[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:04.91,0:00:08.46,Default,,0000,0000,0000,,Do you wanna start by giving me\Na little overview of
Dialogue: 0,0:00:08.46,0:00:11.03,Default,,0000,0000,0000,,what your job is and \Nwhat you do overall?
Dialogue: 0,0:00:11.03,0:00:15.03,Default,,0000,0000,0000,,I work as the coordinator for the \NLINK department at YAI.
Dialogue: 0,0:00:15.06,0:00:19.06,Default,,0000,0000,0000,,LINK stands for linking individuals to \Nnecessary knowledge.
Dialogue: 0,0:00:19.06,0:00:23.06,Default,,0000,0000,0000,,So what we do is information referral\Nresource for the entire YAI network.
Dialogue: 0,0:00:23.06,0:00:27.06,Default,,0000,0000,0000,,Typically what we do is respond to\Ninquiries from families, professionals,
Dialogue: 0,0:00:27.24,0:00:31.24,Default,,0000,0000,0000,,and the people we support in regard to a \Nwhole range of different things.
Dialogue: 0,0:00:31.24,0:00:35.24,Default,,0000,0000,0000,,What services they might be in need of,\Ngeneral information, explaining the\NOPWDD system.
Dialogue: 0,0:00:35.24,0:00:39.24,Default,,0000,0000,0000,,So explaining what the office for people \Nwith developmental disabilities does.
Dialogue: 0,0:00:39.24,0:00:43.24,Default,,0000,0000,0000,,How to get eligibility with them.
Dialogue: 0,0:00:43.32,0:00:47.32,Default,,0000,0000,0000,,We review evaluations for people.
Dialogue: 0,0:00:47.32,0:00:51.32,Default,,0000,0000,0000,,Typicallly we get about 400\Ninquiries a week.
Dialogue: 0,0:00:51.32,0:00:55.32,Default,,0000,0000,0000,,That's kind of the main part of my job.
Dialogue: 0,0:00:55.32,0:00:59.32,Default,,0000,0000,0000,,In addition to that we also run some\Nprograms out of my department including,
Dialogue: 0,0:00:59.32,0:01:03.32,Default,,0000,0000,0000,,independent living skills program.
Dialogue: 0,0:01:03.32,0:01:07.32,Default,,0000,0000,0000,,Which is for adults 18 and up \Nwho are interested in learning a wide
Dialogue: 0,0:01:07.32,0:01:11.32,Default,,0000,0000,0000,,variety of different topics.
Dialogue: 0,0:01:11.32,0:01:15.32,Default,,0000,0000,0000,,We also have some social \Nskills groups, a ballet yoga program
Dialogue: 0,0:01:15.32,0:01:19.32,Default,,0000,0000,0000,,that we provide in Brooklyn, as well as\Nsome programs for 17 to 21 year olds
Dialogue: 0,0:01:19.32,0:01:23.32,Default,,0000,0000,0000,,here in Manhattan.
Dialogue: 0,0:01:23.32,0:01:27.32,Default,,0000,0000,0000,,Oh wow that's a lot. So now you've \Ncreated this database with information
Dialogue: 0,0:01:27.32,0:01:31.32,Default,,0000,0000,0000,,about COVID-19 so who came up with\Nthat idea?
Dialogue: 0,0:01:31.32,0:01:35.32,Default,,0000,0000,0000,,It really started from getting a lot of\Ninformation from a lot of really good
Dialogue: 0,0:01:35.37,0:01:39.37,Default,,0000,0000,0000,,meaning people who were sending us\Nresources directly related to COVID.
Dialogue: 0,0:01:39.37,0:01:43.37,Default,,0000,0000,0000,,Typically, on a normal day in LINK we have\Nour IDD resource library.
Dialogue: 0,0:01:43.37,0:01:47.37,Default,,0000,0000,0000,,Which is where we keep information that's \Njust general knowledge that would help
Dialogue: 0,0:01:47.37,0:01:51.37,Default,,0000,0000,0000,,someone that has an intellectual or\Ndevelopmental disability.
