0:00:04.560,0:00:09.960
♪I won't lie I was terrified[br]when the doctor said those words♪

0:00:09.960,0:00:16.169
♪My feet went from beneath me[br]could not believe what I just heard♪

0:00:16.169,0:00:22.005
♪If I judged my condition[br]from what I saw on television♪

0:00:22.005,0:00:25.560
♪I'd give up♪

0:00:28.345,0:00:35.908
S1 944 ,000 people are estimated to be[br]currently living with dementia in the UK

0:00:35.908,0:00:40.959
[Music]

0:00:41.699,0:00:48.040
Dementia killed almost double[br]the number of women than men in 2020

0:00:48.040,0:00:53.385
[Music]

0:00:53.385,0:00:59.762
Dementia has been the leading cause of death[br]in women since 2011

0:00:59.790,0:01:04.640
[Music]

0:01:04.640,0:01:09.370
9% of people over 65 have dementia.

0:01:09.370,0:01:18.099
[Music]

0:01:18.449,0:01:21.579
Dementia will impact 50% of us

0:01:22.079,0:01:27.173
either through a personal diagnosis or[br]by caring for someone who has it.

0:01:27.173,0:01:35.480
[Music]

0:01:35.600,0:01:42.705
1.6 million people will be living[br]with dementia in the UK by 2040

0:01:43.074,0:01:48.513
[Music]

0:01:48.513,0:01:56.290
Dementia is the most feared[br]health condition by 60% of people over 65.

0:01:56.434,0:02:04.449
[Music]

0:02:05.880,0:02:12.805
Dementia care costs in Northern Ireland[br]are projected to increase 192%

0:02:12.805,0:02:19.994
from 800 million in 2019[br]to 2.4 billion in 2040.

0:02:30.390,0:02:35.329
Wayfinding in unfamiliar places[br]can be more challenging

0:02:35.329,0:02:38.091
for people living with dementia.

0:02:40.910,0:02:46.483
Environment may affect people living[br]with dementia more than most.

0:02:49.128,0:02:54.640
Noisy and chaotic spaces can feel[br]disorientating and overwhelming,

0:02:54.640,0:02:59.405
may increase anxiety or frustration,[br]causing changes in behaviour.

0:03:02.110,0:03:08.360
Everyday life for people living[br]with dementia can be exhausting

0:03:09.126,0:03:11.040
though it may not be obvious to you.

0:03:11.702,0:03:18.074
It takes longer for people living[br]with dementia to process information.

0:03:18.074,0:03:24.469
Our brains have to work harder[br]to filter out external stimuli

0:03:24.911,0:03:30.791
often leaving us feeling depleted,[br]exhausted and spent.

0:03:31.400,0:03:35.359
This makes our symptoms of dementia[br]more evident.

0:03:36.290,0:03:51.778
[Music]

0:03:51.778,0:04:01.381
74,000 800 people are estimated[br]to be living with young onset dementia

0:04:01.547,0:04:04.281
in the UK and Ireland

0:04:04.530,0:04:11.663
[Music]

0:04:11.663,0:04:19.503
Young onset dementia is when symptoms[br]of dementia start before the age of 65

0:04:19.740,0:05:05.059
[Music]

0:05:06.880,0:05:13.969
Dementia NI members formed a working group[br]in 2022

0:05:14.749,0:05:20.391
that included eight individuals[br]living with dementia like me,

0:05:21.132,0:05:26.791
supported by four staff members[br]working collaboratively together:

0:05:27.556,0:05:29.562
one from dementia NI

0:05:30.257,0:05:37.150
and three from the Southern and Southeast[br]Health and Social Care Trusts.

0:05:38.778,0:05:44.770
The members of dementia NI are always[br]looking for opportunities to engage

0:05:44.770,0:05:50.117
with hospital and social care staff[br]to describe what it's like

0:05:50.117,0:05:57.125
to live with dementia and to share[br]with them our challenges as well as ways

0:05:57.125,0:06:03.790
we can best be supported in both[br]clinical and hospital environments.

0:06:04.240,0:06:12.232
However, speaking to every trust member[br]in person is an impossible task.

0:06:12.914,0:06:18.114
So we decided to create a documentary[br]to help us interact

0:06:18.611,0:06:25.240
with members of the Health and Social Care[br]services to help bridge this gap.

0:06:26.747,0:06:33.227
Over the course of 22 months we met [br]regularly to decide the content

0:06:33.426,0:06:40.194
of this film, sharing our own personal[br]experiences across the spectrum,

0:06:41.180,0:06:45.348
both positive and challenging experiences.

0:06:46.499,0:06:52.215
We thought it would be beneficial[br]to provide staff with 10 top tips

0:06:52.743,0:06:57.303
for supporting people like us[br]living with dementia.

0:06:58.004,0:07:03.546
We believe these these practices[br]can be easily implemented

0:07:04.120,0:07:08.440
without adding an extra burden to staff

0:07:08.440,0:07:12.829
and will lead to an improved[br]staff-patient interaction

0:07:13.626,0:07:19.667
and in the long run will save time;[br]Many people have commented:

0:07:20.143,0:07:25.149
"What is good for people living[br]with dementia is good for everyone."

0:07:25.857,0:07:33.079
And we the members of dementia NI[br]are sure you will find this to be so too.

0:07:36.759,0:07:41.809
We know you will find the following[br]individual experiences engaging

0:07:42.279,0:07:45.188
even if somewhat emotional at times,

0:07:45.511,0:07:51.512
and that you will be able to put some[br]of the practical tips into action

0:07:51.646,0:07:55.486
[Introducing members of Dementia NI --[br]the producers of this training resource --

0:07:55.486,0:07:58.523
and their experiences within health and[br]social care settings]

0:07:58.900,0:08:01.749
S2 I'm Davie Michael McElhinney[br]from County Fermanagh

0:08:01.749,0:08:06.622
I was diagnosed with[br]frontal temporal dementia 7 years ago

0:08:07.152,0:08:09.280
I was aged 54.

0:08:09.885,0:08:13.440
S3 My name is Martin Murtagh

0:08:14.288,0:08:17.137
My dementia is Alzheimer's dementia

0:08:17.427,0:08:21.240
S4 So my name is Peter Alexander[br]I was born in England, Twickenham,

0:08:21.240,0:08:24.912
so the good old rugby place.

0:08:24.912,0:08:30.980
S5 My name is Gerard Doran, I was[br]diagnosed with dementia when I was 61.

0:08:31.120,0:08:33.549
S6 Yes, I'm Christopher Higgins

0:08:33.549,0:08:37.951
and my dementia was discovered[br]just two years ago.

