[Script Info] Title: [Events] Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text Dialogue: 0,0:00:01.14,0:00:04.95,Default,,0000,0000,0000,,For my husband,\Nit was love at first sight. Dialogue: 0,0:00:04.98,0:00:06.25,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:00:06.27,0:00:07.86,Default,,0000,0000,0000,,Here's what happened. Dialogue: 0,0:00:07.89,0:00:09.84,Default,,0000,0000,0000,,Years ago, Rudy, Dialogue: 0,0:00:09.86,0:00:13.93,Default,,0000,0000,0000,,who I had strictly put\Nin the friend zone at the time, Dialogue: 0,0:00:13.95,0:00:16.41,Default,,0000,0000,0000,,came over to my house and met my dad, Dialogue: 0,0:00:16.43,0:00:19.55,Default,,0000,0000,0000,,a pharmaceutical scientist\Nwho had just retired Dialogue: 0,0:00:19.58,0:00:21.78,Default,,0000,0000,0000,,after bringing a drug to market. Dialogue: 0,0:00:22.34,0:00:23.67,Default,,0000,0000,0000,,My dad said, Dialogue: 0,0:00:23.70,0:00:25.75,Default,,0000,0000,0000,,"Ah, you probably\Nwouldn't have heard of it. Dialogue: 0,0:00:25.77,0:00:27.30,Default,,0000,0000,0000,,It's for IPF, Dialogue: 0,0:00:27.33,0:00:30.33,Default,,0000,0000,0000,,idiopathic pulmonary fibrosis." Dialogue: 0,0:00:30.64,0:00:34.56,Default,,0000,0000,0000,,Rudy paused for a long time,\Nand then he said, Dialogue: 0,0:00:34.59,0:00:39.06,Default,,0000,0000,0000,,"That's the disease that took\Nmy father's life 15 years ago." Dialogue: 0,0:00:40.02,0:00:43.10,Default,,0000,0000,0000,,Rudy says that this\Nis the moment he fell in love. Dialogue: 0,0:00:43.13,0:00:44.90,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:00:44.92,0:00:46.07,Default,,0000,0000,0000,,With my father. Dialogue: 0,0:00:46.10,0:00:48.24,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:00:48.85,0:00:52.34,Default,,0000,0000,0000,,Even though it was too late\Nfor my dad to save his, Dialogue: 0,0:00:52.36,0:00:56.19,Default,,0000,0000,0000,,he felt that destiny had delivered us\Nthis full-circle moment. Dialogue: 0,0:00:57.22,0:01:01.56,Default,,0000,0000,0000,,In my family, we have a special love\Nfor my father's inventions. Dialogue: 0,0:01:01.59,0:01:04.95,Default,,0000,0000,0000,,And in particular, we have\Na reverence for his patents. Dialogue: 0,0:01:05.50,0:01:09.46,Default,,0000,0000,0000,,We have framed patents\Non the wall in our house. Dialogue: 0,0:01:09.89,0:01:12.22,Default,,0000,0000,0000,,And there's a recognition in our family Dialogue: 0,0:01:12.24,0:01:14.55,Default,,0000,0000,0000,,that everything I've been able to do, Dialogue: 0,0:01:14.57,0:01:17.94,Default,,0000,0000,0000,,college, law school, health justice work, Dialogue: 0,0:01:17.96,0:01:21.28,Default,,0000,0000,0000,,all of it is because America\Nenabled my father Dialogue: 0,0:01:21.31,0:01:24.66,Default,,0000,0000,0000,,to fulfill his potential as an inventor. Dialogue: 0,0:01:25.41,0:01:29.92,Default,,0000,0000,0000,,(Applause) Dialogue: 0,0:01:30.36,0:01:34.04,Default,,0000,0000,0000,,Last year, I met the director\Nof the US Patent Office Dialogue: 0,0:01:34.07,0:01:35.26,Default,,0000,0000,0000,,for the first time, Dialogue: 0,0:01:35.28,0:01:38.96,Default,,0000,0000,0000,,and I sent my family a selfie\Nfrom that office in Virginia. Dialogue: 0,0:01:38.98,0:01:39.98,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:01:40.00,0:01:41.90,Default,,0000,0000,0000,,I