0:00:01.400,0:00:02.650 So, 0:00:02.760,0:00:04.560 My name is Michelle Nario - Redmond 0:00:04.680,0:00:06.320 I am a social psychologist and 0:00:06.370,0:00:08.380 teach at Hiram College 0:00:08.519,0:00:11.404 in psychology and biomedical[br]humanities program 0:00:11.437,0:00:15.727 and I just wrote a book on Abilism[br]the causes and consequences 0:00:15.727,0:00:18.967 of disability prejudice.[br]My first memory 0:00:18.967,0:00:21.267 and I'll just back up and say in 1990, 0:00:21.267,0:00:23.730 when the ADA passed [br]I was in graduate school, 0:00:25.099,0:00:33.134 in Kansas, and disability prejudice,[br]the ADA or anything 0:00:33.134,0:00:38.954 related to disability issues [br]were completely off my radar, 0:00:40.054,0:00:43.578 and I worked at a place [br]where one of the pioneers 0:00:43.578,0:00:46.756 of disability studies worked, [br]Beatrice Wright, 0:00:46.756,0:00:50.396 and I hadn't yet to have a class with her. 0:00:50.396,0:00:53.876 It really wasn't until 1995,[br]which was five years later, 0:00:53.876,0:00:58.566 when my daughter was born,[br]Sierra, with spina bifida, 0:00:58.566,0:01:03.394 that I became aware [br]of disability and found the work 0:01:03.394,0:01:08.862 of Carol Gill and Simi Litton[br]and began to educate myself 0:01:08.862,0:01:15.348 on disability studies and its scope,[br]and the first memory I have of 0:01:15.348,0:01:22.571 confronting inaccessible spaces[br]was a few years later, when we enrolled 0:01:22.571,0:01:26.520 my daughter Sierra in a preschool,[br]at a catholic preschool, 0:01:26.960,0:01:31.915 right down the road; and it just didn't[br]even dawn on me that we would have to 0:01:31.915,0:01:36.388 work so hard for her to be accommodated[br]as a preschooler, 0:01:36.472,0:01:41.209 and it was really a function of[br]the fact that the building was older, 0:01:41.252,0:01:47.109 there were steps, and they really didn't[br]know, nor did they need to legally know, 0:01:47.142,0:01:52.554 about reasonable accommodations [br]and civil rights of their students, 0:01:52.554,0:02:00.755 because they were a private facility and[br]weren't subject to the ADA's rules. 0:02:00.812,0:02:05.303 So... it became clear to me that [br]we needed to find a new preschool, 0:02:05.303,0:02:09.911 and luckily we found a private,[br]another private place. It wasn't 0:02:09.911,0:02:12.946 a public school, but it [br]was a music school settlement 0:02:12.946,0:02:16.407 and they had resources[br]and they were already operating 0:02:16.407,0:02:21.566 under a sort of set of presumptions[br]about the value of diversity 0:02:21.566,0:02:26.928 and diverse perspectives,[br]and we didn't really have to ask for much, 0:02:26.928,0:02:31.654 because they bent over backwards[br]to include my daughter 0:02:31.654,0:02:37.356 in a typical classroom, with her peers,[br]her preschool peers, music classes, 0:02:37.356,0:02:41.947 there were so many eclectic[br]movement classes, 0:02:41.947,0:02:48.049 and they even purchased[br]equipment for their exercise room 0:02:48.049,0:02:52.868 and movement room[br]that would be useful to her among others, 0:02:52.868,0:02:58.063 and she has since grown up to become[br]this teacher and has applied 0:02:58.063,0:03:01.595 to work there as a preschool teacher.[br]So, I think it would be really 0:03:01.595,0:03:08.320 amazing, if she came full circle. [br]But, I guess, to stance the broader 0:03:08.320,0:03:14.915 question about being frustrated and aware [br]of inaccessibility and lack of inclusion, 0:03:14.915,0:03:21.512 we were in a district that, when she then,[br]was about to move to preschool, I 0:03:21.512,0:03:27.059 knew that she wouldn't probably be able to[br]go to a private school, not only because 0:03:27.059,0:03:31.585 of the financial cost, but because [br]they would not have to think about 0:03:31.585,0:03:35.981 best practices and the law when[br]it came to accommodating 0:03:35.981,0:03:39.133 their students with disabilities,[br]and so I knew we would be 0:03:39.133,0:03:43.971 looking at the public school,and the [br]public school in our neighborhood 0:03:43.971,0:03:49.384 was not accessible. We went to visit it,[br]the playground had a little house 0:03:49.384,0:03:52.254 that she wouldn't have been [br]able to get into, 0:03:52.254,0:03:55.876 and it was really disheartening[br]and so it came at a time 0:03:55.876,0:03:58.393 when we were already looking[br]for