0:08:37.951,0:08:43.013
S7 Yes, my name's Allison,[br]Allison Bachelor, I live in Dundonald

0:08:43.013,0:08:49.091
and was diagnosed with Alzheimer's[br]in April 2017

0:08:49.240,0:08:53.399
S8 I'm a newly diagnosed person[br]with dementia.

0:08:54.280,0:08:59.868
My past knowledge of dementia was[br]that I was a social worker in hospital

0:09:00.200,0:09:05.409
S9 Hi, my name is Tom, Tom Heatly,[br]and

0:09:06.819,0:09:13.240
I have dementia, I've been diagnosed

0:09:13.240,0:09:17.519
with dementia with Lewy bodies

0:09:19.259,0:09:26.188
that was back about just over a year now.

0:09:26.640,0:09:30.146
Treat us with common courtesy.

0:09:30.146,0:09:35.549
S8 Treat us with respect,[br]as valued, capable adults

0:09:36.005,0:09:41.433
Be aware of your facial expression,[br]tone of voice

0:09:41.433,0:09:45.472
and your non-verbal communication

0:09:45.839,0:09:52.989
And when the students came, they said:[br]"Oh I see here this person has dementia,

0:09:53.443,0:09:56.263
I don't know how to speak to dementia."

0:09:56.994,0:09:59.040
And I think that is the problem.

0:09:59.040,0:10:01.560
They think they're speaking[br]to the dementia.

0:10:02.297,0:10:07.754
But I always said to them: "So what[br]if they have dementia?

0:10:07.754,0:10:09.854
speak to the person first.

0:10:10.120,0:10:18.320
You will hear a little bit when they reply[br]about de the way they are affected,

0:10:18.793,0:10:23.665
but just keep speaking to the person[br]behind the dementia

0:10:23.861,0:10:27.936
because it's the person[br]you want to talk to.

0:10:29.440,0:10:34.680
S9 Basically you talk about[br]valuing an individual.

0:10:35.809,0:10:43.817
In all those years that I have been[br]a trainer in the trust,

0:10:46.672,0:11:00.944
basic values are the primary[br]important factor

0:11:01.659,0:11:04.440
S4 What I would say, yes:

0:11:05.183,0:11:11.501
if I was to write a book from a person[br]who has dementia,

0:11:13.344,0:11:17.632
it would be to say I'm hurting inside too.

0:11:18.494,0:11:21.675
I might not be able to express it,

0:11:22.600,0:11:26.139
but I'm still the same person as I was[br]when I was younger.

0:11:27.606,0:11:29.519
I am still that today,

0:11:30.399,0:11:35.032
it's just that the person I am is getting[br]locked away more and more inside me.

0:11:35.813,0:11:37.983
So don't treat me any differently.

0:11:38.720,0:11:40.624
I'm still the same person as I was

0:11:42.543,0:11:45.839
even though you might have [br]some preconceived ideas

0:11:46.517,0:11:51.549
that because I got dementia,[br]I'm an incontinent old person.

0:11:51.880,0:11:55.882
but I'm not: I was diagnosed[br]at the age of 49

0:11:55.882,0:12:00.320
and at that time I was told that[br]I shouldn't work anymore

0:12:00.734,0:12:05.696
and that I shouldn't drive anymore[br]because of my judgment being impaired.

0:12:07.658,0:12:09.000
S8 Give us time

0:12:09.985,0:12:13.359
We need more time to process than you.

0:12:13.764,0:12:18.199
Allow us to respond before you move on.

0:12:18.901,0:12:21.674
Don't bombard us with questions.

0:12:21.972,0:12:28.381
S? We're just normal human beings with [br]a good mind

0:12:28.381,0:12:30.120
and just normal people.

0:12:30.935,0:12:40.933
The dementia does bring up[br]different problems,

0:12:41.416,0:12:47.148
you know, such a speech: now my speech,[br]while I'm sitting here talking to you,

0:12:47.755,0:12:52.750
there's -- words just disappear[br]out of my vocabulary

0:12:53.445,0:12:57.183
and that's why you could see me[br]struggling there a couple of wee bits

0:12:57.760,0:13:01.000
that's because a normal[br]conversational word

0:13:01.926,0:13:07.953
whenever it disappears I have to fish[br]for another word that will fit

0:13:07.953,0:13:09.440
in the slot in this place,

0:13:10.298,0:13:13.019
but your mind's going around like[br]a washing machine

0:13:13.019,0:13:16.467
and it can't pick the words out sometimes.

0:13:17.051,0:13:21.279
S? Yeah it still sticks with me that[br]that day I felt very rushed

0:13:21.279,0:13:24.959
and uh it was very blunt.

0:13:24.959,0:13:30.209
There's no easy way to deliver bad news[br]but it was very very blunt I thought

0:13:30.639,0:13:34.800
and we left with no information at all[br]that Friday afternoon.

0:13:34.800,0:13:38.944
We went out for the weekend[br]and with absolutely nothing.

0:13:38.944,0:13:42.076
I thought, I thought with only weeks[br]to live after that, you know.

0:13:42.988,0:13:45.255
So I did and I think more time[br]would have helped

0:13:45.255,0:13:49.176
and maybe a bit more compassion[br]with the, from the consultant.

0:13:50.549,0:13:53.524
S8 Don't make assumptions about us.

0:13:54.083,0:13:58.466
Don't presume you know what we want,[br]feel or need

0:13:58.914,0:14:03.341
or what we might be able to understand[br]or decide.

0:14:03.926,0:14:06.625
Discuss us with us directly.

0:14:07.834,0:14:13.909
Give our loved ones the "This is me"[br]person-centered document

0:14:13.909,0:14:17.134
to help you care for me effectively.

0:14:18.657,0:14:22.191
S? Yeah I had gone to a local[br]ANE (?) Department.

0:14:22.926,0:14:25.011
This would be a few years ago now.

0:14:25.011,0:14:30.920
And I had said to the nurse who had after[br]gone through from triage, you know,

0:14:30.920,0:14:33.680
been called into the back area, you know,

0:14:33.680,0:14:36.264
to be waiting to be seen by a doctor[br]and to have

0:14:36.264,0:14:38.547
some sort of bloods or whatever done,

0:14:38.547,0:14:42.480
and I had said to her that I had[br]dementia diagnosis

0:14:42.830,0:14:49.323
and she instantly dismissed it and told me[br]"Just tell the doctor" and walked away.

0:14:50.024,0:14:53.160
And I have to say that put me[br]into a bit of a panic mode

0:14:53.160,0:14:55.816
because I sort of thought,[br]I didn't feel safe then,

0:14:56.059,0:14:59.081
I sort of thought that she should[br]have taken a wee bit of time,

0:14:59.081,0:15:03.260
even just by saying:[br]"Okay we've taken note of that

0:15:03.260,0:15:07.266
but if you need us to go to the toilet or[br]if you need any help with anything,

0:15:07.266,0:15:09.176
you know, just give one of us a shout."