Dialogue: 0,0:01:51.37,0:01:55.37,Default,,0000,0000,0000,,Things like links to different resources \Nat libraries, different benefits packages.
Dialogue: 0,0:01:55.37,0:01:59.37,Default,,0000,0000,0000,,Things like that so they can research\Nand understand different resources
Dialogue: 0,0:01:59.37,0:02:03.37,Default,,0000,0000,0000,,that are out there.
Dialogue: 0,0:02:03.37,0:02:07.37,Default,,0000,0000,0000,,Once COVID began, we started getting\Na lot information where people asked,
Dialogue: 0,0:02:07.37,0:02:11.37,Default,,0000,0000,0000,,"Can you add this to\Nyour resource library?"
Dialogue: 0,0:02:11.37,0:02:15.37,Default,,0000,0000,0000,,And what we realized is, adding it\Nto the resource library
Dialogue: 0,0:02:15.37,0:02:19.37,Default,,0000,0000,0000,,is going to make it really difficult \Nfor families to find it.
Dialogue: 0,0:02:19.37,0:02:23.37,Default,,0000,0000,0000,,So we started adding it to a page,\Nbut the page became really bogged down.
Dialogue: 0,0:02:23.37,0:02:27.37,Default,,0000,0000,0000,,The page was huge and it became\Nagain, tedious to look through.
Dialogue: 0,0:02:27.37,0:02:31.37,Default,,0000,0000,0000,,So the wonderful Cathy Bechler, who works\Npartially in my department and partially
Dialogue: 0,0:02:31.37,0:02:35.37,Default,,0000,0000,0000,,in communications. She actually went\Nahead and created a database where we
Dialogue: 0,0:02:35.37,0:02:39.37,Default,,0000,0000,0000,,could enter all this information\Nthat we were getting.
Dialogue: 0,0:02:39.37,0:02:43.37,Default,,0000,0000,0000,,And it's been growing from there.
Dialogue: 0,0:02:43.37,0:02:47.37,Default,,0000,0000,0000,,Pretty much everyday we're getting at\Nleast 1-2 resources to add to that page.
Dialogue: 0,0:02:47.37,0:02:51.37,Default,,0000,0000,0000,,So linksters who work in my department\Nwill go through these resources,
Dialogue: 0,0:02:51.37,0:02:55.37,Default,,0000,0000,0000,,determine if they're going to be \Nuseful to the people we support.
Dialogue: 0,0:02:55.37,0:02:59.37,Default,,0000,0000,0000,,How to categorize them so they're easy\Nto search for the people that are
Dialogue: 0,0:02:59.37,0:03:03.37,Default,,0000,0000,0000,,looking at the database.
Dialogue: 0,0:03:03.37,0:03:07.37,Default,,0000,0000,0000,,Who decided which resources to include?\NAnd can you give me an overview of what
Dialogue: 0,0:03:07.37,0:03:11.37,Default,,0000,0000,0000,,kind of resources you have in this\Ndatabase?
Dialogue: 0,0:03:11.37,0:03:15.37,Default,,0000,0000,0000,,We have a lot of different ones. There are\Na couple different categories.
Dialogue: 0,0:03:15.37,0:03:19.37,Default,,0000,0000,0000,,We have everything from entertainment,\Ninformation on different zoos and
Dialogue: 0,0:03:19.37,0:03:23.37,Default,,0000,0000,0000,,aquariums that are doing\Nonline viewing of their animals.
Dialogue: 0,0:03:23.37,0:03:27.37,Default,,0000,0000,0000,,All the way to these are emergency\Nresources for accessing food, these are
Dialogue: 0,0:03:27.37,0:03:31.37,Default,,0000,0000,0000,,emergency resources for accessing\Nfinancial help.
Dialogue: 0,0:03:31.37,0:03:35.37,Default,,0000,0000,0000,,Information on updates that the\Ngovernment is giving that are
Dialogue: 0,0:03:35.37,0:03:39.37,Default,,0000,0000,0000,,specific to people with IDD as well as \Njust to the general population.
