1 99:59:59,999 --> 99:59:59,999 - Hi, My name is Tim and I am from 2 99:59:59,999 --> 99:59:59,999 Orange County. I have cerebral palsy. 3 99:59:59,999 --> 99:59:59,999 I was born with cerebral palsy and not too 4 99:59:59,999 --> 99:59:59,999 sure how to answer this question. 5 99:59:59,999 --> 99:59:59,999 Because unlike an accident or being 6 99:59:59,999 --> 99:59:59,999 born abled and then becoming disabled 7 99:59:59,999 --> 99:59:59,999 my cerebral palsy is just normal to me. 8 99:59:59,999 --> 99:59:59,999 outside of my family, while I 9 99:59:59,999 --> 99:59:59,999 was growing up, I knew that I was 10 99:59:59,999 --> 99:59:59,999 different from the rest. 11 99:59:59,999 --> 99:59:59,999 but even now my family does not 12 99:59:59,999 --> 99:59:59,999 point out that they have a 13 99:59:59,999 --> 99:59:59,999 disabled son, brother, cousin, uncle 14 99:59:59,999 --> 99:59:59,999 or friend. my C.P is invisible to them. 15 99:59:59,999 --> 99:59:59,999 I first noticed that I was disabled 16 99:59:59,999 --> 99:59:59,999 when I went outside and played with 17 99:59:59,999 --> 99:59:59,999 my bothers and their friends. 18 99:59:59,999 --> 99:59:59,999 For example, I always played with my 19 99:59:59,999 --> 99:59:59,999 brothers but when we played outside 20 99:59:59,999 --> 99:59:59,999 with the neighborhood kids, I started 21 99:59:59,999 --> 99:59:59,999 noticing most of the adults started 22 99:59:59,999 --> 99:59:59,999 looking at me moreso then their children. 23 99:59:59,999 --> 99:59:59,999 There is when I knew there was something 24 99:59:59,999 --> 99:59:59,999 wrong with me and it wasn't because 25 99:59:59,999 --> 99:59:59,999 I couldn't use my hands or run with 26 99:59:59,999 --> 99:59:59,999 my friends. Getting teased and being 27 99:59:59,999 --> 99:59:59,999 bullied by other kids was easy for me 28 99:59:59,999 --> 99:59:59,999 to deal because I quickly learned how 29 99:59:59,999 --> 99:59:59,999 to fight back. But, being not invited 30 99:59:59,999 --> 99:59:59,999 to a classmates birthday party or being 31 99:59:59,999 --> 99:59:59,999 told that I should go home by an adult 32 99:59:59,999 --> 99:59:59,999 while my brothers are playing with their 33 99:59:59,999 --> 99:59:59,999 kids has always impacted my life. 34 99:59:59,999 --> 99:59:59,999 in some ways, I've learned that 35 99:59:59,999 --> 99:59:59,999 discrimination comes in all shapes 36 99:59:59,999 --> 99:59:59,999 and sizes and/or the color of your 37 99:59:59,999 --> 99:59:59,999 skin. I was in high school when the ADA 38 99:59:59,999 --> 99:59:59,999 was signed. I really didn't see that 39 99:59:59,999 --> 99:59:59,999 much of a difference. I was being 40 99:59:59,999 --> 99:59:59,999 a teenager going through crazy 41 99:59:59,999 --> 99:59:59,999 adolescence stuff. ADA started effecting 42 99:59:59,999 --> 99:59:59,999 me when I started collage and 43 99:59:59,999 --> 99:59:59,999 traveling a lot more. 44 99:59:59,999 --> 99:59:59,999 for example, the ADA got signed 45 99:59:59,999 --> 99:59:59,999 and when I started my first 46 99:59:59,999 --> 99:59:59,999 semester in college, I saw a rapid 47 99:59:59,999 --> 99:59:59,999 progression with inclusion. 48 99:59:59,999 --> 99:59:59,999 More and more of my professors 49 99:59:59,999 --> 99:59:59,999 were willing to work with me and 50 99:59:59,999 --> 99:59:59,999 disable student services on how 51 99:59:59,999 --> 99:59:59,999 to adapt to my disability by giving 52 99:59:59,999 --> 99:59:59,999 me more time for term papers 53 99:59:59,999 --> 99:59:59,999 making sure that I have good 54 99:59:59,999 --> 99:59:59,999 notetakers and etcetera. 