WEBVTT

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do you two want to see what it looks

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like before we start if you look

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right here you can see a little tv

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screen

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who's that right there

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[Music]

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this first question's for you gabby are

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you ready okay

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who is this saga

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what's your brother like bubble bottle

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i love you are you interested you're

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gonna sing

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what do you want to sing i need

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she's so much fun to watch i will put

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her in bed too

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go to bed and she'll bounce around and

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just perform

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in her bed for a good two hours and it's

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just fun to sit there on the monitor and

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watch to see what she's going to do

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would it be correct to describe gabby as

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happy yes

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yes and that was very important because

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we wanted to make sure we were gonna

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have a happy child

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that was our that was what we were

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praying for and

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we got it

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glad you got fun let's kick the monkeys

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one more time

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she's a wiggle worm and thank god she is

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so little so i can manage her

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and she's not necessarily throwing

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around wait can you sit up

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no please

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gaby have a mind of her room yes she

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does

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and it's fun to watch her little plane

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and what she's thinking what makes her

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tick

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and she's got it's fun to watch her

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because you never know what you're going

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to get

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you sit down no

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gabby is it okay if i ask you and your

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brother three questions

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when gabby was in here with her brother

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she would go to the door

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and pretend like she was opening it

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because it annoyed her brother

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but she wouldn't open it she would just

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touch the handle and laugh yes does she

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like the teasing

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yes she likes to tease everybody

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and she no she can get away with it so

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when i say inside voice to her because

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she's

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this little loud person um she thinks

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it's funny when i say inside voice and

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then she

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is louder so it sort of backfires but

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she is a prankster and you can't help

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but laugh

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why is she able to get away with

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anything

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because she's gaby

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she's just too cute you know she it

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happens

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gabby was born with neonatal prodroid

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syndrome

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it is a very rare syndrome at the time

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we were given that diagnosis there was

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70 cases since 1970. what do you think

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is the best thing about your sister

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that i i play with her and she plays

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with me

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there's not a lot of literature which

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was upsetting

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at the time for us because the

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literature that we were going by was one

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that was

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for one of the other

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genetic mutations under the name

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neonatal protroid syndrome

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so um one thing that broke my heart was

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when we left

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the literature that we were given was

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the average lifespan was

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seven months old and um

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that i mean any mom that just had a baby

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reads that like

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hormones are not like you're heartbroken

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can you say hi hi good to see you tell

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chris what we were just doing

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what were we doing my name is monkey

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can you say we were watering the plant

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okay

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water plants yeah you did a good job

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she's very smart so she can read

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um words individually but she

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if you ask her questions it's harder i

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don't think she

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you know understands everything just yet

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but

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um i think i say that but she could just

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be fooling us

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all too i don't know what do you like

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more

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dogs or cats

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most you like rabbits

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i love rabbits too

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rabbits are a cool animal

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[Music]

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rabbits are the best it's perfect

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again i don't know where

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what do you do when you're not sure what

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gabby says i tried to repeat it when she

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was younger she used to get really

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frustrated and would start crying

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but now she'll repeat something over and

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over again until i repeat it back to her

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and if it's wrong then she will

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say no and keep going so i've got

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i gotta pick up on it right away or else

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brandon for the long haul i have another

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question for you

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oh are you ready for it

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what do you like more the color green or

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the color blue

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[Music]

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my color

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you like colorful rabbits

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yes

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rabbits are the best do you like

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thinking about rabbits

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my pleasure your pleasure

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may feel good baby

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baby really

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that's so cool when she's just so

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good and bubby is your boy

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i didn't know that

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thank you for telling me that and you

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like tummy

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that's so cool the baby is coming

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she's got a big repertoire of sayings

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and she's memorizes things really

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quickly

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gabby gabby

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has being gabby's dad changed how you

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view the world

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absolutely yeah how so i think

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a couple different ways one you know

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when gabby was born obviously

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she's got some challenges and some some

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things that

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uh you know make things a little harder

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for her but i think it just puts things

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in perspective for you

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you know like what's really important

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what's wrong you want to play with

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numbers

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okay can i put her down yeah of course

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yeah and i just think perspective right

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so at the end of the day

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uh it makes you realize what the most

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important things are with life

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you know and that's love how does

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neonatal

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project syndrome impact gabby

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so it makes it so she does not have um

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any fat she doesn't have teeth either

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um it makes her have thinner bones

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more brittle bones she was born with a

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congenital knee defect that we've had a

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couple surgeries on

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but other than that she

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is a smart little girl sit down

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let me sit down okay do you take care of

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your sister

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yeah how do you feel when you take care

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of your sister

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um i feel

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excited

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gabby were you just making a silly face

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at me

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when

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what was it like when gabby was first

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born it was hard we weren't given a

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diagnosis

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we um at

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20 weeks we found out there was

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something wrong with our baby we saw an

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uh skull abnormality we potentially saw

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a heart issue and then she was small so

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um we went and did all the tests the

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doctors weren't able to tell us what was

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going on so

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you know when i had her

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um we didn't know there's a lot of

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things in

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that are taken out of your control and

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you don't know where to turn or what to

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do and sometimes

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answers can't get provided for you so

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you search for the things that

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you can control and that's how do you

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love your kids and how do they love you

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back and

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i think that that's changed me

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enormously

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and then mommy i love mama

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why do you love mommy mom

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daddy daddy i love you gummy gummy i

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love you

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i love you no i love you more

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every day is something new so every day

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is a new milestone that she might hit

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every day is a new thing that she's

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learned every day is a

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a new adventure can you spell cat can

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you show chris how you spell cats

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small cats spell cat

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cat can you spell the word cat

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i think i'm most proud of gabby for

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i mean i could say that i'm proud of her

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for overcoming all the surgeries she's

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had and the challenges that she's had

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but

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i think i'm most proud of her for just

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the basic common things that you would

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be proud of any kid for

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that she loves her family that she's a

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good sister

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he is able to be affectionate

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uh she's able to listen uh she takes

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interest in things hey man

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can you spy can you spell hop

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ha hack

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good job you got the hop

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amazing

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you're so smart

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i think spidey