other opportunities, 0:03:58.393,0:04:01.573 and my husband got an opportunity[br]to move us as a family 0:04:01.573,0:04:04.079 to the West Coast[br]of Portland of Oregon, 0:04:04.079,0:04:10.507 so the way I...we had to[br]navigate her early educational experiences 0:04:10.574,0:04:17.591 was to only look at spaces and schools[br]that were in districts that were new, 0:04:17.591,0:04:23.109 so that had buildings [br]and had training in terms of 0:04:23.178,0:04:26.369 accommodating their diverse students[br]and their disabled students, 0:04:26.369,0:04:31.262 because just having the brief experiences[br]that I did with the preschool 0:04:31.319,0:04:38.810 and IEP meetings that were going to[br]require me to fight at every juncture 0:04:38.868,0:04:42.941 for her basic rights [br]to show what she knows 0:04:42.976,0:04:47.312 and participate and recognize herself[br]as a valuable contributor 0:04:47.360,0:04:50.910 to the school community.[br]We're not going to be forthcoming 0:04:50.943,0:04:54.411 without a fight, [br]and so we narrowed our search 0:04:54.454,0:04:57.194 to a district,[br]and thank God we had the opportunity 0:04:57.221,0:05:02.445 and the resources to do this,[br]that was pretty known for their 0:05:02.513,0:05:04.012 inclusivity. 0:05:04.095,0:05:07.731 We did that also when we came back [br]to the Cleveland, Ohio area. 0:05:07.806,0:05:12.412 We were able to avoid all districts[br]that weren't at the cutting edge 0:05:12.412,0:05:16.514 of full inclusion and proof of excellence[br]and had newer buildings 0:05:16.514,0:05:19.623 that could accommodate those [br]with disabilities, 0:05:19.623,0:05:25.867 but I guess that that was my earliest[br]memory of how, 'Oh, we have a road 0:05:25.867,0:05:32.468 ahead of us and we have to take it upon[br]ourselves to either continue to fight 0:05:32.468,0:05:40.316 battles that had already been won, [br]legislatively or find spaces, places 0:05:40.379,0:05:42.982 and organizations that were ahead[br]of the curve 0:05:42.982,0:05:50.434 in terms of implementing, monitoring and [br]just execute the basic civil rights 0:05:50.484,0:05:53.618 of their various constituents 0:05:53.736,0:05:58.568 The impact that all of that has had on me [br]is to just be able to communicate 0:05:58.640,0:06:02.284 with other parents and students [br]with disabilities 0:06:02.334,0:06:09.035 about not only knowing their rights but[br]knowing how to get those rights 0:06:09.086,0:06:18.638 how to advocate for ensuring that those [br]rights are addressed, are met. 0:06:18.638,0:06:21.139 I think the ADA has made [br]a huge difference 0:06:21.202,0:06:24.755 and the aha moment was even when I was[br]collating information for this book 0:06:24.807,0:06:28.922 on disability prejudice. I realised that [br]when I was a kid, 0:06:28.956,0:06:33.641 when I was growing up in the 60s and 70s, [br]people with disabilities weren't able to 0:06:33.693,0:06:39.357 do any of the things that we took for [br]granted as kids: go to the movies 0:06:39.432,0:06:44.474 go to restaurants, go to visit a friend,[br]at a friend's house, or invite 0:06:44.546,0:06:47.559 others to your birthday parties. 0:06:47.559,0:06:54.992 And, since the ADA passed in 1990, [br]it wasn't an immediate set of changes, 0:06:55.011,0:07:01.662 as, you know, there has been significant[br]progress made, particularly in public 0:07:01.662,0:07:07.910 spaces and in employment settings, [br]where there are even employers 0:07:07.959,0:07:13.827 who are part of an organization [br]of inclusive excellence, who 0:07:13.876,0:07:18.677 recognize that disabled employees are [br]actually more reliable and 0:07:18.724,0:07:23.145 have less turnover and are worth[br]investing in and promoting. 0:07:23.229,0:07:28.810 But, there are still so many places, [br]small businesses, educational institutions 0:07:28.937,0:07:40.893 that are not carrying out the basic, [br]sort of gains and practices that the ADA 0:07:40.893,0:07:45.131 has made possible .There's just way too [br]much variation, and I think part of that 0:07:45.232,0:07:48.983 is just a lack of education in [br]terms of what 0:07:49.135,0:07:54.635 is reasonable and what is necessary 0:07:54.711,0:07:56.933 in terms of accommodating your citizenry 0:07:57.008,0:08:01.185 and lack of resources in some cases but 0:08:01.260,0:08:03.633 also a lot of misinformation about whether 0:08:03.734,0:08:08.236 