1 00:00:00,431 --> 00:00:03,914 Hi everyone, I'm Amythest, and welcome to "Ask an Autistic". 2 00:00:03,914 --> 00:00:06,322 (Upbeat music) I want to write a song 3 00:00:06,322 --> 00:00:11,254 to shine a light, be the change we want something's right... 4 00:00:11,254 --> 00:00:15,922 We've been waiting in the dark for so long 5 00:00:17,072 --> 00:00:21,402 Today I'm going to be talking about Sensory Processing Disorder. 6 00:00:21,408 --> 00:00:26,003 Sensory Processing Disorder is a neurological condition in which the brain 7 00:00:26,003 --> 00:00:30,003 does not interpret sensory input from the environment correctly. 8 00:00:30,003 --> 00:00:34,766 A person with Sensory Processing Disorder may be over or under sensitive to input 9 00:00:35,036 --> 00:00:41,432 from their environment, such as lights, colors, noises, music, people talking, 10 00:00:41,432 --> 00:00:45,281 smells, textures, and tastes. 11 00:00:45,281 --> 00:00:48,763 Every autistic person will have some kind of Sensory Integration Issues. 12 00:00:48,763 --> 00:00:52,863 This is just part of our neurotype and part of what makes us autistic. 13 00:00:52,863 --> 00:00:57,513 But, Sensory Processing Disorder, as a neurological diagnosis can exist 14 00:00:57,513 --> 00:01:00,246 on its own, in non-autistic children. 15 00:01:04,429 --> 00:01:09,183 Sensory Processing Disorder really can affect and encompass all of the senses. 16 00:01:09,183 --> 00:01:12,569 Now, human beings actually have more than five senses, we have something like 17 00:01:12,569 --> 00:01:16,263 eighteen to twenty-two, depending on who you ask. 18 00:01:16,701 --> 00:01:19,785 But, I think that there are the seven basic senses that are important 19 00:01:19,785 --> 00:01:22,492 to know about to understand Sensory Processing Disorder. 20 00:01:22,492 --> 00:01:26,190 So you have the basic five, which I think everybody has heard of. 21 00:01:26,483 --> 00:01:33,681 That's taste, touch, smell, sight, sound. Yeah, I think I got that right. 22 00:01:33,681 --> 00:01:37,725 And then there are two senses that most people haven't heard of. 23 00:01:38,081 --> 00:01:41,227 And that is the Proprioceptive Sense and the Vestibular Sense. 24 00:01:41,227 --> 00:01:46,236 Proprioceptive Sense is the sense of where your body is in space. 25 00:01:46,236 --> 00:01:50,219 It allows for you to know where your limbs are, how much force you're 26 00:01:50,219 --> 00:01:51,471 exerting on things. 27 00:01:51,471 --> 00:01:54,484 And also, where you are spatially in your environment, and how to interact 28 00:01:54,484 --> 00:01:56,173 with objects in your environment. 29 00:01:56,173 --> 00:01:59,931 The Vestibular Sense is the sense that is all about motion and movement. 30 00:01:59,931 --> 00:02:03,886 It is a sense that tells you if you are in motion or standing still. 31 00:02:03,886 --> 00:02:08,490 If you are up or down, swinging, spinning, upside down, 32 00:02:08,520 --> 00:02:11,985 all of that is informed by the Vestibular Sense. 33 00:02:12,021 --> 00:02:16,872 So, as I'm sure you can imagine, when a person is under or over sensitive 34 00:02:16,980 --> 00:02:21,647 to any of the sensory input they may receive from their environment, 35 00:02:21,661 --> 00:02:24,821 their experience is going to be a lot different than a neuro-typical person's. 36 00:02:24,821 --> 00:02:28,138 And their life is going to be very different because of the things they 37 00:02:28,138 --> 00:02:29,657 have to deal with. 38 00:02:29,729 --> 00:02:33,410 For example, a child who is undersensitive to proprioceptive input may have trouble 39 00:02:33,421 --> 00:02:38,445 knowing where his body is in space, he may have trouble knowing how much 40 00:02:38,445 --> 00:02:39,932 pressure to exert on things. 41 00:02:39,932 --> 00:02:42,425 So he may either be too gentle, and be, you know, 42 00:02:42,441 --> 00:02:44,254 consistently dropping small objects. 