1 00:00:12,199 --> 00:00:15,081 Hello, my name is Cecilia McGough. 2 00:00:15,081 --> 00:00:18,800 I'm an astronomy and astrophysics major here at Penn State, 3 00:00:18,800 --> 00:00:20,622 and the founder and president 4 00:00:20,622 --> 00:00:24,082 of the Penn State Pulsar Search Collaboratory. 5 00:00:24,082 --> 00:00:28,307 In high school, I was lucky enough to have co-discovered a pulsar 6 00:00:28,307 --> 00:00:30,386 through the Pulsar Search Collaboratory. 7 00:00:30,386 --> 00:00:32,606 A pulsar is a super dense neutron star 8 00:00:32,606 --> 00:00:35,358 that emits dipole electromagnetic radiation. 9 00:00:35,879 --> 00:00:38,876 Basically, think of a star much, much larger than our sun, 10 00:00:38,876 --> 00:00:42,985 blowing away its outer layers, leaving behind a dense core - 11 00:00:42,985 --> 00:00:45,738 that core could be our pulsar. 12 00:00:47,144 --> 00:00:49,301 This discovery opened some doors for me, 13 00:00:49,301 --> 00:00:51,461 such as helping represent the United States 14 00:00:51,461 --> 00:00:54,328 in the International Space Olympics in Russia. 15 00:00:54,328 --> 00:01:00,067 And also, being a Virginia aerospace science and technology scholar. 16 00:01:00,564 --> 00:01:02,404 I know what you must be thinking: 17 00:01:02,404 --> 00:01:03,654 "What a nerd!" 18 00:01:03,654 --> 00:01:05,232 "Nerd alert!" 19 00:01:05,232 --> 00:01:09,873 Well, for the longest time, this nerd had a secret. 20 00:01:09,873 --> 00:01:14,320 A secret that I was too scared and too embarrassed to tell anyone. 21 00:01:14,640 --> 00:01:18,181 That secret is that I have schizophrenia. 22 00:01:18,811 --> 00:01:20,785 But what is schizophrenia? 23 00:01:21,510 --> 00:01:26,015 It's important to think of schizophrenia as an umbrella-like diagnosis. 24 00:01:26,529 --> 00:01:32,035 NAMI shows these different symptoms as a way you could diagnose schizophrenia, 25 00:01:32,035 --> 00:01:37,805 such as delusions and hallucinations being the hallmark characteristics. 26 00:01:38,687 --> 00:01:43,058 But it is very important to know that a person could have schizophrenia 27 00:01:43,058 --> 00:01:46,355 and not have delusions and not hallucinate. 28 00:01:47,097 --> 00:01:51,418 Each person's story with schizophrenia is unique to their own. 29 00:01:51,724 --> 00:01:55,929 Today I'm going to be talking about my story with schizophrenia. 30 00:01:57,121 --> 00:02:00,572 It has been thought that I've had schizophrenia all my life. 31 00:02:00,572 --> 00:02:04,644 But it became very prevalent in my junior year of high school, 32 00:02:04,644 --> 00:02:07,859 and then it just snowballed into college. 33 00:02:09,286 --> 00:02:13,214 February of 2014, my freshman year of college, 34 00:02:13,214 --> 00:02:15,354 my life changed 35 00:02:15,354 --> 00:02:18,811 when I tried to take my own life through suicide. 36 00:02:19,555 --> 00:02:20,968 "Why?" you ask. 37 00:02:20,968 --> 00:02:23,863 Because my life had become a waking nightmare. 38 00:02:24,378 --> 00:02:30,076 The following images have been edited using Microsoft's artistic effects 39 00:02:30,076 --> 00:02:32,896 because they are just too triggering for me. 40 00:02:36,958 --> 00:02:40,412 At this time, I had started hallucinating. 41 00:02:40,940 --> 00:02:46,115 I started seeing, hearing and feeling things that weren't there. 42 00:02:46,766 --> 00:02:50,754 Everywhere that I went, I was followed around by a clown 43 00:02:50,754 --> 00:02:55,859 that looked very similar to the Stephen King's adaptation of "It". 44 00:02:55,859 --> 00:02:57,088 Everywhere that I went, 45 00:02:57,088 --> 00:03:00,338 he would be giggling, taunting me, poking me, 46 00:03:00,338 --> 00:03:02,825 and sometimes even biting me. 47 00:03:03,620 --> 00:03:05,699 I would also hallucinate spiders, 48 00:03:05,699 --> 00:03:06,947 sometimes little spiders. 