[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.00,0:00:04.00,Default,,0000,0000,0000,,My name is Natalia Rivera.\NI'm a doctoral student.
Dialogue: 0,0:00:04.00,0:00:08.00,Default,,0000,0000,0000,,And, well, doctoral graduate actually.\NAnd in the Department of Hispanic
Dialogue: 0,0:00:08.00,0:00:10.73,Default,,0000,0000,0000,,Languages and Literature at the\NUniversity of Pittsburgh.
Dialogue: 0,0:00:10.73,0:00:15.79,Default,,0000,0000,0000,,I'm also a Spanish Instructor and I\Nspecialize in Latin American and
Dialogue: 0,0:00:15.79,0:00:19.40,Default,,0000,0000,0000,,Italian literature and \Ncritical disability studies.
Dialogue: 0,0:00:20.20,0:00:24.60,Default,,0000,0000,0000,,So my interests, my academic interests\Nare intimately tied to my personal
Dialogue: 0,0:00:24.60,0:00:29.64,Default,,0000,0000,0000,,experience as a student and\Nnow instructor with
Dialogue: 0,0:00:29.90,0:00:33.61,Default,,0000,0000,0000,,a learning disability and co-occurring\Nanxiety.
Dialogue: 0,0:00:33.69,0:00:38.36,Default,,0000,0000,0000,,So, the first memory that I remember,\Njust on a personal level,
Dialogue: 0,0:00:38.36,0:00:42.50,Default,,0000,0000,0000,,recognizing that there was some access\Nissues or some degree of
Dialogue: 0,0:00:44.10,0:00:49.11,Default,,0000,0000,0000,,especially in the high school level,\Nsome degree of
Dialogue: 0,0:00:50.73,0:00:54.62,Default,,0000,0000,0000,,a lack of knowledge, really, of\Ndifferent types of learning styles
Dialogue: 0,0:00:54.76,0:00:58.56,Default,,0000,0000,0000,,and different types of processing speeds\Nbecause of my diagnosis of attention
Dialogue: 0,0:00:58.56,0:01:02.52,Default,,0000,0000,0000,,deficit disorder. One of the key \Ncomponents of how that,
Dialogue: 0,0:01:02.52,0:01:06.52,Default,,0000,0000,0000,,you know, how ADD affects me is that\NI have a slower processing speed.
Dialogue: 0,0:01:06.52,0:01:11.26,Default,,0000,0000,0000,,So, while my reading comprehension is\Nstrong,
Dialogue: 0,0:01:13.00,0:01:16.15,Default,,0000,0000,0000,,my processing speed affects my \Nwriting speed so I'm not always
Dialogue: 0,0:01:16.15,0:01:20.15,Default,,0000,0000,0000,,able to produce a paragraph in a \Ntimely manner. So, we often
Dialogue: 0,0:01:20.15,0:01:24.15,Default,,0000,0000,0000,,had prompts in English class. This\Nwas in tenth grade and
Dialogue: 0,0:01:24.15,0:01:28.65,Default,,0000,0000,0000,,the expectation was that we would be\Nable to write a paragraph in half-hour.
Dialogue: 0,0:01:28.80,0:01:32.80,Default,,0000,0000,0000,,And often times I would need double\Namount of time. I would need an hour.
Dialogue: 0,0:01:32.80,0:01:36.29,Default,,0000,0000,0000,,And sometimes I wouldn't even be able\Nto finish one simple paragraph
Dialogue: 0,0:01:36.29,0:01:37.49,Default,,0000,0000,0000,,in an hour.
Dialogue: 0,0:01:38.26,0:01:42.26,Default,,0000,0000,0000,,And I remember my English instructor,\Nat the time,
Dialogue: 0,0:01:43.02,0:01:45.92,Default,,0000,0000,0000,,after class when I sort of approached her\Nand said,
Dialogue: 0,0:01:45.92,0:01:49.28,Default,,0000,0000,0000,,"Umm, hey. Not withstanding the\Nadditional time. I wasn't
Dialogue: 0,0:01:49.28,0:01:52.86,Default,,0000,0000,0000,,really able to finish my paragraph."\NAnd I remember she looked at me
Dialogue: 0,0:01:52.86,0:01:57.68,Default,,0000,0000,0000,,incredulous and said to me, "I mean,\Nif you can't even write a paragraph,
Dialogue: 0,0:01:57.68,0:02:01.68,Default,,0000,0000,0000,,a simple paragraph in one hour,\NI don't know what to tell you."
Dialogue: 0,0:02:02.90,0:02:08.45,Default,,0000,0000,0000,,So, I remember that moment. I\Nalso remember later on
Dialogue: 0,0:02:08.45,0:02:12.45,Default,,0000,0000,0000,,when I was preparing for AP Exams.\NThis also happened in high school.
