WEBVTT 00:00:06.201 --> 00:00:07.646 I love this mic. 00:00:08.254 --> 00:00:09.763 I feel like Beyoncé. 00:00:09.783 --> 00:00:11.127 It's so cool. 00:00:13.120 --> 00:00:16.684 I was invited here to talk about autism. 00:00:17.203 --> 00:00:20.574 It's a topic I know quite well for two reasons. 00:00:20.604 --> 00:00:25.293 First, I studied it during my PhD in Social Psychology, 00:00:25.313 --> 00:00:28.582 and second, I myself am on the autism spectrum, 00:00:28.602 --> 00:00:31.102 since I have Asperger's syndrome. 00:00:31.132 --> 00:00:33.329 So, I kind of have a double hat. 00:00:34.483 --> 00:00:37.170 But when I was preparing this speech, 00:00:37.190 --> 00:00:40.663 I thought it would be even more interesting 00:00:40.693 --> 00:00:43.885 to talk about non-autistic people. 00:00:44.473 --> 00:00:45.900 Yeah, that's you. 00:00:46.281 --> 00:00:49.122 You see, I've been observing you my whole life, 00:00:49.152 --> 00:00:52.853 and truth be told, I find you quite fascinating. 00:00:52.883 --> 00:00:54.719 So, yeah, 00:00:54.739 --> 00:00:57.509 you definitely deserve your own PowerPoint. 00:00:59.004 --> 00:01:00.224 Ta-da! 00:01:01.041 --> 00:01:03.013 "Neurotypical people." 00:01:03.414 --> 00:01:07.115 That's how we call people who are not on the autism spectrum. 00:01:07.145 --> 00:01:10.225 So, you too have your own little label. 00:01:12.524 --> 00:01:14.359 What about symptoms? 00:01:14.389 --> 00:01:18.697 Well, neurotypical people love small talk. 00:01:18.722 --> 00:01:21.190 This is like your national sport! 00:01:21.565 --> 00:01:23.065 You talk, 00:01:23.095 --> 00:01:24.772 but you say nothing. 00:01:25.525 --> 00:01:27.561 What a strange custom! 00:01:27.825 --> 00:01:32.006 At first, I had no idea why you did that, 00:01:32.033 --> 00:01:33.193 but I get it now. 00:01:33.223 --> 00:01:35.205 Small talk serves a real purpose, 00:01:35.235 --> 00:01:37.525 because it enables you to connect with people 00:01:37.555 --> 00:01:39.334 in spaces you share, 00:01:39.354 --> 00:01:42.574 like with your neighbor in the building you live in, 00:01:42.604 --> 00:01:45.282 or with your colleague in your workspace. 00:01:45.692 --> 00:01:48.885 Over the years, I learned how to make small talk. 00:01:49.315 --> 00:01:51.435 But sometimes, it's tricky. 00:01:51.925 --> 00:01:56.273 Like, the other day, I ran into my neighbor in the elevator. 00:01:56.293 --> 00:02:00.882 And I was feeling confident, you know, because I was wearing my lucky outfit. 00:02:01.263 --> 00:02:04.863 And this is, of course, my lucky outfit, in case you're wondering. 00:02:04.893 --> 00:02:07.103 So I was feeling like the world belonged to me, 00:02:07.133 --> 00:02:09.613 and so I decided to engage in small talk. 00:02:09.643 --> 00:02:12.324 And I saw he was carrying bags full of groceries. 00:02:12.354 --> 00:02:14.984 So I had this stroke of genius 00:02:15.014 --> 00:02:17.964 and asked him this really profound question: 00:02:18.424 --> 00:02:20.210 "Oh, you did some shopping?" 00:02:20.884 --> 00:02:21.914 Yeah, well, 00:02:21.944 --> 00:02:23.953 as I said, I have a PhD, so - 00:02:25.233 --> 00:02:27.182 And the neighbor answers, 00:02:27.202 --> 00:02:31.234 "Yeah, I went to the market, but I won't go there anymore. 00:02:31.882 --> 00:02:33.515 Too many Arabs." 00:02:34.085 --> 00:02:35.494 "Okay." 00:02:35.514 --> 00:02:37.525 And I swear, it's a true story. 00:02:37.555 --> 00:02:42.682 So, we went from small talk to racial slurs real quick. 00:02:43.524 --> 00:02:47.611 You also have a very special way of communicating. 00:02:47.631 --> 00:02:50.214 You use sarcasm, double meaning, 00:02:50.244 --> 00:02:52.872 and you often tiptoe around the truth. 