[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:01.14,0:00:04.95,Default,,0000,0000,0000,,For my husband,\Nit was love at first sight.
Dialogue: 0,0:00:04.98,0:00:06.25,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:00:06.27,0:00:07.86,Default,,0000,0000,0000,,Here's what happened.
Dialogue: 0,0:00:07.89,0:00:09.84,Default,,0000,0000,0000,,Years ago, Rudy,
Dialogue: 0,0:00:09.86,0:00:13.93,Default,,0000,0000,0000,,who I had strictly put\Nin the friend zone at the time,
Dialogue: 0,0:00:13.95,0:00:16.41,Default,,0000,0000,0000,,came over to my house and met my dad,
Dialogue: 0,0:00:16.43,0:00:19.55,Default,,0000,0000,0000,,a pharmaceutical scientist\Nwho had just retired
Dialogue: 0,0:00:19.58,0:00:21.78,Default,,0000,0000,0000,,after bringing a drug to market.
Dialogue: 0,0:00:22.34,0:00:23.67,Default,,0000,0000,0000,,My dad said,
Dialogue: 0,0:00:23.70,0:00:25.75,Default,,0000,0000,0000,,"Ah, you probably\Nwouldn't have heard of it.
Dialogue: 0,0:00:25.77,0:00:27.30,Default,,0000,0000,0000,,It's for IPF,
Dialogue: 0,0:00:27.33,0:00:30.33,Default,,0000,0000,0000,,idiopathic pulmonary fibrosis."
Dialogue: 0,0:00:30.64,0:00:34.56,Default,,0000,0000,0000,,Rudy paused for a long time,\Nand then he said,
Dialogue: 0,0:00:34.59,0:00:39.06,Default,,0000,0000,0000,,"That's the disease that took\Nmy father's life 15 years ago."
Dialogue: 0,0:00:40.02,0:00:43.10,Default,,0000,0000,0000,,Rudy says that this\Nis the moment he fell in love.
Dialogue: 0,0:00:43.13,0:00:44.90,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:00:44.92,0:00:46.07,Default,,0000,0000,0000,,With my father.
Dialogue: 0,0:00:46.10,0:00:48.24,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:00:48.85,0:00:52.34,Default,,0000,0000,0000,,Even though it was too late\Nfor my dad to save his,
Dialogue: 0,0:00:52.36,0:00:56.19,Default,,0000,0000,0000,,he felt that destiny had delivered us\Nthis full-circle moment.
Dialogue: 0,0:00:57.22,0:01:01.56,Default,,0000,0000,0000,,In my family, we have a special love\Nfor my father's inventions.
Dialogue: 0,0:01:01.59,0:01:04.95,Default,,0000,0000,0000,,And in particular, we have\Na reverence for his patents.
Dialogue: 0,0:01:05.50,0:01:09.46,Default,,0000,0000,0000,,We have framed patents\Non the wall in our house.
Dialogue: 0,0:01:09.89,0:01:14.55,Default,,0000,0000,0000,,And there's a recognition in our family\Nthat everything I've been able to do --
Dialogue: 0,0:01:14.57,0:01:17.94,Default,,0000,0000,0000,,college, law school,\Nhealth justice work --
Dialogue: 0,0:01:17.96,0:01:21.28,Default,,0000,0000,0000,,all of it is because America\Nenabled my father
Dialogue: 0,0:01:21.31,0:01:24.66,Default,,0000,0000,0000,,to fulfill his potential as an inventor.
Dialogue: 0,0:01:25.41,0:01:29.92,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:01:30.36,0:01:34.04,Default,,0000,0000,0000,,Last year, I met the director\Nof the US Patent Office
Dialogue: 0,0:01:34.07,0:01:35.26,Default,,0000,0000,0000,,for the first time,
Dialogue: 0,0:01:35.28,0:01:38.96,Default,,0000,0000,0000,,and I sent my family a selfie\Nfrom that office in Virginia.
Dialogue: 0,0:01:38.98,0:01:39.98,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:01:40.00,0:01:41.90,Default,,0000,0000,0000,,I got so many emojis back,
Dialogue: 0,0:01:41.92,0:01:44.32,Default,,0000,0000,0000,,you would have thought I had met Beyoncé.
