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"Back From the Edge" - Borderline Personality Disorder

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    >>My name is Andrew Jantz.
    I'm a husband and father.
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    My background, as far as my career, was in publishing.
    That career sort of imploded when I got sick.
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    >>My name is Kiera Van Gelder.
    I am 36 years old.
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    I started cutting and burning myself
    pretty regularly when I was 14.
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    >>Christina Knight and I'm 27. I sensed that
    something was going on in my teenage years,
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    especially my senior year of high
    school. I knew that something was up,
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    but I didn't know what it was and I kind
    of tried to avoid it as much as possible.
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    >>Borderline Personality Disorder is really
    a serious illness, that we do currently
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    now understand as a medical disorder, that
    probably affects about 1% of the population.
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    >>The criteria for this disorder can be
    grouped into 3 subsets: those that have to
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    do with emotional instability, those that
    have to do with behavioral instability and
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    those that have to do
    with interpersonal instability.
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    >>People with Borderline Personality
    experience emotions more intensely.
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    >>Someone can say something to me and I can
    have a severe reaction and then 2 minutes later
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    I can have another completely different
    severe reaction.
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    And so its just constantly in the course
    of a day. It's incredibly exhausting.
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    >>You also find a real pattern of
    a lot of interpersonal problems.
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    >>They tend to be, on the one hand, very dependent and
    clinging, and on the other, rapidly enraged and rejecting.
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    >>The hardest part for me was when she was acting
    out in a behavioral way that was really angry.
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    >>You can't have interpersonal
    relationships if you're not emotionally stable.
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    It's extremely difficult to deal
    with someone who hates you one day,
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    likes you the next day, and could
    love you the third day.
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    >>I grew up in a bunch of places. I started
    out growing up in Europe until I was about 6.
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    My father was in the air force, so it was myself,
    my mother and my brother in Holland and Italy.
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    I had a very active imagination. I loved
    art and was athletic and played a lot.
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    >>When I graduated from college publishing
    seemed a natural way for me to go since I
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    was bookworm and loved books. So, I got
    into publishing and began to climb the ladder.
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    I had a good job, nice wife and two beautiful
    children, bought a beautiful Victorian in a nice town.
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    I had it all. I remember one day I was raking leaves
    in the front yard and here I was in my early 30's
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    and people walking by are thinking: "Look
    at this guy. He's got everything." You know?
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    And I was conscious of that.
    I felt fortunate.
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    >>A lot of people in my life or just people
    that I would meet, I'm sure and I know this,
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    they thought that I had everything together.
    They thought that everything was perfect
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    because that's how I appeared to the world.
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    I appeared as someone who had
    everything going for them and that I was
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    under control of everything
    and that I had all these goals.
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    >>Really until she was in her mid-teens,
    everything seemed to be very normal.
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    She was a very involved child with a lot of
    sports, very good at gymnastics and soccer,
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    and she was very motivated in school.
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    >>Outwardly I think people thought I was
    very affable and outgoing and personable.
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    And I was a good manager.
    I worked well with people.
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    What was happening inside of me was a different
    story. And that began to get worse and worse.
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    >>One of the things that happened when I
    was 6 was my parents had divorced and we
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    had moved from Holland to Massachusetts.
    We were in this small community and there
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    was this street with a lot of people on it.
    And one of the guys who was babysitting
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    for my brother and I regularly was
    molesting me at that time.
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    And I remember starting to develop this sort
    of aspect that I was always being watched
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    and it gave me a real sense of discomfort
    and anxiety when I was around groups,
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    especially if I knew that
    he was gonna be there.
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    I really didn't know how to handle the situation.
    I just didn't say anything to anyone.
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    I think that was really the beginning of my sort of shift
    into being more socially awkward and more fearful.
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    >>There was a sense of not
    really knowing who you are.
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    I think there had always been like
    a chameleon-like character in me.
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    I was sort of being who other people wanted
    me to be or who they expected me to be.
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    And I felt that in the morning it was
    almost like I had to "zip on" my suit and tie,
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    put on this persona of
    a confident manager.
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    And I'd go into work and I'd sort of just
    get through the day and then afterwards
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    walking to my car in the garage it
    was just like a total deflation.
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    I felt totally depleted like I had given
    everything I had just to get through the day.
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    And by the time I got home I had
    nothing left for my wife and kids.
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    >>I feel like I don't really have a group I can identify
    with. I don't really feel like I fit in with my family.
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    I don't feel like I fit in as a college
    student. I don't feel like I fit in
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    whenever I work someplace and that's probably
    because I don't have an idea of who I am.
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    >>My way of coping was to start journals
    of how I should have a personality.
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    Writing down like this is the type of person
    I should be so that people will like me
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    and I can therefore be a part of something.
    You know, I would study people
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    and my writing was about observing other
    people and how those observations
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    could be applied to how I should be
    because I didn't know how to be.
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    >>You could actually define Borderline Personality
    Disorder as the "I don't fit in" disorder.
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    They are, in my opinion,
    the ultimate outsiders.
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    >>They oftentimes try to conform to what
    they think other people want from them.