Dialogue: 0,0:02:12.45,0:02:17.90,Default,,0000,0000,0000,,This was my junior year. I was taking\Nan AP World History class
Dialogue: 0,0:02:18.86,0:02:23.46,Default,,0000,0000,0000,,And I remember that I approached my \Ninstructor, already knowing on my own
Dialogue: 0,0:02:23.46,0:02:27.33,Default,,0000,0000,0000,,because I had already had plenty of\Nexperience advocating for myself since
Dialogue: 0,0:02:27.33,0:02:31.68,Default,,0000,0000,0000,,I was a child. I already knew that\Nall standardized testing
Dialogue: 0,0:02:31.74,0:02:35.26,Default,,0000,0000,0000,,had a process for requesting \Naccommodations.
Dialogue: 0,0:02:35.26,0:02:39.46,Default,,0000,0000,0000,,So, I remember approaching my AP\NWorld History Exam and-
Dialogue: 0,0:02:39.46,0:02:43.55,Default,,0000,0000,0000,,I meant, my AP World History teacher\Nand explaining to him
Dialogue: 0,0:02:43.55,0:02:49.03,Default,,0000,0000,0000,,that I was registered with disability\Nresources, that I had a documented
Dialogue: 0,0:02:49.03,0:02:53.03,Default,,0000,0000,0000,,disability and that these were\Nthe particular accommodations I needed
Dialogue: 0,0:02:53.03,0:02:55.57,Default,,0000,0000,0000,,time and a half. It was a very common \Naccommodation.
Dialogue: 0,0:02:57.07,0:03:01.07,Default,,0000,0000,0000,,And I remember him telling me, "I don't \Nhave a problem providing you
Dialogue: 0,0:03:01.07,0:03:05.27,Default,,0000,0000,0000,,classroom accommodations. I'm just not\Nsure that
Dialogue: 0,0:03:06.64,0:03:10.64,Default,,0000,0000,0000,,that extended time is provided on the\NAP Exam." And I was just
Dialogue: 0,0:03:10.64,0:03:14.64,Default,,0000,0000,0000,,flabbergasted that an instructor would\Nactively misinform me that way
Dialogue: 0,0:03:14.64,0:03:18.64,Default,,0000,0000,0000,,because even I knew at the tender age\Nof, I don't know, sixteen,
Dialogue: 0,0:03:19.34,0:03:23.34,Default,,0000,0000,0000,,that ATS always provided a process\Nfor requesting
Dialogue: 0,0:03:23.34,0:03:27.34,Default,,0000,0000,0000,,accommodation. So, I was stunned\Nthat an adult felt that he could
Dialogue: 0,0:03:27.34,0:03:31.34,Default,,0000,0000,0000,,just misinform me that way. And I\Nknow
Dialogue: 0,0:03:31.34,0:03:35.34,Default,,0000,0000,0000,,that misinforming me not necessarily\Nwith a negative intent, but he
Dialogue: 0,0:03:35.35,0:03:39.35,Default,,0000,0000,0000,,genuinely had no notion of the\Nprocess. And
Dialogue: 0,0:03:40.02,0:03:44.02,Default,,0000,0000,0000,,yeah. So, it's un-willful misinformation, \Nbut
Dialogue: 0,0:03:45.12,0:03:49.12,Default,,0000,0000,0000,,the effect is similar. Because imagine\Nhad he said something like that
Dialogue: 0,0:03:49.12,0:03:53.12,Default,,0000,0000,0000,,to a student who had no idea how\Nto request accommodations.
Dialogue: 0,0:03:53.34,0:03:58.34,Default,,0000,0000,0000,,You know, how to attain an \Nevaluation needed to substantiate
Dialogue: 0,0:03:58.34,0:04:02.34,Default,,0000,0000,0000,,the need for accommodations. So\Nit's just a lot of misinformation
Dialogue: 0,0:04:05.74,0:04:09.35,Default,,0000,0000,0000,,enabled with ignorance and not so much\Nmalice.
Dialogue: 0,0:04:09.35,0:04:13.27,Default,,0000,0000,0000,,But, just the complete lack of information\Nout there just really compromises
Dialogue: 0,0:04:13.27,0:04:16.38,Default,,0000,0000,0000,,student's ability to advocate for\Nthemselves.
Dialogue: 0,0:04:18.60,0:04:22.60,Default,,0000,0000,0000,,In my personal work with the\Ndisability rights
Dialogue: 0,0:04:22.60,0:04:26.04,Default,,0000,0000,0000,,community because I worked two\Nand a half years at a disability
Dialogue: 0,0:04:26.04,0:04:28.88,Default,,0000,0000,0000,,rights organization called Autistic\NSelf Advocacy Network
Dialogue: 0,0:04:29.42,0:04:33.42,Default,,0000,0000,0000,,and meeting a lot of people my age
Dialogue: 0,0:04:34.69,0:04:38.34,Default,,0000,0000,0000,,a lot of students don't find out that \Nthey have a diagnosis until much later
Dialogue: 0,0:04:38.34,0:04:42.34,Default,,0000,0000,0000,,in life. Once they start picking\Nup on their own symptoms, they seek
Dialogue: 0,0:04:42.34,0:04:46.34,Default,,0000,0000,0000,,out individually supports. So I
Dialogue: 0,0:04:46.34,0:04:50.34,Default,,0000,0000,0000,,certainly, on a personal level, I \Nbenefited from my
Dialogue: 0,0:04:50.34,0:04:53.60,Default,,0000,0000,0000,,mother's knowledge and from her\Nexperiences as a parent advocate.