Dialogue: 0,0:01:44.35,0:01:45.65,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:01:46.19,0:01:47.35,Default,,0000,0000,0000,,But truth be told,
Dialogue: 0,0:01:47.37,0:01:49.75,Default,,0000,0000,0000,,I was actually there\Nto talk about a problem --
Dialogue: 0,0:01:49.78,0:01:54.83,Default,,0000,0000,0000,,how our outdated patent system\Nis fueling the high cost of medicines
Dialogue: 0,0:01:54.86,0:01:56.63,Default,,0000,0000,0000,,and costing lives.
Dialogue: 0,0:01:57.32,0:02:01.67,Default,,0000,0000,0000,,Today, over two billion people\Nlive without access to medicines.
Dialogue: 0,0:02:01.70,0:02:03.66,Default,,0000,0000,0000,,And against this global crisis,
Dialogue: 0,0:02:03.68,0:02:05.93,Default,,0000,0000,0000,,drug prices are skyrocketing,
Dialogue: 0,0:02:05.95,0:02:08.33,Default,,0000,0000,0000,,including in wealthier countries.
Dialogue: 0,0:02:08.36,0:02:13.18,Default,,0000,0000,0000,,Thirty-four million Americans\Nhave lost a family member or a friend
Dialogue: 0,0:02:13.20,0:02:15.06,Default,,0000,0000,0000,,in the last five years,
Dialogue: 0,0:02:15.08,0:02:17.38,Default,,0000,0000,0000,,not because the treatment didn't exist,
Dialogue: 0,0:02:17.41,0:02:19.66,Default,,0000,0000,0000,,but because they couldn't afford it.
Dialogue: 0,0:02:20.29,0:02:24.22,Default,,0000,0000,0000,,Rising drug costs are pushing\Nfamilies into homelessness,
Dialogue: 0,0:02:24.25,0:02:26.58,Default,,0000,0000,0000,,seniors into bankruptcy
Dialogue: 0,0:02:26.60,0:02:30.94,Default,,0000,0000,0000,,and parents to crowdfunding treatment\Nfor their critically ill children.
Dialogue: 0,0:02:31.92,0:02:34.99,Default,,0000,0000,0000,,There are many reasons for this crisis,
Dialogue: 0,0:02:35.01,0:02:38.42,Default,,0000,0000,0000,,but one is the outdated patent system
Dialogue: 0,0:02:38.44,0:02:42.11,Default,,0000,0000,0000,,that America tries to export\Nto the rest of the world.
Dialogue: 0,0:02:43.03,0:02:45.69,Default,,0000,0000,0000,,The original intention\Nbehind the patent system
Dialogue: 0,0:02:45.71,0:02:48.24,Default,,0000,0000,0000,,was to motivate people to invent
Dialogue: 0,0:02:48.26,0:02:51.85,Default,,0000,0000,0000,,by rewarding them\Nwith a time-limited monopoly.
Dialogue: 0,0:02:51.88,0:02:56.18,Default,,0000,0000,0000,,But today, that intention\Nhas been distorted beyond recognition.
Dialogue: 0,0:02:56.66,0:02:59.88,Default,,0000,0000,0000,,Corporations have teams\Nof lawyers and lobbyists
Dialogue: 0,0:02:59.91,0:03:05.19,Default,,0000,0000,0000,,whose sole job is to extend\Npatent protection as long as possible.
Dialogue: 0,0:03:05.80,0:03:08.73,Default,,0000,0000,0000,,And they've kept the patent office busy.
Dialogue: 0,0:03:08.76,0:03:12.40,Default,,0000,0000,0000,,It took 155 years for the US Patent Office
Dialogue: 0,0:03:12.43,0:03:15.12,Default,,0000,0000,0000,,to issue its first five million patents.
Dialogue: 0,0:03:15.15,0:03:20.23,Default,,0000,0000,0000,,It took just 27 years\Nfor it to issue the next five million.
Dialogue: 0,0:03:20.70,0:03:23.80,Default,,0000,0000,0000,,We haven't gotten\Ndrastically more inventive.
Dialogue: 0,0:03:23.82,0:03:28.48,Default,,0000,0000,0000,,Corporations have gotten\Ndrastically better at gaming the system.
