1 00:00:04,540 --> 00:00:06,850 Hi, Im Evelyn Peña and I'm an associate 2 00:00:06,980 --> 00:00:08,960 I am also the director of the Autism 3 00:00:09,080 --> 00:00:12,050 Communications Center, which is the center 4 00:00:12,218 --> 00:00:16,218 that focuses on inclusion, communication, 5 00:00:16,414 --> 00:00:18,904 access, and higher education, for people 6 00:00:19,105 --> 00:00:21,995 with autism or autistic individuals. 7 00:00:22,181 --> 00:00:25,511 This is my son, Diego Peña, he is doing a 8 00:00:25,766 --> 00:00:29,516 camio today and Diego would like to 9 00:00:29,723 --> 00:00:31,943 introduce himself using the letter board 10 00:00:32,097 --> 00:00:33,727 since he is non speaking. 11 00:00:34,991 --> 00:00:37,161 So he has his communication partner with 12 00:00:37,368 --> 00:00:38,958 him and they are going to spell out 13 00:00:39,115 --> 00:00:41,225 something. 14 00:00:42,558 --> 00:00:58,348 (Communication Partner) H.E.L.L.O. A.L.L. 15 00:00:58,463 --> 00:01:02,463 Hello all. Ok, back straight. 16 00:01:02,573 --> 00:01:43,013 M.Y. N.A M.E. I.S. D.I E.G.O. 17 00:01:43,135 --> 00:01:45,005 Hello all, my name is Deigo. 18 00:01:45,153 --> 00:01:47,333 Evelyn: Awesome, so just a little bit 19 00:01:47,522 --> 00:01:49,992 about Deigo, he is going into 7th grade. 20 00:01:50,079 --> 00:01:52,699 He is fully included in general education 21 00:01:52,866 --> 00:01:57,016 and he is a presenter at conferences and a 22 00:01:57,187 --> 00:02:00,917 best selling book author of the book, 23 00:02:01,048 --> 00:02:04,718 Anatomy of Autism, so that is us and 24 00:02:04,905 --> 00:02:07,305 we're excited to be here. 25 00:02:08,463 --> 00:02:14,273 So, Diego is really excited to talk about 26 00:02:14,461 --> 00:02:16,971 inclusion, not only in his book but also 27 00:02:16,971 --> 00:02:18,045 share his thoughts. 28 00:02:18,188 --> 00:02:21,218 I think that is so important in relation 29 00:02:21,375 --> 00:02:23,265 to the Americans with Disability Act 30 00:02:23,343 --> 00:02:25,453 because it provided an avenue for 31 00:02:25,520 --> 00:02:28,090 inclusion in the community, higher 32 00:02:28,187 --> 00:02:29,867 education, and employment. 33 00:02:29,941 --> 00:02:33,811 As a young activist, Diego has experienced 34 00:02:33,996 --> 00:02:36,416 inclusion in school so he wanted to share 35 00:02:36,596 --> 00:02:38,486 some words that he typed out. 36 00:02:38,630 --> 00:02:40,850 He is going to share them through his iPad 37 00:02:40,980 --> 00:02:42,560 , which he calls his talker. 38 00:02:46,648 --> 00:02:48,858 (iPad): I think the culture of inclusion 39 00:02:49,030 --> 00:02:51,160 is important to have in order to implement 40 00:02:51,314 --> 00:02:53,414 strategies be successful for autistic 41 00:02:53,617 --> 00:02:56,247 students in a general education classroom. 42 00:02:58,024 --> 00:03:00,394 Without inclusion, I wouldn't be able to 43 00:03:00,625 --> 00:03:02,575 be in general education setting. 44 00:03:04,132 --> 00:03:06,762 Having autism has limited me both verbally 45 00:03:06,927 --> 00:03:08,167 and physically. 46 00:03:08,657 --> 00:03:11,107 I thankfully have access to communication 47 00:03:11,320 --> 00:03:13,620 by typing and this form of communicaion 48 00:03:13,943 --> 00:03:15,943 has given me opportunity to be 49 00:03:16,292 --> 00:03:18,762 included in general education classes and 50 00:03:18,762 --> 00:03:20,482 activities in the community. 51 00:03:23,243 --> 00:03:27,243 Evelyn: Thanks, Diego. So the first time I 52 00:03:27,391 --> 00:03:30,221 really learned about the Disabilities Act 53 00:03:30,482 --> 00:03:34,202 was when I was researching what it would 54 00:03:34,383 --> 00:03:37,033 take to support my son, Diego, 55 00:03:37,292 --> 00:03:42,272 He's autistic, you just met him, to go to 56 00:03:42,471 --> 00:03:43,801 college essentially. 57 00:03:44,346 --> 00:03:46,906 When I learned he had autism I didn't know 58 00:03:47,158 --> 00:03:49,958 anything about whether or not people had 59 00:03:51,140 --> 00:03:53,580 access to college if they had a diagnosis 60 00:03:54,106 --> 00:03:57,396 of autism or what the precedent was for that 61 00:03:57,465 --> 00:03:59,505 So, I really started looking into it and I 62 00:03:59,623 --> 00:04:02,433 did learn that, yes, autistic students do 63 00:04:02,723 --> 00:04:04,823 go to college. Which is wonderful. 