55 99:59:59,999 --> 99:59:59,999 My first semester in college was 56 99:59:59,999 --> 99:59:59,999 very hard. I think that I had 57 99:59:59,999 --> 99:59:59,999 to retake all of my classes because 58 99:59:59,999 --> 99:59:59,999 I got no help. After that, 59 99:59:59,999 --> 99:59:59,999 I went to the DSS and they worked 60 99:59:59,999 --> 99:59:59,999 with me at taking the right classes 61 99:59:59,999 --> 99:59:59,999 and the right professors would 62 99:59:59,999 --> 99:59:59,999 make select accommodations for me. 63 99:59:59,999 --> 99:59:59,999 By the time I needed to take my 64 99:59:59,999 --> 99:59:59,999 core classes for my major 65 99:59:59,999 --> 99:59:59,999 the department head knew me and 66 99:59:59,999 --> 99:59:59,999 worked with me with my final thesis. 67 99:59:59,999 --> 99:59:59,999 By then, I needed a lot less services 68 99:59:59,999 --> 99:59:59,999 from DSS because my professors 69 99:59:59,999 --> 99:59:59,999 kept track of how I was doing. 70 99:59:59,999 --> 99:59:59,999 I was one of the first nonverbal student 71 99:59:59,999 --> 99:59:59,999 at the university who graduated with 72 99:59:59,999 --> 99:59:59,999 a speech communication degree. 73 99:59:59,999 --> 99:59:59,999 At a very young age I traveled a lot 74 99:59:59,999 --> 99:59:59,999 with my family. My parents always had 75 99:59:59,999 --> 99:59:59,999 a running checklist going be for we'd 76 99:59:59,999 --> 99:59:59,999 travel. For example, making sure there 77 99:59:59,999 --> 99:59:59,999 was an accessible bathroom and so on. 78 99:59:59,999 --> 99:59:59,999 Even now when I travel with my friends 79 99:59:59,999 --> 99:59:59,999 we always check the restroom situation. 80 99:59:59,999 --> 99:59:59,999 (subtle laughter) 81 99:59:59,999 --> 99:59:59,999 When people think about ADA 82 99:59:59,999 --> 99:59:59,999 the very first thing that they think 83 99:59:59,999 --> 99:59:59,999 are curb, cuts and sidewalks but there 84 99:59:59,999 --> 99:59:59,999 are more to it. Just because is not 85 99:59:59,999 --> 99:59:59,999 diagnosed with a disability doesn't mean 86 99:59:59,999 --> 99:59:59,999 that they don't use the services either. 87 99:59:59,999 --> 99:59:59,999 For example, I know regular people that 88 99:59:59,999 --> 99:59:59,999 turn on subtitles when they are 89 99:59:59,999 --> 99:59:59,999 watching TV. They don't have hard of 90 99:59:59,999 --> 99:59:59,999 hearing but they agree that they get 91 99:59:59,999 --> 99:59:59,999 more content when they are reading 92 99:59:59,999 --> 99:59:59,999 and listening at the same time. 93 99:59:59,999 --> 99:59:59,999 This will not happen if there was no ADA. 94 99:59:59,999 --> 99:59:59,999 Without the American Disability Act, I 95 99:59:59,999 --> 99:59:59,999 strongly believe that we would have 96 99:59:59,999 --> 99:59:59,999 gone backwards with education, 97 99:59:59,999 --> 99:59:59,999 employment, healthcare and so on. 98 99:59:59,999 --> 99:59:59,999 Communication is very important to me. 99 99:59:59,999 --> 99:59:59,999 Since I have to use Augmentative 100 99:59:59,999 --> 99:59:59,999 and Alternative Communication Device 101 99:59:59,999 --> 99:59:59,999 i've always prioritized technology and 102 99:59:59,999 --> 99:59:59,999 communication together in 103 99:59:59,999 --> 99:59:59,999 my daily routine. 104 99:59:59,999 --> 99:59:59,999 I've seen access to the much better 105 99:59:59,999 --> 99:59:59,999 as I've gotten older. 106 99:59:59,999 --> 99:59:59,999 Such as when I'm at an airport 107 99:59:59,999 --> 99:59:59,999 and need to use a TTY machine 108 99:59:59,999 --> 99:59:59,999 to make a phone call I can always 109 99:59:59,999 --> 99:59:59,999 find one that is easily accessible. 