Dialogue: 0,0:03:28.95,0:03:31.20,Default,,0000,0000,0000,,Drug patents have exploded --
Dialogue: 0,0:03:31.22,0:03:35.93,Default,,0000,0000,0000,,between 2006 and 2016, they doubled.
Dialogue: 0,0:03:36.25,0:03:37.98,Default,,0000,0000,0000,,But consider this:
Dialogue: 0,0:03:38.66,0:03:44.31,Default,,0000,0000,0000,,The vast majority of medicines\Nassociated with new drug patents
Dialogue: 0,0:03:44.33,0:03:45.59,Default,,0000,0000,0000,,are not new.
Dialogue: 0,0:03:45.62,0:03:49.69,Default,,0000,0000,0000,,Nearly eight out of 10\Nare for existing ones,
Dialogue: 0,0:03:49.71,0:03:52.66,Default,,0000,0000,0000,,like insulin or aspirin.
Dialogue: 0,0:03:53.13,0:03:56.93,Default,,0000,0000,0000,,My organization,\Na team of lawyers and scientists,
Dialogue: 0,0:03:56.95,0:04:02.53,Default,,0000,0000,0000,,recently conducted an investigation\Ninto the 12 best-selling drugs in America.
Dialogue: 0,0:04:02.55,0:04:04.66,Default,,0000,0000,0000,,We found that, on average,
Dialogue: 0,0:04:04.69,0:04:09.76,Default,,0000,0000,0000,,there are 125 patents\Nfiled on each medicine.
Dialogue: 0,0:04:10.20,0:04:13.40,Default,,0000,0000,0000,,Often for things we've known\Nhow to do for decades,
Dialogue: 0,0:04:13.42,0:04:16.28,Default,,0000,0000,0000,,like putting two pills into one.
Dialogue: 0,0:04:16.86,0:04:19.97,Default,,0000,0000,0000,,The higher a patent wall a company builds,
Dialogue: 0,0:04:19.99,0:04:22.63,Default,,0000,0000,0000,,the longer they hold on to their monopoly.
Dialogue: 0,0:04:22.65,0:04:24.95,Default,,0000,0000,0000,,And with no one to compete with,
Dialogue: 0,0:04:24.98,0:04:27.29,Default,,0000,0000,0000,,they can set prices at whim.
Dialogue: 0,0:04:27.32,0:04:29.31,Default,,0000,0000,0000,,And because these are medicines
Dialogue: 0,0:04:29.33,0:04:31.42,Default,,0000,0000,0000,,and not designer watches,
Dialogue: 0,0:04:31.44,0:04:33.99,Default,,0000,0000,0000,,we have no choice but to pay.
Dialogue: 0,0:04:34.68,0:04:38.69,Default,,0000,0000,0000,,The patent wall is a strategy\Nto block competition.
Dialogue: 0,0:04:39.08,0:04:42.27,Default,,0000,0000,0000,,Not for the 14 years maximum
Dialogue: 0,0:04:42.29,0:04:45.96,Default,,0000,0000,0000,,that America's founders\Noriginally envisioned,
Dialogue: 0,0:04:45.99,0:04:49.37,Default,,0000,0000,0000,,or the 20 years allowed by law today,
Dialogue: 0,0:04:49.40,0:04:52.40,Default,,0000,0000,0000,,but for 40 years or more.
Dialogue: 0,0:04:52.85,0:04:56.68,Default,,0000,0000,0000,,Meanwhile, prices on these drugs\Nhave continued to increase --
Dialogue: 0,0:04:56.70,0:04:59.63,Default,,0000,0000,0000,,68 percent since 2012.
Dialogue: 0,0:05:00.31,0:05:04.02,Default,,0000,0000,0000,,That's seven times the rate of inflation.
Dialogue: 0,0:05:04.73,0:05:07.35,Default,,0000,0000,0000,,And people are struggling or even dying,
Dialogue: 0,0:05:07.37,0:05:09.70,Default,,0000,0000,0000,,because they can't afford the meds.
Dialogue: 0,0:05:10.91,0:05:13.44,Default,,0000,0000,0000,,Now I want to be really clear\Nabout something.
Dialogue: 0,0:05:13.47,0:05:17.50,Default,,0000,0000,0000,,This isn't about making\Nthe pharmaceutical industry the bad guy.
