
39:58 - 40:00>> $2.95, okay.
-
40:00 - 40:02>> I wish I was graduating.
-
40:02 - 40:05I feel like I've been left behind.
-
40:05 - 40:09But I'm going back to school
and I'll graduate eventually. -
40:13 - 40:14Most of my symptoms have gone away.
-
40:14 - 40:16I don't really hear anything anymore
-
40:16 - 40:19and I don't really feel sick anymore.
-
40:19 - 40:22Like, I feel normal again.
-
40:22 - 40:24>> After how long?
-
40:24 - 40:25>> Three years.
-
40:26 - 40:28>> Must be a great feeling.
-
40:28 - 40:29>> Yeah.
-
40:30 - 40:32It's a good feeling.
-
40:32 - 40:34I had to make an adjustment, though.
-
40:34 - 40:36Like, the voices sort of kept me company.
-
40:36 - 40:38Like, I'd have these long
philosophical conversations -
40:38 - 40:40with them about life and God.
-
40:40 - 40:43I know that sounds really
crazy, but it was interesting. -
40:43 - 40:47And now I'm, like, by myself all the time.
-
40:47 - 40:48So it's kind of weird.
-
40:48 - 40:51The silence is a little eerie sometimes.
-
40:51 - 40:54But I'm doing much better.
-
41:02 - 41:04I think a combination of
Adam and the medication -
41:04 - 41:06has helped my recovery.
-
41:06 - 41:07I can't get up.
-
41:07 - 41:08>> Want some help?
-
41:09 - 41:11>> Adam's really
supportive, he's very sweet. -
41:11 - 41:12Whoa!
-
41:12 - 41:14He's very caring.
-
41:15 - 41:18And he's just a very special person
-
41:18 - 41:18>> Whoa.
-
41:18 - 41:20>> You can't get me up.
-
41:20 - 41:21I can't get up.
-
41:21 - 41:23>> You can hold on, come on.
-
41:23 - 41:24>> Woo!
-
41:26 - 41:28I've been seeing him
for about five months, -
41:28 - 41:29five and a half months.
-
41:29 - 41:31>> That hurt?
-
41:31 - 41:32>> It hurt my wrist.
-
41:32 - 41:34He introduced himself when
I was in the hospital. -
41:34 - 41:36I was leaning against the wall.
-
41:36 - 41:37I was selectively mute.
-
41:37 - 41:39I was a little paranoid delusional.
-
41:39 - 41:43I was dressed in this
horrible hospital gown, -
41:43 - 41:44just looked terrible.
-
41:44 - 41:46He came up to me and introduced himself
-
41:46 - 41:47and he told me later 'cause he thought
-
41:47 - 41:50I looked cute. (laughs)
-
41:54 - 41:56When I was in St. Luke's
I would never imagine -
41:56 - 42:00that six months later I would
have a very sweet boyfriend. -
42:02 - 42:03I really thought my life was over
-
42:03 - 42:05when I was on that gurney.
-
42:05 - 42:06I really thought everything was,
-
42:06 - 42:07I thought I was gonna
be committed for life. -
42:07 - 42:10I thought I was gonna be there forever.
-
42:11 - 42:15So, I have to try to rebuild
a new life for myself. -
42:15 - 42:18That's all very hard starting over.
-
42:18 - 42:20And you never know what happens.
-
42:20 - 42:22I could get sick again.
-
42:22 - 42:26So I'm sure it's gonna
be a very rough road. -
42:52 - 42:54>> Todd.
>> Yeah, hi. -
42:54 - 42:56>> What happened?
-
42:56 - 42:57>> Nothing.
-
42:57 - 43:01They just said that I smashed some windows
-
43:01 - 43:04and harassing phone calls.
-
43:04 - 43:08Nothing too, I didn't
kill nobody or nothin', -
43:08 - 43:09so it's not so bad.
-
43:09 - 43:13It's just some people's word over mine.
-
43:13 - 43:14>> How long have you been in for?
-
43:14 - 43:16>> Near a month.
-
43:16 - 43:17>> You've been in here for a month?
-
43:17 - 43:18>> Mm-hm.
-
43:18 - 43:21>> What's it like?
-
43:21 - 43:23>> It's violent.
-
43:23 - 43:24It's racial.
-
43:26 - 43:31I witnessed one dude get his
ear taken off in a fight. -
43:31 - 43:32I was laughin'.
-
43:32 - 43:34I was absolutely laughin'.
-
43:34 - 43:37You know, it was like
they were slow dancing -
43:37 - 43:38and this dude's got the
other dude by the ear, -
43:38 - 43:40he's goin' (growls).
-
43:40 - 43:42(men laugh)
-
43:42 - 43:45I had to get a laugh out of it, you know.
-
43:45 - 43:47>> How does this compare
to the state hospital? -
43:47 - 43:49You know, we first filmed you about--
-
43:49 - 43:51>> This is better than
the Lindemann Center. -
43:51 - 43:54This is better than the
Lindemann Center, okay? -
43:54 - 43:55It's better.
-
43:55 - 43:57>> Why?
-
43:58 - 44:01>> Don't have any roaches.
-
44:01 - 44:04The food is about the same.
-
44:04 - 44:06You got more area to walk around in.
-
44:06 - 44:07>> You'd rather be here
-
44:07 - 44:09than be in the hospital,
is that what you're saying? -
44:09 - 44:10>> Exactly. Exactly.
