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do you two want to see what it looks like
before we start?
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if you look right here you can see
a little tv screen
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who's that right there?
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this first question's for you gabby
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— Are you ready?
— Okay
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Who is this?
— Brother
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what's your brother like?
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i love you are you interested you're
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gonna sing
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what do you want to sing i need
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she's so much fun to watch i will put
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her in bed too
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go to bed and she'll bounce around and
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just perform
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in her bed for a good two hours and it's
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just fun to sit there on the monitor and
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watch to see what she's going to do
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would it be correct to describe gabby as
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happy yes
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yes and that was very important because
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we wanted to make sure we were gonna
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have a happy child
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that was our that was what we were
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praying for and we got it
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glad you got fun let's kick the monkeys
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one more time
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she's a wiggle worm and thank god she is
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so little so i can manage her
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and she's not necessarily throwing
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around wait can you sit up
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no please
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gaby have a mind of her own?
yes she does
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and it's fun to watch her little plane
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and what she's thinking what makes her tick
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and she's got it's fun to watch her
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because you never know what you're going to get
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you sit down no
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gabby is it okay if i ask you and your
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brother three questions
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when gabby was in here with her brother
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she would go to the door
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and pretend like she was opening it
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because it annoyed her brother
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but she wouldn't open it she would just
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touch the handle and laugh yes does she like the teasing
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yes she likes to tease everybody
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and she no she can get away with it so
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when i say inside voice to her because
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she's this little loud person um she thinks
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it's funny when i say inside voice and then she
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is louder so it sort of backfires but
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she is a prankster and you can't help but laugh
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why is she able to get away with anything
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because she's gaby
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she's just too cute you know she it happens
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gabby was born with neonatal prodroid syndrome
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it is a very rare syndrome at the time
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we were given that diagnosis there was
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70 cases since 1970. what do you think
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is the best thing about your sister
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that i i play with her and she plays with me
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there's not a lot of literature which was upsetting
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at the time for us because the
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literature that we were going by was one that was
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for one of the other
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genetic mutations under the name
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neonatal protroid syndrome
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so um one thing that broke my heart was when we left
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the literature that we were given was
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the average lifespan was
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seven months old and um
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that i mean any mom that just had a baby
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reads that like hormones are not like you're heartbroken
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can you say hi hi good to see you tell
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chris what we were just doing
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what were we doing my name is monkey
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can you say we were watering the plant okay
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water plants yeah you did a good job
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she's very smart so she can read
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um words individually but she
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if you ask her questions it's harder i
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don't think she
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you know understands everything just yet
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but um i think i say that but she could just
-
be fooling us
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all too i don't know what do you like
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more
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dogs or cats
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most you like rabbits
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i love rabbits too
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rabbits are a cool animal
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rabbits are the best it's perfect
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again i don't know where
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what do you do when you're not sure what
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gabby says i tried to repeat it when she
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was younger she used to get really
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frustrated and would start crying
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but now she'll repeat something over and
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over again until i repeat it back to her
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and if it's wrong then she will
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say no and keep going so i've got
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i gotta pick up on it right away or else
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brandon for the long haul i have another
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question for you
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oh are you ready for it
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what do you like more the color green or
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the color blue
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my color
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you like colorful rabbits
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yes
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rabbits are the best do you like
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thinking about rabbits
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my pleasure your pleasure
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may feel good baby
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baby really
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that's so cool when she's just so
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good and bubby is your boy
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i didn't know that
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thank you for telling me that and you
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like tummy
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that's so cool the baby is coming
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she's got a big repertoire of sayings
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and she's memorizes things really quickly
-
gabby gabby
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has being gabby's dad changed how you
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view the world
-
absolutely yeah how so i think
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a couple different ways one you know
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when gabby was born obviously
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she's got some challenges and some some
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things that
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uh you know make things a little harder
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for her but i think it just puts things
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in perspective for you
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you know like what's really important
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what's wrong you want to play with
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numbers
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okay can i put her down yeah of course
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yeah and i just think perspective right
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so at the end of the day
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uh it makes you realize what the most
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important things are with life
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you know and that's love how does
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neonatal
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project syndrome impact gabby
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so it makes it so she does not have um
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any fat she doesn't have teeth either
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um it makes her have thinner bones
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more brittle bones she was born with a
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congenital knee defect that we've had a
-
couple surgeries on
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but other than that she
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is a smart little girl sit down
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let me sit down okay do you take care of
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your sister
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yeah how do you feel when you take care
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of your sister um i feel excited
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gabby were you just making a silly face
-
at me when
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what was it like when gabby was first
-
born it was hard we weren't given a
-
diagnosis we um at
-
20 weeks we found out there was
-
something wrong with our baby we saw an
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uh skull abnormality we potentially saw
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a heart issue and then she was small so
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um we went and did all the tests the
-
doctors weren't able to tell us what was
-
going on so you know when i had her
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um we didn't know there's a lot of things in
-
that are taken out of your control and
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you don't know where to turn or what to
-
do and sometimes
-
answers can't get provided for you so
-
you search for the things that
-
you can control and that's how do you
-
love your kids and how do they love you back and
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i think that that's changed me enormously
-
and then mommy i love mama
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why do you love mommy mom
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daddy daddy i love you gummy gummy i love you
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i love you no i love you more
-
every day is something new so every day
-
is a new milestone that she might hit
-
every day is a new thing that she's
-
learned every day is a
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a new adventure can you spell cat can
-
you show chris how you spell cats
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small cats spell cat
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cat can you spell the word cat
-
i think i'm most proud of gabby for
-
i mean i could say that i'm proud of her
-
for overcoming all the surgeries she's
-
had and the challenges that she's had
-
but i think i'm most proud of her for just
-
the basic common things that you would
-
be proud of any kid for that she loves her family that she's a
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good sister she is able to be affectionate
-
uh she's able to listen uh she takes
-
interest in things hey man
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can you spy can you spell hop ha hack
-
good job you got the hop amazing
-
you're so smart i think spidey
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