AttitudeLive - Where Are They Now? Bea Learns to Dance
-
0:06 - 0:07Hello my name's Bea.
-
0:07 - 0:09Welcome to my world.
-
0:09 - 0:12This is my family.
-
0:13 - 0:16This is a picture that my
sister Maddy drew. -
0:16 - 0:18She's away at camp
at the moment. -
0:18 - 0:21It's called The Underwater Mellon Man.
-
0:23 - 0:25This is my room.
-
0:26 - 0:29This is one of my toy's
called Lightening. -
0:30 - 0:33I like to read lots of books.
-
0:34 - 0:39Coraline is my best because she
is very strong and brave. -
0:44 - 0:49In the last four years, I feel better now.
-
0:49 - 0:54I can be free to be me
and I can be myself. -
0:55 - 0:57I can be Bea.
-
1:10 - 1:14I'm going to show you
my most interesting thing. -
1:15 - 1:18I have a thing called Arthogryposis.
-
1:19 - 1:25It means that my feet and
ankles were twisted. -
1:25 - 1:31This is what I call the inside house
and these are mum's plants. -
1:32 - 1:37I have Arthogryposis and it's
in my hands too. -
1:37 - 1:41But I get around really good
with my hands as well. -
1:41 - 1:44Arthogryposis is a condition
that affects the joints. -
1:44 - 1:48And it starts to make it's
presence known in utero. -
1:48 - 1:53Bea has amazingly gotten away with
only have her hands and feet affected. -
1:53 - 1:57Usually it's a whole
combination of body parts. -
1:57 - 2:00Feet, hands, elbows, shoulders,
hips and knees. -
2:01 - 2:03And sometimes curvature
of the spine. -
2:04 - 2:09So limited movement of the arms,
possibly internally rotated shoulders. -
2:09 - 2:13Bea's the only one I've come across
that's only feet and hands. -
2:14 - 2:18Bea: And here is the Tarzan swing.
-
2:20 - 2:31Before my operation, I had
no stability in my feet. -
2:32 - 2:35Or any balance.
-
2:36 - 2:47And it would take a long time
to do running or canter, or gallop. -
2:48 - 2:52Or whatever I had to do
I couldn't do. -
2:53 - 2:56When I look back at footage of Bea
walking around and playing outside, -
2:56 - 2:59I remember that feeling
that I had... -
2:59 - 3:02It was such a horrible feeling
watching her move, -
3:02 - 3:05and thinking about how painful
and wrong it looked -
3:05 - 3:08and must feel for her body.
-
3:11 - 3:17When I was four, I couldn't walk
as well as other people could. -
3:19 - 3:24And people use to say that my
feet were like jelly beans. -
3:24 - 3:30They thought that we could
get new legs and new feet. -
3:35 - 3:38Her feet aren't functional.
They cause her pain. -
3:38 - 3:42They don't look very
comfortable at all to walk on. -
3:42 - 3:45And they're damaging
the rest of her body. -
3:51 - 3:54Because she has no bend in
her foot to get herself forward, -
3:54 - 3:58she twists her hips and
so she sashays on tiptoes. -
3:58 - 4:02Recently she's started to
get pain in her hip. -
4:07 - 4:10If she's on her feet a lot
during the day... -
4:10 - 4:16then at night it will come back with a
vengeance and she'll be really sore. -
4:16 - 4:19And she will have broken sleep.
-
4:21 - 4:24When she was seven days old...
-
4:24 - 4:27an orthopaedic surgeon put
her in full leg casts. -
4:28 - 4:31When she was four months old,
she had a tendon release surgery. -
4:31 - 4:35Then immediately after that
she went into DB boots. -
4:36 - 4:39It was really painful because I had to
push her feet down into right angle. -
4:39 - 4:42So there was lots of screaming.
-
4:43 - 4:47When she was two, she
had a huge surgery, -
4:47 - 4:51which was a total foot
reconstruction on both sides. -
4:51 - 4:54They took the cast off and she
couldn't even place her foot in my hand. -
4:54 - 4:56It was so sensitive.
-
4:56 - 4:59And five minutes later after that
appointment we were sent to orthotics -
4:59 - 5:02to force her feet back in those boots.
