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Own your body's data

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    As a kid I've always loved information that I could get from data and the stories that could be told with numbers
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    I remember growing up I'll be frustrated on how my own parents would lie to me using numbers you know.
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    They lie to you about " I've told you once I've told you a thousand times"..no daddy, you've only told me 17 times and twice it wasn't my fault
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    I think that's one of the reasons I got a PhD in statistics you know, I always wanted to know what are people trying to hide with numbers
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    you know, as a statistician I want people to show me the data so I can decide for myself.
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    Donald and I were pregnant with our third child and we were at about 41 and a half weeks, what some of you may refer to as been overdue
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    Statisticians we call that being within the 95% confidence interval,
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    and at this point in the process we had to come in every couple of days to do a stress test, on the baby, and this is just routine
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    a test whether the baby is feeling any type of undo stress,
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    and you are rarely if ever seen by your actual Doctor just whoever happens to be working at the hospital that day.
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    So we are going for a stress test and after 20 minutes the Doctor comes out
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    and he says "your baby is on distress, we need to induce you"
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    now.. as a statistician what's my response? Show me the data!
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    so, then he proceeds to tell us the baby's heart rate trace went from 18 minutes, the baby's heart rate was on the normal zone
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    and for 2 minutes it was it what appeared to be my heart rate zone and I said
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    "well, is it possible that maybe this was my heart rate? I was moving around a little bit
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    is hard to lay still on your back, 41 weeks pregnant for 20 minutes you know,
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    maybe it was shifting around.
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    He said "well.. we don't want to take any chances"
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    I said Ok, what if I was at 36 weeks with the same data, would you decision be to induce?
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    Well, no, no I would wait until you were at lelast 38 weeks but you are almost 42
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    there is no reason to leave that baby inside let's get you a room.
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    I said Ok, I said well.. you know..
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    why don't we just do it again, we can collect more data!
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    I can try to be really still for 20 minutes we can sort of average the two and see, you know, what that means
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    and.. he goes, "well, Ma'm I just don't want you to hava a miscarriage"
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    That' makes 3 of us! And then he says you know your chances of having a miscarriage double
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    when you go past your due date, let's get you a room
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    Wow!.. so now as a statistician, what's my response?
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    Show me the data! dude you're talking chances, I do chances all day long, tell me all about chances, let's talk chances
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    let's talk chances!
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    So I said, ok, so do I go from like a 30% chance to a 60% chance, where are we here
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    with this miscarriage?.. and he goes.." uhm, not quite but it doubles and
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    we really just want what's best for the baby."
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    Undaunted, I tried to commingle. I said ok out of 1000 full term pregnant woman
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    How many of them are going to miscarry just before their due date?
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    And then he looks at me, and looks at Donald then he goes, "about 1 in a thousand".
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    I said Ok, Ok, and so of those 1000 women how many are going to miscarry
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    just after their due date? "about 2."
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    I said ok, so you are telling me that my chances go from 0.1% chance
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    to a 0.2% chance
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    Ok, so at this ppoint the data is not convincing us that we need to be induced
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    and so then we proceed to have a conversation about how inductions leads to a higher rate
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    of cesarean sections and if at all possible we'd like to avoid that
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    and then I said you know and I really don'think my due date is accurate
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    And so this really stunned him and he looks sort of puzzled
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    and I said, well you may not know this but pregnancy due dates are calculated
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    assuming that you have a standard 28 cycle
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    and my cycle ranges sometimes is 27 sometimes is up to 38
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    and I have been collecting the data to prove it.
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    And so... we endeded up leaving the hospital that day without being induced
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    we actually had to sign a waiver to walk out of the hospital
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    and I'm not advocating that you not listen to your Doctors, because even with our first child
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    we wre induced at 38 weeks, cervical fluid was low, I'm not anti-medical intervention
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    but why we were confident to leave that day? We had data that told a different story.
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    We have been collecting data for 6 years.
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    I had this temperature data, and it told a different story in fact,
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    we could proabably pretty accurately estimate conception, yeah..
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    conception, yeah.. That's a story you want to tell at your kids wedding reception..
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    "I remember like it was yesterday, my temperature was a sizzling 97.8 degrees..
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    as I stared into your father's eyes.. Oh yeah, oh yeah, 22 more years we're telling that story.