0:15:09.466,0:15:12.553
But I sort of felt it wasn't[br]taken seriously,

0:15:12.989,0:15:17.460
that it, and I thought it was something,[br]that she did need to know, you know,

0:15:17.460,0:15:20.668
I thought it was something that[br]she had needed to take note of

0:15:20.668,0:15:26.505
and to be aware of and, you know,[br]as I say, I just sort of felt

0:15:26.505,0:15:30.769
a bit more unsafe than if[br]had have been given a wee bit of time

0:15:30.769,0:15:33.170
cuz I sort of thought if I need[br]to go to the toilet

0:15:33.170,0:15:36.160
or I need, you know, who do I say to, [br]I didn't feel after that

0:15:36.160,0:15:38.737
I could say to any other nurse[br]who came in to to me:

0:15:39.069,0:15:41.504
"By the way, I have a dementia diagnosis"

0:15:41.800,0:15:43.865
because of the way she had treated me.

0:15:45.120,0:15:48.741
S? I learned more about dementia

0:15:51.194,0:16:02.280
I worked with people who were[br]true professionals,

0:16:04.907,0:16:11.465
who were truly impressive[br]in their approaches

0:16:14.613,0:16:30.652
and who helped me so much[br]to identify what I could do

0:16:31.305,0:16:36.725
as opposed to all the all these things[br]that I couldn't do.

0:16:39.040,0:16:42.399
S? Notes help us to remember.

0:16:43.234,0:16:48.137
Provide written information[br]using jargon-free language

0:16:48.137,0:16:50.668
to help us to understand.

0:16:51.159,0:16:56.857
Help us to keep notes so that[br]we can keep track of what is happening.

0:16:57.560,0:17:00.680
S? For example when I attended a hospital,

0:17:00.680,0:17:08.234
I needed to meet an individual staff[br]member who was fairly aware of dementia

0:17:08.611,0:17:10.574
and helped me support

0:17:11.155,0:17:16.707
on a regular basis throughout my stay[br]especially with regards to

0:17:16.707,0:17:20.749
explaining and noting the key aspects[br]of my appointment

0:17:20.749,0:17:24.977
and how to cope well in the ward itself

0:17:29.000,0:17:33.160
S? So if you have someone who has dementia

0:17:39.276,0:17:52.707
ensure that you are making clear[br]to the individual what is being discussed,

0:17:54.269,0:17:58.546
what is being agreed,

0:18:00.520,0:18:12.665
and that there is someone with them[br]that can either take notes for them

0:18:14.836,0:18:23.194
if they do not have the ability[br]to make clear

0:18:28.480,0:18:31.777
any decisions that are taken,

0:18:34.841,0:18:47.819
to make clear anything that has been,[br]that has been discussed

0:18:49.320,0:18:54.577
S? Environment may affect us more than you

0:18:55.713,0:19:01.422
The environment we are in[br]affects us more than you.

0:19:02.189,0:19:07.525
Provide a calming environment[br]and opportunities to engage

0:19:07.525,0:19:10.818
in activities that mean something to us.

0:19:12.824,0:19:20.594
Use person_centered tools like [br]"This is me" to find out more about me,

0:19:20.594,0:19:24.590
to tailor activities to meet my needs,

0:19:25.520,0:19:30.400
specifically designed quiet places[br]and murals can help.

0:19:31.535,0:19:35.907
S? There are also important issues[br]regarding how the building itself looks.

0:19:36.504,0:19:43.673
unfamiliar surroundings, noises and[br]busy unclear spaces can be challenging

0:19:44.155,0:19:47.018
and lead the agitation and confusion.

0:19:47.543,0:19:51.162
it's important for a dementia person[br]to have an individual space

0:19:51.532,0:19:53.482
away from others, I think.

0:19:54.143,0:19:57.781
Navigation and way finding[br]is also important

0:19:57.781,0:20:00.909
and it is helpful to have[br]appropriate signs.

0:20:01.389,0:20:04.423
Ideally they should be slightly large,

0:20:04.423,0:20:10.150
with clear words placed[br]at face level and not too high

0:20:10.706,0:20:14.098
Murals and painting can also be helpful,

0:20:14.346,0:20:18.983
ideally colors that aren't too dark,[br]such as red and green

0:20:20.320,0:20:27.423
I recently found it difficult to find[br]tight uh, toilet near my bed

0:20:27.723,0:20:32.921
until the Staff member helped me find it[br]as it didn't have a sign.

0:20:32.921,0:20:40.200
S? But the biggest thing would be[br]disorientation and confusion, you know,

0:20:40.200,0:20:43.945
of coming out of a room and knowing[br]which way to turn and what way to go

0:20:43.945,0:20:48.431
and that's why for me signage is vital,[br]you know, in all situations

0:20:48.431,0:20:50.934
and if there's good signage[br]I'm much more confident

0:20:50.934,0:20:53.320
and I can live much more independently

0:20:53.320,0:20:55.440
but I would describe my head

0:20:55.440,0:20:57.280
as like a washing machine you know of so[br]much can trying

0:20:59.320,0:21:04.699
to process things, you know, that would be[br]the biggest challenge.

0:21:05.525,0:21:08.870
It's even more confusing,[br]cuz you're already not well, you know,

0:21:09.280,0:21:12.204
you're already worried[br]about what's going on, why you're there

0:21:12.784,0:21:18.098
and the noise and you know yourself[br]anybody is sort of affected,

0:21:18.098,0:21:19.242
in an E&A Department.

0:21:19.242,0:21:23.190
There's so much banging and cluttering[br]and there's noise going

0:21:23.190,0:21:24.949
on either side of you in front of you

0:21:24.949,0:21:27.873
behind you, you know,[br]there's so many conversations going on,

0:21:28.524,0:21:32.856
you know, quite often you're planted[br]quite close to the nursery station

0:21:32.856,0:21:36.974
because there's no cubicles, you know,[br]and there's all the noise

0:21:36.974,0:21:39.030
and all the movements[br]sort of going on that

0:21:39.030,0:21:41.889
and it it can become very very confusing

0:21:41.889,0:21:46.796
and you know, it's a hard thing[br]to process any information

0:21:46.796,0:21:48.633
and then when they come[br]to speak to you

0:21:49.680,0:21:51.559
you know there's so much noise going on

0:21:51.559,0:21:56.760
there's so much background noise[br]and conversations going on around you

0:21:56.760,0:22:00.021
that is hard to process[br]what's actually being said to you

0:22:00.021,0:22:03.729
whereas again a very simple thing[br]would be to have somewhere

0:22:03.729,0:22:08.000
that, once they know you have[br]a dementia diagnosis

0:22:08.000,0:22:10.779
and to ask the person, you know,[br]"What can we do to help?"