Dialogue: 0,0:05:17.52,0:05:19.66,Default,,0000,0000,0000,,What I'm talking about today
Dialogue: 0,0:05:19.68,0:05:23.68,Default,,0000,0000,0000,,is whether the system we created\Nto promote progress
Dialogue: 0,0:05:23.70,0:05:26.26,Default,,0000,0000,0000,,is actually working as intended.
Dialogue: 0,0:05:27.12,0:05:31.03,Default,,0000,0000,0000,,Sure, the pharmaceutical companies\Nare gaming the system,
Dialogue: 0,0:05:31.06,0:05:34.02,Default,,0000,0000,0000,,but they're gaming it because they can.
Dialogue: 0,0:05:34.04,0:05:37.66,Default,,0000,0000,0000,,Because we have failed\Nto adapt this system
Dialogue: 0,0:05:37.68,0:05:40.13,Default,,0000,0000,0000,,to meet today's realities.
Dialogue: 0,0:05:40.15,0:05:41.76,Default,,0000,0000,0000,,The government is handing out
Dialogue: 0,0:05:41.78,0:05:45.09,Default,,0000,0000,0000,,one of the most prized\Nrewards in business --
Dialogue: 0,0:05:45.12,0:05:50.47,Default,,0000,0000,0000,,the opportunity to create a product\Nthat is protected from competition --
Dialogue: 0,0:05:50.49,0:05:54.24,Default,,0000,0000,0000,,and asking for less and less\Nin return on our behalf.
Dialogue: 0,0:05:54.72,0:06:00.72,Default,,0000,0000,0000,,Imagine awarding 100 Pulitzer Prizes\Nto one author for the same book.
Dialogue: 0,0:06:00.74,0:06:02.02,Default,,0000,0000,0000,,(Murmurs)
Dialogue: 0,0:06:02.74,0:06:04.70,Default,,0000,0000,0000,,It doesn't have to be this way.
Dialogue: 0,0:06:04.72,0:06:07.78,Default,,0000,0000,0000,,We can create a modern patent system
Dialogue: 0,0:06:07.80,0:06:11.22,Default,,0000,0000,0000,,to meet the needs\Nof a 21st-century society.
Dialogue: 0,0:06:11.24,0:06:12.44,Default,,0000,0000,0000,,And to do that,
Dialogue: 0,0:06:12.47,0:06:15.82,Default,,0000,0000,0000,,we need to reimagine the patent system\Nto serve the public,
Dialogue: 0,0:06:15.85,0:06:17.93,Default,,0000,0000,0000,,not just corporations.
Dialogue: 0,0:06:18.74,0:06:20.00,Default,,0000,0000,0000,,So how do we do it?
Dialogue: 0,0:06:20.75,0:06:22.17,Default,,0000,0000,0000,,Five reforms.
Dialogue: 0,0:06:22.63,0:06:26.33,Default,,0000,0000,0000,,First, we need to stop\Nhanding out so many patents.
Dialogue: 0,0:06:27.08,0:06:29.18,Default,,0000,0000,0000,,Back under the Kennedy administration,
Dialogue: 0,0:06:29.20,0:06:32.75,Default,,0000,0000,0000,,in an effort to curb rising drug costs,
Dialogue: 0,0:06:32.78,0:06:35.74,Default,,0000,0000,0000,,a congressman from Tennessee\Nproposed an idea.
Dialogue: 0,0:06:36.21,0:06:37.53,Default,,0000,0000,0000,,He said,
Dialogue: 0,0:06:37.55,0:06:39.16,Default,,0000,0000,0000,,"If you want to tweak a drug,
Dialogue: 0,0:06:39.18,0:06:41.58,Default,,0000,0000,0000,,and you want to get another patent on it,
Dialogue: 0,0:06:41.60,0:06:45.77,Default,,0000,0000,0000,,the modified version has to be\Nsignificantly better, therapeutically,
Dialogue: 0,0:06:45.79,0:06:46.94,Default,,0000,0000,0000,,for patients."
Dialogue: 0,0:06:47.42,0:06:49.04,Default,,0000,0000,0000,,Because of intense lobbying,
Dialogue: 0,0:06:49.06,0:06:51.53,Default,,0000,0000,0000,,this idea never saw the light of day.