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    >>When we got married he pushed himself
    down a path. Now he's gonna be a husband,
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    a father, a homeowner, he was gonna get on a track.
    Maybe that was what he was supposed to do
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    and that would make him happy. We went down
    that track and it didn't make him happy.
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    >>And I think that it engendered a lot of anger
    inside of me that began to sort of fester.
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    And it began to feel like it was eating me up from
    the inside like I was rusting through inside.
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    >>I remember one time when I was in 9th
    grade and I had finally made a friend.
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    And this was a friendship where we were
    spending time together and I was so happy.
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    My relationships with people tend to be so intense.
    I didn't really know how to have casual friendships.
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    I was like, "You're my best
    friend forever and ever."
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    And probably the 6-8 months of our friendship
    this young woman lost a lot of weight
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    and went through this transformation. Her
    sort of moving up the social ladder and
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    hanging out with the kids who were
    cooler and prettier and whatever.
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    And when she did that I found that I
    was unable to accept what she had done.
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    I ended up sending her a
    letter written in my blood.
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    >>Writing a letter in your own blood is a
    beautiful example of communication of a
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    desperate need which would be very
    difficult for the other person to ignore.
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    >>This is a group of people who often
    need other people to regulate them.
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    >>The relationships that they
    form often breath life into them.
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    >>And therefore, if the people who
    are regulating them in some way are
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    getting ready to leave them, it can
    feel like a life and death proposition.
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    >>Absences or separations from those
    relationships once they're established
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    are catastrophic in their significance.
    Like, I don't exist myself.
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    >>I'm not sure that people with Borderline Personality
    Disorder know that they're being manipulative.
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    But, it comes across that way often to the people
    who are living with them or who are around them.
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    Sometimes for the family members it's
    almost like walking on eggshells.
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    Sometimes living your life in what you
    think is a normal way is upsetting to them,
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    so you stop doing that. And then you feel
    like that was their purpose all along.
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    >>People see the emotional, I think there's
    a phrase "I hate you, don't ever leave me."
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    People tend to see it not as a medical
    condition, but as just somebody being
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    difficult, dramatic, self-absorbed.
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    These were all things that people should be
    able to control because it's not an illness.
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    >>Manipulation assumes that a person has the
    skills to think about and then execute a plan.
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    And manipulation in that sense I don't
    think can be applied to BPD because it's
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    all about knee-jerk reactions and desperately trying to
    get something to feel secure and safe and ok again.
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    And so, for me when I was sending letters
    written in blood to people, one could say
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    that was a tad manipulative. On the other
    hand, you could just as easily say I had
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    no clue about what I was doing.
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    I had no idea how to get people to pay
    attention to me in ways that would work.
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    >>Manipulation is when you consciously
    try to get someone to do something for
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    you without them knowing that
    you actually got them to do it.
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    These individuals very rarely have the
    interpersonal skills to figure out how to
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    get you to do things
    in an unobtrusive way.
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    >>I began to lose a sense of
    connection with my wife and kids.
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    I was becoming less and less engaged with
    them, withdrawing from them, very irritable,
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    anger percolating, surfacing
    at inappropriate times.
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    >>I can remember him having a
    conversation with my sister on the phone.
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    For some reason something she said
    just put him over the edge.
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    He slammed down the phone and broke the
    glass coffee table because he slammed down
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    the phone that hard. And I
    was like, "oh, my God."
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    >>Another time I remember I was trying to
    get dressed for work and something minor
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    was getting me angry. Something like trying to
    take my suit off a hanger and it got caught.
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    And I just began to sort of start ripping and
    slamming the closet door, things like that.
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    Physical aggression that was coming out,
    not against anybody, but just things.
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    >>This is a group of people who emotionally
    respond much more sensitively to things.
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    In other words, they respond to some small thing,
    when for you it might take something big.
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    So that's just an emotional vulnerability
    factor. The second thing you have to know
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    about them is not only do they respond to a very
    small event, they respond VERY rapidly.
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    >>You know they say that Borderlines can
    feel like burn victims that their skin is
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    just raw like someone who's been burned.
    And that if something is said to them or
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    done to them that they feel it with the
    intensity that you would if you poked
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    somebody in the arm that
    didn't have skin on their arm.
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    >>It's really easy for me to get out of control and it
    takes a while for me to be able to calm myself down.
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    There was a specific instance, I went up to
    this street vendor and he had these markers.
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    He had the markers spread out all over
    the table and there was paper there.
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    I should be able to use the markers and
    draw on the paper to see what the markers did,
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    but he didn't want me to touch the markers.
    I lost my mind to the point where
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    my boyfriend at the time was
    like, "we need to leave."
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    He had to drag me away from there because
    I was so upset and could not understand
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    why you would have the markers and the paper out
    on the table if he didn't want people to touch them.
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    And he just didn't want
    me to touch them.
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    >>I think that it was embarrassing to the
    person she was with and she doesn't seem
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    to understand at the time that it's over the top, and an
    incident that didn't need to escalate to that degree.
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    >>I got so heated about it so quickly that I
    felt like I didn't have any control over it.