0:22:10.779,0:22:13.013
and I think most people would say:

0:22:13.013,0:22:17.062
"If I could have a quiet room to have[br]whenever the doctor's talking to me."

0:22:17.960,0:22:21.900
I think that would make a big difference,[br]you know,

0:22:21.900,0:22:24.480
you would sort of know that[br]during that important time

0:22:24.480,0:22:27.030
when you're meant to be able to take[br]information in,

0:22:27.820,0:22:30.577
you know, that they would[br]take you somewhere that,

0:22:30.577,0:22:36.500
that could happen easier[br]than it does in the busy A&E Department

0:22:36.720,0:22:40.080
It was a game which I mentioned[br]in our pause (?)

0:22:40.080,0:22:46.872
It was a new hospital absolutely[br]beautiful like an into a NDFI 20 (?) hotel

0:22:46.872,0:22:49.578
but you go in there[br]you're not coming back out

0:22:49.578,0:22:55.822
there is no signage anywhere and[br]every corridor looks exactly the same

0:22:55.822,0:22:59.960
and you sort of have to go up in the lift[br]and go along a bit then

0:22:59.960,0:23:01.880
go down in a lift and go along a bit and

0:23:01.880,0:23:07.253
then come back up again, you know,[br]because of the way they're intertwined

0:23:07.253,0:23:11.299
and as I say, you come out of a lift but[br]there's no signage to tell you

0:23:11.299,0:23:14.760
to turn left, turn right[br]or what way to go,

0:23:14.760,0:23:18.600
you know, and that was[br]a horrible experience

0:23:18.600,0:23:25.776
S? Well, I have had the experience[br]of going into hospital

0:23:26.320,0:23:30.109
under an am.. with an ambulance[br]during the times of Covid

0:23:30.875,0:23:36.080
and the ambulance team were fantastic

0:23:36.080,0:23:38.729
because they were aware of my challenges.

0:23:39.039,0:23:45.833
They thought I had a triple A but it[br]actually turned out to be kidney stones

0:23:46.240,0:23:49.120
but when they took me into the hospital,[br]rather than just sitting there

0:23:51.480,0:23:55.120
in the general area, they accelerated[br]my Passage through

0:23:58.000,0:24:01.159
to being on a a bed in one of the cubicles

0:24:01.159,0:24:09.225
because they knew that with my behavioural[br]variant of the dementia, of the FTD,

0:24:09.225,0:24:14.161
the frontal temporal dementia,[br]that my filters had disappeared:

0:24:14.161,0:24:19.890
I would say things as I felt about them,[br]I would swear,

0:24:20.262,0:24:24.541
which I wouldn't have done in the past,[br]but frustration,

0:24:24.541,0:24:30.075
the feeling of not being able[br]to express yourself as as I once did,

0:24:30.075,0:24:33.627
these things lead to[br]just filterless behaviours.

0:24:34.035,0:24:38.173
And it's not that you're being unkind[br]or nasty to the staff,

0:24:38.482,0:24:40.777
it's just how things come across.

0:24:40.886,0:24:44.025
So it's important that the staff[br]in that environment

0:24:44.025,0:24:49.923
build a rapport with the patient,[br]build the trust and the confidence

0:24:49.923,0:24:54.100
where they can exchange[br]freely and happily.

0:24:54.100,0:24:59.014
S? And the second time I developed[br]scintillitis (?) in my eye

0:24:59.423,0:25:02.501
and I went to the patient portal (?)[br]late in the evening

0:25:02.501,0:25:06.275
and he rang the casualty to say[br]they should expect me,

0:25:06.275,0:25:09.535
so, they were expecting them and again[br]they knew at that time

0:25:09.535,0:25:13.133
I was living with dementia,[br]so the consultant actually saw me

0:25:13.133,0:25:15.781
and the emergency department[br]was very busy.

0:25:15.781,0:25:18.230
So she actually took me[br]to a very quiet place,

0:25:18.230,0:25:20.940
away from the the emergency department

0:25:20.940,0:25:24.404
and they did all they had to do[br]at that time.

0:25:25.000,0:25:29.667
And her care and even the nursing care[br]was first class at that time.

0:25:30.410,0:25:36.153
With really noise and a lot of people,[br]yeah I find people's faces just blur

0:25:36.686,0:25:40.091
and the noise just, it really[br]scrambles my brain.

0:25:40.091,0:25:43.270
I can't think or focus on anything[br]with noise.

0:25:43.270,0:25:45.669
A quiet place would be ideal yeah, yeah

0:25:46.240,0:25:50.199
Assume we have capacity.

0:25:50.199,0:25:54.023
Don't make assumptions[br]about our level of capacity

0:25:54.023,0:25:59.903
or ability to engage in our care-planning[br]and decision-making

0:26:00.159,0:26:04.704
I may not have capacity[br]to make every decision

0:26:05.112,0:26:11.743
but there will be some decisions[br]I can still make and want to make.

0:26:13.136,0:26:17.617
Don't speak to our family members[br]and ignore us,

0:26:17.617,0:26:21.200
speak directly to us first

0:26:21.200,0:26:26.593
and allow us to defer to our support[br]person if we need to

0:26:28.760,0:26:31.880
S? Ask me what you need,

0:26:31.880,0:26:37.939
what -- sorry -- I would want them[br]to ask me, what I needed or wanted ,

0:26:37.939,0:26:39.464
not to presume they know

0:26:39.464,0:26:43.480
because they might have had[br]somebody in earlier that day

0:26:43.480,0:26:46.641
or the day before or the week before[br]with the dementia diagnosis:

0:26:46.641,0:26:49.909
he needs something different[br]to what I would need, you know,

0:26:49.909,0:26:55.220
so I would always say, you know,[br]treat that person as an individual

0:26:55.220,0:26:59.874
and find out what you can do that will[br]make them them more comfortable

0:26:59.874,0:27:01.204
feel safer,

0:27:01.982,0:27:05.903
and and in the turn[br]that will ease your workload

0:27:05.903,0:27:10.120
because if the person with[br]the demenia diagnosis feels relaxed

0:27:10.120,0:27:15.450
and feels at ease, they're less likely[br]to be giving hustle

0:27:15.450,0:27:18.913
or be kicking off about something

0:27:19.633,0:27:21.885
S? I'm a sitting in the outside[br]the waiting-room

0:27:22.486,0:27:26.080
when she asked me could come[br]into the room and I'll speak to you

0:27:26.080,0:27:28.240
if you want your son to come in,[br]he can come.