got so many emojis back, Dialogue: 0,0:01:41.92,0:01:44.32,Default,,0000,0000,0000,,you would have thought I had met Beyonce. Dialogue: 0,0:01:44.35,0:01:45.65,Default,,0000,0000,0000,,(Laughter) Dialogue: 0,0:01:46.19,0:01:47.35,Default,,0000,0000,0000,,But truth be told, Dialogue: 0,0:01:47.37,0:01:49.75,Default,,0000,0000,0000,,I was actually there\Nto talk about a problem. Dialogue: 0,0:01:49.78,0:01:52.19,Default,,0000,0000,0000,,How our outdated patent system Dialogue: 0,0:01:52.21,0:01:54.83,Default,,0000,0000,0000,,is fueling the high cost of medicines Dialogue: 0,0:01:54.86,0:01:56.63,Default,,0000,0000,0000,,and costing lives. Dialogue: 0,0:01:57.32,0:02:01.67,Default,,0000,0000,0000,,Today, over two billion people\Nlive without access to medicines. Dialogue: 0,0:02:01.70,0:02:03.66,Default,,0000,0000,0000,,And against this global crisis, Dialogue: 0,0:02:03.68,0:02:05.93,Default,,0000,0000,0000,,drug prices are skyrocketing, Dialogue: 0,0:02:05.95,0:02:08.33,Default,,0000,0000,0000,,including in wealthier countries. Dialogue: 0,0:02:08.36,0:02:13.18,Default,,0000,0000,0000,,Thirty-four million Americans\Nhave lost a family member or a friend Dialogue: 0,0:02:13.20,0:02:15.06,Default,,0000,0000,0000,,in the last five years, Dialogue: 0,0:02:15.08,0:02:17.38,Default,,0000,0000,0000,,not because the treatment didn't exist, Dialogue: 0,0:02:17.41,0:02:19.81,Default,,0000,0000,0000,,but because they couldn't afford it. Dialogue: 0,0:02:20.29,0:02:24.22,Default,,0000,0000,0000,,Rising drug costs are pushing\Nfamilies into homelessness, Dialogue: 0,0:02:24.25,0:02:26.58,Default,,0000,0000,0000,,seniors into bankruptcy Dialogue: 0,0:02:26.60,0:02:30.94,Default,,0000,0000,0000,,and parents to crowdfunding treatment\Nfor their critically ill children. Dialogue: 0,0:02:31.92,0:02:34.99,Default,,0000,0000,0000,,There are many reasons for this crisis. Dialogue: 0,0:02:35.01,0:02:38.42,Default,,0000,0000,0000,,But one is the outdated patent system Dialogue: 0,0:02:38.44,0:02:42.11,Default,,0000,0000,0000,,that America tries to export\Nto the rest of the world. Dialogue: 0,0:02:43.03,0:02:45.69,Default,,0000,0000,0000,,The original intention\Nbehind the patent system Dialogue: 0,0:02:45.71,0:02:48.24,Default,,0000,0000,0000,,was to motivate people to invent Dialogue: 0,0:02:48.26,0:02:51.85,Default,,0000,0000,0000,,by rewarding them\Nwith a time-limited monopoly. Dialogue: 0,0:02:51.88,0:02:56.18,Default,,0000,0000,0000,,But today, that intention\Nhas been distorted beyond recognition. Dialogue: 0,0:02:56.66,0:02:59.88,Default,,0000,0000,0000,,Corporations have teams\Nof lawyers and lobbyists Dialogue: 0,0:02:59.91,0:03:05.19,Default,,0000,0000,0000,,whose sole job is to extend\Npatent protection as long as possible. Dialogue: 0,0:03:05.80,0:03:08.73,Default,,0000,0000,0000,,And they've kept the patent office busy. Dialogue: 0,0:03:08.76,0:03:12.40,Default,,0000,0000,0000,,It took 155 years for the US patent office Dialogue: 0,0:03:12.43,0:03:15.12,Default,,0000,0000,0000,,to issue its first five million patents. Dialogue: 0,0:03:15.15,0:03:20.23,Default,,0000,0000,0000,,It took just 27 years\Nfor it to issue the next five million. Dialogue: 0,0:03:20.70,0:03:23.80,Default,,0000,0000,0000,,We haven't gotten\Ndrastically more inventive. Dialogue: 