[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:04.56,0:00:09.96,Default,,0000,0000,0000,,♪I won't lie I was terrified\Nwhen the doctor said those words♪
Dialogue: 0,0:00:09.96,0:00:16.17,Default,,0000,0000,0000,,♪My feet went from beneath me\Ncould not believe what I just heard♪
Dialogue: 0,0:00:16.17,0:00:22.00,Default,,0000,0000,0000,,♪If I judged my condition\Nfrom what I saw on television♪
Dialogue: 0,0:00:22.00,0:00:25.56,Default,,0000,0000,0000,,♪I'd give up♪
Dialogue: 0,0:00:28.34,0:00:35.91,Default,,0000,0000,0000,,S1 944 ,000 people are estimated to be\Ncurrently living with dementia in the UK
Dialogue: 0,0:00:35.91,0:00:40.96,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:00:41.70,0:00:48.04,Default,,0000,0000,0000,,Dementia killed almost double\Nthe number of women than men in 2020
Dialogue: 0,0:00:48.04,0:00:53.38,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:00:53.38,0:00:59.76,Default,,0000,0000,0000,,Dementia has been the leading cause of death\Nin women since 2011
Dialogue: 0,0:00:59.79,0:01:04.64,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:04.64,0:01:09.37,Default,,0000,0000,0000,,9% of people over 65 have dementia.
Dialogue: 0,0:01:09.37,0:01:18.10,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:18.45,0:01:21.58,Default,,0000,0000,0000,,Dementia will impact 50% of us
Dialogue: 0,0:01:22.08,0:01:27.17,Default,,0000,0000,0000,,either through a personal diagnosis or\Nby caring for someone who has it.
Dialogue: 0,0:01:27.17,0:01:35.48,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:35.60,0:01:42.70,Default,,0000,0000,0000,,1.6 million people will be living\Nwith dementia in the UK by 2040
Dialogue: 0,0:01:43.07,0:01:48.51,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:01:48.51,0:01:56.29,Default,,0000,0000,0000,,Dementia is the most feared\Nhealth condition by 60% of people over 65.
Dialogue: 0,0:01:56.43,0:02:04.45,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:02:05.88,0:02:12.80,Default,,0000,0000,0000,,Dementia care costs in Northern Ireland\Nare projected to increase 192%
Dialogue: 0,0:02:12.80,0:02:19.99,Default,,0000,0000,0000,,from 800 million in 2019\Nto 2.4 billion in 2040.
Dialogue: 0,0:02:30.39,0:02:35.33,Default,,0000,0000,0000,,Wayfinding in unfamiliar places\Ncan be more challenging
Dialogue: 0,0:02:35.33,0:02:38.09,Default,,0000,0000,0000,,for people living with dementia.
Dialogue: 0,0:02:40.91,0:02:46.48,Default,,0000,0000,0000,,Environment may affect people living\Nwith dementia more than most.
Dialogue: 0,0:02:49.13,0:02:54.64,Default,,0000,0000,0000,,Noisy and chaotic spaces can feel\Ndisorientating and overwhelming,
Dialogue: 0,0:02:54.64,0:02:59.40,Default,,0000,0000,0000,,may increase anxiety or frustration,\Ncausing changes in behaviour.
Dialogue: 0,0:03:02.11,0:03:08.36,Default,,0000,0000,0000,,Everyday life for people living\Nwith dementia can be exhausting
Dialogue: 0,0:03:09.13,0:03:11.04,Default,,0000,0000,0000,,though it may not be obvious to you.
Dialogue: 0,0:03:11.70,0:03:18.07,Default,,0000,0000,0000,,It takes longer for people living\Nwith dementia to process information.
Dialogue: 0,0:03:18.07,0:03:24.47,Default,,0000,0000,0000,,Our brains have to work harder\Nto filter out external stimuli
Dialogue: 0,0:03:24.91,0:03:30.79,Default,,0000,0000,0000,,often leaving us feeling depleted,\Nexhausted and spent.
Dialogue: 0,0:03:31.40,0:03:35.36,Default,,0000,0000,0000,,This makes our symptoms of dementia\Nmore evident.