0:27:28.240,0:27:30.063
And I says no I'll just go in myself.

0:27:30.063,0:27:33.215
And when I went into the room[br]she was going, she shook my hand

0:27:33.215,0:27:35.993
and says to me: [br]"Martin I'm sorry to tell you

0:27:36.386,0:27:39.823
I'm not sure the exact words[br]but you have Alzheimer's dementia"

0:27:40.724,0:27:44.181
Well, you're you're taken aback,[br]you're just in shock.

0:27:44.415,0:27:47.421
She says "Do you want me to get your son,[br]bring him in?"

0:27:47.909,0:27:51.909
And I say "No, not definitely[br]not to my son:

0:27:51.909,0:27:53.771
I'll get my sons together[br]when I go home

0:27:53.771,0:27:57.306
and I'll tell them when I go home,[br]I'll get them settled down and I think

0:27:57.306,0:28:00.240
that I'll say 'Look, I feel great,[br]I still feel the same thing

0:28:00.240,0:28:01.960
I'm still your daddy I'm still the thing

0:28:01.960,0:28:04.720
and I'm still get carrying on and two of

0:28:04.720,0:28:06.360
my sons are two

0:28:06.360,0:28:10.080
M Twins and there there we go oh God not

0:28:10.080,0:28:11.799
be able to tell him anything now not

0:28:11.799,0:28:14.279
keep a secret he can't keep anything but

0:28:14.279,0:28:16.919
it was it was good the experience was

0:28:16.919,0:28:21.000
good be aware of our details don't make

0:28:21.000,0:28:25.159
us repeat our story multiple times it

0:28:25.159,0:28:29.080
makes us feel like we are being tested

0:28:29.080,0:28:32.640
Ed read your colleagues assessments

0:28:32.640,0:28:36.000
repeating information is

0:28:36.000,0:28:40.080
exhausting for us yeah again I think

0:28:40.080,0:28:41.640
that's it you know the nurse comes in

0:28:41.640,0:28:43.360
you see the nurse and Tre eyes you tell

0:28:43.360,0:28:46.120
them the story you then see whoever you

0:28:46.120,0:28:48.600
move to into the cubicles or into the

0:28:48.600,0:28:51.080
back bit of the any you tell them your

0:28:51.080,0:28:53.679
story the doctor then comes in or a

0:28:53.679,0:28:56.480
doctor comes in and you tell them it but

0:28:56.480,0:28:58.519
there may be not the particular doctor

0:28:58.519,0:29:00.039
you need to see if it's something

0:29:00.039,0:29:01.840
specific you're there for you know if it

0:29:01.840,0:29:04.600
was for example something to do with

0:29:04.600,0:29:06.600
your heart you know you would get a

0:29:06.600,0:29:08.399
general doctor come in talk oh you need

0:29:08.399,0:29:10.000
to you know we need to get something

0:29:10.000,0:29:12.159
done from Cardiology or whatever they

0:29:12.159,0:29:13.919
can die and you have to repeat the whole

0:29:13.919,0:29:17.200
thing again uh and that can become quite

0:29:17.200,0:29:18.880
frustrating and you sort of think you

0:29:18.880,0:29:21.279
know can you not read you know can you

0:29:21.279,0:29:23.000
not actually look at the notes that have

0:29:23.000,0:29:26.559
been taken um 10 times beforehand uh and

0:29:26.559,0:29:28.120
you s of are they're trying to trick you

0:29:28.120,0:29:29.880
right here you know trying to get you to

0:29:29.880,0:29:32.120
say something different to what you had

0:29:32.120,0:29:35.320
said before I think it is I think it's a

0:29:35.320,0:29:38.960
challenge you know because as I say by

0:29:38.960,0:29:40.440
you're that stage you're already in a

0:29:40.440,0:29:43.600
real state of confusion and panic

0:29:43.600,0:29:47.880
and um a bit more unsettled you know so

0:29:47.880,0:29:50.559
to be asked the same story over again

0:29:50.559,0:29:52.399
can become very frustrating and I think

0:29:52.399,0:29:54.480
at times in I think you can become a bit

0:29:54.480,0:29:56.320
sharper than maybe that what you would

0:29:56.320,0:29:59.600
normally be but it's because you sort of

0:29:59.600,0:30:01.120
you're fed up with the length of time

0:30:01.120,0:30:02.720
you sort of have sitting there probably

0:30:02.720,0:30:04.080
waiting anyway and you haven't seen

0:30:04.080,0:30:05.640
anybody and then the next person come

0:30:05.640,0:30:07.240
say ask the exactly the same question

0:30:07.240,0:30:10.200
again you s think like this has moved on

0:30:10.200,0:30:12.399
nowhere you know you

0:30:12.399,0:30:14.440
haven't you know you're asking me what

0:30:14.440,0:30:16.880
the person asked me two hours ago but

0:30:16.880,0:30:19.159
you're doing nothing different but yes I

0:30:19.159,0:30:21.360
think it is a challenge you know with I

0:30:21.360,0:30:23.440
think it's a challenge for anybody but I

0:30:23.440,0:30:24.760
think for somebody with a dementia

0:30:24.760,0:30:26.720
diagnosis yesterday is more of a

0:30:26.720,0:30:29.519
challenge you use Clear

0:30:29.519,0:30:33.799
language if you are going to perform an

0:30:33.799,0:30:36.399
intervention talk to us

0:30:36.399,0:30:40.440
beforehand and explain each step in

0:30:40.440,0:30:44.559
clear words or with gestures if our

0:30:44.559,0:30:46.720
understanding is very

0:30:46.720,0:30:48.880
limited give us

0:30:48.880,0:30:52.799
time explaining the procedure will help

0:30:52.799,0:30:54.960
us to

0:30:54.960,0:30:58.320
participate if I need reassurance

0:30:58.320,0:31:01.600
reassure me I'm not saying you have to

0:31:01.600,0:31:04.600
have dementia to understand it what I'm

0:31:04.600,0:31:08.679
saying is what I said to students is

0:31:08.679,0:31:12.320
take it easy at the beginning don't

0:31:12.320,0:31:16.200
bombard them with a rapid release of

0:31:16.200,0:31:20.480
questions and don't L link questions

0:31:20.480,0:31:23.480
together make the subject if it is

0:31:23.480,0:31:25.760
driving something like

0:31:25.760,0:31:29.120
that say are you driving your

0:31:29.120,0:31:32.639
car wait for the answer and then if they

0:31:32.639,0:31:36.200
say no I'm not then you can discuss it

0:31:36.200,0:31:39.440
with them but I think if you go into

0:31:39.440,0:31:43.639
something you know it only makes them I

