0:00:00.830,0:00:02.515 A few years ago, 0:00:02.515,0:00:06.490 I was taking care of a woman[br]who was a victim of violence. 0:00:06.718,0:00:12.616 I wanted her to be seen in a clinic[br]that specialized in trauma survivors. 0:00:12.836,0:00:18.006 I made the appointment myself because,[br]being the director of the department, 0:00:18.006,0:00:19.708 I knew if I did it, 0:00:19.708,0:00:21.928 she would get an appointment right away. 0:00:22.148,0:00:26.040 The clinic was about an hour and a half[br]away from where she lived, 0:00:26.040,0:00:29.758 but she took down the address[br]and agreed to go. 0:00:30.736,0:00:35.339 Unfortunately, she didn't[br]make it to the clinic. 0:00:35.339,0:00:37.933 When I spoke to the psychiatrist, 0:00:37.933,0:00:40.200 he explained to me 0:00:40.200,0:00:43.285 that trauma survivors are often resistant 0:00:43.285,0:00:46.554 to dealing with the difficult[br]issues that they face, 0:00:46.554,0:00:48.759 and often miss appointments. 0:00:48.759,0:00:49.934 For this reason, 0:00:49.934,0:00:54.596 they don't generally allow the doctors[br]to make appointments for the patients. 0:00:55.163,0:00:58.189 They had made a special exception for me. 0:00:58.569,0:01:00.721 When I spoke to my patient, 0:01:00.721,0:01:04.679 she had a much simpler[br]and less Freudian explanation 0:01:04.679,0:01:07.794 of why she didn't go to that appointment: 0:01:08.024,0:01:10.256 her ride didn't show. 0:01:11.068,0:01:13.558 Now, some of you may be thinking, 0:01:13.558,0:01:17.641 "Didn't she have some other way[br]of getting to that clinic appointment?" 0:01:17.641,0:01:19.942 Couldn't she have taken an Uber 0:01:19.942,0:01:22.295 or called another friend? 0:01:22.582,0:01:24.429 If you're thinking that, 0:01:24.429,0:01:27.457 it's probably because you have resources. 0:01:27.457,0:01:30.864 But she didn't have[br]enough money for an Uber, 0:01:30.864,0:01:34.065 she didn't have another friend to call. 0:01:34.065,0:01:35.877 But she did have me, and I was able[br]to get her another appointment, 0:01:35.877,0:01:41.715 which she kept without difficulty. 0:01:41.968,0:01:45.788 She wasn't resistant,[br]it's just her ride didn't show. 0:01:46.868,0:01:50.885 I wish I could say that this[br]was an isolated incident, 0:01:50.885,0:01:53.934 but I know from running[br]the safety net systems 0:01:53.934,0:01:59.443 in San Francisco, Los Angeles,[br]and now New York City, 0:01:59.443,0:02:03.002 that health care is built[br]on a middle class model 0:02:03.002,0:02:07.509 that often doesn't meet the needs[br]of low-income patients. 0:02:08.014,0:02:11.878 That's one of the reasons why[br]it's been so difficult 0:02:12.143,0:02:15.809 for us to close[br]the disparity in health care 0:02:15.809,0:02:19.228 that exists along economy lines 0:02:19.228,0:02:22.839 despite the expansion of health insurance 0:02:22.839,0:02:26.206 under the ACA, or ObamaCare. 0:02:27.044,0:02:29.759 Health care in the United States 0:02:29.759,0:02:33.435 assumes that, besides getting across[br]the large land expanse of Los Angeles, 0:02:33.435,0:02:40.843 it also assumes that you[br]can take off from work 0:02:40.843,0:02:43.689 in the middle of the day to get care. 0:02:43.689,0:02:47.992 One of the patients who came[br]to my East Los Angeles clinic 0:02:47.992,0:02:50.237 on a Thursday afternoon 0:02:50.237,0:02:53.451 presented with partial blindness 0:02:53.451,0:02:55.672 in both eyes. 0:02:55.672,0:02:57.816 Very concerned, I said to him, 0:02:57.816,0:03:00.136 "When did this develop?" 0:03:00.136,0:03:02.117 He said, "Sunday." 0:03:02.584,0:03:04.694 I said, "Sunday? 