1 00:00:01,400 --> 00:00:02,650 So, 2 00:00:02,760 --> 00:00:04,560 My name is Michelle Nario - Redmond 3 00:00:04,680 --> 00:00:06,320 I am a social psychologist and 4 00:00:06,370 --> 00:00:08,380 I teach at Hiram College 5 00:00:08,519 --> 00:00:11,404 in psychology and biomedical humanities program 6 00:00:11,437 --> 00:00:15,727 and I just wrote a book on ableism the causes and consequences 7 00:00:15,727 --> 00:00:18,967 of disability prejudice. My first memory 8 00:00:18,967 --> 00:00:21,267 and I'll just back up and say in 1990, 9 00:00:21,267 --> 00:00:23,730 when the ADA passed I was in graduate school, 10 00:00:25,099 --> 00:00:33,134 in Kansas, and disability prejudice, the ADA or anything 11 00:00:33,134 --> 00:00:38,954 related to disability issues were completely off my radar, 12 00:00:40,054 --> 00:00:43,578 and I worked at a place where one of the pioneers 13 00:00:43,578 --> 00:00:46,756 of disability studies worked, Beatrice Wright, 14 00:00:46,756 --> 00:00:50,396 and I hadn't yet to have a class with her. 15 00:00:50,396 --> 00:00:53,876 It really wasn't until 1995, which was five years later, 16 00:00:53,876 --> 00:00:58,566 when my daughter was born, Sierra, with spina bifida, 17 00:00:58,566 --> 00:01:03,394 that I became aware of disability and found the work 18 00:01:03,394 --> 00:01:08,862 of Carol Gill and Simi Linton and began to educate myself 19 00:01:08,862 --> 00:01:15,348 on disability studies and its scope, and the first memory I have of 20 00:01:15,348 --> 00:01:22,571 confronting inaccessible spaces was a few years later, when we enrolled 21 00:01:22,571 --> 00:01:26,520 my daughter Sierra in a preschool, at a catholic preschool, 22 00:01:26,960 --> 00:01:31,915 right down the road; and it just didn't even dawn on me that we would have to 23 00:01:31,915 --> 00:01:36,388 work so hard for her to be accommodated as a preschooler, 24 00:01:36,472 --> 00:01:41,209 and it was really a function of the fact that the building was older, 25 00:01:41,252 --> 00:01:47,109 there were steps, and they really didn't know, nor did they need to legally know, 26 00:01:47,142 --> 00:01:52,554 about reasonable accommodations and civil rights of their students, 27 00:01:52,554 --> 00:02:00,755 because they were a private facility and weren't subject to the ADA's rules. 28 00:02:00,812 --> 00:02:05,303 So... it became clear to me that we needed to find a new preschool, 29 00:02:05,303 --> 00:02:09,911 and luckily we found a private, another private place. It wasn't 30 00:02:09,911 --> 00:02:12,946 a public school, but it was a music school settlement 31 00:02:12,946 --> 00:02:16,407 and they had resources and they were already operating 32 00:02:16,407 --> 00:02:21,566 under a sort of set of presumptions about the value of diversity 33 00:02:21,566 --> 00:02:26,928 and diverse perspectives, and we didn't really have to ask for much, 34 00:02:26,928 --> 00:02:31,654 because they bent over backwards to include my daughter 35 00:02:31,654 --> 00:02:37,356 in a typical classroom, with her peers, her preschool peers, music classes, 36 00:02:37,356 --> 00:02:41,947 there were so many eclectic movement classes, 37 00:02:41,947 --> 00:02:48,049 and they even purchased equipment for their exercise room 38 00:02:48,049 --> 00:02:52,868 and movement room that would be useful to her among others, 39 00:02:52,868 --> 00:02:58,063 and she has since grown up to become this teacher and has applied 40 00:02:58,063 --> 00:03:01,595 to work there as a preschool teacher. So, I think it would be really 41 00:03:01,595 --> 00:03:08,320 amazing, if she came full circle. But, I guess, to stance the broader 42 00:03:08,320 --> 00:03:14,915 question about being frustrated and aware of inaccessibility and lack of inclusion, 43 00:03:14,915 --> 00:03:21,512 we were in a district that, when she then, was about to move to preschool, I 44 00:03:21,512 --> 00:03:27,059 knew that she wouldn't probably be able to go to a private school, not only because 45 00:03:27,059 --> 00:03:31,585 of the financial cost, but because they would not have to think about 46 00:03:31,585 --> 00:03:35,981 best practices and the law when it came to accommodating 47 00:03:35,981 --> 00:03:39,133 their students with disabilities, and so I knew we would be 48 00:03:39,133 --> 00:03:43,971 looking at the public school, and the public school in our neighborhood 49 00:03:43,971 --> 00:03:49,384 was not accessible. We went to visit it, the playground had a little house 50 00:03:49,384 --> 00:03:52,254 that she wouldn't have been able to get into, 51 00:03:52,254 --> 00:03:55,876 and it was really disheartening and so it came at a time 52 00:03:55,876 --> 00:03:58,393 when we were already looking for other opportunities, 53 00:03:58,393 --> 00:04:01,573 and my husband got an opportunity to move us as a family 54 00:04:01,573 --> 00:04:04,079 to the West Coast of Portland of Oregon, and 