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    But we were confident to leave because we've been collecting data.
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    Now what does that data look like? Here's a standard chart
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    of a woman's waking body temperature during the course of a cycle.
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    So from the beginning of the menstrual cycle until the beginning of the next.
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    You'll see that the temperature is not random,
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    right there clearly there is a low pattern at the beginning of her cycle
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    and then you see this jump and then a higher set of temperatures at the end of her cycle.
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    So what's happening here? What is that data telling you? Well ladies, at the beginning of our cycle, the hormone estrogen is dominant
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    and that estrogen causes a suppression of your body temperature
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    and on ovulation, your body releases an egg and progesterone takes over, pro-gestation
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    and so your body heats up in anticipation of housing this new little fertilized egg.
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    So why this temperature jump? Think about when a bird sits on her eggs. Why is she sitting on them?
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    She wants to keep them warm, protect them and keeping them warm..
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    Ladies this is exactly what our bodies do every month, they heat up in anticipation
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    of keeping a new little life form, and if you are not pregnant
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    then estrogen takes back over and that cycle starts all over again,
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    but if you do get pregnant, sometime you actually see another shift in your temperatures
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    and it stays elevated for those whole 9 months
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    that's why you see those pregnagnt woman sweating and hot
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    because their temperatures are high!
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    here is a chart that we had about 3 or 4 years ago
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    we were really excited about this chart, you'll se the low temperature level
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    and then a shift and for about 5 days, that about the time it takes for the egg to travel
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    down the fallopian tube and implant
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    and then you see those temperature charts go up a little bit
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    and in fact, we had a second temperature shift
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    confirmed with a pregnancy test that were indeed pregnant
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    with our fist child, very exciting. Until a couple of days later
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    I saw some sporting and then I noticed heavy blood flow.
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    and we had in fact had an early stage miscarriage
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    and what appeared had I not been taking my temperature
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    I really just thought my period was late that month
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    but we actually had data to show that we had miscarried this baby
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    and even though this data revealed a really unfortunate event in our lives
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    it was information that we can then take to our doctor
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    so if there was a fertility issue or some problem I had data to show,
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    look, we got pregnant our temperature shifted, we somehow lost this baby
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    what is tit that we can do to help prevent this problem?
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    And is not just about temperatures, and is not just about fertility
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    we can use data about our bodies to tell us a lot of things
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    for instance did you know that taking your temperature can tell you a lot about the condition of your thyroid?
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    so your thyroid works a lot like the thermostat in your house.
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    There is an optimal temperature that you want in your house
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    you set your thermostat. When it gets too cold in the house your thermostat kicks in
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    and says hey we need to blow some heat around, or if it gets too hot
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    your thermostat sort of registers turn the AC on, cool us off
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    that's exactly how your thyroid works in your body
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    your thyroid tries to keep an optimal temperature for your body
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    if it get too cold your thyroid says we need to heat up, if it gets too hot
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    your thyroid cools you down.
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    But what happens when your thyroid is not functioning well ?
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    but when it doesn't functioning then it shows up in your body temperatures
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    they tend to be lower than normal and very erratic.
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    and so by collecting this data you can find out information about your thyroid.
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    Now, what is it, if you had a thyroid problem and you went to the doctor,
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    your doctor would actually test the amount of thyroid stimulating hormone in your blood.
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    Fine, but the problem with that test it doesn't tell you how active the hormone is in your body
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    so you may have a lot of hormone present but it might not be actively working
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    to regulate your body temperature. Just by collecting your temperature every day
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    you get information about the condition of your thyroid.
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    So what if you don't want to take your temperature every day? I advocate that you do
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    but there's tons of other things you can take
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    you can take your blood pressure, you can take your weight.. yeah, who's excited about
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    taking your weight every day..
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    Early on in our marriage Donald had a stuffy nose,
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    and he had been taking a slu of medications to try to relieve his stuffy nose
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    to no avail. And so that night he comes and he wakes me up and he says
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    "honey, I can't breath out of my nose"
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    and I sort of roll over and I looked and I said, well, can you breath out of your mouth?
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    And he goes Ah, Ah, yes! but I cant breath out of my nose!
