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My life with Asperger's | Daniel Wendler | TEDxUniversityofArizona

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    Have you ever had that dream
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    where you're back in school
    and you're naked?
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    Do you remember the shame,
    the helpless frustration of that dream?
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    When I was growing up,
    that dream was my life.
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    Not that I went to school naked ...
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    (Laughter)
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    But the shame, the frustration,
    the sense that everybody was against me,
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    that was real for me.
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    I was seven years old and I felt
    like my school was a battleground
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    where everybody else
    was on the opposite army.
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    And I didn't know why or how to fix it.
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    That was my life.
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    And this is me.
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    I was kind of awkward,
    as you may be able to tell.
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    I didn't have a terrible life:
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    my family loved me,
    I had a couple friends,
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    and when it came to Super Mario Bros.,
    I was a pretty big deal.
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    (Laughter)
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    But I didn't fit in at school
    or anywhere really.
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    And I didn't know why.
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    I would try my hardest
    to make friend, and I just wouldn't.
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    I would be friendly,
    and people would be mean to me.
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    I didn't know how to make it work.
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    I had three memories from that time.
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    One is I was walking home
    from school with my mom,
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    and saying, "How do you talk to people?
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    I don't even know how to talk to people!"
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    Another is that I sat down
    at a lunch table,
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    and every other kid at that table
    stood up and walked away.
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    Me being me, I decided
    to exploit my newfound power.
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    I followed them from table to table,
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    (Laughter)
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    forcing them to move around the lunchroom
    before I gave up, and ate alone.
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    My third memory is coming home from school
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    sobbing, running into my dad's arms,
    and saying "I'm bad, I'm bad, I'm bad."
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    So growing up was tough,
    elementary school especially.
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    Middle school was a little bit easier,
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    but I still had a lot
    of trouble fitting in.
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    I'm the one in the tie-dye.
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    (Laughter)
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    So it wasn't until high school,
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    when things really started
    to turn around for me.
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    My parents are great parents.
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    They're in the audience,
    so if you see them, give them a high five!
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    But, all parents want to think
    that their kids are normal,
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    but by this point, my parents had realized
    I was marching to a different drummer,
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    or maybe an entirely different orchestra.
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    So, they took me to a psychologist
    before I started high school,
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    and I was diagnosed
    with Asperger's syndrome.
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    If you haven't heard of it,
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    Asperger's syndrome is a neurological
    condition on the autistic spectrum,
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    and basically what it does
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    is it made it so I was unable
    to learn social skills naturally.
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    You can think of it this way:
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    if you take a baby
    and that baby is born in Japan,
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    that baby's going to learn Japanese,
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    just growing up naturally,
    listening to the world around it.
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    Whereas if you take an adult
    who's never spoken Japanese
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    and you drop him in the middle of Tokyo,
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    that adult's going to have
    a much harder time.
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    In the same way, for somebody
    without Asperger's,
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    people learn social skills naturally,
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    just by observing the world around them.
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    Whereas for somebody with Asperger's,
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    it's like being the adult
    in a foreign country
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    where you don't speak the language.
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    It's much, much harder to learn.
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    When I was diagnosed,
    it was this huge epiphany
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    because, remember,
    I didn't know why I was struggling.
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    But now I understood: oh, it's because
    I don't have social skills!
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    I remember, my psychologist gave me
    a list of the social skills
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    people with Asperger's struggle with,
    and I was, like, oh, all right,
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    let's get to work!
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    So I started studying social skills,
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    I started reading books on body language,
