1 00:00:01,639 --> 00:00:03,817 Thank you, Chairman Alexander, senator Murray, 2 00:00:03,817 --> 00:00:05,485 and distinguished committee members 3 00:00:05,485 --> 00:00:07,154 for the opportunity to speak today. 4 00:00:07,411 --> 00:00:08,630 Good morning, everyone. 5 00:00:08,630 --> 00:00:10,902 As I stated, my name is Ethan Lindenberger, 6 00:00:10,902 --> 00:00:12,964 and I'm a senior in Norwalk High School, 7 00:00:12,964 --> 00:00:14,922 and my mother is an anti-vax advocate 8 00:00:14,922 --> 00:00:17,784 who believes vaccines cause autism, brain damage, 9 00:00:17,784 --> 00:00:20,395 and do not benefit the health and safety of society 10 00:00:20,395 --> 00:00:23,408 despite the fact such opinions have been debunked numerous times 11 00:00:23,408 --> 00:00:24,909 by the scientific community. 12 00:00:25,116 --> 00:00:28,168 I went my entire life without numerous vaccines 13 00:00:28,168 --> 00:00:31,774 against diseases such as measles, chicken pox, or even polio. 14 00:00:32,362 --> 00:00:34,310 However, in December of 2018, 15 00:00:34,310 --> 00:00:36,520 I began catching up on my missed immunizations 16 00:00:36,520 --> 00:00:38,257 despite my mother's disapproval, 17 00:00:39,114 --> 00:00:42,161 eventually leading to a story and being able to speak here today, 18 00:00:42,161 --> 00:00:44,222 and I'm very happy for that, so thank you. 19 00:00:44,222 --> 00:00:47,791 Now, to understand why I've come here and what I reallly want to talk about, 20 00:00:47,791 --> 00:00:50,743 I have to share some details about my home life, my upbringing. 21 00:00:51,043 --> 00:00:53,041 I grew up understanding my mother's beliefs 22 00:00:53,041 --> 00:00:54,439 that vaccines are dangerous, 23 00:00:54,439 --> 00:00:56,658 and she would speak openly about these views. 24 00:00:56,772 --> 00:00:58,014 Both online and in-person, 25 00:00:58,014 --> 00:00:59,446 she would voice her concerns, 26 00:00:59,446 --> 00:01:01,730 and these beliefs were met with strong criticism. 27 00:01:02,132 --> 00:01:04,801 Over the course of my life, seeds of doubts were planted, 28 00:01:04,801 --> 00:01:05,795 and questions arose 29 00:01:05,795 --> 00:01:08,082 because of the backslash my mother would receive. 30 00:01:08,082 --> 00:01:10,226 But overtime that didn't really lead anywhere. 31 00:01:10,476 --> 00:01:12,486 Now, it's important to understand 32 00:01:12,486 --> 00:01:14,085 that as I approached high school 33 00:01:14,085 --> 00:01:16,059 and began to critically think for myself, 34 00:01:16,059 --> 00:01:18,155 I saw that information in defense of vaccines 35 00:01:18,155 --> 00:01:20,040 outweighed the concerns heavily. 36 00:01:21,051 --> 00:01:23,078 I began leading debate clubs in my school 37 00:01:23,078 --> 00:01:24,905 and pursuing truth above all else, 38 00:01:24,905 --> 00:01:29,226 and I realized one certain quality to debates 39 00:01:29,226 --> 00:01:30,708 and to conversations in general 40 00:01:30,708 --> 00:01:32,854 when it comes to the controversial discussions 41 00:01:32,854 --> 00:01:36,236 which is that there seems always be two sides to a discussion. 42 00:01:36,626 --> 00:01:39,003 There always seems to be a counterclaim or rebuttal 43 00:01:39,003 --> 00:01:42,113 and always something to strike back with in terms of debate. 44 00:01:42,567 --> 00:01:44,615 Though this may seem true in all essences, 45 00:01:44,615 --> 00:01:46,563 this is not true for the vaccine debate, 46 00:01:46,563 --> 00:01:49,551 and I approached my mother with this concern 47 00:01:49,551 --> 00:01:51,080 that she was incorrect. 48 00:01:52,167 --> 00:01:53,975 I approached my mother numerous times, 49 00:01:53,975 --> 00:01:58,135 trying to explain that vaccines are safe, and that I should be vaccinated. 50 00:01:59,036 --> 00:02:01,032 Approaching even with articles from the CDC 51 00:02:01,032 --> 00:02:04,434 exquisitely claiming that ideas that vaccines cause autism 52 00:02:04,434 --> 00:02:07,168 and extremely dangerous consequences 53 00:02:07,168 --> 00:02:08,603 were incorrect. 54 00:02:09,288 --> 00:02:11,246 In one such instance where I approached my mother 55 00:02:11,246 --> 00:02:14,833 with information from the CDC that claims vaccines do not cause autism, 56 00:02:14,833 --> 00:02:17,359 she responded that that's what they want you to think. 57 00:02:17,442 --> 00:02:23,939 Skepticism and worry were taking the forefront in terms of information. 