1 00:00:00,000 --> 00:00:03,968 - (electronic voice) Hi, My name is Tim and I am from Orange County, 2 00:00:03,968 --> 00:00:05,820 and have cerebral palsy. 3 00:00:05,820 --> 00:00:07,930 I was born with cerebral palsy 4 00:00:07,930 --> 00:00:11,029 and not too sure how I should answer this question. 5 00:00:11,029 --> 00:00:12,792 Because unlike an accident, 6 00:00:12,792 --> 00:00:15,760 or being born abled and then becoming disabled, 7 00:00:15,760 --> 00:00:19,260 my cerebral palsy is just normal to me. 8 00:00:19,260 --> 00:00:21,282 Outside of my family, 9 00:00:21,282 --> 00:00:25,736 while I was growing up I knew that I was different from the rest. 10 00:00:25,736 --> 00:00:28,415 But even now, my family does not point out 11 00:00:28,415 --> 00:00:33,277 that they have a disabled son, brother, cousin, uncle, or friend. 12 00:00:33,277 --> 00:00:36,015 My CP is invisible to them. 13 00:00:38,864 --> 00:00:41,124 I first noticed that I was disabled 14 00:00:41,124 --> 00:00:45,159 when I went outside and played with my brothers and their friends. 15 00:00:48,967 --> 00:00:51,865 For example, I always played with my brothers, 16 00:00:51,865 --> 00:00:55,159 but when we played outside with the neighborhood kids, 17 00:00:55,159 --> 00:00:57,630 I started noticing most of the adults 18 00:00:57,630 --> 00:01:01,410 started looking at me moreso than their children. 19 00:01:01,410 --> 00:01:04,695 There is when I knew that something was wrong with me 20 00:01:04,695 --> 00:01:07,445 and it wasn't because I couldn't use my hands 21 00:01:07,445 --> 00:01:09,434 or run with my friends. 22 00:01:12,174 --> 00:01:14,965 Getting teased and being bullied by other kids 23 00:01:14,965 --> 00:01:16,739 was easy for me to deal 24 00:01:16,739 --> 00:01:19,502 because I quickly learned how to fight back. 25 00:01:19,502 --> 00:01:24,355 But, being not invited to a classmate's birthday party 26 00:01:24,355 --> 00:01:27,312 and being told that I should go home by an adult 27 00:01:27,312 --> 00:01:30,082 while my brothers are playing with their kids 28 00:01:30,082 --> 00:01:32,442 has always impacted my life. 29 00:01:33,252 --> 00:01:36,182 In some ways, I've learned that discrimination 30 00:01:36,182 --> 00:01:38,431 comes in all shapes and sizes, 31 00:01:38,431 --> 00:01:40,614 and/or by the color of your skin. 32 00:01:43,814 --> 00:01:47,185 I was in high school when the ADA was signed. 33 00:01:47,185 --> 00:01:50,363 I really didn't see that much of a difference. 34 00:01:50,363 --> 00:01:54,466 I was being a teenager, going through crazy adolescence stuff. 35 00:01:54,466 --> 00:01:58,310 ADA started affecting me when I started college 36 00:01:58,310 --> 00:02:00,590 and traveling a lot more. 37 00:02:03,047 --> 00:02:05,680 For example, when the ADA got signed 38 00:02:05,680 --> 00:02:09,269 and when I started my first semester in college, 39 00:02:09,269 --> 00:02:13,235 I saw a rapid progression with inclusion. 40 00:02:13,235 --> 00:02:15,222 More and more of my professors 41 00:02:15,222 --> 00:02:18,666 were willing to work with me and Disabled Student Services 42 00:02:18,666 --> 00:02:20,793 on how to adapt to my disability 43 00:02:20,793 --> 00:02:23,999 by giving me more time for term papers, 44 00:02:23,999 --> 00:02:27,960 making sure that I have good notetakers and etcetera. 