64 00:04:05,301 --> 00:04:07,411 At that time this was, you know, when 65 00:04:07,612 --> 00:04:09,442 Diego was diagnosed. 66 00:04:09,818 --> 00:04:12,618 It was 8 years ago or 10 years ago and 67 00:04:12,996 --> 00:04:14,936 there wasn't a lot of research out there 68 00:04:15,278 --> 00:04:17,778 on autistic students going to college. 69 00:04:18,256 --> 00:04:20,666 So, that was one area where I'm excited 70 00:04:21,102 --> 00:04:22,792 that I've been able to do research and 71 00:04:22,967 --> 00:04:25,401 publish some work on how we can support 72 00:04:25,463 --> 00:04:27,959 autistic studetns to go to college and 73 00:04:28,052 --> 00:04:30,261 become successful. But, really the ADA 74 00:04:30,349 --> 00:04:30,909 (Americans with Disabilities Act) 75 00:04:31,009 --> 00:04:33,889 is so important for autistic students and 76 00:04:34,127 --> 00:04:36,617 students with disabilites in general, just 77 00:04:36,683 --> 00:04:39,063 to make sure that they have access to 78 00:04:39,143 --> 00:04:42,773 academic curriculums, that they are 79 00:04:42,985 --> 00:04:44,935 getting accommidations that they need to 80 00:04:45,153 --> 00:04:47,593 be successful in academic settings. 81 00:04:48,349 --> 00:04:50,599 So, I really feel that the ADA has been a 82 00:04:50,830 --> 00:04:54,830 key factor in making sure that students 83 00:04:55,001 --> 00:04:57,181 with disabilities are included in college 84 00:04:57,276 --> 00:04:59,040 and university settings. 85 00:05:00,497 --> 00:05:03,499 Certainly the ADA has provided a lot of 86 00:05:03,681 --> 00:05:05,531 opportunities for students with 87 00:05:05,800 --> 00:05:08,240 disabilities. So, I'm grateful for that. 88 00:05:08,591 --> 00:05:10,861 I think there are some areas that we need 89 00:05:11,107 --> 00:05:14,137 to think about, that the ADA does have 90 00:05:14,490 --> 00:05:15,530 some limitations. 91 00:05:15,772 --> 00:05:18,752 One of them is that, many disablility 92 00:05:18,801 --> 00:05:22,151 service offices on campuses at higher 93 00:05:22,222 --> 00:05:25,922 education institutions require diagnosis 94 00:05:26,056 --> 00:05:30,726 or documentation of neuropsychological 95 00:05:30,876 --> 00:05:35,556 evaluation and this can cost upwards of 96 00:05:35,719 --> 00:05:38,879 several thousand dollars for individuals 97 00:05:39,093 --> 00:05:40,193 to get this diagnosis. 98 00:05:40,398 --> 00:05:41,758 So I think there has been a lot of 99 00:05:41,890 --> 00:05:44,100 progress lately where those offices are 100 00:05:44,179 --> 00:05:47,009 saying, "Ok well, we will consider the IEP 101 00:05:47,009 --> 00:05:49,569 document and your individual education 102 00:05:49,692 --> 00:05:53,692 plan from high school as a form to 103 00:05:53,810 --> 00:05:56,360 validate that you do need services". 104 00:05:56,412 --> 00:05:58,442 But one thing we do need to work on a 105 00:05:58,506 --> 00:06:00,746 little more is making sure that higher 106 00:06:00,856 --> 00:06:03,022 education institutions, specifically the 107 00:06:03,070 --> 00:06:04,753 disabiblity offices, are a bit more 108 00:06:04,783 --> 00:06:08,396 flexible in making sure that students can 109 00:06:08,532 --> 00:06:10,726 recieve accomidations without dropping 110 00:06:10,784 --> 00:06:13,754 3 or 4 thousand dollars, in order to do that 111 00:06:13,927 --> 00:06:16,697 The other thing that I think about a lot 112 00:06:16,850 --> 00:06:20,850 is, while the ADA does provide important 113 00:06:20,991 --> 00:06:24,051 accomodations that are resonable and 114 00:06:24,203 --> 00:06:25,793 appropriate, to students. 115 00:06:26,109 --> 00:06:28,069 I think that what I have learned is 116 00:06:28,239 --> 00:06:32,258 universities and disabilities offices specifically 117 00:06:32,415 --> 00:06:35,655 do a much better job when they go about 118 00:06:35,807 --> 00:06:37,287 and beyond their ADA 119 00:06:37,448 --> 00:06:40,047 So what's required by the ADA 120 00:06:40,201 --> 00:06:42,558 usually I see proper team member 121 00:06:42,580 --> 00:06:46,580 the staff