-
5:04 - 5:07And so we would put them
on at 9pm at night, -
5:07 - 5:10she'd scream in pain until
about 5am in the morning. -
5:10 - 5:13Then we'd take them off and then
she's sleep for four hours. -
5:13 - 5:15And then she would have a four
hour sleep in the afternoon. -
5:15 - 5:18And at 9pm we'd put them on
again and there'd be screaming. -
5:19 - 5:23So when she was finally able to put
weight on them and they were flat. -
5:23 - 5:25It was for three weeks that
she was able to wear shoes -
5:25 - 5:28and they were flat and then
they started to go back again. -
5:36 - 5:41After four years of struggling
with surgeries and her pain, -
5:41 - 5:46also realising that she'll probably
end up with badly damaged hips, -
5:46 - 5:48having curvature of the spine,
benig in a wheelchair, -
5:48 - 5:55being really inactive and being an
angry person who's always in pain. -
5:55 - 5:59We just thought that surely
amputation would be a better option. -
5:59 - 6:01Bea: You get them on like this.
-
6:03 - 6:09I really like them because
they look cool with my skirt. -
6:12 - 6:14Let's play hide and seek.
-
6:19 - 6:22It's a big decision to make...
-
6:22 - 6:25but it's a big decision to decide
to have a child. -
6:25 - 6:29You have to make a decision and this is
the decision that we're deciding to make. -
6:29 - 6:34You'd be inhuman to feel like it
was easy and to not have doubts. -
6:39 - 6:46By doing the amputation,
hopefully it's a one off thing, -
6:46 - 6:51and then she gets the prosthetics
and then she has a great childhood. -
6:51 - 6:57She'll be more able bodied
with prosthetics than without. -
7:58 - 8:00Have a good day at school.
-
8:00 - 8:01See ya.
-
8:01 - 8:02Love you.
-
8:02 - 8:03Love you too.
-
8:06 - 8:08Bye dad.
-
8:13 - 8:17Socially, I think that Bea
sometimes struggles... -
8:17 - 8:20because all through kindy and
through that time of her life... -
8:20 - 8:22she was always in pain.
-
8:22 - 8:28So to play freely it's
a distracting pain. -
8:31 - 8:35Bea: At school I feel confidant and
not confidant at the same time. -
8:35 - 8:39Like I'm in between.
-
8:45 - 8:50In school there's this friend
called Kimberly, -
8:50 - 8:54and she makes me so happy.
-
8:54 - 8:56Good morning Bea.
-
8:57 - 8:59Have a lovely day.
-
9:00 - 9:04Kimberly is my best friend
that I can remember. -
9:05 - 9:08Also are Makayla and Jasmine.
-
9:19 - 9:24Kimberly and Bea met when
Kimberly came into class... -
9:24 - 9:26and her desk was put
facing Bea's desk. -
9:26 - 9:29Bea said that they
looked at each other... -
9:29 - 9:31and Bea saw Kimberly's
hearing aides... -
9:31 - 9:33and Kimberly looked
at Bea's feet. -
9:33 - 9:35And then Kimberly said,
"We're made for each other." -
9:40 - 9:42Kimberly is very protective of Bea,
-
9:42 - 9:45and sometimes she comes out
with really wonderful things like... -
9:45 - 9:50"You can play with me but you just
be yourself and do what you want to do." -
9:50 - 9:51Things like that.
-
10:00 - 10:04Bea: In the playground when
I play with my friends -
10:04 - 10:08I feel like a team, like in the group.
-
10:08 - 10:12And I feel like I can do
anything with them. -
10:16 - 10:22Her strength is nothing I've ever seen
before in an adult or a child. -
10:24 - 10:27She biked to school...
-
10:27 - 10:30she was determined to bike to
school when she was six. -
10:30 - 10:35And she was sweating and her
face was really serious. -
10:36 - 10:39And she was riding this little
bike with trainer wheels -
10:39 - 10:42and it was chunky concrete.
-
10:42 - 10:44And I was saying to her,
"Are you alright?" -
10:44 - 10:46And she was just saying,
"I'm great." -
10:46 - 10:47And she biked the whole
way to school. -
10:47 - 10:50She would have been so
sore and awkward... -
10:50 - 10:53but she refused to stop.
-
10:57 - 11:00The thing that I like about
Napier and Hawkes Bay -
11:00 - 11:04is that there are heaps of shops
that you can go shopping in. -
11:04 - 11:06That's my favourite part.
-
11:07 - 11:10Inflatable World is my favourite place.
-
11:10 - 11:14I've been there it's very fun.
-
11:15 - 11:18But I hate it when I have to race
against my friend to climb up. -
11:18 - 11:20I always lose.
-
11:21 - 11:22Same.