0,0:03:23.82,0:03:28.48,Default,,0000,0000,0000,,Corporations have gotten\Ndrastically better at gaming the system. Dialogue: 0,0:03:28.95,0:03:31.20,Default,,0000,0000,0000,,Drug patents have exploded. Dialogue: 0,0:03:31.22,0:03:35.93,Default,,0000,0000,0000,,Between 2006 and 2016, they doubled. Dialogue: 0,0:03:36.25,0:03:37.98,Default,,0000,0000,0000,,But consider this: Dialogue: 0,0:03:38.66,0:03:44.31,Default,,0000,0000,0000,,The vast majority of medicines\Nassociated with new drug patents Dialogue: 0,0:03:44.33,0:03:45.59,Default,,0000,0000,0000,,are not new. Dialogue: 0,0:03:45.62,0:03:49.69,Default,,0000,0000,0000,,Nearly eight out of 10\Nare for existing ones, Dialogue: 0,0:03:49.71,0:03:52.66,Default,,0000,0000,0000,,like insulin or aspirin. Dialogue: 0,0:03:53.13,0:03:56.93,Default,,0000,0000,0000,,My organization,\Na team of lawyers and scientists Dialogue: 0,0:03:56.95,0:03:59.17,Default,,0000,0000,0000,,recently conducted an investigation Dialogue: 0,0:03:59.20,0:04:02.53,Default,,0000,0000,0000,,into the 12 best-selling drugs in America. Dialogue: 0,0:04:02.55,0:04:04.66,Default,,0000,0000,0000,,We found that on average Dialogue: 0,0:04:04.69,0:04:09.76,Default,,0000,0000,0000,,there are 125 patents\Nfiled on each medicine. Dialogue: 0,0:04:10.20,0:04:13.40,Default,,0000,0000,0000,,Often for things we've known\N[unclear] for decades, Dialogue: 0,0:04:13.42,0:04:16.28,Default,,0000,0000,0000,,like putting two pills into one. Dialogue: 0,0:04:16.86,0:04:19.97,Default,,0000,0000,0000,,The higher a patent wall a company builds, Dialogue: 0,0:04:19.99,0:04:22.63,Default,,0000,0000,0000,,the longer they hold on to their monopoly. Dialogue: 0,0:04:22.65,0:04:24.95,Default,,0000,0000,0000,,And with no one to compete with, Dialogue: 0,0:04:24.98,0:04:27.29,Default,,0000,0000,0000,,they can set prices at whim. Dialogue: 0,0:04:27.32,0:04:29.31,Default,,0000,0000,0000,,And because these are medicines, Dialogue: 0,0:04:29.33,0:04:31.42,Default,,0000,0000,0000,,and not designer watches, Dialogue: 0,0:04:31.44,0:04:33.99,Default,,0000,0000,0000,,we have no choice but to pay. Dialogue: 0,0:04:34.68,0:04:38.69,Default,,0000,0000,0000,,The patent wall is a strategy\Nto block competition. Dialogue: 0,0:04:39.08,0:04:42.27,Default,,0000,0000,0000,,Not for the 14 years maximum Dialogue: 0,0:04:42.29,0:04:45.96,Default,,0000,0000,0000,,that America's founders\Noriginally envisioned, Dialogue: 0,0:04:45.99,0:04:48.97,Default,,0000,0000,0000,,or the 20 years allowed by law today. Dialogue: 0,0:04:49.40,0:04:52.40,Default,,0000,0000,0000,,But for 40 years or more. Dialogue: 0,0:04:52.85,0:04:56.68,Default,,0000,0000,0000,,Meanwhile, prices on these drugs\Nhave continued to increase, Dialogue: 0,0:04:56.70,0:04:59.63,Default,,0000,0000,0000,,68 percent since 2012. Dialogue: 0,0:05:00.31,0:05:04.02,Default,,0000,0000,0000,,That's seven times the rate of inflation. Dialogue: 0,0:05:04.73,0:05:07.35,Default,,0000,0000,0000,,And people are struggling or even dying Dialogue: 0,0:05:07.37,0:05:09.70,Default,,0000,0000,0000,,because they can't afford the meds. Dialogue: 0,0:05:10.91,0:05:13.44,Default,,0000,0000,0000,,Now, I want to be really clear\Nabout something. Dialogue: 0,0:05:13.47,0:05:17.50,Default,,0000,0000,0000,,This isn't about making\Nthe pharmaceutical