49 00:03:06,947 --> 00:03:10,320 And these are actually the most intrusive sometimes 50 00:03:10,320 --> 00:03:12,750 because we see little spiders in real life. 51 00:03:12,750 --> 00:03:16,404 So, sometimes this is the only time I ever have difficulty 52 00:03:16,404 --> 00:03:19,783 discerning whether it is a hallucination or real life. 53 00:03:21,065 --> 00:03:24,131 I'm very good at knowing when I'm hallucinating 54 00:03:24,131 --> 00:03:27,459 and I know that it is a chemical imbalance inside my head. 55 00:03:27,459 --> 00:03:30,325 I don't even give these hallucinations names. 56 00:03:31,457 --> 00:03:34,336 I also hallucinate giant spiders though. 57 00:03:35,593 --> 00:03:38,733 One spider, in particular, comes to mind. 58 00:03:38,733 --> 00:03:44,940 It was rather large, leathery skin, black legs and yellow body. 59 00:03:45,392 --> 00:03:50,126 No voice ever came out of its mouth. However, when it moved its legs, 60 00:03:50,126 --> 00:03:53,881 the creaking of the legs sounded like young children laughing. 61 00:03:54,261 --> 00:03:56,285 It was very disturbing. 62 00:03:57,288 --> 00:04:02,573 But it started becoming unbearable when I started hallucinating this girl. 63 00:04:02,573 --> 00:04:06,003 She looked sort of like in the movie "The Ring". 64 00:04:06,665 --> 00:04:11,515 The thing with her was she was able to continue conversations with herself, 65 00:04:11,515 --> 00:04:15,086 and would know exactly what to say and when to say it 66 00:04:15,086 --> 00:04:18,415 to chip away at my insecurities. 67 00:04:18,717 --> 00:04:22,436 But the worst was, she would also carry a knife around with her 68 00:04:22,436 --> 00:04:25,582 and she would stab me, sometimes in the face. 69 00:04:25,582 --> 00:04:31,286 This made taking tests, quizzes, and doing homework in general 70 00:04:31,286 --> 00:04:35,126 extremely difficult to impossible when I was in college. 71 00:04:35,126 --> 00:04:39,551 Sometimes I wouldn't even be able to see the paper in front of my face 72 00:04:39,551 --> 00:04:42,907 because I was hallucinating too much. 73 00:04:44,935 --> 00:04:48,986 I don't usually speak so openly about my hallucinations, 74 00:04:48,986 --> 00:04:54,419 because people usually look at me in fear after I tell them what I see. 75 00:04:54,419 --> 00:04:58,229 But the thing is, I'm not much different than the rest of you. 76 00:04:58,807 --> 00:05:03,186 We all see, hear, and feel things when we are dreaming. 77 00:05:03,186 --> 00:05:08,655 I'm just someone who cannot turn off my nightmares, even when I'm awake. 78 00:05:11,183 --> 00:05:17,051 I've been hallucinating now acutely for about over four years. 79 00:05:17,615 --> 00:05:18,945 So, I have gotten very good 80 00:05:18,945 --> 00:05:22,485 at just pretending I'm not seeing what I'm seeing, 81 00:05:22,485 --> 00:05:24,215 or ignoring them. 82 00:05:25,388 --> 00:05:30,825 But I have triggers, such as seeing the color red is very triggering for me. 83 00:05:30,825 --> 00:05:32,974 I don't know if you guys noticed this or not, 84 00:05:32,974 --> 00:05:36,123 but they changed the carpet that I'm on. 85 00:05:36,123 --> 00:05:38,630 They changed it to a black carpet instead of red. 86 00:05:38,630 --> 00:05:43,206 I sort of laugh at my life a bit like a dark comedy, because, of course, 87 00:05:43,206 --> 00:05:47,220 the only color combination that I have issues with is red and white. 88 00:05:47,220 --> 00:05:49,240 What are TED's colors? 89 00:05:49,240 --> 00:05:50,484 (Laughter) 90 00:05:50,484 --> 00:05:51,974 Really people! 