00:02:53.302 --> 00:02:59.073 You have an almost pathological inability to communicate in a straightforward way. 00:02:59.742 --> 00:03:02.822 What you say can have multiple meanings, 00:03:02.852 --> 00:03:05.775 and you always have to read between the lines. 00:03:06.073 --> 00:03:07.922 I don't know how you do it! 00:03:07.942 --> 00:03:09.488 It's exhausting! 00:03:09.951 --> 00:03:12.184 And you are so twisted 00:03:12.214 --> 00:03:17.333 that sometimes you even ask questions you don't want to have the answers to. 00:03:18.276 --> 00:03:19.471 Like, for example, 00:03:19.501 --> 00:03:21.282 if one of my girlfriends says, 00:03:21.312 --> 00:03:23.752 "Oh look, I bought this new foundation the other day 00:03:23.782 --> 00:03:26.592 and I am wearing it right now; how do you like it?", 00:03:27.428 --> 00:03:31.431 I know by experience that it may be a rhetorical question. 00:03:31.812 --> 00:03:35.330 She probably is just trying to start a conversation 00:03:35.350 --> 00:03:37.492 or wants to be reassured. 00:03:37.522 --> 00:03:41.950 So if I give her a straight answer, like any autistic person would, 00:03:41.970 --> 00:03:43.217 and say, 00:03:43.237 --> 00:03:45.277 "Well, your face is orange, 00:03:45.307 --> 00:03:49.106 and it kind of makes you look like Donald Trump," 00:03:50.112 --> 00:03:51.461 that's no good. 00:03:51.871 --> 00:03:54.973 All those social codes and social conventions 00:03:54.993 --> 00:03:58.543 can be particularly hard to understand for an autistic person. 00:03:58.573 --> 00:04:01.382 We say what we mean, and we mean what we say, 00:04:01.412 --> 00:04:03.593 to the point of being brutally honest. 00:04:03.973 --> 00:04:07.139 And I really think that if you're ready to put your ego aside 00:04:07.159 --> 00:04:09.280 so as not to take everything personally, 00:04:09.310 --> 00:04:11.415 it's a much more efficient way to communicate 00:04:11.435 --> 00:04:13.878 because you can save a lot of time and energy. 00:04:13.908 --> 00:04:15.424 You should try it. 00:04:16.853 --> 00:04:21.199 But we also have similarities, like special interests. 00:04:21.626 --> 00:04:24.586 Autistic people tend to develop an intense interest 00:04:24.616 --> 00:04:26.704 in one or more subjects. 00:04:26.734 --> 00:04:28.549 It can be the subway lines, 00:04:28.569 --> 00:04:30.094 or exotic birds, 00:04:30.124 --> 00:04:32.933 or historical figures, like Angela Davis. 00:04:33.413 --> 00:04:36.632 We can accumulate a considerable amount of knowledge 00:04:36.652 --> 00:04:40.076 to the point of becoming experts in our special interests. 00:04:40.632 --> 00:04:44.633 It's considered a symptom because it can be all-consuming. 00:04:44.654 --> 00:04:47.071 But the truth is special interests 00:04:47.101 --> 00:04:49.810 are an important resource for people on the spectrum, 00:04:49.830 --> 00:04:53.194 and we need them as much as we need air to breathe. 00:04:53.762 --> 00:04:56.163 But you too have your own special interest: 00:04:56.183 --> 00:04:57.609 socializing. 00:04:58.143 --> 00:05:01.624 You spend so much time socializing, 00:05:01.654 --> 00:05:04.453 with your friends, during your coffee break, 00:05:04.473 --> 00:05:06.464 or even with the bus driver. 00:05:06.954 --> 00:05:10.774 It seems normal to you because most people function that way, 00:05:10.804 --> 00:05:14.496 but if you lived in a world dominated by autistic people, 00:05:14.526 --> 00:05:16.325 you would be the weirdos. 00:05:17.201 --> 00:05:20.373 And last but not least, your natural habitat. 00:05:20.395 --> 00:05:22.043 Can I read it for you? 00:05:22.524 --> 00:05:26.542 Neurotypical people are best observed at nightfall in a dynamic environment, 00:05:26.562 --> 00:05:28.266 with their peer group. 