1 00:00:00,830 --> 00:00:02,515 A few years ago, 2 00:00:02,515 --> 00:00:06,490 I was taking care of a woman who was a victim of violence. 3 00:00:06,718 --> 00:00:12,616 I wanted her to be seen in a clinic that specialized in trauma survivors. 4 00:00:12,836 --> 00:00:18,006 I made the appointment myself because, being the director of the department, 5 00:00:18,006 --> 00:00:19,708 I knew if I did it, 6 00:00:19,708 --> 00:00:21,928 she would get an appointment right away. 7 00:00:22,148 --> 00:00:26,040 The clinic was about an hour and a half away from where she lived, 8 00:00:26,040 --> 00:00:29,758 but she took down the address and agreed to go. 9 00:00:30,736 --> 00:00:35,339 Unfortunately, she didn't make it to the clinic. 10 00:00:35,339 --> 00:00:37,933 When I spoke to the psychiatrist, 11 00:00:37,933 --> 00:00:40,200 he explained to me 12 00:00:40,200 --> 00:00:43,285 that trauma survivors are often resistant 13 00:00:43,285 --> 00:00:46,554 to dealing with the difficult issues that they face, 14 00:00:46,554 --> 00:00:48,759 and often miss appointments. 15 00:00:48,759 --> 00:00:49,934 For this reason, 16 00:00:49,934 --> 00:00:54,596 they don't generally allow the doctors to make appointments for the patients. 17 00:00:55,163 --> 00:00:58,189 They had made a special exception for me. 18 00:00:58,569 --> 00:01:00,721 When I spoke to my patient, 19 00:01:00,721 --> 00:01:04,679 she had a much simpler and less Freudian explanation 20 00:01:04,679 --> 00:01:07,794 of why she didn't go to that appointment: 21 00:01:08,024 --> 00:01:10,256 her ride didn't show. 22 00:01:11,068 --> 00:01:13,558 Now, some of you may be thinking, 23 00:01:13,558 --> 00:01:17,641 "Didn't she have some other way of getting to that clinic appointment?" 24 00:01:17,641 --> 00:01:19,942 Couldn't she have taken an Uber 25 00:01:19,942 --> 00:01:22,295 or called another friend? 26 00:01:22,582 --> 00:01:24,429 If you're thinking that, 27 00:01:24,429 --> 00:01:27,457 it's probably because you have resources. 28 00:01:27,457 --> 00:01:30,864 But she didn't have enough money for an Uber, 29 00:01:30,864 --> 00:01:34,065 she didn't have another friend to call. 30 00:01:34,065 --> 00:01:35,877 But she did have me, and I was able to get her another appointment, 31 00:01:35,877 --> 00:01:41,715 which she kept without difficulty. 32 00:01:41,968 --> 00:01:45,788 She wasn't resistant, it's just her ride didn't show. 33 00:01:46,868 --> 00:01:50,885 I wish I could say that this was an isolated incident, 34 00:01:50,885 --> 00:01:53,934 but I know from running the safety net systems 35 00:01:53,934 --> 00:01:59,443 in San Francisco, Los Angeles, and now New York City, 36 00:01:59,443 --> 00:02:03,002 that health care is built on a middle class model 37 00:02:03,002 --> 00:02:07,509 that often doesn't meet the needs of low-income patients. 38 00:02:08,014 --> 00:02:11,878 That's one of the reasons why it's been so difficult 39 00:02:12,143 --> 00:02:15,809 for us to close the disparity in health care 40 00:02:15,809 --> 00:02:19,228 that exists along economy lines 41 00:02:19,228 --> 00:02:22,839 despite the expansion of health insurance 42 00:02:22,839 --> 00:02:26,206 under the ACA, or ObamaCare. 43 00:02:27,044 --> 00:02:29,759 Health care in the United States 44 00:02:29,759 --> 00:02:33,435 assumes that, besides getting across the large land expanse of Los Angeles, 45 00:02:33,435 --> 00:02:40,843 it also assumes that you can take off from work 46 00:02:40,843 --> 00:02:43,689 in the middle of the day to get care. 47 00:02:43,689 --> 00:02:47,992 One of the patients who came to my East Los Angeles clinic 48 00:02:47,992 --> 00:02:50,237 on a Thursday afternoon 49 00:02:50,237 --> 00:02:53,451 presented with partial blindness 50 00:02:53,451 --> 00:02:55,672 in both eyes. 51 00:02:55,672 --> 00:02:57,816 Very concerned, I said to him, 52 00:02:57,816 --> 00:03:00,136 "When did this develop?" 53 00:03:00,136 --> 00:03:02,117 He said, "Sunday." 54 00:03:02,584 --> 00:03:04,694 I said, "Sunday? 