Was it difficult to get support?
We were very quickly offered different types
of support from within our community.
Different activities for Isabella to be involved with
in the home with the community nursing team.
From our point of view
there was a lot of support very quickly.
I think throughout the process, the community
support, be it from the nursing team or the doctors
or from the hospice has been really good,
really helpful.
We have now chosen what aspects we wanted
and what we didn't want
and what worked well for us.
At the beginning
I did everything by myself.
It was a little difficult.
The medical teams in America were very good.
That's where we were initially.
They were very good at the medical side
but they weren't so good at supporting the child
in the home, with therapies and physio.
There wasn't much community support where we were.
When we came back to the UK
we had more community help
like in the hospice, physio, occupational therapy and that
kind of thing.
That really helped. It was a big difference for us, personally.
But also they weren't, there was the NTSAD in the states
but when we came back to the UK
there was a difference between the support we got from them
and The CATS Foundation.
We just seem a more close knit support network here.
It took me a long search.
It did take a long search.
I was given websites from the hospital.
Forums that people hadn't been on since 2007
which to me is ludicrous.
So, I then searched again on the internet
and found The CATS Foundation