0:00:00.080,0:00:01.120
do you two want to see what it looks

0:00:01.120,0:00:03.600
like before we start if you look

0:00:03.600,0:00:05.359
right here you can see a little tv

0:00:05.359,0:00:07.680
screen

0:00:08.000,0:00:10.800
who's that right there

0:00:10.930,0:00:12.719
[Music]

0:00:12.719,0:00:14.240
this first question's for you gabby are

0:00:14.240,0:00:16.080
you ready okay

0:00:16.080,0:00:19.840
who is this saga

0:00:19.840,0:00:23.680
what's your brother like bubble bottle

0:00:23.680,0:00:26.000
i love you are you interested you're

0:00:26.000,0:00:27.279
gonna sing

0:00:27.279,0:00:31.840
what do you want to sing i need

0:00:39.680,0:00:41.920
she's so much fun to watch i will put

0:00:41.920,0:00:44.079
her in bed too

0:00:44.079,0:00:46.559
go to bed and she'll bounce around and

0:00:46.559,0:00:47.680
just perform

0:00:47.680,0:00:50.480
in her bed for a good two hours and it's

0:00:50.480,0:00:52.000
just fun to sit there on the monitor and

0:00:52.000,0:00:58.640
watch to see what she's going to do

0:00:58.640,0:01:00.559
would it be correct to describe gabby as

0:01:00.559,0:01:02.239
happy yes

0:01:02.239,0:01:05.119
yes and that was very important because

0:01:05.119,0:01:06.400
we wanted to make sure we were gonna

0:01:06.400,0:01:08.159
have a happy child

0:01:08.159,0:01:10.880
that was our that was what we were

0:01:10.880,0:01:12.560
praying for and

0:01:12.560,0:01:15.040
we got it

0:01:18.080,0:01:20.960
glad you got fun let's kick the monkeys

0:01:20.960,0:01:23.920
one more time

0:01:25.600,0:01:29.840
she's a wiggle worm and thank god she is

0:01:29.840,0:01:32.159
so little so i can manage her

0:01:32.159,0:01:33.759
and she's not necessarily throwing

0:01:33.759,0:01:35.520
around wait can you sit up

0:01:35.520,0:01:40.000
no please

0:01:40.000,0:01:43.040
gaby have a mind of her room yes she

0:01:43.040,0:01:45.200
does

0:01:45.200,0:01:48.399
and it's fun to watch her little plane

0:01:48.399,0:01:50.799
and what she's thinking what makes her

0:01:50.799,0:01:51.920
tick

0:01:51.920,0:01:54.079
and she's got it's fun to watch her

0:01:54.079,0:01:55.040
because you never know what you're going

0:01:55.040,0:01:56.479
to get

0:01:56.479,0:01:59.600
you sit down no

0:01:59.600,0:02:01.360
gabby is it okay if i ask you and your

0:02:01.360,0:02:04.479
brother three questions

0:02:07.439,0:02:09.440
when gabby was in here with her brother

0:02:09.440,0:02:10.560
she would go to the door

0:02:10.560,0:02:12.560
and pretend like she was opening it

0:02:12.560,0:02:14.319
because it annoyed her brother

0:02:14.319,0:02:15.760
but she wouldn't open it she would just

0:02:15.760,0:02:17.920
touch the handle and laugh yes does she

0:02:17.920,0:02:18.879
like the teasing

0:02:18.879,0:02:23.840
yes she likes to tease everybody

0:02:25.360,0:02:27.840
and she no she can get away with it so

0:02:27.840,0:02:29.920
when i say inside voice to her because

0:02:29.920,0:02:30.400
she's

0:02:30.400,0:02:33.599
this little loud person um she thinks

0:02:33.599,0:02:34.959
it's funny when i say inside voice and

0:02:34.959,0:02:35.599
then she

0:02:35.599,0:02:38.640
is louder so it sort of backfires but

0:02:38.640,0:02:40.560
she is a prankster and you can't help

0:02:40.560,0:02:43.040
but laugh

0:02:44.239,0:02:45.760
why is she able to get away with

0:02:45.760,0:02:47.280
anything

0:02:47.280,0:02:50.400