Dialogue: 0,0:06:52.46,0:06:55.08,Default,,0000,0000,0000,,But a reimagined patent system
Dialogue: 0,0:06:55.10,0:07:00.12,Default,,0000,0000,0000,,would resurrect and evolve\Nthis simple, yet elegant proposition.
Dialogue: 0,0:07:00.15,0:07:01.54,Default,,0000,0000,0000,,That to get a patent,
Dialogue: 0,0:07:01.57,0:07:04.81,Default,,0000,0000,0000,,you have to invent something\Nsubstantially better
Dialogue: 0,0:07:04.84,0:07:06.89,Default,,0000,0000,0000,,than what's already out there.
Dialogue: 0,0:07:06.92,0:07:09.24,Default,,0000,0000,0000,,This shouldn't be controversial.
Dialogue: 0,0:07:09.26,0:07:10.66,Default,,0000,0000,0000,,As a society,
Dialogue: 0,0:07:10.69,0:07:14.92,Default,,0000,0000,0000,,we reserve the big rewards\Nfor the big ideas.
Dialogue: 0,0:07:14.94,0:07:19.11,Default,,0000,0000,0000,,We don't give Michelin stars\Nto chefs who just tweak a recipe --
Dialogue: 0,0:07:19.13,0:07:23.56,Default,,0000,0000,0000,,we give them to chefs who change\Nhow we think about food.
Dialogue: 0,0:07:23.58,0:07:26.60,Default,,0000,0000,0000,,And yet, we hand out patents\Nworth billions of dollars
Dialogue: 0,0:07:26.63,0:07:28.50,Default,,0000,0000,0000,,for minor changes.
Dialogue: 0,0:07:28.52,0:07:30.32,Default,,0000,0000,0000,,It's time to raise the bar.
Dialogue: 0,0:07:31.50,0:07:33.08,Default,,0000,0000,0000,,Second,
Dialogue: 0,0:07:33.10,0:07:37.51,Default,,0000,0000,0000,,we need to change the financial incentives\Nof the Patent Office.
Dialogue: 0,0:07:37.54,0:07:40.09,Default,,0000,0000,0000,,Right now, the revenue\Nof the Patent Office
Dialogue: 0,0:07:40.12,0:07:44.01,Default,,0000,0000,0000,,is directly linked to the number\Nof patents that it grants.
Dialogue: 0,0:07:45.29,0:07:50.88,Default,,0000,0000,0000,,That's like private prisons\Ngetting paid more to hold more people --
Dialogue: 0,0:07:50.90,0:07:54.68,Default,,0000,0000,0000,,it naturally leads to more incarceration,
Dialogue: 0,0:07:54.70,0:07:56.10,Default,,0000,0000,0000,,not less.
Dialogue: 0,0:07:56.12,0:07:58.70,Default,,0000,0000,0000,,The same is true for patents.
Dialogue: 0,0:08:00.17,0:08:04.07,Default,,0000,0000,0000,,Third, we need more public participation.
Dialogue: 0,0:08:04.09,0:08:07.18,Default,,0000,0000,0000,,Right now, the patent system\Nis like a black box.
Dialogue: 0,0:08:07.20,0:08:12.63,Default,,0000,0000,0000,,It's a two-way conversation\Nbetween the patent office and industry.
Dialogue: 0,0:08:12.65,0:08:15.70,Default,,0000,0000,0000,,You and I aren't invited to that party.
Dialogue: 0,0:08:16.45,0:08:18.54,Default,,0000,0000,0000,,But imagine if instead,
Dialogue: 0,0:08:18.56,0:08:24.20,Default,,0000,0000,0000,,the Patent Office became a dynamic center\Nfor citizen learning and ingenuity,
Dialogue: 0,0:08:24.22,0:08:28.27,Default,,0000,0000,0000,,staffed not just by technical\Nexperts and bureaucrats,
Dialogue: 0,0:08:28.29,0:08:31.71,Default,,0000,0000,0000,,but also by great\Npublic-health storytellers
Dialogue: 0,0:08:31.73,0:08:34.11,Default,,0000,0000,0000,,with a passion for science.