Dialogue: 0,0:04:54.64,0:04:58.96,Default,,0000,0000,0000,,I think my awareness of a level\Nof discrimination
Dialogue: 0,0:04:59.14,0:05:02.97,Default,,0000,0000,0000,,even if it was kind of on the \Nlevel of microaggression,
Dialogue: 0,0:05:02.97,0:05:06.97,Default,,0000,0000,0000,,I think I had more awareness of\Ndiscrimination at the high school level
Dialogue: 0,0:05:07.01,0:05:10.83,Default,,0000,0000,0000,,but, my initial exposure to advocacy\Nreally happened when I was young
Dialogue: 0,0:05:10.83,0:05:14.83,Default,,0000,0000,0000,,and I remember going...\NThere were some days off from school
Dialogue: 0,0:05:14.83,0:05:18.83,Default,,0000,0000,0000,,and I remember going to the office with \Nmy mom. And I remember meeting
Dialogue: 0,0:05:18.83,0:05:22.83,Default,,0000,0000,0000,,other moms and seeing her work part\Ntime at
Dialogue: 0,0:05:22.83,0:05:26.83,Default,,0000,0000,0000,,this parent advocacy group for parents\Nwith disabilities
Dialogue: 0,0:05:26.83,0:05:30.83,Default,,0000,0000,0000,,so I thank my mother for, you know,\Nintroducing me
Dialogue: 0,0:05:30.83,0:05:34.83,Default,,0000,0000,0000,,to the concept of self advocacy and\Nfor empowering me
Dialogue: 0,0:05:34.83,0:05:38.83,Default,,0000,0000,0000,,to use it in every aspect of my life and\Nat a professional level
Dialogue: 0,0:05:38.83,0:05:42.32,Default,,0000,0000,0000,,and an academic level, as well.
Dialogue: 0,0:05:42.92,0:05:46.92,Default,,0000,0000,0000,,So, I don't really remember the day of\Nthe Americans with Disabilities Act
Dialogue: 0,0:05:46.92,0:05:50.92,Default,,0000,0000,0000,,'cause I was just a couple of months \Nold.
Dialogue: 0,0:05:51.65,0:05:55.65,Default,,0000,0000,0000,,But, the impact on me, basically\NI sincerely
Dialogue: 0,0:05:55.65,0:05:59.65,Default,,0000,0000,0000,,doubt had I been born, I don't know,\Nforty years ago
Dialogue: 0,0:05:59.65,0:06:03.26,Default,,0000,0000,0000,,as opposed to thirty years ago, there's\Na possibility that I would not have
Dialogue: 0,0:06:03.26,0:06:06.29,Default,,0000,0000,0000,,attended college. And even if I had\Nattended college,
Dialogue: 0,0:06:06.29,0:06:10.29,Default,,0000,0000,0000,,I just sort of feel that I would have\Nnever considered doing a
Dialogue: 0,0:06:10.29,0:06:14.72,Default,,0000,0000,0000,,PhD, if it hadn't been for the Americans\Nwith Disabilities Act.
Dialogue: 0,0:06:15.20,0:06:19.20,Default,,0000,0000,0000,,Because graduate school, the level of\Nsupport at the undergraduate level,
Dialogue: 0,0:06:19.20,0:06:22.73,Default,,0000,0000,0000,,at least at a liberal arts college,
Dialogue: 0,0:06:22.73,0:06:26.48,Default,,0000,0000,0000,,that tends to be more supportive is \Nradically different from graduate school
Dialogue: 0,0:06:26.48,0:06:30.48,Default,,0000,0000,0000,,where the level of support is practically\Nnon-existent, I feel
Dialogue: 0,0:06:30.48,0:06:33.19,Default,,0000,0000,0000,,and I think a lot of graduate students\Nfeel the same way.
Dialogue: 0,0:06:33.19,0:06:37.19,Default,,0000,0000,0000,,So without the ADA, I'm not even sure\NI would have been fortunate enough
Dialogue: 0,0:06:37.19,0:06:41.19,Default,,0000,0000,0000,,to attend college so I think that it\Noffered me
Dialogue: 0,0:06:41.19,0:06:45.19,Default,,0000,0000,0000,,the protections that I needed to go\Nbeyond what my
Dialogue: 0,0:06:45.19,0:06:49.19,Default,,0000,0000,0000,,wildest dreams, right? So I feel like...
