1 00:00:06,201 --> 00:00:07,646 I love this mic. 2 00:00:08,254 --> 00:00:09,763 I feel like Beyoncé. 3 00:00:09,783 --> 00:00:11,127 It's so cool. 4 00:00:13,120 --> 00:00:16,684 I was invited here to talk about autism. 5 00:00:17,203 --> 00:00:20,574 It's a topic I know quite well for two reasons. 6 00:00:20,604 --> 00:00:25,293 First, I studied it during my PhD in Social Psychology, 7 00:00:25,313 --> 00:00:28,582 and second, I myself am on the autism spectrum, 8 00:00:28,602 --> 00:00:31,102 since I have Asperger's syndrome. 9 00:00:31,132 --> 00:00:33,329 So, I kind of have a double hat. 10 00:00:34,483 --> 00:00:37,170 But when I was preparing this speech, 11 00:00:37,190 --> 00:00:40,663 I thought it would be even more interesting 12 00:00:40,693 --> 00:00:43,885 to talk about non-autistic people. 13 00:00:44,473 --> 00:00:45,900 Yeah, that's you. 14 00:00:46,281 --> 00:00:49,122 You see, I've been observing you my whole life, 15 00:00:49,152 --> 00:00:52,853 and truth be told, I find you quite fascinating. 16 00:00:52,883 --> 00:00:54,719 So, yeah, 17 00:00:54,739 --> 00:00:57,509 you definitely deserve your own PowerPoint. 18 00:00:59,004 --> 00:01:00,224 Ta-da! 19 00:01:01,041 --> 00:01:03,013 "Neurotypical people." 20 00:01:03,414 --> 00:01:07,115 That's how we call people who are not on the autism spectrum. 21 00:01:07,145 --> 00:01:10,225 So, you too have your own little label. 22 00:01:12,524 --> 00:01:14,359 What about symptoms? 23 00:01:14,389 --> 00:01:18,697 Well, neurotypical people love small talk. 24 00:01:18,722 --> 00:01:21,190 This is like your national sport! 25 00:01:21,565 --> 00:01:23,065 You talk, 26 00:01:23,095 --> 00:01:24,772 but you say nothing. 27 00:01:25,525 --> 00:01:27,561 What a strange custom! 28 00:01:27,825 --> 00:01:32,006 At first, I had no idea why you did that, 29 00:01:32,033 --> 00:01:33,193 but I get it now. 30 00:01:33,223 --> 00:01:35,205 Small talk serves a real purpose, 31 00:01:35,235 --> 00:01:37,525 because it enables you to connect with people 32 00:01:37,555 --> 00:01:39,334 in spaces you share, 33 00:01:39,354 --> 00:01:42,574 like with your neighbor in the building you live in, 34 00:01:42,604 --> 00:01:45,282 or with your colleague in your workspace. 35 00:01:45,692 --> 00:01:48,885 Over the years, I learned how to make small talk. 36 00:01:49,315 --> 00:01:51,435 But sometimes, it's tricky. 37 00:01:51,925 --> 00:01:56,273 Like, the other day, I ran into my neighbor in the elevator. 38 00:01:56,293 --> 00:02:00,882 And I was feeling confident, you know, because I was wearing my lucky outfit. 39 00:02:01,263 --> 00:02:04,863 And this is, of course, my lucky outfit, in case you're wondering. 40 00:02:04,893 --> 00:02:07,103 So I was feeling like the world belonged to me, 41 00:02:07,133 --> 00:02:09,613 and so I decided to engage in small talk. 42 00:02:09,643 --> 00:02:12,324 And I saw he was carrying bags full of groceries. 43 00:02:12,354 --> 00:02:14,984 So I had this stroke of genius 44 00:02:15,014 --> 00:02:17,964 and asked him this really profound question: 45 00:02:18,424 --> 00:02:20,210 "Oh, you did some shopping?" 46 00:02:20,884 --> 00:02:21,914 Yeah, well, 47 00:02:21,944 --> 00:02:23,953 as I said, I have a PhD, so - 48 00:02:25,233 --> 00:02:27,182 And the neighbor answers, 49 00:02:27,202 --> 00:02:31,234 "Yeah, I went to the market, but I won't go there anymore. 50 00:02:31,882 --> 00:02:33,515 Too many Arabs." 51 00:02:34,085 --> 00:02:35,494 "Okay." 52 00:02:35,514 --> 00:02:37,525 And I swear, it's a true story. 53 00:02:37,555 --> 00:02:42,682 So, we went from small talk to racial slurs real quick. 54 00:02:43,524 --> 00:02:47,611 You also have a very special way of communicating. 55 00:02:47,631 --> 00:02:50,214 You use sarcasm, double meaning, 56 00:02:50,244 --> 00:02:52,872 and you often tiptoe around the truth. 