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So,
 
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My name is Michelle Nario - Redmond
 
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I am a social psychologist and
 
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teach at Hiram College
 
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in psychology and biomedical
humanities program
 
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and I just wrote a book on Abilism
the causes and consequences
 
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of disability prejudice.
My first memory
 
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and I'll just back up and say in 1990,
 
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when the ADA passed 
I was in graduate school,
 
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in Kansas, and disability prejudice,
the ADA or anything
 
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related to disability issues 
were completely off my radar,
 
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and I worked at a place 
where one of the pioneers
 
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of disability studies worked, 
Beatrice Wright,
 
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and I had yet to have a class with her.
 
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It really wasn't until 1995,
which was five years later,
 
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when my daughter was born,
Sierra, with spina bifida,
 
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that I became aware 
of disability and found the work
 
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of Carol Gill and Simi Litton
and began to educate myself
 
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on disability studies and its scope,
and the first memory I have of
 
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confronting inaccessible spaces
was a few years later, when we enrolled
 
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my daughter Sierra in a preschool,
at a Catholic preschool,
 
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right down the road; and it just didn't
even dawn on me that we would have to
 
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work so hard for her to be accommodated
as a preschooler,
 
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and it was really a function of
the fact that the building was older,
 
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there were steps, and they really didn't
know, nor did they need to legally know,
 
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about reasonable accommodations 
and civil rights of their students,
 
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because they were a private facility and
weren't subject to the ADA's rules.
 
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So... it became clear to me that 
we needed to find a new preschool,
 
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and luckily we found a private,
another private place. It wasn't
 
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a public school, but it 
was a music school settlement
 
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and they had resources
and they were already operating
 
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under a sort of set of presumptions
about the value of diversity
 
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and diverse perspectives,
and we didn't really have to ask for much,
 
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because they bent over backwards
to include my daughter
 
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in a typical classroom, with her peers,
her preschool peers, music classes,
 
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there were so many eclectic
movement classes,
 
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and they even purchased
equipment for their exercise room
 
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and movement room
that would be useful to her among others,
 
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and she has since grown up to become
this teacher and has applied
 
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to work there as a preschool teacher.
So, I think it would be really
 
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amazing, if she came full circle. 
But, I guess, to stance the broader
 
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question about being frustrated and aware 
of inaccessibility and lack of inclusion,
 
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we were in a district that, when she then,
was about to move to preschool, I
 
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knew that she wouldn't probably be able to
go to a private school, not only because
 
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of the financial cost, but also because 
they would not have to think about
 
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best practices and the law when
it came to accommodating
 
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their students with disabilities,
and so I knew we would be
 
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looking at the public school,and the 
public school in our neighborhood
 
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was not accessible. We went to visit it,
the playground had a little house
 
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that she wouldn't have been 
able to get into,
 
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and it was really disheartening
and so it came at a time
 
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when we were already looking
for other opportunities,
 
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and my husband got an opportunity
to move us as a family
 
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to the West Coast
of Portland of Oregon,
 
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so the way I...we had to
navigate her early educational experiences
 
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was to only look at spaces and schools
that were in districts that were new,
 
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so that had buildings 
and had training in terms of
 
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accommodating their diverse students
and their disabled students,
 
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because just having the brief experiences
that I did with the preschool
 
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and IEP meetings that were going to
require me to fight at every juncture
 
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for her basic rights 
to show what she knows
 
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and participate and recognize herself
as a valuable contributor
 
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to the school community.
We're not going to be forthcoming
 
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without a fight, 
and so we narrowed our search
 
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to a district,
and thank God we had the opportunity
 
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and the resources to do this,
that was pretty known for their
 
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inclusivity.
 
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We did that also when we came back 
to the Cleveland, Ohio area.
 
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We were able to avoid all districts
that weren't at the cutting edge
 
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of full inclusion and proof of excellence
and had newer buildings
 
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that could accommodate those 
with disabilities,
 
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but I guess that that was my earliest
memory of how, 'Oh, we have a road
 
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ahead of us and we have to take it upon
ourselves to either continue to fight
 
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battles that had already been won, 
legislatively or find spaces, places
 
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and organizations that were ahead
of the curve
 
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in terms of implementing, monitoring and 
just execute the basic civil rights
 
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of their various constituents
 
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The impact that all of that has had on me 
is to just be able to communicate
 
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with other parents and students 
with disabilities
 
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about not only knowing their rights but
knowing how to get those rights
 
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how to advocate for ensuring that those 
rights are addressed, are met.
 
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I think the ADA has made 
a huge difference
 
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and the aha moment was even when I was
collating information for this book
 
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on disability prejudice, I realised that 
when I was a kid,
 
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when I was growing up in the 60s and 70s, 
people with disabilities weren't able to
 
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do any of the things that we took for 
granted as kids: go to the movies
 
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go to restaurants, go to visit a friend,
at a friend's house, or invite
 
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others to your birthday parties.
 
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And, since the ADA passed in 1990, 
it wasn't an immediate set of changes,
 
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as, you know, there has been significant
progress made, particularly in public
 
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spaces and in employment settings, 
where there are even employers
 
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who are part of an organization 
of inclusive excellence, who
 
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recognize that disabled employees are 
actually more reliable and
 
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have less turnover and are worth
investing in and promoting.
 
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But, there are still so many places, 
small businesses, educational institutions
 
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that are not carrying out the basic, 
sort of gains and practices that the ADA
 
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has made possible .There's just way too 
much variation, and I think part of that
 
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is just a lack of education in 
terms of what
 
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is reasonable and what is necessary
 
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in terms of accommodating your citizenry
 
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and lack of resources in some cases but
 
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also a lot of misinformation about whether
 
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or not it's worth it. The ADA is going to
 
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be 30 here in July. We're celebrating all
 
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over the country and we are still fighting
 
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for businesses to do what they should have
 
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done 30 years ago, those that have been
 
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around this long. They have not, they have
 
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have waited for complaints or they have
 
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failed to do but the bare minimum in
 
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terms of recruiting the largest minority
 
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I work in the education sphere and to me,
 
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we could be doing so much more with
 
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advertising and recruiting for those kinds
 
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of students that we tend to really, at
 
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least my institution, do well to retain
 
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because we're a small, intimate college
 
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Hiram College. And, and for 
years I've tried to
 
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encourage us to consider more universally
 
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designed approaches, but also approaches
 
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that do more than the bare minimum
when it comes to housing and
 
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extracurricular accommodations for
 
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students to who use mobility devices. For
 
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example, my daughter ended up having to be
 
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carried in her chair, to various club
 
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meetings while she was on the Hiram
 
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College campus. She was told that, 
during the
 
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winter, when the ice storms came, that
 
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they couldn't transport her up the long
 
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hill, while they were
telling everyone
 
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else to walk like a penguin, and we had
 
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vans to do this. We had to file with the
 
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Ohio Disability Rights Commission and
 
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request that the school thinks about other
 
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ways of accommodating her, should there
 
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be a storm, an ice storm, and she can't
 
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get up to campus.
And the solution
 
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was to have her move to a
new dorm.
 
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You can't just do that over night.
 
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You can't just move all your bedding
 
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and all your bathroom supplies
 
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and your whole... you know at the moment's
 
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notice, when the weather changes
 
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and so it has been my experience that
 
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still a lot of places have done
the bare minimum approach
 
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and think that that's all they need to do
 
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when instead, they could be following more
 
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of the latest practices and 
implementation's science
 
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and making it easier for people to
 
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register concerns or complaints.
 
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Not Synced
And they often don't even need to file a
 
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Not Synced
formal complaint issue