55 00:04:04,079 --> 00:04:10,507 so the way I...we had to navigate her early educational experiences 56 00:04:10,574 --> 00:04:17,591 was to only look at spaces and schools that were in districts that were new, 57 00:04:17,591 --> 00:04:23,109 so that had buildings and had training in terms of 58 00:04:23,178 --> 00:04:26,369 accommodating their diverse students and their disabled students, 59 00:04:26,369 --> 00:04:31,262 because just having the brief experiences that I did with the preschool 60 00:04:31,319 --> 00:04:38,810 and IEP meetings that were going to require me to fight at every juncture 61 00:04:38,868 --> 00:04:42,941 for her basic rights to show what she knows 62 00:04:42,976 --> 00:04:47,312 and participate and recognize herself as a valuable contributor 63 00:04:47,360 --> 00:04:50,910 to the school community. We're not going to be forthcoming 64 00:04:50,943 --> 00:04:54,411 without a fight, and so we narrowed our search 65 00:04:54,454 --> 00:04:57,194 to a district, and thank God we had the opportunity 66 00:04:57,221 --> 00:05:02,445 and the resources to do this, that was pretty known for their 67 00:05:02,513 --> 00:05:04,012 inclusivity. 68 00:05:04,095 --> 00:05:07,731 We did that also when we came back to the Cleveland, Ohio area. 69 00:05:07,806 --> 00:05:12,412 We were able to avoid all districts that weren't at the cutting edge 70 00:05:12,412 --> 00:05:16,514 of full inclusion and proof of excellence and had newer buildings 71 00:05:16,514 --> 00:05:19,623 that could accommodate those with disabilities, 72 00:05:19,623 --> 00:05:25,967 but I guess that that was my earliest memory of how, 'Oh, we have a road 73 00:05:25,967 --> 00:05:32,468 ahead of us and we have to take it upon ourselves to either continue to fight 74 00:05:32,468 --> 00:05:40,316 battles that had already been won, legislatively or find spaces, places 75 00:05:40,379 --> 00:05:42,982 and organizations that were ahead of the curve 76 00:05:42,982 --> 00:05:50,434 in terms of implementing, monitoring and just execute the basic civil rights 77 00:05:50,484 --> 00:05:53,618 of their various constituents 78 00:05:53,736 --> 00:05:58,568 The impact that all of that has had on me is to just be able to communicate 79 00:05:58,640 --> 00:06:02,284 with other parents and students with disabilities 80 00:06:02,334 --> 00:06:09,035 about not only knowing their rights but knowing how to get those rights 81 00:06:09,086 --> 00:06:18,638 how to advocate for ensuring that those rights are addressed, are met. 82 00:06:18,638 --> 00:06:21,099 I think the ADA has made a huge difference 83 00:06:21,099 --> 00:06:24,755 and the aha moment was even when I was collating information for this book 84 00:06:24,807 --> 00:06:28,922 on disability prejudice. I realized that when I was a kid, 85 00:06:28,956 --> 00:06:33,693 when I was growing up in the 60's and 70's, people with disabilities weren't 86 00:06:33,693 --> 00:06:39,357 able to do any of the things that we took for granted as kids: go to the movies 87 00:06:39,432 --> 00:06:44,474 go to restaurants, go to visit a friend, at a friend's house, or invite 88 00:06:44,546 --> 00:06:47,559 others to your birthday parties. 89 00:06:47,559 --> 00:06:54,992 And, since the ADA passed in 1990, it wasn't an immediate set of changes, 90 00:06:55,011 --> 00:07:01,662 as, you know, there has been significant progress made, particularly in public 91 00:07:01,662 --> 00:07:07,910 spaces and in employment settings, where there are even employers 92 00:07:07,959 --> 00:07:13,827 who are part of an organization of inclusive excellence, who 93 00:07:13,876 --> 00:07:18,677 recognize that disabled employees are actually more reliable and 94 00:07:18,724 --> 00:07:23,145 have less turnover and are worth investing in and promoting. 95 00:07:23,229 --> 00:07:28,810 But, there are still so many places, small businesses, educational institutions 96 00:07:28,937 --> 00:07:40,893 that are not carrying out the basic, sort of gains and practices that the ADA 97 00:07:40,893 --> 00:07:45,131 has made possible .There's just way too much variation, and I think part of that 98 00:07:45,232 --> 00:07:48,983 is just a lack of education in terms of what 99 00:07:49,135 --> 00:07:54,635 is reasonable and what is necessary 100 00:07:54,711 --> 00:07:56,933 in terms of accommodating your citizenry 101 00:07:57,008 --> 00:08:01,185 and lack of resources in some cases but 102 00:08:01,260 --> 00:08:03,633 also a lot of misinformation about whether 103 00:08:03,734 --> 00:08:08,236 or not it's worth it. You know, the ADA is going to 104 00:08:08,293 --> 00:08:12,462 be 30 here in July. We're celebrating around 105 00:08:12,544 --> 00:08:15,543 the country and we are still fighting 106 00:08:15,543 --> 00:08:19,813 for businesses to do what they should have 107 00:08:19,914 --> 00:08:22,316 done 30 years ago, those that have been 108 00:08:22,392 --> 00:08:25,493 