WEBVTT 00:00:10.200 --> 00:00:11.263 Cool! 00:00:12.873 --> 00:00:15.486 Hi, my name is Stephen Tonti, 00:00:15.486 --> 00:00:20.314 and I'm a director, a writer, an actor, 00:00:20.314 --> 00:00:23.494 a drummer, a scuba diver, a soccer player, 00:00:23.494 --> 00:00:28.439 a camera operator, an airbrush artist, a physicist, a stargazer, a rock climber, 00:00:28.439 --> 00:00:31.474 a snowboarder, a model maker, a stage manager, a camp counselor, 00:00:31.474 --> 00:00:34.035 a PA, a DJ, a club president, a magician, 00:00:34.035 --> 00:00:36.235 and for a brief stint in May 2012, 00:00:36.235 --> 00:00:40.389 I was called upon to repair two stopwatches which had stopped working. 00:00:40.389 --> 00:00:41.952 (Laughter) 00:00:41.952 --> 00:00:43.900 Who am I, you ask? 00:00:43.900 --> 00:00:47.106 My name is Stephen Tonti, and I have ADHD. 00:00:47.106 --> 00:00:48.366 (Laughter) 00:00:48.366 --> 00:00:52.538 ADHD stands for attention deficit hyperactive disorder, 00:00:52.538 --> 00:00:54.928 and I was first diagnosed with ADHD 00:00:54.928 --> 00:00:59.261 not by a diagnostician, or a private practice, or a pediatrician, 00:00:59.261 --> 00:01:00.828 but by a second-grade teacher 00:01:00.828 --> 00:01:04.080 who was interviewing me for a spot at the school she was working at. 00:01:04.080 --> 00:01:05.497 My family had just moved 00:01:05.497 --> 00:01:07.837 from New Orleans, Louisiana, to Dallas, Texas, 00:01:07.837 --> 00:01:10.571 and I was in a search for a new academic home. 00:01:10.571 --> 00:01:12.154 During this particular interview, 00:01:12.154 --> 00:01:15.507 this particular teacher received a message ahead of time 00:01:15.507 --> 00:01:17.935 from my first grade teacher back in New Orleans 00:01:17.935 --> 00:01:21.311 to check me for any signs of ADHD. 00:01:21.311 --> 00:01:23.648 Just as she reached the series of questions 00:01:23.648 --> 00:01:28.783 devised to evaluate whether a child between the ages of five and 17 is ADHD: 00:01:28.783 --> 00:01:31.398 Wham! I fell out of my chair. 00:01:31.398 --> 00:01:32.873 (Laughter) 00:01:32.873 --> 00:01:34.691 No, I didn't slip. 00:01:34.691 --> 00:01:36.854 And no, the chair didn't crumble beneath me. 00:01:36.854 --> 00:01:40.696 Behind the teacher's desk was this giant window, 00:01:40.696 --> 00:01:44.001 and through that window was a giant field, 00:01:44.001 --> 00:01:45.473 and on that field 00:01:45.473 --> 00:01:51.027 were what appeared to me at the time to be hundreds of thousands of kids 00:01:51.027 --> 00:01:52.037 my age. 00:01:52.037 --> 00:01:58.236 They were all playing with a great, inflatable, rainbow beach ball, 00:01:58.236 --> 00:02:01.962 and as they moved all around the field, all I could do was keep track of them. 00:02:01.962 --> 00:02:05.629 So I leaned a little bit to the left, and I leaned a little bit to the right, 00:02:05.629 --> 00:02:09.072 a little bit more to the left, a little bit more to the right 00:02:09.072 --> 00:02:11.111 before the disaster. 00:02:11.111 --> 00:02:14.135 I still maintain today that window was a trap, and I was setup. 00:02:14.135 --> 00:02:15.325 (Laughter) 00:02:15.325 --> 00:02:17.741 So I was rejected from Middle School 00:02:17.741 --> 00:02:21.619 because I was an eight-year-old boy who couldn't sit still in his chair. 00:02:21.619 --> 00:02:24.003 There was this complex marshmallow-related incident 00:02:24.003 --> 00:02:26.795 between myself and some of the staff there, but anyway. 00:02:26.795 --> 00:02:29.572 I ended up at the Episcopal School of Dallas. 00:02:29.572 --> 00:02:31.813 Over the next 11 years, I tried everything. 00:02:31.813 --> 00:02:34.199 When I say everything, I mean everything. 