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    And I obsessed about that for days afterwards
    and I told the story to so many different people
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    just to justify that I was right in the fact that I
    should have been able to use the markers.
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    >>Individuals who meet criteria for
    Borderline Personality Disorder, ordinarily,
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    no matter how hard they try, despite all their best
    intentions, simply cannot regulate themselves.
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    >>I would make relationships with people based
    on these behaviors that were self-destructive.
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    There's was always the getting high or
    doing something dangerous and then getting
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    crazy drunk and dancing with people and
    going out to parties and having sex with
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    people who were very attractive and
    ephemeral and I would never see them again.
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    >>Christina tends to have risky behavior whether it's
    drug use or whether it's driving her car very fast.
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    >>I know that there's certain people
    I've met that haven't been great for me.
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    Like, they have been doing drugs or
    whatever and I will go to the extent that
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    I will actually do the drugs so that I fit in with them
    and that's not necessarily the greatest thing.
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    >>She also has eating difficulties and
    so she's been bulimic and I think that
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    that's a risky behavior that could
    ultimately be life threatening.
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    >>That constant level of intense
    distraction and chaos is a way to
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    distract from all the painful
    things that are going on.
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    >>A lot of the dysfunctional, problematic behavior
    that an individual who meets criteria
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    for Borderline engages in, if you look
    at the behavior you will see that that
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    behavior is highly effective at regulating
    their emotions. The only big problem with
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    that behavior is it regulates it short-term
    instead of long-term. That is the problem.
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    >>I started cutting when I was 14. I had become
    infatuated with another student and was rejected.
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    And the rejection, it was a romantic
    infatuation, it was very public.
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    I was very upset and I went into the bathroom
    in between classes and I had a tack
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    and I started dragging
    the tack along my arm.
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    >>I remember once being...feeling very
    hurt by a conversation I had with my father.
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    And there was a lot of anger and
    emotion and I slammed down the phone.
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    I went and got a razor blade
    and I started cutting my wrist.
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    >>Anytime that I've cut, it's been because
    my emotions were so intense that I needed
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    a different outlet for them and to inflict
    physical pain on myself was a relief
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    because then I could focus
    on the physical pain.
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    And I didn't have to focus on the
    emotional pain that I was feeling.
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    >>To me it was like a cigarette break, in
    a sense, and a way of being able to manage
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    feelings that I hadn't
    found a way to do yet.
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    >>There's no doubt about it at all,
    cutting and physically damaging the self
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    regulates emotions in
    this group of people.
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    No one is clear on exactly why it happens
    and there's a lot of research on it.
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    >>The self-destructive behaviors of
    Borderline patients can definitely serve
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    to help them alleviate feeling states that
    they can't stand, oftentimes feeling states
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    that they can't even articulate.
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    >>There's a kind of gratification to it as you're
    cutting and you're seeing the blood come out.
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    There's a satisfaction and after you do it, I'd make
    4, 5, 6 cuts on my wrist and see the blood coming out,
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    there was a sense of relief afterwards.
    I'd be sort of shaking with excitement,
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    but feeling calm. And the emotional
    storm I was feeling had sort of subsided.
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    >>He would come down to me and go,
    "Look." And he'd have blood down his arm,
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    but he'd have this look like,
    [deep sigh] like he almost felt better now.
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    >>On the perfectly pragmatic side, the
    reason it's a bad idea is it means that
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    you never solve the problem that
    generated an emotion in the first place.
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    So, it becomes like taking drugs. It's a way
    to avoid, distract, or get out of something,
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    but it isn't a way that makes you look
    at it and figure out how to solve it.
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    Long term, you cannot be a parent, you can't be
    a successful person, you can't be at work and
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    say "Ok, oh yeah right, I don't solve problems
    like that. I'll cut." You'll have to leave meetings.
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    You'll have to leave your children
    somewhere. I mean, how in the world are
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    you going to live your life if
    this is how you solve your problems?
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    >>As I began to feel more worthless as a
    person, I began to feel that people would
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    be better off without me because
    I was just falling apart.
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    I was sort of a burning, wreck of a person.
    So, the only way out as I say it was suicide.
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    >>The thing that started happening is I wasn't
    able to live with what was inside of me
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    and what I was dealing with around me. I
    felt very powerless. So, I started going
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    into my parents' liquor cabinet
    and drinking from all the bottles.
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    >>I began to think about it more and more, and it
    became almost like a little seed that started growing.
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    And suicide became more and more of an
    infatuation. And all of a sudden I found
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    myself listening to Nine Inch Nails, Smashing
    Pumpkins, Pink Floyd, a lot of really dark...
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    The Downward Spiral by Nine Inch Nails was
    basically an album about somebody's self-destruction.
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    And I used to listen to that.
    It really spoke to me.
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    >>I was pretty much walking around everyday
    with a bottle of whiskey in my backpack
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    and razor blades and just drinking as much
    as I could and then going into the woods
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    and cutting myself and hoping I could
    actually make "the cut" that would do it.
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    >>I began to think about doing it more
    realistically and I basically flirted with everything.
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    I would walk up on bridges, highway
    overpasses and look down, think about jumping.