-
11:25 - 11:30Having no feet feels like...
-
11:34 - 11:42like I have no things
to stable me up. -
11:43 - 11:49Because I always wobbly
a bit when I stand still. -
11:50 - 11:54So I can't be stable.
-
11:55 - 11:57It feels sad doesn't it.
-
11:57 - 11:58Hmmm.
-
12:00 - 12:04But it also feels exciting
because I run quite fast. -
12:04 - 12:05Yeah you do.
-
12:13 - 12:15Kimberly: My flavour is boysenberry.
What's yours? -
12:15 - 12:20Bea: My flavour is Mute, it's chocolate
chip and it's a double scoop! -
12:20 - 12:23And cookies and cream.
-
12:23 - 12:26Yum it tastes delicious.
-
12:28 - 12:31What are you going to
be when you grow up? -
12:31 - 12:33I am going to be hairdresser.
-
12:33 - 12:37I think I'm going to be
a fashion designer. -
12:37 - 12:40Like design clothes
and sell them. -
12:40 - 12:42We can work together.
-
12:43 - 12:45Yeah I could do the hair
and you do fashion. -
12:46 - 12:48Fashion for fashion.
-
12:48 - 12:49(Laughs)
-
12:55 - 12:59Bea: When I was four, my
mum told me a story -
12:59 - 13:04to help me understand what was
going to happen to my legs. -
13:13 - 13:14Are you going to be
the girl in the story? -
13:14 - 13:15Yeah.
-
13:16 - 13:20Once upon a time there
was a big giant man. -
13:20 - 13:22And he made everything.
-
13:22 - 13:27He made all the cars, all the plants and
the pets and all of the people. -
13:27 - 13:30One day he was in the middle
of making a little girl... -
13:30 - 13:31called Bea.
-
13:31 - 13:35Called Bea and he heard a really
loud banging noise outside. -
13:35 - 13:40He quickly went and rushed outside.
-
13:40 - 13:42Then the little girl thought
she'd like to get up -
13:42 - 13:44and look at what happened
outside too. -
13:44 - 13:48And when she got up and tried
to walk she discovered -
13:48 - 13:53that he hadn't finished her off properly
and she couldn't walk properly. -
13:53 - 13:56And then one day her mum
and dad said to her... -
13:56 - 13:58"Guess what?"
-
13:58 - 14:04"The doctor said that he can
take off your feet and get new ones." -
14:04 - 14:06Build you knew ones.
-
14:06 - 14:08New ones.
-
14:08 - 14:15They went to the hospital and the
little girl had some medicine -
14:15 - 14:19and then she fell asleep.
-
14:19 - 14:22When she woke up she looked
under the blankets -
14:22 - 14:25there were no feet at
the end of her legs. -
14:25 - 14:26Do you know what
she thought then? -
14:26 - 14:27What?
-
14:27 - 14:30She felt a little bit worried
-
14:30 - 14:34and then she remembered
what that meant. -
14:34 - 14:39That meant that she was
getting new feet. -
14:56 - 15:00I don't think that there's any question
that anyone could answer, -
15:00 - 15:04or anything anyone could say that would
make me feel 100% fine about it. -
15:04 - 15:09But I think there would be
something unusual about you... -
15:09 - 15:14if you could feel 100% fine about
someone cutting off your child's feet. -
15:15 - 15:20For some people, amputating her feet may
seem like an incredibly dramatic way -
15:20 - 15:27of coping with the situation when they
may not see the alternative as being so bad. -
15:27 - 15:28Hello Grandpa.
-
15:29 - 15:35I'll leave you in two minutes
when you go hunting for leopards. -
15:36 - 15:37Goodbye.
-
15:47 - 15:49Arggh!
-
16:29 - 16:32These are my stumps.
-
16:33 - 16:36And I got new feet.
-
16:37 - 16:41Amazingly the difference in her,
not just physically but psychologically -
16:41 - 16:45from the minute they were gone
has been incredible. -
16:45 - 16:50Two days after she's come out from under
general and having her feet amputated. -
16:50 - 16:52I lifted the covers up and
there were no feet there -
16:52 - 16:54and there was blood
on the plaster cast. -
16:54 - 16:57And I felt a bit shaky about it.
