1 00:00:00,655 --> 00:00:02,278 A few years ago, 2 00:00:02,302 --> 00:00:06,025 I was taking care of a woman who was a victim of violence. 3 00:00:06,654 --> 00:00:11,826 I wanted her to be seen in a clinic that specialized in trauma survivors. 4 00:00:12,431 --> 00:00:17,271 I made the appointment myself because, being the director of the department, 5 00:00:17,295 --> 00:00:18,757 I knew if I did it, 6 00:00:18,781 --> 00:00:21,197 she would get an appointment right away. 7 00:00:21,886 --> 00:00:25,799 The clinic was about an hour and a half away from where she lived. 8 00:00:25,823 --> 00:00:29,254 But she took down the address and agreed to go. 9 00:00:30,794 --> 00:00:34,247 Unfortunately, she didn't make it to the clinic. 10 00:00:35,339 --> 00:00:39,633 When I spoke to the psychiatrist, he explained to me 11 00:00:39,657 --> 00:00:43,023 that trauma survivors are often resistant 12 00:00:43,047 --> 00:00:45,874 to dealing with the difficult issues that they face 13 00:00:45,898 --> 00:00:47,781 and often miss appointments. 14 00:00:48,298 --> 00:00:49,480 For this reason, 15 00:00:49,504 --> 00:00:54,361 they don't generally allow the doctors to make appointments for the patients. 16 00:00:54,892 --> 00:00:57,550 They had made a special exception for me. 17 00:00:58,409 --> 00:01:00,538 When I spoke to my patient, 18 00:01:00,562 --> 00:01:04,607 she had a much simpler and less Freudian explanation 19 00:01:04,631 --> 00:01:06,961 of why she didn't go to that appointment: 20 00:01:07,714 --> 00:01:09,236 her ride didn't show. 21 00:01:10,996 --> 00:01:13,143 Now, some of you may be thinking, 22 00:01:13,167 --> 00:01:16,885 "Didn't she have some other way of getting to that clinic appointment?" 23 00:01:17,347 --> 00:01:21,602 Couldn't she have taken an Uber or called another friend? 24 00:01:22,327 --> 00:01:23,767 If you're thinking that, 25 00:01:23,791 --> 00:01:26,795 it's probably because you have resources. 26 00:01:27,385 --> 00:01:30,514 But she didn't have enough money for an Uber, 27 00:01:30,538 --> 00:01:33,183 and she didn't have another friend to call. 28 00:01:33,858 --> 00:01:35,570 But she did have me, 29 00:01:35,594 --> 00:01:38,599 and I was able to get her another appointment, 30 00:01:38,623 --> 00:01:40,953 which she kept without difficulty. 31 00:01:41,650 --> 00:01:43,337 She wasn't resistant, 32 00:01:43,361 --> 00:01:45,201 it's just that her ride didn't show. 33 00:01:46,669 --> 00:01:50,588 I wish I could say that this was an isolated incident, 34 00:01:50,612 --> 00:01:53,638 but I know from running the safety net systems 35 00:01:53,662 --> 00:01:58,247 in San Francisco, Los Angeles, and now New York City, 36 00:01:59,181 --> 00:02:02,779 that health care is built on a middle-class model 37 00:02:02,803 --> 00:02:07,086 that often doesn't meet the needs of low-income patients. 38 00:02:07,807 --> 00:02:11,842 That's one of the reasons why it's been so difficult 39 00:02:11,866 --> 00:02:15,509 for us to close the disparity in health care 40 00:02:15,533 --> 00:02:18,929 that exists along economic lines, 41 00:02:18,953 --> 00:02:22,600 despite the expansion of health insurance 42 00:02:22,624 --> 00:02:25,991 under the ACA, or Obamacare. 43 00:02:26,908 --> 00:02:29,241 Health care in the United States 44 00:02:29,265 --> 00:02:36,206 assumes that, besides getting across the large land expanse of Los Angeles, 45 00:02:37,390 --> 00:02:40,222 it also assumes that you can take off from work 46 00:02:40,246 --> 00:02:42,706 in the middle of the day to get care. 47 00:02:43,434 --> 00:02:47,714 One of the patients who came to my East Los Angeles clinic 48 00:02:47,738 --> 00:02:49,960 on a Thursday afternoon 49 00:02:49,984 --> 00:02:54,754 presented with partial blindness in both eyes. 50 00:02:55,449 --> 00:02:57,570 Very concerned, I said to him, 51 00:02:57,594 --> 00:02:59,172 "When did this develop?" 52 00:02:59,952 --> 00:03:01,584 He said, "Sunday." 53 00:03:02,457 --> 00:03:03,928 I said, "Sunday? 