because she's gaby

0:02:50.400,0:02:53.360
she's just too cute you know she it

0:02:53.360,0:02:55.840
happens

0:03:03.599,0:03:05.840
gabby was born with neonatal prodroid

0:03:05.840,0:03:07.680
syndrome

0:03:07.680,0:03:12.080
it is a very rare syndrome at the time

0:03:12.080,0:03:15.200
we were given that diagnosis there was

0:03:15.200,0:03:18.800
70 cases since 1970. what do you think

0:03:18.800,0:03:22.400
is the best thing about your sister

0:03:22.400,0:03:25.440
that i i play with her and she plays

0:03:25.440,0:03:26.799
with me

0:03:26.799,0:03:28.720
there's not a lot of literature which

0:03:28.720,0:03:30.480
was upsetting

0:03:30.480,0:03:32.000
at the time for us because the

0:03:32.000,0:03:34.080
literature that we were going by was one

0:03:34.080,0:03:34.720
that was

0:03:34.720,0:03:38.080
for one of the other

0:03:38.080,0:03:40.400
genetic mutations under the name

0:03:40.400,0:03:42.879
neonatal protroid syndrome

0:03:42.879,0:03:46.799
so um one thing that broke my heart was

0:03:46.799,0:03:47.920
when we left

0:03:47.920,0:03:49.519
the literature that we were given was

0:03:49.519,0:03:51.200
the average lifespan was

0:03:51.200,0:03:55.120
seven months old and um

0:03:55.120,0:03:58.080
that i mean any mom that just had a baby

0:03:58.080,0:04:00.000
reads that like

0:04:00.000,0:04:03.280
hormones are not like you're heartbroken

0:04:03.280,0:04:06.080
can you say hi hi good to see you tell

0:04:06.080,0:04:09.200
chris what we were just doing

0:04:09.760,0:04:14.400
what were we doing my name is monkey

0:04:14.400,0:04:16.639
can you say we were watering the plant

0:04:16.639,0:04:17.680
okay

0:04:17.680,0:04:21.040
water plants yeah you did a good job

0:04:21.040,0:04:24.080
she's very smart so she can read

0:04:24.080,0:04:29.520
um words individually but she

0:04:29.520,0:04:31.680
if you ask her questions it's harder i

0:04:31.680,0:04:32.560
don't think she

0:04:32.560,0:04:34.800
you know understands everything just yet

0:04:34.800,0:04:35.680
but

0:04:35.680,0:04:39.440
um i think i say that but she could just

0:04:39.440,0:04:40.160
be fooling us

0:04:40.160,0:04:43.199
all too i don't know what do you like

0:04:43.199,0:04:43.919
more

0:04:43.919,0:04:47.440
dogs or cats

0:04:54.639,0:04:59.759
most you like rabbits

0:05:04.479,0:05:07.520
i love rabbits too

0:05:07.759,0:05:11.010
rabbits are a cool animal

0:05:11.010,0:05:14.060
[Music]

0:05:16.639,0:05:20.960
rabbits are the best it's perfect

0:05:20.960,0:05:25.360
again i don't know where

0:05:30.960,0:05:32.400
what do you do when you're not sure what

0:05:32.400,0:05:34.800
gabby says i tried to repeat it when she

0:05:34.800,0:05:36.320
was younger she used to get really

0:05:36.320,0:05:39.360
frustrated and would start crying

0:05:39.360,0:05:41.280
but now she'll repeat something over and

0:05:41.280,0:05:43.039
over again until i repeat it back to her

0:05:43.039,0:05:44.880
and if it's wrong then she will

0:05:44.880,0:05:48.240
say no and keep going so i've got

0:05:48.240,0:05:50.160
i gotta pick up on it right away or else

0:05:50.160,0:05:52.560
brandon for the long haul i have another

0:05:52.560,0:05:54.000
question for you

0:05:54.000,0:05:57.680
oh are you ready for it

0:05:57.680,0:06:01.360
what do you like more the color green or

0:06:01.360,0:06:02.940
the color blue

0:06:02.940,0:06:04.240
[Music]

