WEBVTT 00:00:00.909 --> 00:00:02.529 So hi, I'm Catherine Blakemoore 00:00:02.927 --> 00:00:07.199 I'm the former Executive Director of Disability Rights California 00:00:08.407 --> 00:00:12.119 which is the agency established under federal law 00:00:12.220 --> 00:00:14.904 as California's protection and advocacy system. 00:00:15.024 --> 00:00:18.894 Our mandate is to assist people with disabilities 00:00:19.038 --> 00:00:24.492 and protect their civil rights through a variety of advocacy efforts. 00:00:25.102 --> 00:00:30.110 Um, and I had the really good fortune of working at Disability Rights California 00:00:30.196 --> 00:00:35.268 or other similar organizations for about 40 years 00:00:35.268 --> 00:00:38.926 and both as a lawyer representing people and protecting their civil rights 00:00:39.005 --> 00:00:42.061 and their educational rights and their housing rights, 00:00:42.141 --> 00:00:44.609 and then most recently as the Executive Director. 00:00:44.762 --> 00:00:50.738 So the ADA to me is really based on the foundations 00:00:50.804 --> 00:00:52.967 of other really important statutes 00:00:53.225 --> 00:00:56.472 and those include the Individuals with Disabilities Education Act 00:00:56.796 --> 00:00:59.025 Section 504 of the Rehabilitation Act NOTE Paragraph 00:00:59.362 --> 00:01:04.637 and both of those laws helped ensure inclusion and end discrimination. 00:01:05.114 --> 00:01:08.474 So when I was a very young lawyer in 1977, 00:01:08.738 --> 00:01:11.457 I did a lot of work in the area of education 00:01:11.768 --> 00:01:18.468 and one of the very first cases I worked on was representing a child, Jeremy 00:01:18.578 --> 00:01:21.996 who was in 1st grade and in the summer, 00:01:22.077 --> 00:01:24.221 he had been crossing a street with his family 00:01:24.283 --> 00:01:29.042 and unfortunately was hit by a car and became quadriplegic as a result of that 00:01:29.651 --> 00:01:33.974 and when his mother went to enroll him in school for the next school year, 00:01:34.206 --> 00:01:36.720 she was told that because of his disability, 00:01:36.835 --> 00:01:39.674 he could not return to his neighborhood school. 00:01:39.912 --> 00:01:45.097 and instead would need to go to a segregated special education program 00:01:45.391 --> 00:01:47.849 because that's where students with disabilities went 00:01:47.980 --> 00:01:51.222 and his parents contacted us and we agreed to take the case 00:01:51.268 --> 00:01:53.649 because that discrimination of saying 00:01:53.744 --> 00:01:59.315 you couldn't be with your neighborhood peers was just fundamentally wrong 00:01:59.789 --> 00:02:02.835 and contrary to the very foundations 00:02:02.928 --> 00:02:05.821 of the Individuals with Disabilities Education Act 00:02:06.057 --> 00:02:09.241 so we represented him in he hearing, we went to court. 00:02:09.931 --> 00:02:14.015 When we went to court, I think one of the most important things to me, 00:02:14.151 --> 00:02:18.734 was numbers of his classmates and their parents came to court with us 00:02:18.885 --> 00:02:22.314 and the students, they're 1st and 2nd graders, 00:02:22.378 --> 00:02:25.627 um, clearly enjoyed being with Jeremy 00:02:25.770 --> 00:02:29.215 but also more importantly, talked to the news media that was there 00:02:29.259 --> 00:02:34.256 about how they couldn't understand why Jeremy couldn't attend school with them 00:02:34.475 --> 00:02:38.480 and how important it was that their friend be able to go to school 00:02:38.510 --> 00:02:43.534 and participate with them just like he had in the years before. 00:02:43.760 --> 00:02:48.070 So that case to me, just represented the fist opportunity 00:02:48.082 --> 00:02:51.707 to really challenge a discriminatory practice and ensure that Jeremy 00:02:51.957 --> 00:02:54.160 could attend his neighborhood school 00:02:54.270 --> 00:02:57.395 and be included with his friends. 