Dialogue: 0,0:06:50.60,0:06:54.60,Default,,0000,0000,0000,,I've had a very privileged life and I'm\Ngrateful for my academic
Dialogue: 0,0:06:54.60,0:06:58.37,Default,,0000,0000,0000,,opportunities that I know there are so\Nmany deserving students
Dialogue: 0,0:06:58.60,0:07:02.60,Default,,0000,0000,0000,,who didn't have the opportunities that I\Nhad and I'm not only grateful to my family
Dialogue: 0,0:07:02.60,0:07:06.60,Default,,0000,0000,0000,,for their unyielding dedication
Dialogue: 0,0:07:06.60,0:07:10.60,Default,,0000,0000,0000,,to advocacy and also very
Dialogue: 0,0:07:10.60,0:07:14.60,Default,,0000,0000,0000,,grateful for the ADA as well. I mean,\Ndisabilities definitely run in my family
Dialogue: 0,0:07:14.60,0:07:18.50,Default,,0000,0000,0000,,neuro-developmental disabilities, learning\Ndisabilities. I do have a cousin who
Dialogue: 0,0:07:18.50,0:07:22.50,Default,,0000,0000,0000,,was on the autism spectrum and
Dialogue: 0,0:07:22.50,0:07:26.50,Default,,0000,0000,0000,,I don't think, by no means, benefited
Dialogue: 0,0:07:28.55,0:07:32.55,Default,,0000,0000,0000,,by the protections offered by the\NAmericans with Disabilities Act in the
Dialogue: 0,0:07:32.55,0:07:35.81,Default,,0000,0000,0000,,same degree that I did. I think\Nunfortunately because I think there
Dialogue: 0,0:07:35.81,0:07:38.07,Default,,0000,0000,0000,,still cultural stigma
Dialogue: 0,0:07:38.72,0:07:42.72,Default,,0000,0000,0000,,particularly if an autism spectrum\Ndisorder
Dialogue: 0,0:07:42.72,0:07:46.72,Default,,0000,0000,0000,,co-occurs with a intellectual disability,\Nbut he
Dialogue: 0,0:07:46.72,0:07:50.72,Default,,0000,0000,0000,,finished his associate's degree with\Nminimal supports.
Dialogue: 0,0:07:50.72,0:07:54.72,Default,,0000,0000,0000,,I think because the ADA empowered me,\NI feel like
Dialogue: 0,0:07:54.72,0:07:58.72,Default,,0000,0000,0000,,I'm prepared as an instructor to offer\Nsupport
Dialogue: 0,0:07:58.72,0:08:02.72,Default,,0000,0000,0000,,to students with other disabilities. I\Nhave
Dialogue: 0,0:08:02.72,0:08:06.72,Default,,0000,0000,0000,,students with documented disabilities\Nand I feel that because
Dialogue: 0,0:08:06.72,0:08:10.72,Default,,0000,0000,0000,,of my personal experience as a\Nstudent
Dialogue: 0,0:08:10.72,0:08:14.72,Default,,0000,0000,0000,,with disability, I feel much more\Nprepared to work with
Dialogue: 0,0:08:14.72,0:08:18.72,Default,,0000,0000,0000,,a wider range of students who need\Ndifferent needs and I'm prepared
Dialogue: 0,0:08:18.72,0:08:22.72,Default,,0000,0000,0000,,to be accommodating and I'm prepared\Nto
Dialogue: 0,0:08:23.54,0:08:27.54,Default,,0000,0000,0000,,at least endeavored to make students\Nfeel like they're valuable members of
Dialogue: 0,0:08:27.54,0:08:31.54,Default,,0000,0000,0000,,my classroom. I'm not a perfect \Ninstructor. I still have a lot to learn
Dialogue: 0,0:08:31.58,0:08:35.58,Default,,0000,0000,0000,,but, I think that level of
Dialogue: 0,0:08:36.19,0:08:41.05,Default,,0000,0000,0000,,humanity, I think, that speaks to a\Nlot of students and I think that I'm
Dialogue: 0,0:08:41.05,0:08:45.05,Default,,0000,0000,0000,,better able to connect to connect with\Nmy students. So,
Dialogue: 0,0:08:45.05,0:08:49.05,Default,,0000,0000,0000,,the ADA allowed me to be useful as\Nan instructor, basically. But, I
Dialogue: 0,0:08:49.05,0:08:53.05,Default,,0000,0000,0000,,remember one interview I did with\Na student on the
Dialogue: 0,0:08:53.05,0:08:57.05,Default,,0000,0000,0000,,autism spectrum, who was attending\Na
Dialogue: 0,0:08:57.05,0:09:01.05,Default,,0000,0000,0000,,college specifically for students with\Nlearning disabilities.