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    I put a loaded shotgun in my mouth.
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    I would stand up on a stool with a noose around
    my neck. Overdosed massively a few times.
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    >>There was a math test & it was 7th grade & I remember
    panicking because I couldn't find the math notes.
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    And that night before the test I went
    into my mother's drawers in her bedroom and
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    I knew that she had pills there. So,
    I ended up taking the bottle of pills
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    thinking, "Ok, this is it. I've failed." But,
    they obviously weren't enough to do anything.
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    And I woke up in the
    morning and felt disappointed.
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    >>I used to go to work and I'd look at the
    subway trains pulling into the station and
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    think about jumping in front of them. I
    actually did go for a walk in a subway
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    station in downtown Boston once. Wrote a
    suicide note. I was dressed up in my suit.
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    Walked out of my office and walked into
    a tunnel at Park Street Station. [scoffs]
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    I can still recall seeing the darkness
    ahead of me as I was walking in the tunnel
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    and seeing my shadow in front of me growing longer
    and longer as the subway train came up behind me.
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    I was totally detached. I didn't feel
    afraid. I didn't feel depressed really.
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    I was just kind of shut down completely.
    The train stopped and I turned around and
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    started walking next to the train to get
    back out of the tunnel. When I got out,
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    went to a pay phone, called 911 and said,
    "I just went for a walk in a subway tunnel.
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    I think I need to be put into the hospital."
    [squealing wheels of subway train]
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    >>Thinking about suicide or wanting
    to be dead is extraordinarily common.
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    Suicide attempts are very common and suicide
    itself is very common. Between 8 and 10%
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    of people that meet criteria for Borderline Personality
    Disorder ultimately end up dead by suicide.
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    >>Borderline patients are deeply
    ambivalent about whether to live.
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    And if there isn't somebody who affirms their wish
    to have them alive, they'd just as soon be dead.
  • 24:04 - 24:10
    >>I had to drop out my second semester.
    The following year I tried to go back to school
  • 24:10 - 24:18
    and I got depressed again, I dropped out again, but
    more severe to the point where I had suicidal ideation.
  • 24:18 - 24:25
    And I was just kind of sick of feeling the
    way I had been feeling the past couple years
  • 24:25 - 24:28
    and I wanted more of an answer.
  • 24:28 - 24:34
    >>After getting a GED and going back to school,
    dropping out of college, going back to college,
  • 24:34 - 24:39
    finishing college, going to graduate school
    for creative writing, and at that point
  • 24:39 - 24:46
    I was starting to teach art and memoir
    writing. But, what I was discovering was
  • 24:46 - 24:57
    my ability to function in life was really
    compromised by these reactions I'd have to
  • 24:57 - 25:01
    situations, to relationships,
    to responsibilities, to stress.
  • 25:01 - 25:09
    >>She went to McLean Hospital after
    she had gotten her master's degree.
  • 25:09 - 25:14
    And she had climbed out, but she
    had achieved a goal in her life and
  • 25:14 - 25:20
    then everything fell apart,
    everything fell apart.
  • 25:20 - 25:32
    That was when I really saw what could happen to her.
    >>I came in with a very serious list of complaints,
  • 25:32 - 25:38
    which was that I couldn't keep a job, I
    couldn't tolerate being in relationships,
  • 25:38 - 25:45
    they were too painful. My emotional life
    was out of control and I was crying and
  • 25:45 - 25:50
    reacting all over the place. Couldn't drive
    a car because I couldn't think straight
  • 25:50 - 25:59
    and I thought people were chasing after
    me. I was constantly feeling suicidal.
  • 25:59 - 26:06
    Just my perceptions were very skewed, I couldn't
    see things clearly. I had no sense of who I was.
  • 26:06 - 26:11
    >>Well, the staff doctor that was treating
    me came in and told me, "I think you have
  • 26:11 - 26:15
    Borderline Personality Disorder." And I
    immediately thought that that meant that I
  • 26:15 - 26:20
    was on the borderline between sanity
    and insanity or something. [laughs]
  • 26:20 - 26:26
    And he said no that's not what it is
    and he explained to me the criteria.
  • 26:26 - 26:33
    >>"Do you find that you fear abandonment and
    will desperately try to avoid it at all costs?"
  • 26:33 - 26:37
    I was like, "Yeah." He said, "Well, do you
    find that you are really emotionally labile?
  • 26:37 - 26:41
    You know, up and down and change and sensitive
    to the things around you and rejection?"
  • 26:41 - 26:47
    I said, "Oh my God, yeah." Just sort of
    checked over the list...there's 9 criteria.
  • 26:47 - 26:51
    You know, stormy relationships, and when
    people...do you idealize people and when
  • 26:51 - 26:56
    they disappoint you do you devalue them. By
    the time he got to the ninth one he was like,
  • 26:56 - 27:02
    "Do you experience paranoia when you
    are under extreme stress?" Yeah!
  • 27:02 - 27:06
    >>And everything he said to me was like,
    "Oh, I have that. I have that. I have that."
  • 27:06 - 27:10
    So, that to me was like, oh there is
    something out there that explains this.
