[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.86,0:00:04.15,Default,,0000,0000,0000,,You’ll see in the corner the record button
Dialogue: 0,0:00:04.15,0:00:06.14,Default,,0000,0000,0000,,So you should see that it’s recording now,
Dialogue: 0,0:00:06.14,0:00:07.53,Default,,0000,0000,0000,,And I’m going to mute myself
Dialogue: 0,0:00:07.59,0:00:09.65,Default,,0000,0000,0000,,And you’ll go ahead and do your intro.
Dialogue: 0,0:00:09.72,0:00:11.33,Default,,0000,0000,0000,,Thank you Marcie.
Dialogue: 0,0:00:14.23,0:00:16.29,Default,,0000,0000,0000,,Hi there, I’m Marcie Roth
Dialogue: 0,0:00:16.29,0:00:22.14,Default,,0000,0000,0000,,And I have been working in disability rights
Dialogue: 0,0:00:22.14,0:00:26.22,Default,,0000,0000,0000,,For my whole adult life,
Dialogue: 0,0:00:26.22,0:00:31.56,Default,,0000,0000,0000,,And actually, since I was a freshman in high school.
Dialogue: 0,0:00:31.56,0:00:42.54,Default,,0000,0000,0000,,I am currently the executive director and CEO of the World Institute on Disability
Dialogue: 0,0:00:42.54,0:00:53.21,Default,,0000,0000,0000,,And I have been working over the years in services
Dialogue: 0,0:00:53.21,0:01:01.86,Default,,0000,0000,0000,,for people living in residential programs early in my career
Dialogue: 0,0:01:01.86,0:01:05.46,Default,,0000,0000,0000,,with people in,
Dialogue: 0,0:01:05.46,0:01:09.10,Default,,0000,0000,0000,,children in school settings,
Dialogue: 0,0:01:09.10,0:01:15.00,Default,,0000,0000,0000,,people in vocational rehabilitation,
Dialogue: 0,0:01:15.00,0:01:23.41,Default,,0000,0000,0000,,and then people in community living environments,
Dialogue: 0,0:01:23.41,0:01:30.92,Default,,0000,0000,0000,,that along the way, I became very involved in disability rights
Dialogue: 0,0:01:30.92,0:01:41.32,Default,,0000,0000,0000,,and very involved in the early days of advocacy
Dialogue: 0,0:01:41.32,0:01:44.96,Default,,0000,0000,0000,,before the ADA was introduced.
Dialogue: 0,0:01:44.96,0:01:54.85,Default,,0000,0000,0000,,And then I worked for disability advocacy organizations almost ever since.
Dialogue: 0,0:01:54.86,0:01:58.41,Default,,0000,0000,0000,,In addition to my own disability,
Dialogue: 0,0:01:58.41,0:02:02.04,Default,,0000,0000,0000,,I’m also the parent of two
Dialogue: 0,0:02:02.04,0:02:04.87,Default,,0000,0000,0000,,now adults with disabilities.
Dialogue: 0,0:02:04.87,0:02:08.56,Default,,0000,0000,0000,,My husband also has a disability,
Dialogue: 0,0:02:08.56,0:02:17.44,Default,,0000,0000,0000,,and much of my family also happen to be people with disabilities
Dialogue: 0,0:02:17.44,0:02:23.75,Default,,0000,0000,0000,,so disability rights is just part of
Dialogue: 0,0:02:23.75,0:02:27.38,Default,,0000,0000,0000,,everything I am and most everything I do.
Dialogue: 0,0:02:27.38,0:02:38.80,Default,,0000,0000,0000,,I did spend from 2001 and onward
Dialogue: 0,0:02:38.80,0:02:44.43,Default,,0000,0000,0000,,focusing very much on what happens for people with disabilities
Dialogue: 0,0:02:44.43,0:02:47.08,Default,,0000,0000,0000,,before, during, and after disasters.