-
44:10 - 44:13Because here I know that
I can go to court, right? -
44:13 - 44:16And they can give me not as much time
-
44:16 - 44:18as what the Lindemann Center
woulda gave me, right? -
44:18 - 44:20You know how much time
they wanted to give me? -
44:20 - 44:22Six fucking months, all right.
-
44:22 - 44:23>> In that state hospital
-
44:23 - 44:25where we first filmed you.
>> In that state hospital. -
44:25 - 44:25Right, six months.
-
44:25 - 44:26>> Are you takin' your medicine?
-
44:26 - 44:28>> Yeah, I'm takin' my medicine.
-
44:28 - 44:32>> Does that make a difference for you?
-
44:32 - 44:35>> That was then, this is now.
-
44:35 - 44:37You know, things change with the weather.
-
44:37 - 44:39>> In other words, do
you need your lithium? -
44:39 - 44:40>> Yes, I do.
-
44:40 - 44:42I do need my lithium.
-
44:42 - 44:45That was a different person back then.
-
44:45 - 44:47A total different person.
-
44:47 - 44:50I'm a different person
when I'm off my medication. -
44:50 - 44:51>> Let me ask you,
-
44:51 - 44:54do you think you belong
here with convicts? -
44:54 - 44:55Or you think you belong in a hospital?
-
44:55 - 44:57Where do you belong?
-
44:59 - 45:01>> I don't know.
-
45:01 - 45:02I don't know.
-
45:03 - 45:04I don't know.
-
45:06 - 45:08(gavel thudding)
-
45:08 - 45:11(crowd chattering)
-
45:40 - 45:41>> The first number, 118.
-
45:41 - 45:43I might wanna double that also.
-
45:43 - 45:44>> Okay.
>> With him. -
45:44 - 45:47(musicians chattering)
-
45:52 - 45:55(instruments tuning up)
-
46:05 - 46:06>> This is the first time
-
46:06 - 46:10that I've been playing since I've had ECT.
-
46:10 - 46:12So I'm very nervous and just very anxious
-
46:12 - 46:14about having to see all these people
-
46:14 - 46:17and get back into a situation
where I'm actually playing. -
46:17 - 46:19I mean, it's really just been so long
-
46:19 - 46:22that I don't see myself so
much as a musician anymore. -
46:22 - 46:26I see myself more as a patient, actually.
-
46:27 - 46:28>> Measure nine.
-
46:32 - 46:34(orchestral music)
-
46:34 - 46:38>> So, it's something that
used to feel so natural -
46:38 - 46:41and so matter of fact
now feels so foreign. -
46:41 - 46:43So, I'm just nervous.
-
46:45 - 46:48>> It's outta tune.
-
46:49 - 46:51But no accent, no accent on that da-dum.
-
46:51 - 46:52The figure is
-
46:52 - 46:53♫ Daaa da dum
-
46:53 - 46:54not
-
46:54 - 46:56♫ Dum duh dum ba dum
-
46:56 - 46:59I need to hear the F sharp,
a really nice big F sharp. -
46:59 - 47:00♫ Ba ba bum
-
47:00 - 47:02♫ Baaa da dum
-
47:02 - 47:04You were changing the strength there?
-
47:04 - 47:05>> Yeah.
-
47:05 - 47:06>> Can you not do that?
-
47:06 - 47:07>> I'm doing it (mumbles).
-
47:07 - 47:08>> Can you do it all one string?
-
47:08 - 47:09Yeah.
-
47:10 - 47:11Bar nine, one, two.
-
47:12 - 47:15(orchestral music)
-
47:38 - 47:40>> Through the rehearsals
over the last few days -
47:40 - 47:44it's just made me realize how
much I wanna do this again. -
47:44 - 47:46I mean, I feel like it's possible
-
47:46 - 47:50now that the depression is
kind of cleared out of my life. -
47:50 - 47:53For such a long time it was there
-
47:53 - 47:55and it was so overpowering
that I didn't think -
47:55 - 47:57there was any way I was
gonna be able to escape it. -
47:57 - 47:59I mean, it was just so consuming
-
47:59 - 48:02that I just didn't think any
of this would be possible. -
48:02 - 48:05(orchestral music)
-
48:05 - 48:09I feel like it's possible
to become a musician again. -
48:41 - 48:45(musicians chattering)
-
48:48 - 48:50Yeah, it was a great day.
-
48:50 - 48:51Yeah.
-
48:52 - 48:53It's just really...
-
48:53 - 48:54>> Bar 10?
>> Yeah. -
48:54 - 48:55>> You kicked some ass.
-
48:55 - 48:57>> Thanks, thanks.
-
48:57 - 49:01(somber orchestral music)
-
49:06 - 49:07>> One.
-
49:08 - 49:10(camera clicks)
-
49:10 - 49:11Beautiful.
-
50:19 - 50:23(rhythmic orchestral music)
-
52:28 - 52:32(static hissing)
(electronic tone reverberates) -
52:32 - 52:36(dramatic orchestral music)
- Title:
- Back From Madness: The Struggle For Sanity
- Description:
-
This 1996 documentary provides an insider's view of mental illness, amd the use of psychotropic drugs to alleviate some of its symptoms. Tracks the odyssey of four psychiatric patients, beginning with their arrival at Massachusetts General Hospital and the affiliated Lindemann Center, revealing their personal struggles and inner strength as they enter the world of psychiatric treatment to seek relief from insanity.
- Duration:
- 54:00
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MUDC edited English subtitles for Back From Madness: The Struggle For Sanity |