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Jacob is a 27-year-old graduate student from California living with cystic fibrosis (CF). He was born and raised in the small rural town of Sonora, CA with his older brother, who also has CF, and his two sisters. Jacob spent most of his early adulthood working in nonprofits engaged in community-level work addressing a host of diverse issues. Jacob has been involved in rare disease advocacy for several years as a legislative associate at Cystic Fibrosis Research Inc. (CFRI) where he focuses on educating lawmakers, proposing policy, and fighting for the rare disease community at the state and federal level. Currently, Jacob is a legislative aide in the Office of Assemblymember Susan Eggman in Sacramento and plans to bring greater change and solutions to the rare disease community.
In his video, Jacob speaks about the challenges of being in isolation, what non-disabled people should understand, and how he copes with the fears and worries due to COVID-19.
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