1
00:00:13,593 --> 00:00:18,319
Was it difficult to 
get support?

2
00:00:20,249 --> 00:00:23,013
We were very quickly
offered different types

3
00:00:23,205 --> 00:00:26,724
of support from within
our community.

4
00:00:26,894 --> 00:00:30,116
Different activities for 
Isabella to be involved with

5
00:00:30,447 --> 00:00:32,718
in the home with the
community nursing team.

6
00:00:34,430 --> 00:00:37,588
From our point 
of view

7
00:00:37,886 --> 00:00:40,628
there was a lot of 
support very quickly.

8
00:00:40,831 --> 00:00:43,156
I think throughout the 
process, the community

9
00:00:43,348 --> 00:00:46,314
support, be it from the 
nursing team or the doctors

10
00:00:46,536 --> 00:00:49,033
or from the hospice has 
been really good,

11
00:00:49,268 --> 00:00:51,379
really helpful.

12
00:00:51,615 --> 00:00:55,902
We have now chosen
what aspects we wanted

13
00:00:55,998 --> 00:00:57,534
and what we didn't want

14
00:00:57,716 --> 00:00:59,261
and what worked well
for us.

15
00:01:00,414 --> 00:01:04,030
At the beginning

16
00:01:04,382 --> 00:01:08,626
I did everything by
myself.

17
00:01:11,645 --> 00:01:15,986
It was a little difficult.

18
00:01:16,221 --> 00:01:18,610
The medical teams in America
were very good.

19
00:01:18,769 --> 00:01:20,797
That's where we were
initially.

20
00:01:21,074 --> 00:01:23,068
They were very good at
the medical side

21
00:01:23,228 --> 00:01:26,246
but they weren't so good
at supporting the child

22
00:01:26,439 --> 00:01:28,785
in the home, with therapies
and physio.

23
00:01:28,988 --> 00:01:32,028
There wasn't much community
support where we were.

24
00:01:32,198 --> 00:01:34,192
When we came back to the UK

25
00:01:34,332 --> 00:01:35,868
we had more community help

26
00:01:36,048 --> 00:01:39,462
like in the hospice, physio, 
occupational therapy and that

27
00:01:39,622 --> 00:01:41,297
kind of thing.

28
00:01:41,457 --> 00:01:44,987
That really helped. It was a 
big difference for us, personally.

29
00:01:45,082 --> 00:01:49,328
But also they weren't, there
was the NTSAD in the states

30
00:01:49,541 --> 00:01:52,443
but when we came back to the UK

31
00:01:52,656 --> 00:01:54,992
there was a difference between
the support we got from them

32
00:01:55,205 --> 00:01:57,712
and The CATS Foundation.

33
00:01:57,968 --> 00:02:01,125
We just seem a more close
knit support network here.

34
00:02:04,143 --> 00:02:08,186
It took me a long search.

35
00:02:08,323 --> 00:02:10,531
It did take a long search.

36
00:02:10,756 --> 00:02:13,199
I was given websites from
the hospital.

37
00:02:13,358 --> 00:02:16,771
Forums that people hadn't
been on since 2007

38
00:02:16,975 --> 00:02:19,492
which to me is ludicrous.

39
00:02:19,758 --> 00:02:23,161
So, I then searched again
on the internet

40
00:02:23,374 --> 00:02:25,902
and found The CATS Foundation