1 99:59:59,999 --> 99:59:59,999 Hi, I'm Beth Haller. 2 99:59:59,999 --> 99:59:59,999 I'm a professor of Mass Communication at Towsen University in Maryland. 3 99:59:59,999 --> 99:59:59,999 I also teach Disability Studies there and at several other campuses. 4 99:59:59,999 --> 99:59:59,999 I teach at City University of New York and their Disability Studies programme; 5 99:59:59,999 --> 99:59:59,999 I teach at York University in Toronto and their Disability Studies programme; 6 99:59:59,999 --> 99:59:59,999 I teach at University of Texas, Arlington and their Disability Studies minor. 7 99:59:59,999 --> 99:59:59,999 So I've been doing research since the early 90's 8 99:59:59,999 --> 99:59:59,999 about media representations of people with disabilities. 9 99:59:59,999 --> 99:59:59,999 So I have a kind of unique relationship to the ADA 10 99:59:59,999 --> 99:59:59,999 because I did my dissertation on how the news media covered it. 11 99:59:59,999 --> 99:59:59,999 So before I went to Temple University in Philadelphia to get my PhD, 12 99:59:59,999 --> 99:59:59,999 I was at University of Maryland College Park getting my Masters. 13 99:59:59,999 --> 99:59:59,999 I started that in 1989, 14 99:59:59,999 --> 99:59:59,999 and there's a reason for all these numbers (laughs) these dates, 15 99:59:59,999 --> 99:59:59,999 and in 1988 is when the Deaf President Now movement happened 16 99:59:59,999 --> 99:59:59,999 that gathered at university in DC, and I think somewhere in the back of my mind 17 99:59:59,999 --> 99:59:59,999 I knew about what was happening because I was a journalist before I became academic. 18 99:59:59,999 --> 99:59:59,999 So when I started at College Park in 1989 I ended up doing an article for a class 19 99:59:59,999 --> 99:59:59,999 about a deaf student at Gallaudet and I got very interested in the deaf community, 20 99:59:59,999 --> 99:59:59,999 there's a huge deaf community in the DC area. 21 99:59:59,999 --> 99:59:59,999 Doing my Masters thesis on how the deaf community was represented 22 99:59:59,999 --> 99:59:59,999 before, during and after Deaf President Now 23 99:59:59,999 --> 99:59:59,999 in the New York Times and the Washington Post, 24 99:59:59,999 --> 99:59:59,999 that was a jumping-off point. 25 99:59:59,999 --> 99:59:59,999 When I left College Park it was 1991 and so the ADA had just been passed 26 99:59:59,999 --> 99:59:59,999 and when I got to Temple to start working on my PhD 27 99:59:59,999 --> 99:59:59,999 I knew that I wanted to still work in the area of disability 28 99:59:59,999 --> 99:59:59,999 and we just had this major disability rights law passed. 29 99:59:59,999 --> 99:59:59,999 I remember it more as a focus of my research 30 99:59:59,999 --> 99:59:59,999 cause I don't necessarily remember seeing the actual coverage on the day it happened 31 99:59:59,999 --> 99:59:59,999 in 1990, but I do remember looking at all the coverage cause that was the subject 32 99:59:59,999 --> 99:59:59,999 of my dissertation. 33 99:59:59,999 --> 99:59:59,999 So it was really interesting to look at it as an academic 34 99:59:59,999 --> 99:59:59,999 and to kind of watch it happen and then not happen (laughs) 35 99:59:59,999 --> 99:59:59,999 as it moved into the future. 36 99:59:59,999 --> 99:59:59,999 So my dissertation looked at how the mainstream news media, 37 99:59:59,999 --> 99:59:59,999 you know, all the big news magazines and the major newspapers back then. 38 99:59:59,999 --> 99:59:59,999 So I finished my dissertation in '94, graduated in '95 39 99:59:59,999 --> 99:59:59,999 so it was very early days of the ADA so it wasn't really being implemented yet 40 99:59:59,999 --> 99:59:59,999 because they gave several years for people to get into compliance 41 99:59:59,999 --> 99:59:59,999 but as the years have passed it's been very interesting to watch how things 42 99:59:59,999 --> 99:59:59,999 weren't happening. 