Dialogue: 0,0:09:03.26,0:09:08.71,Default,,0000,0000,0000,,And she made a very astute observation\Nabout
Dialogue: 0,0:09:10.75,0:09:14.75,Default,,0000,0000,0000,,learning disabilities under colleges and\Nsort of their
Dialogue: 0,0:09:15.59,0:09:19.99,Default,,0000,0000,0000,,focus on vocational training as opposed to\Nacademic training and
Dialogue: 0,0:09:20.17,0:09:24.17,Default,,0000,0000,0000,,this was a smart girl who wanted to
Dialogue: 0,0:09:25.26,0:09:29.26,Default,,0000,0000,0000,,pursue a degree in the humanities and she\Nwas doing an Interdisciplinary Liberal
Dialogue: 0,0:09:29.26,0:09:33.26,Default,,0000,0000,0000,,Arts degree, but she couldn't take\Nphilosophy, for instance. Or
Dialogue: 0,0:09:33.26,0:09:37.26,Default,,0000,0000,0000,,she couldn't do a major in history.\NAnd I think the way
Dialogue: 0,0:09:37.26,0:09:41.26,Default,,0000,0000,0000,,the classes, the course work, the\Ncurriculum,
Dialogue: 0,0:09:41.26,0:09:45.26,Default,,0000,0000,0000,,just how all the academic options were\Nstructured in this particular college
Dialogue: 0,0:09:45.90,0:09:49.90,Default,,0000,0000,0000,,it sort of reinforced this idea that\Ntraditional academic
Dialogue: 0,0:09:49.90,0:09:53.90,Default,,0000,0000,0000,,disciplines are somehow out of reach\Nfor a student who
Dialogue: 0,0:09:53.90,0:09:57.90,Default,,0000,0000,0000,,reads as having an intellectual disability\Nor who reads as having
Dialogue: 0,0:09:59.48,0:10:03.48,Default,,0000,0000,0000,,potential learning difficulties and she\Nlamented and I
Dialogue: 0,0:10:03.48,0:10:07.48,Default,,0000,0000,0000,,wholeheartedly agreed with her appraisal.\NShe lamented the fact that she couldn't
Dialogue: 0,0:10:07.92,0:10:11.92,Default,,0000,0000,0000,,pursue a traditional discipline she would\Nhave wanted. She wanted to be a historian.
Dialogue: 0,0:10:14.64,0:10:18.64,Default,,0000,0000,0000,,So I think that in a way, people wouldn't \Nreally read the legislation
Dialogue: 0,0:10:18.64,0:10:22.64,Default,,0000,0000,0000,,very carefully.\NI guess in their attempt
Dialogue: 0,0:10:22.64,0:10:27.18,Default,,0000,0000,0000,,to sort of include people, they're\Ninadvertently limiting the options
Dialogue: 0,0:10:27.18,0:10:31.18,Default,,0000,0000,0000,,for a lot of students because there\Nare students who may need to
Dialogue: 0,0:10:31.18,0:10:35.18,Default,,0000,0000,0000,,do- There are students who may\Nwant to pursue
Dialogue: 0,0:10:35.68,0:10:39.68,Default,,0000,0000,0000,,physics, right? But they need a longer\Ntimeline to complete
Dialogue: 0,0:10:39.68,0:10:43.68,Default,,0000,0000,0000,,their coursework, but it's just in a\Ntraditional four-year
Dialogue: 0,0:10:44.13,0:10:48.13,Default,,0000,0000,0000,,college. Those mechanisms just\Naren't in place to provide
Dialogue: 0,0:10:48.13,0:10:52.13,Default,,0000,0000,0000,,that support system for a student who\Nneeds additional support, but
Dialogue: 0,0:10:52.13,0:10:55.77,Default,,0000,0000,0000,,who wants to pursue a traditional\Nacademic discipline. So, I think in that
Dialogue: 0,0:10:55.77,0:10:59.77,Default,,0000,0000,0000,,regard, even though the spirit of the\NADA, you definitely get the sense
Dialogue: 0,0:10:59.77,0:11:03.77,Default,,0000,0000,0000,,with the wording of the legislation\Nthat I mean it's intended to
Dialogue: 0,0:11:03.77,0:11:07.77,Default,,0000,0000,0000,,sort of correct that kind of
Dialogue: 0,0:11:08.69,0:11:12.69,Default,,0000,0000,0000,,societal exclusion and academic exclusion\Nof students who want to pursue traditional
Dialogue: 0,0:11:12.69,0:11:16.69,Default,,0000,0000,0000,,disciplines, but I think in that regard,\Nthe level of
Dialogue: 0,0:11:19.75,0:11:23.75,Default,,0000,0000,0000,,enforcement I think is still very\Ndifferential. I think another thing
Dialogue: 0,0:11:23.75,0:11:27.75,Default,,0000,0000,0000,,that I do want to add, just for my\Npersonal