around this long. They have not, they have 109 00:08:25,563 --> 00:08:27,769 have waited for complaints or they have 110 00:08:27,846 --> 00:08:31,416 failed to do but the bare minimum in 111 00:08:31,466 --> 00:08:34,871 terms of recruiting the largest minority 112 00:08:34,922 --> 00:08:37,693 I work in the education sphere and to me, 113 00:08:37,792 --> 00:08:40,220 we could be doing so much more with 114 00:08:40,318 --> 00:08:42,820 advertising and recruiting for those kinds 115 00:08:42,943 --> 00:08:45,621 of students that we tend to really, at 116 00:08:45,697 --> 00:08:49,244 least my institution, do well to retain 117 00:08:49,395 --> 00:08:52,944 because we're a small, intimate college, 118 00:08:53,019 --> 00:08:55,847 Hiram College. And, and for years I've tried to sort of 119 00:08:55,922 --> 00:08:59,624 encourage us to consider more universally 120 00:08:59,723 --> 00:09:02,348 designed approaches, but also approaches 121 00:09:02,451 --> 00:09:06,949 that do more than the bare minimum when it comes to housing and 122 00:09:07,022 --> 00:09:09,600 extracurricular accommodations for 123 00:09:09,678 --> 00:09:12,398 students to who use mobility devices. For 124 00:09:12,525 --> 00:09:15,424 example, my daughter ended up having to be 125 00:09:15,577 --> 00:09:18,251 carried in her chair, to various club 126 00:09:18,449 --> 00:09:20,556 meetings while she was on the Hiram 127 00:09:20,653 --> 00:09:24,503 College campus. She was told that, during the 128 00:09:24,554 --> 00:09:28,102 winter, when the ice storms came, that 129 00:09:28,141 --> 00:09:31,767 they couldn't transport her up the long 130 00:09:31,767 --> 00:09:33,617 hill, while they were telling everyone 131 00:09:33,617 --> 00:09:37,324 else to walk like a penguin, and we had 132 00:09:37,324 --> 00:09:41,271 vans to do this. We had to file with the 133 00:09:41,271 --> 00:09:45,332 Ohio Disability Rights Commission and 134 00:09:45,408 --> 00:09:48,242 request that the school thinks about other 135 00:09:48,242 --> 00:09:50,506 ways of accommodating her, should there 136 00:09:50,506 --> 00:09:52,558 be a storm, an ice storm, and she can't 137 00:09:52,558 --> 00:09:55,057 get up to campus. And the solution 138 00:09:55,057 --> 00:09:57,787 was to have her move to a new dorm. 139 00:09:57,787 --> 00:10:00,012 You can't just do that over night. 140 00:10:00,012 --> 00:10:01,862 You can't just move all your bedding 141 00:10:01,862 --> 00:10:03,923 and all your bathroom supplies 142 00:10:03,923 --> 00:10:06,787 and your whole... you know at the moment's 143 00:10:06,787 --> 00:10:09,125 notice, when the weather changes 144 00:10:09,125 --> 00:10:11,005 and so it has been my experience that 145 00:10:11,005 --> 00:10:15,474 still a lot of places have done the bare minimum approach 146 00:10:15,364 --> 00:10:17,815 and think that that's all they need to do 147 00:10:17,822 --> 00:10:22,162 when instead, they could be following more 148 00:10:22,162 --> 00:10:26,022 of the latest practices and implementation's science 149 00:10:26,022 --> 00:10:29,142 and making it easier for people to 150 00:10:29,142 --> 00:10:31,719 register concerns or complaints. And 151 00:10:31,719 --> 00:10:33,829 they often don't even need to file a 152 00:10:33,829 --> 00:10:36,930 formal complaint issue, if you approach a business or 153 00:10:36,930 --> 00:10:39,856 your educational institution with an issue. 154 00:10:39,856 --> 00:10:45,131 Often times, progressive thinkers that recognize the value of 155 00:10:45,131 --> 00:10:49,191 customers with disabilities frequenting their businesses or 156 00:10:49,155 --> 00:10:52,056 diversifying their faculty or their student body 157 00:10:52,056 --> 00:11:00,839 will simply not be aware that they have failed to accommodate or 158 00:11:00,839 --> 00:11:05,113 make accessible various programs and spaces. 159 00:11:05,113 --> 00:11:09,378 And that can be as simple as asking. But a lot of times a lot more 160 00:11:09,378 --> 00:11:12,150 has to be done, you have to document you have 161 00:11:12,150 --> 00:11:14,909 to make sure your emails go to multiple people 162 00:11:14,909 --> 00:11:21,332 and make the business case of why surveying your policies 163 00:11:21,332 --> 00:11:23,933 to see whether they are biases or whether 164 00:11:23,933 --> 00:11:26,205 there is discrimination in filing of 165 00:11:26,205 --> 00:11:29,038 complaints or even you have a title 166 00:11:29,038 --> 00:11:33,154 of, you know, an officer on campus or ADA - cooridnator 167 00:11:33,154 --> 00:11:36,203 so that you can let students with disabilities know 168 00:11:36,203 --> 00:11:38,603 who may have not proper documentation 169 00:11:38,603 --> 00:11:40,472 how they can go about making sure that 170 00:11:40,472 --> 00:11:42,671 they get what they need to show 171 00:11:42,671 --> 00:11:46,701 what they know, before they fail classes 172 00:11:46,701 --> 00:11:49,231 because they haven't knocked at the door 173 00:11:49,142 --> 00:11:52,395 of disability services and provided proof 174 00:11:52,395 --> 00:11:54,891 that they have a particular condition 175 00:11:54,891 --> 00:11:57,320 So I know, I am sort of rambling a bit, 176 00:11:57,320 --> 00:12:01,550 but I just, just wasn't aware of how much 177 00:12:01,550 --> 00:12:04,958 further we need to go when it comes to 178 00:12:04,958 --> 00:12:08,958 surveying and making sure that the ADA 179 00:12:08,958 --> 00:12:12,958 is being implemented and just because 180 00:12:12,958 --> 00:12:15,740 a law passes doesn't mean again 181 00:12:15,740 --> 00:12:18,905 that it is just going to happen 182 00:12:18,905 --> 00:12:22,101 you have to have allies and acitivists 183 00:12:22,101 --> 00:12:23,697 and insiders working very hard 184 00:12:23,697 --> 00:12:26,396 to make sure that people are recognizing 185 00:12:26,396 --> 00:12:28,864 the value of legislation 186 00:12:28,864 --> 00:12:31,585 which I think, still people are under 187 00:12:31,585 --> 00:12:34,276 the assumption that it applies to 188 00:12:34,276 --> 00:12:36,277 people who identify with disabilities but 189 00:12:36,277 --> 00:12:39,824 I don't think that was even neccesserely 190 00:12:39,824 --> 00:12:42,371 even the intent of the ADA 191 00:12:42,371 --> 00:12:45,954 I think it recognizes that people flow 192 00:12:45,954 --> 00:12:48,194 in and out of abilities and the extent to 193 00:12:48,194 --> 00:12:51,954 which they are excluded or discriminated 194 00:12:51,954 --> 00:12:55,408 against, because of their abilities is 195 00:12:55,408 --> 00:12:58,117 really what this legislation was about 196 00:12:58,117 --> 00:13:01,077 even having a record of having a 197 00:13:01,077 --> 00:13:03,272 condition that maybe you no longer have 198 00:13:03,272 --> 00:13:06,786 or you had it temporarily can mean that 199 00:13:06,786 --> 00:13:09,933 you might be excluded. If you applied for 200 00:13:09,933 --> 00:13:12,505 jobs recently, you know, many places 201 00:13:12,505 --> 00:13:14,770 require a statement. You have to indicate 202 00:13:14,770 --> 00:13:17,478 based on strict definitions whether you 203 00:13:17,478 --> 00:13:21,238 have limitations in these major life 204 00:13:21,238 --> 00:13:23,527 activities that will qualify you as a 205 00:13:23,527 --> 00:13:25,801 disabled person and I want to believe that 206 00:13:25,801 --> 00:13:27,703 they are asking those questions, so that 207 00:13:27,703 --> 00:13:30,761 they can mindfully recruit people with 208 00:13:30,761 --> 00:13:33,962 disabilities to join their ranks, their 209 00:13:33,962 --> 00:13:36,351 staffing, but sometimes I think what 210 00:13:36,351 --> 00:13:39,136 prevents people from using that 211 00:13:39,136 --> 00:13:42,231 information to disqualify candidates 212 00:13:42,231 --> 00:13:44,042 so there has to be checks and balances 213 00:13:44,042 --> 00:13:46,107 and accountabilities when it comes to 214 00:13:46,107 --> 00:13:49,499 making sure your civil rights legislation 215 00:13:49,499 --> 00:13:53,177 doesn't put all of the owners on the 216 00:13:53,177 --> 00:13:57,747 group itself to file and follow through 217 00:13:57,747 --> 00:14:00,968 and figure out which parts of the ADA are 218 00:14:00,968 --> 00:14:03,448 being violated. You know that can be 219 00:14:03,448 --> 00:14:05,792 really discouraging when all you want to 220 00:14:05,792 --> 00:14:08,905 do is go out and you know, go to the beach 221 00:14:08,905 --> 00:14:11,457 and find out which beaches are accessible 222 00:14:11,457 --> 00:14:14,082 or whether there is, you know, a mobility 223 00:14:14,082 --> 00:14:17,279 devices that are availible via the sand or 224 00:14:17,279 --> 00:14:20,119 you just want to go camping or you just 225 00:14:20,119 --> 00:14:22,209 want to go frequent people who are 226 00:14:22,209 --> 00:14:24,769 minorities on businesses or disabilities 227 00:14:24,769 --> 00:14:27,471 on businesses and some of this is out 228 00:14:27,471 --> 00:14:29,415 there and I tried to promote it through 229 00:14:29,415 --> 00:14:32,533 books and activists pages, but there is just so 230 00:14:32,533 --> 00:14:34,922 much that we can do to leverage more of 231 00:14:34,922 --> 00:14:39,466 these ways of monitoring and implementing 232 00:14:39,466 --> 00:14:43,146 and taking access to the next level whether 233 00:14:43,146 --> 00:14:47,029 for the disabled community pro forma or 234 00:14:47,029 --> 00:14:51,193 proper or for anyone who uses strollers 235 00:14:51,193 --> 00:14:54,228 who might carry a lot of materials in 236 00:14:54,228 --> 00:14:56,578 their hands could benefit from a push 237 00:14:56,578 --> 00:14:59,992 button. I think we need all to do a better 238 00:14:59,992 --> 00:15:03,287 job at making the business and the 239 00:15:03,287 --> 00:15:08,822 other benefit cases for improving