Dialogue: 0,0:03:36.29,0:03:51.78,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:03:51.78,0:04:01.38,Default,,0000,0000,0000,,74,000 800 people are estimated\Nto be living with young onset dementia
Dialogue: 0,0:04:01.55,0:04:04.28,Default,,0000,0000,0000,,in the UK and Ireland
Dialogue: 0,0:04:04.53,0:04:11.66,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:04:11.66,0:04:19.50,Default,,0000,0000,0000,,Young onset dementia is when symptoms\Nof dementia start before the age of 65
Dialogue: 0,0:04:19.74,0:05:05.06,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:05:06.88,0:05:13.97,Default,,0000,0000,0000,,Dementia NI members formed a working group\Nin 2022
Dialogue: 0,0:05:14.75,0:05:20.39,Default,,0000,0000,0000,,that included eight individuals\Nliving with dementia like me,
Dialogue: 0,0:05:21.13,0:05:26.79,Default,,0000,0000,0000,,supported by four staff members\Nworking collaboratively together:
Dialogue: 0,0:05:27.56,0:05:29.56,Default,,0000,0000,0000,,one from dementia NI
Dialogue: 0,0:05:30.26,0:05:37.15,Default,,0000,0000,0000,,and three from the Southern and Southeast\NHealth and Social Care Trusts.
Dialogue: 0,0:05:38.78,0:05:44.77,Default,,0000,0000,0000,,The members of dementia NI are always\Nlooking for opportunities to engage
Dialogue: 0,0:05:44.77,0:05:50.12,Default,,0000,0000,0000,,with hospital and social care staff\Nto describe what it's like
Dialogue: 0,0:05:50.12,0:05:57.12,Default,,0000,0000,0000,,to live with dementia and to share\Nwith them our challenges as well as ways
Dialogue: 0,0:05:57.12,0:06:03.79,Default,,0000,0000,0000,,we can best be supported in both\Nclinical and hospital environments.
Dialogue: 0,0:06:04.24,0:06:12.23,Default,,0000,0000,0000,,However, speaking to every trust member\Nin person is an impossible task.
Dialogue: 0,0:06:12.91,0:06:18.11,Default,,0000,0000,0000,,So we decided to create a documentary\Nto help us interact
Dialogue: 0,0:06:18.61,0:06:25.24,Default,,0000,0000,0000,,with members of the Health and Social Care\Nservices to help bridge this gap.
Dialogue: 0,0:06:26.75,0:06:33.23,Default,,0000,0000,0000,,Over the course of 22 months we met \Nregularly to decide the content
Dialogue: 0,0:06:33.43,0:06:40.19,Default,,0000,0000,0000,,of this film, sharing our own personal\Nexperiences across the spectrum,
Dialogue: 0,0:06:41.18,0:06:45.35,Default,,0000,0000,0000,,both positive and challenging experiences.
Dialogue: 0,0:06:46.50,0:06:52.22,Default,,0000,0000,0000,,We thought it would be beneficial\Nto provide staff with 10 top tips
Dialogue: 0,0:06:52.74,0:06:57.30,Default,,0000,0000,0000,,for supporting people like us\Nliving with dementia.
Dialogue: 0,0:06:58.00,0:07:03.55,Default,,0000,0000,0000,,We believe these these practices\Ncan be easily implemented
Dialogue: 0,0:07:04.12,0:07:08.44,Default,,0000,0000,0000,,without adding an extra burden to staff
Dialogue: 0,0:07:08.44,0:07:12.83,Default,,0000,0000,0000,,and will lead to an improved\Nstaff-patient interaction
Dialogue: 0,0:07:13.63,0:07:19.67,Default,,0000,0000,0000,,and in the long run will save time;\NMany people have commented:
Dialogue: 0,0:07:20.14,0:07:25.15,Default,,0000,0000,0000,,"What is good for people living\Nwith dementia is good for everyone."
Dialogue: 0,0:07:25.86,0:07:33.08,Default,,0000,0000,0000,,And we the members of dementia NI\Nare sure you will find this to be so too.
Dialogue: 0,0:07:36.76,0:07:41.81,Default,,0000,0000,0000,,We know you will find the following\Nindividual experiences engaging
Dialogue: 0,0:07:42.28,0:07:45.19,Default,,0000,0000,0000,,even if somewhat emotional at times,
Dialogue: 0,0:07:45.51,0:07:51.51,Default,,0000,0000,0000,,and that you will be able to put some\Nof the practical tips into action
Dialogue: 0,0:07:51.65,0:07:55.49,Default,,0000,0000,0000,,[Introducing members of Dementia NI --\Nthe producers of this training resource --
Dialogue: 0,0:07:55.49,0:07:58.52,Default,,0000,0000,0000,,and their experiences within health and\Nsocial care settings]
Dialogue: 0,0:07:58.90,0:08:01.75,Default,,0000,0000,0000,,S2 I'm Davie Michael McElhinney\Nfrom County Fermanagh
Dialogue: 0,0:08:01.75,0:08:06.62,Default,,0000,0000,0000,,I was diagnosed with\Nfrontal temporal dementia 7 years ago
Dialogue: 0,0:08:07.15,0:08:09.28,Default,,0000,0000,0000,,I was aged 54.