Dialogue: 0,0:11:28.60,0:11:31.34,Default,,0000,0000,0000,,observations as an instructor,
Dialogue: 0,0:11:32.36,0:11:36.36,Default,,0000,0000,0000,,the regular enforcement of the\N2009 Amendment -
Dialogue: 0,0:11:36.36,0:11:40.36,Default,,0000,0000,0000,,which was critical in the sense that it \Nsort of broadened the category of
Dialogue: 0,0:11:40.36,0:11:44.36,Default,,0000,0000,0000,,disability to include vary proteins.\NAnd by "protein", I mean,
Dialogue: 0,0:11:45.66,0:11:49.66,Default,,0000,0000,0000,,very inconsistent disabilities. So,\NFor instance,
Dialogue: 0,0:11:49.66,0:11:53.66,Default,,0000,0000,0000,,something like cancer or a auto-\Nimmune disorder
Dialogue: 0,0:11:54.32,0:11:58.32,Default,,0000,0000,0000,,finally was incorporated into this broader\Ncategory of disabilities, so it wasn't
Dialogue: 0,0:11:58.32,0:12:02.32,Default,,0000,0000,0000,,just- So, that 2009 Amendment was\Ncritical because
Dialogue: 0,0:12:02.32,0:12:06.32,Default,,0000,0000,0000,,it rendered clear that disability\Ndid not have to be
Dialogue: 0,0:12:06.32,0:12:10.32,Default,,0000,0000,0000,,"stable". It did not have to be\Na "consistent"
Dialogue: 0,0:12:10.32,0:12:14.32,Default,,0000,0000,0000,,you know, "putatively consistent"\Nphysical disability to qualify
Dialogue: 0,0:12:15.14,0:12:19.48,Default,,0000,0000,0000,,as a disability under the legislation.\NSo, this included you know
Dialogue: 0,0:12:21.47,0:12:25.95,Default,,0000,0000,0000,,disabilities, whether somatic or\Ncognitive disabilities
Dialogue: 0,0:12:27.80,0:12:32.14,Default,,0000,0000,0000,,that were either inconsistent in \Nnature or went through periods of
Dialogue: 0,0:12:32.14,0:12:34.80,Default,,0000,0000,0000,,remission. So, something like bipolar\Ndisorder, right?
Dialogue: 0,0:12:34.80,0:12:38.80,Default,,0000,0000,0000,,So, the 2008 Amendment, what was great\Nabout it was that it made clear that
Dialogue: 0,0:12:39.22,0:12:43.22,Default,,0000,0000,0000,,not withstanding the point through which\Nyou're sort of going
Dialogue: 0,0:12:44.20,0:12:47.96,Default,,0000,0000,0000,,sort of like thinking something like\Nbipolar disorder where you're going
Dialogue: 0,0:12:47.96,0:12:51.96,Default,,0000,0000,0000,,through sort of a manic depressive episode\Nthat at a institutional
Dialogue: 0,0:12:51.96,0:12:55.96,Default,,0000,0000,0000,,level there was still a responsibility to\Nprovide adequate supports to that person
Dialogue: 0,0:12:55.96,0:12:59.96,Default,,0000,0000,0000,,who was experiencing cyclical changes.\NAnd what I've noticed
Dialogue: 0,0:12:59.96,0:13:03.96,Default,,0000,0000,0000,,at the university level, especially with\Nscience programs,
Dialogue: 0,0:13:05.86,0:13:09.86,Default,,0000,0000,0000,,that they include a tidbit that actually\Nseems very almost
Dialogue: 0,0:13:09.86,0:13:13.57,Default,,0000,0000,0000,,unlawful to me.\NYou look at the
Dialogue: 0,0:13:15.02,0:13:18.70,Default,,0000,0000,0000,,graduate handbooks and the\Nundergraduate handbooks as well
Dialogue: 0,0:13:18.70,0:13:22.50,Default,,0000,0000,0000,,they have this very strange policy\Nthat you're supposed to
Dialogue: 0,0:13:22.70,0:13:26.70,Default,,0000,0000,0000,,let your professors know about your\Ndisability. That you
Dialogue: 0,0:13:26.70,0:13:30.70,Default,,0000,0000,0000,,must tell your professors within the\Nfirst two weeks of the semester
Dialogue: 0,0:13:31.51,0:13:35.51,Default,,0000,0000,0000,,that you have documented disability.\NThe problem is that a lot of
Dialogue: 0,0:13:35.51,0:13:39.51,Default,,0000,0000,0000,,disabilities don't work that way.\NThere are moments where you're
Dialogue: 0,0:13:39.51,0:13:43.06,Default,,0000,0000,0000,,"functional". You know, relatively\Nfunctional and there are moments where
Dialogue: 0,0:13:43.06,0:13:47.62,Default,,0000,0000,0000,,you are not functional in sort of \Nsocially understood terms, right?