110 99:59:59,999 --> 99:59:59,999 There is more awareness for being 111 99:59:59,999 --> 99:59:59,999 nonverbal now. 112 99:59:59,999 --> 99:59:59,999 As the population gets more used to 113 99:59:59,999 --> 99:59:59,999 the disabled community, people are 114 99:59:59,999 --> 99:59:59,999 more aware that there are other forms 115 99:59:59,999 --> 99:59:59,999 of communication such as ASL, 116 99:59:59,999 --> 99:59:59,999 AEC and so on. 117 99:59:59,999 --> 99:59:59,999 One of the main barriers that I 118 99:59:59,999 --> 99:59:59,999 always see is economic and equality 119 99:59:59,999 --> 99:59:59,999 between people with disability and 120 99:59:59,999 --> 99:59:59,999 able bodied. Our society tends to 121 99:59:59,999 --> 99:59:59,999 assume that if you are disabled 122 99:59:59,999 --> 99:59:59,999 you are invalid in the workforce. 123 99:59:59,999 --> 99:59:59,999 This is not true. 124 99:59:59,999 --> 99:59:59,999 There are many people with disabilities 125 99:59:59,999 --> 99:59:59,999 that are highly educated and more than 126 99:59:59,999 --> 99:59:59,999 willing to earn a fair wage of living. 127 99:59:59,999 --> 99:59:59,999 Also, our government digs people who 128 99:59:59,999 --> 99:59:59,999 are getting SSI or other types of services 129 99:59:59,999 --> 99:59:59,999 For example, I've worked for an 130 99:59:59,999 --> 99:59:59,999 educational publisher for 16 years and 131 99:59:59,999 --> 99:59:59,999 due to the pandemic, I needed to take 132 99:59:59,999 --> 99:59:59,999 a leave of absence for however long 133 99:59:59,999 --> 99:59:59,999 because of my disability, I can only work 134 99:59:59,999 --> 99:59:59,999 part-time. I also get SSDI based of my 135 99:59:59,999 --> 99:59:59,999 work credits that I accumulated over 136 99:59:59,999 --> 99:59:59,999 the years. When I was working, 137 99:59:59,999 --> 99:59:59,999 I needed to make sure not to accede too 138 99:59:59,999 --> 99:59:59,999 much or else I would lose my benefits. 139 99:59:59,999 --> 99:59:59,999 How is this fair? 140 99:59:59,999 --> 99:59:59,999 There should be a baselined living 141 99:59:59,999 --> 99:59:59,999 wage from the government under the 142 99:59:59,999 --> 99:59:59,999 ADA act so that people with diabilities 143 99:59:59,999 --> 99:59:59,999 are encouraged to work and more 144 99:59:59,999 --> 99:59:59,999 importantly, employers are willing to 145 99:59:59,999 --> 99:59:59,999 hire more from our community. 146 99:59:59,999 --> 99:59:59,999 Right now because of COVID-19 147 99:59:59,999 --> 99:59:59,999 more and more people with disabilities 148 99:59:59,999 --> 99:59:59,999 are getting sick because of large 149 99:59:59,999 --> 99:59:59,999 institutions. The White House Corona 150 99:59:59,999 --> 99:59:59,999 Virus task force hasn't really mentioned 151 99:59:59,999 --> 99:59:59,999 anything on how to be safe within our 152 99:59:59,999 --> 99:59:59,999 community. Seems like that our 153 99:59:59,999 --> 99:59:59,999 community is being left behind. 154 99:59:59,999 --> 99:59:59,999 There is no awareness at all or any 155 99:59:59,999 --> 99:59:59,999 outreach from the White House. 156 99:59:59,999 --> 99:59:59,999 It feels like that no one from the top 157 99:59:59,999 --> 99:59:59,999 has any understanding of our 158 99:59:59,999 --> 99:59:59,999 community. In California we are required 159 99:59:59,999 --> 99:59:59,999 to wear some kind of facial covering 160 99:59:59,999 --> 99:59:59,999 when we are in public. 161 99:59:59,999 --> 99:59:59,999 Many people in our community are 162 99:59:59,999 --> 99:59:59,999 not able to wear any kind of mask. 163 99:59:59,999 --> 99:59:59,999 One idea would be to form a committee 164 99:59:59,999 --> 99:59:59,999 with all the national organizations such 165 99:59:59,999 --> 99:59:59,999 as United Cerebral Palsy, 166 99:59:59,999 --> 99:59:59,999 Muscular Dystrophy Association, 167 99:59:59,999 --> 99:59:59,999 and many others to form one union