Was it difficult to get support?

Was it difficult to
get support?

We were very quickly
offered different types

of support from within
our community.

Different activities for
Isabella to be involved with

in the home with the
community nursing team.

From our point
of view

there was a lot of
support very quickly.

I think throughout the
process, the community

support, be it from the
nursing team or the doctors

or from the hospice has
been really good,

really helpful.

We have now chosen
what aspects we wanted

and what we didn't want

and what worked well
for us.

At the beginning

I did everything by
myself.

It was a little difficult.

The medical teams in America
were very good.

That's where we were
initially.

They were very good at
the medical side

but they weren't so good
at supporting the child

in the home, with therapies
and physio.

There wasn't much community
support where we were.

When we came back to the UK

we had more community help

like in the hospice, physio,
occupational therapy and that

kind of thing.

That really helped. It was a
big difference for us, personally.

But also they weren't, there
was the NTSAD in the states

but when we came back to the UK

there was a difference between
the support we got from them

and The CATS Foundation.

We just seem a more close
knit support network here.

It took me a long search.

It did take a long search.

I was given websites from
the hospital.

Forums that people hadn't
been on since 2007

which to me is ludicrous.

So, I then searched again
on the internet

and found The CATS Foundation