57 00:02:53,302 --> 00:02:59,073 You have an almost pathological inability to communicate in a straightforward way. 58 00:02:59,742 --> 00:03:02,822 What you say can have multiple meanings, 59 00:03:02,852 --> 00:03:05,775 and you always have to read between the lines. 60 00:03:06,073 --> 00:03:07,922 I don't know how you do it! 61 00:03:07,942 --> 00:03:09,488 It's exhausting! 62 00:03:09,951 --> 00:03:12,184 And you are so twisted 63 00:03:12,214 --> 00:03:17,333 that sometimes you even ask questions you don't want to have the answers to. 64 00:03:18,276 --> 00:03:19,471 Like, for example, 65 00:03:19,501 --> 00:03:21,282 if one of my girlfriends says, 66 00:03:21,312 --> 00:03:23,752 "Oh look, I bought this new foundation the other day 67 00:03:23,782 --> 00:03:26,592 and I am wearing it right now; how do you like it?", 68 00:03:27,428 --> 00:03:31,431 I know by experience that it may be a rhetorical question. 69 00:03:31,812 --> 00:03:35,330 She probably is just trying to start a conversation 70 00:03:35,350 --> 00:03:37,492 or wants to be reassured. 71 00:03:37,522 --> 00:03:41,950 So if I give her a straight answer, like any autistic person would, 72 00:03:41,970 --> 00:03:43,217 and say, 73 00:03:43,237 --> 00:03:45,277 "Well, your face is orange, 74 00:03:45,307 --> 00:03:49,106 and it kind of makes you look like Donald Trump," 75 00:03:50,112 --> 00:03:51,461 that's no good. 76 00:03:51,871 --> 00:03:54,973 All those social codes and social conventions 77 00:03:54,993 --> 00:03:58,543 can be particularly hard to understand for an autistic person. 78 00:03:58,573 --> 00:04:01,382 We say what we mean, and we mean what we say, 79 00:04:01,412 --> 00:04:03,593 to the point of being brutally honest. 80 00:04:03,973 --> 00:04:07,139 And I really think that if you're ready to put your ego aside 81 00:04:07,159 --> 00:04:09,280 so as not to take everything personally, 82 00:04:09,310 --> 00:04:11,415 it's a much more efficient way to communicate 83 00:04:11,435 --> 00:04:13,878 because you can save a lot of time and energy. 84 00:04:13,908 --> 00:04:15,424 You should try it. 85 00:04:16,853 --> 00:04:21,199 But we also have similarities, like special interests. 86 00:04:21,626 --> 00:04:24,586 Autistic people tend to develop an intense interest 87 00:04:24,616 --> 00:04:26,704 in one or more subjects. 88 00:04:26,734 --> 00:04:28,549 It can be the subway lines, 89 00:04:28,569 --> 00:04:30,094 or exotic birds, 90 00:04:30,124 --> 00:04:32,933 or historical figures, like Angela Davis. 91 00:04:33,413 --> 00:04:36,632 We can accumulate a considerable amount of knowledge 92 00:04:36,652 --> 00:04:40,076 to the point of becoming experts in our special interests. 93 00:04:40,632 --> 00:04:44,633 It's considered a symptom because it can be all-consuming. 94 00:04:44,654 --> 00:04:47,071 But the truth is special interests 95 00:04:47,101 --> 00:04:49,810 are an important resource for people on the spectrum, 96 00:04:49,830 --> 00:04:53,194 and we need them as much as we need air to breathe. 97 00:04:53,762 --> 00:04:56,163 But you too have your own special interest: 98 00:04:56,183 --> 00:04:57,609 socializing. 99 00:04:58,143 --> 00:05:01,624 You spend so much time socializing, 100 00:05:01,654 --> 00:05:04,453 with your friends, during your coffee break, 101 00:05:04,473 --> 00:05:06,464 or even with the bus driver. 102 00:05:06,954 --> 00:05:10,774 It seems normal to you because most people function that way, 103 00:05:10,804 --> 00:05:14,496 but if you lived in a world dominated by autistic people, 104 00:05:14,526 --> 00:05:16,325 you would be the weirdos. 105 00:05:17,201 --> 00:05:20,373 And last but not least, your natural habitat. 106 00:05:20,395 --> 00:05:22,043 Can I read it for you? 107 00:05:22,524 --> 00:05:26,542 Neurotypical people are best observed at nightfall in a dynamic environment, 108 00:05:26,562 --> 00:05:28,266 with their peer group. 