54 00:03:03,952 --> 00:03:06,806 Did you think of coming sooner to clinic?" 55 00:03:07,326 --> 00:03:10,513 And he said, "Well, I have to work in order to pay the rent." 56 00:03:11,598 --> 00:03:14,261 A second patient to that same clinic, 57 00:03:14,285 --> 00:03:15,734 a trucker, 58 00:03:15,758 --> 00:03:19,455 drove three days with a raging infection, 59 00:03:19,479 --> 00:03:23,797 only coming to see me after he had delivered his merchandise. 60 00:03:24,487 --> 00:03:30,829 Both patients' care was jeopardized by their delays in seeking care. 61 00:03:31,839 --> 00:03:35,448 Health care in the United States assumes that you speak English 62 00:03:35,472 --> 00:03:38,596 or can bring someone with you who can. 63 00:03:39,160 --> 00:03:44,005 In San Francisco, I took care of a patient on the inpatient service 64 00:03:44,029 --> 00:03:49,159 who was from West Africa and spoke a dialect so unusual 65 00:03:49,183 --> 00:03:54,741 that we could only find one translator on the telephonic line 66 00:03:54,765 --> 00:03:56,584 who could understand him. 67 00:03:56,608 --> 00:03:59,796 And that translator only worked one afternoon a week. 68 00:04:00,695 --> 00:04:05,428 Unfortunately, my patient needed translation services every day. 69 00:04:06,526 --> 00:04:09,948 Health care in the United States assumes that you are literate. 70 00:04:10,476 --> 00:04:15,693 I learned that a patient of mine who spoke English without accent 71 00:04:15,717 --> 00:04:17,225 was illiterate, 72 00:04:17,249 --> 00:04:22,934 when he asked me to please sign a social security disability form for him 73 00:04:22,958 --> 00:04:24,274 right away. 74 00:04:24,298 --> 00:04:27,591 The form needed to go to the office that same day, 75 00:04:27,615 --> 00:04:29,502 and I wasn't in clinic, 76 00:04:29,526 --> 00:04:31,104 so trying to help him out, 77 00:04:31,128 --> 00:04:34,885 knowing that he was the sole caretaker of his son, 78 00:04:34,909 --> 00:04:39,130 I said, "Well, bring the form to my administrative office. 79 00:04:39,154 --> 00:04:42,060 I'll sign it and I'll fax it in for you." 80 00:04:42,084 --> 00:04:44,579 He took the two buses to my office, 81 00:04:44,603 --> 00:04:46,759 dropped off the form, 82 00:04:46,783 --> 00:04:49,149 went back home to take care of his son ... 83 00:04:49,173 --> 00:04:54,597 I got to the office, and what did I find next to the big "X" on the form? 84 00:04:54,621 --> 00:04:56,053 The word "applicant." 85 00:04:57,561 --> 00:04:59,225 He needed to sign the form. 86 00:05:00,255 --> 00:05:03,707 And so now I had to have him take the two buses back to the office 87 00:05:03,731 --> 00:05:08,556 and sign the form so that we could then fax it in for him. 88 00:05:08,580 --> 00:05:10,748 It completely changed how I took care of him. 89 00:05:10,772 --> 00:05:15,731 I made sure that I always went over instructions verbally with him. 90 00:05:17,096 --> 00:05:19,946 It also made me think about all of the patients 91 00:05:19,970 --> 00:05:23,271 who receive reams and reams of paper 92 00:05:23,295 --> 00:05:27,348 spit out by our modern electronic health record systems, 93 00:05:27,372 --> 00:05:30,005 explaining their diagnoses and their treatments, 94 00:05:30,029 --> 00:05:32,951 and wondering how many people actually can understand 95 00:05:32,975 --> 00:05:35,170 what's on those pieces of paper. 96 00:05:35,954 --> 00:05:40,555 Health care in the United States assumes that you have a working telephone 97 00:05:40,579 --> 00:05:42,186 and an accurate address. 98 00:05:42,781 --> 00:05:46,132 The proliferation of inexpensive cell phones 99 00:05:46,156 --> 00:05:48,011 has actually helped quite a lot. 100 00:05:48,377 --> 00:05:51,383 But still, my patients run out of minutes, 101 00:05:51,407 --> 00:05:53,655 and their phones get disconnected. 102 00:05:54,918 --> 00:05:59,341 Low-income people often have to move around a lot by necessity. 103 00:05:59,365 --> 00:06:05,396 I remember reviewing a chart of a woman with an abnormality on her mammogram. 