industry the bad guy. Dialogue: 0,0:05:17.52,0:05:19.66,Default,,0000,0000,0000,,What I'm talking about today Dialogue: 0,0:05:19.68,0:05:23.68,Default,,0000,0000,0000,,is whether the system we created\Nto promote progress Dialogue: 0,0:05:23.70,0:05:26.26,Default,,0000,0000,0000,,is actually working as intended. Dialogue: 0,0:05:27.12,0:05:31.03,Default,,0000,0000,0000,,Sure, the pharmaceutical companies\Nare gaming the system, Dialogue: 0,0:05:31.06,0:05:34.02,Default,,0000,0000,0000,,But they're gaming it because they can. Dialogue: 0,0:05:34.04,0:05:37.66,Default,,0000,0000,0000,,Because we have failed\Nto adapt this system Dialogue: 0,0:05:37.68,0:05:40.13,Default,,0000,0000,0000,,to meet today's realities. Dialogue: 0,0:05:40.15,0:05:41.76,Default,,0000,0000,0000,,The government is handing out Dialogue: 0,0:05:41.78,0:05:45.09,Default,,0000,0000,0000,,one of the most prized\Nrewards in business. Dialogue: 0,0:05:45.12,0:05:47.64,Default,,0000,0000,0000,,The opportunity to create a product Dialogue: 0,0:05:47.66,0:05:50.47,Default,,0000,0000,0000,,that is protected from competition, Dialogue: 0,0:05:50.49,0:05:54.24,Default,,0000,0000,0000,,and asking for less and less\Nin return on our behalf. Dialogue: 0,0:05:54.72,0:06:00.68,Default,,0000,0000,0000,,Imagine awarding 100 Pulitzer Prizes\Nto one author for the same book. Dialogue: 0,0:06:02.74,0:06:04.70,Default,,0000,0000,0000,,It doesn't have to be this way. Dialogue: 0,0:06:04.72,0:06:07.78,Default,,0000,0000,0000,,We can create a modern patent system Dialogue: 0,0:06:07.80,0:06:11.22,Default,,0000,0000,0000,,to meet the needs\Nof a 21st century society. Dialogue: 0,0:06:11.24,0:06:12.44,Default,,0000,0000,0000,,And to do that, Dialogue: 0,0:06:12.47,0:06:15.82,Default,,0000,0000,0000,,we need to reimagine the patent system\Nto serve the public, Dialogue: 0,0:06:15.85,0:06:17.93,Default,,0000,0000,0000,,not just corporations. Dialogue: 0,0:06:18.74,0:06:20.00,Default,,0000,0000,0000,,So how do we do it? Dialogue: 0,0:06:20.75,0:06:22.17,Default,,0000,0000,0000,,Five reforms. Dialogue: 0,0:06:22.63,0:06:26.33,Default,,0000,0000,0000,,First, we need to stop\Nhanding out so many patents. Dialogue: 0,0:06:27.08,0:06:29.18,Default,,0000,0000,0000,,Back under the Kennedy administration, Dialogue: 0,0:06:29.20,0:06:32.75,Default,,0000,0000,0000,,in an effort to curb rising drug costs, Dialogue: 0,0:06:32.78,0:06:35.74,Default,,0000,0000,0000,,a congressman from Tennessee\Nproposed an idea. Dialogue: 0,0:06:36.21,0:06:37.53,Default,,0000,0000,0000,,He said, Dialogue: 0,0:06:37.55,0:06:39.16,Default,,0000,0000,0000,,"If you want to tweak a drug, Dialogue: 0,0:06:39.18,0:06:41.58,Default,,0000,0000,0000,,and you want to get another patent on it, Dialogue: 0,0:06:41.60,0:06:45.77,Default,,0000,0000,0000,,the modified version has to be\Nsignificantly better therapeutically, Dialogue: 0,0:06:45.79,0:06:46.94,Default,,0000,0000,0000,,for patients." Dialogue: 0,0:06:47.42,0:06:49.04,Default,,0000,0000,0000,,Because of intense lobbying, Dialogue: 0,0:06:49.06,0:06:51.53,Default,,0000,0000,0000,,this idea never saw the light of day. Dialogue: 0,0:06:52.46,0:06:55.08,Default,,0000,0000,0000,,But a reimagined patent system Dialogue: 0,0:06:55.10,0:07:00.12,Default,,0000,0000,0000,,would resurrect and evolve\Nthis