43 00:02:44,254 --> 00:02:49,286 Or, he may be too rough in play, and be constantly seeking out really rough 44 00:02:49,306 --> 00:02:52,356 activities to give him a lot of deep pressure input on his joints. 45 00:02:52,392 --> 00:02:54,996 Like wrestling, jumping around, jumping on a trampoline. 46 00:02:55,493 --> 00:02:57,525 A person with sensory integration issues who is very sensitive to noise may have 47 00:03:01,506 --> 00:03:05,471 a lot of trouble with auditory processing issues when they're in a space where there 48 00:03:05,471 --> 00:03:08,915 is background noise, like music, or a lot of people talking, like in a restaurant. 49 00:03:08,915 --> 00:03:13,664 So while they can hear the person who is sitting across from them and speaking, 50 00:03:13,664 --> 00:03:17,126 they may not be able to interpret what the person is saying. 51 00:03:17,126 --> 00:03:21,481 They know that they're speaking, their brain just can't filter out all of the 52 00:03:21,481 --> 00:03:22,674 auditory information. 53 00:03:23,615 --> 00:03:28,313 So like I said, sensory processing issues can encompass and incorporate all of the 54 00:03:28,313 --> 00:03:30,723 senses. And everybody who has sensory integration 55 00:03:30,723 --> 00:03:34,598 issues, autistic or non-autistic will have their own set of triggers, 56 00:03:34,598 --> 00:03:38,092 negative sensory input that causes them discomfort or pain. 57 00:03:38,092 --> 00:03:40,292 And many people who have sensory integration issues, will have 58 00:03:40,302 --> 00:03:46,814 some sensory input that they actively seek out and they crave, often because they are 59 00:03:46,814 --> 00:03:48,007 undersensitive to it. 60 00:03:48,396 --> 00:03:52,720 So, an autistic person who seeks out Vestibular input because they are 61 00:03:52,727 --> 00:03:55,689 under-sensitive to vestibular input may really enjoy activities like 62 00:03:55,716 --> 00:03:59,712 swinging on a swing, or spinning on a tire swing, or on a computer chair. 63 00:04:04,722 --> 00:04:08,722 Something that comes up a lot, and I get questions about this a lot, comes down to 64 00:04:08,925 --> 00:04:11,573 Sensory Defensiveness and food. 65 00:04:11,573 --> 00:04:15,615 Many autistic people have a very limited diet. And this is both due to 66 00:04:15,615 --> 00:04:22,005 love of routine and resistance to change, but also to sensory defensiveness. 67 00:04:22,005 --> 00:04:25,689 Sadly, children who are struggling with sensory integration issues may have their 68 00:04:25,689 --> 00:04:31,609 sensory defensiveness toward a certain texture or taste of food, interpreted 69 00:04:31,609 --> 00:04:35,968 by their parents as just picky eating or even outward defiance, 70 00:04:35,968 --> 00:04:40,360 when this isn't the case. When you have sensory integration issues, 71 00:04:40,360 --> 00:04:43,243 you know that you're different, and you wish that you weren't. 72 00:04:43,243 --> 00:04:45,872 Sensory integration issues and Sensory Processing Disorder can cause 73 00:04:45,872 --> 00:04:50,841 a lot of grief in our daily life, because this world isn't really built for us. 74 00:04:50,841 --> 00:04:56,635 It is so loud, and so fast, and so bright, and all the clothes are too tight, 75 00:04:56,635 --> 00:05:00,023 and everything's too itchy and it can be exhausting just trying to get some sleep 76 00:05:00,023 --> 00:05:01,777 at night with all these sounds all around. 77 00:05:01,777 --> 00:05:05,001 Sensory integration issues can be really hard to deal with, and it's 78 00:05:05,001 --> 00:05:06,317 important to remember that 79 00:05:06,317 --> 00:05:08,453 if you're having a showdown with your kid over dinner, 80 00:05:08,453 --> 00:05:12,857 they're not trying to be defiant to you, they're not just being a picky eater 81 00:05:12,857 --> 00:05:14,728 if they have sensory processing issues. 82 00:05:14,728 --> 00:05:17,994 That is a real neurological condition and a valid disability. 