104 00:06:05,850 --> 00:06:11,335 That chart assiduously documents that three letters were sent to her home, 105 00:06:11,359 --> 00:06:14,418 asking her to please come in for follow-up. 106 00:06:15,127 --> 00:06:17,373 Of course, if the address isn't accurate, 107 00:06:17,397 --> 00:06:21,818 it doesn't much matter how many letters you send to that same address. 108 00:06:23,397 --> 00:06:28,414 Health care in the United States assumes that you have a steady supply of food. 109 00:06:29,035 --> 00:06:32,183 This is particularly an issue for diabetics. 110 00:06:32,591 --> 00:06:35,783 We give them medications that lower their blood sugar. 111 00:06:36,388 --> 00:06:38,994 On days when they don't have enough food, 112 00:06:39,018 --> 00:06:42,787 it puts them at risk for a life-threatening side effect 113 00:06:42,811 --> 00:06:45,786 of hypoglycemia, or low blood sugar. 114 00:06:46,935 --> 00:06:50,189 Health care in the United States assumes that you have a home 115 00:06:50,213 --> 00:06:52,690 with a refrigerator for your insulin, 116 00:06:52,714 --> 00:06:55,353 a bathroom where you can wash up, 117 00:06:55,377 --> 00:06:57,379 a bed where you can sleep 118 00:06:57,403 --> 00:07:01,692 without worrying about violence while you're resting. 119 00:07:02,385 --> 00:07:04,058 But what if you don't have that? 120 00:07:04,692 --> 00:07:06,928 What if you live on the street, 121 00:07:06,952 --> 00:07:09,205 you live under the freeway, 122 00:07:09,229 --> 00:07:11,520 you live in a congregant shelter, 123 00:07:11,544 --> 00:07:15,469 where every morning you have to leave at 7 or 8am? 124 00:07:16,029 --> 00:07:18,103 Where do you store your medicines? 125 00:07:20,851 --> 00:07:22,617 Where do you use the bathroom? 126 00:07:24,209 --> 00:07:28,389 How do you put your legs up if you have congestive heart failure? 127 00:07:29,056 --> 00:07:35,369 Is it any wonder that providing people with health insurance who are homeless 128 00:07:35,393 --> 00:07:38,425 does not erase the huge disparity 129 00:07:38,449 --> 00:07:40,825 between the homeless and the housed? 130 00:07:41,862 --> 00:07:47,427 Health care in the United States assumes that you prioritize your health care. 131 00:07:47,974 --> 00:07:49,657 But what about all of you? 132 00:07:50,467 --> 00:07:54,717 Let me assume for a moment that you're all taking a medication. 133 00:07:54,741 --> 00:07:56,974 Maybe it's for high blood pressure. 134 00:07:56,998 --> 00:08:00,186 Maybe it's for diabetes or depression. 135 00:08:01,272 --> 00:08:03,713 What if tonight you had a choice: 136 00:08:04,626 --> 00:08:09,182 you could have your medication but live on the street, 137 00:08:10,507 --> 00:08:15,910 or you could be housed in your home but not have your medication. 138 00:08:17,879 --> 00:08:19,376 Which would you choose? 139 00:08:21,289 --> 00:08:23,086 I know which one I would choose. 140 00:08:24,538 --> 00:08:28,634 This is just a graphic example of the kinds of choices 141 00:08:28,658 --> 00:08:31,770 that low-income patients have to make every day. 142 00:08:32,418 --> 00:08:35,344 So when my doctors shake their heads and say, 143 00:08:35,368 --> 00:08:39,955 "I don't know why that patient didn't keep his follow-up appointments," 144 00:08:40,549 --> 00:08:45,442 "I don't know why she didn't go for that exam that I ordered," 145 00:08:45,466 --> 00:08:49,147 I think, well, maybe her ride didn't show, 146 00:08:49,171 --> 00:08:50,940 or maybe he had to work. 147 00:08:51,509 --> 00:08:57,366 But also, maybe there was something more important that day 148 00:08:57,390 --> 00:09:01,207 than their high blood pressure or a screening colonoscopy. 149 00:09:01,873 --> 00:09:05,274 Maybe that patient was dealing with an abusive spouse 150 00:09:06,252 --> 00:09:10,120 or a daughter who is pregnant and drug-addicted 151 00:09:10,144 --> 00:09:13,393 or a son who was kicked out of school. 152 00:09:13,872 --> 00:09:19,292 Or even maybe they were riding their bicycle through an intersection 153 00:09:19,316 --> 00:09:21,475 and got hit by a truck, 154 00:09:21,499 --> 00:09:25,957 and now they're using a wheelchair and have very limited mobility. 