-
16:57 - 17:00Her feet were a huge
part of my life. -
17:00 - 17:02I use to fall asleep
holding them. -
17:02 - 17:05Every night I'd be on my
knees, holding her feet. -
17:05 - 17:09They represented her to me
and they were gone. -
17:13 - 17:16She lifted the blankets up
and she looked at me. -
17:16 - 17:20And I was so nervous and really aware of
how I was going to respond to her -
17:20 - 17:22and where that would
lead in her mind. -
17:22 - 17:25And she looked at me and she said,
"Mum I've got no feet!" -
17:25 - 17:27It was like Christmas.
-
17:32 - 17:36Really soon you're going to be able to
run and dance like that. -
18:08 - 18:10I'm going to get my new feet!
-
18:14 - 18:19It was really moving the first
time I saw Bea walk on legs -
18:19 - 18:22because I hadn't imagined
seeing her with feet. -
18:22 - 18:25It was really strange
and really amazing. -
18:25 - 18:29And I think for her it
was amazing as well. -
18:45 - 18:49First we put on a sock and
that always goes on first. -
18:50 - 18:54And then a liner that's
soft and spongey. -
18:57 - 18:59That will slide all the way in.
-
19:03 - 19:05Look at you!
-
19:05 - 19:07Try and take a few steps.
-
19:08 - 19:10Have a walk Bea.
-
19:18 - 19:20I'm going to walk the
whole way over there. -
19:28 - 19:30I'm not puffed out.
-
19:45 - 19:48I can't believe how
tall she is. -
19:48 - 19:51It's way more overwhelming
than I thought it would be. -
19:51 - 19:52Way more.
-
19:53 - 19:57Because she's never ever
walked like that. -
19:57 - 20:00It's better.
-
20:01 - 20:03She's never had feet
that were that shape. -
20:05 - 20:09I think she really enjoys
pushing herself. -
20:10 - 20:16So having prosthetics she
pushes herself in different ways. -
20:19 - 20:22She would practice walking uphill
using just the tippy toes of the feet. -
20:22 - 20:27And trusting that even though they weren't
her feet they would still carry her. -
20:27 - 20:30So she could do more.
-
20:49 - 20:52The horse riding for Bea
has been huge. -
20:52 - 20:53It's not just the riding
of the horse, -
20:53 - 20:56but being able to have a relationship
with animals in general. -
20:56 - 20:59Hi welcome back.
-
20:59 - 21:01Are you ready to ride?
-
21:01 - 21:03Yes.
-
21:06 - 21:10Dyon, the riding instructor has
become a really special person to Bea. -
21:10 - 21:16The relationship that they have
and the constantly evident belief -
21:16 - 21:19that Dyon has in Bea's ability.
-
21:19 - 21:21You've cantered on three
horses now eh? -
21:21 - 21:23Yes.
-
21:23 - 21:28Johnty, Georgie...
and Fred. -
21:29 - 21:32At Riding for the Disabled
we have a huge range of people -
21:32 - 21:35that come to us with
a range of issues. -
21:35 - 21:38Bea's realised that this is
something she can do -
21:38 - 21:39the same as anybody else.
-
21:39 - 21:42It doesn't depend on having feet,
she doesn't need them -
21:42 - 21:44and she's not at any disadvantage.
-
21:47 - 21:49Bea's relationship with the
horses is really good. -
21:49 - 21:54She's very compassionate and thinks a lot
about what her horses are enjoying. -
21:59 - 22:01Fred hasn't had any work today
you're his first rider. -
22:01 - 22:03Do you think he's looking
forward to it? -
22:03 - 22:05Yes.
-
22:12 - 22:14So go through this gap.
-
22:15 - 22:16Come on.
-
22:21 - 22:23Get him into a nicer
walk than that Bea. -
22:24 - 22:29When I'm riding a horse, I feel
nervous, free and happy. -
22:30 - 22:33Riding a horse is hard for me...
-
22:33 - 22:41because my legs aren't stable enough
to balance on the horse. -
22:44 - 22:50When I kick I want the horse to
realize that I want to walk. -
22:50 - 22:54And whenever I kick,
it canters. -
22:59 - 23:02A while ago she was
riding in a saddle, -
23:02 - 23:04but she found it really difficult
because it didn't work with the stirrups. -
23:04 - 23:07And riding with her prosthetic legs
didn't work for her either -
23:07 - 23:10because she couldn't feel what
she was doing with them. -
23:12 - 23:15So a bare back pad is a
better option for her. -
23:15 - 23:18They're good for developing their seat
and their core strength and balance, -
23:18 - 23:21which Bea will definitely need.