43 99:59:59,999 --> 99:59:59,999 And I think what we all thought was going to happen was: 44 99:59:59,999 --> 99:59:59,999 Congress was going to pass this major disability rights law 45 99:59:59,999 --> 99:59:59,999 and people would then follow it because it's now federal law 46 99:59:59,999 --> 99:59:59,999 not to discriminate based on disability 47 99:59:59,999 --> 99:59:59,999 but that isn't what happened (laughs). 48 99:59:59,999 --> 99:59:59,999 And from a media standpoint, that really kind of hurt ADA because- 49 99:59:59,999 --> 99:59:59,999 and I've even had this conversation with disability rights scholars and 50 99:59:59,999 --> 99:59:59,999 disability rights activists- because they I think thought 51 99:59:59,999 --> 99:59:59,999 in that same way that it's now law and everything will be fine, 52 99:59:59,999 --> 99:59:59,999 and there was such a history of being covered in the media so badly 53 99:59:59,999 --> 99:59:59,999 that the activists thought they could get this past and everything would be fine 54 99:59:59,999 --> 99:59:59,999 and they didn't need the media for anything. 55 99:59:59,999 --> 99:59:59,999 So I come onto the scene, I start going to Society for Disability studies, 56 99:59:59,999 --> 99:59:59,999 meetings in the early 90's, started presenting my research 57 99:59:59,999 --> 99:59:59,999 and even the disability community in those first early years right after the ADA 58 99:59:59,999 --> 99:59:59,999 didn't understand why the media was important. 59 99:59:59,999 --> 99:59:59,999 Because I remember presenting at a conference, 60 99:59:59,999 --> 99:59:59,999 at a Disability Studies conference, and people coming up to me and saying 61 99:59:59,999 --> 99:59:59,999 "That's really nice that you do work on media, but we have bigger things we 62 99:59:59,999 --> 99:59:59,999 need to be dealing with: getting people jobs, getting people proper education 63 99:59:59,999 --> 99:59:59,999 getting people out of nursing homes." My response to everybody was 64 99:59:59,999 --> 99:59:59,999 "How do you think you're going to do that if you're not getting out information 65 99:59:59,999 --> 99:59:59,999 into public opinion, so if you're not able to change public opinion 66 99:59:59,999 --> 99:59:59,999 how can you get these things accomplished? 67 99:59:59,999 --> 99:59:59,999 And how do you get public opinion changed? You get a proper narrative 68 99:59:59,999 --> 99:59:59,999 going in the media." And now there's actual disability studies, research 69 99:59:59,999 --> 99:59:59,999 and disability activists who've talked about this in the early 2000's 70 99:59:59,999 --> 99:59:59,999 about how they took the wrong tactic after the ADA was passed 71 99:59:59,999 --> 99:59:59,999 and decided that when it was passed it would get enforced. 72 99:59:59,999 --> 99:59:59,999 "Yay we can move on." Unfortunately the business narrative 73 99:59:59,999 --> 99:59:59,999 came into the mix and they controlled the message that was in the media. 74 99:59:59,999 --> 99:59:59,999 And so from quite a number of years after the ADA was passed, 75 99:59:59,999 --> 99:59:59,999 it wasn't being enforced because there was this narrative in the news media 76 99:59:59,999 --> 99:59:59,999 that it was an unfunded mandate and "Well, we never saw a person with a 77 99:59:59,999 --> 99:59:59,999 disability in our store, why do we have to do all this stuff?" 