Dialogue: 0,0:08:09.88,0:08:13.44,Default,,0000,0000,0000,,S3 My name is Martin Murtagh
Dialogue: 0,0:08:14.29,0:08:17.14,Default,,0000,0000,0000,,My dementia is Alzheimer's dementia
Dialogue: 0,0:08:17.43,0:08:21.24,Default,,0000,0000,0000,,S4 So my name is Peter Alexander\NI was born in England, Twickenham,
Dialogue: 0,0:08:21.24,0:08:24.91,Default,,0000,0000,0000,,so the good old rugby place.
Dialogue: 0,0:08:24.91,0:08:30.98,Default,,0000,0000,0000,,S5 My name is Gerard Doran, I was\Ndiagnosed with dementia when I was 61.
Dialogue: 0,0:08:31.12,0:08:33.55,Default,,0000,0000,0000,,S6 Yes, I'm Christopher Higgins
Dialogue: 0,0:08:33.55,0:08:37.95,Default,,0000,0000,0000,,and my dementia was discovered\Njust two years ago.
Dialogue: 0,0:08:37.95,0:08:43.01,Default,,0000,0000,0000,,S7 Yes, my name's Allison,\NAllison Bachelor, I live in Dundonald
Dialogue: 0,0:08:43.01,0:08:49.09,Default,,0000,0000,0000,,and was diagnosed with Alzheimer's\Nin April 2017
Dialogue: 0,0:08:49.24,0:08:53.40,Default,,0000,0000,0000,,S8 I'm a newly diagnosed person\Nwith dementia.
Dialogue: 0,0:08:54.28,0:08:59.87,Default,,0000,0000,0000,,My past knowledge of dementia was\Nthat I was a social worker in hospital
Dialogue: 0,0:09:00.20,0:09:05.41,Default,,0000,0000,0000,,S9 Hi, my name is Tom, Tom Heatly,\Nand
Dialogue: 0,0:09:06.82,0:09:13.24,Default,,0000,0000,0000,,I have dementia, I've been diagnosed
Dialogue: 0,0:09:13.24,0:09:17.52,Default,,0000,0000,0000,,with dementia with Lewy bodies
Dialogue: 0,0:09:19.26,0:09:26.19,Default,,0000,0000,0000,,that was back about just over a year now.
Dialogue: 0,0:09:26.64,0:09:30.15,Default,,0000,0000,0000,,Treat us with common courtesy.
Dialogue: 0,0:09:30.15,0:09:35.55,Default,,0000,0000,0000,,S8 Treat us with respect,\Nas valued, capable adults
Dialogue: 0,0:09:36.00,0:09:41.43,Default,,0000,0000,0000,,Be aware of your facial expression,\Ntone of voice
Dialogue: 0,0:09:41.43,0:09:45.47,Default,,0000,0000,0000,,and your non-verbal communication
Dialogue: 0,0:09:45.84,0:09:52.99,Default,,0000,0000,0000,,And when the students came, they said:\N"Oh I see here this person has dementia,
Dialogue: 0,0:09:53.44,0:09:56.26,Default,,0000,0000,0000,,I don't know how to speak to dementia."
Dialogue: 0,0:09:56.99,0:09:59.04,Default,,0000,0000,0000,,And I think that is the problem.
Dialogue: 0,0:09:59.04,0:10:01.56,Default,,0000,0000,0000,,They think they're speaking\Nto the dementia.
Dialogue: 0,0:10:02.30,0:10:07.75,Default,,0000,0000,0000,,But I always said to them: "So what\Nif they have dementia?
Dialogue: 0,0:10:07.75,0:10:09.85,Default,,0000,0000,0000,,speak to the person first.