0:03:04.694,0:03:07.572 Did you think of coming sooner to clinic?" 0:03:07.572,0:03:11.718 And he said, "Well, I have to work[br]in order to pay the rent." 0:03:11.718,0:03:15.967 A second patient to that same clinic, 0:03:15.967,0:03:16.821 a trucker, 0:03:16.821,0:03:19.765 drove three days with a raging infection, 0:03:19.765,0:03:24.411 only coming to see me[br]after he had delivered his merchandise. 0:03:24.647,0:03:31.967 Both patients' care was jeopardized[br]by their delays in seeking care. 0:03:31.967,0:03:35.609 Health care in the United States[br]assumes that you speak English 0:03:35.809,0:03:39.060 or can bring someone with you who can. 0:03:39.343,0:03:44.211 In San Francisco, I took care of a patient[br]on the inpatient service 0:03:44.211,0:03:46.412 who was from West Africa 0:03:46.412,0:03:49.363 and spoke a dialect so unusual 0:03:49.363,0:03:54.944 that we could only find one translator[br]on the telephonic line 0:03:54.944,0:03:56.975 who could understand him, 0:03:56.975,0:04:00.163 and that translator only worked[br]one afternoon a week. 0:04:00.934,0:04:05.667 Unfortunately, my patient[br]needed translation services every day. 0:04:06.614,0:04:10.060 Health care in the United States[br]assumes that you are literate. 0:04:10.060,0:04:13.203 I learned that a patient of mine[br]who spoke English without accent 0:04:13.203,0:04:17.498 was illiterate 0:04:17.498,0:04:20.569 when he asked me to please sign[br]a social security disability form 0:04:20.569,0:04:24.439 for him right away. 0:04:24.659,0:04:27.854 The form need to go[br]to the office that same day, 0:04:27.854,0:04:29.685 and I wasn't in clinic, 0:04:29.685,0:04:31.409 so trying to help him out, 0:04:31.409,0:04:35.068 knowing that he was[br]the sole caretaker of his son, 0:04:35.068,0:04:39.403 I said, "Well, bring the form[br]to my administrative office. 0:04:39.403,0:04:42.243 I'll sign it and I'll fax it in for you." 0:04:42.243,0:04:44.858 He took the two buses to my office, 0:04:44.858,0:04:46.783 dropped off the form, 0:04:46.783,0:04:49.418 went back home to take care of his son, 0:04:49.418,0:04:54.839 I got to the office, and what did I find[br]next to the big "X" on the form? 0:04:54.839,0:04:56.567 The word "applicant." 0:04:56.567,0:04:59.076 He needed to sign the form. 0:05:00.382,0:05:04.093 And so now I had to have him[br]take the two buses back to the office 0:05:04.093,0:05:08.600 and sign the form so that[br]we could then fax it in for him. 0:05:08.795,0:05:11.070 It completely changed[br]how I took care of him. 0:05:11.070,0:05:16.327 I made sure that I always went over[br]instructions verbally with him. 0:05:16.327,0:05:20.977 It also made me think about[br]all of the patients 0:05:20.977,0:05:23.295 who receive reams and reams of paper 0:05:23.295,0:05:27.196 spit out by our modern[br]electronic health record systems 0:05:27.196,0:05:30.220 explaining their diagnoses[br]and their treatments, 0:05:30.220,0:05:34.065 and wondering how many people actually 0:05:34.065,0:05:36.263 can understand what's on[br]those pieces of paper. 0:05:36.263,0:05:40.830 Health care in the United States assumes[br]that you have a working telephone 0:05:40.830,0:05:42.829 and an accurate address. 0:05:42.829,0:05:46.543 The proliferation[br]of inexpensive cell phones 0:05:46.543,0:05:48.591 has actually helped quite a lot, 0:05:48.591,0:05:51.065 but still my patients run out of minutes 0:05:51.065,0:05:54.597 and their phones get disconnected. 0:05:55.054,0:05:59.812 Low-income people often have[br]to move around a lot by necessity. 