Dialogue: 0,0:13:48.85,0:13:52.85,Default,,0000,0000,0000,,And especially for students, this is not\Nunusual for students who
Dialogue: 0,0:13:52.85,0:13:56.64,Default,,0000,0000,0000,,receive a diagnosis later in life when\Nthey're just commencing college
Dialogue: 0,0:13:56.64,0:14:00.76,Default,,0000,0000,0000,,which is a transitional period, so it\Nmakes sense that certain symptoms
Dialogue: 0,0:14:00.76,0:14:04.66,Default,,0000,0000,0000,,that were not disabling in other \Ncontexts, suddenly become disabling
Dialogue: 0,0:14:04.66,0:14:08.85,Default,,0000,0000,0000,,when you enter college. And that policy
Dialogue: 0,0:14:08.85,0:14:10.50,Default,,0000,0000,0000,,basically
Dialogue: 0,0:14:11.96,0:14:15.96,Default,,0000,0000,0000,,basically misinforms students into
Dialogue: 0,0:14:15.96,0:14:19.96,Default,,0000,0000,0000,,thinking that they are not able
Dialogue: 0,0:14:19.96,0:14:23.96,Default,,0000,0000,0000,,to request supports when they've\Nreached a point where their
Dialogue: 0,0:14:23.96,0:14:27.96,Default,,0000,0000,0000,,condition has become so disabling that\Nthey can't necessarily meet
Dialogue: 0,0:14:27.96,0:14:31.72,Default,,0000,0000,0000,,requirements in the expected time frame.\NSo, it's almost as if there's like a
Dialogue: 0,0:14:31.72,0:14:35.72,Default,,0000,0000,0000,,mechanism in place to give the
Dialogue: 0,0:14:35.72,0:14:39.72,Default,,0000,0000,0000,,false impression that you're not able\Nto receive supports
Dialogue: 0,0:14:39.72,0:14:43.72,Default,,0000,0000,0000,,later in the semester.\NSo, I think in that sense it's more like
Dialogue: 0,0:14:43.72,0:14:47.72,Default,,0000,0000,0000,,even if there are protections in place,\Ninstitutional ignorance
Dialogue: 0,0:14:47.72,0:14:51.72,Default,,0000,0000,0000,,and the regular enforcement continue to be\Na problem. So, if I could pick one
Dialogue: 0,0:14:51.72,0:14:55.36,Default,,0000,0000,0000,,thing that needs to change in terms of\Naccess...
Dialogue: 0,0:14:55.96,0:14:59.86,Default,,0000,0000,0000,,I'm gonna start a little bit abstract and\Nthen I'm gonna try to clarify what I mean
Dialogue: 0,0:14:59.86,0:15:03.86,Default,,0000,0000,0000,,I think we need to sort of overcome this \Nconcept of
Dialogue: 0,0:15:03.86,0:15:07.86,Default,,0000,0000,0000,,autonomy. What do I mean by that?\NAnd I think a lot of
Dialogue: 0,0:15:07.86,0:15:11.86,Default,,0000,0000,0000,,disability rights activists, when we think\Nabout advocacy, they do think about
Dialogue: 0,0:15:11.86,0:15:15.86,Default,,0000,0000,0000,,in terms of no collective grassroots\Nmovement, so there is an
Dialogue: 0,0:15:15.86,0:15:19.86,Default,,0000,0000,0000,,emphasis on relationality, there's an\Nemphasis on mutual support.
Dialogue: 0,0:15:20.67,0:15:24.67,Default,,0000,0000,0000,,And I think traditionally in just
Dialogue: 0,0:15:24.67,0:15:27.55,Default,,0000,0000,0000,,Occidental culture, in Western culture,
Dialogue: 0,0:15:28.60,0:15:32.60,Default,,0000,0000,0000,,the responsibility for seeking social\Naccommodations for disabilities,
Dialogue: 0,0:15:32.60,0:15:36.60,Default,,0000,0000,0000,,largely incumbent upon the individual\Nand not society.
Dialogue: 0,0:15:37.39,0:15:41.23,Default,,0000,0000,0000,,I think the ADA certainly
Dialogue: 0,0:15:41.23,0:15:45.23,Default,,0000,0000,0000,,gives the impression right? That social
Dialogue: 0,0:15:45.23,0:15:49.23,Default,,0000,0000,0000,,accommodation is in fact, what the terms\Nor the phrase suggests, right?