-
23:44 - 23:46(Sings)
-
23:49 - 23:52Bea: Thane has been my
friend for two years. -
23:53 - 23:56And he's made me a painting
of a bird and a jug -
23:56 - 23:58and now he's made me a song.
-
23:58 - 24:00(Sings)
-
24:00 - 24:02Amazingly young lady called Bea
-
24:02 - 24:06was an eight year old twin amputee.
-
24:06 - 24:09She said I don't need feet
to make me complete. -
24:09 - 24:15I can still kick your ass
with my knee. -
24:17 - 24:23Bea: When I was dancing with Thane
and singing the song with him -
24:23 - 24:28I felt free and I feel like
I can do anything -
24:28 - 24:30and I'm ready to dance.
-
24:32 - 24:36Thane: Try putting the ball down
and spinning as fast as you can. -
24:36 - 24:36(Sings)
-
24:36 - 24:37Kicking that ass
-
24:37 - 24:38Kicking that ass
-
24:38 - 24:41Now without the ball.
-
24:41 - 24:43Just you spinning on your feet.
-
24:43 - 24:44Kicking that ass
-
24:44 - 24:47Kicking that ass.
-
24:53 - 24:58A personal thing that I
want to do is dance. -
24:59 - 25:01And I really feel like
I can do it. -
25:01 - 25:04Nothing is going to stop me.
-
25:06 - 25:08There are two things
that Bea does -
25:08 - 25:12where I get to see her
free of any worry. -
25:12 - 25:14One of them is when she's
in the pool swimming. -
25:14 - 25:17The other one is when we
have music playing -
25:17 - 25:19and we're dancing together
in the lounge. -
25:19 - 25:23But she also has
that desire to perform. -
25:24 - 25:25Hi Bea how are you?
-
25:25 - 25:26Good.
-
25:26 - 25:28My name's Leanne
nice to meet you. -
25:28 - 25:30This is Corrine, studio director.
-
25:30 - 25:35And Madison, senior dancer
and Corrine's daughter. -
25:37 - 25:39We're going to start
with some bar work. -
25:40 - 25:44Come a little closer and
stand up nice and tall. -
25:45 - 25:51Take our right foot and take it forward
and then bring it back. -
25:52 - 25:54I really want to see how
far she'll go -
25:54 - 25:55and what she can do
with this dancing -
25:55 - 25:59because she's got the
determination physically -
25:59 - 26:02and she can really focus
on pushing herself. -
26:03 - 26:05Bring your right leg up
-
26:05 - 26:09and when it lowers down squeeze
your stomach nice and tight. -
26:15 - 26:18Bend your right leg.
-
26:20 - 26:24Down, 5, 6, 7, 8.
-
26:28 - 26:31It's been a really good experience
having been to the studio today -
26:31 - 26:34and looking at what
she's capable of. -
26:34 - 26:36She's a very confident
young lady. -
26:36 - 26:40We would love to help
her grow in her dance -
26:40 - 26:43and her enjoyment
of movement. -
26:46 - 26:48Two steps together
out to the side. -
26:48 - 26:52So right, together and
finding that centre. -
26:55 - 27:00Right, together, swing and clap
and swing and clap. -
27:04 - 27:09Bea: One day I would like
to be doing tap dancing. -
27:10 - 27:16And I could be in a concert
and everybody would look at me. -
27:20 - 27:26Dancing it feels like I'm free and I can
do anything with anyone. -
27:29 - 27:32I wish Kimberly could
see me right now. -
27:36 - 27:39I have no doubt whatsoever
that Bea will grow up to be -
27:39 - 27:43a really strong, confident
and powerful woman. -
27:43 - 27:46And do whatever she wants.
-
27:53 - 27:56You know what I really
want to do now? -
27:56 - 27:56What?
-
27:56 - 27:58I want to hug you.
-
27:58 - 28:00Me too.
-
28:04 - 28:07Where are we going to get
our ice cream? -
28:07 - 28:08There.
-
28:09 - 28:12Yeah!!
-
28:13 - 28:14Ice cream!!
- Title:
- AttitudeLive - Where Are They Now? Bea Learns to Dance
- Description:
-
At just four years old, Bea Wuts and her parents made an agonizing decision to have both Bea’s feet amputated and replaced with artificial legs. Now eight years old, Bea is a keen swimmer and horse rider… but what she really wants to do is dance.
- Video Language:
- English
- Duration:
- 28:28
Claude Almansi edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive approved English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance | ||
info_attitudelive edited English subtitles for AttitudeLive - Where Are They Now? Bea Learns to Dance |