45 00:02:30,039 --> 00:02:33,606 My first semester in college was very hard. 46 00:02:33,606 --> 00:02:37,156 I think that I had to retake all of my classes again 47 00:02:37,156 --> 00:02:39,119 because I got no help. 48 00:02:39,119 --> 00:02:41,677 After that, I went to DSS 49 00:02:41,677 --> 00:02:44,758 and they worked with me at taking the right classes 50 00:02:44,758 --> 00:02:49,254 and the right professors that would make select accommodations for me. 51 00:02:49,254 --> 00:02:53,336 By the time I needed to take my core classes for my major, 52 00:02:53,336 --> 00:02:55,154 the department head knew me 53 00:02:55,154 --> 00:02:57,771 and worked with me with my final thesis. 54 00:03:00,763 --> 00:03:04,214 By then, I needed a lot less services from DSS 55 00:03:04,214 --> 00:03:08,853 because my professors kept track of how I was doing. 56 00:03:08,853 --> 00:03:12,462 I was one of the first nonverbal student at the university 57 00:03:12,462 --> 00:03:15,852 to graduated with a speech communication degree. 58 00:03:18,790 --> 00:03:22,572 At a very young age, I traveled a lot with my family. 59 00:03:22,572 --> 00:03:25,941 My parents always had a running checklist going 60 00:03:25,941 --> 00:03:28,290 before we'd travel. 61 00:03:28,290 --> 00:03:32,848 For example, making sure there was an accessible bathroom, and so on. 62 00:03:33,547 --> 00:03:36,675 Even now, when I travel with my friends, 63 00:03:36,675 --> 00:03:39,975 we always check the restroom situation. 64 00:03:39,975 --> 00:03:43,975 (subtle laughter) 65 00:03:45,138 --> 00:03:47,508 When people think about ADA, 66 00:03:47,508 --> 00:03:51,448 the very first thing that they think are curb-cuts and sidewalks, 67 00:03:51,448 --> 00:03:53,545 but there are more to it. 68 00:03:53,545 --> 00:03:57,755 Just because someone is not diagnosed with a disability 69 00:03:57,755 --> 00:04:01,405 doesn't mean that they don't use the services either. 70 00:04:01,405 --> 00:04:03,944 For example, I know regular people 71 00:04:03,944 --> 00:04:07,351 that turn on subtitles when they are watching TV. 72 00:04:07,351 --> 00:04:09,588 They don't have hard of hearing, 73 00:04:09,588 --> 00:04:11,972 but they agree that they get more content 74 00:04:11,972 --> 00:04:15,626 when they are reading and listening at the same time. 75 00:04:15,626 --> 00:04:18,766 This will not happen if there was no ADA. 76 00:04:25,136 --> 00:04:27,802 Without the American Disabilities Act, 77 00:04:27,802 --> 00:04:30,774 I strongly believe that we would have gone backwards 78 00:04:30,774 --> 00:04:34,364 with education, employment, healthcare, and so on. 79 00:04:35,306 --> 00:04:38,496 Communication is very important to me. 80 00:04:38,496 --> 00:04:43,438 Since I have to use an Augmentative and Alternative Communication Device, 81 00:04:43,438 --> 00:04:46,547 I've always prioritized technology and communication 82 00:04:46,547 --> 00:04:48,877 together in my daily routine. 83 00:04:51,618 --> 00:04:55,828 I've seen access to be much better as I've gotten older. 84 00:04:55,828 --> 00:04:58,028 Such as when I'm at an airport 85 00:04:58,028 --> 00:05:01,534 and need to use a TTY machine to make a phone call, 86 00:05:01,534 --> 00:05:05,678 I can always find one that is easily accessible. 87 00:05:05,678 --> 00:05:09,538 There is more awareness for being nonverbal now. 88 00:05:09,538 --> 00:05:13,363 As the population gets more used to the disabled community, 89 00:05:13,363 --> 00:05:16,295 people are more aware that there are other forms 90 00:05:16,295 --> 00:05:20,612 of communication such as ASL, AEC and so on. 91 00:05:24,311 --> 00:05:26,976 One of the main barriers that I always see 92 00:05:26,976 --> 00:05:28,489 is economic inequality 93 00:05:28,489 --> 00:05:31,984 between people with disability and able-bodied. 94 00:05:31,984 --> 00:05:36,122 Our society tends to assume that if you are disabled, 95 00:05:36,122 --> 00:05:39,382 you are invalid in the workforce. 