[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,You'll see in the corner the record button
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,So you should see that it's recording now,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I'm going to mute myself now, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you'll go ahead and do your intro.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Thank you Marcie. Hi there, I'm Marcie Roth, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I have been working in disability rights
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for my whole adult life, since I was a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,freshman in high school. I am currently
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the executive director and CEO of the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,World Institute on Disability and I have
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,been working over the years and services
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for people living in residential programs
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,early in my career with people in with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,children in school settings, people in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,vocational rehabilitation, and then people
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in community living environments, then
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,along the way, I became very involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability rights and very involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the early days of advocacy before
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the ADA was introduced. And then I worked
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for disability advocacy organizations
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,almost ever since. In addition to my own
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability, I'm also the parent of two now
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,adults with disabilities. My husband also
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,has a disability and much of my family
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,also happen to be people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,so disability rights is just part of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,everything I am and most everything I do.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I did spend from 2001 and onward focusing
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,very much on what happens for people
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,with disabilities before, during, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,after disasters. And that's been a real
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,particular laser focus of mine ever since
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and in fact, I've had the opportunity
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,as an appointee in the Obama
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,administration to spend just about 8 years
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,at FEMA, establishing FEMA's Office of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disability Integration Coordination and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,building a cadre of disability experts of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the same pond, supporting governors and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,emergency managers and most particularly
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,engaging people with disabilities and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability organizations in emergency
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,preparedness and throughout disaster
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,response recovery and mitigation. So one
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,last piece since I've been with the World
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Institute on Disability since last
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,September, my ongoing focus on global
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability rights has really been
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,something that I've had much more
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,opportunity to be actively involved in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I have spent the time since joining
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,WID building a strategic planning process
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and supporting the organization to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,establish new priorities, taking a look at
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the organization's mission, and very
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,recently establishing for particular areas
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of focus for the organization as we move
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,forward. Thank you Marcie. Excellent, okay
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I apologize that my neighbor is chipping a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,lot of brush today, so it's making a lot
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of extra sound whenever I unmute, but
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,don't worry, it won't interfere with your
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,recording. Okay, so the first question is
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,about the past. So tell of your first
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,memory realizing that there were
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,accessibility issues, discrimination, or
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,lack of inclusion. What is your personal
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,story or connection with the American with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disabilities Act? What do you remember
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,about the day that it was signed, if
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,applicable? And what was the impact on
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you and on others? Remember to tap
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,something so that the camera shifts to you
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,before you start.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I first became aware of disability at a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,very young age. I had a best friend in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,first grade. His name was Gregory, and he
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I were just wonderful friends. We
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,spent a lot of time together, and then all
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of a sudden, one day Gregory was gone
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I didn't know what happened to him or
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,where he went and it wasn't until many
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,years later that I found out that Gregory
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,had Down Syndrome, and he had been removed
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,from my kindergarten class and first
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,grade I think it was at that point. And
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,apparently he had been sent to some other
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,school, somewhere. And the loss of his
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,friendship was pretty surprising and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I didn't understand you know where he went
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Looking back on it, it was kind of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,peculiar that we didn't just get to still
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,be friends 'cause he didn't move away, he
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,just stopped going to my school. But I
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,remember just being confused and then
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,over the next number of years, I lived in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,a town that was also the home of Save the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Children, and I was always very interested
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in the work that Save the Children was
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,doing and I am embarrassed to admit that
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,my earliest involvement in humanitarian
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,work was from a very charity-model
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,approach, and I spent a lot of my
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,childhood raising money for Save the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Children and getting involved in other
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,activities that were very much following
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the charity-pity model and certainly not a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,model making space for and lifting
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,up other people with disabilities. The
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,onset of my disability wasn't until many
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,years later, but when I was in high school
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I had the, I had a requirement to do...