Dialogue: 0,0:10:10.12,0:10:18.32,Default,,0000,0000,0000,,You will hear a little bit when they reply\Nabout de the way they are affected,
Dialogue: 0,0:10:18.79,0:10:23.66,Default,,0000,0000,0000,,but just keep speaking to the person\Nbehind the dementia
Dialogue: 0,0:10:23.86,0:10:27.94,Default,,0000,0000,0000,,because it's the person\Nyou want to talk to.
Dialogue: 0,0:10:29.44,0:10:34.68,Default,,0000,0000,0000,,S9 Basically you talk about\Nvaluing an individual.
Dialogue: 0,0:10:35.81,0:10:43.82,Default,,0000,0000,0000,,In all those years that I have been\Na trainer in the trust,
Dialogue: 0,0:10:46.67,0:11:00.94,Default,,0000,0000,0000,,basic values are the primary\Nimportant factor
Dialogue: 0,0:11:01.66,0:11:04.44,Default,,0000,0000,0000,,S4 What I would say, yes:
Dialogue: 0,0:11:05.18,0:11:11.50,Default,,0000,0000,0000,,if I was to write a book from a person\Nwho has dementia,
Dialogue: 0,0:11:13.34,0:11:17.63,Default,,0000,0000,0000,,it would be to say I'm hurting inside too.
Dialogue: 0,0:11:18.49,0:11:21.68,Default,,0000,0000,0000,,I might not be able to express it,
Dialogue: 0,0:11:22.60,0:11:26.14,Default,,0000,0000,0000,,but I'm still the same person as I was\Nwhen I was younger.
Dialogue: 0,0:11:27.61,0:11:29.52,Default,,0000,0000,0000,,I am still that today,
Dialogue: 0,0:11:30.40,0:11:35.03,Default,,0000,0000,0000,,it's just that the person I am is getting\Nlocked away more and more inside me.
Dialogue: 0,0:11:35.81,0:11:37.98,Default,,0000,0000,0000,,So don't treat me any differently.
Dialogue: 0,0:11:38.72,0:11:40.62,Default,,0000,0000,0000,,I'm still the same person as I was
Dialogue: 0,0:11:42.54,0:11:45.84,Default,,0000,0000,0000,,even though you might have \Nsome preconceived ideas
Dialogue: 0,0:11:46.52,0:11:51.55,Default,,0000,0000,0000,,that because I got dementia,\NI'm an incontinent old person.
Dialogue: 0,0:11:51.88,0:11:55.88,Default,,0000,0000,0000,,but I'm not: I was diagnosed\Nat the age of 49
Dialogue: 0,0:11:55.88,0:12:00.32,Default,,0000,0000,0000,,and at that time I was told that\NI shouldn't work anymore
Dialogue: 0,0:12:00.73,0:12:05.70,Default,,0000,0000,0000,,and that I shouldn't drive anymore\Nbecause of my judgment being impaired.
Dialogue: 0,0:12:07.66,0:12:09.00,Default,,0000,0000,0000,,S8 Give us time
Dialogue: 0,0:12:09.98,0:12:13.36,Default,,0000,0000,0000,,We need more time to process than you.
Dialogue: 0,0:12:13.76,0:12:18.20,Default,,0000,0000,0000,,Allow us to respond before you move on.
Dialogue: 0,0:12:18.90,0:12:21.67,Default,,0000,0000,0000,,Don't bombard us with questions.
Dialogue: 0,0:12:21.97,0:12:28.38,Default,,0000,0000,0000,,S? We're just normal human beings with \Na good mind
Dialogue: 0,0:12:28.38,0:12:30.12,Default,,0000,0000,0000,,and just normal people.
Dialogue: 0,0:12:30.94,0:12:40.93,Default,,0000,0000,0000,,The dementia does bring up\Ndifferent problems,
Dialogue: 0,0:12:41.42,0:12:47.15,Default,,0000,0000,0000,,you know, such a speech: now my speech,\Nwhile I'm sitting here talking to you,
Dialogue: 0,0:12:47.76,0:12:52.75,Default,,0000,0000,0000,,there's -- words just disappear\Nout of my vocabulary
Dialogue: 0,0:12:53.44,0:12:57.18,Default,,0000,0000,0000,,and that's why you could see me\Nstruggling there a couple of wee bits
Dialogue: 0,0:12:57.76,0:13:01.00,Default,,0000,0000,0000,,that's because a normal\Nconversational word
Dialogue: 0,0:13:01.93,0:13:07.95,Default,,0000,0000,0000,,whenever it disappears I have to fish\Nfor another word that will fit
Dialogue: 0,0:13:07.95,0:13:09.44,Default,,0000,0000,0000,,in the slot in this place,
Dialogue: 0,0:13:10.30,0:13:13.02,Default,,0000,0000,0000,,but your mind's going around like\Na washing machine
Dialogue: 0,0:13:13.02,0:13:16.47,Default,,0000,0000,0000,,and it can't pick the words out sometimes.