96 00:05:39,382 --> 00:05:40,942 This is not true. 97 00:05:40,942 --> 00:05:44,731 There are many people with disabilities that are highly educated 98 00:05:44,731 --> 00:05:47,997 and more than willing to earn a fair wage of living. 99 00:05:52,792 --> 00:05:55,252 Also, our government dings people 100 00:05:55,252 --> 00:05:59,062 who are getting SSI or other types of services. 101 00:05:59,062 --> 00:06:02,312 For example, I've worked for an educational publisher 102 00:06:02,312 --> 00:06:05,339 for 16 years and due to the pandemic, 103 00:06:05,339 --> 00:06:09,172 I needed to take a leave of absence for however long. 104 00:06:09,172 --> 00:06:13,085 Because of my disability, I can only work part-time. 105 00:06:13,085 --> 00:06:16,941 I also get SSDI based off my work credits 106 00:06:16,941 --> 00:06:19,306 that I accumulated over the years. 107 00:06:22,874 --> 00:06:24,512 When I was working, 108 00:06:24,512 --> 00:06:27,649 I needed to make sure not to exceed too much 109 00:06:27,649 --> 00:06:30,698 or else I would lose my benefits. 110 00:06:30,698 --> 00:06:32,848 How is this fair? 111 00:06:32,848 --> 00:06:35,154 There should be a baseline living wage 112 00:06:35,154 --> 00:06:37,483 from the government under the ADA act 113 00:06:37,483 --> 00:06:40,863 so that people with disabilities are encouraged to work 114 00:06:40,863 --> 00:06:42,553 and more importantly, 115 00:06:42,553 --> 00:06:46,266 employers are willing to hire more from our community. 116 00:06:49,093 --> 00:06:51,243 Right now because of COVID-19, 117 00:06:51,243 --> 00:06:53,865 more and more people with disabilities 118 00:06:53,865 --> 00:06:57,416 are getting sick because of large institutions. 119 00:06:57,416 --> 00:07:02,202 The White House Coronavirus task force hasn't really mentioned anything 120 00:07:02,202 --> 00:07:05,573 on how to be safe within our community. 121 00:07:05,573 --> 00:07:09,993 Seems like that our community is being left behind. 122 00:07:09,993 --> 00:07:11,919 There is no awareness at all, 123 00:07:11,919 --> 00:07:14,594 or any outreach from the White House. 124 00:07:14,594 --> 00:07:17,054 It feels like that no one from the top 125 00:07:17,054 --> 00:07:19,630 has any understanding of our community. 126 00:07:22,703 --> 00:07:27,233 In California, we are required to wear some kind of facial covering 127 00:07:27,233 --> 00:07:29,273 when we are in public. 128 00:07:29,273 --> 00:07:33,942 Many people in our community are not able to wear any kind of mask. 129 00:07:37,781 --> 00:07:42,446 One idea would be to form a committee with all of the national organizations 130 00:07:42,446 --> 00:07:47,640 such as United Cerebral Palsy, Muscular Dystrophy Association, 131 00:07:47,640 --> 00:07:50,175 Autism Society, and many others 132 00:07:50,175 --> 00:07:52,634 to form one unit on the main purpose 133 00:07:52,634 --> 00:07:55,991 of protecting the most vulnerable from the virus. 134 00:07:58,784 --> 00:08:02,778 More importantly, we can come up with some kind of procedures, 135 00:08:02,778 --> 00:08:07,370 guidelines, and distributing of information nationally and locally. 136 00:08:07,370 --> 00:08:12,066 Since these organizations have local offices throughout the country, 137 00:08:12,066 --> 00:08:14,553 it wouldn't be too difficult to outreach 138 00:08:14,553 --> 00:08:17,141 and create a database on how we are doing, 139 00:08:17,141 --> 00:08:20,523 and for those areas who are seeing a spike of infections 140 00:08:20,523 --> 00:08:22,706 in group homes and such, 141 00:08:22,706 --> 00:08:26,005 we can do more outreach and offer more support.