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I can't even remember what it's called now
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,community service! Sorry. I had the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,opportunity to do--I had an obligation
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,to do community service and I started off
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,This was the year of the first Earth Day
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I started crushing glass at the local
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,recycling center and it turned out that
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,that was really boring but lots of my
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,classmates were volunteering at a state
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,institution for people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I joined them once a week and looking
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,back on it again, it was pretty shocking
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,that at 13 years old, I was assigned as
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the teacher of a classroom of 30 adults
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,who had never had the opportunity to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,really attend school and they now had a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,13-year old teacher once a week. Needless
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,to say, I learned way more from them than
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,they learned from me, but we had a lot of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,fun and many of them became friends very
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,much along the rest of my path and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,unfortunately, some of them are no longer
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,alive but there are a couple of people who
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,are still very much a part of my life and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,fortunately, they were successful in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,liberating themselves from that state
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,institution. And so they and many others
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,taught me a lot. But the real pivotal
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,experience for me, I was working back at
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,that state institution, it was my first
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,paid job in disability services and I had
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,been hired to work in what was called a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,"cottage" for 40 women with intellectual
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disabilites and this "cottage" was on
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,beautiful grounds but the women lived in a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,building 20 on one side, 20 on the other
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,side and my responsibilities included
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,assisting them in bathing and getting
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,dressed and in eating. Many of them were
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,unable to feed themselves. Some because
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,they had never been given the opportunity,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,others because of their physical
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability and a lack of any sort of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,adapted utensils or other equipment.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,So as I was feeding people, the sort of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,routine was the same every day. A plate
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,would come out, and there would be 3
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,mounds of food on the plate. One mound was
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,always brown, one mound was always
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,green, and one mount was always white.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,You know the meat, the vegetable, and the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,starch. And I know that people like to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,eat their meals in different ways. There
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,would also be a dessert every day, jello or
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,ice cream, again always in a mound.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,And so I would spend time with each of the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,individuals who were having their meal
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and would sort of be working together,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,trying to figure out if they preferred to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,have, to eat their dessert first? Some
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,people liked to do that. Did they prefer a
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,little bit of the brown and a little bit
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of the white all on the same fork? Did
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,they not want their food touching? You
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,know and I would sort of work back and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,forth with them to try and figure out what
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,their preference was and I got in trouble
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,because I was spending too much time
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and ultimately, I was moved to a different
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,position because I was taking too much
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,time giving people an opportunity to make
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,some choices and express some preferences.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,So that was extremely pivotal and in many
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,ways you know, those early early
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,experiences have really totally driven who
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,I am and what I believe all these years
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,later. In terms of the Americans with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disability Act, I had a very close
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,personal experience with what was then
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,called "public law 94142" the Education of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,All Handicapped Act, later on renamed
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Individuals with Disabilities Act, IDEA
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and I had a very personal family
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,experience with IDEA and became aware of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,legislative initiatives and how the IDEA
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,had just been passed. And then I started
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,to become more aware of the work being
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,done. And this was back in the 70s and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,work being done of other legislative
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,initiatives and the 504, the passage of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the Rehabilitation Act, followed by the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,504 sit-in in San Francisco to get the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,regulations put in place. That really
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,caught my attention and between the little
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,bits of information I was getting there
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and the work I was doing and then
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,becoming a full-time advocate going to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,work for an independent living center in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,1982, I then became extremely involved
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in systems change and how to develop
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,policy, how to organize, how to support
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the rights and voices and preferences of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,other people and because I lived in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Connecticut and the original author of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the Americans with Disability Act, the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,first time that it was introduced was
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Senator Weicker of Connecticut, and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Senator Weicker, father of a great young
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,man who had Down Syndrome, Senator
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Weicker was very involved with the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disability advocacy community in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Connecticut, and I then had the incredible
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,opportunity to go to Boston and testify
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,at one of the Congress major hearings--
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,field hearings on the Americans with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disability Act. So you know of course the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,first time around, the bill didn't pass
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,but we were revved up and in the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,passage of the ADA, in the period in which
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,once the bill was re-introduced and votes
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,were organizing, I remember that we had
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,stacks and stacks and stacks of bright
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,pink postcards and we were organizing
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,folks across the states to develop, to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,sign those postcards supporting the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,passage of the ADA and then you know this
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,was sort of a wonderful but maybe
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,misleading experience, we actually were
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,successful. The bill got passed! And I
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,remember thinking "Oh, well this wasn't
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,that hard. I mean, you know, we had to go
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,at it twice, but well this wasn't so hard.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Let's take on some more legislation!" And
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,it turns out that it wasn't as easy
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,as it looked to me. It wasn't just about
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,hot pink postcards and meetings and
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,marches--that all helped but even that
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,sometimes these days, it doesn't seem to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,be enough to change policy. So that is my
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,earliest journey to 1990.