55 00:03:04,694 --> 00:03:07,572 Did you think of coming sooner to clinic?" 56 00:03:07,572 --> 00:03:11,718 And he said, "Well, I have to work in order to pay the rent." 57 00:03:11,718 --> 00:03:15,967 A second patient to that same clinic, 58 00:03:15,967 --> 00:03:16,821 a trucker, 59 00:03:16,821 --> 00:03:19,765 drove three days with a raging infection, 60 00:03:19,765 --> 00:03:24,411 only coming to see me after he had delivered his merchandise. 61 00:03:24,647 --> 00:03:31,967 Both patients' care was jeopardized by their delays in seeking care. 62 00:03:31,967 --> 00:03:35,609 Health care in the United States assumes that you speak English 63 00:03:35,809 --> 00:03:39,060 or can bring someone with you who can. 64 00:03:39,343 --> 00:03:44,211 In San Francisco, I took care of a patient on the inpatient service 65 00:03:44,211 --> 00:03:46,412 who was from West Africa 66 00:03:46,412 --> 00:03:49,363 and spoke a dialect so unusual 67 00:03:49,363 --> 00:03:54,944 that we could only find one translator on the telephonic line 68 00:03:54,944 --> 00:03:56,975 who could understand him, 69 00:03:56,975 --> 00:04:00,163 and that translator only worked one afternoon a week. 70 00:04:00,934 --> 00:04:05,667 Unfortunately, my patient needed translation services every day. 71 00:04:06,614 --> 00:04:10,060 Health care in the United States assumes that you are literate. 72 00:04:10,060 --> 00:04:13,203 I learned that a patient of mine who spoke English without accent 73 00:04:13,203 --> 00:04:17,498 was illiterate 74 00:04:17,498 --> 00:04:20,569 when he asked me to please sign a social security disability form 75 00:04:20,569 --> 00:04:24,439 for him right away. 76 00:04:24,659 --> 00:04:27,854 The form need to go to the office that same day, 77 00:04:27,854 --> 00:04:29,685 and I wasn't in clinic, 78 00:04:29,685 --> 00:04:31,409 so trying to help him out, 79 00:04:31,409 --> 00:04:35,068 knowing that he was the sole caretaker of his son, 80 00:04:35,068 --> 00:04:39,403 I said, "Well, bring the form to my administrative office. 81 00:04:39,403 --> 00:04:42,243 I'll sign it and I'll fax it in for you." 82 00:04:42,243 --> 00:04:44,858 He took the two buses to my office, 83 00:04:44,858 --> 00:04:46,783 dropped off the form, 84 00:04:46,783 --> 00:04:49,418 went back home to take care of his son, 85 00:04:49,418 --> 00:04:54,839 I got to the office, and what did I find next to the big "X" on the form? 86 00:04:54,839 --> 00:04:56,567 The word "applicant." 87 00:04:56,567 --> 00:04:59,076 He needed to sign the form. 88 00:05:00,382 --> 00:05:04,093 And so now I had to have him take the two buses back to the office 89 00:05:04,093 --> 00:05:08,600 and sign the form so that we could then fax it in for him. 90 00:05:08,795 --> 00:05:11,070 It completely changed how I took care of him. 91 00:05:11,070 --> 00:05:16,327 I made sure that I always went over instructions verbally with him. 92 00:05:16,327 --> 00:05:20,977 It also made me think about all of the patients 93 00:05:20,977 --> 00:05:23,295 who receive reams and reams of paper 94 00:05:23,295 --> 00:05:27,196 spit out by our modern electronic health record systems 95 00:05:27,196 --> 00:05:30,220 explaining their diagnoses and their treatments, 96 00:05:30,220 --> 00:05:34,065 and wondering how many people actually 97 00:05:34,065 --> 00:05:36,263 can understand what's on those pieces of paper. 98 00:05:36,263 --> 00:05:40,830 Health care in the United States assumes that you have a working telephone 99 00:05:40,830 --> 00:05:42,829 and an accurate address. 100 00:05:42,829 --> 00:05:46,543 The proliferation of inexpensive cell phones 101 00:05:46,543 --> 00:05:48,591 has actually helped quite a lot, 102 00:05:48,591 --> 00:05:51,065 but still my patients run out of minutes 103 00:05:51,065 --> 00:05:54,597 and their phones get disconnected. 104 00:05:55,054 --> 00:05:59,812 Low-income people often have to move around a lot by necessity. 105 00:05:59,812 --> 00:06:06,017 I remember reviewing a chart of a woman with an abnormality on her mammogram. 