Dialogue: 0,0:02:47.08,0:02:54.24,Default,,0000,0000,0000,,And that’s been a real particular laser focus of mine ever since,
Dialogue: 0,0:02:54.24,0:02:57.50,Default,,0000,0000,0000,,and in fact, I’ve had the opportunity
Dialogue: 0,0:02:57.50,0:03:01.93,Default,,0000,0000,0000,,as an appointee in the Obama administration
Dialogue: 0,0:03:01.93,0:03:08.23,Default,,0000,0000,0000,,to spend just about 8 years at FEMA,
Dialogue: 0,0:03:08.23,0:03:14.50,Default,,0000,0000,0000,,establishing FEMA’s Office of Disability Integration Coordination,
Dialogue: 0,0:03:14.50,0:03:23.26,Default,,0000,0000,0000,,and building a cadre of disability experts
Dialogue: 0,0:03:23.26,0:03:27.48,Default,,0000,0000,0000,,of the same pond, supporting governors
Dialogue: 0,0:03:27.48,0:03:34.84,Default,,0000,0000,0000,,and emergency managers and most particularly
Dialogue: 0,0:03:34.84,0:03:38.40,Default,,0000,0000,0000,,engaging people with disabilities and disability organizations
Dialogue: 0,0:03:38.40,0:03:42.17,Default,,0000,0000,0000,,in emergency preparedness
Dialogue: 0,0:03:42.17,0:03:46.64,Default,,0000,0000,0000,,and throughout disaster response recovery and mitigation.
Dialogue: 0,0:03:46.64,0:03:54.20,Default,,0000,0000,0000,,So one last piece since I’ve been with
Dialogue: 0,0:03:54.20,0:03:59.13,Default,,0000,0000,0000,,the World Institute on Disability since last September,
Dialogue: 0,0:03:59.13,0:04:09.36,Default,,0000,0000,0000,,my ongoing focus on global disability rights has really been
Dialogue: 0,0:04:09.43,0:04:16.30,Default,,0000,0000,0000,,something that I’ve had much more opportunity to e actively involved in
Dialogue: 0,0:04:16.30,0:04:26.00,Default,,0000,0000,0000,,and I have spent the time since joining
Dialogue: 0,0:04:26.00,0:04:31.60,Default,,0000,0000,0000,,WID building a strategic planning process
Dialogue: 0,0:04:31.60,0:04:42.84,Default,,0000,0000,0000,,and supporting the organizations to establish new priorities,
Dialogue: 0,0:04:42.84,0:04:47.13,Default,,0000,0000,0000,,taking a look at the organization’s mission
Dialogue: 0,0:04:47.13,0:04:53.66,Default,,0000,0000,0000,,and very recently establishing four particular areas of focus
Dialogue: 0,0:04:53.66,0:04:56.84,Default,,0000,0000,0000,,for the organization as we move forward.
Dialogue: 0,0:04:59.47,0:05:01.97,Default,,0000,0000,0000,,Thank you Marcie. Excellent, okay
Dialogue: 0,0:05:01.97,0:05:06.53,Default,,0000,0000,0000,,I apologize that my neighbor is chipping a lot of brush today,
Dialogue: 0,0:05:06.53,0:05:09.18,Default,,0000,0000,0000,,so it’s making extra sound whenever I unmute
Dialogue: 0,0:05:09.18,0:05:12.66,Default,,0000,0000,0000,,but don’t worry, it won’t interfere with your recording.
Dialogue: 0,0:05:12.66,0:05:15.96,Default,,0000,0000,0000,,Okay, so the first question is about the past.
Dialogue: 0,0:05:15.96,0:05:18.93,Default,,0000,0000,0000,,So tell of your first memory realizing that there were
Dialogue: 0,0:05:18.94,0:05:23.08,Default,,0000,0000,0000,,accessibility issues, discrimination, or lack of inclusion.
Dialogue: 0,0:05:23.08,0:05:25.67,Default,,0000,0000,0000,,What is your personal story or connection
Dialogue: 0,0:05:25.67,0:05:28.83,Default,,0000,0000,0000,,to the American’s with Disabilities Act? What do you remember
Dialogue: 0,0:05:28.83,0:05:31.43,Default,,0000,0000,0000,,about the day that it was signed, if applicable?
Dialogue: 0,0:05:31.43,0:05:34.98,Default,,0000,0000,0000,,And what was the impact on you and on others?
Dialogue: 0,0:05:34.98,0:05:38.63,Default,,0000,0000,0000,,Remember to tap something so that the camera shifts to you
Dialogue: 0,0:05:38.63,0:05:39.92,Default,,0000,0000,0000,,before you start.
Dialogue: 0,0:05:44.65,0:05:55.44,Default,,0000,0000,0000,,I first became aware of disability at a very young age.
Dialogue: 0,0:05:55.44,0:06:02.13,Default,,0000,0000,0000,,I had a best friend in first grade, his name was Gregory,
Dialogue: 0,0:06:02.13,0:06:09.69,Default,,0000,0000,0000,,and he and I were just wonderful friends.
