1 00:00:00,431 --> 00:00:03,914 Hi everyone, I'm Amythest, and welcome to "Ask an Autistic". 2 00:00:03,914 --> 00:00:06,322 (Upbeat music) I want to write a song 3 00:00:06,322 --> 00:00:11,254 to shine a light, be the change we want something's right... 4 00:00:11,254 --> 00:00:15,922 We've been waiting in the dark for so long 5 00:00:17,072 --> 00:00:21,402 Today I'm going to be talking about Sensory Processing Disorder. 6 00:00:21,408 --> 00:00:26,003 Sensory Processing Disorder is a neurological condition in which the brain 7 00:00:26,003 --> 00:00:30,003 does not interpret sensory input from the environment correctly. 8 00:00:30,003 --> 00:00:34,766 A person with Sensory Processing Disorder may be over or under sensitive to input 9 00:00:35,036 --> 00:00:41,432 from their environment, such as lights, colors, noises, music, people talking, 10 00:00:41,432 --> 00:00:45,281 smells, textures, and tastes. 11 00:00:45,281 --> 00:00:48,763 Every autistic person will have some kind of Sensory Integration Issues. 12 00:00:48,763 --> 00:00:52,863 This is just part of our neurotype and part of what makes us autistic. 13 00:00:52,863 --> 00:00:57,513 But, Sensory Processing Disorder, as a neurological diagnosis can exist 14 00:00:57,513 --> 00:01:00,246 on its own, in non-autistic children. 15 00:01:04,429 --> 00:01:09,183 Sensory Processing Disorder really can affect and encompass all of the senses. 16 00:01:09,183 --> 00:01:12,569 Now, human beings actually have more than five senses, we have something like 17 00:01:12,569 --> 00:01:16,263 eighteen to twenty-two, depending on who you ask. 18 00:01:16,701 --> 00:01:19,785 But, I think that there are the seven basic senses that are important 19 00:01:19,785 --> 00:01:22,492 to know about to understand Sensory Processing Disorder. 20 00:01:22,492 --> 00:01:26,190 So you have the basic five, which I think everybody has heard of. 21 00:01:26,483 --> 00:01:33,681 That's taste, touch, smell, sight, sound. Yeah, I think I got that right. 22 00:01:33,681 --> 00:01:37,725 And then there are two senses that most people haven't heard of. 23 00:01:38,081 --> 00:01:41,227 And that is the Proprioceptive Sense and the Vestibular Sense. 24 00:01:41,227 --> 00:01:46,236 Proprioceptive Sense is the sense of where your body is in space. 25 00:01:46,236 --> 00:01:50,219 It allows for you to know where your limbs are, how much force you're 26 00:01:50,219 --> 00:01:51,471 exerting on things. 27 00:01:51,471 --> 00:01:54,484 And also, where you are spatially in your environment, and how to interact 28 00:01:54,484 --> 00:01:56,173 with objects in your environment. 29 00:01:56,173 --> 00:01:59,931 The Vestibular Sense is the sense that is all about motion and movement. 30 00:01:59,931 --> 00:02:03,886 It is a sense that tells you if you are in motion or standing still. 31 00:02:03,886 --> 00:02:08,490 If you are up or down, swinging, spinning, upside down, 32 00:02:08,520 --> 00:02:11,985 all of that is informed by the Vestibular Sense. 33 00:02:12,021 --> 00:02:16,872 So, as I'm sure you can imagine, when a person is under or over sensitive 34 00:02:16,980 --> 00:02:21,647 to any of the sensory input they may receive from their environment, 35 00:02:21,661 --> 00:02:24,821 their experience is going to be a lot different than a neuro-typical person's. 36 00:02:24,821 --> 00:02:28,138 And their life is going to be very different because of the things they 37 00:02:28,138 --> 00:02:29,657 have to deal with. 38 00:02:29,729 --> 00:02:33,410 For example, a child who is undersensitive to proprioceptive input may have trouble 39 00:02:33,421 --> 00:02:38,445 knowing where his body is in space, he may have trouble knowing how much 40 00:02:38,445 --> 00:02:39,932 pressure to exert on things. 41 00:02:39,932 --> 00:02:42,425 So he may either be too gentle, and be, you know, 42 00:02:42,441 --> 00:02:44,311 consistently dropping small objects. 