0:06:04.240,0:06:07.840
my color

0:06:09.039,0:06:12.319
you like colorful rabbits

0:06:12.720,0:06:15.120
yes

0:06:16.400,0:06:18.960
rabbits are the best do you like

0:06:18.960,0:06:20.000
thinking about rabbits

0:06:20.000,0:06:24.479
my pleasure your pleasure

0:06:24.479,0:06:27.759
may feel good baby

0:06:27.759,0:06:31.199
baby really

0:06:31.440,0:06:36.479
that's so cool when she's just so

0:06:36.479,0:06:40.080
good and bubby is your boy

0:06:40.080,0:06:42.880
i didn't know that

0:06:43.840,0:06:45.919
thank you for telling me that and you

0:06:45.919,0:06:47.360
like tummy

0:06:47.360,0:06:51.680
that's so cool the baby is coming

0:06:51.680,0:06:55.840
she's got a big repertoire of sayings

0:06:55.840,0:06:58.400
and she's memorizes things really

0:06:58.400,0:07:00.800
quickly

0:07:01.039,0:07:03.840
gabby gabby

0:07:04.240,0:07:06.720
has being gabby's dad changed how you

0:07:06.720,0:07:07.840
view the world

0:07:07.840,0:07:11.360
absolutely yeah how so i think

0:07:11.360,0:07:13.440
a couple different ways one you know

0:07:13.440,0:07:15.840
when gabby was born obviously

0:07:15.840,0:07:18.319
she's got some challenges and some some

0:07:18.319,0:07:19.280
things that

0:07:19.280,0:07:22.319
uh you know make things a little harder

0:07:22.319,0:07:23.919
for her but i think it just puts things

0:07:23.919,0:07:25.199
in perspective for you

0:07:25.199,0:07:28.400
you know like what's really important

0:07:28.400,0:07:31.680
what's wrong you want to play with

0:07:31.680,0:07:32.400
numbers

0:07:32.400,0:07:35.919
okay can i put her down yeah of course

0:07:35.919,0:07:38.240
yeah and i just think perspective right

0:07:38.240,0:07:39.759
so at the end of the day

0:07:39.759,0:07:41.520
uh it makes you realize what the most

0:07:41.520,0:07:43.440
important things are with life

0:07:43.440,0:07:45.759
you know and that's love how does

0:07:45.759,0:07:46.800
neonatal

0:07:46.800,0:07:50.160
project syndrome impact gabby

0:07:50.160,0:07:53.440
so it makes it so she does not have um

0:07:53.440,0:07:58.240
any fat she doesn't have teeth either

0:07:58.240,0:08:01.599
um it makes her have thinner bones

0:08:01.599,0:08:03.199
more brittle bones she was born with a

0:08:03.199,0:08:05.039
congenital knee defect that we've had a

0:08:05.039,0:08:07.280
couple surgeries on

0:08:07.280,0:08:10.400
but other than that she

0:08:10.400,0:08:14.240
is a smart little girl sit down

0:08:14.240,0:08:17.199
let me sit down okay do you take care of

0:08:17.199,0:08:17.840
your sister

0:08:17.840,0:08:21.039
yeah how do you feel when you take care

0:08:21.039,0:08:23.680
of your sister

0:08:24.000,0:08:27.840
um i feel

0:08:28.879,0:08:31.759
excited

0:08:32.959,0:08:36.080
gabby were you just making a silly face

0:08:36.080,0:08:38.479
at me

0:08:38.479,0:08:40.959
when

0:08:43.919,0:08:45.279
what was it like when gabby was first

0:08:45.279,0:08:48.480
born it was hard we weren't given a

0:08:48.480,0:08:49.519
diagnosis

0:08:49.519,0:08:53.360
we um at

0:08:53.360,0:08:54.959
20 weeks we found out there was

0:08:54.959,0:08:56.800
something wrong with our baby we saw an

0:08:56.800,0:09:00.640
uh skull abnormality we potentially saw

0:09:00.640,0:09:05.040
a heart issue and then she was small so

0:09:05.040,0:09:06.959
um we went and did all the tests the

0:09:06.959,0:09:08.399
doctors weren't able to tell us what was

0:09:08.399,0:09:09.440
going on so

0:09:09.440,0:09:12.640
you know when i had her

0:09:13.120,0:09:15.839
um we didn't know there's a lot of

0:09:15.839,0:09:16.800
things in

0:09:16.800,0:09:18.480
that are taken out of your control and

0:09:18.480,0:09:20.560
you don't know where to turn or what to

0:09:20.560,0:09:21.360
do and sometimes

0:09:21.360,0:09:23.600
answers can't get provided for you so

0:09:23.600,0:09:25.680
you search for the things that

0:09:25.680,0:09:28.000
you can control and that's how do you

0:09:28.000,0:09:29.680
love your kids and how do they love you

0:09:29.680,0:09:30.560
back and

0:09:30.560,0:09:32.720
i think that that's changed me

0:09:32.720,0:09:34.480
enormously

0:09:34.480,0:09:37.680
and then mommy i love mama

0:09:37.680,0:09:41.200
why do you love mommy mom

0:09:41.200,0:09:44.320
daddy daddy i love you gummy gummy i

0:09:44.320,0:09:45.440
love you

0:09:45.440,0:09:51.680
i love you no i love you more

0:09:51.680,0:09:53.680
every day is something new so every day

0:09:53.680,0:09:56.240
is a new milestone that she might hit

0:09:56.240,0:09:57.920
every day is a new thing that she's

0:09:57.920,0:09:59.519
learned every day is a

0:09:59.519,0:10:02.079
a new adventure can you spell cat can

0:10:02.079,0:10:04.800
you show chris how you spell cats

0:10:04.800,0:10:08.640
small cats spell cat

0:10:10.240,0:10:19.839
cat can you spell the word cat

0:10:20.240,0:10:24.560
i think i'm most proud of gabby for

0:10:24.560,0:10:26.079
i mean i could say that i'm proud of her

0:10:26.079,0:10:28.240
for overcoming all the surgeries she's

0:10:28.240,0:10:29.920
had and the challenges that she's had

0:10:29.920,0:10:30.399
but

0:10:30.399,0:10:32.000
i think i'm most proud of her for just

0:10:32.000,0:10:33.839
the basic common things that you would

0:10:33.839,0:10:35.279
be proud of any kid for

0:10:35.279,0:10:37.760
that she loves her family that she's a

0:10:37.760,0:10:40.399
good sister

0:10:43.200,0:10:46.480
he is able to be affectionate

0:10:46.480,0:10:49.920
uh she's able to listen uh she takes

0:10:49.920,0:10:53.279
interest in things hey man

0:10:53.279,0:10:56.880
can you spy can you spell hop

0:10:56.880,0:11:00.560
ha hack

0:11:00.560,0:11:03.839
good job you got the hop

0:11:03.839,0:11:06.399
amazing

0:11:07.920,0:11:15.839
you're so smart

0:11:15.839,0:11:19.839
i think spidey