155 00:09:27,619 --> 00:09:31,177 Obviously, these things also happen to middle-class people. 156 00:09:32,161 --> 00:09:33,925 But when they do, 157 00:09:33,949 --> 00:09:38,332 we have resources that enable us to deal with these problems. 158 00:09:38,838 --> 00:09:44,065 We also have the belief that we will live out our normal lifespans. 159 00:09:44,678 --> 00:09:46,959 That's not true for low-income people. 160 00:09:47,578 --> 00:09:51,706 They've seen their friends and relatives die young 161 00:09:51,730 --> 00:09:53,139 of accidents, 162 00:09:53,163 --> 00:09:54,360 of violence, 163 00:09:54,384 --> 00:09:58,691 of cancers that should have been diagnosed at an earlier stage. 164 00:09:59,206 --> 00:10:01,923 It can lead to a sense of hopelessness, 165 00:10:01,947 --> 00:10:04,231 that it doesn't really matter what you do. 166 00:10:06,128 --> 00:10:11,244 I know I've painted a bleak picture of the care of low-income patients. 167 00:10:11,268 --> 00:10:14,301 But I want you to know how rewarding I find it 168 00:10:14,325 --> 00:10:16,783 to work in a safety net system, 169 00:10:16,807 --> 00:10:21,160 and my deep belief is that we can make the system responsive 170 00:10:21,184 --> 00:10:23,543 to the needs of low-income patients. 171 00:10:24,935 --> 00:10:29,051 The starting point has to be to meet patients where they are, 172 00:10:29,075 --> 00:10:31,900 provide services without obstacles 173 00:10:32,678 --> 00:10:35,504 and provide patients what they need -- 174 00:10:36,257 --> 00:10:38,109 not what we think they need. 175 00:10:39,625 --> 00:10:43,508 It's impossible for me to take good care of a patient 176 00:10:43,532 --> 00:10:45,925 who is homeless and living on the street. 177 00:10:46,933 --> 00:10:51,443 The right prescription for a homeless patient is housing. 178 00:10:52,474 --> 00:10:54,288 In Los Angeles, 179 00:10:54,312 --> 00:11:00,342 we housed 4,700 chronically homeless persons 180 00:11:00,366 --> 00:11:05,004 suffering from medical illness, mental illness, addiction. 181 00:11:06,060 --> 00:11:10,675 When we housed them, we found that overall health care costs, 182 00:11:10,699 --> 00:11:12,586 including the housing, 183 00:11:12,610 --> 00:11:13,767 decreased. 184 00:11:14,220 --> 00:11:18,695 That's because they had many fewer hospital visits, 185 00:11:18,719 --> 00:11:23,115 both in the emergency room and on the inpatient service. 186 00:11:24,106 --> 00:11:26,710 And we gave them back their dignity. 187 00:11:27,374 --> 00:11:29,192 No extra charge for that. 188 00:11:30,652 --> 00:11:35,273 For people who do not have a steady supply of food, 189 00:11:35,297 --> 00:11:38,960 especially those who are diabetic, 190 00:11:38,984 --> 00:11:44,393 safety net systems are experimenting with a variety of solutions, 191 00:11:44,417 --> 00:11:48,551 including food pantries at primary care clinics 192 00:11:48,575 --> 00:11:53,314 and distributing maps of community food banks and soup kitchens. 193 00:11:53,835 --> 00:11:55,657 And in New York City, 194 00:11:55,681 --> 00:11:58,240 we've hired a bunch of enrollers 195 00:11:58,264 --> 00:12:03,481 to get our patients into the supplemental nutrition program 196 00:12:03,505 --> 00:12:06,878 known as "food stamps" to most people. 197 00:12:08,671 --> 00:12:12,308 When patients and doctors don't understand each other, 198 00:12:12,332 --> 00:12:14,101 mistakes will occur. 199 00:12:14,717 --> 00:12:16,665 For non-English-speaking patients, 200 00:12:16,689 --> 00:12:20,528 translation is as important as a prescription pad. 201 00:12:21,208 --> 00:12:22,698 Perhaps more important. 202 00:12:23,274 --> 00:12:26,143 And, you know, it doesn't cost anything more 203 00:12:26,167 --> 00:12:30,984 to put all of the materials at the level of fourth-grade reading, 204 00:12:31,008 --> 00:12:35,105 so that everybody can understand what's being said. 205 00:12:35,935 --> 00:12:39,342 But more than anything else, I think low-income patients 206 00:12:39,366 --> 00:12:43,125 benefit from having a primary care doctor. 