00:02:34.199 --> 00:02:37.694 Extracurriculars: I tried computing, robotics, carpentry, canoeing, 00:02:37.694 --> 00:02:41.896 rock climbing, poetry club, logic club, poker club, comedy club, and camping. 00:02:41.896 --> 00:02:44.762 I went camping at least twice a year for four years. 00:02:44.762 --> 00:02:46.352 And the band - oh my god. 00:02:46.352 --> 00:02:50.468 I tried trumpet, saxophone, electric bass, piano, stand-up bass, guitar, acoustic - 00:02:50.468 --> 00:02:52.013 Did I mention I played sports? 00:02:52.013 --> 00:02:55.112 It was Texas. We played sports. I tried all of them. 00:02:55.112 --> 00:02:56.383 And the drums. 00:02:56.383 --> 00:02:59.361 I even took a short-lived stab at the heart. 00:02:59.361 --> 00:03:03.265 I played seven different instruments - "played" being a very generous term. 00:03:03.265 --> 00:03:04.346 (Laughter) 00:03:04.346 --> 00:03:07.374 When all of a sudden my theater - my school built a theater - 00:03:07.374 --> 00:03:09.230 and I thought, why not? 00:03:09.230 --> 00:03:12.780 So I started the shop building sets, then the sound booth, the light booth. 00:03:12.780 --> 00:03:16.206 Then my teacher asked me to act, so I played Conrad in "Ordinary People." 00:03:16.206 --> 00:03:18.568 I said, "Can I direct?" and she said, "Go for it!" 00:03:18.568 --> 00:03:20.162 So I directed "12 Angry Jurors" - 00:03:20.162 --> 00:03:23.640 because this is high school, people, and you can't direct "12 Angry Men" 00:03:23.640 --> 00:03:27.013 with a drama school that has three boys and four girls - 00:03:27.013 --> 00:03:28.803 for the people doing math at home, 00:03:28.803 --> 00:03:31.528 that's seven drama students for a show with 12 in it. 00:03:31.528 --> 00:03:32.505 (Laughter) 00:03:32.505 --> 00:03:33.620 Before I knew it, 00:03:33.620 --> 00:03:36.986 I was auditioning and interviewing in drama schools across the country, 00:03:36.986 --> 00:03:39.136 and that's when Carnegie Mellon found me. 00:03:39.136 --> 00:03:41.565 And I love it here. I really do. 00:03:41.565 --> 00:03:43.487 But moving on. So what?! 00:03:43.487 --> 00:03:49.204 I have ADHD, and ADHD is misunderstood as an inability to focus, 00:03:49.204 --> 00:03:50.842 but it's much stranger than that. 00:03:50.842 --> 00:03:53.227 It's not a lack of focus - period. 00:03:53.227 --> 00:03:54.602 It's that I have a hard time 00:03:54.602 --> 00:03:57.165 selecting something and giving it my full attention. 00:03:57.165 --> 00:03:59.072 Something has to grab my attention, 00:03:59.072 --> 00:04:01.975 peak my curiosity, and then I can hyperfocus. 00:04:01.975 --> 00:04:03.937 This is a good thing and a bad thing. 00:04:03.937 --> 00:04:04.952 It's a bad thing 00:04:04.952 --> 00:04:08.444 because I have a hard time completing things that don't excite me. 00:04:08.444 --> 00:04:09.437 We live in a world 00:04:09.437 --> 00:04:12.241 where you have to read your textbooks and pay your taxes. 00:04:12.241 --> 00:04:16.827 And yes, big textbooks with no pictures frighten me. 00:04:16.827 --> 00:04:20.236 And no one likes handling taxes - actually, some of you might like that. 00:04:20.236 --> 00:04:21.147 (Laughter) 00:04:21.147 --> 00:04:22.487 But the upside is, 00:04:22.487 --> 00:04:28.056 when something does peak my curiosity, I become obsessed and I hyperfocus. 00:04:28.056 --> 00:04:30.166 I spend a lot of time with film. 00:04:30.166 --> 00:04:33.230 I can spend upwards of 12 hours in a row 00:04:33.230 --> 00:04:35.728 editing clips, sometimes until 6:30 in the morning. 00:04:35.728 --> 00:04:37.844 In the theater, when I have to put a show up, 00:04:37.844 --> 00:04:43.821 I'll pull 15 hour days for weeks on end, and I enjoy that; I love that. 00:04:44.861 --> 00:04:48.218 I can read a 500-page novel that I love 00:04:48.218 --> 00:04:52.337 much faster than a one-page article that I don't care for. 00:04:52.337 --> 00:04:55.291 It's easier for me to see the big picture. 