  • 27:10 - 27:19
    >>People with the disorder more commonly than
    not find it a great relief to be diagnosed.
  • 27:19 - 27:22
    "It's like looking in the mirror"
    is a common phrase.
  • 27:22 - 27:27
    >>It's like, oh my God, I'm something.
    And the something is understandable.
  • 27:27 - 27:32
    Somebody could actually understand me and if
    they understand me maybe I can understand me.
  • 27:32 - 27:36
    Maybe other people are like me,
    which means I'm not so alone.
  • 27:36 - 27:43
    I'm not different from everybody in the world.
    I am not an outsider every single place I am.
  • 27:43 - 27:49
    And also, there's an enormous relief
    that there might be a treatment.
  • 27:49 - 27:56
    >>Borderline Personality Disorder is an eminently
    treatable disorder and patients can be helped.
  • 27:56 - 28:04
    And with good therapeutic resources
    patients have a good chance to get better.
  • 28:04 - 28:09
    >>There are many therapies which are
    appropriate and helpful for Borderline patients.
  • 28:09 - 28:15
    There are the individual psychotherapies, there
    are psychosocial therapies which include
  • 28:15 - 28:19
    family interventions and group
    therapies, and there are medications.
  • 28:19 - 28:26
    >>Psycho-pharmacological treatment is an
    auxiliary treatment that is helpful in many cases.
  • 28:32 - 28:40
    >>We have very few evidence-based treatments for
    Borderline Personality Disorder at this point.
  • 28:40 - 28:49
    DBT is probably the treatment for
    which there is the greatest evidence.
  • 28:49 - 28:56
    >>Dialectical Behavior Therapy was designed
    very specifically for people who self-harmed
  • 28:56 - 28:59
    and had strong suicidal impulses.
  • 28:59 - 29:04
    >>It basically is helping you to deal
    with situations that are gonna come up
  • 29:04 - 29:08
    every day and your emotional
    reaction is going to be a certain way
  • 29:08 - 29:14
    and it helps you deal with that emotional reaction.
    It helps you find ways to stabilize yourself.
  • 29:14 - 29:21
    >>It is the synthesis or merging of trying
    to change something while simultaneously,
  • 29:21 - 29:24
    radically accepting that it is what it is.
  • 29:24 - 29:32
    >>It encourages, first of all, the person
    who's suffering to step out and look at
  • 29:32 - 29:40
    their own emotions as a third person might,
    rather than to immediately act on them.
  • 29:40 - 29:44
    >>The reason it's called Dialectical
    Behavior Therapy is because the treatment
  • 29:44 - 29:52
    itself is the synthesis of both the change
    in behavior therapy and the acceptance,
  • 29:52 - 29:59
    which when the treatment was developed was drawn
    primarily from my own practice and experience in Zen.
  • 29:59 - 30:06
    >>It used to feel literally like people's
    eyes would have a physical effect on my body.
  • 30:06 - 30:10
    Like my neck would prickle and my heart
    would constrict. And I interpret that they
  • 30:10 - 30:16
    are looking at my in a hostile way. The
    fact is they are looking at me, but I
  • 30:16 - 30:21
    can't assume what they're feeling inside
    and what they're thinking. DBT has helped
  • 30:21 - 30:28
    me tolerate that I feel this thing and I interpret it
    this way, but it may not necessarily be the reality.
  • 30:28 - 30:32
    >>I like Dialectical Behavioral Therapy
    because there were things I could work on
  • 30:32 - 30:36
    on a daily basis that would help me get
    through the day. And there were certain
  • 30:36 - 30:42
    exercises that I could do and there
    was concrete things that I could do.
  • 30:42 - 30:47
    >>The last time I desperately wanted to
    cut myself, I did a type of technique I
  • 30:47 - 30:55
    learned through DBT, which is I held ice
    cubes in my hand. And putting ice cubes in
  • 30:55 - 31:00
    your hand when you really want to
    experience physical pain is a way to focus
  • 31:00 - 31:07
    on something without necessarily hurting yourself.
    Instead of saying, "Oh, I just shouldn't feel this way,"
  • 31:07 - 31:11
    or "Oh, I need to change the way
    I feel," you learn how to work with
  • 31:11 - 31:14
    what you're experiencing
    in a more effective way.
  • 31:14 - 31:18
    >>It is so effective that we've had some
    clients when they knew they were going to
  • 31:18 - 31:23
    have to discuss something extremely intense,
    like sexual abuse or rape or something like that,
  • 31:23 - 31:29
    actually go to the store and buy those
    little cubes that you can put in your freezer,
  • 31:29 - 31:32
    the ones that are wrapped up and you can
    put in your freezer. And when they have to
  • 31:32 - 31:41
    have a session like that, take them to the therapist's
    office & hold them in their hands during the session.
  • 31:44 - 31:50
    >>The other forms of treatment which
    have been empirically validated include
  • 31:50 - 31:59
    Transference Focused Psychotherapy which is a
    derivative of the early psychoanalytic treatments.
  • 31:59 - 32:05
    And it focused much more on the importance of
    interpretation and understanding the ways in which
  • 32:05 - 32:11
    oneself, the Borderline patient, distorts their
    views of other people and of themselves.