43 00:02:44,774 --> 00:02:45,081 Or, he may be too rough in play, and be constantly seeking out really rough 44 00:02:45,161 --> 00:02:46,784 activities to give him a lot of deep pressure input on his joints. 45 99:59:59,999 --> 99:59:59,999 Like wrestling, jumping around, jumping on a trampoline. 46 99:59:59,999 --> 99:59:59,999 A person with sensory integration issues who is very sensitive to noise may have 47 99:59:59,999 --> 99:59:59,999 a lot of trouble with auditory processing issues when they're in a space where there 48 99:59:59,999 --> 99:59:59,999 is background noise, like music, or a lot of people talking, like in a restaurant. 49 99:59:59,999 --> 99:59:59,999 So while they can hear the person who is sitting across from them and speaking, 50 99:59:59,999 --> 99:59:59,999 they may not be able to interpret what the person is saying. 51 99:59:59,999 --> 99:59:59,999 They know that they're speaking, their brain just can't filter out all of the 52 99:59:59,999 --> 99:59:59,999 auditory information. 53 99:59:59,999 --> 99:59:59,999 So like I said, sensory processing issues can encompass and incorporate all of the 54 99:59:59,999 --> 99:59:59,999 senses. And everybody who has sensory integration 55 99:59:59,999 --> 99:59:59,999 issues, autistic or non-autistic will have their own set of triggers, 56 99:59:59,999 --> 99:59:59,999 negative sensory input that causes them discomfort or pain. 57 99:59:59,999 --> 99:59:59,999 And many people who have sensory integration issues, will have 58 99:59:59,999 --> 99:59:59,999 some sensory input that they actively seek out and they crave, often because they are 59 99:59:59,999 --> 99:59:59,999 undersensitive to it. 60 99:59:59,999 --> 99:59:59,999 So, an autistic person who seeks out Vestibular input because they are 61 99:59:59,999 --> 99:59:59,999 under-sensitive to vestibular input may really enjoy activities like 62 99:59:59,999 --> 99:59:59,999 swinging on a swing, or spinning on a tire swing, or on a computer chair. 63 99:59:59,999 --> 99:59:59,999 Something that comes up a lot, and I get questions about this a lot, comes down to 64 99:59:59,999 --> 99:59:59,999 Sensory Defensiveness and food. 65 99:59:59,999 --> 99:59:59,999 Many autistic people have a very limited diet. And this is both due to 66 99:59:59,999 --> 99:59:59,999 love of routine and resistance to change, but also to sensory defensiveness. 67 99:59:59,999 --> 99:59:59,999 Sadly, children who are struggling with sensory integration issues may have their 68 99:59:59,999 --> 99:59:59,999 sensory defensiveness toward a certain texture or taste of food, interpreted 69 99:59:59,999 --> 99:59:59,999 by their parents as just picky eating or even outward defiance, 70 99:59:59,999 --> 99:59:59,999 when this isn't the case. When you have sensory integration issues, 71 99:59:59,999 --> 99:59:59,999 you know that you're different, and you wish that you weren't. 72 99:59:59,999 --> 99:59:59,999 Sensory integration issues and Sensory Processing Disorder can cause 73 99:59:59,999 --> 99:59:59,999 a lot of grief in our daily life, because this world isn't really built for us. 74 99:59:59,999 --> 99:59:59,999 It is so loud, and so fast, and so bright, and all the clothes are too tight, 75 99:59:59,999 --> 99:59:59,999 and everything's too itchy and it can be exhausting just trying to get some sleep 76 99:59:59,999 --> 99:59:59,999 at night with all these sounds all around. 77 99:59:59,999 --> 99:59:59,999 Sensory integration issues can be really hard to deal with, and it's 78 99:59:59,999 --> 99:59:59,999 important to remember that 79 99:59:59,999 --> 99:59:59,999 if you're having a showdown with your kid over dinner, 80 99:59:59,999 --> 99:59:59,999 they're not trying to be defiant to you, they're not just being a picky eater 81 99:59:59,999 --> 99:59:59,999 if they have sensory processing issues. 82 99:59:59,999 --> 99:59:59,999 That is a real neurological condition and a valid disability. 