78 99:59:59,999 --> 99:59:59,999 Well of course, the reason they didn't see a person with a dis- as a wheelchair user 79 99:59:59,999 --> 99:59:59,999 in their store is because it wasn't accessible, or nobody came to their 80 99:59:59,999 --> 99:59:59,999 website because it was inaccessible (laughs) but they didn't get that. 81 99:59:59,999 --> 99:59:59,999 A lot of the journalists didn't know people in the disability community 82 99:59:59,999 --> 99:59:59,999 and the disability community was very wary of the news media 83 99:59:59,999 --> 99:59:59,999 because they'd done such a bad job, but any news coverage in my opinion is better 84 99:59:59,999 --> 99:59:59,999 than no news coverage usually (laughs). 85 99:59:59,999 --> 99:59:59,999 And so the business community really took over the narrative and had this really 86 99:59:59,999 --> 99:59:59,999 negative perception of the ADA that was funnelling into the media, 87 99:59:59,999 --> 99:59:59,999 and then people just didn't know about it cause it wasn't getting covered that much. 88 99:59:59,999 --> 99:59:59,999 There was a national poll done, I believe in, like, 1995, of Americans 89 99:59:59,999 --> 99:59:59,999 about what they knew about the ADA and other disability rights issues. 90 99:59:59,999 --> 99:59:59,999 Only 18% of Americans in 1995 had even heard of the American Disabilities Act 91 99:59:59,999 --> 99:59:59,999 if I'm remembering the stats right. 92 99:59:59,999 --> 99:59:59,999 To me, that is the fault of not engaging with media to do stories about that, 93 99:59:59,999 --> 99:59:59,999 and I know it's very difficult. 94 99:59:59,999 --> 99:59:59,999 Even today I know it's difficult to get the media to do a more complex, policy, 95 99:59:59,999 --> 99:59:59,999 legal, government related story about disability 96 99:59:59,999 --> 99:59:59,999 and not one of those inspiration narrative stories, 97 99:59:59,999 --> 99:59:59,999 but it's still worth fighting to try to get those stories into the media. 98 99:59:59,999 --> 99:59:59,999 And the other data point I would say, what I always tell my students when we're 99 99:59:59,999 --> 99:59:59,999 talking about the ADA: the ADA's enforcement depends on who's 100 99:59:59,999 --> 99:59:59,999 in the White House. 101 99:59:59,999 --> 99:59:59,999 So we had quite a number of Republican Presidents 102 99:59:59,999 --> 99:59:59,999 who did not care about the ADA being enforced for, like, 8 years, 103 99:59:59,999 --> 99:59:59,999 so that is why it really only got more enforced when Obama became President. 104 99:59:59,999 --> 99:59:59,999 There's a lot of external factors that meant that the ADA 105 99:59:59,999 --> 99:59:59,999 was not going to be changing things as radically as we would have hoped, 106 99:59:59,999 --> 99:59:59,999 or what we were thinking back in 1990. 107 99:59:59,999 --> 99:59:59,999 The ADA has had impact in more recent years since President Obama 108 99:59:59,999 --> 99:59:59,999 came into office and it was just getting enforced. 109 99:59:59,999 --> 99:59:59,999 I use a lot of these example in my class, of news stories about the ADA 110 99:59:59,999 --> 99:59:59,999 finally being implemented. 111 99:59:59,999 --> 99:59:59,999 A couple that I use, one is about a little city in Pennsylvania. 112 99:59:59,999 --> 99:59:59,999 The headlines of a lot of ADA stories, still, I say they have this blaming tone. 113 99:59:59,999 --> 99:59:59,999 "Things are expensive because of the ADA; things are closing because of the ADA." 114 99:59:59,999 --> 99:59:59,999 I always tell my students that narrative should be flipped. 115 99:59:59,999 --> 99:59:59,999 The story really is, "Why didn't this town in Pennsylvania comply with the ADA 116 99:59:59,999 --> 99:59:59,999 for however many years, 20 years." So that, to me is the real story. 