    conversation, etiquette ... you name it!
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    I started watching movies with my parents,
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    where I would pause
    the movie like 10 times,
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    "Hey, what just happened
    in that conversation?
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    Hey, I don't understand
    why this character did that.
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    Hey, explain these social cues to me!"
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    And I started to get better,
    and it started to make sense.
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    I started being able to figure out
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    the systems that govern
    the way that people interact.
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    I started being able to create
    metaphors and ideas
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    to help me know how to respond.
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    Let's talk about body language.
    Body language is fun.
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    Go to the bookstore,
    pick up a book on body language.
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    It'll tell you all the things
    your body can do.
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    My favorite is that feet signal intent.
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    If somebody's talking to you,
    and their feet are pointing at you,
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    it means they're focused in
    on talking with you.
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    If they're talking to you,
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    and their feet point towards the door,
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    they want to go!
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    And so you should probably
    let them end the conversation.
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    But body language is also difficult:
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    there are so many different signals
    that mean so many different things.
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    Like, if you rub your nose,
    it means that you're uncertain,
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    whereas if you rub the back of your neck,
    it means that you're anxious;
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    similar actions, similar meanings,
    but a little bit different.
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    And so I'd be looking at somebody,
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    to figure out what their
    body language was saying,
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    and by the time I'd figured it out,
    the conversation moved on,
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    and I'd completely forgotten
    what I was supposed to be talking about.
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    But this is kind of what it's like
    to try to figure out -
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    I mean, you know, look at this list.
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    What are these people feeling?
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    It's really hard to see in just a moment.
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    So what I did was I decided, okay,
    let me condense this.
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    And, so I took all
    the body language signals
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    and I grouped them
    as just comfort and discomfort.
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    I decided, all right,
    I don't need to remember
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    if rubbing your nose means uncertainty
    or anxiety or indigestion or whatever.
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    I just need to know
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    you're not totally comfortable,
    and maybe something's wrong.
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    Then I can take that,
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    and I can try to figure out
    what's wrong, so I can fix it.
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    If I'm talking to you,
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    and I notice you start giving off
    body language signals of discomfort,
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    I can say, all right, let me look
    at the conversation, at the environment.
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    Let me see if there's something
    that I can fix here.
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    Remember, before, people would get
    upset with me and I wouldn't know why.
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    I'd be talking to somebody and think
    this conversation is going great,
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    and they'd blow up!
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    Because I'd missed all of the signals.
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    Now, I can start to see what was
    happening, and start to, like, adapt.
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    But I still had to learn
    how to have conversations,
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    and conversation's tough.
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    There are a lot of
    conversation books out there,
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    but they all just talk
    about conversation tips and tricks,
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    which is not very helpful.
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    It's like if you wanted
    to learn how to play baseball,
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    and all the books you read just told you,
    well, keep your eye on the ball.
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    That's not the rules.
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    You're not going to know how to play.
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    So I did a lot of study, a lot of
    practice, a lot of thinking it through,
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    and I figured out
    the secret to conversation.
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    Are you ready for it?
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    Ready to write it down,
    or tweet it, or whatever.
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    Conversation is a sandwich.
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    Specifically, conversation is like
    making a sandwich with a friend,
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    where you add an ingredient
    then you pass the sandwich to them.
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    They add an ingredient,
    they pass the sandwich back to you.
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    I know you guys probably don't
    tag-team your sandwich creations,
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    but it's a metaphor, so work with me …
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    Because this is the way
    that conversation is supposed to work.
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    You add something to the conversation,