Dialogue: 0,0:08:34.13,0:08:38.06,Default,,0000,0000,0000,,Regular citizens could get\Naccessible information
Dialogue: 0,0:08:38.08,0:08:40.09,Default,,0000,0000,0000,,about complex technologies
Dialogue: 0,0:08:40.11,0:08:43.94,Default,,0000,0000,0000,,like artificial intelligence\Nor gene editing,
Dialogue: 0,0:08:43.96,0:08:48.50,Default,,0000,0000,0000,,enabling us to participate\Nin the policy conversations
Dialogue: 0,0:08:48.53,0:08:51.96,Default,,0000,0000,0000,,that directly impact our health and lives.
Dialogue: 0,0:08:53.95,0:08:55.10,Default,,0000,0000,0000,,Fourth,
Dialogue: 0,0:08:56.10,0:08:58.76,Default,,0000,0000,0000,,we need to get the right to go to court.
Dialogue: 0,0:08:59.24,0:09:02.89,Default,,0000,0000,0000,,Right now in America,\Nafter a patent is granted,
Dialogue: 0,0:09:02.91,0:09:05.57,Default,,0000,0000,0000,,the public has no legal standing.
Dialogue: 0,0:09:05.90,0:09:10.81,Default,,0000,0000,0000,,Only those with a commercial interest,\Nusually other drug companies,
Dialogue: 0,0:09:10.83,0:09:12.24,Default,,0000,0000,0000,,have that right.
Dialogue: 0,0:09:12.68,0:09:16.39,Default,,0000,0000,0000,,But I've witnessed firsthand\Nhow lives can be saved
Dialogue: 0,0:09:16.41,0:09:19.83,Default,,0000,0000,0000,,when everyday citizens\Nhave the right to go to court.
Dialogue: 0,0:09:20.72,0:09:22.93,Default,,0000,0000,0000,,Back in 2006 in India,
Dialogue: 0,0:09:22.95,0:09:26.07,Default,,0000,0000,0000,,my organization worked\Nwith patient advocates
Dialogue: 0,0:09:26.10,0:09:30.49,Default,,0000,0000,0000,,to challenge, legally,\Nunjust HIV drug patents,
Dialogue: 0,0:09:30.52,0:09:33.45,Default,,0000,0000,0000,,at a time when so many people were dying
Dialogue: 0,0:09:33.47,0:09:36.24,Default,,0000,0000,0000,,because medicines\Nwere priced out of reach.
Dialogue: 0,0:09:36.27,0:09:38.81,Default,,0000,0000,0000,,We were able to bring down\Nthe prices of medicines
Dialogue: 0,0:09:38.83,0:09:40.98,Default,,0000,0000,0000,,by up to 87 percent.
Dialogue: 0,0:09:41.01,0:09:45.82,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:09:45.85,0:09:47.74,Default,,0000,0000,0000,,On just three drugs,
Dialogue: 0,0:09:47.76,0:09:51.67,Default,,0000,0000,0000,,we were able to save health systems\Nhalf a billion dollars.
Dialogue: 0,0:09:52.21,0:09:57.28,Default,,0000,0000,0000,,Now, cases like these\Ncan save millions of lives
Dialogue: 0,0:09:57.30,0:09:59.41,Default,,0000,0000,0000,,and billions of dollars.
Dialogue: 0,0:09:59.43,0:10:03.25,Default,,0000,0000,0000,,Imagine if Americans\Nhad the right to go to court, too.
Dialogue: 0,0:10:05.26,0:10:08.87,Default,,0000,0000,0000,,And lastly, we need stronger oversight.
Dialogue: 0,0:10:09.97,0:10:15.48,Default,,0000,0000,0000,,We need an independent unit\Nthat can serve as a public advocate,
Dialogue: 0,0:10:15.50,0:10:18.97,Default,,0000,0000,0000,,regularly monitoring the activities\Nof the Patent Office,
Dialogue: 0,0:10:18.99,0:10:20.95,Default,,0000,0000,0000,,and reporting to Congress.
Dialogue: 0,0:10:21.59,0:10:23.58,Default,,0000,0000,0000,,If a unit like this had existed,
Dialogue: 0,0:10:23.61,0:10:28.24,Default,,0000,0000,0000,,it would have caught, for example,\Nthe Silicon Valley company Theranos,
Dialogue: 0,0:10:28.27,0:10:32.02,Default,,0000,0000,0000,,before it got so many patents\Nfor blood testing
Dialogue: 0,0:10:32.05,0:10:35.57,Default,,0000,0000,0000,,and landed evaluation\Nof nine billion dollars,
Dialogue: 0,0:10:35.59,0:10:36.85,Default,,0000,0000,0000,,when in reality,
Dialogue: 0,0:10:36.87,0:10:39.27,Default,,0000,0000,0000,,there was no invention there at all.