00:05:29.973 --> 00:05:34.592 Of course, as you may have noticed, this slide is a bit cliché, 00:05:34.613 --> 00:05:38.789 because not all neurotypical people drink champagne. 00:05:40.523 --> 00:05:43.273 And I hate to be the bearer of bad news, 00:05:43.303 --> 00:05:46.333 but there is no cure, for the time being. 00:05:46.363 --> 00:05:47.785 It's so sad. 00:05:48.833 --> 00:05:50.397 But seriously, though, 00:05:51.254 --> 00:05:53.189 what do you think about all this? 00:05:54.374 --> 00:05:56.317 Don't you feel a bit stigmatized? 00:05:57.183 --> 00:05:59.112 Were you not thinking just now, 00:05:59.852 --> 00:06:02.140 "That's a bit demeaning and simplistic"? 00:06:02.906 --> 00:06:04.022 Yeah, 00:06:04.562 --> 00:06:06.177 I know the feeling. 00:06:07.562 --> 00:06:13.262 Can you imagine living in a world where you are the minority, 00:06:14.143 --> 00:06:17.643 where your way of being is deemed pathological, 00:06:18.604 --> 00:06:21.247 where people will tell you stuff like, 00:06:21.648 --> 00:06:24.398 "But you don't look neurotypical"? 00:06:26.224 --> 00:06:29.363 Or, "I know all about neurotypical people 00:06:29.383 --> 00:06:32.403 because I saw an entire season of 'Friends.'" 00:06:33.812 --> 00:06:36.844 A world where people will try to standardize you, 00:06:37.178 --> 00:06:41.962 a world where you would constantly feel like you are not enough. 00:06:43.336 --> 00:06:45.732 Now finally, you can understand the kind of crap 00:06:45.762 --> 00:06:47.814 I've been dealing with my whole life. 00:06:49.135 --> 00:06:50.864 Welcome to my world. 00:06:51.982 --> 00:06:55.645 It gets on my nerves when people talk about the causes, the "symptoms" 00:06:55.665 --> 00:06:57.533 and the "treatments" of autism. 00:06:57.834 --> 00:07:01.102 I really think that we are going the wrong way. 00:07:01.482 --> 00:07:02.784 We should spend more time 00:07:02.804 --> 00:07:07.596 trying to give people on the spectrum the place they deserve in our society, 00:07:07.624 --> 00:07:10.913 trying to empower them and make them independent. 00:07:11.554 --> 00:07:13.635 Autistic people don't need a cure, 00:07:13.962 --> 00:07:16.882 but they do need appropriate educational approaches 00:07:16.912 --> 00:07:18.771 to grow and flourish. 00:07:19.206 --> 00:07:22.528 They also need their rights to be respected. 00:07:22.913 --> 00:07:27.626 In France, only 20 to 30% of autistic children go to school, 00:07:27.916 --> 00:07:31.363 and a very small number of autistic adults have a job. 00:07:31.653 --> 00:07:36.163 I can't tell you how many exactly, because we don't have the numbers. 00:07:36.193 --> 00:07:39.303 There is not a single study on the subject. 00:07:40.034 --> 00:07:41.196 We don't know either 00:07:41.216 --> 00:07:45.331 how many of us are currently locked up in psychiatric hospitals. 00:07:45.741 --> 00:07:47.160 But, you know, 00:07:47.180 --> 00:07:49.355 one is too many. 00:07:49.900 --> 00:07:54.932 We are doomed to a lifetime of loneliness, poverty and exclusion. 00:07:55.732 --> 00:07:59.126 And it's even more difficult for women on the spectrum. 00:07:59.526 --> 00:08:02.476 When you are at the intersection of autism and gender, 00:08:02.506 --> 00:08:04.494 you experience unique difficulties 00:08:04.514 --> 00:08:07.214 because you are not only the victim of autismophobia; 00:08:07.244 --> 00:08:09.273 you are also the victim of sexism, 00:08:09.303 --> 00:08:12.325 and those two forms of oppression interact together. 00:08:12.666 --> 00:08:14.306 Let me give you an example. 