or not it's worth it. The ADA is going to 0:08:08.293,0:08:12.462 be 30 here in July. We're celebrating all 0:08:12.544,0:08:15.543 over the country and we are still fighting 0:08:15.638,0:08:19.813 for businesses to do what they should have 0:08:19.914,0:08:22.316 done 30 years ago, those that have been 0:08:22.392,0:08:25.493 around this long. They have not, they have 0:08:25.563,0:08:27.769 have waited for complaints or they have 0:08:27.846,0:08:31.416 failed to do but the bare minimum in 0:08:31.466,0:08:34.871 terms of recruiting the largest minority 0:08:34.922,0:08:37.693 I work in the education sphere and to me, 0:08:37.792,0:08:40.220 we could be doing so much more with 0:08:40.318,0:08:42.820 advertising and recruiting for those kinds 0:08:42.943,0:08:45.621 of students that we tend to really, at 0:08:45.697,0:08:49.244 least my institution, do well to retain 0:08:49.395,0:08:52.944 because we're a small, intimate college, 0:08:53.019,0:08:55.847 Hiram College. And, and for [br]years I've tried to 0:08:55.922,0:08:59.624 encourage us to consider more universally 0:08:59.723,0:09:02.348 designed approaches, but also approaches 0:09:02.451,0:09:06.949 that do more than the bare minimum[br]when it comes to housing and 0:09:07.022,0:09:09.600 extracurricular accommodations for 0:09:09.678,0:09:12.398 students to who use mobility devices. For 0:09:12.525,0:09:15.424 example, my daughter ended up having to be 0:09:15.577,0:09:18.251 carried in her chair, to various club 0:09:18.449,0:09:20.556 meetings while she was on the Hiram 0:09:20.653,0:09:24.503 College campus. She was told that, [br]during the 0:09:24.554,0:09:28.102 winter, when the ice storms came, that 0:09:28.141,0:09:31.767 they couldn't transport her up the long 0:09:31.767,0:09:33.617 hill, while they were[br]telling everyone 0:09:33.617,0:09:37.324 else to walk like a penguin, and we had 0:09:37.324,0:09:41.271 vans to do this. We had to file with the 0:09:41.271,0:09:45.332 Ohio Disability Rights Commission and 0:09:45.408,0:09:48.242 request that the school thinks about other 0:09:48.242,0:09:50.506 ways of accommodating her, should there 0:09:50.506,0:09:52.558 be a storm, an ice storm, and she can't 0:09:52.633,0:09:55.177 get up to campus.[br]And the solution 0:09:55.177,0:09:57.787 was to have her move to a[br]new dorm. 0:09:57.787,0:10:00.012 You can't just do that over night. 0:10:00.012,0:10:01.862 You can't just move all your bedding 0:10:01.862,0:10:04.233 and all your bathroom supplies 0:10:04.233,0:10:06.877 and your whole... you know at the moment's 0:10:06.877,0:10:09.465 notice, when the weather changes 0:10:09.465,0:10:11.445 and so it has been my experience that 0:10:11.445,0:10:15.474 still a lot of places have done[br]the bare minimum approach 0:10:15.364,0:10:17.815 and think that that's all they need to do 0:10:17.822,0:10:22.162 when instead, they could be following more 0:10:22.162,0:10:26.022 of the latest practices and [br]implementation's science 0:10:26.022,0:10:29.142 and making it easier for people to 0:10:29.142,0:10:31.719 register concerns or complaints. And 0:10:31.719,0:10:34.389 they often don't even need to file a 0:10:34.389,0:10:36.930 formal complaint issue, if you [br]approach a business or 0:10:36.930,0:10:39.856 your educational institution [br]with an issue. 0:10:39.856,0:10:45.231 Often times, progressive thinkers that [br]recognize the value of 0:10:45.231,0:10:49.191 customers with disabilities frequenting[br]their businesses or 0:10:49.155,0:10:52.056 diversifying their faculty or their[br]student body 0:10:52.056,0:11:00.839 will simply not be aware that they have[br]failed to accommodate or 0:11:00.839,0:11:05.113 make accessible various programs[br]and spaces. 0:11:05.113,0:11:09.378 And that can be as simple as asking.