simple, yet elegant proposition. Dialogue: 0,0:07:00.15,0:07:01.54,Default,,0000,0000,0000,,That to get a patent, Dialogue: 0,0:07:01.57,0:07:04.81,Default,,0000,0000,0000,,you have to invent something\Nsubstantially better Dialogue: 0,0:07:04.84,0:07:06.89,Default,,0000,0000,0000,,than what's already out there. Dialogue: 0,0:07:06.92,0:07:09.24,Default,,0000,0000,0000,,This shouldn't be controversial. Dialogue: 0,0:07:09.26,0:07:10.66,Default,,0000,0000,0000,,As a society, Dialogue: 0,0:07:10.69,0:07:14.92,Default,,0000,0000,0000,,we reserve the big rewards\Nfor the big ideas. Dialogue: 0,0:07:14.94,0:07:18.75,Default,,0000,0000,0000,,We don't give Michelin stars to chefs\Nwho just tweak a recipe. Dialogue: 0,0:07:19.13,0:07:23.56,Default,,0000,0000,0000,,We give them to chefs who change\Nhow we think about food. Dialogue: 0,0:07:23.58,0:07:26.60,Default,,0000,0000,0000,,And yet, we hand out patents\Nworth billions of dollars Dialogue: 0,0:07:26.63,0:07:28.50,Default,,0000,0000,0000,,for minor changes. Dialogue: 0,0:07:28.52,0:07:30.32,Default,,0000,0000,0000,,It's time to raise the bar. Dialogue: 0,0:07:31.50,0:07:33.08,Default,,0000,0000,0000,,Second, Dialogue: 0,0:07:33.10,0:07:37.51,Default,,0000,0000,0000,,we need to change the financial incentives\Nof the patent office. Dialogue: 0,0:07:37.54,0:07:40.09,Default,,0000,0000,0000,,Right now, the revenue\Nof the Patent Office Dialogue: 0,0:07:40.12,0:07:44.01,Default,,0000,0000,0000,,is directly linked to the number\Nof patents that it grants. Dialogue: 0,0:07:45.29,0:07:48.03,Default,,0000,0000,0000,,That's like private prisons Dialogue: 0,0:07:48.05,0:07:50.59,Default,,0000,0000,0000,,getting paid more to hold more people. Dialogue: 0,0:07:50.90,0:07:54.68,Default,,0000,0000,0000,,It naturally leads to more incarceration, Dialogue: 0,0:07:54.70,0:07:56.10,Default,,0000,0000,0000,,not less. Dialogue: 0,0:07:56.12,0:07:58.70,Default,,0000,0000,0000,,The same is true for patents. Dialogue: 0,0:08:00.17,0:08:04.07,Default,,0000,0000,0000,,Third, we need more public participation. Dialogue: 0,0:08:04.09,0:08:07.18,Default,,0000,0000,0000,,Right now, the patent system\Nis like a black box. Dialogue: 0,0:08:07.20,0:08:09.36,Default,,0000,0000,0000,,It's a two-way conversation Dialogue: 0,0:08:09.39,0:08:12.63,Default,,0000,0000,0000,,between the patent office and industry. Dialogue: 0,0:08:12.65,0:08:15.70,Default,,0000,0000,0000,,You and I aren't invited to that party. Dialogue: 0,0:08:16.45,0:08:18.54,Default,,0000,0000,0000,,But imagine if instead Dialogue: 0,0:08:18.56,0:08:21.58,Default,,0000,0000,0000,,the Patent Office became a dynamic center Dialogue: 0,0:08:21.60,0:08:24.20,Default,,0000,0000,0000,,for citizen learning and ingenuity. Dialogue: 0,0:08:24.22,0:08:28.27,Default,,0000,0000,0000,,Staffed not just by technical\Nexperts and bureaucrats, Dialogue: 0,0:08:28.29,0:08:31.71,Default,,0000,0000,0000,,but also by great\Npublic-health storytellers Dialogue: 0,0:08:31.73,0:08:34.11,Default,,0000,0000,0000,,with a passion for science. Dialogue: 0,0:08:34.13,0:08:38.06,Default,,0000,0000,0000,,Regular citizens could get\Naccessible information Dialogue: 0,0:08:38.08,0:08:40.09,Default,,0000,0000,0000,,about complex technologies Dialogue: 0,0:08:40.11,0:08:43.94,Default,,0000,0000,0000,,like artificial