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    your thoughts, your ideas, a story,
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    and then you invite
    the other person to speak
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    by asking them a question
    or something like that.
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    You're adding the ingredient,
    then you're passing the sandwich.
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    And they do the same,
    they pass it back to you.
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    So, I knew what I was supposed
    to do in conversation.
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    I knew how to keep
    the conversation flowing,
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    and how to know when
    I was supposed to add something.
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    But I still needed to figure out
    how do I be a good conversation partner?
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    How do I make sure I'm picking topics
    that people are interested in?
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    And this was difficult for me because
    I used to ramble so much growing up.
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    Like somebody would ask me,
    "What did you do today?"
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    and I would tell them - all of it!
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    (Laughter)
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    This was rarely the actual answer
    they were looking for.
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    So I had to figure out,
    how do I tone it back?
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    How do I avoid rambling?
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    How do I only tell them
    what they're interested in hearing?
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    What I decided was,
    I developed this technique
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    that I called the creaky door.
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    And it works like this.
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    Let's say you're getting home late
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    and your front door is old and creaky.
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    You won't want to open
    that door all at once
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    because (Door creaking) it's going
    to annoy everybody in the house.
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    So you open it
    a little bit at a time (Creak),
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    you open a little bit more (Creak),
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    you keep going (Creak, creak, creak),
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    until eventually you've got the door
    all the way open, and you can enter.
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    In the same way,
    if somebody asked me a question,
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    I would share part of the answer,
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    and then give them
    an opportunity to ask for more.
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    So if somebody asked me,
    "What'd you do this weekend?"
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    I could say, "Oh, well,
    I went to the pool,"
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    and then I would stop.
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    If they were curious, they'd ask,
    and I'd tell them more,
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    and if they weren't, they wouldn't ask,
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    and we would change the topic,
    and no harm done.
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    I figured out all these systems
    for how to interact with people.
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    I had to put it into my own language.
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    I can keep going, keep telling you
    all the different things I figured out,
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    but, as we discussed,
    I have a tendency to ramble,
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    so I'm going to cut
    myself off right there.
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    But the point is this:
    I started getting better at social skills.
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    I started, not being perfect,
    but being good enough.
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    I started having conversations
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    where I understood the non-verbal signals
    that were coming my way.
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    I started being able to make friends
    and be a part of a friend group.
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    And, guys, I want you to get
    how incredible this was for me.
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    Social interaction was something
    that I'd struggled with my entire life.
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    But now I'd learned that it was not
    a permanent disability,
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    but was something I could overcome.
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    Like that was huge,
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    but, even more than that,
    was learning just the joy of friendship.
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    For somebody that was
    on the outskirts his entire life,
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    to be a part of a friend group,
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    to be somebody that people
    wanted to hang out with …
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    Like, that was so incredible!
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    I think that I realized just how much
    things had turned around
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    when I got a phone call
    from my friend Mark.
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    He said, "Daniel, let's get the group
    together this weekend."
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    I said, "OK, sounds like a good idea,"
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    and there was, like, this long pause,
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    and he said, "So you're going
    to organize it, right?"
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    I had somehow moved
    from social outcast to party planner.
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    (Laughter)
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    And, guys, to be somebody with Asperger's
    that learns social skills …
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    You could think about it like a kid
    with terrible eyesight
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    getting glasses for the first time.
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    But to experience the joy of friendship
    after a lifetime on the outskirts?
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    That's like giving the kid glasses
    and then taking him to the Louvre.
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    And so, Spider-Man's Uncle Ben says,