Dialogue: 0,0:03:39.37,0:03:43.37,Default,,0000,0000,0000,,In terms of who came up with the idea. \NIt was really the brainchild of a couple
Dialogue: 0,0:03:43.37,0:03:47.37,Default,,0000,0000,0000,,different people. Cathy definitely did the \Ninfrastructure work.
Dialogue: 0,0:03:47.37,0:03:51.37,Default,,0000,0000,0000,,In terms of determining what goes up there\Na lot of times it's people sending us the
Dialogue: 0,0:03:51.37,0:03:55.37,Default,,0000,0000,0000,,information, but then a linkster, someone \Nwho is an information specialist or
Dialogue: 0,0:03:55.37,0:03:59.37,Default,,0000,0000,0000,,supervisor in the LINK department is \Nreading through it and deciding.
Dialogue: 0,0:03:59.37,0:04:03.37,Default,,0000,0000,0000,,What does this mean to somebody?\NIs this something that's useful for our
Dialogue: 0,0:04:03.37,0:04:07.37,Default,,0000,0000,0000,,population, should this resource \Nreplace another one?
Dialogue: 0,0:04:07.37,0:04:11.37,Default,,0000,0000,0000,,Maybe there's outdated information\Nand this is an update.
Dialogue: 0,0:04:11.37,0:04:15.37,Default,,0000,0000,0000,,So every single day the linksters are\Nreading through the new information
Dialogue: 0,0:04:15.37,0:04:19.37,Default,,0000,0000,0000,,that comes in and determining\Nhow it should be categorized.
Dialogue: 0,0:04:19.37,0:04:23.37,Default,,0000,0000,0000,,How to put it up there, what age group it \Napplies to. What kind of category.
Dialogue: 0,0:04:23.37,0:04:27.37,Default,,0000,0000,0000,,Is it an entertainment resource?\NIs it an app?
Dialogue: 0,0:04:27.37,0:04:31.37,Default,,0000,0000,0000,,Is it a mental health resource?
Dialogue: 0,0:04:31.37,0:04:35.37,Default,,0000,0000,0000,,Categorizing it so that it's easy for\Nfamilies and professionals to really
Dialogue: 0,0:04:35.37,0:04:39.37,Default,,0000,0000,0000,,look though it and find it quickly.
Dialogue: 0,0:04:39.37,0:04:43.37,Default,,0000,0000,0000,,And are these resources tailored to people\Nwith specific disabilities?
Dialogue: 0,0:04:43.37,0:04:47.37,Default,,0000,0000,0000,,Or are they for everyone,\Ndisabled on non-disabled?
Dialogue: 0,0:04:47.37,0:04:51.37,Default,,0000,0000,0000,,A lot of the resources could be used\Nby anybody.
Dialogue: 0,0:04:51.37,0:04:55.37,Default,,0000,0000,0000,,We do try to highlight those that are \Nspecific to the IDD community.
Dialogue: 0,0:04:55.37,0:04:59.37,Default,,0000,0000,0000,,There are some resources that specifically \Nsay this is for somebody diagnosed with
Dialogue: 0,0:04:59.37,0:05:03.37,Default,,0000,0000,0000,,autism., but in reality, a mindfullness\Napp is useful for anyone who is able
Dialogue: 0,0:05:03.37,0:05:07.37,Default,,0000,0000,0000,,to get into the app. A lot of social \Nstories could be used with any age
Dialogue: 0,0:05:07.37,0:05:11.37,Default,,0000,0000,0000,,of child or any diagnosis. \NAlthough it might say specifically
Dialogue: 0,0:05:11.37,0:05:15.37,Default,,0000,0000,0000,,that it's for someone with autism,\Nit doesn't mean that somebody that\N
Dialogue: 0,0:05:15.37,0:05:19.37,Default,,0000,0000,0000,,doesn't have autism won't\Nfind it helpful.