0:31:43.639,0:31:46.840
can't interrupt this but I don't agree

0:31:46.840,0:31:50.360
with her so very gently say l thank you

0:31:50.360,0:31:54.720
very much for coming to talk to me and I

0:31:54.720,0:31:58.559
know very little uh about how you're

0:31:58.559,0:32:02.320
feeling at the moment so can you tell me

0:32:02.320,0:32:06.080
how you felt when you got your diagnosis

0:32:06.080,0:32:09.760
what went before did you think you had

0:32:09.760,0:32:12.639
dementia and how you felt when you

0:32:12.639,0:32:17.320
actually were told you have

0:32:17.320,0:32:20.440
dementia makes a

0:32:20.440,0:32:25.000
difference Health and Social Care

0:32:25.000,0:32:30.320
staff working with any form of

0:32:30.519,0:32:33.519
dementia

0:32:33.960,0:32:36.720
need to

0:32:36.720,0:32:39.399
communicate

0:32:39.399,0:32:42.760
clearly with any

0:32:42.760,0:32:47.159
individual with any form of

0:32:47.159,0:32:49.639
dementia they

0:32:49.639,0:32:55.080
need to give clear

0:32:56.000,0:32:58.919
instructions their need

0:32:58.919,0:33:00.159
to

0:33:00.159,0:33:02.080
ensure that

0:33:02.080,0:33:05.760
people with whom they are

0:33:05.760,0:33:07.960
working

0:33:07.960,0:33:12.360
have a clear

0:33:12.360,0:33:14.639
understanding of

0:33:14.639,0:33:18.360
what is being

0:33:19.600,0:33:25.039
discussed and that they

0:33:25.039,0:33:29.159
have made clear

0:33:29.159,0:33:31.279
here

0:33:31.279,0:33:36.519
exactly what is being

0:33:36.799,0:33:41.240
shared what is being

0:33:41.960,0:33:46.519
said maintain our confidentiality and

0:33:46.519,0:33:51.120
dignity share information with us

0:33:51.120,0:33:53.919
sensitively and take into

0:33:53.919,0:33:58.639
consideration our confidentiality

0:33:58.720,0:34:02.080
privacy and dignity are

0:34:02.080,0:34:05.559
important we may not want other patients

0:34:05.559,0:34:08.918
visitors to know we have

0:34:08.918,0:34:13.838
dementia yeah within the hold of

0:34:13.960,0:34:17.639
dementia I find myself falling apart I

0:34:17.639,0:34:19.879
find

0:34:19.879,0:34:22.879
myself

0:34:23.960,0:34:29.560
unable to be the person I was

0:34:29.560,0:34:31.919
to

0:34:33.079,0:34:36.000
communicate the

0:34:36.000,0:34:40.399
way I should be able to

0:34:43.239,0:34:45.918
communicate I

0:34:45.918,0:34:49.158
lost my

0:34:49.639,0:34:52.719
skills I lost a lot

0:34:52.719,0:34:56.999
of what was

0:34:59.960,0:35:02.880
what being

0:35:03.119,0:35:05.280
me as a

0:35:05.280,0:35:08.280
person

0:35:14.200,0:35:17.320
was I

0:35:17.320,0:35:20.720
was I was

0:35:22.760,0:35:27.160
lost well for for myself or anybody of

0:35:27.160,0:35:30.119
the just P his like hard if I come in as

0:35:30.119,0:35:30.920
a

0:35:30.920,0:35:32.960
patient they don't know why I've got the

0:35:32.960,0:35:36.680
Mana unless I tell them I've got the

0:35:36.960,0:35:40.480
Mana don't don't have me

0:35:40.480,0:35:43.000
to have to say that I've got the Manion

0:35:43.000,0:35:46.200
just treat me where courtesy of of think

0:35:46.200,0:35:49.319
most most sitting rooms in the hospital

0:35:49.319,0:35:51.920
you know are like they're Havoc if it

0:35:51.920,0:35:54.800
comes to a thing many of places been in

0:35:54.800,0:35:56.640
I've turned around and says look I'm in

0:35:56.640,0:35:58.680
the early stages of the Mana could you

0:35:58.680,0:36:00.480
give me a we bit of time

0:36:00.480,0:36:04.680
here and just things get mixed up for I

0:36:04.680,0:36:07.079
think could just if my name would come

0:36:07.079,0:36:08.720
up in that

0:36:08.720,0:36:12.599
computer without me having to say and

0:36:12.599,0:36:14.480
200 people or 100 people behind me

0:36:14.480,0:36:19.720
listening he's got the Mana list he's

0:36:19.720,0:36:22.240
different it's different just just come

0:36:22.240,0:36:24.240
up on the computer they made away they

0:36:24.240,0:36:25.839
know they I've got the Mana where we're

0:36:25.839,0:36:27.240
just talking about a blue heart or

0:36:27.240,0:36:30.560
purple or something like that and see

0:36:30.560,0:36:32.000
what were the attitude changes that

0:36:32.000,0:36:35.720
those change have used are have used our

0:36:35.720,0:36:38.319
we th card or we IDE I've used to be

0:36:38.319,0:36:42.520
smart card not the smart card uh JN card

0:36:42.520,0:36:45.319
I've used the JN card the difference

0:36:45.319,0:36:47.760
those things make and change people's

0:36:47.760,0:36:50.920
attitude it's wonderful wonderful

0:36:50.920,0:36:53.319
provide a support

0:36:53.319,0:36:56.640
person having a designated support

0:36:56.640,0:37:01.160
person can help to keep us calm and

0:37:01.160,0:37:04.960
reassured one key person who supports us

0:37:04.960,0:37:09.079
through our stay makes a huge difference

0:37:09.079,0:37:12.359
to our Hospital experience I had to go

0:37:12.359,0:37:14.880
and get an operation to take out a tumor

0:37:14.880,0:37:16.920
on my

0:37:16.920,0:37:19.680
leg and uh it was quite difficult

0:37:19.680,0:37:21.599
because the specialist even though she

0:37:21.599,0:37:26.160
was uh taking the the tumor out she was

0:37:26.160,0:37:29.000
quite um a lot of words that she was

0:37:29.000,0:37:31.079
using was very difficult for me to

0:37:31.079,0:37:33.000
understand because they were quite

0:37:33.000,0:37:36.920
Technical and she then got a a a young

0:37:36.920,0:37:40.920
nurse to come in and help me because she

0:37:40.920,0:37:44.079
also knocked me out for six hours she

0:37:44.079,0:37:47.040
put me asleep for 6 hours where she was

0:37:47.040,0:37:49.640
on a lot of things she was help the the

0:37:49.640,0:37:52.680
the other lady was helping me she met me

0:37:52.680,0:37:56.560
I was there for about um a full full day

0:37:56.560,0:37:57.960
overnight

0:37:57.960,0:38:01.079
and that young lady was a major help to

0:38:01.079,0:38:03.560
me in the hospital because she helped me