00:08:14.611 --> 00:08:17.803 We are just now starting to realize 00:08:17.833 --> 00:08:21.834 that the diagnostic criteria for autism are gender-biased, 00:08:21.854 --> 00:08:27.243 because they have been established taking into account the behavior of autistic men. 00:08:28.114 --> 00:08:32.444 That and the fact that autism is expressed in a much more subtle way in women 00:08:32.474 --> 00:08:36.612 are the reasons why so many women on the spectrum go undiagnosed 00:08:36.632 --> 00:08:38.496 or are misdiagnosed. 00:08:39.034 --> 00:08:42.798 Kimberlé Crenshaw was the first to come up with the concept of intersectionality 00:08:42.828 --> 00:08:45.156 to reveal the problems faced by black women, 00:08:45.176 --> 00:08:47.154 and she did an amazing TED talk about it. 00:08:47.174 --> 00:08:49.036 So, you should watch it. 00:08:49.454 --> 00:08:51.258 But like, not now, of course. 00:08:51.283 --> 00:08:53.445 This is my big moment. 00:08:55.908 --> 00:08:59.282 I remember meeting a researcher a few months ago. 00:08:59.612 --> 00:09:02.654 She was very excited about the recent discoveries 00:09:02.684 --> 00:09:06.509 on the impact of oxytocin as a treatment for autistic people. 00:09:07.494 --> 00:09:10.353 It seems this treatment allows people on the spectrum 00:09:10.373 --> 00:09:12.512 to socialize better or more. 00:09:13.312 --> 00:09:15.786 I told her that it raised a number of questions 00:09:15.806 --> 00:09:20.894 because if I had been given this treatment and had been pushed to socialize, 00:09:20.924 --> 00:09:23.155 I wouldn't have had time to accomplish 00:09:23.175 --> 00:09:26.546 all the things I've accomplished in the past six years. 00:09:27.394 --> 00:09:28.883 I have a blog, 00:09:28.903 --> 00:09:30.203 a YouTube channel, 00:09:30.233 --> 00:09:33.683 I did my PhD and I published two books. 00:09:33.713 --> 00:09:36.914 So, I don't spend time socializing with my friends, 00:09:36.944 --> 00:09:38.702 but who cares? 00:09:38.722 --> 00:09:40.273 I get things done. 00:09:40.793 --> 00:09:42.083 It doesn't make sense to me 00:09:42.113 --> 00:09:45.067 that people would want me to be less autistic. 00:09:45.092 --> 00:09:49.501 It is because I'm autistic that I am extremely focused, 00:09:49.863 --> 00:09:51.421 resilient, 00:09:51.441 --> 00:09:53.052 hypersensitive, 00:09:53.082 --> 00:09:56.341 and thus very creative, honest, 00:09:56.361 --> 00:09:59.045 and that I have many areas of expertise. 00:09:59.831 --> 00:10:03.173 And yes, I know that my experience is not the same 00:10:03.203 --> 00:10:06.322 as the experience of autistic people who are much more dependent, 00:10:06.342 --> 00:10:07.446 but still, 00:10:07.476 --> 00:10:10.883 I think this type of research raises ethical issues. 00:10:13.229 --> 00:10:18.015 I'd like to live in a world where I can just be myself, 00:10:19.043 --> 00:10:21.335 where my voice matters, 00:10:22.502 --> 00:10:25.617 where I can get the kind of support I need, 00:10:26.561 --> 00:10:30.793 a world where I don't need to be this poster child of autism 00:10:30.823 --> 00:10:32.992 in order to be loved and accepted, 00:10:33.324 --> 00:10:38.332 a world where I don't have to fight stereotypes and discrimination 00:10:38.352 --> 00:10:39.995 every single day. 00:10:40.343 --> 00:10:42.414 This is the world we have to build. 00:10:43.162 --> 00:10:44.372 And in the meantime, 00:10:44.402 --> 00:10:47.073 I'd like to say to my fellow autistic friends 00:10:47.103 --> 00:10:49.927 and to all the people who are different out there: 00:10:50.426 --> 00:10:51.992 you are not a mistake, 00:10:52.924 --> 00:10:56.074 you are not a disease that needs to be cured, 00:10:56.675 --> 00:10:59.375 and you are enough. 00:11:00.504 --> 00:11:01.652 Thank you. 00:11:01.672 --> 00:11:03.691 (Applause)