Dialogue: 0,0:15:49.23,0:15:53.23,Default,,0000,0000,0000,,"A social responsibility", but in practice\Nit's not treated like a
Dialogue: 0,0:15:53.23,0:15:57.23,Default,,0000,0000,0000,,collective responsibility and I see this a\Nlot in the university in administration
Dialogue: 0,0:15:57.23,0:16:01.23,Default,,0000,0000,0000,,level.\NSo when a student begins
Dialogue: 0,0:16:01.23,0:16:05.73,Default,,0000,0000,0000,,college, not only are you responsible\Nfor time management,
Dialogue: 0,0:16:05.73,0:16:09.73,Default,,0000,0000,0000,,for learning how to live independently\Nfor the first time, if that's the case,
Dialogue: 0,0:16:09.73,0:16:13.73,Default,,0000,0000,0000,,learning to live with roommates, which\Nmay not actually be accessible for you
Dialogue: 0,0:16:13.73,0:16:17.73,Default,,0000,0000,0000,,if you're a student with a disability. You\Nare also responsible for coordinating your
Dialogue: 0,0:16:17.73,0:16:21.73,Default,,0000,0000,0000,,own accommodations and depending on the\Nkinds of
Dialogue: 0,0:16:21.73,0:16:25.73,Default,,0000,0000,0000,,accommodations that you need, I think at\Nthe undergraduate level - in my case -
Dialogue: 0,0:16:26.15,0:16:30.15,Default,,0000,0000,0000,,it wasn't so overwhelming, I could still\Nmanage it, but at the graduate level
Dialogue: 0,0:16:30.15,0:16:34.15,Default,,0000,0000,0000,,to try to request new accommodations,\Nbased on the new needs that you
Dialogue: 0,0:16:34.15,0:16:38.15,Default,,0000,0000,0000,,develop because of the shifting levels\Nof work and
Dialogue: 0,0:16:40.50,0:16:44.50,Default,,0000,0000,0000,,sort of in the overall. It's just your\Ncoursework is just more demanding
Dialogue: 0,0:16:44.50,0:16:46.09,Default,,0000,0000,0000,,at the graduate level.
Dialogue: 0,0:16:46.73,0:16:50.73,Default,,0000,0000,0000,,There needs to be a way for social\Naccommodation,
Dialogue: 0,0:16:50.73,0:16:53.97,Default,,0000,0000,0000,,academic accommodations to be-
Dialogue: 0,0:16:55.72,0:16:59.30,Default,,0000,0000,0000,,it needs to be re-thought of as a\Ncollective responsibility, but at the
Dialogue: 0,0:16:59.30,0:17:02.83,Default,,0000,0000,0000,,administrative level there is a\Nresponsibility at the administrative level
Dialogue: 0,0:17:02.83,0:17:06.83,Default,,0000,0000,0000,,for the student to succeed and that it\Nis not merely
Dialogue: 0,0:17:06.83,0:17:10.83,Default,,0000,0000,0000,,an autonomous burden, it is\Na collective responsibility.
Dialogue: 0,0:17:10.83,0:17:13.48,Default,,0000,0000,0000,,It is a collective duty.
Dialogue: 0,0:17:13.48,0:17:17.48,Default,,0000,0000,0000,,I do think that we as community\Nmembers can take on the
Dialogue: 0,0:17:17.48,0:17:21.48,Default,,0000,0000,0000,,responsibility to sort of identify those\Ndisabilities rights organizations that
Dialogue: 0,0:17:21.48,0:17:25.48,Default,,0000,0000,0000,,are actively working towards providing
Dialogue: 0,0:17:25.48,0:17:28.39,Default,,0000,0000,0000,,supports and services
Dialogue: 0,0:17:29.83,0:17:34.02,Default,,0000,0000,0000,,and not focusing on the cure aspect\Nbecause the cure aspect is not
Dialogue: 0,0:17:34.83,0:17:38.83,Default,,0000,0000,0000,,allowing us to address the immediate\Nsocietal needs.
Dialogue: 0,0:17:39.98,0:17:43.98,Default,,0000,0000,0000,,So, I think organizations\Nlike the
Dialogue: 0,0:17:43.98,0:17:47.98,Default,,0000,0000,0000,,Autistic Self Advocacy Network, the one\Nthat I worked for,
Dialogue: 0,0:17:48.52,0:17:53.35,Default,,0000,0000,0000,,they have these wonderful advocacy center\Nprograms. They really work on
Dialogue: 0,0:17:55.08,0:17:59.08,Default,,0000,0000,0000,,providing cognitively accessible resources\Nfor political
Dialogue: 0,0:17:59.08,0:18:03.08,Default,,0000,0000,0000,,advocacy, for instance.\NAnd they empower
Dialogue: 0,0:18:03.08,0:18:07.08,Default,,0000,0000,0000,,students to think of ways
Dialogue: 0,0:18:07.08,0:18:11.08,Default,,0000,0000,0000,,for advocating for supports on\Ncollege campuses.
Dialogue: 0,0:18:12.49,0:18:16.49,Default,,0000,0000,0000,,So, looking at organizations that
Dialogue: 0,0:18:16.49,0:18:20.49,Default,,0000,0000,0000,,empower people to advocate for themselves\Nwith the skills that they
Dialogue: 0,0:18:20.49,0:18:24.49,Default,,0000,0000,0000,,have to feel that their lives are worth
Dialogue: 0,0:18:24.49,0:18:25.96,Default,,0000,0000,0000,,living as they are.