117 99:59:59,999 --> 99:59:59,999 This one headline was about this town, I believe was Logansport, Pennsylvania, 118 99:59:59,999 --> 99:59:59,999 the headline was, "They must pay $8 million" for some kind of ADA compliance 119 99:59:59,999 --> 99:59:59,999 that they were finally going to do, I think in, like, 2008 or something. 120 99:59:59,999 --> 99:59:59,999 And I'm like, okay that $8 million would have been a lot less 121 99:59:59,999 --> 99:59:59,999 if they'd just been compliant back in 1992 like they were supposed to be compliant, 122 99:59:59,999 --> 99:59:59,999 but they're still blaming the ADA. 123 99:59:59,999 --> 99:59:59,999 But now I think people, the general public now knows a lot more 124 99:59:59,999 --> 99:59:59,999 and I actually chalk a lot of it up to social media, 125 99:59:59,999 --> 99:59:59,999 because now people are getting, not a mediated story through the news media 126 99:59:59,999 --> 99:59:59,999 and some journalist or some newscaster. 127 99:59:59,999 --> 99:59:59,999 They're actually on social media with people with disabilities 128 99:59:59,999 --> 99:59:59,999 and see what their life is like. 129 99:59:59,999 --> 99:59:59,999 And I know in the last couple of years when there was an assault on the ADA 130 99:59:59,999 --> 99:59:59,999 and people in Congress were thinking about and the President was thinking about 131 99:59:59,999 --> 99:59:59,999 figuring out a way to knock it out. 132 99:59:59,999 --> 99:59:59,999 I saw lots of allies on social media because they were finally aware that there 133 99:59:59,999 --> 99:59:59,999 was a disability rights law and they said it should stay, it should not be repealed, 134 99:59:59,999 --> 99:59:59,999 and so I think the media have a lot of power, 135 99:59:59,999 --> 99:59:59,999 and now that we have this very personal media of social media, 136 99:59:59,999 --> 99:59:59,999 people get to know actual people with disabilities in their community 137 99:59:59,999 --> 99:59:59,999 and they see the benefits of having things in braille or having captioning 138 99:59:59,999 --> 99:59:59,999 or having wheelchair ramps, or just thinking about asking somebody before 139 99:59:59,999 --> 99:59:59,999 you barrel ahead and create something that may be inaccessible. 140 99:59:59,999 --> 99:59:59,999 So I think the general public is a lot more aware than they were in 1995 141 99:59:59,999 --> 99:59:59,999 when only 18% of people had even heard of the ADA. 142 99:59:59,999 --> 99:59:59,999 And even if they haven't heard of the ADA, they're in favour of disability rights, 143 99:59:59,999 --> 99:59:59,999 and I think that one thing that came out of that survey, even back in 1995, 144 99:59:59,999 --> 99:59:59,999 is that, they might have never heard of the ADA, but if you pose to Americans 145 99:59:59,999 --> 99:59:59,999 the concept of disability rights then they agree with that. 146 99:59:59,999 --> 99:59:59,999 They don't think people should be discriminated against just because they 147 99:59:59,999 --> 99:59:59,999 need a ramp to get into a building or need a sign language interpreter 148 99:59:59,999 --> 99:59:59,999 to apply for a job. 149 99:59:59,999 --> 99:59:59,999 So I think there's a better feeling among the American public in terms of 150 99:59:59,999 --> 99:59:59,999 understanding disability rights and making sure that everybody has equal access. 151 99:59:59,999 --> 99:59:59,999 And also I think people now understand people with disabilities are them, 152 99:59:59,999 --> 99:59:59,999 are their friends, are their family members, and so a lot of the hidden stuff 153 99:59:59,999 --> 99:59:59,999 that was happening before the ADA where people with disabilities were being 154 99:59:59,999 --> 99:59:59,999 hidden in their families, where nobody talked about it, 155 99:59:59,999 --> 99:59:59,999 I even noticed that, in my teaching at Temple when I was a grad student, 156 99:59:59,999 --> 99:59:59,999 that the younger generation, because a lot of them had grown up 157 99:59:59,999 --> 99:59:59,999 in inclusive education, there was no shame they were proud to talk about their own 158 99:59:59,999 --> 99:59:59,999 disability, their parent's disability, their sibling's disability. 