  • 32:11 - 32:20
    >>It tries to bring about an integration
    of the patient's concept of self
  • 32:20 - 32:23
    and of the patient's
    concept of significant others.
  • 32:23 - 32:28
    >>When I got into therapy I began to open
    up and to talk about all kinds of things
  • 32:28 - 32:34
    that were bothering me. And one of the
    things the therapist would try to do is
  • 32:34 - 32:40
    dissect a particular incident to see if
    there were triggers that would set that off.
  • 32:40 - 32:46
    And I also participated in group therapy in the
    hospitals because all the walls came down
  • 32:46 - 32:50
    and the pretenses and all these things that
    you erect around yourself in the outside world.
  • 32:50 - 32:57
    And people are very open and honest and are willing
    to talk about very intimate and upsetting things.
  • 32:57 - 33:05
    >>It's very important for patients or
    their families who are troubled by
  • 33:05 - 33:11
    Borderline Personality Disorder to find
    clinicians who are knowledgeable about this
  • 33:11 - 33:20
    and have experience with it and want to
    treat them. To seek treatment from people
  • 33:20 - 33:25
    who don't have those qualifications
    is likely to make the patient worse.
  • 33:25 - 33:29
    >>The right practitioner and the
    right treatment are what's required.
  • 33:29 - 33:33
    You can find a really fabulous person who
    doesn't know treatment or how to treat
  • 33:33 - 33:38
    this particular population. You can find
    a person who knows an effective treatment
  • 33:38 - 33:44
    who the patient can't relate to. That's not going
    to work either. You've really got to have both.
  • 33:53 - 33:57
    >>When I was first diagnosed I thought
    that it was basically all my fault and
  • 33:57 - 34:02
    that it was an environmental thing
    and I should be able to fix it myself.
  • 34:02 - 34:06
    And then later when I started going to these
    conferences and learning more about the disease,
  • 34:06 - 34:13
    they came out with studies saying that there are
    chemical and biological reasons for this disease.
  • 34:13 - 34:20
    So, that to me was a huge relief because, again
    I felt like oh, there really is a reason for this.
  • 34:20 - 34:25
    It's not just because I'm not dealing well
    with situations. It's not just because I'm
  • 34:25 - 34:29
    not working hard enough to feel better. It's because
    I have chemical things wrong with my brain.
  • 34:29 - 34:38
    >>Borderline Personality Disorder, for
    sure, has a predisposing biological base.
  • 34:38 - 34:42
    >>And whether somebody gets the
    illness depends upon the environment.
  • 34:42 - 34:48
    In that respect it's not unlike Diabetes, or
    high blood pressure within traditional medicine.
  • 34:48 - 34:54
    >>Take an interaction with another person,
    for example. We're sitting here talking.
  • 34:54 - 35:03
    I see your face. Well, in the brain there's two
    pathways. One directly to the visual cortex
  • 35:03 - 35:08
    that shows me the actual image of your
    face so I have a mental picture of it, but
  • 35:08 - 35:14
    also a second pathway that goes to what's called
    the Limbic System, particularly the Amygdala,
  • 35:14 - 35:23
    so that I can assess the emotional impact
    of your face. And these two are integrated
  • 35:23 - 35:28
    in terms of my appraisal of you and of
    course my behavioral response to you.
  • 35:29 - 35:33
    One of the most interesting findings is
    the finding that the Amygdala, the area of
  • 35:33 - 35:42
    the brain that signals danger and fear, in Borderline
    Personality Disorder seems to be overactive.
  • 35:42 - 35:50
    So that a face that a non-Borderline
    person would react to in a neutral way,
  • 35:50 - 35:57
    a Borderline person may actually see as
    fearful. And when you talk to patients
  • 35:57 - 36:05
    I think what you hear is they experience other
    people as angry, critical, and hostile towards them.
  • 36:05 - 36:12
    When indeed, in many instances, that
    may not be the other person's intent.
  • 36:12 - 36:17
    While the Amygdala, that part of the
    brain that signals danger, is overactive in
  • 36:17 - 36:22
    Borderline Personality Disorder, the
    Prefrontal Cortex, the part of the brain
  • 36:22 - 36:28
    that's responsible for higher
    order thinking which can inhibit the
  • 36:28 - 36:37
    behavioral response to this alarming
    signal, seems to be under-active.
  • 36:37 - 36:42
    >>It doesn't surprise me that people's
    brains are actually wired differently,
  • 36:42 - 36:51
    that Andy might have an ultra-sensitivity
    to things that create...to emotional things.
  • 36:51 - 36:57
    >>I think over the past 10 years that as we've
    come to understand the physical component
  • 36:57 - 37:01
    of mental illness, people have begun more
    and more to think of it as a real illness.
  • 37:01 - 37:07
    As opposed to somebody just having emotional
    problems and unable to deal with things.
  • 37:07 - 37:10
    You know, "come on, snap out of it,"
    that sort of thing.