0:05:59.812,0:06:06.017 I remember reviewing a chart of a woman[br]with an abnormality on her mammogram. 0:06:06.017,0:06:08.957 That chart assiduously documents[br]that three letters were sent to her home 0:06:08.957,0:06:15.223 asking her to please come in for followup. 0:06:15.223,0:06:17.746 Of course, if the address isn't accurate, 0:06:17.746,0:06:22.389 it doesn't much matter how many letters[br]you send to that same address. 0:06:23.333,0:06:28.971 Health care in the United States assumes[br]that you have a steady supply of food. 0:06:29.234,0:06:32.790 This is particularly[br]an issue for diabetics. 0:06:32.790,0:06:36.714 We give them medications[br]that lower their blood sugar. 0:06:36.714,0:06:39.185 On days when they don't have enough food, 0:06:39.185,0:06:42.977 it puts them at risk[br]for a life-threatening side effect 0:06:42.977,0:06:47.039 of hypoglycemia, or low blood sugar. 0:06:47.213,0:06:50.490 Health care in the United States assumes[br]that you have a home 0:06:50.490,0:06:52.921 with a refrigerator for your insulin, 0:06:52.921,0:06:55.616 a bathroom where you can wash up, 0:06:55.616,0:07:00.099 a bed where you can sleep[br]without worrying about violence 0:07:00.099,0:07:02.596 while you are resting. 0:07:02.823,0:07:04.971 But what if you don't have that? 0:07:04.971,0:07:07.221 What if you live on the streets, 0:07:07.221,0:07:09.123 you live under the freeway, 0:07:09.123,0:07:11.900 you live in a congregant shelter 0:07:11.900,0:07:15.895 where every morning[br]you have to leave at 7 or 8 am? 0:07:16.260,0:07:19.875 Where do you store your medicines? 0:07:21.098,0:07:23.496 Where do you use the bathroom? 0:07:24.368,0:07:28.860 How do you put your legs up[br]if you have congestive heart failure? 0:07:29.303,0:07:34.118 Is it any wonder that providing people[br]with health insurance who are homeless 0:07:34.118,0:07:38.712 does not erase the huge disparity 0:07:38.712,0:07:40.825 between the homeless and the housed? 0:07:42.061,0:07:47.472 Health care in the United States assumes[br]that you prioritize your health care, 0:07:48.221,0:07:50.534 but what about all of you? 0:07:50.534,0:07:55.033 Let me assume for a moment[br]that you're all taking a medication. 0:07:55.033,0:07:57.533 Maybe it's for high blood pressure. 0:07:57.533,0:08:01.534 Maybe it's for diabetes or depression. 0:08:01.534,0:08:05.158 What if tonight you had a choice: 0:08:05.158,0:08:08.207 you could have your medication[br]but live on the street, 0:08:08.207,0:08:16.151 or you could be housed in your home[br]but not have your medication? 0:08:18.142,0:08:21.155 Which would you choose? 0:08:21.155,0:08:23.767 I know which one I would choose. 0:08:24.721,0:08:28.882 This is just a graphic example[br]of the kinds of choices 0:08:28.882,0:08:32.419 that low-income patients[br]have to make every day. 0:08:32.419,0:08:35.559 So when my doctors[br]shake their heads and say, 0:08:35.559,0:08:40.819 "I don't know why that patient[br]didn't keep his followup appointments," 0:08:40.819,0:08:45.696 "I don't know why she didn't go[br]for that exam that I ordered," 0:08:45.696,0:08:49.306 I think, well, maybe her ride didn't show, 0:08:49.306,0:08:51.771 or maybe he had to work. 0:08:51.771,0:08:57.651 But also, maybe there was something[br]more important that day 0:08:57.651,0:09:01.859 than their high blood pressure[br]or a screening colonoscopy. 0:09:02.103,0:09:06.411 Maybe that patient was dealing[br]with an abusive spouse 0:09:06.411,0:09:10.357 or a daughter who is pregnant[br]and drug-addicted, 0:09:10.357,0:09:14.084 or a son who was kicked out of school, 0:09:14.084,0:09:19.647 or even maybe they were riding[br]their bicycle through an intersection 0:09:19.647,0:09:21.829 and got hit by a truck, 0:09:21.829,0:09:26.394 and now they're using a wheelchair[br]and have very limited mobility. 