intelligence\Nor gene editing, Dialogue: 0,0:08:43.96,0:08:48.50,Default,,0000,0000,0000,,enabling us to participate\Nin the policy conversations Dialogue: 0,0:08:48.53,0:08:51.96,Default,,0000,0000,0000,,that directly impact our health and lives. Dialogue: 0,0:08:53.95,0:08:55.10,Default,,0000,0000,0000,,Fourth, Dialogue: 0,0:08:56.10,0:08:58.76,Default,,0000,0000,0000,,we need to get the right to go to court. Dialogue: 0,0:08:59.24,0:09:02.89,Default,,0000,0000,0000,,Right now in America,\Nafter a patent is granted, Dialogue: 0,0:09:02.91,0:09:05.57,Default,,0000,0000,0000,,the public has no legal standing. Dialogue: 0,0:09:05.90,0:09:08.93,Default,,0000,0000,0000,,Only those with a commercial interest, Dialogue: 0,0:09:08.96,0:09:10.81,Default,,0000,0000,0000,,usually other drug companies, Dialogue: 0,0:09:10.83,0:09:12.24,Default,,0000,0000,0000,,have that right. Dialogue: 0,0:09:12.68,0:09:16.39,Default,,0000,0000,0000,,But I've witnessed firsthand\Nhow lives can be saved Dialogue: 0,0:09:16.41,0:09:19.83,Default,,0000,0000,0000,,when everyday citizens\Nhave the right to go to court. Dialogue: 0,0:09:20.72,0:09:22.93,Default,,0000,0000,0000,,Back in 2006 in India, Dialogue: 0,0:09:22.95,0:09:26.07,Default,,0000,0000,0000,,my organization worked\Nwith patient advocates Dialogue: 0,0:09:26.10,0:09:28.22,Default,,0000,0000,0000,,to challenge, legally, Dialogue: 0,0:09:28.25,0:09:30.49,Default,,0000,0000,0000,,unjust HIV drug patents, Dialogue: 0,0:09:30.52,0:09:33.45,Default,,0000,0000,0000,,at a time when so many people were dying, Dialogue: 0,0:09:33.47,0:09:36.24,Default,,0000,0000,0000,,because medicines\Nwere priced out of reach. Dialogue: 0,0:09:36.27,0:09:38.81,Default,,0000,0000,0000,,We were able to bring down\Nthe prices of medicines Dialogue: 0,0:09:38.83,0:09:40.98,Default,,0000,0000,0000,,by up to 87 percent. Dialogue: 0,0:09:41.01,0:09:45.82,Default,,0000,0000,0000,,(Applause) Dialogue: 0,0:09:45.85,0:09:47.74,Default,,0000,0000,0000,,On just three drugs, Dialogue: 0,0:09:47.76,0:09:51.67,Default,,0000,0000,0000,,we were able to save health systems\Nhalf a billion dollars. Dialogue: 0,0:09:52.21,0:09:57.28,Default,,0000,0000,0000,,Now, cases like these\Ncan save millions of lives Dialogue: 0,0:09:57.30,0:09:59.41,Default,,0000,0000,0000,,and billions of dollars. Dialogue: 0,0:09:59.43,0:10:03.53,Default,,0000,0000,0000,,Imagine if Americans\Nhad the right to go to court, too. Dialogue: 0,0:10:05.26,0:10:08.87,Default,,0000,0000,0000,,And lastly, we need stronger oversight. Dialogue: 0,0:10:09.97,0:10:12.89,Default,,0000,0000,0000,,We need an independent unit Dialogue: 0,0:10:12.91,0:10:15.48,Default,,0000,0000,0000,,that can serve as a public advocate, Dialogue: 0,0:10:15.50,0:10:18.97,Default,,0000,0000,0000,,regularly monitoring the activities\Nof the Patent Office, Dialogue: 0,0:10:18.99,0:10:21.12,Default,,0000,0000,0000,,and reporting to Congress. Dialogue: 0,0:10:21.59,0:10:23.58,Default,,0000,0000,0000,,If a unit like this had existed, Dialogue: 0,0:10:23.61,0:10:25.61,Default,,0000,0000,0000,,it would have caught, for example, Dialogue: 0,0:10:25.63,0:10:28.24,Default,,0000,0000,0000,,the Silicon Valley company Theranos, Dialogue: 0,0:10:28.27,0:10:32.02,Default,,0000,0000,0000,,before it got so many patents\Nfor blood testing, Dialogue: 