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Introducing the eAcademy for Tay-Sachs & Sandhoff Disease

  • 0:13 - 0:19
    Introducing the eAcademy app
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    Hi, I'm Dan Lewi and I'm from The Cure
    & Action for Tay-Sachs (CATS) Foundation
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    and we are the creators of the
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    eAcademy for Tay-Sachs and Sandhoff
    Disease app which you've downloaded.
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    We believe that this app will make a huge
    difference in helping you care for a
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    family member affected by either Tay-Sachs
    or Sandhoff disease.
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    The development of this app would not have
    been possible without the generous support
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    of Genzyme and their Patient Advocacy
    Leadership Awards.
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    The CATS Foundation was a winner of one
    of these award in 2014, and it is to them
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    that we say a huge thank you to.
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    Using the eAcademy app is relatively
    simple, and all you need to do is to
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    search through the various categories on
    the home page.
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    You will be able to see the sub-sections
    within each category, where they
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    all have their own video and text summary.
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    The videos have been created by using
    interviews with families who have
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    someone affected by Tay-Sachs or Sandhoff
    disease, healthcare professionals,
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    and medical specialists.
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    We hope that this will give you a unique
    insight into each category within our app
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    as you will be able to hear detailed
    medical descriptions of something,
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    such as a symptom, and then how that
    symptom is managed by the family.
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    If you have an questions about the app,
    the content, or want to get in touch
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    with us, then please send us an email or
    visit our website.
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    Please enjoy the eAcademy for Tay-Sachs
    and Sandhoff Disease and we hope
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    it helps you and your family.
Title:
Introducing the eAcademy for Tay-Sachs & Sandhoff Disease
Description:

The Cure & Action for Tay-Sachs (CATS) Foundation has produced an app for for smart phones and tablets to give carers information on the diseases, tips on providing care and popular questions.

This is a short video giving an introduction to the app.

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Video Language:
English
Team:
The CATS Foundation
Duration:
01:52

English subtitles

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