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[Life Story -- R.E.M.
'Everybody Hurts' - Cover by Suzi]
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[M.E. Action
#Bedfest 2017]
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♪ (piano music) ♪
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[My name is Suzi]
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[I used to be a Healthy Energetic Girl
I graduated in Musical Theatre]
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[And performed in Professional Shows
inc. Sandy in Grease]
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[I was a singer / Songwriter Musician
Working in the Studio with]
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[Producers around the world
...I was Happy]
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[Imagine if one day
life disappeared forever]
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[Suddenly overnight
I became Seriously ill, Disabled in Bed]
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[I lost the ability to Walk Eat Talk
Suffered 20 Seizures & Panic Attacks a day]
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[Spent years in A&E + Hospitals
I saw 50+ doctos who said]
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[There was nothing wrong with me
...They were WRONG]
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[Good news! Your lab results look great.]
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[Everything is normal;
you are the picture of health]
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????????????????
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["You're faking it."]
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[Oh really, I had no idea you were
inside my body and could feel my pain.]
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[And what is it, do you suppose,
that I could gain from "faking it"?]
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[Because being unable to move, being in pain,
being medicated ... Yeah, that's totally 'cool'...]
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[I was Labeled a Liar Hypocondriac
Faking it for Attention]
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[I just wanted to be BELIEVED]
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[Eventually Diagnosed
With M.E. then Lyme Disease]
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[I was Left ALONE with No help]
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[M.E. isn't Tiredness
Your Whole body SHUTS DOWN]
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[It SUCKS all of the life out of you]
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[Myalgic Encephalomyelitis [ME)]
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[What are the symptoms of this complex,
multisystemic and chronic illesss? ..."]
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♪ When your day is long ♪
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♪ And the night...
The night is yours alone ♪
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♪ You're sure you have enough ♪
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♪ Of this life ♪
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♪ Hang on ♪
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♪ Don't let yourself go ♪
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♪ 'Cause everybody cried ♪
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♪ Oh, and everybody hurts sometimes ♪
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♪ Sometimes everything is wrong ♪
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♪ Now it's time to sing along ♪
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♪ When your day is night alone (hold on) ♪
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♪ If you feel like letting go (hold on) ♪
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♪ If you think you've had too much ♪
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♪ Of this life ♪
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♪ Hang on ♪
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♪ Oh, 'cause everybody hurts ♪
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♪ Take comfort in your friends ♪
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♪ Oh, and everybody hurts ♪
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♪ Sometimes ♪
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♪ Sometimes ♪
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♪ Oh... ♪
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[I think one of the worst parts
of having a chronic illness]
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[is how sometimes it just breaks you.]
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[You can have several bad days in a row
and handle it just fine;]
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[then one day you lose it because you've
gone so long taking it]
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[that you eventually get to a point
where you just can't do it anymore]
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[After a period of inconsolable grief,
you pick yourself up and begin the cycle anew.]
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[I'M FINE]
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[She is M.E.]
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[I am a spoonie.]
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[I am strong, fearless, a fighter, a warrior,
a pin cushion, a doctor with no diploma,]
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[I'm a pill popping, ice bag wearing, heating
pad sharing, fun loving, smiling through tears,]
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[hard working, not giving up, coffee in my cup,
socializing, people surprising, mesmerizing,]
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[hand sanitizing, big hearted, never departed,
hand lending, special time spending,]
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[body fighting spoonie.
What's your super power?]
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["I dream of a long sleep.
I dream of pain free days.]
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[I dream of understanding.
I dream of compassion.]
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[I dream of the person I was.]
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[I dream of waking up to my old life
to find that all of this has been a bad dream,]
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[and I am me again."]
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[POEM-MONSTER]
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[Waking up in the dark
I feel this fragile beating heart]
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[Black deepest hole
Lonely invades my soul]
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[Lost deserted mind
Bury me from sin]
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[Darkness comes the night
Monster inside of me]
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[Restless creeping pains
Crawling through my veins ~Suzi]
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[POEM ~ SILENT & STILL]
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[Silent and still
In the Dead of night]
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[The Restless mind wonders
Playing tricks on me]
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[Nightmares and Dreams
Merging into one]
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[A Long vivid journey
I Search for the Perpetual Light]
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[To guide me
Through the Raging Storm ~Suzi]
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[POEM~FIRE]
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[You Feel the Fire inside
Fade Away till it's only a flicker]
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[Nothingness Surrounds you
Your Heart is so heavy]
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[Sadness Consumes you]
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[Then Somehow out of the darkness
The Voice of Courage]
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[Whispers in your ear
Do not give up today]
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[Suzi]
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["And with a broken wing, she still sings,
she keeps an eye on the sky]
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[with a broken wing, she carries her dreams,
man you oughta see her fly."]
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[Martina McBride]
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[While ill in bed I have written
Lots of Songs Music & Poems]
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[Everyday I write
It gives me the strength]
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[To keep going and helps me cope
With the struggles of living with illness]
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[My Dream is to get Better
Make & Share my Music to help Others]
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["Music gives a Soul to the Universe
Wings to the Mind]
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[Flight to the imagination
And Life to everything."]
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[Visit: Facebook @Suzzi
SoundCloud @Suzzi]
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[Facebook @M.EWithATwistOfLyme]
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[Presented and Produced by Suzi]