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    "With great power
    comes great responsibility."
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    It's a TEDx University event,
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    so we're going to have
    some highbrow citations here.
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    (Laughter)
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    So with great power
    comes great responsibility.
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    So, if I had the power
    to open the door to this new world
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    of friendship and acceptance,
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    didn't I also have responsibility
    to do that for others?
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    So what I did was simple.
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    I started looking for the kids
    that used to be like me.
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    For the kids that were weird,
    that were different,
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    that just didn't quite fit in.
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    Then I made friends with them.
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    And what I found is that those kids
    were the most incredible friends I had.
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    I think it was their time on the outskirts
    that made them so incredible.
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    Like, our culture has this weird thing,
    where it thinks that pain isn't normal,
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    where it thinks that the default state
    of humanity is to be happy all the time.
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    And so, when you have
    this pressure to fit in,
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    you also have this pressure
    to bury your pain and put on a happy face.
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    But when you're not going
    to fit in no matter what.
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    When you're an outcast,
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    even if you acknowledge
    that life is hard sometimes,
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    it gives you the freedom
    to acknowledge your pain,
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    and then to acknowledge
    the pain in others.
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    And so it builds compassion.
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    Or you can think of it another way:
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    Thoreau went into the wilderness,
    away from society,
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    because he wanted to live deliberately.
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    But when society forces you
    into the wilderness,
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    it also forces you to live deliberately.
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    You can make choices,
    not based on what's in stock -
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    not based on what's in style,
    or what your friends think,
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    but just based on who you want to be
    and what you want to do.
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    So, as I reached out to these people,
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    I found that they were incredible friends.
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    I found that the people I reached out to
    because I thought that they needed me,
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    they were the people that I needed
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    because they were
    the most able to support me.
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    I'll tell you a story.
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    My freshman year of college,
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    there was a girl going through
    a hard time - one of my friends.
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    So I really poured myself
    into trying to support her,
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    and then, one day, I get a phone call
    from home, and it's bad news,
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    really bad news.
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    I hold together long enough
    to get off the phone,
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    and then I just lose it.
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    Like we're talking tears, we're talking …
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    It was massive …
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    And I'm crying, and then
    I feel an arm around me,
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    and I look up, and it's my friend
    that I've been supporting.
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    She held me and comforted me,
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    and she was exactly the person
    I needed at that moment.
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    And guys, it wasn't just
    that my friends helped me learn,
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    it wasn't just that
    my friends helped support me,
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    but my friends helped me learn
    it was okay to need support.
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    Because when I first started being social,
    when I first started tasting acceptance,
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    and what that felt like,
    I became so afraid of rejection.
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    I became terrified that I would
    do something wrong.
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    I was going to make some faux pas,
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    and people were going to be like,
    "Daniel's an impostor,
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    he's secretly awkward all along."
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    (Laughter)
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    Let's throw sticks at him!"
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    Like, obviously, this is not
    the most realistic fear,
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    but our greatest fears
    rarely are, are they?
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    And so I had so much pressure
    to always put my best foot forward.
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    But that's lonely, right?
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    Because when you're
    only putting one foot forward,
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    the rest of yourself is still held back.
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    And so, over time,
    my friends started to show me
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    that they liked me just for me.
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    That I didn't have to be the party planner
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    or the shoulder to cry on all the time.
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    Like, it was okay to just be Daniel,
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    even if Daniel was awkward.