  • 37:10 - 37:17
    >>Although, we're just beginning, in a
    sense like Columbus leaving the port,
  • 37:17 - 37:27
    we're beginning to understand some of the neural circuits
    involved in various aspects of this dis-regulation.
  • 37:37 - 37:43
    It would be fair to say that
    BPD can be hell for families.
  • 37:43 - 37:51
    >>Having a person with Borderline Personality
    Disorder in your family is devastating.
  • 37:51 - 37:57
    >>There's something in the nature of this
    condition and in its symptoms that can draw,
  • 37:57 - 38:04
    not only from families but from trained
    clinicians, unhelpful responses.
  • 38:04 - 38:10
    >>From my experience, the most common
    response of other people who are around
  • 38:10 - 38:15
    people meeting criteria of Borderline Personality
    Disorder is that their response is: "shape up."
  • 38:15 - 38:21
    >>If I had known about BPD at the time of
    her adolescence, I think I would have been
  • 38:21 - 38:29
    much more attuned to the fact that she
    reacted very quickly to things that were
  • 38:29 - 38:35
    things that she disagreed with. It was a
    huge, what appeared to us, over-reaction
  • 38:35 - 38:42
    and then an inability to regroup. So, I
    think that was a big sign that I missed
  • 38:42 - 38:49
    because I didn't understand what that
    would have to do with mental illness.
  • 38:49 - 38:52
    >>They know the person is emotional, but
    they don't know why and they really don't
  • 38:52 - 38:57
    have the fundamental understanding that
    the person's actually doing the best they can.
  • 38:57 - 39:02
    >>It's important for me to get all the
    emotions out that I'm feeling because if
  • 39:02 - 39:09
    I don't then I obsess about them. And I pick
    myself apart and I think about every interaction
  • 39:09 - 39:13
    that I had with every person that I
    interacted with and I can make myself
  • 39:13 - 39:18
    crazy thinking about, "Did I do this wrong?" or
    "Did that person like me?" or "Did they not like me?"
  • 39:18 - 39:23
    >>The real tragedy for the individual is
    they say, "I can't regulate it," and the
  • 39:23 - 39:26
    the other person says, "Yes, you can." So,
    of course, then they start feeling worse
  • 39:26 - 39:30
    about themselves thinking they can,
    but they just don't want to.
  • 39:30 - 39:35
    >>What really helped me was when I
    realized that it wasn't about me,
  • 39:35 - 39:40
    that I wasn't necessarily what she
    was angry at and the target of it.
  • 39:40 - 39:46
    But, that I was just there to be somebody
    that she could vent all of this feeling
  • 39:46 - 39:54
    that was about something else. So, I don't know
    if you remember the comedian, Gallagher?
  • 39:54 - 40:00
    Gallagher used to smash watermelons and
    things. And the people in the front row
  • 40:00 - 40:06
    would have to put on rain coats or
    something to cover them up because they'd
  • 40:06 - 40:12
    get splattered with all the watermelon juices.
    And so, I kind of likened myself to being in
  • 40:12 - 40:16
    the front row with Gallagher when he was
    about to smash the watermelons. [laughs]
  • 40:16 - 40:20
    >>She just understands that I need to get it
    out and that there's nothing wrong with that.
  • 40:20 - 40:24
    And she doesn't have to help me qualify
    anything, it's just that's how I feel and
  • 40:24 - 40:26
    I need to get it out. Once I
    get it out I feel a lot better.
  • 40:26 - 40:33
    >>We have guidelines for families which
    suggest that when their Borderline offspring
  • 40:33 - 40:41
    or family member has one of these excessively
    angry reactions that they listen carefully,
  • 40:41 - 40:47
    look for whatever is true about it. And by
    validating the part of it which makes sense
  • 40:47 - 40:53
    it'll calm the person down. To address the part
    of it which is excessive and inappropriate
  • 40:53 - 40:59
    can and should only be done in a context
    when the Borderline person is calm.
  • 40:59 - 41:03
    >>When you have a child with this disorder
    it's not something you talk about at weddings.
  • 41:03 - 41:08
    That you go out socializing, you often
    don't talk about these kinds of things,
  • 41:08 - 41:14
    so when family members go to a support group
    it's an incredible process that happens for them.
  • 41:14 - 41:19
    Because they feel that someone else understands
    them and understands what they've gone through.
  • 41:19 - 41:27
    >>You know, BPD is so much a disorder of relations
    and the recovery really involves being able to get back
  • 41:27 - 41:37
    into communities and have relationships and tolerate
    the distress. You know, build up a life for yourself again.
  • 41:48 - 41:55
    >>I found that insurance doesn't want to
    cover Borderline as the initial diagnosis,
  • 41:55 - 42:06
    that oftentimes you need to be given a different
    diagnosis, an Axis I diagnosis such as Bipolar,
  • 42:06 - 42:10
    and that will be
    accepted for insurance.
  • 42:10 - 42:19
    >>Regrettably, families may have to strengthen
    themselves to fight insurance companies,
  • 42:19 - 42:27
    when they do wrongfully deny coverage for
    what is indisputably a medical disorder.
  • 42:27 - 42:32
    >>There's an effort to find brief treatments
    that will get these patients going.