109 00:05:29,973 --> 00:05:34,592 Of course, as you may have noticed, this slide is a bit cliché, 110 00:05:34,613 --> 00:05:38,789 because not all neurotypical people drink champagne. 111 00:05:40,523 --> 00:05:43,273 And I hate to be the bearer of bad news, 112 00:05:43,303 --> 00:05:46,333 but there is no cure, for the time being. 113 00:05:46,363 --> 00:05:47,785 It's so sad. 114 00:05:48,833 --> 00:05:50,397 But seriously, though, 115 00:05:51,254 --> 00:05:53,189 what do you think about all this? 116 00:05:54,374 --> 00:05:56,317 Don't you feel a bit stigmatized? 117 00:05:57,183 --> 00:05:59,112 Were you not thinking just now, 118 00:05:59,852 --> 00:06:02,140 "That's a bit demeaning and simplistic"? 119 00:06:02,906 --> 00:06:04,022 Yeah, 120 00:06:04,562 --> 00:06:06,177 I know the feeling. 121 00:06:07,562 --> 00:06:13,262 Can you imagine living in a world where you are the minority, 122 00:06:14,143 --> 00:06:17,643 where your way of being is deemed pathological, 123 00:06:18,604 --> 00:06:21,247 where people will tell you stuff like, 124 00:06:21,648 --> 00:06:24,398 "But you don't look neurotypical"? 125 00:06:26,224 --> 00:06:29,363 Or, "I know all about neurotypical people 126 00:06:29,383 --> 00:06:32,403 because I saw an entire season of 'Friends.'" 127 00:06:33,812 --> 00:06:36,844 A world where people will try to standardize you, 128 00:06:37,178 --> 00:06:41,962 a world where you would constantly feel like you are not enough. 129 00:06:43,336 --> 00:06:45,732 Now finally, you can understand the kind of crap 130 00:06:45,762 --> 00:06:47,814 I've been dealing with my whole life. 131 00:06:49,135 --> 00:06:50,864 Welcome to my world. 132 00:06:51,982 --> 00:06:55,645 It gets on my nerves when people talk about the causes, the "symptoms" 133 00:06:55,665 --> 00:06:57,533 and the "treatments" of autism. 134 00:06:57,834 --> 00:07:01,102 I really think that we are going the wrong way. 135 00:07:01,482 --> 00:07:02,784 We should spend more time 136 00:07:02,804 --> 00:07:07,596 trying to give people on the spectrum the place they deserve in our society, 137 00:07:07,624 --> 00:07:10,913 trying to empower them and make them independent. 138 00:07:11,554 --> 00:07:13,635 Autistic people don't need a cure, 139 00:07:13,962 --> 00:07:16,882 but they do need appropriate educational approaches 140 00:07:16,912 --> 00:07:18,771 to grow and flourish. 141 00:07:19,206 --> 00:07:22,528 They also need their rights to be respected. 142 00:07:22,913 --> 00:07:27,626 In France, only 20 to 30% of autistic children go to school, 143 00:07:27,916 --> 00:07:31,363 and a very small number of autistic adults have a job. 144 00:07:31,653 --> 00:07:36,163 I can't tell you how many exactly, because we don't have the numbers. 145 00:07:36,193 --> 00:07:39,303 There is not a single study on the subject. 146 00:07:40,034 --> 00:07:41,196 We don't know either 147 00:07:41,216 --> 00:07:45,331 how many of us are currently locked up in psychiatric hospitals. 148 00:07:45,741 --> 00:07:47,160 But, you know, 149 00:07:47,180 --> 00:07:49,355 one is too many. 150 00:07:49,900 --> 00:07:54,932 We are doomed to a lifetime of loneliness, poverty and exclusion. 151 00:07:55,732 --> 00:07:59,126 And it's even more difficult for women on the spectrum. 152 00:07:59,526 --> 00:08:02,476 When you are at the intersection of autism and gender, 153 00:08:02,506 --> 00:08:04,494 you experience unique difficulties 154 00:08:04,514 --> 00:08:07,214 because you are not only the victim of autismophobia; 155 00:08:07,244 --> 00:08:09,273 you are also the victim of sexism, 156 00:08:09,303 --> 00:08:12,325 and those two forms of oppression interact together. 157 00:08:12,666 --> 00:08:14,306 Let me give you an example. 