00:02:57.504 --> 00:03:03.475 So I think the first "aha" moment of the ADA was our ability 00:03:03.627 --> 00:03:08.577 to use the ADA and to discuss the United States Supreme Court decision 00:03:08.746 --> 00:03:14.231 called the "Olmstead Case" which said that people with disabilities 00:03:14.388 --> 00:03:18.873 could not be unnecessarily segregated in institutions 00:03:19.181 --> 00:03:25.227 and one of the most powerful ways we use the ADA and that case holding 00:03:25.328 --> 00:03:28.021 was to challenge the budget cuts 00:03:28.402 --> 00:03:33.185 that were proposed when California was deep in an economic recession in 2008 00:03:33.221 --> 00:03:38.345 and 2009. The state made the decision that what it was going to do is 00:03:38.434 --> 00:03:42.519 significantly reduce community-based supports like the 00:03:42.571 --> 00:03:44.442 in-home supportive services program 00:03:44.683 --> 00:03:50.417 Umm and our lawyers in Disability Rights California 00:03:50.723 --> 00:03:57.090 decided that that violated the ADA and would result in people needing to move 00:03:57.191 --> 00:04:00.844 into institutions, contrary to the Olmstead Decision 00:04:00.986 --> 00:04:04.933 So twice we went into federal court. Twice we were successful 00:04:05.057 --> 00:04:11.950 with the court holding that the ADA prohibited the state from making decisions 00:04:12.038 --> 00:04:15.991 that would result in the unnecessary institutionalization of people. 00:04:15.991 --> 00:04:20.289 So the ADA is an extraordinarily powerful tool to 00:04:21.070 --> 00:04:27.412 protect people's civil rights and one that we need to continue to use today. 00:04:29.071 --> 00:04:34.801 So I think what we've learned um in the last few months is that 00:04:34.870 --> 00:04:41.568 there is always room for us to continue to use the ADA as a tool to push further 00:04:41.998 --> 00:04:46.705 and the pandemic really reminds us of the high risk 00:04:46.814 --> 00:04:51.067 that people with disabilities, particularly those living in segregated 00:04:51.282 --> 00:04:53.880 and isolated settings like nursing homes face. 00:04:55.753 --> 00:05:00.526 COVID, which disproportionately impacted nursing home residents 00:05:00.638 --> 00:05:04.989 and it's in part because of the congregate setting that they live in 00:05:05.059 --> 00:05:12.091 and the vulnerability of people with disabilities to this particular disease. 00:05:12.214 --> 00:05:17.620 And so as we think about reopening California and moving forward, 00:05:17.701 --> 00:05:22.679 we have to really remember the importance of the ADA in saying 00:05:22.772 --> 00:05:25.370 that people need to live in the community. 00:05:25.832 --> 00:05:27.355 They need to be included. 00:05:27.613 --> 00:05:31.404 We have to be mindful of how do we accommodate the needs of people with 00:05:31.491 --> 00:05:33.942 disabilities as part of our reopening. 00:05:34.149 --> 00:05:39.600 How do we redesign service systems so that we no longer think of nursing homes as 00:05:39.630 --> 00:05:45.830 a primary place where people with disabilities or seniors should be living 00:05:46.016 --> 00:05:51.921 How do we ensure that people with disabilities, when they are participating 00:05:52.022 --> 00:05:58.653 in activities of the day aren't placed in isolated day kinds of programs 00:05:58.782 --> 00:06:04.422 but instead given opportunities to interact in the larger community 00:06:04.545 --> 00:06:08.074 So lots of work in that area to be done. 00:06:08.472 --> 00:06:14.296 I think the other part that's important is to use this moment to 00:06:14.302 --> 00:06:17.968 engage in intersectional civil rights advocacy. 00:06:18.277 --> 00:06:25.249 There's lots of energy now to looking at issues of discrimination affecting 00:06:25.517 --> 00:06:29.094 black and brown people who are also more disproportionately impacted 00:06:29.227 --> 00:06:33.890 by the pandemic and to use this as an opportunity to come together as 00:06:34.003 --> 00:06:40.089 a larger civil rights community to advance inclusion, integration, 00:06:40.391 --> 00:06:45.172 nondiscrimination for all people including those with disabilities.