Introducing the eAcademy for Tay-Sachs & Sandhoff Disease
-
0:13 - 0:19Introducing the eAcademy app
-
0:19 - 0:23Hi, I'm Dan Lewi and I'm from The Cure
& Action for Tay-Sachs (CATS) Foundation -
0:23 - 0:25and we are the creators of the
-
0:25 - 0:28eAcademy for Tay-Sachs and Sandhoff
Disease app which you've downloaded. -
0:28 - 0:31We believe that this app will make a huge
difference in helping you care for a -
0:31 - 0:34family member affected by either Tay-Sachs
or Sandhoff disease. -
0:35 - 0:38The development of this app would not have
been possible without the generous support -
0:38 - 0:41of Genzyme and their Patient Advocacy
Leadership Awards. -
0:41 - 0:45The CATS Foundation was a winner of one
of these award in 2014, and it is to them -
0:45 - 0:47that we say a huge thank you to.
-
0:48 - 0:51Using the eAcademy app is relatively
simple, and all you need to do is to -
0:51 - 0:53search through the various categories on
the home page. -
0:53 - 0:56You will be able to see the sub-sections
within each category, where they -
0:57 - 0:59all have their own video and text summary.
-
0:59 - 1:02The videos have been created by using
interviews with families who have -
1:03 - 1:06someone affected by Tay-Sachs or Sandhoff
disease, healthcare professionals, -
1:06 - 1:08and medical specialists.
-
1:08 - 1:12We hope that this will give you a unique
insight into each category within our app -
1:12 - 1:15as you will be able to hear detailed
medical descriptions of something, -
1:15 - 1:19such as a symptom, and then how that
symptom is managed by the family. -
1:19 - 1:24If you have an questions about the app,
the content, or want to get in touch -
1:24 - 1:27with us, then please send us an email or
visit our website. -
1:28 - 1:31Please enjoy the eAcademy for Tay-Sachs
and Sandhoff Disease and we hope -
1:31 - 1:33it helps you and your family.
- Title:
- Introducing the eAcademy for Tay-Sachs & Sandhoff Disease
- Description:
-
The Cure & Action for Tay-Sachs (CATS) Foundation has produced an app for for smart phones and tablets to give carers information on the diseases, tips on providing care and popular questions.
This is a short video giving an introduction to the app.
- Video Language:
- English
- Team:
- The CATS Foundation
- Duration:
- 01:52
danlewi edited English subtitles for Introducing the eAcademy for Tay-Sachs & Sandhoff Disease | ||
danlewi edited English subtitles for Introducing the eAcademy for Tay-Sachs & Sandhoff Disease | ||
danlewi edited English subtitles for Introducing the eAcademy for Tay-Sachs & Sandhoff Disease | ||
danlewi edited English subtitles for Introducing the eAcademy for Tay-Sachs & Sandhoff Disease |