83 99:59:59,999 --> 99:59:59,999 And a child with sensory processing issues doesn't need to be shamed in any situation 84 99:59:59,999 --> 99:59:59,999 and they don't need to be coerced to do things that cause them pain. 85 99:59:59,999 --> 99:59:59,999 Because, really, sensory processing disorder, when you have a negative sensory 86 99:59:59,999 --> 99:59:59,999 input as a trigger, it isn't just uncomfortable or a little annoying. 87 99:59:59,999 --> 99:59:59,999 It's often very painful, and it is important to remember that, you know, 88 99:59:59,999 --> 99:59:59,999 there are some children who are just picky. But when it comes to children with 89 99:59:59,999 --> 99:59:59,999 with sensory integration issues, they have a disability. And so accommodation and 90 99:59:59,999 --> 99:59:59,999 understanding can go a long way. 91 99:59:59,999 --> 99:59:59,999 When you have a neurological or developmental disability, you start off 92 99:59:59,999 --> 99:59:59,999 with less brain energy, call it, in the morning than 93 99:59:59,999 --> 99:59:59,999 neuro-typical people do. 94 99:59:59,999 --> 99:59:59,999 And then, throughout the day, as a person with sensory processing issues 95 99:59:59,999 --> 99:59:59,999 is triggered again and again, that takes up more and more of their 96 99:59:59,999 --> 99:59:59,999 brain energy that they would be otherwise be putting towards learning, 97 99:59:59,999 --> 99:59:59,999 or socializing, communicating and self-regulating. 98 99:59:59,999 --> 99:59:59,999 Sensory overload is one of the, I think, biggest, and most frequent 99 99:59:59,999 --> 99:59:59,999 causes of autistic meltdown. 100 99:59:59,999 --> 99:59:59,999 That's why it is so important to allow any person or child 101 99:59:59,999 --> 99:59:59,999 with sensory integration issues - autistic, or not - 102 99:59:59,999 --> 99:59:59,999 to stim in whatever ways that they need to. 103 99:59:59,999 --> 99:59:59,999 Because stimming isn't just a meaningless activity, or 104 99:59:59,999 --> 99:59:59,999 you know, or a repetitive motion just because. 105 99:59:59,999 --> 99:59:59,999 While stimming is often an expression of self in autistic people, 106 99:59:59,999 --> 99:59:59,999 in people of all neuro-types with sensory integration issues 107 99:59:59,999 --> 99:59:59,999 stimming is THE best and most important way to self-regulate. 108 99:59:59,999 --> 99:59:59,999 By stimming in whatever way that feels natural, or comfortable 109 99:59:59,999 --> 99:59:59,999 to that person, the person with sensory integration issues 110 99:59:59,999 --> 99:59:59,999 is able to block out negative input with good input. 111 99:59:59,999 --> 99:59:59,999 For example, a person with sensory integration issues 112 99:59:59,999 --> 99:59:59,999 may vocally stim to block out a negative auditory stimulus 113 99:59:59,999 --> 99:59:59,999 in their environment. Stimming can also allow 114 99:59:59,999 --> 99:59:59,999 and enable a person with sensory processing issues to 115 99:59:59,999 --> 99:59:59,999 engage in social situations and to be out in public longer, 116 99:59:59,999 --> 99:59:59,999 and more often because they have a way to deal with all of the anxiety, 117 99:59:59,999 --> 99:59:59,999 and the pain, and the stress that comes from negative sensory input. 118 99:59:59,999 --> 99:59:59,999 So, when it comes to helping your child, or loved one, or yourself 119 99:59:59,999 --> 99:59:59,999 deal with sensory integration issues, stimming is a very important part of that. 120 99:59:59,999 --> 99:59:59,999 Allowing stimming, even encouraging stimming, 121 99:59:59,999 --> 99:59:59,999 and exploring, if you are a person with sensory integration issues, what stims 122 99:59:59,999 --> 99:59:59,999 can you do in w-, in certain situations to help yourself, and to lessen 123 99:59:59,999 --> 99:59:59,999 the pain, and the mental burden of- of- dealing with negative sensory input. 