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Thank you Marcie. Okay we're going to the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,present now. So just so you know, I do
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,have another interview at 2:00, so we're
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,going to have 3 more sections: the present
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the future, and the call to action. So
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,just to pace yourself within the--thank
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,you. So within the present, has the ADA
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,made a difference? Tell us about your
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,"aha" moment that told you that the ADA is
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,or is not making a difference and to what
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,extent based on your passions and areas of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,expertise, where do you see or not see the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,impact of the ADA?
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,So the ADA has had a huge
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and sweeping impact
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and it's important for me
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,as I begin to talk
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,about the current day as we're embarking
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,on ADA 30 it's really important to start
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,with how much things absolutely have
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,changed, certainly some of the architectural
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,barrier removal efforts, some of the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,signficant improvements in equally effective
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,communications, some of the requirements
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,around programs, all of those have significantly
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,changed most often--can't even say--often
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,there's been really great initatives over
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the years but we've always had to maintain
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,a relentless battle to not let anything slip
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,to not let anything lose any sort of momentum
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,towards accessiblity, if we look away for a minute
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,our rights will be swept away from us, and I can
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,certainly talk about about the very present day
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and what I have to say about where
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,we are today is not great and I want to take a little
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,more time to call out the significant progress
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in so many aspects of daily life in which we can
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,call out failures of ADA compliance,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,enforcement of the law but oftentimes
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in comparison to the examples to where
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,it's working, so when transportation
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,is not accessible, we're calling it out
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,because we know the good and promising
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,practices that have been in place
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,for transportation accessiblity
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,make the failures so more egregious
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in housing, in employment, in the kinds of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,assistive devices that are accessible, the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,universal design of places and things
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,all of that points to examples of where we
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,are getting it right and in stark contrast
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,where we are egregiously getting it wrong
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and just recently I have led my organizations
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,involvement in petiton to US Dept of Health and Human
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Services be immediately relocated out of nursing
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,homes and other congregate settings due to the
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,horrific circumstances in those congregate
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,settings due to covid-19 and the failure to provide
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,appropriate protections for people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in instutiotional settings
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,in the ADA back in 1990 gave people with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disabilities significant rights
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,even when challenged in 1999 the Olmstead
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,case, which was a Georgia case, two women
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Lois and Elaine, Lois Curtiss an incredible
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,woman I had a chance to be with on a number
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of occassions determined they had a right to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,live in a circumstance most appropriate to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,their needs, the decision went all the way to
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the Supreme Court and I was among those who
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,slept outside the Supreme Court the night
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,before their case was heard and I was among
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the folks who celebrated out in front of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the Supreme Court the day that case came
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,down in favor of Lois and Elaine's right,
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and 10s of 1000's, millions of people with
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,disabilities to live in the most integrated setting
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,appropriate to their needs. Given
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,we are 21 years after that decision, yesterday
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the American Civil Liberties Union submitted
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,a petition and the World Institute of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Disability joined a number of other disability
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,organizations bringing that petition
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,demanding that people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,relocate out of these congregate settings
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,10s of 1000's of people have died in
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the last 100 days, the genocide
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,of people with disabilities because of
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,the failures of implementation of that
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,Olmstead decision and the failures of our
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,government to provide the kind of supports
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,and services to enable people with disabilities
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,to live safely and with the support they
Dialogue: 0,9:59:59.99,9:59:59.99,Default,,0000,0000,0000,,need in the community