our ADA 240 00:15:08,822 --> 00:15:14,143 access. Where my passions lie of late is 241 00:15:14,143 --> 00:15:17,923 in getting out the votes because we know 242 00:15:17,923 --> 00:15:19,791 that disabled people have been 243 00:15:19,791 --> 00:15:22,301 disenfranchised from the vote and from 244 00:15:22,301 --> 00:15:24,283 parenting and from all kinds of other 245 00:15:24,283 --> 00:15:27,477 basic human rights but this being an election 246 00:15:27,477 --> 00:15:30,104 year there is all kinds of folks working 247 00:15:30,104 --> 00:15:33,913 to crip the vote, #cripthevote Alice Wong 248 00:15:33,913 --> 00:15:36,553 and others who have been trying to make 249 00:15:36,553 --> 00:15:39,776 sure that candidates for president and for 250 00:15:39,776 --> 00:15:41,842 congressional offices and even local 251 00:15:41,842 --> 00:15:44,843 campaigns are expressing what their stance 252 00:15:44,843 --> 00:15:47,755 is on the ADA and on disability rights and 253 00:15:47,755 --> 00:15:50,306 human rights and hold, for the first 254 00:15:50,306 --> 00:15:52,409 time we've seen some traction on that. 255 00:15:52,409 --> 00:15:55,609 But what people don't realize is how many 256 00:15:55,609 --> 00:15:58,808 places are not accessible to voters with 257 00:15:58,808 --> 00:16:00,483 disabilities either because they use 258 00:16:00,483 --> 00:16:02,285 assisted technologies that don't 259 00:16:02,285 --> 00:16:04,830 inter-phase with the electronic equipment 260 00:16:04,830 --> 00:16:08,155 or they can't get accessible transportation 261 00:16:08,155 --> 00:16:10,289 or the place itself is simply inaccessible 262 00:16:10,289 --> 00:16:14,305 or they are institutionalized and barred 263 00:16:14,305 --> 00:16:17,699 from voting because of that and so the 264 00:16:17,699 --> 00:16:19,606 center for American progress has been 265 00:16:19,606 --> 00:16:23,653 publishing some of the numbers, like over 266 00:16:23,653 --> 00:16:25,918 60% of polling places are considered 267 00:16:25,918 --> 00:16:29,406 inaccessible. That's a problem. So voting 268 00:16:29,406 --> 00:16:33,486 by mail may benefit a lot of groups if 269 00:16:33,486 --> 00:16:36,157 you think of some of that in the future. 270 00:16:36,157 --> 00:16:38,423 And then the second big issue we should 271 00:16:38,423 --> 00:16:41,495 follow up on that not many people know 272 00:16:41,495 --> 00:16:44,778 about and that I am not even so clear as 273 00:16:44,778 --> 00:16:49,754 how is the ADA serves the population of 274 00:16:49,754 --> 00:16:52,630 people who are incarcerated in jails and 275 00:16:52,630 --> 00:16:55,861 in prisons and in institutions. I know the 276 00:16:55,861 --> 00:17:00,752 ADA amendments have been 2009 done a 277 00:17:00,752 --> 00:17:05,638 better job of successfully helping folks 278 00:17:05,638 --> 00:17:08,790 litigate when they are isolated and there 279 00:17:08,790 --> 00:17:10,778 for not included because of their 280 00:17:10,778 --> 00:17:14,498 institutionalized placements, but I also 281 00:17:14,498 --> 00:17:18,928 I am aware that not many people know about 282 00:17:18,928 --> 00:17:22,066 the number, the sheer numbers of people 283 00:17:22,066 --> 00:17:24,736 with disabilities visible and a lot of 284 00:17:24,736 --> 00:17:28,212 invisible who are incarcerated and who have been 285 00:17:28,212 --> 00:17:35,200 caught up in that system of jailing and 286 00:17:35,200 --> 00:17:37,932 aren't getting what they need inside or 287 00:17:37,932 --> 00:17:40,708 should have never been incarcerated to 288 00:17:40,708 --> 00:17:43,374 begin with because maybe they experience 289 00:17:43,374 --> 00:17:46,730 a condition that was misunderstood from 290 00:17:46,730 --> 00:17:49,479 the outset and so instead of deescalating 291 00:17:49,479 --> 00:17:54,210 a situation. Police need more training, we 292 00:17:54,210 --> 00:17:57,039 need to make the public more aware of how 293 00:17:57,039 --> 00:18:01,377 many people are languishing in the 294 00:18:01,377 --> 00:18:04,460 institutions where they are not only not 295 00:18:04,460 --> 00:18:07,374 productive, but you know what a waste of 296 00:18:07,374 --> 00:18:10,613 human capital. So, as we think about 297 00:18:10,613 --> 00:18:12,434 the black lives matter movement and the 298 00:18:12,434 --> 00:18:19,432 opportunities for intersectionality, I 299 00:18:19,432 --> 00:18:22,464 think the opportunities for allies of all 300 00:18:22,464 --> 00:18:23,756 kinds of civil rights groups need to come 301 00:18:23,756 --> 00:18:25,376 together and really leverage their powers 302 00:18:25,376 --> 00:18:27,640 to begin to think about not necessarily 303 00:18:27,640 --> 99:59:59,999 just defunding police or the incarcerating 304 99:59:59,999 --> 99:59:59,999 institutions but recognizing how many 305 99:59:59,999 --> 99:59:59,999 people of color have disabilities, how many 306 99:59:59,999 --> 99:59:59,999 women are how many are incarcerated with 307 99:59:59,999 --> 99:59:59,999 disabilities that may not even belong there 308 99:59:59,999 --> 99:59:59,999 so there is so much to be done on those 309 99:59:59,999 --> 99:59:59,999 two funds alone. And, clearly employment 310 99:59:59,999 --> 99:59:59,999 people are still way under employed but I 311 99:59:59,999 --> 99:59:59,999 know there are folks working to improve 312 99:59:59,999 --> 99:59:59,999 that and I am trying to work with those 313 99:59:59,999 --> 99:59:59,999 organizations to araise awareness about 314 99:59:59,999 --> 99:59:59,999 how they can do better in terms of 315 99:59:59,999 --> 99:59:59,999 their work force and retaining and 316 99:59:59,999 --> 99:59:59,999 retaining and recruiting actively 317 99:59:59,999 --> 99:59:59,999 professionals who, you know, they may not 318 99:59:59,999 --> 99:59:59,999 consider as a valuable resource but gosh 319 99:59:59,999 --> 99:59:59,999 people with disabilities are so of the 320 99:59:59,999 --> 99:59:59,999 most creative folks because they have to 321 99:59:59,999 --> 99:59:59,999 figure out how navigate and they do have 322 99:59:59,999 --> 99:59:59,999 persepctives that are normally based on 323 99:59:59,999 --> 99:59:59,999 maybe their particular impairment experinces 324 99:59:59,999 --> 99:59:59,999 but having to navigate the world that 325 99:59:59,999 --> 99:59:59,999 isn't accessible, how to find the backdoor 326 99:59:59,999 --> 99:59:59,999 how to find the policies and so there is a 327 99:59:59,999 --> 99:59:59,999 lot of resilience to be found there, too. 328 99:59:59,999 --> 99:59:59,999 We need to be asking community members to 329 99:59:59,999 --> 99:59:59,999 confront ableism when they see it and part 330 99:59:59,999 --> 99:59:59,999 of that is educating people on the various 331 99:59:59,999 --> 99:59:59,999 forms that disability prejudice and discrimination can take. 332 99:59:59,999 --> 99:59:59,999 There is an interesting moment right now 333 99:59:59,999 --> 99:59:59,999 with regard to anti-racism frameworks 334 99:59:59,999 --> 99:59:59,999 that are getting a lot of traction and 335 99:59:59,999 --> 99:59:59,999 people are beginning to, at least educational institutions, 336 99:59:59,999 --> 99:59:59,999 start teaching circles where many of us 337 99:59:59,999 --> 99:59:59,999 are reading Ibram Kenids book how to be an 338 99:59:59,999 --> 99:59:59,999 anit-racist, how to first recognize when 339 99:59:59,999 --> 99:59:59,999 prejudice and discrimination exist on the 340 99:59:59,999 --> 99:59:59,999 bases of race, that we could also be doing 341 99:59:59,999 --> 99:59:59,999 with books related to disability prejudice 342 99:59:59,999 --> 99:59:59,999 and abilism but I really think the moment 343 99:59:59,999 --> 99:59:59,999 is now to consider some of the things at 344 99:59:59,999 --> 99:59:59,999 the same time because I think we may loose 345 99:59:59,999 --> 99:59:59,999 nuances of people who are confronting 346 99:59:59,999 --> 99:59:59,999 multiple oppressions. Though, I am just 347 99:59:59,999 --> 99:59:59,999 bringing that up because I know there is a 348 99:59:59,999 --> 99:59:59,999 lot of folks at my school now thinking 349 99:59:59,999 --> 99:59:59,999 about that we review policies to find out 350 99:59:59,999 --> 99:59:59,999 (...) discriminatory 351 99:59:59,999 --> 99:59:59,999 our policies for recruitment may have 352 99:59:59,999 --> 99:59:59,999 things embedded or cooked into the 353 99:59:59,999 --> 99:59:59,999 algorithms that are unintentionally 354 99:59:59,999 --> 99:59:59,999 excluding or failing to retain or promote 355 99:59:59,999 --> 99:59:59,999 those with disabilities at our institutions 356 99:59:59,999 --> 99:59:59,999 and so, when I think about the next steps 357 99:59:59,999 --> 99:59:59,999 what people can do I come back to, you know 358 99:59:59,999 --> 99:59:59,999 when people say something and they may 359 99:59:59,999 --> 99:59:59,999 just not know, they are not familiar 360 99:59:59,999 --> 99:59:59,999 perhaps with folks with various disabilities 361 99:59:59,999 --> 99:59:59,999 and we know that contact with people who 362 99:59:59,999 --> 99:59:59,999 experienced disabilities and differences 363 99:59:59,999 --> 99:59:59,999 is what makes people less prejudice 364 99:59:59,999 --> 99:59:59,999 because they come much more aware of the 365 99:59:59,999 --> 99:59:59,999 whole person and our stereotypes are not 366 99:59:59,999 --> 99:59:59,999 generalize-able and how if they listened 367 99:59:59,999 --> 99:59:59,999 to the voices of disabled people they can 368 99:59:59,999 --> 99:59:59,999 hear first hand what is problematic and 369 99:59:59,999 --> 99:59:59,999 we need to be doing by allowing folks with 370 99:59:59,999 --> 99:59:59,999 disabilities to speak, to be heard and 371 99:59:59,999 --> 99:59:59,999 then to support their agendas and not 372 