106 00:06:06,017 --> 00:06:08,957 That chart assiduously documents that three letters were sent to her home 107 00:06:08,957 --> 00:06:15,223 asking her to please come in for followup. 108 00:06:15,223 --> 00:06:17,746 Of course, if the address isn't accurate, 109 00:06:17,746 --> 00:06:22,389 it doesn't much matter how many letters you send to that same address. 110 00:06:23,333 --> 00:06:28,971 Health care in the United States assumes that you have a steady supply of food. 111 00:06:29,234 --> 00:06:32,790 This is particularly an issue for diabetics. 112 00:06:32,790 --> 00:06:36,714 We give them medications that lower their blood sugar. 113 00:06:36,714 --> 00:06:39,185 On days when they don't have enough food, 114 00:06:39,185 --> 00:06:42,977 it puts them at risk for a life-threatening side effect 115 00:06:42,977 --> 00:06:47,039 of hypoglycemia, or low blood sugar. 116 00:06:47,213 --> 00:06:50,490 Health care in the United States assumes that you have a home 117 00:06:50,490 --> 00:06:52,921 with a refrigerator for your insulin, 118 00:06:52,921 --> 00:06:55,616 a bathroom where you can wash up, 119 00:06:55,616 --> 00:07:00,099 a bed where you can sleep without worrying about violence 120 00:07:00,099 --> 00:07:02,596 while you are resting. 121 00:07:02,823 --> 00:07:04,971 But what if you don't have that? 122 00:07:04,971 --> 00:07:07,221 What if you live on the streets, 123 00:07:07,221 --> 00:07:09,123 you live under the freeway, 124 00:07:09,123 --> 00:07:11,900 you live in a congregant shelter 125 00:07:11,900 --> 00:07:15,895 where every morning you have to leave at 7 or 8 am? 126 00:07:16,260 --> 00:07:19,875 Where do you store your medicines? 127 00:07:21,098 --> 00:07:23,496 Where do you use the bathroom? 128 00:07:24,368 --> 00:07:28,860 How do you put your legs up if you have congestive heart failure? 129 00:07:29,303 --> 00:07:34,118 Is it any wonder that providing people with health insurance who are homeless 130 00:07:34,118 --> 00:07:38,712 does not erase the huge disparity 131 00:07:38,712 --> 00:07:40,825 between the homeless and the housed? 132 00:07:42,061 --> 00:07:47,472 Health care in the United States assumes that you prioritize your health care, 133 00:07:48,221 --> 00:07:50,534 but what about all of you? 134 00:07:50,534 --> 00:07:55,033 Let me assume for a moment that you're all taking a medication. 135 00:07:55,033 --> 00:07:57,533 Maybe it's for high blood pressure. 136 00:07:57,533 --> 00:08:01,534 Maybe it's for diabetes or depression. 137 00:08:01,534 --> 00:08:05,158 What if tonight you had a choice: 138 00:08:05,158 --> 00:08:08,207 you could have your medication but live on the street, 139 00:08:08,207 --> 00:08:16,151 or you could be housed in your home but not have your medication? 140 00:08:18,142 --> 00:08:21,155 Which would you choose? 141 00:08:21,155 --> 00:08:23,767 I know which one I would choose. 142 00:08:24,721 --> 00:08:28,882 This is just a graphic example of the kinds of choices 143 00:08:28,882 --> 00:08:32,419 that low-income patients have to make every day. 144 00:08:32,419 --> 00:08:35,559 So when my doctors shake their heads and say, 145 00:08:35,559 --> 00:08:40,819 "I don't know why that patient didn't keep his followup appointments," 146 00:08:40,819 --> 00:08:45,696 "I don't know why she didn't go for that exam that I ordered," 147 00:08:45,696 --> 00:08:49,306 I think, well, maybe her ride didn't show, 148 00:08:49,306 --> 00:08:51,771 or maybe he had to work. 149 00:08:51,771 --> 00:08:57,651 But also, maybe there was something more important that day 150 00:08:57,651 --> 00:09:01,859 than their high blood pressure or a screening colonoscopy. 151 00:09:02,103 --> 00:09:06,411 Maybe that patient was dealing with an abusive spouse 152 00:09:06,411 --> 00:09:10,357 or a daughter who is pregnant and drug-addicted, 153 00:09:10,357 --> 00:09:14,084 or a son who was kicked out of school, 154 00:09:14,084 --> 00:09:19,647 or even maybe they were riding their bicycle through an intersection 155 00:09:19,647 --> 00:09:21,829 and got hit by a truck, 156 00:09:21,829 --> 00:09:26,394 and now they're using a wheelchair and have very limited mobility. 