0,0:10:32.05,0:10:35.57,Default,,0000,0000,0000,,and landed evaluation\Nof nine billion dollars, Dialogue: 0,0:10:35.59,0:10:36.85,Default,,0000,0000,0000,,when in reality, Dialogue: 0,0:10:36.87,0:10:39.27,Default,,0000,0000,0000,,there was no invention there at all. Dialogue: 0,0:10:39.67,0:10:44.58,Default,,0000,0000,0000,,This kind of accountability\Nis going to become increasingly urgent. Dialogue: 0,0:10:44.61,0:10:46.87,Default,,0000,0000,0000,,In the age of "23AndMe," Dialogue: 0,0:10:46.89,0:10:49.01,Default,,0000,0000,0000,,important questions are being asked Dialogue: 0,0:10:49.03,0:10:52.29,Default,,0000,0000,0000,,about whether companies\Ncan patent and sell Dialogue: 0,0:10:52.32,0:10:55.98,Default,,0000,0000,0000,,our genetic information\Nand our patient data. Dialogue: 0,0:10:56.00,0:10:58.68,Default,,0000,0000,0000,,We need to be part of those conversations Dialogue: 0,0:10:58.70,0:11:00.28,Default,,0000,0000,0000,,before it's too late. Dialogue: 0,0:11:00.82,0:11:05.11,Default,,0000,0000,0000,,Our information is being used\Nto create the new therapies. Dialogue: 0,0:11:05.13,0:11:09.67,Default,,0000,0000,0000,,And when that moment of diagnosis\Ncomes for me and my family, Dialogue: 0,0:11:09.70,0:11:11.59,Default,,0000,0000,0000,,or for you and yours, Dialogue: 0,0:11:11.62,0:11:15.83,Default,,0000,0000,0000,,are we going to have to crowdfund\Nto save the lives of those we love? Dialogue: 0,0:11:16.66,0:11:19.16,Default,,0000,0000,0000,,That's not the world I want to live in. Dialogue: 0,0:11:19.18,0:11:22.58,Default,,0000,0000,0000,,It's not the world I want\Nfor my two-year-old son. Dialogue: 0,0:11:24.26,0:11:28.16,Default,,0000,0000,0000,,My dad is growing older now, Dialogue: 0,0:11:28.19,0:11:32.98,Default,,0000,0000,0000,,and he is still as quietly brilliant\Nand morally directed as ever. Dialogue: 0,0:11:33.48,0:11:35.02,Default,,0000,0000,0000,,Sometimes people ask us Dialogue: 0,0:11:35.05,0:11:37.39,Default,,0000,0000,0000,,whether things get heated between us: Dialogue: 0,0:11:37.41,0:11:39.28,Default,,0000,0000,0000,,The patent-holding scientist Dialogue: 0,0:11:39.30,0:11:42.04,Default,,0000,0000,0000,,and his patent-reforming lawyer daughter. Dialogue: 0,0:11:43.38,0:11:47.60,Default,,0000,0000,0000,,It's such a profound misunderstanding\Nof what's at stake. Dialogue: 0,0:11:48.00,0:11:51.98,Default,,0000,0000,0000,,Because this is not\Nabout scientists versus activists Dialogue: 0,0:11:52.00,0:11:54.72,Default,,0000,0000,0000,,or invention versus protection. Dialogue: 0,0:11:54.74,0:11:56.34,Default,,0000,0000,0000,,This is about people. Dialogue: 0,0:11:56.81,0:12:00.14,Default,,0000,0000,0000,,Our quest to invent and our right to live. Dialogue: 0,0:12:00.63,0:12:04.77,Default,,0000,0000,0000,,My dad and I understand\Nthat our ingenuity and our dignity Dialogue: 0,0:12:04.79,0:12:07.26,Default,,0000,0000,0000,,go hand in hand. Dialogue: 0,0:12:07.28,0:12:09.57,Default,,0000,0000,0000,,We are on the same side. Dialogue: 0,0:12:09.87,0:12:13.10,Default,,0000,0000,0000,,It is time to reimagine a patent system Dialogue: 0,0:12:13.12,0:12:15.30,Default,,0000,0000,0000,,that reflects that knowing. Dialogue: 0,0:12:15.71,0:12:16.86,Default,,0000,0000,0000,,Thank you. Dialogue: 0,0:12:16.88,0:12:21.45,Default,,0000,0000,0000,,(Applause)