Dialogue: 0,0:06:09.69,0:06:12.40,Default,,0000,0000,0000,,We spent a lot of time together,
Dialogue: 0,0:06:12.40,0:06:16.56,Default,,0000,0000,0000,,and then all of the sudden one day, Gregory was gone,
Dialogue: 0,0:06:16.56,0:06:24.16,Default,,0000,0000,0000,,and I didn’t know what happened to him or where he went
Dialogue: 0,0:06:24.16,0:06:26.96,Default,,0000,0000,0000,,and it wasn’t until many years later
Dialogue: 0,0:06:26.96,0:06:32.59,Default,,0000,0000,0000,,that I found out that Gregory had Down Syndrome,
Dialogue: 0,0:06:32.59,0:06:36.99,Default,,0000,0000,0000,,and he had been removed from my Kindergarten class,
Dialogue: 0,0:06:36.99,0:06:41.19,Default,,0000,0000,0000,,and first grade I think it was at that point,
Dialogue: 0,0:06:41.19,0:06:46.85,Default,,0000,0000,0000,,and apparently he had been sent to some other school somewhere.
Dialogue: 0,0:06:46.85,0:06:58.05,Default,,0000,0000,0000,,And the loss of his friendship was pretty surprising
Dialogue: 0,0:06:58.05,0:07:03.94,Default,,0000,0000,0000,,and I didn’t understand, you know, where he went.
Dialogue: 0,0:07:03.94,0:07:09.24,Default,,0000,0000,0000,,Looking back on it it’s kind of peculiar that we didn’t get to still be friends
Dialogue: 0,0:07:09.24,0:07:14.81,Default,,0000,0000,0000,,‘cause he didn’t move away, he just stopped going to my school.
Dialogue: 0,0:07:15.89,0:07:18.69,Default,,0000,0000,0000,,But, I...
Dialogue: 0,0:07:20.72,0:07:31.65,Default,,0000,0000,0000,,I remember just being confused and then over the next number of years,
Dialogue: 0,0:07:31.65,0:07:40.15,Default,,0000,0000,0000,,I lived in a town that was also the home of Save the Children,
Dialogue: 0,0:07:40.15,0:07:49.68,Default,,0000,0000,0000,,and I was always very interested in the work that Save the Children was doing,
Dialogue: 0,0:07:49.68,0:07:56.97,Default,,0000,0000,0000,,and I am embarrassed to admit that my earliest involvement
Dialogue: 0,0:07:56.97,0:08:06.48,Default,,0000,0000,0000,,in humanitarian work was from a, you know, very charity-model approach,
Dialogue: 0,0:08:06.48,0:08:16.02,Default,,0000,0000,0000,,and I spent a lot of my childhood raising money for Save the Children,
Dialogue: 0,0:08:16.02,0:08:28.15,Default,,0000,0000,0000,,and getting involved in other activities that were very much following
Dialogue: 0,0:08:28.16,0:08:39.10,Default,,0000,0000,0000,,the charity-pity model and certainly not a model of
Dialogue: 0,0:08:39.10,0:08:50.42,Default,,0000,0000,0000,,making space for and supporting and lifting up other people with disabilities.
Dialogue: 0,0:08:50.42,0:08:58.92,Default,,0000,0000,0000,,the onset of my disability wasn't until \Nmany years later,
Dialogue: 0,0:08:58.92,0:09:07.47,Default,,0000,0000,0000,,
Dialogue: 0,0:09:13.39,0:09:15.77,Default,,0000,0000,0000,,
Dialogue: 0,0:09:15.77,0:09:18.04,Default,,0000,0000,0000,,
Dialogue: 0,0:09:18.04,0:09:23.39,Default,,0000,0000,0000,,
Dialogue: 0,0:09:23.39,0:09:30.53,Default,,0000,0000,0000,,
Dialogue: 0,0:09:30.53,0:09:36.51,Default,,0000,0000,0000,,
Dialogue: 0,0:09:36.51,0:09:40.64,Default,,0000,0000,0000,,
Dialogue: 0,0:09:40.64,0:09:47.68,Default,,0000,0000,0000,,
Dialogue: 0,0:09:47.68,0:09:53.42,Default,,0000,0000,0000,,