0:38:03.560,0:38:07.319
even write down my words she helped me

0:38:07.319,0:38:11.599
even find places and she also said uh

0:38:11.599,0:38:14.359
even tomorrow when you go home now that

0:38:14.359,0:38:17.119
you've been operated this is what you do

0:38:17.119,0:38:20.440
so even though the specialist operated

0:38:20.440,0:38:24.040
me well that lady was a massive helper

0:38:24.040,0:38:27.160
she made the difference and I I because

0:38:27.160,0:38:29.480
I spoke to the specialist and you even

0:38:29.480,0:38:32.319
use my card and said I know you're going

0:38:32.319,0:38:35.800
to help me but I've got Alzheimer's and

0:38:35.800,0:38:38.480
I need someone to talk to me that give

0:38:38.480,0:38:41.319
me advice and um because some of the

0:38:41.319,0:38:43.280
things you've said you're going to do I

0:38:43.280,0:38:46.599
haven't really understood fully what's

0:38:46.599,0:38:48.319
going to happen or even how I help

0:38:48.319,0:38:51.240
myself so and when that other lady came

0:38:51.240,0:38:53.680
in she was massively helpful to me

0:38:53.680,0:38:55.280
possibly like other people with Dem

0:38:55.280,0:38:57.640
Mantia I find that sometimes the

0:38:57.640,0:38:59.760
difficult to understand if I haven't

0:38:59.760,0:39:03.760
heard about things for a while so that

0:39:03.760,0:39:07.440
other lady was a bit more explaining and

0:39:07.440,0:39:11.240
also helped me make notes to write down

0:39:11.240,0:39:13.280
a great understanding of what was going

0:39:13.280,0:39:15.119
to happen to me and particularly how I

0:39:15.119,0:39:17.200
dealt with myself the next few days when

0:39:17.200,0:39:19.839
I got home having that interface between

0:39:19.839,0:39:20.680
the

0:39:20.680,0:39:24.880
consultant and also uh uh uh uh the

0:39:24.880,0:39:29.640
patient with that specialist nurse was

0:39:29.640,0:39:33.400
invaluable and that I think is something

0:39:33.400,0:39:36.680
which can be really helpful to other

0:39:36.680,0:39:39.840
people one thing that I would insist

0:39:39.840,0:39:41.319
[Music]

0:39:41.319,0:39:44.880
on would be

0:39:44.880,0:39:48.720
that I

0:39:49.040,0:39:52.240
had someone with

0:39:52.240,0:39:56.680
me that I trust

0:39:58.480,0:40:01.920
someone with me

0:40:03.359,0:40:06.359
that

0:40:06.560,0:40:09.200
could be

0:40:09.200,0:40:12.200
there

0:40:13.800,0:40:17.160
to like say I would either be taking my

0:40:17.160,0:40:19.319
own

0:40:19.319,0:40:23.839
notes that's another thing I'd lost my

0:40:23.839,0:40:28.400
writing skills i' had lost I mean

0:40:28.400,0:40:32.680
as well as losing my

0:40:32.680,0:40:35.960
verbosity I had

0:40:35.960,0:40:40.000
lost my ability to

0:40:40.040,0:40:44.640
write and I have been practicing

0:40:45.400,0:40:49.560
writing just to get myself back off to

0:40:49.560,0:40:53.040
speed to be able

0:40:53.040,0:40:58.160
to communicate effectively

0:40:59.480,0:41:01.000
I've also been

0:41:01.000,0:41:04.200
reading a

0:41:05.960,0:41:10.079
lot to try

0:41:10.160,0:41:15.880
and ensure that my communication

0:41:15.960,0:41:19.319
is as it should

0:41:19.319,0:41:24.920
be as I consider it should

0:41:25.839,0:41:30.079
be cuz I'm a hard

0:41:32.359,0:41:35.680
Taskmaster the following scene is based

0:41:35.680,0:41:37.839
on our real life

0:41:37.839,0:41:41.599
experiences of poor health care

0:41:41.599,0:41:42.830
interactions

0:41:42.830,0:42:01.659
[Music]

0:42:02.760,0:42:04.800
without a clear

0:42:04.800,0:42:08.119
introduction we may feel rushed or

0:42:08.119,0:42:11.040
panicked unsure of what is

0:42:11.040,0:42:13.800
happening which may unnecessarily

0:42:13.800,0:42:15.640
increase our

0:42:15.640,0:42:19.650
anxiety and generate unexpected

0:42:19.650,0:42:20.839
[Music]

0:42:20.839,0:42:24.559
reactions insufficient support with wayf

0:42:24.559,0:42:27.760
finding could leave us disoriented ated

0:42:27.760,0:42:28.920
and

0:42:28.920,0:42:32.359
Confused ultimately reducing our powers

0:42:32.359,0:42:33.440
of

0:42:33.440,0:42:35.830
concentration for the following

0:42:35.830,0:42:37.160
[Music]

0:42:37.160,0:42:40.599
appointment disorganized and chaotic

0:42:40.599,0:42:44.760
clinical space may be distracting or

0:42:44.760,0:42:48.800
overwhelming for us reducing ability to

0:42:48.800,0:42:51.839
focus and

0:42:51.839,0:42:55.480
communicate not explaining procedures or

0:42:55.480,0:42:58.359
interventions clearly in advance can

0:42:58.359,0:43:00.920
cause us upset or

0:43:00.920,0:43:05.880
distress especially as our dementia

0:43:05.960,0:43:09.640
advances not explaining next steps in

0:43:09.640,0:43:12.400
advance increases our

0:43:12.400,0:43:15.880
anxiety and

0:43:17.200,0:43:20.300
[Music]

0:43:20.760,0:43:23.440
confusion uh Hazel and baby is that

0:43:23.440,0:43:25.240
right yeah I'm

0:43:25.240,0:43:27.960
Dr tonight

0:43:27.960,0:43:30.720
without a clear and full

0:43:30.720,0:43:33.760
introduction we may not realize the

0:43:33.760,0:43:35.480
purpose of the

0:43:35.480,0:43:38.440
appointment

0:43:38.440,0:43:41.240
um no I'm not I'm not really seeing

0:43:41.240,0:43:43.640
anything there there's no results back

0:43:43.640,0:43:47.839
just yet poor positioning can hinder

0:43:47.839,0:43:51.520
effective communication with

0:43:51.520,0:43:54.520
us not to

0:43:54.520,0:43:59.319
good we'll maybe asking as repetitive

0:43:59.319,0:44:01.640
questions without

0:44:01.640,0:44:05.559
context can make us feel like we are

0:44:05.559,0:44:08.040
being

0:44:08.319,0:44:12.240
tested speaking to a carer instead of

0:44:12.240,0:44:16.720
directly to us shows a presumption about

0:44:16.720,0:44:18.079
our

0:44:18.079,0:44:21.640
capacity the following scene is based on

0:44:21.640,0:44:25.599
our real life experiences of positive

0:44:25.599,0:44:29.040
healthc care interaction

0:44:30.370,0:44:33.240
[Music]