91 00:05:51,974 --> 00:05:54,728 But, I have issues with those colors 92 00:05:54,728 --> 00:05:58,138 because those are the colors that the clown has: 93 00:05:58,138 --> 00:06:00,703 red hair and white skin. 94 00:06:00,703 --> 00:06:05,381 And how I'm able to ignore him is I just don't look at him, 95 00:06:05,381 --> 00:06:06,377 but I'm able to know 96 00:06:06,377 --> 00:06:09,737 where that hallucination is in my peripheral vision, 97 00:06:09,737 --> 00:06:13,436 because of the bright colors of red and white. 98 00:06:15,016 --> 00:06:17,328 But you would never know that I'm hallucinating. 99 00:06:17,328 --> 00:06:20,053 The clown is actually in the audience today 100 00:06:20,053 --> 00:06:21,893 and you would never know. 101 00:06:22,533 --> 00:06:25,931 On a lighter note, who is looking forward to the Oscars? 102 00:06:26,310 --> 00:06:27,720 Hands up! 103 00:06:28,670 --> 00:06:30,819 I knew you guys would be interested! 104 00:06:30,819 --> 00:06:37,637 Well, if there were nominations for people just acting "normal" in everyday life, 105 00:06:38,145 --> 00:06:42,818 people who have schizophrenia would definitely be nominated as well. 106 00:06:42,818 --> 00:06:46,288 When I first became open about having schizophrenia, 107 00:06:46,288 --> 00:06:49,864 it was a shock to even the people closest to me. 108 00:06:54,074 --> 00:06:57,094 It took me eight months, 109 00:06:57,604 --> 00:07:00,649 eight months after my suicide attempt 110 00:07:00,649 --> 00:07:04,671 to finally get the treatment that I needed. 111 00:07:05,085 --> 00:07:08,111 I didn't even have the diagnosis of schizophrenia. 112 00:07:08,721 --> 00:07:10,371 And because of that, 113 00:07:10,371 --> 00:07:14,201 what kept me from getting help were conversations like these. 114 00:07:14,711 --> 00:07:17,535 I remember very distinctively within that time 115 00:07:17,535 --> 00:07:19,685 on the phone with my mother. 116 00:07:19,685 --> 00:07:21,065 I would tell my mum, 117 00:07:21,065 --> 00:07:23,202 "Mom I'm sick, 118 00:07:23,202 --> 00:07:25,452 I'm seeing things that aren't there, 119 00:07:25,452 --> 00:07:29,179 I need medicine, I need to talk to a doctor." 120 00:07:29,789 --> 00:07:31,043 Her response? 121 00:07:31,043 --> 00:07:32,403 "No, no, no, no. 122 00:07:32,873 --> 00:07:34,523 You can't tell anyone about this. 123 00:07:34,523 --> 00:07:36,303 This can't be on our medical history. 124 00:07:36,303 --> 00:07:38,983 Think of your sisters, think of your sisters' futures. 125 00:07:38,983 --> 00:07:41,349 People are going to think that you're crazy, 126 00:07:41,349 --> 00:07:45,058 they are going to think you're dangerous and you won't be able to get a job." 127 00:07:46,698 --> 00:07:48,399 What I say to that now 128 00:07:48,399 --> 00:07:53,623 is "Don't let anyone convince you not to get medical help. 129 00:07:54,073 --> 00:07:55,513 It's not worth it! 130 00:07:55,913 --> 00:08:00,763 It is your choice and it is also your right." 131 00:08:01,767 --> 00:08:06,741 Getting medical help was the best decision that I have ever made. 132 00:08:06,741 --> 00:08:09,916 And I am confident that I would not be here today 133 00:08:09,916 --> 00:08:12,934 if I didn't get the proper medical help. 134 00:08:15,501 --> 00:08:18,454 This led into my first hospitalization. 135 00:08:18,454 --> 00:08:24,441 I had been in the psych ward four times within the past two years. 136 00:08:26,410 --> 00:08:29,720 But I still was not open about having schizophrenia 137 00:08:29,723 --> 00:08:34,523 until my second hospitalization, because the police were involved. 138 00:08:36,207 --> 00:08:41,401 One evening I realized I needed to check myself back into hospital, 139 00:08:41,804 --> 00:08:44,430 because I needed some changes in my medication. 