157 00:09:27,881 --> 00:09:32,119 Obviously, these things also happen to middle class people, 158 00:09:32,119 --> 00:09:34,146 but when they do, 159 00:09:34,146 --> 00:09:39,075 we have resources that enable us to deal with these problems. 160 00:09:39,275 --> 00:09:44,257 We also have the belief that we will live out our normal lifespans. 161 00:09:44,916 --> 00:09:47,857 That's not true for low-income people. 162 00:09:47,857 --> 00:09:52,039 They've seen their friends and relatives die young of accidents, of violence, 163 00:09:52,039 --> 00:09:59,524 of cancers that should have been diagnosed at an earlier stage. 164 00:09:59,524 --> 00:10:02,225 It can lead to a sense of hopelessness, 165 00:10:02,225 --> 00:10:05,357 that it doesn't really matter what you do. 166 00:10:06,414 --> 00:10:11,316 I know I've painted a bleak picture of the care of low-income patients, 167 00:10:11,316 --> 00:10:14,476 but I want you to know how rewarding I find it 168 00:10:14,476 --> 00:10:17,038 to work in a safety net system 169 00:10:17,038 --> 00:10:21,414 and my deep belief that we can make the system responsive 170 00:10:21,414 --> 00:10:23,560 to the needs of low-income patients. 171 00:10:25,166 --> 00:10:29,305 The starting point has to be to meet patients where they are, 172 00:10:29,305 --> 00:10:32,957 provide services without obstacles, 173 00:10:32,957 --> 00:10:36,638 and provide patients what they need, 174 00:10:36,638 --> 00:10:39,061 not what we think they need. 175 00:10:39,824 --> 00:10:43,730 It's impossible for me to take good care of a patient 176 00:10:43,730 --> 00:10:46,466 who is homeless and living on the street. 177 00:10:46,466 --> 00:10:50,590 The right prescription for a homeless patient is housing. 178 00:10:50,590 --> 00:10:52,790 In Los Angeles, we have 4,700 chronically homeless persons 179 00:10:52,790 --> 00:11:01,096 suffering from medical illness, 180 00:11:01,096 --> 00:11:05,434 mental illness, addiction. 181 00:11:05,434 --> 00:11:10,939 When we house them, we found that overall health care costs, 182 00:11:10,939 --> 00:11:12,810 including the housing, decreased. 183 00:11:12,810 --> 00:11:19,057 That's because they had many fewer hospital visits, 184 00:11:19,057 --> 00:11:23,347 both in the emergency room and on the inpatient service. 185 00:11:24,329 --> 00:11:27,629 And we gave them back their dignity. 186 00:11:27,629 --> 00:11:29,857 No extra charge for that. 187 00:11:30,652 --> 00:11:35,526 For people who do not have a steady supply of food, 188 00:11:35,526 --> 00:11:39,205 especially those who are diabetic, 189 00:11:39,205 --> 00:11:44,464 safety net systems are experimenting with a variety of solutions, 190 00:11:44,464 --> 00:11:48,849 including food pantries at primary care clinics, 191 00:11:48,849 --> 00:11:52,207 distributing maps of community food banks and soup kitchens. 192 00:11:52,207 --> 00:11:55,999 And in New York City, 193 00:11:55,999 --> 00:11:58,554 we've hired a bunch of enrollers 194 00:11:58,554 --> 00:12:00,419 to get our patients 195 00:12:00,419 --> 00:12:07,629 into the supplemental nutrition program known as food stamps to most people. 196 00:12:08,942 --> 00:12:12,949 When patients and doctors don't understand each other, 197 00:12:12,949 --> 00:12:14,893 mistakes will occur. 198 00:12:14,893 --> 00:12:19,472 For non-English-speaking patients, translation is as important 199 00:12:19,472 --> 00:12:21,444 as a prescription pad, perhaps more important. 200 00:12:21,444 --> 00:12:23,483 And, you know, it doesn't cost anything more 201 00:12:23,483 --> 00:12:31,297 to put all of the materials at the level of fourth-grade reading 202 00:12:31,297 --> 00:12:36,230 so that everybody can understand what's being said. 203 00:12:36,230 --> 00:12:39,660 But more than anything else, I think low-income patients 204 00:12:39,660 --> 00:12:43,839 benefit from having a primary care doctor. 