A Kid with Butterfly Skin (Epidermolysis Bullosa Simplex)

Title:
A Kid with Butterfly Skin (Epidermolysis Bullosa Simplex)
Description:

Noah was diagnosed with epidermolysis bullosa (EB) simplex, a condition that causes painful sores on his skin. Thanks to the incredible support of our community, over $400,000 has been raised for EB research over the last few years. Today, there’s hope: two FDA-approved treatments for EB are now available, and Noah is one of the children benefiting. One of these treatments is healing the wounds on his feet, allowing him to walk with greater ease. Thank you to everyone who has contributed, you are literally helping Noah walk. There is belief that EB can be cured by 2030, but EB Researchers need funding to make this possible. You can help by visiting https://give.ebresearch.org/team/623396

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Video Language:
English
Team:
Special Books by Special Kids
Duration:
10:59
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This video is part of the Special Books by Special Kids team.