Dialogue: 0,0:10:39.67,0:10:44.58,Default,,0000,0000,0000,,This kind of accountability\Nis going to become increasingly urgent.
Dialogue: 0,0:10:44.61,0:10:46.87,Default,,0000,0000,0000,,In the age of 23andMe,
Dialogue: 0,0:10:46.89,0:10:49.01,Default,,0000,0000,0000,,important questions are being asked
Dialogue: 0,0:10:49.03,0:10:52.29,Default,,0000,0000,0000,,about whether companies\Ncan patent and sell
Dialogue: 0,0:10:52.32,0:10:55.98,Default,,0000,0000,0000,,our genetic information\Nand our patient data.
Dialogue: 0,0:10:56.00,0:10:58.68,Default,,0000,0000,0000,,We need to be part of those conversations
Dialogue: 0,0:10:58.70,0:11:00.28,Default,,0000,0000,0000,,before it's too late.
Dialogue: 0,0:11:00.82,0:11:05.11,Default,,0000,0000,0000,,Our information is being used\Nto create the new therapies.
Dialogue: 0,0:11:05.13,0:11:09.67,Default,,0000,0000,0000,,And when that moment of diagnosis\Ncomes for me and my family,
Dialogue: 0,0:11:09.70,0:11:11.59,Default,,0000,0000,0000,,or for you and yours,
Dialogue: 0,0:11:11.62,0:11:15.83,Default,,0000,0000,0000,,are we going to have to crowdfund\Nto save the lives of those we love?
Dialogue: 0,0:11:16.66,0:11:19.16,Default,,0000,0000,0000,,That's not the world I want to live in.
Dialogue: 0,0:11:19.18,0:11:22.58,Default,,0000,0000,0000,,It's not the world I want\Nfor my two-year-old son.
Dialogue: 0,0:11:24.26,0:11:28.16,Default,,0000,0000,0000,,My dad is growing older now,
Dialogue: 0,0:11:28.19,0:11:32.98,Default,,0000,0000,0000,,and he is still as quietly brilliant\Nand morally directed as ever.
Dialogue: 0,0:11:33.48,0:11:37.39,Default,,0000,0000,0000,,Sometimes people ask us\Nwhether things get heated between us:
Dialogue: 0,0:11:37.41,0:11:39.28,Default,,0000,0000,0000,,the patent-holding scientist
Dialogue: 0,0:11:39.30,0:11:42.04,Default,,0000,0000,0000,,and his patent-reforming lawyer daughter.
Dialogue: 0,0:11:43.38,0:11:47.98,Default,,0000,0000,0000,,It's such a profound misunderstanding\Nof what's at stake,
Dialogue: 0,0:11:48.00,0:11:51.98,Default,,0000,0000,0000,,because this is not\Nabout scientists versus activists
Dialogue: 0,0:11:52.00,0:11:54.72,Default,,0000,0000,0000,,or invention versus protection.
Dialogue: 0,0:11:54.74,0:11:56.79,Default,,0000,0000,0000,,This is about people,
Dialogue: 0,0:11:56.81,0:12:00.14,Default,,0000,0000,0000,,our quest to invent and our right to live.
Dialogue: 0,0:12:00.63,0:12:04.77,Default,,0000,0000,0000,,My dad and I understand\Nthat our ingenuity and our dignity
Dialogue: 0,0:12:04.79,0:12:07.26,Default,,0000,0000,0000,,go hand in hand.
Dialogue: 0,0:12:07.28,0:12:09.57,Default,,0000,0000,0000,,We are on the same side.
Dialogue: 0,0:12:09.87,0:12:13.10,Default,,0000,0000,0000,,It is time to reimagine a patent system
Dialogue: 0,0:12:13.12,0:12:15.30,Default,,0000,0000,0000,,that reflects that knowing.
Dialogue: 0,0:12:15.71,0:12:16.86,Default,,0000,0000,0000,,Thank you.
Dialogue: 0,0:12:16.88,0:12:21.50,Default,,0000,0000,0000,,(Applause)