158 00:08:14,611 --> 00:08:17,803 We are just now starting to realize 159 00:08:17,833 --> 00:08:21,834 that the diagnostic criteria for autism are gender-biased, 160 00:08:21,854 --> 00:08:27,243 because they have been established taking into account the behavior of autistic men. 161 00:08:28,114 --> 00:08:32,444 That and the fact that autism is expressed in a much more subtle way in women 162 00:08:32,474 --> 00:08:36,612 are the reasons why so many women on the spectrum go undiagnosed 163 00:08:36,632 --> 00:08:38,496 or are misdiagnosed. 164 00:08:39,034 --> 00:08:42,798 Kimberlé Crenshaw was the first to come up with the concept of intersectionality 165 00:08:42,828 --> 00:08:45,156 to reveal the problems faced by black women, 166 00:08:45,176 --> 00:08:47,154 and she did an amazing TED talk about it. 167 00:08:47,174 --> 00:08:49,036 So, you should watch it. 168 00:08:49,454 --> 00:08:51,258 But like, not now, of course. 169 00:08:51,283 --> 00:08:53,445 This is my big moment. 170 00:08:55,908 --> 00:08:59,282 I remember meeting a researcher a few months ago. 171 00:08:59,612 --> 00:09:02,654 She was very excited about the recent discoveries 172 00:09:02,684 --> 00:09:06,509 on the impact of oxytocin as a treatment for autistic people. 173 00:09:07,494 --> 00:09:10,353 It seems this treatment allows people on the spectrum 174 00:09:10,373 --> 00:09:12,512 to socialize better or more. 175 00:09:13,312 --> 00:09:15,786 I told her that it raised a number of questions 176 00:09:15,806 --> 00:09:20,894 because if I had been given this treatment and had been pushed to socialize, 177 00:09:20,924 --> 00:09:23,155 I wouldn't have had time to accomplish 178 00:09:23,175 --> 00:09:26,546 all the things I've accomplished in the past six years. 179 00:09:27,394 --> 00:09:28,883 I have a blog, 180 00:09:28,903 --> 00:09:30,203 a YouTube channel, 181 00:09:30,233 --> 00:09:33,683 I did my PhD and I published two books. 182 00:09:33,713 --> 00:09:36,914 So, I don't spend time socializing with my friends, 183 00:09:36,944 --> 00:09:38,702 but who cares? 184 00:09:38,722 --> 00:09:40,273 I get things done. 185 00:09:40,793 --> 00:09:42,083 It doesn't make sense to me 186 00:09:42,113 --> 00:09:45,067 that people would want me to be less autistic. 187 00:09:45,092 --> 00:09:49,501 It is because I'm autistic that I am extremely focused, 188 00:09:49,863 --> 00:09:51,421 resilient, 189 00:09:51,441 --> 00:09:53,052 hypersensitive, 190 00:09:53,082 --> 00:09:56,341 and thus very creative, honest, 191 00:09:56,361 --> 00:09:59,045 and that I have many areas of expertise. 192 00:09:59,831 --> 00:10:03,173 And yes, I know that my experience is not the same 193 00:10:03,203 --> 00:10:06,322 as the experience of autistic people who are much more dependent, 194 00:10:06,342 --> 00:10:07,446 but still, 195 00:10:07,476 --> 00:10:10,883 I think this type of research raises ethical issues. 196 00:10:13,229 --> 00:10:18,015 I'd like to live in a world where I can just be myself, 197 00:10:19,043 --> 00:10:21,335 where my voice matters, 198 00:10:22,502 --> 00:10:25,617 where I can get the kind of support I need, 199 00:10:26,561 --> 00:10:30,793 a world where I don't need to be this poster child of autism 200 00:10:30,823 --> 00:10:32,992 in order to be loved and accepted, 201 00:10:33,324 --> 00:10:38,332 a world where I don't have to fight stereotypes and discrimination 202 00:10:38,352 --> 00:10:39,995 every single day. 203 00:10:40,343 --> 00:10:42,414 This is the world we have to build. 204 00:10:43,162 --> 00:10:44,372 And in the meantime, 205 00:10:44,402 --> 00:10:47,073 I'd like to say to my fellow autistic friends 206 00:10:47,103 --> 00:10:49,927 and to all the people who are different out there: 207 00:10:50,426 --> 00:10:51,992 you are not a mistake, 208 00:10:52,924 --> 00:10:56,074 you are not a disease that needs to be cured, 209 00:10:56,675 --> 00:10:59,375 and you are enough. 210 00:11:00,504 --> 00:11:01,652 Thank you. 211 00:11:01,672 --> 00:11:03,691 (Applause)