Dialogue: 0,0:05:19.37,0:05:23.37,Default,,0000,0000,0000,,And how about accessibility?\NDid you have a specific concept in mind so
Dialogue: 0,0:05:23.37,0:05:27.37,Default,,0000,0000,0000,,this database is accessible for everyone?
Dialogue: 0,0:05:27.37,0:05:31.37,Default,,0000,0000,0000,,So we're trying to keep the language to \Ntypically around the second grade level.
Dialogue: 0,0:05:31.37,0:05:35.37,Default,,0000,0000,0000,,When we're describing the information, \Nwe want to keep it pretty basic.
Dialogue: 0,0:05:35.37,0:05:39.37,Default,,0000,0000,0000,,We do have an entire category that is \Nonly Espanol.
Dialogue: 0,0:05:39.37,0:05:43.37,Default,,0000,0000,0000,,Those are all resources that are either \Nin Spanish or that we've been able to
Dialogue: 0,0:05:43.37,0:05:47.37,Default,,0000,0000,0000,,translate into Spanish.
Dialogue: 0,0:05:47.37,0:05:51.37,Default,,0000,0000,0000,,So one of my colleagues, Mara \NHenriquez, she is our Spanish linkster.
Dialogue: 0,0:05:51.37,0:05:55.37,Default,,0000,0000,0000,,So she has been doing a lot of work\Ntranslating this is what this means.
Dialogue: 0,0:05:55.37,0:05:59.37,Default,,0000,0000,0000,,Reading through those resources that are\Nspecifically in Spanish to make sure that
Dialogue: 0,0:05:59.37,0:06:03.37,Default,,0000,0000,0000,,we're catering to that population.\NThat they have the same access
Dialogue: 0,0:06:03.37,0:06:07.37,Default,,0000,0000,0000,,as an English speaker would have.
Dialogue: 0,0:06:07.37,0:06:11.37,Default,,0000,0000,0000,,There was a lot of criticism around \Ngovernment efforts that didn't
Dialogue: 0,0:06:11.37,0:06:15.37,Default,,0000,0000,0000,,quite include people with disabilities.
Dialogue: 0,0:06:15.37,0:06:19.37,Default,,0000,0000,0000,,So was this somehow a motivation for \Nyou to create this database?
Dialogue: 0,0:06:19.37,0:06:23.37,Default,,0000,0000,0000,,I mean definitely. We really want to make \Nsure people with IDD and their families
Dialogue: 0,0:06:23.37,0:06:27.37,Default,,0000,0000,0000,,are supported in this.
Dialogue: 0,0:06:27.37,0:06:31.37,Default,,0000,0000,0000,,There is so much going on right now and \Nit's really overwhelming. And when you add
Dialogue: 0,0:06:31.37,0:06:35.37,Default,,0000,0000,0000,,in the fact that somebody is either a \Nperson with a developmental disability
Dialogue: 0,0:06:35.37,0:06:39.37,Default,,0000,0000,0000,,or supporting someone with a\Ndevelopmental disability, it compounds
Dialogue: 0,0:06:39.37,0:06:43.37,Default,,0000,0000,0000,,upon that and makes those stressors\Nmore difficult.
Dialogue: 0,0:06:43.37,0:06:47.37,Default,,0000,0000,0000,,It makes explaining COVID more difficult.\NSo trying to find those resources
Dialogue: 0,0:06:47.37,0:06:51.37,Default,,0000,0000,0000,,that help break it down into language\Nsomebody's going to understand,
Dialogue: 0,0:06:51.37,0:06:55.37,Default,,0000,0000,0000,,and helping those parents and caregivers\Nstay mindful and help reduce their stress
Dialogue: 0,0:06:55.37,0:06:59.37,Default,,0000,0000,0000,,and anxiety, and of course always helps\Nthe people that we support.
Dialogue: 0,0:06:59.37,0:07:03.37,Default,,0000,0000,0000,,We want to give them all the resources\Nwe can so they stay calm and therefore
Dialogue: 0,0:07:03.37,0:07:07.37,Default,,0000,0000,0000,,are better able to serve the people that \Nwe are helping to support.