[br]But a lot of times a lot more 0:11:09.378,0:11:12.150 has to be done, you have to document[br]you have 0:11:12.150,0:11:14.909 to make sure your emails go to[br]multiple people 0:11:14.909,0:11:21.332 and make the business case of why [br]surveying your policies 0:11:21.332,0:11:23.933 to see whether they are biases or whether 0:11:23.933,9:59:59.000 there is discrimination in filing of 9:59:59.000,9:59:59.000 complaints or even you have a title 9:59:59.000,9:59:59.000 of, you know, a (...) officer on campus[br]or (...) cooridnator 9:59:59.000,9:59:59.000 so that you can let students[br]with disabilities know 9:59:59.000,9:59:59.000 who may have not proper documentation 9:59:59.000,9:59:59.000 how they can go about making sure that 9:59:59.000,9:59:59.000 they get what they need to show 9:59:59.000,9:59:59.000 what they know, before they fail classes 9:59:59.000,9:59:59.000 because they haven't knocked at the door 9:59:59.000,9:59:59.000 of disability services and provided proof 9:59:59.000,9:59:59.000 that they have a particular condition 9:59:59.000,9:59:59.000 So I know, I am sort of rambling a bit, 9:59:59.000,9:59:59.000 but I just, just wasn't aware of how much 9:59:59.000,9:59:59.000 further we need to go when it comes to 9:59:59.000,9:59:59.000 surveying and making sure that the ADA 9:59:59.000,9:59:59.000 is being implemented and just because 9:59:59.000,9:59:59.000 a law passes doesn't mean again 9:59:59.000,9:59:59.000 that it is just going to happen 9:59:59.000,9:59:59.000 you have to have allies and acitivists 9:59:59.000,9:59:59.000 and insiders working very hard 9:59:59.000,9:59:59.000 to make sure that people are recognizing 9:59:59.000,9:59:59.000 the value of legislation 9:59:59.000,9:59:59.000 which I think, still people are under 9:59:59.000,9:59:59.000 the assumption that it applies to 9:59:59.000,9:59:59.000 people who identify with disabilities but 9:59:59.000,9:59:59.000 I don't think that was even neccesserely 9:59:59.000,9:59:59.000 even the intent of the ADA 9:59:59.000,9:59:59.000 I think it recognizes that people flow 9:59:59.000,9:59:59.000 in and out of abilities and the extent to 9:59:59.000,9:59:59.000 which they are excluded or discriminated 9:59:59.000,9:59:59.000 against, because of their abilities is 9:59:59.000,9:59:59.000 really what this legislation was about 9:59:59.000,9:59:59.000 even having a record of having a 9:59:59.000,9:59:59.000 condition that maybe you no longer have 9:59:59.000,9:59:59.000 or you had it temporarily can mean that 9:59:59.000,9:59:59.000 you might be excluded. If you applied for 9:59:59.000,9:59:59.000 jobs recently, you know, many places 9:59:59.000,9:59:59.000 require a statement. You have to indicate 9:59:59.000,9:59:59.000 based of strict definitions whether you 9:59:59.000,9:59:59.000 have limitations in these major life 9:59:59.000,9:59:59.000 activities that will qualify you as a 9:59:59.000,9:59:59.000 disabled person and I want to believe that 9:59:59.000,9:59:59.000 they are asking these questions, so that 9:59:59.000,9:59:59.000 they can mindfully recruit people with 9:59:59.000,9:59:59.000 disabilities joining their ranks, their 9:59:59.000,9:59:59.000 staffing, but sometimes I think what 9:59:59.000,9:59:59.000 prevents people from using that 9:59:59.000,9:59:59.000 information to disqualify candidates 9:59:59.000,9:59:59.000 so there has to be checks and balances 9:59:59.000,9:59:59.000 and accountabilities when it comes to 9:59:59.000,9:59:59.000 making sure your civil rights legislation 9:59:59.000,9:59:59.000 doesn't put all of the owners on the 9:59:59.000,9:59:59.000 group itself to file and follow through 9:59:59.000,9:59:59.000 and figure out which parts of the ADA are 9:59:59.000,9:59:59.000 being violated. You know that can be 9:59:59.000,9:59:59.000 really discouraging when all you want to 9:59:59.000,9:59:59.000 do is go out and you know, go to the beach 9:59:59.000,9:59:59.000 and find out which beaches are accessible 9:59:59.000,9:59:59.000 or whether there is, you know, a mobility 9:59:59.000,9:59:59.000 devices that are availible via the sand or 9:59:59.000,9:59:59.000 you just want to go camping or you just 9:59:59.000,9:59:59.000 want to go frequent people who are 9:59:59.000,9:59:59.000 minorities on businesses or disabilities 9:59:59.000,9:59:59.000 on businesses and some of this is out 9:59:59.000,9:59:59.000 there and I tried to promote it through 9:59:59.000,9:59:59.000 books and activists pages, but there is so 9:59:59.000,9:59:59.000 much that we can do to leverage more of 9:59:59.000,9:59:59.000 these ways of monitoring and implementing 9:59:59.000,9:59:59.000 taking access to the next level whether 9:59:59.000,9:59:59.000 for the disabled community pro forma or 9:59:59.000,9:59:59.000 proper or for anyone who uses strollers 9:59:59.000,9:59:59.000 who might carry a lot of materials in 9:59:59.000,9:59:59.000 their hands could benefit from a push 9:59:59.000,9:59:59.000 button. I think we need all to make a 9:59:59.000,9:59:59.000 better job