83 00:05:17,994 --> 00:05:23,792 And a child with sensory processing issues doesn't need to be shamed in any situation 84 00:05:23,792 --> 00:05:28,261 and they don't need to be coerced to do things that cause them pain. 85 00:05:28,261 --> 00:05:33,143 Because, really, sensory processing disorder, when you have a negative sensory 86 00:05:33,143 --> 00:05:37,328 input as a trigger, it isn't just uncomfortable or a little annoying. 87 00:05:37,328 --> 00:05:41,684 It's often very painful, and it is important to remember that, you know, 88 00:05:41,684 --> 00:05:45,849 there are some children who are just picky. But when it comes to children with 89 00:05:45,849 --> 00:05:49,525 with sensory integration issues, they have a disability. And so accommodation and 90 00:05:49,525 --> 00:05:52,115 understanding can go a long way. 91 00:05:56,491 --> 00:06:00,167 When you have a neurological or developmental disability, you start off 92 00:06:00,167 --> 00:06:03,330 with less brain energy, call it, in the morning than 93 00:06:03,330 --> 00:06:04,952 neuro-typical people do. 94 00:06:04,952 --> 00:06:08,086 And then, throughout the day, as a person with sensory processing issues 95 00:06:08,086 --> 00:06:12,013 is triggered again and again, that takes up more and more of their 96 00:06:12,013 --> 00:06:15,615 brain energy that they would be otherwise be putting towards learning, 97 00:06:15,615 --> 00:06:18,942 or socializing, communicating and self-regulating. 98 00:06:18,942 --> 00:06:23,700 Sensory overload is one of the, I think, biggest, and most frequent 99 00:06:23,700 --> 00:06:25,455 causes of autistic meltdown. 100 00:06:25,866 --> 00:06:29,121 That's why it is so important to allow any person or child 101 00:06:29,121 --> 00:06:31,752 with sensory integration issues - autistic, or not - 102 00:06:31,752 --> 00:06:34,103 to stim in whatever ways that they need to. 103 00:06:34,103 --> 00:06:38,114 Because stimming isn't just a meaningless activity, or 104 00:06:38,114 --> 00:06:40,783 you know, or a repetitive motion just because. 105 00:06:41,095 --> 00:06:44,141 While stimming is often an expression of self in autistic people, 106 00:06:44,141 --> 00:06:47,753 in people of all neuro-types with sensory integration issues 107 00:06:47,753 --> 00:06:51,198 stimming is THE best and most important way to self-regulate. 108 00:06:52,322 --> 00:06:55,243 By stimming in whatever way that feels natural, or comfortable 109 00:06:55,809 --> 00:06:58,409 to that person, the person with sensory integration issues 110 00:06:58,409 --> 00:07:01,960 is able to block out negative input with good input. 111 00:07:01,960 --> 00:07:04,882 For example, a person with sensory integration issues 112 00:07:05,138 --> 00:07:09,890 may vocally stim to block out a negative auditory stimulus 113 00:07:09,890 --> 00:07:12,780 in their environment. Stimming can also allow 114 00:07:12,780 --> 00:07:16,034 and enable a person with sensory processing issues to 115 00:07:16,034 --> 00:07:20,712 engage in social situations and to be out in public longer, 116 00:07:20,712 --> 00:07:24,913 and more often because they have a way to deal with all of the anxiety, 117 00:07:24,913 --> 00:07:29,128 and the pain, and the stress that comes from negative sensory input. 118 00:07:29,390 --> 00:07:32,891 So, when it comes to helping your child, or loved one, or yourself 119 00:07:32,891 --> 00:07:36,997 deal with sensory integration issues, stimming is a very important part of that. 120 00:07:37,404 --> 00:07:39,509 Allowing stimming, even encouraging stimming, 121 00:07:41,111 --> 00:07:44,913 and exploring, if you are a person with sensory integration issues, what stims 122 00:07:44,913 --> 00:07:49,138 can you do in w-, in certain situations to help yourself, and to lessen 123 00:07:49,138 --> 00:07:53,649 the pain, and the mental burden of- of- dealing with negative sensory input. 