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    And so like any good wife, I rushed him to the emergency room
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    at 2 o'clock in the morning
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    and the whole time I'm driving and I'm thinking
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    you can't die on my now! we just got married
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    people would think I killed you!
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    and so, we get to the ER and the nurse sees us
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    and he can't breath out of his nose and so she brings us to the back
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    and the doctor says what seems to be the problem and he goes " I can't breath out of my nose"
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    and he said, you can't breath out of your nose?" No".
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    but he can breath out of his mouth..
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    OK, he takes a step back and looks at both of us
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    and he says sir, I think I know the problem
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    you're having a heart attack, I'm going to order an EKG and a CAT scan for you immediately
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    And we are thinking, no no no, it's not a heart attack he can breath
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    just out of his mouth.. no no no
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    and so we go back and forth with this doctor because we think it is the incorrect diagnosis
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    and he's like no really, it'll be fine, just calm down
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    and I'm thinking: how do you calm down? I don't think he's having a heart attack..
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    Fortunately for us, this doctor was at the end of the shift
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    this new doctor comes in he sees us clearly distrut with a husband who can't breath
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    out of his nose
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    He starts asking us questions, he says well, do you two exercise?
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    We ride our bikes, we go to the gym.. occasionally.
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    we move around, uhm.. he says: what were you doing just before you came here?
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    I'm thinking I was sleeping, honestly, but Ok, what was Donald doing just before he was taken
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    so Donald goes into the slu of medications he was taking and he lists
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    "I took this decongestant, and then I took this nasal spray"...
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    and then all of a sudden the light bulb goes off
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    and he says, "Oh, you should never mix this decongestant with this nasal spray
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    clogs you up every time. Here, take this one instead", gives us a prescription
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    We're looking at each other and I looked at the doctor
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    and I said why is it that it seems you were able to accurately diagnose
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    his condition but this previous doctor wanted to order an EKG and a CAT scan?
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    And he looks at us and says" when a 350 pound man walks in the ER
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    and says he can't breath, you assume he's having a heart attack
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    and you ask questions later"
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    ER doctors are trained to make decisions quickly, but
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    not always accurately. And so had we had
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    some information about our heart health to share with him
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    maybe we would have gotten a better diagnosis the first time
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    I want you to consider the following chart, of systolic blood pressure measurements
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    from October 2010 to July 2012. You'll see that these measurements start
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    in the prehypertension/Hypertension zone, but over about the course of a year and a half
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    they move into the normal zone. This is about the hear rate of a healthy 16 year old.
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    What story is this data telling you?
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    Obviously is the data from someone who's made a drastic transformation
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    and fortunately for us, that person happens to be here today
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    So that 350 pound guy that walked into the ER with me, is now an even sexier and healthier
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    225 pound guy, and that's his blood pressure trace.
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    Over the course of that year and a half, Donald is eating changed
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    and his exercise regimen changed and his heart rate responded,
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    his blood pressure responded to that change that he made in his body.
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    What's the take home message that I want you to leave with today?
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    By taking ownership of your data, just like we've done
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    just by taking this daily measurements about yourself,
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    you become the expert of your body, you become the authority.
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    It's not hard to do. You don't have to have a PhD in statistics,
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    to be an expert in yourself, you don't have to have a medical degree to be your body's expert.
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    Medical doctors, they're experts on the population, but you are the expert on yourself.
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    And so when the two of you come together, when two experts come togehter
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    the two of you are able to make a better decision, than just your doctor alone.
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    Now that you understand the power of information that you can get
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    through personal data collection, I'd like you all to stand
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    and raise your right hand.
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    Yes, get it up
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    I challenge you, to take ownership of your data,
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    and today I hereby confer upon you, a TedX associate's degree and elementary statistics
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    with a concentration in time dependent data analysis
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    with all the rights and privileges adverteining there to
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    and the next time you are in your doctor's office,
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    as newly inducted statisticians, what should always be your response?
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    Show me the data! I can't hear you.. Show me the data! one more time..
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    Show me the data! Show me the data.. Thank you
Title:
Own your body's data
Speaker:
Talithia Williams
Description:

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Video Language:
English
Team:
closed TED
Project:
TEDTalks
Duration:
17:07
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Morton Bast edited English subtitles for Own your body's data
Morton Bast edited English subtitles for Own your body's data
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