Dialogue: 0,0:09:53.42,0:10:04.20,Default,,0000,0000,0000,,
Dialogue: 0,0:10:04.20,0:10:09.14,Default,,0000,0000,0000,,
Dialogue: 0,0:10:09.14,0:10:16.80,Default,,0000,0000,0000,,
Dialogue: 0,0:10:16.80,0:10:23.23,Default,,0000,0000,0000,,
Dialogue: 0,0:10:23.23,0:10:27.49,Default,,0000,0000,0000,,
Dialogue: 0,0:10:27.49,0:10:33.75,Default,,0000,0000,0000,,
Dialogue: 0,0:10:33.75,0:10:42.32,Default,,0000,0000,0000,,
Dialogue: 0,0:10:42.32,0:10:48.49,Default,,0000,0000,0000,,
Dialogue: 0,0:10:48.49,0:10:52.56,Default,,0000,0000,0000,,
Dialogue: 0,0:10:52.56,0:10:59.83,Default,,0000,0000,0000,,
Dialogue: 0,0:10:59.83,0:11:06.68,Default,,0000,0000,0000,,
Dialogue: 0,0:11:06.68,0:11:11.56,Default,,0000,0000,0000,,
Dialogue: 0,0:11:11.56,0:11:17.100,Default,,0000,0000,0000,,
Dialogue: 0,0:11:17.100,0:11:26.01,Default,,0000,0000,0000,,
Dialogue: 0,0:11:26.01,0:11:35.30,Default,,0000,0000,0000,,
Dialogue: 0,0:11:35.30,0:11:40.81,Default,,0000,0000,0000,,
Dialogue: 0,0:11:40.81,0:11:45.34,Default,,0000,0000,0000,,
Dialogue: 0,0:11:45.34,0:11:53.78,Default,,0000,0000,0000,,
Dialogue: 0,0:11:53.78,0:11:58.09,Default,,0000,0000,0000,,
Dialogue: 0,0:11:58.09,0:12:02.50,Default,,0000,0000,0000,,
Dialogue: 0,0:12:02.50,0:12:10.06,Default,,0000,0000,0000,,
Dialogue: 0,0:12:10.06,0:12:16.74,Default,,0000,0000,0000,,
Dialogue: 0,0:12:16.74,0:12:23.21,Default,,0000,0000,0000,,
Dialogue: 0,0:12:23.21,0:12:26.06,Default,,0000,0000,0000,,
Dialogue: 0,0:12:26.06,0:12:40.28,Default,,0000,0000,0000,,
Dialogue: 0,0:12:40.28,0:12:49.27,Default,,0000,0000,0000,,
Dialogue: 0,0:12:49.27,0:12:52.36,Default,,0000,0000,0000,,
Dialogue: 0,0:12:52.36,0:12:55.84,Default,,0000,0000,0000,,
Dialogue: 0,0:12:55.84,0:12:59.75,Default,,0000,0000,0000,,
Dialogue: 0,0:12:59.75,0:13:02.56,Default,,0000,0000,0000,,
Dialogue: 0,0:13:02.56,0:13:10.61,Default,,0000,0000,0000,,
Dialogue: 0,0:13:10.61,0:13:21.59,Default,,0000,0000,0000,,
Dialogue: 0,0:13:23.67,0:13:26.74,Default,,0000,0000,0000,,
Dialogue: 0,0:13:26.74,0:13:30.82,Default,,0000,0000,0000,,
Dialogue: 0,0:13:30.82,0:13:38.61,Default,,0000,0000,0000,,
Dialogue: 0,0:13:38.61,0:13:42.81,Default,,0000,0000,0000,,
Dialogue: 0,0:13:42.81,0:13:47.69,Default,,0000,0000,0000,,
Dialogue: 0,0:13:47.69,0:13:50.79,Default,,0000,0000,0000,,
Dialogue: 0,0:13:50.79,0:13:55.06,Default,,0000,0000,0000,,
Dialogue: 0,0:13:55.06,0:13:57.59,Default,,0000,0000,0000,,
Dialogue: 0,0:13:57.59,0:13:58.59,Default,,0000,0000,0000,,
Dialogue: 0,0:13:58.59,0:14:01.05,Default,,0000,0000,0000,,
Dialogue: 0,0:14:01.05,0:14:03.88,Default,,0000,0000,0000,,
Dialogue: 0,0:14:03.88,0:14:06.28,Default,,0000,0000,0000,,
Dialogue: 0,0:14:06.28,0:14:09.58,Default,,0000,0000,0000,,
Dialogue: 0,0:14:09.58,0:14:12.07,Default,,0000,0000,0000,,
Dialogue: 0,0:14:12.07,0:14:16.38,Default,,0000,0000,0000,,
Dialogue: 0,0:14:16.38,0:14:19.61,Default,,0000,0000,0000,,
Dialogue: 0,0:14:19.61,0:14:26.25,Default,,0000,0000,0000,,
Dialogue: 0,0:14:26.25,0:14:30.93,Default,,0000,0000,0000,,
Dialogue: 0,0:14:30.93,0:14:34.93,Default,,0000,0000,0000,,
Dialogue: 0,0:14:34.93,0:14:38.84,Default,,0000,0000,0000,,
Dialogue: 0,0:14:38.84,0:14:43.77,Default,,0000,0000,0000,,