159 99:59:59,999 --> 99:59:59,999 I still remember a student, we had a discussion, actually one of my journalism 160 99:59:59,999 --> 99:59:59,999 classes, and one student, she was talking about, her mother was fluent in sign 161 99:59:59,999 --> 99:59:59,999 language cause both of her grandparents were deaf, so her mother's first language 162 99:59:59,999 --> 99:59:59,999 was sign language even though she was hearing. 163 99:59:59,999 --> 99:59:59,999 Another kid was like, "My brother has Down's Syndrome" 164 99:59:59,999 --> 99:59:59,999 and he said it with pride. 165 99:59:59,999 --> 99:59:59,999 So I think the cultural change that the ADA brought was really powerful too, 166 99:59:59,999 --> 99:59:59,999 cause that is what gets you to the place, if you're a business person, 167 99:59:59,999 --> 99:59:59,999 "Oh okay, maybe I should be more open to hiring somebody with Down's Syndrome 168 99:59:59,999 --> 99:59:59,999 to work in my grocery store, or whatever." 169 99:59:59,999 --> 99:59:59,999 So I think having that cultural change where people are now including 170 99:59:59,999 --> 99:59:59,999 the disability community as part of the American citizenry, 171 99:59:59,999 --> 99:59:59,999 then that is a very powerful thing, I think that the ADA did. 172 99:59:59,999 --> 99:59:59,999 Yeah. If the ADA stays around, I think that's a really good part of our future 173 99:59:59,999 --> 99:59:59,999 because it's a really good law. It was written really well, 174 99:59:59,999 --> 99:59:59,999 and it just needs to be enforced at all times. 175 99:59:59,999 --> 99:59:59,999 We learned about how it could be enforced in those 8 years that President Obama 176 99:59:59,999 --> 99:59:59,999 was in office, and I think we can continue to learn that. 177 99:59:59,999 --> 99:59:59,999 And the Justice Department and Department of Ed. and all the other federal agencies 178 99:59:59,999 --> 99:59:59,999 that enforce it, I think the community knows how to reach them 179 99:59:59,999 --> 99:59:59,999 and tell them to enforce things, 180 99:59:59,999 --> 99:59:59,999 and people are even getting a little bit better, even the business community 181 99:59:59,999 --> 99:59:59,999 understands now that people with disabilities are a major part of our 182 99:59:59,999 --> 99:59:59,999 consumer culture, and now with the pandemic and everybody working online, 183 99:59:59,999 --> 99:59:59,999 people with disabilities have been, can be the leaders. 184 99:59:59,999 --> 99:59:59,999 They're the ones that have been doing the workaround to try to make a living 185 99:59:59,999 --> 99:59:59,999 when they've not been able to go to an inaccessible building. 186 99:59:59,999 --> 99:59:59,999 So I think the future is bright if we will listen to disabled people about 187 99:59:59,999 --> 99:59:59,999 what the world needs to basically embrace everyone and accommodate everyone, 188 99:59:59,999 --> 99:59:59,999 and it'll be a better future for everyone because we talk about the hidden benefits 189 99:59:59,999 --> 99:59:59,999 of access for everyone, so think about all the people that use curb cuts 190 99:59:59,999 --> 99:59:59,999 for their wheelie luggage and all the UPS guys that use curb cuts 191 99:59:59,999 --> 99:59:59,999 for rolling their hand carts. All the bars that use closed caption cause they're loud 192 99:59:59,999 --> 99:59:59,999 So everybody gets benefits from disability related access and I think it can only