00:04:55.291 --> 00:04:57.898 As a director, I have to track 20 people 00:04:57.898 --> 00:05:02.913 with very different jobs from designers, to writers, to actors, 00:05:02.913 --> 00:05:08.262 and I find handling that much easier than finishing that one-page article, 00:05:08.262 --> 00:05:09.697 which I'm still working on. 00:05:09.697 --> 00:05:11.037 (Laughter) 00:05:11.037 --> 00:05:12.251 David Neeleman, 00:05:12.251 --> 00:05:16.824 the founder and CEO of JetBlue, who is also ADHD by the way, 00:05:16.824 --> 00:05:22.975 says, "I have a hard time doing the mundane things in life. 00:05:22.975 --> 00:05:26.126 I have an easier time planning a 20-aircraft fleet 00:05:26.126 --> 00:05:28.482 than I do paying my light bill." 00:05:30.112 --> 00:05:31.319 Yeah. 00:05:32.699 --> 00:05:35.456 So, another good thing about ADHD 00:05:35.456 --> 00:05:39.755 is because I felt compelled to try everything, 00:05:39.755 --> 00:05:43.641 I was able to explore all the possible career paths I might not have 00:05:43.641 --> 00:05:46.198 and might not have discovered what I truly want to do. 00:05:46.198 --> 00:05:49.498 So many teens and young adults 00:05:49.498 --> 00:05:53.013 are expected to focus on one or two fields of study 00:05:53.013 --> 00:05:54.742 and one or two hobbies, 00:05:54.742 --> 00:05:58.258 and hope and pray they like the ones they've chosen 00:05:58.258 --> 00:06:00.262 or that've been chosen for them. 00:06:00.262 --> 00:06:02.739 My job is to tell other people stories, 00:06:02.739 --> 00:06:04.704 and I find it's easier time doing that 00:06:04.704 --> 00:06:07.770 when I can draw from all of these other perspectives. 00:06:07.770 --> 00:06:10.833 It's easier for me to see the world through the eyes of a drummer 00:06:10.833 --> 00:06:12.005 because I've tried that. 00:06:12.005 --> 00:06:15.501 It's easier for me to see the world through the eyes of a graphic designer 00:06:15.501 --> 00:06:17.874 because I've tried that too. 00:06:17.874 --> 00:06:23.056 ADHD is a difference in cognition, not simply a disorder. 00:06:23.056 --> 00:06:27.748 We're attention different, not attention deficit. 00:06:27.748 --> 00:06:31.178 But because it's treated and misunderstood as a disorder, 00:06:31.178 --> 00:06:34.073 it's treated at something that needs fixing. 00:06:34.073 --> 00:06:36.525 So the idea seems to be that: 00:06:36.525 --> 00:06:40.001 we need to get rid of my ADHD, but there's no getting rid of it. 00:06:40.001 --> 00:06:41.850 There's just sedating it. 00:06:41.850 --> 00:06:43.029 I was lucky. 00:06:43.029 --> 00:06:45.548 My high school teachers were hip, young progressives 00:06:45.548 --> 00:06:48.929 who were delighted to give me extra time, the additional attention, 00:06:48.929 --> 00:06:53.668 and the overall freedom to express myself the way that I felt necessary. 00:06:53.668 --> 00:06:57.146 So many other kids with ADHD aren't as lucky. 00:06:57.146 --> 00:06:59.149 For example, my roommate. 00:06:59.149 --> 00:07:02.149 Adam has been my roommate for four years. 00:07:02.149 --> 00:07:05.964 He is an excellent actor in the school of drama and a brilliant thinker. 00:07:05.964 --> 00:07:10.020 We both grew up in Dallas, Texas, and be both have ADHD. 00:07:10.020 --> 00:07:12.446 Adam's high school was different. 00:07:12.446 --> 00:07:15.427 Now even though he grew up only 15 minutes north of me, 00:07:15.427 --> 00:07:19.337 Adam's high school had harsher penalties for falling out of a chair. 00:07:19.337 --> 00:07:21.623 When you're a kid diagnosed with ADHD, 00:07:21.623 --> 00:07:24.948 your doctor administers a series of amphetamines, 00:07:24.948 --> 00:07:26.315 and everybody waits. 00:07:26.315 --> 00:07:29.113 Because no one has a clue how you'll react. 