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← Marcie Roth


Showing Revision 28 created 11/22/2021 by Daisy Stobbe.

  1. You’ll see in the corner the record button
  2. So you should see that it’s recording now,
  3. And I’m going to mute myself
  4. And you’ll go ahead and do your intro.
  5. Thank you Marcie.
  6. Hi there, I’m Marcie Roth
  7. And I have been working in disability rights
  8. For my whole adult life,
  9. And actually, since I was a freshman in high school.
  10. I am currently the executive director and CEO of the World Institute on Disability
  11. And I have been working over the years in services
  12. for people living in residential programs early in my career
  13. with people in,
  14. children in school settings,
  15. people in vocational rehabilitation,
  16. and then people in community living environments,
  17. that along the way, I became very involved in disability rights
  18. and very involved in the early days of advocacy
  19. before the ADA was introduced.
  20. And then I worked for disability advocacy organizations almost ever since.
  21. In addition to my own disability,
  22. I’m also the parent of two
  23. now adults with disabilities.
  24. My husband also has a disability,
  25. and much of my family also happen to be people with disabilities
  26. so disability rights is just part of
  27. everything I am and most everything I do.
  28. I did spend from 2001 and onward
  29. focusing very much on what happens for people with disabilities
  30. before, during, and after disasters.
  31. And that’s been a real particular laser focus of mine ever since,
  32. and in fact, I’ve had the opportunity
  33. as an appointee in the Obama administration
  34. to spend just about 8 years at FEMA,
  35. establishing FEMA’s Office of Disability Integration Coordination,
  36. and building a cadre of disability experts
  37. of the same pond, supporting governors
  38. and emergency managers and most particularly
  39. engaging people with disabilities and disability organizations
  40. in emergency preparedness
  41. and throughout disaster response recovery and mitigation.
  42. So one last piece since I’ve been with
  43. the World Institute on Disability since last September,
  44. my ongoing focus on global disability rights has really been
  45. something that I’ve had much more opportunity to e actively involved in
  46. and I have spent the time since joining
  47. WID building a strategic planning process
  48. and supporting the organizations to establish new priorities,
  49. taking a look at the organization’s mission
  50. and very recently establishing four particular areas of focus
  51. for the organization as we move forward.
  52. Thank you Marcie. Excellent, okay
  53. I apologize that my neighbor is chipping a lot of brush today,
  54. so it’s making extra sound whenever I unmute
  55. but don’t worry, it won’t interfere with your recording.
  56. Okay, so the first question is about the past.
  57. So tell of your first memory realizing that there were
  58. accessibility issues, discrimination, or lack of inclusion.
  59. What is your personal story or connection
  60. to the American’s with Disabilities Act? What do you remember
  61. about the day that it was signed, if applicable?
  62. And what was the impact on you and on others?
  63. Remember to tap something so that the camera shifts to you
  64. before you start.
  65. I first became aware of disability at a very young age.
  66. I had a best friend in first grade, his name was Gregory,
  67. and he and I were just wonderful friends.
  68. We spent a lot of time together,
  69. and then all of the sudden one day, Gregory was gone,
  70. and I didn’t know what happened to him or where he went
  71. and it wasn’t until many years later
  72. that I found out that Gregory had Down Syndrome,
  73. and he had been removed from my Kindergarten class,
  74. and first grade I think it was at that point,
  75. and apparently he had been sent to some other school somewhere.
  76. And the loss of his friendship was pretty surprising
  77. and I didn’t understand, you know, where he went.
  78. Looking back on it it’s kind of peculiar that we didn’t get to still be friends
  79. ‘cause he didn’t move away, he just stopped going to my school.
  80. But, I...
  81. I remember just being confused and then over the next number of years,
  82. I lived in a town that was also the home of Save the Children,
  83. and I was always very interested in the work that Save the Children was doing,
  84. and I am embarrassed to admit that my earliest involvement
  85. in humanitarian work was from a, you know, very charity-model approach,
  86. and I spent a lot of my childhood raising money for Save the Children,
  87. and getting involved in other activities that were very much following
  88. the charity-pity model and certainly not a model of
  89. making space for and supporting and lifting up other people with disabilities.
  90. the onset of my disability wasn't until
    many years later,