Dialogue: 0,0:14:43.77,0:14:48.22,Default,,0000,0000,0000,,
Dialogue: 0,0:14:48.22,0:14:55.27,Default,,0000,0000,0000,,
Dialogue: 0,0:14:55.27,0:15:00.68,Default,,0000,0000,0000,,
Dialogue: 0,0:15:00.68,0:15:06.20,Default,,0000,0000,0000,,
Dialogue: 0,0:15:06.20,0:15:12.20,Default,,0000,0000,0000,,
Dialogue: 0,0:15:12.20,0:15:14.86,Default,,0000,0000,0000,,
Dialogue: 0,0:15:14.86,0:15:20.70,Default,,0000,0000,0000,,
Dialogue: 0,0:15:20.70,0:15:25.66,Default,,0000,0000,0000,,
Dialogue: 0,0:15:25.66,0:15:29.59,Default,,0000,0000,0000,,
Dialogue: 0,0:15:29.59,0:15:33.37,Default,,0000,0000,0000,,
Dialogue: 0,0:15:33.37,0:15:39.36,Default,,0000,0000,0000,,
Dialogue: 0,0:15:39.36,0:15:45.97,Default,,0000,0000,0000,,
Dialogue: 0,0:15:45.97,0:15:52.58,Default,,0000,0000,0000,,
Dialogue: 0,0:15:52.58,0:15:58.29,Default,,0000,0000,0000,,
Dialogue: 0,0:15:58.29,0:16:02.35,Default,,0000,0000,0000,,
Dialogue: 0,0:16:02.35,0:16:06.55,Default,,0000,0000,0000,,
Dialogue: 0,0:16:06.55,0:16:12.36,Default,,0000,0000,0000,,
Dialogue: 0,0:16:12.36,0:16:17.01,Default,,0000,0000,0000,,
Dialogue: 0,0:16:17.01,0:16:24.96,Default,,0000,0000,0000,,
Dialogue: 0,0:16:24.96,0:16:31.27,Default,,0000,0000,0000,,
Dialogue: 0,0:16:31.27,0:16:37.50,Default,,0000,0000,0000,,
Dialogue: 0,0:16:37.50,0:16:41.37,Default,,0000,0000,0000,,
Dialogue: 0,0:16:41.37,0:16:46.82,Default,,0000,0000,0000,,
Dialogue: 0,0:16:46.82,0:16:51.12,Default,,0000,0000,0000,,
Dialogue: 0,0:16:51.12,0:16:55.20,Default,,0000,0000,0000,,
Dialogue: 0,0:16:55.20,0:17:00.48,Default,,0000,0000,0000,,
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Dialogue: 0,0:17:25.13,0:17:32.30,Default,,0000,0000,0000,,
Dialogue: 0,0:17:32.30,0:17:34.46,Default,,0000,0000,0000,,
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Dialogue: 0,0:17:42.07,0:17:48.57,Default,,0000,0000,0000,,
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Dialogue: 0,0:18:27.65,0:18:31.98,Default,,0000,0000,0000,,
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Dialogue: 0,0:19:36.03,0:19:39.06,Default,,0000,0000,0000,,
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Dialogue: 0,0:19:46.22,0:19:48.61,Default,,0000,0000,0000,,
Dialogue: 0,0:19:48.61,0:19:51.08,Default,,0000,0000,0000,,
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Dialogue: 0,0:20:03.48,0:20:09.22,Default,,0000,0000,0000,,
Dialogue: 0,0:20:09.22,0:20:14.47,Default,,0000,0000,0000,,
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Dialogue: 0,0:20:30.52,0:20:33.12,Default,,0000,0000,0000,,
Dialogue: 0,0:20:33.12,0:20:37.32,Default,,0000,0000,0000,,
Dialogue: 0,0:20:37.32,0:20:41.02,Default,,0000,0000,0000,,
Dialogue: 0,0:20:41.02,0:20:44.48,Default,,0000,0000,0000,,
Dialogue: 0,0:20:44.48,0:20:46.49,Default,,0000,0000,0000,,
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Dialogue: 0,0:20:50.20,0:20:53.13,Default,,0000,0000,0000,,
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Dialogue: 0,0:20:55.16,0:20:57.78,Default,,0000,0000,0000,,
Dialogue: 0,0:20:57.78,0:20:59.75,Default,,0000,0000,0000,,
Dialogue: 0,0:20:59.75,0:21:02.92,Default,,0000,0000,0000,,
Dialogue: 0,0:21:02.92,0:21:05.58,Default,,0000,0000,0000,,
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