140 00:08:45,108 --> 00:08:49,127 So I admitted myself into the emergency room. 141 00:08:49,127 --> 00:08:50,890 I talked to the doctors, they said, 142 00:08:50,890 --> 00:08:54,650 "OK, let's fix the meds, you can stay here overnight." 143 00:08:54,650 --> 00:08:56,372 It was all good. 144 00:08:57,292 --> 00:09:01,972 After the brief one-night hospital stay, 145 00:09:01,972 --> 00:09:05,817 I came back to my dorm room here at Penn State, 146 00:09:05,817 --> 00:09:08,870 and to very concerned roommates, 147 00:09:08,870 --> 00:09:10,943 which I understand why they were concerned - 148 00:09:10,943 --> 00:09:14,460 if I was in their shoes, I would have been concerned as well - 149 00:09:15,051 --> 00:09:18,956 but also the RA and a CANHELP person. 150 00:09:19,850 --> 00:09:25,046 We all talked and we decided that I needed another psych ward stay. 151 00:09:25,046 --> 00:09:30,221 And I was OK on going, I wasn't at all refusing, 152 00:09:30,221 --> 00:09:32,291 I was willing to go. 153 00:09:32,941 --> 00:09:36,234 But what happened next was inexcusable. 154 00:09:36,739 --> 00:09:39,588 They brought police officers into my dorm room, 155 00:09:40,173 --> 00:09:43,633 in front of my roommates, they padded me down 156 00:09:43,633 --> 00:09:47,733 and I had to convince them not to put handcuffs on me. 157 00:09:48,093 --> 00:09:52,304 They then brought me, escorted me into a police car 158 00:09:52,304 --> 00:09:53,897 that was parked on the road 159 00:09:53,897 --> 00:09:58,727 next to one of our dining commons: Redifer, 160 00:09:58,727 --> 00:10:02,967 where friends were passing by and seeing me put into a police car. 161 00:10:03,796 --> 00:10:08,418 By that time, when I came back, the cat was out of the bag. 162 00:10:08,968 --> 00:10:13,220 People knew something was up, so I had to set the story straight. 163 00:10:13,860 --> 00:10:17,389 I opened up about my schizophrenia 164 00:10:17,389 --> 00:10:18,719 through a blog, 165 00:10:18,719 --> 00:10:22,125 but I posted all my blog posts on Facebook. 166 00:10:22,125 --> 00:10:25,653 And I was amazed by how much support there was out there. 167 00:10:26,111 --> 00:10:27,804 And I also realized 168 00:10:27,804 --> 00:10:31,104 that there are so many other people just like me. 169 00:10:31,104 --> 00:10:32,528 I was actually amazed! 170 00:10:32,528 --> 00:10:38,016 A few of my friends opened up to me that they had schizophrenia. 171 00:10:39,696 --> 00:10:44,916 Now I am dedicated to being a mental health advocate. 172 00:10:44,916 --> 00:10:49,393 I'm not going to wallow in self-pity about my diagnosis. 173 00:10:49,393 --> 00:10:52,807 Instead, I want to use it as a common denominator, 174 00:10:52,807 --> 00:10:56,273 so I can help other people who have schizophrenia. 175 00:10:56,693 --> 00:11:03,326 And I'm not going to rest until anyone who has schizophrenia worldwide 176 00:11:03,326 --> 00:11:05,910 is not afraid to say the words: 177 00:11:05,910 --> 00:11:08,400 "I have schizophrenia." 178 00:11:09,040 --> 00:11:12,436 Because it's OK to have schizophrenia, 179 00:11:12,436 --> 00:11:13,996 it really is. 180 00:11:14,986 --> 00:11:21,171 Because 1.1% of the world's population over the age of 18 181 00:11:21,171 --> 00:11:23,776 has some sort of schizophrenia. 182 00:11:23,776 --> 00:11:28,194 That is 51 million people worldwide 183 00:11:28,194 --> 00:11:33,724 and 2.4 million people in the United States alone. 184 00:11:35,494 --> 00:11:37,204 But there's a problem. 185 00:11:38,084 --> 00:11:41,930 Because one out of ten people who have schizophrenia 186 00:11:41,930 --> 00:11:44,509 take their own life through suicide. 