58 00:02:24,220 --> 00:02:26,225 Now, conversations like these reaffirmed 59 00:02:26,225 --> 00:02:28,013 that evidence in defense of vaccines 60 00:02:28,013 --> 00:02:31,042 was at least, on anecdotal level, 61 00:02:31,042 --> 00:02:33,437 much greater than the deeply rooted misinformation 62 00:02:33,437 --> 00:02:34,743 my mother interacted with, 63 00:02:34,743 --> 00:02:37,033 and that's what I want to focus on today. 64 00:02:37,486 --> 00:02:39,418 To combat preventable disease outbreaks, 65 00:02:39,418 --> 00:02:43,436 information is, in my mind, the forefront of this matter. 66 00:02:43,543 --> 00:02:47,246 My mother would turn to anti-vaccine groups online and on social media 67 00:02:47,246 --> 00:02:48,965 looking for her evidence and defense 68 00:02:48,965 --> 00:02:51,681 rather than health officials and through credible sources. 69 00:02:52,278 --> 00:02:54,096 This may seem to be a malice 70 00:02:54,096 --> 00:02:56,769 because of the dangerous that not vaccinating imposes, 71 00:02:56,769 --> 00:02:58,062 but this is not the case. 72 00:02:58,062 --> 00:03:00,893 My mother came in the sense of loving her children 73 00:03:00,893 --> 00:03:02,194 and being concerned. 74 00:03:02,877 --> 00:03:04,298 This misinformation spreads, 75 00:03:04,298 --> 00:03:08,170 and that's not necessarily justifiable. 76 00:03:08,483 --> 00:03:10,532 But I carry this knowledge with me that 77 00:03:10,772 --> 00:03:14,195 it was with respect and love that I disagreed with my mother. 78 00:03:14,362 --> 00:03:16,509 And with the information she provided, 79 00:03:16,509 --> 00:03:19,466 I continue to try and explain that it was misinformed. 80 00:03:20,483 --> 00:03:23,212 Ideas, again, that vaccines cause autism, brain damage, 81 00:03:23,212 --> 00:03:24,895 and also that the measles outbreak 82 00:03:24,895 --> 00:03:27,541 is of no concern to the society and to America, 83 00:03:27,917 --> 00:03:33,229 where ideas that were pushed by the sources that she would go to. 84 00:03:34,090 --> 00:03:37,794 And for certain individuals and organizations 85 00:03:37,794 --> 00:03:39,530 that spread this misinformation, 86 00:03:39,530 --> 00:03:42,433 they instill fear into the public for their own gain selfishly 87 00:03:42,433 --> 00:03:44,910 and do so knowing that the information is incorrect. 88 00:03:44,910 --> 00:03:47,519 For my mother, her love, affection and care of parent 89 00:03:47,519 --> 00:03:50,958 was used to push an agenda to create a false distress, 90 00:03:51,127 --> 00:03:53,229 and these sources which spread misinformation 91 00:03:53,229 --> 00:03:55,704 should be the primary concern of the American people. 92 00:03:56,023 --> 00:03:58,545 Although changes are already placed, and more tries can be done, 93 00:03:58,545 --> 00:04:00,935 almost 80% of people, according to Pew Research Center, 94 00:04:00,935 --> 00:04:03,552 turn to the internet for health related questions. 95 00:04:03,972 --> 00:04:07,447 I further explained more statistics and evidences in my written testimony. 96 00:04:07,447 --> 00:04:11,113 Now, in terms of what I would like to walk away with today 97 00:04:11,113 --> 00:04:12,604 and kind of finalize with. 98 00:04:13,481 --> 00:04:16,971 Although my mother would turn to very illegitimate sources 99 00:04:16,971 --> 00:04:19,830 that did not have peer-reviewed evidence or information, 100 00:04:20,283 --> 00:04:22,849 I could clearly saw the evidences and claims for myself 101 00:04:22,849 --> 00:04:23,850 were not accurate, 102 00:04:23,850 --> 00:04:24,848 and because of that, 103 00:04:24,848 --> 00:04:27,658 and the health care professionals I was able to speak with, 104 00:04:27,658 --> 00:04:29,359 and the information provided to me, 105 00:04:29,359 --> 00:04:32,123 I was able to make clear, concise, and scientific decision. 106 00:04:33,061 --> 00:04:36,322 Approaching this issue with the concern of education 107 00:04:36,322 --> 00:04:38,393 and addressing misinformation properly 108 00:04:38,774 --> 00:04:41,004 can cause change, as it did for me. 109 00:04:41,525 --> 00:04:43,963 Now, although the debate around vaccines 110 00:04:43,963 --> 00:04:47,283 is not necessarily centered on information and concern for health and safety, 111 00:04:47,283 --> 00:04:50,305 this is why education is important and also misinformation is so dangerous. 112 00:04:50,305 --> 00:04:51,000 Subtitles by MaurĂ­cio Kakuei Tanaka Review by Jenny Lam-Chowdhury