207 00:12:43,680 --> 00:12:46,306 Mind you, I think middle-class people also benefit 208 00:12:46,330 --> 00:12:49,124 from having somebody to quarterback their care. 209 00:12:49,631 --> 00:12:52,762 But when they don't, they have others who can advocate for them, 210 00:12:52,786 --> 00:12:56,142 who can get them that disability placard 211 00:12:56,166 --> 00:13:00,202 or make sure the disability application is completed. 212 00:13:00,739 --> 00:13:06,041 But low-income people really need a team of people who can help them 213 00:13:06,065 --> 00:13:10,735 to access the medical and non-medical services that they need. 214 00:13:11,226 --> 00:13:14,529 Also, many low-income people are disenfranchised 215 00:13:14,553 --> 00:13:16,945 from other community supports, 216 00:13:16,969 --> 00:13:22,983 and they really benefit from the care and continuity provided by primary care. 217 00:13:23,615 --> 00:13:26,480 A primary care doctor I particularly admire 218 00:13:26,504 --> 00:13:31,578 once told me how she believed that her relationship with a patient 219 00:13:31,602 --> 00:13:33,089 over a decade 220 00:13:33,113 --> 00:13:37,452 was the only healthy relationship that that patient had in her life. 221 00:13:38,793 --> 00:13:42,727 The good news is, you don't actually have to be a doctor 222 00:13:42,751 --> 00:13:47,357 to provide that special sauce of care and continuity. 223 00:13:47,713 --> 00:13:51,933 This was really brought home to me when one of my own long-term patients 224 00:13:51,957 --> 00:13:54,538 died at an outside hospital. 225 00:13:54,887 --> 00:13:58,624 I had to tell the other doctors and nurses in my clinic 226 00:13:58,648 --> 00:14:00,026 that he had passed. 227 00:14:00,465 --> 00:14:04,474 But I didn't know that in another part of our clinic, 228 00:14:04,498 --> 00:14:06,522 on a different floor, 229 00:14:06,546 --> 00:14:09,069 there was a registration clerk 230 00:14:09,093 --> 00:14:13,108 who had developed a very special relationship with my patient 231 00:14:13,132 --> 00:14:16,126 every time he came in for an appointment. 232 00:14:16,849 --> 00:14:20,535 When she learned three weeks later that he had died, 233 00:14:20,559 --> 00:14:23,299 she came and found me in my examining room, 234 00:14:23,323 --> 00:14:26,250 tears streaming down her cheeks, 235 00:14:26,274 --> 00:14:31,875 talking about my patient and the memories that she had of him, 236 00:14:31,899 --> 00:14:35,973 the kinds of discussions that they had had about their lives together. 237 00:14:38,072 --> 00:14:39,943 My patient had a hard life. 238 00:14:40,705 --> 00:14:43,781 He was by his own admission a gangbanger. 239 00:14:44,234 --> 00:14:47,851 He had spent a substantial amount of time in prison. 240 00:14:48,893 --> 00:14:51,699 He suffered from a very serious illness. 241 00:14:52,318 --> 00:14:53,843 He was a drug addict. 242 00:14:54,530 --> 00:14:57,628 But despite all that, he rarely missed a visit, 243 00:14:58,692 --> 00:15:04,173 and I like to believe that was because he knew at our clinic that he was loved. 244 00:15:05,793 --> 00:15:11,154 When our health care systems have the same commitment to low-income patients 245 00:15:11,178 --> 00:15:13,075 that that man had to us, 246 00:15:13,099 --> 00:15:14,638 two things will happen. 247 00:15:15,638 --> 00:15:20,443 First, the system will be responsive to the needs of low-income people. 248 00:15:20,467 --> 00:15:24,438 It will speak their language, it will meet their schedules, 249 00:15:24,462 --> 00:15:26,380 it will fulfill their needs. 250 00:15:27,169 --> 00:15:31,114 Second, we will be providing the kind of care 251 00:15:31,138 --> 00:15:33,938 that we went into this profession to do -- 252 00:15:33,962 --> 00:15:36,771 not just checking the boxes, 253 00:15:36,795 --> 00:15:40,150 but really taking care of those we serve. 254 00:15:41,404 --> 00:15:42,642 Thank you. 255 00:15:42,666 --> 00:15:46,888 (Applause)