0:09:27.881,0:09:32.119 Obviously, these things also happen[br]to middle class people, 0:09:32.119,0:09:34.146 but when they do, 0:09:34.146,0:09:39.075 we have resources that enable us[br]to deal with these problems. 0:09:39.275,0:09:44.257 We also have the belief that we[br]will live out our normal lifespans. 0:09:44.916,0:09:47.857 That's not true for low-income people. 0:09:47.857,0:09:52.039 They've seen their friends and relatives[br]die young of accidents, of violence, 0:09:52.039,0:09:59.524 of cancers that should have[br]been diagnosed at an earlier stage. 0:09:59.524,0:10:02.225 It can lead to a sense of hopelessness, 0:10:02.225,0:10:05.357 that it doesn't really matter what you do. 0:10:06.414,0:10:11.316 I know I've painted a bleak picture[br]of the care of low-income patients, 0:10:11.316,0:10:14.476 but I want you to know[br]how rewarding I find it 0:10:14.476,0:10:17.038 to work in a safety net system 0:10:17.038,0:10:21.414 and my deep belief that we[br]can make the system responsive 0:10:21.414,0:10:23.560 to the needs of low-income patients. 0:10:25.166,0:10:29.305 The starting point has to be[br]to meet patients where they are, 0:10:29.305,0:10:32.957 provide services without obstacles, 0:10:32.957,0:10:36.638 and provide patients what they need, 0:10:36.638,0:10:39.061 not what we think they need. 0:10:39.824,0:10:43.730 It's impossible for me[br]to take good care of a patient 0:10:43.730,0:10:46.466 who is homeless and living on the street. 0:10:46.466,0:10:50.590 The right prescription[br]for a homeless patient is housing. 0:10:50.590,0:10:52.790 In Los Angeles, we have 4,700[br]chronically homeless persons 0:10:52.790,0:11:01.096 suffering from medical illness, 0:11:01.096,0:11:05.434 mental illness, addiction. 0:11:05.434,0:11:10.939 When we house them, we found[br]that overall health care costs, 0:11:10.939,0:11:12.810 including the housing, decreased. 0:11:12.810,0:11:19.057 That's because they had[br]many fewer hospital visits, 0:11:19.057,0:11:23.347 both in the emergency room[br]and on the inpatient service. 0:11:24.329,0:11:27.629 And we gave them back their dignity. 0:11:27.629,0:11:29.857 No extra charge for that. 0:11:30.652,0:11:35.526 For people who do not have[br]a steady supply of food, 0:11:35.526,0:11:39.205 especially those who are diabetic, 0:11:39.205,0:11:44.464 safety net systems are experimenting[br]with a variety of solutions, 0:11:44.464,0:11:48.849 including food pantries[br]at primary care clinics, 0:11:48.849,0:11:52.207 distributing maps of community[br]food banks and soup kitchens. 0:11:52.207,0:11:55.999 And in New York City, 0:11:55.999,0:11:58.554 we've hired a bunch of enrollers 0:11:58.554,0:12:00.419 to get our patients 0:12:00.419,0:12:07.629 into the supplemental nutrition program[br]known as food stamps to most people. 0:12:08.942,0:12:12.949 When patients and doctors[br]don't understand each other, 0:12:12.949,0:12:14.893 mistakes will occur. 0:12:14.893,0:12:19.472 For non-English-speaking patients,[br]translation is as important 0:12:19.472,0:12:21.444 as a prescription pad,[br]perhaps more important. 0:12:21.444,0:12:23.483 And, you know, it doesn't[br]cost anything more 0:12:23.483,0:12:31.297 to put all of the materials[br]at the level of fourth-grade reading 0:12:31.297,0:12:36.230 so that everybody can understand[br]what's being said. 0:12:36.230,0:12:39.660 But more than anything else,[br]I think low-income patients 0:12:39.660,0:12:43.839 benefit from having a primary care doctor. 