99:59:59,999 --> 99:59:59,999 necessarily just take over. So, the confrontation 373 99:59:59,999 --> 99:59:59,999 literature is all about not necessarily 374 99:59:59,999 --> 99:59:59,999 saying: "Hey, you are a jerk. You just said 375 99:59:59,999 --> 99:59:59,999 something racist or ableist" and putting 376 99:59:59,999 --> 99:59:59,999 people on their defensive heels. That we 377 99:59:59,999 --> 99:59:59,999 can do this in ways that actually open up 378 99:59:59,999 --> 99:59:59,999 dialogues and that we should be 379 99:59:59,999 --> 99:59:59,999 encouraging difficult dialogues and brave 380 99:59:59,999 --> 99:59:59,999 conversations around what we can do 381 99:59:59,999 --> 99:59:59,999 locally in our houses, in our communities 382 99:59:59,999 --> 99:59:59,999 in our schools and organizations to make 383 99:59:59,999 --> 99:59:59,999 one change, to make one difference: to ask 384 99:59:59,999 --> 99:59:59,999 what is our policy, do we know whether all 385 99:59:59,999 --> 99:59:59,999 of our employees know what their rights 386 99:59:59,999 --> 99:59:59,999 are, should we be scheduling regular 387 99:59:59,999 --> 99:59:59,999 meetings with the ADA coordinator, do 388 99:59:59,999 --> 99:59:59,999 folks know how to find information and how 389 99:59:59,999 --> 99:59:59,999 to request a accommodation. Would it be 390 99:59:59,999 --> 99:59:59,999 great if parents went into an IEP Meeting 391 99:59:59,999 --> 99:59:59,999 at their schools, knowing what their kids 392 99:59:59,999 --> 99:59:59,999 got as accommodations. I think people are 393 99:59:59,999 --> 99:59:59,999 so non forthcoming at organizations with 394 99:59:59,999 --> 99:59:59,999 the things that they view as special privileges that are 395 99:59:59,999 --> 99:59:59,999 only for those who, quote on quote, need 396 99:59:59,999 --> 99:59:59,999 it or deserve it. And when we look at 397 99:59:59,999 --> 99:59:59,999 disability rights as special privileges, 398 99:59:59,999 --> 99:59:59,999 we don't see them as civil rights that are 399 99:59:59,999 --> 99:59:59,999 required to be met and so we could be much 400 99:59:59,999 --> 99:59:59,999 more transparent about making sure our 401 99:59:59,999 --> 99:59:59,999 websites are not only accessible to navigate 402 99:59:59,999 --> 99:59:59,999 if you have a sensory or other impairments 403 99:59:59,999 --> 99:59:59,999 but to make explicit what the policy is 404 99:59:59,999 --> 99:59:59,999 for requesting a accommodations, how you 405 99:59:59,999 --> 99:59:59,999 not be fired for disclosing for example 406 99:59:59,999 --> 99:59:59,999 how we can confront things in non-aggressive way. 407 99:59:59,999 --> 99:59:59,999 To ask people when they say something 408 99:59:59,999 --> 99:59:59,999 pejorative or maybe just outdated, you 409 99:59:59,999 --> 99:59:59,999 know, the word "handicap" is still out 410 99:59:59,999 --> 99:59:59,999 there i call it "handicrap", the word 411 99:59:59,999 --> 99:59:59,999 "special"' and we can just ask " what do 412 99:59:59,999 --> 99:59:59,999 you mean by that, what do you mean that 413 99:59:59,999 --> 99:59:59,999 they can't do that or that you curious 414 99:59:59,999 --> 99:59:59,999 about that they have sex, can you tell me 415 99:59:59,999 --> 99:59:59,999 more about why you think that and it can 416 99:59:59,999 --> 99:59:59,999 start a dialogue and that is something we 417 99:59:59,999 --> 99:59:59,999 can all do. I am still working hard to 418 99:59:59,999 --> 99:59:59,999 make my own home accessible to my 24 year 419 99:59:59,999 --> 99:59:59,999 old. We did construction to modify the 420 99:59:59,999 --> 99:59:59,999 house when we first bought it is a single 421 99:59:59,999 --> 99:59:59,999 level so that she feel like she was a part 422 99:59:59,999 --> 99:59:59,999 of the family and be able to get to all 423 99:59:59,999 --> 99:59:59,999 parts of the kitchen and her bathroom but 424 99:59:59,999 --> 99:59:59,999 there you know the laundry room has one 425 99:59:59,999 --> 99:59:59,999 step that we are still negotiating how to 426 99:59:59,999 --> 99:59:59,999 make sure that she can get into garage but 427 99:59:59,999 --> 99:59:59,999 things like where we put things in the 428 99:59:59,999 --> 99:59:59,999 refrigerator. You know if you have a 429 99:59:59,999 --> 99:59:59,999 wheelchair user in your family or someone 430 99:59:59,999 --> 99:59:59,999 who is a little person who may have a 431 99:59:59,999 --> 99:59:59,999 congenital or an otherwise amputated limb 432 99:59:59,999 --> 99:59:59,999 and we put things on shelves without even 433 99:59:59,999 --> 99:59:59,999 thinking about who can access the shelf 434 99:59:59,999 --> 99:59:59,999 and my other child who happens to be abled 435 99:59:59,999 --> 99:59:59,999 bodied would before dinner, you know, try 436 99:59:59,999 --> 99:59:59,999 to get a snack and before we could even 437 99:59:59,999 --> 99:59:59,999 say "no" he was