00:07:29.113 --> 00:07:31.301 You might get more calm. 00:07:31.301 --> 00:07:33.239 You might become depressed. 00:07:33.239 --> 00:07:35.699 You might lash out at the people around you. 00:07:35.699 --> 00:07:37.501 The difference between Adam and me 00:07:37.501 --> 00:07:40.254 is when a new medication may cause me to act out, 00:07:40.254 --> 00:07:45.476 my teachers immediately advise my doctors that I change my medication. 00:07:45.476 --> 00:07:48.858 However, when Adam tried a new medication, 00:07:48.858 --> 00:07:51.990 his teachers wrote this in his report, 00:07:52.830 --> 00:07:59.431 "Adam is less motivated, less animated, and less involved in class activities, 00:07:59.431 --> 00:08:01.930 but at least, he's quiet now." 00:08:04.292 --> 00:08:08.215 We need a healthier understanding of people with ADHD, 00:08:08.215 --> 00:08:09.365 and it starts at home. 00:08:09.365 --> 00:08:13.810 I had mother and father who supported every obsession. 00:08:13.810 --> 00:08:16.800 I distinctly recall my father asking one day, 00:08:16.800 --> 00:08:19.393 "Son, you're only 14. 00:08:19.393 --> 00:08:22.462 what could you possibly want with an air compressor?" 00:08:22.462 --> 00:08:23.519 (Laughter) 00:08:23.519 --> 00:08:24.717 To which I responded, 00:08:24.717 --> 00:08:28.738 "I want to airbrush t-shirts and shorts to sell to my classmates and friends." 00:08:28.738 --> 00:08:29.984 (Exhale) 00:08:29.984 --> 00:08:30.984 Alright then. 00:08:30.984 --> 00:08:33.509 And we would go out and get it. 00:08:33.509 --> 00:08:36.545 I would play with it and I'd obsess over it. 00:08:36.545 --> 00:08:38.900 During the summers, when I went off my medication 00:08:38.900 --> 00:08:41.911 and my body was wrecked with the effects of withdrawal, 00:08:41.911 --> 00:08:47.441 my mother sat by my side, literally coaxing the migraines out of me. 00:08:47.441 --> 00:08:48.830 With their support, 00:08:48.830 --> 00:08:53.331 I was able to explore, and my obsessions grew and multiplied, 00:08:53.331 --> 00:08:56.256 and I was able to maintain my sanity. 00:08:56.256 --> 00:09:00.397 Schools need to develop a better attitude towards students with ADHD, as well. 00:09:00.397 --> 00:09:02.536 There's plenty of examples out there. 00:09:02.536 --> 00:09:05.810 For instance, the Eagle Hill School, in Hardwick, Massachusetts. 00:09:05.810 --> 00:09:09.499 The Eagle Hill School believes that every student can learn. 00:09:09.499 --> 00:09:12.914 That learning differently requires teaching differently. 00:09:12.914 --> 00:09:15.700 And that we must educate our kids, our students, 00:09:15.700 --> 00:09:17.368 to learn about learning 00:09:17.368 --> 00:09:22.042 in order to form new beliefs in a search for intellectual autonomy. 00:09:22.961 --> 00:09:28.558 Professors who act more as mentors, as opposed to disciplinarians, inspire me. 00:09:28.558 --> 00:09:31.705 When teachers level with me, I feel like I'm more in control; 00:09:31.705 --> 00:09:34.689 that there's a dialog regarding new ways of thinking 00:09:34.689 --> 00:09:37.991 and approaching a problem, focusing, completing tasks. 00:09:39.551 --> 00:09:45.818 We have to create and develop a healthier relationship with medication. 00:09:45.818 --> 00:09:48.145 I think that Ritalin, Adderall, Concerta 00:09:48.145 --> 00:09:50.150 should only be prescribed to someone 00:09:50.150 --> 00:09:54.495 who can physically handle the effects of these drugs and their withdrawal. 00:09:54.495 --> 00:09:59.939 12 is far too young. 16 is still too young. 00:09:59.939 --> 00:10:02.758 There are so many alternatives to medication. 00:10:02.758 --> 00:10:04.587 Studies have shown that for some 00:10:04.587 --> 00:10:08.444 it's just an added weight or pressure to help them focus. 