187 00:11:45,119 --> 00:11:50,154 Another four out of ten attempt suicide at least once. 188 00:11:50,154 --> 00:11:52,580 I fall into that statistic. 189 00:11:53,850 --> 00:11:58,060 You would think that there would already be a nonprofit 190 00:11:58,060 --> 00:12:03,250 focused on empowering college students who have schizophrenia, 191 00:12:03,250 --> 00:12:08,832 especially since the peak age to have a schizophrenic break is early adulthood - 192 00:12:08,832 --> 00:12:12,488 the same age range as a typical college student. 193 00:12:13,208 --> 00:12:14,391 But there isn't. 194 00:12:14,391 --> 00:12:17,994 There is no nonprofit in the entire United States 195 00:12:17,994 --> 00:12:19,704 focused on that. 196 00:12:19,704 --> 00:12:23,235 And a general nonprofit focused on mental health in general 197 00:12:23,235 --> 00:12:24,565 is not enough. 198 00:12:24,565 --> 00:12:27,344 Because even in the mental health community, 199 00:12:27,344 --> 00:12:29,905 schizophrenia is shied away from, 200 00:12:30,372 --> 00:12:33,627 because it makes people feel "uncomfortable". 201 00:12:36,877 --> 00:12:39,242 That is why I have decided 202 00:12:39,242 --> 00:12:43,282 to found the nonprofit "Students With Schizophrenia", 203 00:12:43,282 --> 00:12:48,525 where we will empower college students and get them the resources that they need, 204 00:12:48,525 --> 00:12:51,315 so they can stay in college and be successful. 205 00:12:51,315 --> 00:12:55,335 Because you could be successful and also have schizophrenia. 206 00:12:55,337 --> 00:12:58,050 We need to change the face of schizophrenia, 207 00:12:58,050 --> 00:13:02,205 because the representation currently is inaccurate. 208 00:13:03,135 --> 00:13:07,740 Don't let anyone tell you that you can't have a mental illness 209 00:13:07,740 --> 00:13:10,759 and also not be mentally strong. 210 00:13:10,759 --> 00:13:14,884 You are strong, you are brave, you are a warrior. 211 00:13:16,104 --> 00:13:20,464 Unfortunately, this nonprofit is too late for some. 212 00:13:21,784 --> 00:13:24,800 Since I've become open about having schizophrenia 213 00:13:24,800 --> 00:13:27,240 I am asked to come into different classrooms 214 00:13:27,240 --> 00:13:28,605 here at Penn State, 215 00:13:28,605 --> 00:13:32,378 and talk to the class about my experience having schizophrenia. 216 00:13:33,383 --> 00:13:36,539 One class stands out in particular. 217 00:13:37,509 --> 00:13:40,362 Earlier in the semester one of the students 218 00:13:40,362 --> 00:13:43,824 opened up to the class that she had schizophrenia. 219 00:13:43,824 --> 00:13:46,136 I commend her for her bravery. 220 00:13:46,495 --> 00:13:52,431 However, by the time that I came and talked to that class, 221 00:13:52,431 --> 00:13:55,837 she had taken her own life through suicide. 222 00:13:56,747 --> 00:13:58,787 We were too late for her. 223 00:13:58,787 --> 00:14:00,920 I was too late for her. 224 00:14:02,840 --> 00:14:07,094 Here at Penn State, we have to make an example to the world, 225 00:14:07,094 --> 00:14:09,619 because this is not just happening here at Penn State, 226 00:14:09,619 --> 00:14:11,999 it's happening globally. 227 00:14:11,999 --> 00:14:14,459 But here at Penn State, we have to show 228 00:14:14,459 --> 00:14:17,541 that we are here for our students, 229 00:14:17,541 --> 00:14:20,341 we are talking about mental health, 230 00:14:20,341 --> 00:14:24,811 and we are not afraid to talk about schizophrenia. 231 00:14:26,663 --> 00:14:29,083 My name is Cecilia McGough, 232 00:14:29,553 --> 00:14:31,393 I have schizophrenia 233 00:14:32,133 --> 00:14:34,833 and I am not a monster. 234 00:14:35,237 --> 00:14:36,598 Thank you. 235 00:14:36,598 --> 00:14:37,939 (Applause) 236 00:14:37,939 --> 00:14:39,981 (Cheering)