0:12:43.839,0:12:47.881 Mind you, I think middle class people[br]also benefit from having somebody 0:12:47.881,0:12:49.933 to quarterback their care, 0:12:49.933,0:12:53.017 but when they don't, they have others[br]who can advocate for them, 0:12:53.017,0:12:56.492 who can get them that disability placard, 0:12:56.492,0:13:00.775 or make sure the disability[br]application is completed. 0:13:01.033,0:13:06.216 But low-income people really need[br]a team of people who can help them 0:13:06.216,0:13:12.012 to access the medical and non-medical[br]services that they need. 0:13:12.012,0:13:14.784 Also, many low-income people[br]are disenfranchised 0:13:14.784,0:13:17.268 from other community supports, 0:13:17.268,0:13:23.507 and they really benefit from the care[br]and continuity provided by primary care. 0:13:23.822,0:13:26.928 A primary care doctor[br]I particularly admire 0:13:26.928,0:13:31.056 once told me how she believed[br]that her relationship with a patient 0:13:31.056,0:13:35.779 over a decade was the only [br]healthy relationship 0:13:35.779,0:13:37.846 that that patient had in her life. 0:13:39.000,0:13:42.895 The good news is, you don't[br]actually have to be a doctor 0:13:42.895,0:13:47.134 to provide that special sauce[br]of care and continuity. 0:13:47.928,0:13:52.286 This was really brought home to me[br]when one of my own long-term patients 0:13:52.286,0:13:55.078 died at an outside hospital. 0:13:55.078,0:13:58.838 I had to tell the other doctors[br]and nurses in my clinic 0:13:58.838,0:14:00.481 that he had passed. 0:14:00.735,0:14:04.617 But I didn't know that[br]in another part of our clinic, 0:14:04.617,0:14:06.478 on a different floor, 0:14:06.478,0:14:09.258 there was a registration clerk 0:14:09.258,0:14:12.253 who had developed[br]a very special relationship 0:14:12.253,0:14:16.914 with my patient every time[br]he came in for an appointment. 0:14:16.914,0:14:20.827 When she learned three weeks later[br]that he had died, 0:14:20.827,0:14:26.423 she came and found me[br]in my examining room, 0:14:26.423,0:14:27.892 tears streaming down her cheeks, 0:14:27.892,0:14:28.905 talking about my patient 0:14:28.905,0:14:32.020 and the memories that she had of him, 0:14:32.233,0:14:36.307 the kinds of discussions that they had had[br]about their lives together. 0:14:38.318,0:14:40.389 My patient had a hard life. 0:14:40.389,0:14:44.353 He was by his own admission a gangbanger. 0:14:44.353,0:14:49.520 He had spent substantial[br]amount of time in prison. 0:14:49.520,0:14:52.557 He suffered from a very serious illness. 0:14:52.557,0:14:54.808 He was a drug addict. 0:14:54.808,0:14:58.403 But despite all that,[br]he rarely missed a visit, 0:14:58.403,0:15:01.291 and I like to believe that was because[br]he knew at our clinic that he was loved. 0:15:01.291,0:15:03.134 When our health care systems have the same[br]commitment to low-income patients 0:15:03.134,0:15:13.267 that that man had to us, 0:15:13.267,0:15:14.939 two things will happen. 0:15:14.939,0:15:20.901 First, the system will be responsive[br]to the needs of low-income people. 0:15:20.901,0:15:24.575 It will speak their language,[br]it will meet their schedules, 0:15:24.575,0:15:27.296 it will fulfill their needs. 0:15:27.296,0:15:32.316 Second, we will be providing[br]the kind of care 0:15:32.316,0:15:34.304 that we went into this profession to do, 0:15:34.304,0:15:37.065 not just checking the boxes 0:15:37.065,0:15:40.420 but really taking care of those we serve. 0:15:41.619,0:15:44.945 Thank you. 0:15:44.945,0:15:47.260 (Applause)