205 00:12:43,839 --> 00:12:47,881 Mind you, I think middle class people also benefit from having somebody 206 00:12:47,881 --> 00:12:49,933 to quarterback their care, 207 00:12:49,933 --> 00:12:53,017 but when they don't, they have others who can advocate for them, 208 00:12:53,017 --> 00:12:56,492 who can get them that disability placard, 209 00:12:56,492 --> 00:13:00,775 or make sure the disability application is completed. 210 00:13:01,033 --> 00:13:06,216 But low-income people really need a team of people who can help them 211 00:13:06,216 --> 00:13:12,012 to access the medical and non-medical services that they need. 212 00:13:12,012 --> 00:13:14,784 Also, many low-income people are disenfranchised 213 00:13:14,784 --> 00:13:17,268 from other community supports, 214 00:13:17,268 --> 00:13:23,507 and they really benefit from the care and continuity provided by primary care. 215 00:13:23,822 --> 00:13:26,928 A primary care doctor I particularly admire 216 00:13:26,928 --> 00:13:31,056 once told me how she believed that her relationship with a patient 217 00:13:31,056 --> 00:13:35,779 over a decade was the only healthy relationship 218 00:13:35,779 --> 00:13:37,846 that that patient had in her life. 219 00:13:39,000 --> 00:13:42,895 The good news is, you don't actually have to be a doctor 220 00:13:42,895 --> 00:13:47,134 to provide that special sauce of care and continuity. 221 00:13:47,928 --> 00:13:52,286 This was really brought home to me when one of my own long-term patients 222 00:13:52,286 --> 00:13:55,078 died at an outside hospital. 223 00:13:55,078 --> 00:13:58,838 I had to tell the other doctors and nurses in my clinic 224 00:13:58,838 --> 00:14:00,481 that he had passed. 225 00:14:00,735 --> 00:14:04,617 But I didn't know that in another part of our clinic, 226 00:14:04,617 --> 00:14:06,478 on a different floor, 227 00:14:06,478 --> 00:14:09,258 there was a registration clerk 228 00:14:09,258 --> 00:14:12,253 who had developed a very special relationship 229 00:14:12,253 --> 00:14:16,914 with my patient every time he came in for an appointment. 230 00:14:16,914 --> 00:14:20,827 When she learned three weeks later that he had died, 231 00:14:20,827 --> 00:14:26,423 she came and found me in my examining room, 232 00:14:26,423 --> 00:14:27,892 tears streaming down her cheeks, 233 00:14:27,892 --> 00:14:28,905 talking about my patient 234 00:14:28,905 --> 00:14:32,020 and the memories that she had of him, 235 00:14:32,233 --> 00:14:36,307 the kinds of discussions that they had had about their lives together. 236 00:14:38,318 --> 00:14:40,389 My patient had a hard life. 237 00:14:40,389 --> 00:14:44,353 He was by his own admission a gangbanger. 238 00:14:44,353 --> 00:14:49,520 He had spent substantial amount of time in prison. 239 00:14:49,520 --> 00:14:52,557 He suffered from a very serious illness. 240 00:14:52,557 --> 00:14:54,808 He was a drug addict. 241 00:14:54,808 --> 00:14:58,403 But despite all that, he rarely missed a visit, 242 00:14:58,403 --> 00:15:01,291 and I like to believe that was because he knew at our clinic that he was loved. 243 00:15:01,291 --> 00:15:03,134 When our health care systems have the same commitment to low-income patients 244 00:15:03,134 --> 00:15:13,267 that that man had to us, 245 00:15:13,267 --> 00:15:14,939 two things will happen. 246 00:15:14,939 --> 00:15:20,901 First, the system will be responsive to the needs of low-income people. 247 00:15:20,901 --> 00:15:24,575 It will speak their language, it will meet their schedules, 248 00:15:24,575 --> 00:15:27,296 it will fulfill their needs. 249 00:15:27,296 --> 00:15:32,316 Second, we will be providing the kind of care 250 00:15:32,316 --> 00:15:34,304 that we went into this profession to do, 251 00:15:34,304 --> 00:15:37,065 not just checking the boxes 252 00:15:37,065 --> 00:15:40,420 but really taking care of those we serve. 253 00:15:41,619 --> 00:15:44,945 Thank you. 254 00:15:44,945 --> 00:15:47,260 (Applause)