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The "dementia village" that's redefining elder care

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    This is the Hogeweyk.
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    It's a neighborhood in a small town
    very near Amsterdam, in the Netherlands.
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    There are 27 houses
    for six, seven people each.
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    There's a small mall with a restaurant,
    a pub, a supermarket, a club room.
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    There are streets, alleys,
    there's a theater.
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    It actually is a nursing home.
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    A nursing home for people
    that live with an advanced dementia
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    and that need 24-7 care and support.
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    Dementia is a terrible disease,
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    and we still don't have any cure for it.
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    It's getting to be
    a major problem in the world,
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    for the people, for the politicians,
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    for the world -- it's getting
    to be a big problem.
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    We see that we have waiting lists
    in the nursing homes.
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    Most people that come to the nursing homes
    with dementia are women.
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    And that's also because women
    are used to taking care of people,
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    so they can manage to take care
    of their husband with dementia,
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    but the other way around
    is not so easy for the gentlemen.
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    Dementia is a disease
    that affects the brain.
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    The brain is confused.
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    People don't know anymore
    what the time is,
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    what's going on, who people are.
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    They're very confused.
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    And because of that confusion,
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    they get to be anxious,
    depressed, aggressive.
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    This is a traditional nursing home.
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    I worked there in 1992.
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    I was a care manager.
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    And we often spoke together about the fact
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    that what we were doing there
    was not what we wanted for our parents,
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    for our friends, for ourselves.
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    And one day, we said,
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    "When we keep on saying this,
    nothing is going to change.
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    We are in charge here.
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    We should do something about this,
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    so that we do want
    to have our parents here."
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    We talked about that,
    and what we saw every day
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    was that the people
    that lived in our nursing home
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    were confused about their environment,
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    because what they saw
    was a hospital-like environment,
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    with doctors and nurses
    and paramedics in uniform,
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    and they lived on a ward.
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    And they didn't understand
    why they lived there.
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    And they looked for the place to get away.
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    They looked and hoped to find
    the door to go home again.
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    And we said what we are doing
    in this situation
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    is offering these people
    that already have a confused brain
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    some more confusion.
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    We were adding confusion to confusion.
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    And that was not what these people needed.
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    These people wanted to have a life,
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    and the help, our help,
    to deal with that dementia.
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    These people wanted to live
    in a normal house,
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    not in a ward.
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    They wanted to have a normal household,
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    where they would smell their dinner
    on the stove in the kitchen.
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    Or be free to go to the kitchen
    and grab something to eat or drink.
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    That's what these people needed.
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    And that's what we should
    organize for them.
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    And we said we should
    organize this like at home,
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    so they wouldn't live with a group
    of 15 or 20 or 30, like in a ward.
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    No, a small group of people,
    six or seven, family-like.
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    Like living with friends.
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    And we should find a way to select people
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    based on their ideas about life
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    so that they did have
    a good chance to become friends,
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    when they lived together.
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    And we interviewed
    all the families of the residents
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    about "what is important for your father,"
    "what's important for your mother,"
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    "what is their life like,"
    "what do they want."
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    And we found seven groups,
    and we call them lifestyle groups.
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    And for instance,
    we found this formal lifestyle.
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    In this lifestyle,
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    people have a more formal way
    of interacting with each other,
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    a distant way.
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    Their daily rhythm
    starts later in the day,
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    ends later in the day.
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    Classical music is more heard
    in this lifestyle group
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    than in other lifestyle groups.
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    And their menu,
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    well, is more French cuisine
    than traditional Dutch.
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    (Laughter)
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    In contrary to the craftsman lifestyle.
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    That's a very traditional lifestyle,
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    and they get up early
    in the morning, go to bed early,
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    because they have worked hard
    their whole life, mostly with their hands,
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    very often had a very small
    family business, a small farm, a shop,
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    or like Mr. B, he was a farmhand.
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    And he told me that he would go
    to his work every morning
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    with a paper bag with his lunch
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    and one cigar.
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    That one cigar was the only luxury
    he could afford for himself.
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    And after lunch,
    he would have that one cigar.
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    And until the day he died in the Hogeweyk,
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    he was in this little shed, every day,
    after lunch, to smoke his cigar.
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    This is my mother.
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    She's of the cultural lifestyle,
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    she's been living
    in the Hogeweyk six weeks now.
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    And that lifestyle is about traveling,
    meeting other people, other cultures,
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    interest in arts and music.
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    There are more lifestyles.
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    But that's what we talked about
    and that's what we did.
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    But that's not life in a house
    with a group of people,
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    like-minded people, your own life,
    your own household.
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    There's more in life,
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    everybody wants fun in life,
    and a meaningful life.
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    We are social animals --
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    we need a social life.
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    And that's what we started.
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    We want to go out of our house
    and do some shopping,
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    and meet other people.
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    Or go to the pub,
    have a beer with friends.
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    Or like Mr. W -- he likes
    to go out every day,
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    see if there are nice ladies around.
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    (Laughter)
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    And he's very courteous to them
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    and he hopes for smiles and he gets them.
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    And he dances with them in the pub.
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    It's a feast, every day.
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    There are people that would
    rather go to the restaurant,
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    have a wine with friends,
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    or lunch or dinner with friends
    and celebrate life.
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    And my mother,
    she takes a walk in the park,
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    and sits on a bench in the sun,
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    hoping that a passerby will come
    and sit next to her,
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    and have a conversation about life
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    or about the ducks in the pond.
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    That social life is important.
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    It means that you're part
    of society, that you belong.
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    And that's what we people need.
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    Even if you're living
    with advanced dementia.
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    This is what I see from my office window.
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    And one day, I saw a lady
    coming from one side,
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    and the other lady from the other side,
    and they met at the corner.
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    And I knew both ladies very well.
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    I often saw them walking around outside.
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    And now and then, I tried
    to have a conversation with them,
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    but their conversation was ...
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    rather hard to understand.
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    But I saw them meeting,
    and I saw them talking,
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    and I saw them gesturing.
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    And they had fun together.
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    And then they said goodbye,
    and each went their own way.
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    And that's what you want in life,
    meeting other people
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    and being part of society.
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    And that's what I saw happening.
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    The Hogeweyk has become a place
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    where people with very advanced
    dementia can live,
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    have freedom and safety,
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    because the professionals working there
    and the volunteers working there
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    know how to deal with dementia.
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    And the professionals know
    how to do their professional work
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    in a way that it fits in a natural way
    in the life of our residents.
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    And that means that the management
    has to provide everything
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    those people need to do their work.
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    It needs a management
    that dares to do this.
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    To do things differently
    than we always have done
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    in a traditional nursing home.
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    We see that it works.
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    We think this can be done everywhere,
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    because this is not for the rich.
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    We've been doing this with the same budget
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    as any traditional nursing home
    has in our country.
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    We work only with the state budget.
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    (Applause)
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    Because it has to do
    with thinking different,
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    and looking at the person in front of you
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    and looking at what
    does this person need now.
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    And it's about a smile,
    it's about thinking different,
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    it's about how you act,
    and that costs nothing.
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    And there's something else:
    it's about making choices.
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    It's about making choices
    what you spend your money on.
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    I always say,
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    "Red curtains are
    as expensive as gray ones."
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    (Laughter)
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    It's possible, everywhere.
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    Thank you.
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    (Applause)
Title:
The "dementia village" that's redefining elder care
Speaker:
Yvonne van Amerongen
Description:

more » « less
Video Language:
English
Team:
closed TED
Project:
TEDTalks
Duration:
10:30

English subtitles

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