124 99:59:59,999 --> 99:59:59,999 And then of course, because the world isn't made for us, there are going 125 99:59:59,999 --> 99:59:59,999 to be times when we have to accommodate for ourselves. 126 99:59:59,999 --> 99:59:59,999 For myself, I always carry with me, in my bag, or my purse, 127 99:59:59,999 --> 99:59:59,999 a pair of earplugs, some wet-wipes, um, ya know, to deal with any stickiness 128 99:59:59,999 --> 99:59:59,999 I might accidentally come across. 129 99:59:59,999 --> 99:59:59,999 Some gum, which provides really good uh, deep sensory input in your jaw. 130 99:59:59,999 --> 99:59:59,999 And I, I don't have sunglasses right now, but I know that to combat 131 99:59:59,999 --> 99:59:59,999 bright sunlight, or the flickering of fluorescent lights, which is just awful 132 99:59:59,999 --> 99:59:59,999 a combination of sunglasses, and a hat with a brim, or just one or the other 133 99:59:59,999 --> 99:59:59,999 can lessen the pain from bright or flickering, or bad-colored light 134 99:59:59,999 --> 99:59:59,999 sources a lot. So I'm currently looking for a pair of sunglasses 135 99:59:59,999 --> 99:59:59,999 that feel comfy enough for me to wear, and that I like the look of. 136 99:59:59,999 --> 99:59:59,999 But when I find a pair that I do like, I will definitely include them in my 137 99:59:59,999 --> 99:59:59,999 little kit of sensory things to help me deal with negative sensory input. 138 99:59:59,999 --> 99:59:59,999 The important thing to remember, is that Sensory Processing Disorder 139 99:59:59,999 --> 99:59:59,999 and sensory integration issues in autistic people 140 99:59:59,999 --> 99:59:59,999 are a real and valid neurological condition. 141 99:59:59,999 --> 99:59:59,999 And that, without accommodation or understanding, they can really 142 99:59:59,999 --> 99:59:59,999 inhibit your life, and be super hard to deal with. 143 99:59:59,999 --> 99:59:59,999 And in remembering that Sensory Processing Disorder is a real disability, 144 99:59:59,999 --> 99:59:59,999 you can also remember that, with accommodation, you can 145 99:59:59,999 --> 99:59:59,999 lead a happy and healthy and successful life. And that having 146 99:59:59,999 --> 99:59:59,999 sensory integration issues, or being autistic, doesn't mean that you can't 147 99:59:59,999 --> 99:59:59,999 live a rich and fulfilling and joyful life. It just might 148 99:59:59,999 --> 99:59:59,999 require some accommodation, a little bit of foresight, or planning 149 99:59:59,999 --> 99:59:59,999 and some understanding from the people around you. 150 99:59:59,999 --> 99:59:59,999 So, this has been my video on Sensory Processing Disorder. 151 99:59:59,999 --> 99:59:59,999 Just a brief overview (claps): 152 99:59:59,999 --> 99:59:59,999 If you have questions about this topic or would like to discuss anything 153 99:59:59,999 --> 99:59:59,999 I said in this video, feel free to post in the comments section because 154 99:59:59,999 --> 99:59:59,999 I would love to foster some discussion out of this topic, and hear from all of you. 155 99:59:59,999 --> 99:59:59,999 Do you have Sensory Processing Disorder? 156 99:59:59,999 --> 99:59:59,999 Do you love somebody who does? 157 99:59:59,999 --> 99:59:59,999 And if you have a question that you would like answered via video 158 99:59:59,999 --> 99:59:59,999 feel free to post your autism-related question in the comments section below 159 99:59:59,999 --> 99:59:59,999 or message it to me if you would like it to be anonymous. 160 99:59:59,999 --> 99:59:59,999 And if you like this video, feel free to give it a thumbs-up, 161 99:59:59,999 --> 99:59:59,999 and subscribe to my channel if you would like more 162 99:59:59,999 --> 99:59:59,999 videos about autism, and to see new "Ask an Autistic" episodes when they come out 163 99:59:59,999 --> 99:59:59,999 on Thursdays! 164 99:59:59,999 --> 99:59:59,999 Thanks for watching my video! (reprise of song from beginning)