0:44:33.240,0:44:36.480
thank you

0:44:39.900,0:45:03.800
[Music]

0:45:03.800,0:45:05.440
the consultant comes okay and I'll F

0:45:05.440,0:45:09.680
this across the H yeah all

0:45:12.040,0:45:15.359
right there we go like the wait the

0:45:15.359,0:45:16.960
consultant will be right in through the

0:45:16.960,0:45:21.079
door thank you

0:45:28.040,0:45:30.400
how are you I'm Dr sville I'm one of the

0:45:30.400,0:45:33.119
Consultants it's nice to meet you it's

0:45:33.119,0:45:35.240
Davey is that right Dave yeah Davey I I

0:45:35.240,0:45:37.440
haven't met you before um I understand

0:45:37.440,0:45:39.040
that you're you're here to talk about

0:45:39.040,0:45:40.640
some results that's right is that

0:45:40.640,0:45:43.599
correct be okay yeah sure I I haven't

0:45:43.599,0:45:46.160
been to doing too bad been keeping busy

0:45:46.160,0:45:47.559
and very

0:45:47.559,0:45:52.079
active so I do and uh yeah just keep

0:45:52.079,0:45:54.359
keep busy okay okay how have you been

0:45:54.359,0:45:57.119
sleeping recently sleep's been a bit on

0:45:57.119,0:46:01.200
off um but uh I always get caught up

0:46:01.200,0:46:03.160
sometimes away quite early right but uh

0:46:03.160,0:46:05.760
I can get caught up the next night okay

0:46:05.760,0:46:07.800
and what time would you go to bed at

0:46:07.800,0:46:11.440
roughly normally try half time 11:00 um

0:46:11.440,0:46:13.839
probably a bit overeen of anything right

0:46:13.839,0:46:16.240
I started sweet stuff I Can't Get Enough

0:46:16.240,0:46:19.200
at the whatever's uh going on you know

0:46:19.200,0:46:21.960
right okay and then just about some of

0:46:21.960,0:46:24.760
your medications um has anything changed

0:46:24.760,0:46:27.440
recently at all no they've kept it

0:46:27.440,0:46:30.280
they kept the medication as it is right

0:46:30.280,0:46:32.000
we can maybe spend a bit more time

0:46:32.000,0:46:34.240
looking at well really not not too bad

0:46:34.240,0:46:36.599
just how how how do you see things

0:46:36.599,0:46:40.200
progressing for for myself okay okay so

0:46:40.200,0:46:42.680
if you've got that Rapport it makes a

0:46:42.680,0:46:45.920
real difference and show appreciation

0:46:45.920,0:46:49.760
cuz the staff do an amazing thing and in

0:46:49.760,0:46:52.520
very difficult environment and I have to

0:46:52.520,0:46:55.760
say thank you to the nursing staff and

0:46:55.760,0:46:58.440
to the medics who do take such good care

0:46:58.440,0:46:59.319
of

0:46:59.319,0:47:02.400
us thank you for staying with us

0:47:02.400,0:47:04.200
throughout this

0:47:04.200,0:47:07.079
documentary we hope it has provided you

0:47:07.079,0:47:10.119
with a deeper understanding of what it

0:47:10.119,0:47:13.559
is like to live with dementia and has

0:47:13.559,0:47:17.160
offered practical tips that you can now

0:47:17.160,0:47:18.680
put into

0:47:18.680,0:47:22.720
practice finally a big thank you from

0:47:22.720,0:47:25.880
all the members at dementa ni for the

0:47:25.880,0:47:27.559
work that you do

0:47:27.559,0:47:30.880
that has a positive impact on the daily

0:47:30.880,0:47:33.880
lives of real people like

0:47:33.880,0:47:37.160
us matter have to assume we have

0:47:37.160,0:47:40.480
capacity mhm is that the size of my

0:47:40.480,0:47:44.359
bladder the size of my

0:47:50.160,0:47:54.200
nose those words my feet went from

0:47:54.200,0:47:58.839
beneath me could not believe what I

0:47:59.180,0:48:00.800
[Music]

0:48:00.800,0:48:03.359
I I

0:48:03.359,0:48:06.720
saw I

0:48:09.559,0:48:15.400
give it's a slippy R but I keep my feet

0:48:15.400,0:48:19.359
bled I have the strength to hold the C

0:48:19.359,0:48:21.559
I've been

0:48:21.559,0:48:25.800
handed If I Stumble if my feet fall or

0:48:25.800,0:48:27.680
if I need

0:48:27.680,0:48:31.880
assistance I know the journey is long

0:48:31.880,0:48:36.040
but it's so wor

0:48:36.040,0:48:39.880
that my voice is mind I don't need

0:48:39.880,0:48:43.800
someone to say what's on my mind though

0:48:43.800,0:48:47.480
the love I have to help me is the best

0:48:47.480,0:48:51.400
that you could find and I worry for my

0:48:51.400,0:48:55.559
loved ones cuz the future is so wonder I

0:48:55.559,0:48:58.720
stay strong

0:49:01.520,0:49:02.200
it's

0:49:02.200,0:49:06.240
ay but I keep

0:49:06.400,0:49:10.359
my I have the strength to hold the C

0:49:10.359,0:49:12.559
I've been

0:49:12.559,0:49:17.400
handed If I Stumble my feet fall or if I

0:49:17.400,0:49:21.480
need some assistance I know the journey

0:49:21.480,0:49:23.040
long

0:49:23.040,0:49:28.000
but it's the wor that distance

0:49:28.000,0:49:33.079
[Music]

0:49:35.880,0:49:39.559
[Music]

0:49:39.559,0:49:41.200
I found my

0:49:41.200,0:49:44.240
place surrounded by

0:49:44.240,0:49:49.400
faces who understand

0:49:50.040,0:49:53.200
me our worries and

0:49:53.200,0:49:58.640
fears so disappear after

0:49:59.140,0:50:02.079
[Music]

0:50:02.079,0:50:07.559
Aver and a warm cup of tea