00:10:08.444 --> 00:10:10.578 And these things exist. 00:10:10.578 --> 00:10:13.636 There are weighted pads that help people feel more comfortable 00:10:13.636 --> 00:10:15.634 so they can complete tasks on time. 00:10:15.634 --> 00:10:17.982 For some people, it's tics, like chewing pencils, 00:10:17.982 --> 00:10:20.772 so give them rubber coated pencils. 00:10:21.782 --> 00:10:25.170 We have to teach kids to teach themselves; 00:10:25.170 --> 00:10:28.267 it's the best thing we can do for our kids. 00:10:28.267 --> 00:10:34.249 And lastly, our society has to embrace cognitive diversity. 00:10:35.189 --> 00:10:38.438 For example, Specialisterne, or The Specialist, 00:10:38.438 --> 00:10:43.049 is a Danish organization that trains people with autism and ADHD 00:10:43.049 --> 00:10:48.684 as consultants in I.T. and other more technically oriented tasked jobs. 00:10:49.584 --> 00:10:52.106 We have to turn this joke around 00:10:52.106 --> 00:10:56.079 on those who believe that my disorder divides me from my more "normal peers." 00:10:56.079 --> 00:10:59.455 Besides, who here at Carnegie Mellon really qualifies as normal, anyway? 00:10:59.455 --> 00:11:01.162 (Laughter) 00:11:01.162 --> 00:11:03.983 (Applause) (Cheers) 00:11:06.623 --> 00:11:13.138 A great author, a masterful playwright and a sublime poet once writ ... 00:11:13.138 --> 00:11:15.150 Any guesses to who I speak of? 00:11:15.150 --> 00:11:16.562 (Audience) Shakespeare! 00:11:16.562 --> 00:11:18.032 Thou art correct! 00:11:18.032 --> 00:11:19.214 (Laughter) 00:11:19.214 --> 00:11:21.543 Shakespeare sonnet 121. 00:11:23.786 --> 00:11:28.728 'Tis better to be vile than vile esteemed 00:11:28.728 --> 00:11:33.080 When not to be receives reproach of being, 00:11:33.080 --> 00:11:36.310 And the just pleasure lost, which is so deemed 00:11:36.310 --> 00:11:39.922 Not by our feeling but by others' seeing. 00:11:39.922 --> 00:11:43.426 For why should others' false adulterate eyes 00:11:43.426 --> 00:11:45.837 Give salutation to my sportive blood? 00:11:45.837 --> 00:11:50.737 Or on my frailties why are frailer spies, 00:11:50.737 --> 00:11:53.542 Which in their wills count bad what I think good? 00:11:53.542 --> 00:11:57.137 Nae, I am that I am, and they that level 00:11:57.137 --> 00:11:59.896 At my abuses reckon up their own: 00:11:59.896 --> 00:12:03.189 I may be straight, though they themselves be bevel; 00:12:03.189 --> 00:12:07.198 By their rank thoughts my deeds must not be shown; 00:12:07.198 --> 00:12:12.480 Unless this general evil they all maintain, 00:12:12.480 --> 00:12:16.181 All men are bad, and in their badness reign. 00:12:17.091 --> 00:12:21.548 In sonnet 121 Shakespeare condemns hypocrisy. 00:12:21.548 --> 00:12:26.029 He implores us not to let others' false adulterate eyes 00:12:26.029 --> 00:12:29.983 condemn us for something that they believe us to be. 00:12:29.983 --> 00:12:33.568 He begs you not to let the selfish, negative comments of others 00:12:33.578 --> 00:12:37.319 hinder the just pleasures owed to you. 00:12:38.379 --> 00:12:42.754 A hierarchy of frailer spies 00:12:42.754 --> 00:12:46.624 have asked me to conform to society's means. 00:12:46.624 --> 00:12:48.676 I purpose the opposite. 00:12:48.676 --> 00:12:52.104 I purpose let society conform to me. 00:12:52.104 --> 00:12:54.675 And I implore you to do the same. 00:12:54.675 --> 00:12:56.133 I'll leave you with something 00:12:56.133 --> 00:12:59.709 that Robin Williams, a poster child for us in the ADHD community, 00:12:59.709 --> 00:13:00.659 (Laughter) 00:13:00.659 --> 00:13:07.498 once said, "We are all only given a little spark of madness. 00:13:08.228 --> 00:13:10.300 You mustn't lose it." 00:13:10.300 --> 00:13:11.471 Thank you! 00:13:11.471 --> 00:13:14.460 (Applause) (Cheers)