out the door with the 438 99:59:59,999 --> 99:59:59,999 snack. My daughter would have to come in 439 99:59:59,999 --> 99:59:59,999 and say can I , can you get something of 440 99:59:59,999 --> 99:59:59,999 the top shelf from me and then we would 441 99:59:59,999 --> 99:59:59,999 say, you know, why don't you wait until 442 99:59:59,999 --> 99:59:59,999 dinner time and we have to be mindful 443 99:59:59,999 --> 99:59:59,999 about which drawers we want to put her 444 99:59:59,999 --> 99:59:59,999 things into. She can't feel like a second 445 99:59:59,999 --> 99:59:59,999 class citizen in her own family space and 446 99:59:59,999 --> 99:59:59,999 those are some things that we can remind 447 99:59:59,999 --> 99:59:59,999 our peers who have kids with disabilities 448 99:59:59,999 --> 99:59:59,999 as we try to go on and educated another 449 99:59:59,999 --> 99:59:59,999 parents in our parenting roles and our 450 99:59:59,999 --> 99:59:59,999 roles as educators and who are diversity 451 99:59:59,999 --> 99:59:59,999 committees. Our diversity committee now is 452 99:59:59,999 --> 99:59:59,999 taking on accessibility as part of our 453 99:59:59,999 --> 99:59:59,999 mental trying to convince others that we 454 99:59:59,999 --> 99:59:59,999 need to be doing ongoing data collection 455 99:59:59,999 --> 99:59:59,999 to benchmark, I think a lot of people are 456 99:59:59,999 --> 99:59:59,999 afraid of data that might say "your campus 457 99:59:59,999 --> 99:59:59,999 climate isn't the most accessible" but 458 99:59:59,999 --> 99:59:59,999 unless you name the thing, unless you document the thing 459 99:59:59,999 --> 99:59:59,999 that is perhaps of concern of a less then 460 99:59:59,999 --> 99:59:59,999 fully inclusive or accessible, you can't 461 99:59:59,999 --> 99:59:59,999 make progress. And, I think people 462 99:59:59,999 --> 99:59:59,999 appreciate, you know, the one in four 463 99:59:59,999 --> 99:59:59,999 or five people with disabilities and 464 99:59:59,999 --> 99:59:59,999 their families appreciate when people say 465 99:59:59,999 --> 99:59:59,999 "we are not there yet, but this is what we 466 99:59:59,999 --> 99:59:59,999 are doing and in a short term we will have 467 99:59:59,999 --> 99:59:59,999 reviewed our handbooks so that at least 468 99:59:59,999 --> 99:59:59,999 this is done by this year and next year we 469 99:59:59,999 --> 99:59:59,999 are going to advertise for positions in 470 99:59:59,999 --> 99:59:59,999 places to increase the number of disabled 471 99:59:59,999 --> 99:59:59,999 people on our staff, because students need 472 99:59:59,999 --> 99:59:59,999 mentors. They need to see people that look 473 99:59:59,999 --> 99:59:59,999 like them and then have similar challenges 474 99:59:59,999 --> 99:59:59,999 so that they know what is possible, so I 475 99:59:59,999 --> 99:59:59,999 just sort of conclude by saying my daughter, 476 99:59:59,999 --> 99:59:59,999 you know, made it through preschool and 477 99:59:59,999 --> 99:59:59,999 has been in several different kinds of 478 99:59:59,999 --> 99:59:59,999 spaces on college campuses that aren't so 479 99:59:59,999 --> 99:59:59,999 accessilble and that are. She is working 480 99:59:59,999 --> 99:59:59,999 in the education as a preschool teacher 481 99:59:59,999 --> 99:59:59,999 herself. But now since the covid-19 outbreak 482 99:59:59,999 --> 99:59:59,999 she was laid off, she was furloughed from 483 99:59:59,999 --> 99:59:59,999 her brand new job. And, of late she is 484 99:59:59,999 --> 99:59:59,999 putting resumes back out and there must be 485 99:59:59,999 --> 99:59:59,999 something about the pandemic now where not 486 99:59:59,999 --> 99:59:59,999 many people are wanting to go back to work 487 99:59:59,999 --> 99:59:59,999 in close encounters with kids. She is 488 99:59:59,999 --> 99:59:59,999 getting one interview after another and so 489 99:59:59,999 --> 99:59:59,999 she may end up with multiple offers now 490 99:59:59,999 --> 99:59:59,999 and I remind her to tell the folks that 491 99:59:59,999 --> 99:59:59,999 preschools when they get someone like her 492 99:59:59,999 --> 99:59:59,999 on their staff so many students gravited 493 99:59:59,999 --> 99:59:59,999 toward her because she has this visible signs 494 99:59:59,999 --> 99:59:59,999 of her disability, her wheelchair and if 495 99:59:59,999 --> 99:59:59,999 you can educate the youngs, the preschoolers and show them 496 99:59:59,999 --> 99:59:59,999 people of all abilities can be teachers 497 99:59:59,999 --> 99:59:59,999 and parents and ongoing learners, you know 498 99:59:59,999 --> 99:59:59,999 they tend to even those kids with behavior 499 99:59:59,999 --> 99:59:59,999 problems com to her. They see as this 500 99:59:59,999 --> 99:59:59,999 beacon of hope, I think, that is a real 501 99:59:59,999 --> 99:59:59,999 cue for employers who ever gets my 502 99:59:59,999 --> 99:59:59,999 daughter as a teacher is going to be lucky.