So,
My name is Michelle .....
I am a social psychologist and
teach at .......... College
in psychology and biomedical
humanities program
and I just wrote a book on Abilism
the causes and consequences
of disability prejudice.
My first memory
and I'll just back up and say in 1990,
when the ADA passed
I was in graduate school,
in Kansas, and disability prejudice,
the ADA or anything
related to disability issues
were completely off my radar,
and I worked at a place
where one of the pioneers
of disability studies worked,
Beatrice Wright,
and I had yet to have a class with her.
It really wasn't until 1995,
which was five years later,
when my daughter was born,
Sierra, with spina bifoda,
that I became aware
of disability and found the work
of Carol Gill and Simi Litton
and began to educate myself
on disability studies and its scope,
and the first memory I have of
confronting inaccessible spaces
was a few years later, when we enrolled
my daughter Sierra in a preschool,
at a Catholic preschool,
right down the road; and it just didn't
even dawn on me that we would have to
work so hard for her to be accommodated
as a preschooler,
and it was really a function of
the fact that the building was older,
there were steps, and they really didn't
know, nor did they need to legally know,
about reasonable accommodations
and civil rights of their students,
because they were a private facility and
weren't subject to the ADA's rules.
So it became clear to me that we needed
to find a new preschool, and luckily
we found another private place -
it wasn't a public school -
but it was a music school settlement
and they had resources
and they were already operating
under a sort of set of presumptions
about the value of diversity
and diverse perspectives,
and we didn't really have to ask for much,
because they bent over backwards
to include my daughter
in a typical classroom, with her peers,
her preschool peers, music classes,
there were so many eclectic--
movement classes, and they even
purchased equipment
for their exercise room and movement room
that would be useful to her among others,
and she has since grown up to become this teacher
and has applied to work there
as a preschool teacher, so I think
it would be really amazing
if she came full circle, but I guess
to answer the broader question
about being frustrated and aware of
inaccessibility and lack of inclusion,
we were in a district that, when she then
was about to move to preschool,
I knew that she probably wouldn't be
able to go to a private school,
not only because of the financial cost
but also because they would not have to
think about best practices
and the law when it came to
accommodating their
students with disabilities,
and so I knew we would be
looking at the public school,
and the public school in our neigbourhood
was not accessible.
We went to visit it,
the playground had a little house
that she wouldn't have been
able to get into,
and it was really disheartening
and so it came at a time
when we were already
looking for other opportunities,
and my husband got an opportunity
to move us as a family
to the West Coast
of Portland of Oregon,
so the way I-- so the way we had to
navigate her early educational experiences
was to only look at spaces and schools
that were in districts that were new,
so that had buildings
and had training in terms of
accommodating their diverse students
and their disabled students,
because just having the brief experiences
that I did with the preschool
and IEP meetings that were going to
require me to fight at every juncture
for her basic rights
to show what she knows
and participate and recognize herself
as a valuable contributor
to the school community.
We're not going to be forthcoming
without a fight,
and so we narrowed our search
to a district,
and thank God we had the opportunity
and the resources to do this,
that was pretty known for their
inclusivity.
We did that also when we came back
to the Cleveland, Ohio area.
We were able to avoid all districts
that weren't at the cutting edge
of full inclusion and proof of excellence
and had newer buildings
that could accommodate those
with disabilities,
but I guess that that was my earliest
memory of how, 'Oh, we have a road
ahead of us and we have to take it upon
ourselves to either continue to fight
battles that had already been won,
legislatively, or, finds spaces, places
and organizations that were ahead
of the curve
in terms of implementing, monitoring and
just execute the basic civil rights
of their various constituents
The impact that all of that has had on me
is to just be able to communicate
with other parents and students
with disabilities
about not only knowing their rights but
knowing how to get those rights
how to advocate for ensuring that those
rights are addressed, are met.
I think the ADA has made
a huge difference
and the 'ah ha' moment was even when I was
collating information for this book
on disability prejudice, I realised that
when I was a kid,
when I was growing up in the 60s and 70s,
people with disabilities weren't able to
do any of the things that we took for
granted as kids- go to the movies
go to restaurants, go to visit a friend,
at a friend's house, or invite
others to your birthday parties.
Since the ADA passed in 1990, it wasn't
an immediate set of changes,
as, there has been significant progress
made, particularly in public spaces
and in employment settings, where there
are even employers
who are part of an organization
of inclusive excellence, who
recognize that disabled employees are
actually more reliable and
have less turnover and are worth
investing in and promoting.
But, there are still so many places,
small businesses, educational institutions
that are not carrying out basic gains and
practices that the ADA has made possible
there's just way too much variation,
and I think part of that
is just a lack of education in terms what
is reasonable and what is necessary
in terms of accommodating your citizenry
and lack of resources in some cases but
also a lot of misinformation about whether
or not it's worth it. The ADA is going to
be 30 here in July. We're celebrating all
over the country and we are still fighting
for businesses to do what they should have
done 30 years ago, those that have been
around this long. They have not, they have
have waited for complaints or they have
failed to do but the bare minimum in
terms of recruiting the largest minority
I work in the education sphere and to me,
we could be doing so much more with
advertising and recruiting for those kinds
of students that we tend to really, at
least my institution, do well to retain
because we're a small, intimate college
Hiram College. For years I've tried to
encourage us to consider more universally
designed approaches but also approaches
that do more when it comes to housing and
extracurricular accommodations for
students to who use mobility devices. For
example, my daughter ended up having to be
carried in her chair, to various club
meetings while she was on the Hiram
College campus. She was told that,
during the
winter, when the ice storms came, that
they couldn't transport her up the long
hill, while they were
telling everyone
else to walk like a penguin, and we had
vans to do this. We had to file with the
Ohio Disability Rights Commission and
request that the school thinks about other
ways of accommodating her should there
be a storm, an ice storm, and she can't
get up to campus.
And the solution
was to have her move to a
new dorm.
You can't just do that over night.
You can't just move all your bedding
and all your bathroom supplies
and your whole... you know at the moment's
notice, when the weather changes
and so it has been my experience that
still a lot of places have done
the bare minimum approach
and think that that's all they need to do
when instead, they could be following more
of the latest practices and
implementation's science
and making it easier for people to register
register concerns or complaints.