get 193 99:59:59,999 --> 99:59:59,999 better, if people learn to trust that the disability community can lead us, 194 99:59:59,999 --> 99:59:59,999 because they're the ones who are most innovative and entrepreneurial 195 99:59:59,999 --> 99:59:59,999 about making sure that they can move forward in the most access-friendly ways. 196 99:59:59,999 --> 99:59:59,999 I think there should be a lot more listening to people with disabilities 197 99:59:59,999 --> 99:59:59,999 in the future cause they've already worked out the problems 198 99:59:59,999 --> 99:59:59,999 that we're now dealing with in a pandemic. 199 99:59:59,999 --> 99:59:59,999 I think they can help us build a future that's better for everyone, 200 99:59:59,999 --> 99:59:59,999 whether you have a disability or not. 201 99:59:59,999 --> 99:59:59,999 What steps can we take right now? 202 99:59:59,999 --> 99:59:59,999 I think if you're not a person with a disability, being a good ally. 203 99:59:59,999 --> 99:59:59,999 If you're a family member, being- helping to make sure that the person 204 99:59:59,999 --> 99:59:59,999 in your family with a disability is empowered to be independent, 205 99:59:59,999 --> 99:59:59,999 and giving them all the support they need. 206 99:59:59,999 --> 99:59:59,999 If you're a person with a disability, making sure that the world 207 99:59:59,999 --> 99:59:59,999 is accommodating to you. 208 99:59:59,999 --> 99:59:59,999 And everybody needs to focus on making the world completely accessible. 209 99:59:59,999 --> 99:59:59,999 A lot of people live in houses that cannot be made accessible, 210 99:59:59,999 --> 99:59:59,999 and a lot of things were grandfathered into the ADA because they were built long 211 99:59:59,999 --> 99:59:59,999 before the ADA existed, but there's other locations. 212 99:59:59,999 --> 99:59:59,999 There's online, there's video chatting, there's all kinds of workarounds 213 99:59:59,999 --> 99:59:59,999 that I think we can all embrace, and we got to quit whining about this stuff 214 99:59:59,999 --> 99:59:59,999 because, I'm talking to you in the middle of a pandemic (laughs). 215 99:59:59,999 --> 99:59:59,999 But I hear so many people complaining about things that I'm like, you know, 216 99:59:59,999 --> 99:59:59,999 this is all good, we can all still be connected, it's fine, 217 99:59:59,999 --> 99:59:59,999 and things are going to change, we need to learn to adapt. 218 99:59:59,999 --> 99:59:59,999 People with disabilities can teach us how to adapt, and they have a major disability 219 99:59:59,999 --> 99:59:59,999 rights organisation called Adapt as well (laughs). 220 99:59:59,999 --> 99:59:59,999 So I think that's the key for all of us, is to start learning to roll with it, 221 99:59:59,999 --> 99:59:59,999 learning to adapt and make sure that we're bringing everyone along 222 99:59:59,999 --> 99:59:59,999 into this new world that we're going to have to fashion post-pandemic, 223 99:59:59,999 --> 99:59:59,999 and that it's accessible to everyone, that we're all equal, 224 99:59:59,999 --> 99:59:59,999 that we're making sure that supports and what people need are in place, 225 99:59:59,999 --> 99:59:59,999 and then we can be a better community. 226 99:59:59,999 --> 99:59:59,999 It's kind of a weird time to be talking about all this (laughs). 227 99:59:59,999 --> 99:59:59,999 I mean, I know it's the ADA's 30th anniversary, I'm very glad that it's here 228 99:59:59,999 --> 99:59:59,999 and still exists, but I really feel like we can use the model of the ADA 229 99:59:59,999 --> 99:59:59,999 from 30 years ago as we move forward. 230 99:59:59,999 --> 99:59:59,999 We're going to have to restructure so much of our world, 231 99:59:59,999 --> 99:59:59,999 why not do it accessibly this time?