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    This is Sam, who I dated in college.
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    As you can see, she was very good
    about creating a space
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    where I felt the freedom to just be me,
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    even if that was really awkward.
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    Or here's some of my dearest friends
    in a Disneyland teacup.
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    Where else do you go with friends?
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    (Laughter)
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    And so, this group, we became
    so close because our freshman year,
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    we decided that, once a week,
    we would get together,
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    and just make time
    for being real with each other.
  • 14:10 - 14:11
    That time looked different every week.
  • 14:11 - 14:15
    Sometimes we'd discuss a topic,
    sometimes we'd play a game,
  • 14:15 - 14:18
    sometimes we'd just hang out
    and enjoy each other.
  • 14:18 - 14:21
    The only rule was that we had
    to bring our real self to that hour.
  • 14:21 - 14:25
    And so I brought real Dan,
    week after week,
  • 14:25 - 14:27
    and I was met with acceptance,
    week after week,
  • 14:27 - 14:30
    even when real Dan was pretty awkward.
  • 14:30 - 14:32
    (Laughter)
  • 14:34 - 14:38
    And so, over time, my friends
    helped me realize it was cool,
  • 14:38 - 14:40
    that I could be Super-Dan, the Social Man!
  • 14:40 - 14:43
    It was cool I learned
    these social skills and stuff,
  • 14:43 - 14:47
    but I didn't have to be Super-Dan
    the Social Man all the time.
  • 14:47 - 14:50
    Like, it was enough to just be me.
  • 14:50 - 14:54
    And I hope that you guys get
    that it's enough to just be you.
  • 14:54 - 14:57
    I hope that you get
    that there are people out there
  • 14:57 - 15:00
    that will like you
    just the the way that you are.
  • 15:00 - 15:02
    And that you shouldn't stop
    looking for those people
  • 15:02 - 15:06
    because I think, ultimately,
    it's those people that define us.
  • 15:06 - 15:10
    It's people that don't give up on us,
    and that see the good in us,
  • 15:10 - 15:12
    even when we're pretty hard on ourselves.
  • 15:12 - 15:16
    Like the proverb says,
    "It takes a village to raise a child,"
  • 15:16 - 15:19
    but really, we need a village
    around us every day of our lives.
  • 15:19 - 15:23
    My story is the story of a village,
    it's not the story of me.
  • 15:23 - 15:27
    It's the story of the support
    I received early on from my family
  • 15:27 - 15:29
    when I was struggling so much.
  • 15:29 - 15:31
    It's the story of friends
    that encouraged me,
  • 15:31 - 15:33
    so I could encourage somebody else.
  • 15:33 - 15:36
    It's the story of kind words
    that I got that I could pass on.
  • 15:36 - 15:40
    Ultimately, it's the story of the idea
  • 15:40 - 15:43
    that everybody deserves
    a place where they belong.
  • 15:44 - 15:49
    Like, when I was seven years old,
  • 15:49 - 15:52
    I ate in the cafeteria alone
  • 15:52 - 15:54
    because nobody wanted to sit with me.
  • 15:54 - 15:56
    If I tried to sit with them, they'd leave.
  • 15:56 - 16:01
    I think it's safe to say that nobody else
    in that cafeteria saw any value in me.
  • 16:01 - 16:02
    But I think it's also safe to say
  • 16:02 - 16:05
    that the people in my life
    that did see value in me
  • 16:05 - 16:08
    were the reason I was able
    to get to where I was today.
  • 16:08 - 16:14
    Like, I don't want to brag,
    but I run a website about social skills
  • 16:14 - 16:16
    that's been visited over 40 million times,
  • 16:16 - 16:18
    the news has done a story on me,
  • 16:18 - 16:21
    and I'm kind of giving a TEDx talk
    about my life, right now.
  • 16:21 - 16:22
    (Laughter)
  • 16:22 - 16:26
    I think it's safe to say
    that there was value in me for sure.
  • 16:30 - 16:34
    But I realized that, because of the people
    in my life that let me know.
  • 16:36 - 16:39
    I realized that I couldn't
    have done it alone.
  • 16:40 - 16:45
    Guys, the point of my talk
    is really simple and it's this:
  • 16:45 - 16:49
    nobody deserves to be alone
    and nobody can really make it alone.
  • 16:49 - 16:54
    So if you are alone, reach out
    to people, let people know.
  • 16:54 - 16:58
    And if you see somebody else
    that's alone, be their friend.
  • 16:58 - 17:01
    When I was seven years old,
    sitting alone in that cafeteria,
  • 17:01 - 17:04
    I was desperate for somebody
    to come up to me.
  • 17:04 - 17:06
    I was desperate for somebody
    to sit down at my table
  • 17:06 - 17:09
    and let me know that I was worth
    being friends with.
  • 17:10 - 17:12
    If you had been in that cafeteria with me,
  • 17:12 - 17:18
    if you had seen the kid eating lunch
    by himself every day,
  • 17:18 - 17:21
    would you have been the one
    to sit down next to me?
  • 17:21 - 17:23
    And if your answer is yes,
  • 17:23 - 17:27
    then could you be the one
    that would sit down next to somebody today
  • 17:27 - 17:31
    that's in just as much a need
    of a friend as I was then?
  • 17:31 - 17:36
    Could you be the one that would see
    somebody everybody else has rejected,
  • 17:36 - 17:38
    and say I can accept that person?
  • 17:38 - 17:43
    Would you be the one that sees somebody
    that might be awkward, weird or different,
  • 17:43 - 17:48
    and be able to say, "You know what?
    they might make a really cool friend."
  • 17:48 - 17:50
    And then could you be friends with them?
  • 17:50 - 17:52
    Could you sit down next to them
    and ask their name?
  • 17:52 - 17:57
    Could you listen to their story
    and become a part of it?
  • 17:57 - 17:59
    I promise you that if you do,
  • 18:00 - 18:03
    you just might find that they become
    an incredible part of yours.
Title:
My life with Asperger's | Daniel Wendler | TEDxUniversityofArizona
Description:

How can we make sure everyone has a community where they feel accepted? For many people - the awkward, the shy, or simply the misunderstood - life is a lonely experience, and good friends are hard to come by.

Daniel Wendler experienced this firsthand. He has Asperger's Syndrome, a neurological condition that prevented him from learning social skills naturally. Without the social skills to make friends or defend himself from bullies, Daniel grew up an outcast.

Daniel did not let his challenges define him, however. When he realized that his struggles were due to his lack of social skills, he decided to study social interaction as if it were a foreign language. Over time, through books and with the help of his family, he taught himself the social skills that he was unable to learn automatically. He used his newfound skills to reach out to other "outsiders" and discovered the power of close relationships and genuine community.

Today, he works to share what he learned with others. He is a social skills coach and runs an online resource that has had over a quarter million visits. He believes that everyone deserves a place where they belong, and that all of us have something in common with the awkward kid sitting alone in the cafeteria.

This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx

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Video Language:
English
Team:
closed TED
Project:
TEDxTalks
Duration:
18:06

English subtitles

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