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Introducing the eAcademy app
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Hi, I'm Dan Lewi and I'm from The Cure
& Action for Tay-Sachs (CATS) Foundation
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and we are the creators of the
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eAcademy for Tay-Sachs and Sandhoff
Disease app which you've downloaded.
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We believe that this app will make a huge
difference in helping you care for a
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family member affected by either Tay-Sachs
or Sandhoff disease.
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The development of this app would not have
been possible without the generous support
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of Genzyme and their Patient Advocacy
Leadership Awards.
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The CATS Foundation was a winner of one
of these award in 2014, and it is to them
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that we say a huge thank you to.
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Using the eAcademy app is relatively
simple, and all you need to do is to
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search through the various categories on
the home page.
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You will be able to see the sub-sections
within each category, where they
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all have their own video and text summary.
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The videos have been created by using
interviews with families who have
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someone affected by Tay-Sachs or Sandhoff
disease, healthcare professionals,
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and medical specialists.
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We hope that this will give you a unique
insight into each category within our app
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as you will be able to hear detailed
medical descriptions of something,
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such as a symptom, and then how that
symptom is managed by the family.
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If you have an questions about the app,
the content, or want to get in touch
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with us, then please send us an email or
visit our website.
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Please enjoy the eAcademy for Tay-Sachs
and Sandhoff Disease and we hope
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it helps you and your family.