124 00:07:53,649 --> 00:07:57,741 And then of course, because the world isn't made for us, there are going 125 00:07:57,741 --> 00:08:00,059 to be times when we have to accommodate for ourselves. 126 00:08:00,059 --> 00:08:04,334 For myself, I always carry with me, in my bag, or my purse, 127 00:08:04,334 --> 00:08:09,564 a pair of earplugs, some wet-wipes, um, ya know, to deal with any stickiness 128 00:08:09,564 --> 00:08:11,006 I might accidentally come across. 129 00:08:11,006 --> 00:08:15,475 Some gum, which provides really good uh, deep sensory input in your jaw. 130 00:08:15,475 --> 00:08:20,363 And I, I don't have sunglasses right now, but I know that to combat 131 00:08:20,363 --> 00:08:24,269 bright sunlight, or the flickering of fluorescent lights, which is just awful 132 00:08:24,269 --> 00:08:29,090 a combination of sunglasses, and a hat with a brim, or just one or the other 133 00:08:29,090 --> 00:08:33,292 can lessen the pain from bright or flickering, or bad-colored light 134 00:08:33,292 --> 00:08:37,252 sources a lot. So I'm currently looking for a pair of sunglasses 135 00:08:37,310 --> 00:08:42,430 that feel comfy enough for me to wear, and that I like the look of. 136 00:08:42,459 --> 00:08:46,095 But when I find a pair that I do like, I will definitely include them in my 137 00:08:46,251 --> 00:08:49,618 little kit of sensory things to help me deal with negative sensory input. 138 00:08:52,128 --> 00:08:53,257 The important thing to remember, is that Sensory Processing Disorder 139 99:59:59,999 --> 99:59:59,999 and sensory integration issues in autistic people 140 99:59:59,999 --> 99:59:59,999 are a real and valid neurological condition. 141 99:59:59,999 --> 99:59:59,999 And that, without accommodation or understanding, they can really 142 99:59:59,999 --> 99:59:59,999 inhibit your life, and be super hard to deal with. 143 99:59:59,999 --> 99:59:59,999 And in remembering that Sensory Processing Disorder is a real disability, 144 99:59:59,999 --> 99:59:59,999 you can also remember that, with accommodation, you can 145 99:59:59,999 --> 99:59:59,999 lead a happy and healthy and successful life. And that having 146 99:59:59,999 --> 99:59:59,999 sensory integration issues, or being autistic, doesn't mean that you can't 147 99:59:59,999 --> 99:59:59,999 live a rich and fulfilling and joyful life. It just might 148 99:59:59,999 --> 99:59:59,999 require some accommodation, a little bit of foresight, or planning 149 99:59:59,999 --> 99:59:59,999 and some understanding from the people around you. 150 99:59:59,999 --> 99:59:59,999 So, this has been my video on Sensory Processing Disorder. 151 99:59:59,999 --> 99:59:59,999 Just a brief overview (claps): 152 99:59:59,999 --> 99:59:59,999 If you have questions about this topic or would like to discuss anything 153 99:59:59,999 --> 99:59:59,999 I said in this video, feel free to post in the comments section because 154 99:59:59,999 --> 99:59:59,999 I would love to foster some discussion out of this topic, and hear from all of you. 155 99:59:59,999 --> 99:59:59,999 Do you have Sensory Processing Disorder? 156 99:59:59,999 --> 99:59:59,999 Do you love somebody who does? 157 99:59:59,999 --> 99:59:59,999 And if you have a question that you would like answered via video 158 99:59:59,999 --> 99:59:59,999 feel free to post your autism-related question in the comments section below 159 99:59:59,999 --> 99:59:59,999 or message it to me if you would like it to be anonymous. 160 99:59:59,999 --> 99:59:59,999 And if you like this video, feel free to give it a thumbs-up, 161 99:59:59,999 --> 99:59:59,999 and subscribe to my channel if you would like more 162 99:59:59,999 --> 99:59:59,999 videos about autism, and to see new "Ask an Autistic" episodes when they come out 163 99:59:59,999 --> 99:59:59,999 on Thursdays! 164 99:59:59,999 --> 99:59:59,999 Thanks for watching my video! (reprise of song from beginning)