  • 42:32 - 42:36
    That's an illusion. These
    patients need long-term treatment.
  • 42:36 - 42:43
    >>I think it's important for families to
    recognize that the first 'no' from the
  • 42:43 - 42:48
    insurance company shouldn't be
    the last word on the subject.
  • 42:48 - 42:50
    >>The key thing to recognize about
    Borderline Personality Disorder is
  • 42:50 - 42:56
    you can't decide not to treat it. Insurance companies
    have to come to grips with this particular reality.
  • 42:56 - 43:00
    Saying "we won't pay for the treatment" doesn't
    mean they don't pay for the treatment.
  • 43:00 - 43:04
    They do pay for the treatment. Somebody
    pays for it because when you don't give
  • 43:04 - 43:08
    them treatment they show up in the emergency
    room and no one can kick them out of there.
  • 43:08 - 43:12
    When they get to the emergency room
    they often get on an in-patient unit.
  • 43:12 - 43:16
    That's extraordinarily expensive care.
  • 43:24 - 43:28
    >>When family members call me for the first time,
    the first think I want to give them is hope.
  • 43:28 - 43:33
    I want them to know that people
    with this disorder get better.
  • 43:33 - 43:38
    >>For somebody whose family member's just
    recently been diagnosed, I would say that
  • 43:38 - 43:43
    they want to participate in the therapy.
    Get to understand what's going on and
  • 43:43 - 43:51
    what to expect, that they've probably got a long haul.
    But, the more they understand it, the better off they are.
  • 43:51 - 43:57
    >>Borderline Personality Disorder is often
    called "the good prognosis diagnosis," and
  • 43:57 - 44:01
    that's because people get better.
    People recover from this disorder.
  • 44:01 - 44:06
    They manage their lives in effective ways.
    They have children. They have careers.
  • 44:06 - 44:13
    >>People with this disorder have a remission,
    meaning that their psychopathology is greatly reduced
  • 44:13 - 44:19
    within a couple years. And when that happens
    it's sustained. Relapses are not common.
  • 44:19 - 44:23
    >>The emotionality that they have, the tendency
    to react quickly, will probably always be there,
  • 44:23 - 44:29
    but you can build a corresponding
    tendency to be able to regulate.
  • 44:29 - 44:40
    >>The payoff is that rather than having short series
    of intense, volatile interactions with people,
  • 44:40 - 44:45
    you're probably going to go through a dry period
    where it feels like there's no one around.
  • 44:45 - 44:53
    And then things start building. I
    developed the vocabulary to say to people:
  • 44:53 - 44:57
    "I get triggered because of this," or
    "I'm having a Borderline moment right now.
  • 44:57 - 45:05
    I think you're rejecting me." When you
    get the diagnosis and a set of language to
  • 45:05 - 45:09
    bring awareness to the interpersonal
    dynamics, things that used to destroy
  • 45:09 - 45:17
    relationships become opportunities
    to build a new level of communication.
  • 45:17 - 45:25
    >>I think the thing that was really helpful
    to me was to just know that I love my
  • 45:25 - 45:33
    daughter more than I need to be right all the time,
    that the relationship is the most important thing to me.
  • 45:33 - 45:40
    If I can hang in there and learn to under-
    stand the perspective of the other person,
  • 45:40 - 45:47
    that it's worth it to hang in there. We
    really have a great relationship in spite
  • 45:47 - 45:54
    of a lot of ups and downs. It's also
    learning that life with a Borderline can
  • 45:54 - 45:59
    be a roller coaster ride and I don't
    always have to hop on the ride.
  • 45:59 - 46:07
    >>I think that families should remember that
    most people with this illness will recover.
  • 46:07 - 46:18
    In some instances it will take time and that this
    really is not a sprint, but a long distance race.
  • 46:18 - 46:22
    >>There's this crucial element that I
    think is so important, which is the will
  • 46:22 - 46:27
    and desire to confront what's going on with
    yourself. And believe that if you confront it
  • 46:27 - 46:32
    and get help for it, things will be so
    much better. And I can look back now and
  • 46:32 - 46:37
    see that I'm much better off today than I was
    when I was trying to do things on my own.
  • 46:37 - 46:42
    But, it takes an awful lot of trust and
    faith in the people around you to admit to
  • 46:42 - 46:51
    having something that's so stigmatized. And then to
    put yourself in their hands and say, "Please help me."
Title:
"Back From the Edge" - Borderline Personality Disorder
Description:

"Back From the Edge" offers guidance on treating Borderline Personality Disorder. The video was created by the Borderline Personality Disorder Resource Center at NewYork-Presbyterian. Learn more about the Center at http://bpdresourcecenter.org.

Also, learn about "Remnants of a Life on Paper," a book that tells the story of a young woman suffering with Borderline Personality Disorder (BPD) and watch a video featuring NewYork-Presbyterian psychiatrist, Frank E. Yeomans, M.D., by visiting http://remnantsofalife.com.

Lastly, you can watch this video with Spanish subtitles here: http://youtu.be/_34Yd6m50dk

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Video Language:
English
Duration:
48:12

English subtitles

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