How do you find the role of being a carer?

How do you find the role of
being a carer?

Being a carer is very demanding

it's not something you
chose to do

yourself as a career.

You chose to be a parent.

You chose to be a doctor
or a lawyer but

you don't chose to
be a carer.

You wouldn't want to
chose that.

It can be rewarding.

It's very time consuming,

you have to make many
changes in your own life.

Financial changes
and career changes.

You have to look at life
in a different way.

There are many do's
and don'ts that

you have as a carer.

You have to make the
most of it.

It's your child and
they need you more

than other children need
their parents.

You have to look at it
in the best possible way

to just get your bearings
with all the support that

you can get and you feel
that you want to have

around you.

Try to make the best
out of the job.

You can have really
good moments that

feel really rewarding by
being a carer and

feeling that your child
is well and that you find

that you are providing
good care and that they

are healthier than you
expected and you are

finding your bearings.

It is difficult, but it's also
very rewarding.

That's the thing, it's not
what you chose to do

but when you do it
is incredibly rewarding

because you know you
are actually helping your child.

We are helping Amelie.

We are making her comfortable
and we do things that make

her smile and which she enjoys.

That is the most important thing.

As long as she is happy it
makes us happy.

I just do it.

It feels right.

I can't explain.

You have no choice.

For me it's just part of

being Isabella's mum.

I don't have any bad
feelings about that at all.

It is my job in life to give her
the best she could possibly have.

There's lots of things that have
been put to one side but

it doesn't bother me in
the slightest.

She is the most important
person.

I think it's quite rewarding
when Isabella gives something

back to us, in terms of
expressions in her face.

That let's us know we are doing
a good job for her.

It's part and parcel of being
her parents.

It can be quite stressful.

It can be quite tiring.

Emotionally tiring more
than physically.

You get so many mixed emotions

with this whole package.

You feel anger. You feel why?

There are so many questions
and answers that you are

rooting for all the time.

That's where the exhaustion
comes from because

you wear yourself down.

I found being a carer very tough.

I was a first time mum to twins

and then suddenly I'm a first time
mum to twins and one has

a life limiting condition.

I grew into that role and although
physically demanding the

hardest thing I will ever
have to do, mentally, physically

and emotionally I actually
loved caring for Ruby.

That was my life. She was my life.

I would have willing done that
for 50 years.

I can't say it wasn't tough, because
it was but it was

very fulfilling in many ways.