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So,
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My name is Michelle Nario - Redmond
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I am a social psychologist and
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teach at Hiram College
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in psychology and biomedical
humanities program
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and I just wrote a book on Abilism
the causes and consequences
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of disability prejudice.
My first memory
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and I'll just back up and say in 1990,
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when the ADA passed
I was in graduate school,
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in Kansas, and disability prejudice,
the ADA or anything
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related to disability issues
were completely off my radar,
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and I worked at a place
where one of the pioneers
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of disability studies worked,
Beatrice Wright,
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and I hadn't yet to have a class with her.
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It really wasn't until 1995,
which was five years later,
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when my daughter was born,
Sierra, with spina bifida,
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that I became aware
of disability and found the work
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of Carol Gill and Simi Litton
and began to educate myself
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on disability studies and its scope,
and the first memory I have of
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confronting inaccessible spaces
was a few years later, when we enrolled
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my daughter Sierra in a preschool,
at a catholic preschool,
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right down the road; and it just didn't
even dawn on me that we would have to
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work so hard for her to be accommodated
as a preschooler,
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and it was really a function of
the fact that the building was older,
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there were steps, and they really didn't
know, nor did they need to legally know,
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about reasonable accommodations
and civil rights of their students,
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because they were a private facility and
weren't subject to the ADA's rules.
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So... it became clear to me that
we needed to find a new preschool,
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and luckily we found a private,
another private place. It wasn't
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a public school, but it
was a music school settlement
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and they had resources
and they were already operating
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under a sort of set of presumptions
about the value of diversity
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and diverse perspectives,
and we didn't really have to ask for much,
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because they bent over backwards
to include my daughter
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in a typical classroom, with her peers,
her preschool peers, music classes,
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there were so many eclectic
movement classes,
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and they even purchased
equipment for their exercise room
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and movement room
that would be useful to her among others,
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and she has since grown up to become
this teacher and has applied
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to work there as a preschool teacher.
So, I think it would be really
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amazing, if she came full circle.
But, I guess, to stance the broader
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question about being frustrated and aware
of inaccessibility and lack of inclusion,
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we were in a district that, when she then,
was about to move to preschool, I
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knew that she wouldn't probably be able to
go to a private school, not only because
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of the financial cost, but because
they would not have to think about
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best practices and the law when
it came to accommodating
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their students with disabilities,
and so I knew we would be
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looking at the public school,and the
public school in our neighborhood
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was not accessible. We went to visit it,
the playground had a little house
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that she wouldn't have been
able to get into,
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and it was really disheartening
and so it came at a time
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when we were already looking
for other opportunities,
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and my husband got an opportunity
to move us as a family
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to the West Coast
of Portland of Oregon,
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so the way I...we had to
navigate her early educational experiences
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was to only look at spaces and schools
that were in districts that were new,
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so that had buildings
and had training in terms of
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accommodating their diverse students
and their disabled students,
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because just having the brief experiences
that I did with the preschool
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and IEP meetings that were going to
require me to fight at every juncture
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for her basic rights
to show what she knows
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and participate and recognize herself
as a valuable contributor
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to the school community.
We're not going to be forthcoming
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without a fight,
and so we narrowed our search
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to a district,
and thank God we had the opportunity
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and the resources to do this,
that was pretty known for their
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inclusivity.
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We did that also when we came back
to the Cleveland, Ohio area.
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We were able to avoid all districts
that weren't at the cutting edge
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of full inclusion and proof of excellence
and had newer buildings
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that could accommodate those
with disabilities,
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but I guess that that was my earliest
memory of how, 'Oh, we have a road
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ahead of us and we have to take it upon
ourselves to either continue to fight
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battles that had already been won,
legislatively or find spaces, places
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and organizations that were ahead
of the curve
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in terms of implementing, monitoring and
just execute the basic civil rights
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of their various constituents
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The impact that all of that has had on me
is to just be able to communicate
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with other parents and students
with disabilities
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about not only knowing their rights but
knowing how to get those rights
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how to advocate for ensuring that those
rights are addressed, are met.
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I think the ADA has made
a huge difference
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and the aha moment was even when I was
collating information for this book
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on disability prejudice. I realised that
when I was a kid,
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when I was growing up in the 60s and 70s,
people with disabilities weren't able to
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do any of the things that we took for
granted as kids: go to the movies
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go to restaurants, go to visit a friend,
at a friend's house, or invite
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others to your birthday parties.
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And, since the ADA passed in 1990,
it wasn't an immediate set of changes,
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as, you know, there has been significant
progress made, particularly in public
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spaces and in employment settings,
where there are even employers
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who are part of an organization
of inclusive excellence, who
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recognize that disabled employees are
actually more reliable and
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have less turnover and are worth
investing in and promoting.
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But, there are still so many places,
small businesses, educational institutions
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that are not carrying out the basic,
sort of gains and practices that the ADA
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has made possible .There's just way too
much variation, and I think part of that
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is just a lack of education in
terms of what
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is reasonable and what is necessary
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in terms of accommodating your citizenry
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and lack of resources in some cases but
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also a lot of misinformation about whether
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or not it's worth it. The ADA is going to
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be 30 here in July. We're celebrating all
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over the country and we are still fighting
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for businesses to do what they should have
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done 30 years ago, those that have been
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around this long. They have not, they have
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have waited for complaints or they have
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failed to do but the bare minimum in
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terms of recruiting the largest minority
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I work in the education sphere and to me,
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we could be doing so much more with
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advertising and recruiting for those kinds
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of students that we tend to really, at
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least my institution, do well to retain
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because we're a small, intimate college,
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Hiram College. And, and for
years I've tried to
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encourage us to consider more universally
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designed approaches, but also approaches
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that do more than the bare minimum
when it comes to housing and
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extracurricular accommodations for
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students to who use mobility devices. For
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example, my daughter ended up having to be
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carried in her chair, to various club
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meetings while she was on the Hiram
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College campus. She was told that,
during the
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winter, when the ice storms came, that
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they couldn't transport her up the long
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hill, while they were
telling everyone
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else to walk like a penguin, and we had
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vans to do this. We had to file with the
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Ohio Disability Rights Commission and
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request that the school thinks about other
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ways of accommodating her, should there
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be a storm, an ice storm, and she can't
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get up to campus.
And the solution
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was to have her move to a
new dorm.
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You can't just do that over night.
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You can't just move all your bedding
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and all your bathroom supplies
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and your whole... you know at the moment's
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notice, when the weather changes
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and so it has been my experience that
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still a lot of places have done
the bare minimum approach
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and think that that's all they need to do
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when instead, they could be following more
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of the latest practices and
implementation's science
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and making it easier for people to
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register concerns or complaints. And
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they often don't even need to file a
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formal complaint issue, if you
approach a business or
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your educational institution
with an issue.
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Often times, progressive thinkers that
recognize the value of
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customers with disabilities frequenting
their businesses or
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diversifying their faculty or their
student body
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will simply not be aware that they have
failed to accommodate or
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make accessible various programs
and spaces.
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And that can be as simple as asking.
But a lot of times a lot more
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has to be done, you have to document
you have
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to make sure your emails go to
multiple people
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and make the business case of why
surveying your policies
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to see whether they are biases or whether
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there is discrimination in filing of
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Not Synced
complaints or even you have a title
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Not Synced
of, you know , an officer on campus or