Dialogue: 0,0:13:17.05,0:13:21.28,Default,,0000,0000,0000,,S? Yeah it still sticks with me that\Nthat day I felt very rushed
Dialogue: 0,0:13:21.28,0:13:24.96,Default,,0000,0000,0000,,and uh it was very blunt.
Dialogue: 0,0:13:24.96,0:13:30.21,Default,,0000,0000,0000,,There's no easy way to deliver bad news\Nbut it was very very blunt I thought
Dialogue: 0,0:13:30.64,0:13:34.80,Default,,0000,0000,0000,,and we left with no information at all\Nthat Friday afternoon.
Dialogue: 0,0:13:34.80,0:13:38.94,Default,,0000,0000,0000,,We went out for the weekend\Nand with absolutely nothing.
Dialogue: 0,0:13:38.94,0:13:42.08,Default,,0000,0000,0000,,I thought, I thought with only weeks\Nto live after that, you know.
Dialogue: 0,0:13:42.99,0:13:45.26,Default,,0000,0000,0000,,So I did and I think more time\Nwould have helped
Dialogue: 0,0:13:45.26,0:13:49.18,Default,,0000,0000,0000,,and maybe a bit more compassion\Nwith the, from the consultant.
Dialogue: 0,0:13:50.55,0:13:53.52,Default,,0000,0000,0000,,S8 Don't make assumptions about us.
Dialogue: 0,0:13:54.08,0:13:58.47,Default,,0000,0000,0000,,Don't presume you know what we want,\Nfeel or need
Dialogue: 0,0:13:58.91,0:14:03.34,Default,,0000,0000,0000,,or what we might be able to understand\Nor decide.
Dialogue: 0,0:14:03.93,0:14:06.62,Default,,0000,0000,0000,,Discuss us with us directly.
Dialogue: 0,0:14:07.83,0:14:13.91,Default,,0000,0000,0000,,Give our loved ones the "This is me"\Nperson-centered document
Dialogue: 0,0:14:13.91,0:14:17.13,Default,,0000,0000,0000,,to help you care for me effectively.
Dialogue: 0,0:14:18.66,0:14:22.19,Default,,0000,0000,0000,,S? Yeah I had gone to a local\NANE (?) Department.
Dialogue: 0,0:14:22.93,0:14:25.01,Default,,0000,0000,0000,,This would be a few years ago now.
Dialogue: 0,0:14:25.01,0:14:30.92,Default,,0000,0000,0000,,And I had said to the nurse who had after\Ngone through from triage, you know,
Dialogue: 0,0:14:30.92,0:14:33.68,Default,,0000,0000,0000,,been called into the back area, you know,
Dialogue: 0,0:14:33.68,0:14:36.26,Default,,0000,0000,0000,,to be waiting to be seen by a doctor\Nand to have
Dialogue: 0,0:14:36.26,0:14:38.55,Default,,0000,0000,0000,,some sort of bloods or whatever done,
Dialogue: 0,0:14:38.55,0:14:42.48,Default,,0000,0000,0000,,and I had said to her that I had\Ndementia diagnosis
Dialogue: 0,0:14:42.83,0:14:49.32,Default,,0000,0000,0000,,and she instantly dismissed it and told me\N"Just tell the doctor" and walked away.
Dialogue: 0,0:14:50.02,0:14:53.16,Default,,0000,0000,0000,,And I have to say that put me\Ninto a bit of a panic mode
Dialogue: 0,0:14:53.16,0:14:55.82,Default,,0000,0000,0000,,because I sort of thought,\NI didn't feel safe then,
Dialogue: 0,0:14:56.06,0:14:59.08,Default,,0000,0000,0000,,I sort of thought that she should\Nhave taken a wee bit of time,
Dialogue: 0,0:14:59.08,0:15:03.26,Default,,0000,0000,0000,,even just by saying:\N"Okay we've taken note of that
Dialogue: 0,0:15:03.26,0:15:07.27,Default,,0000,0000,0000,,but if you need us to go to the toilet or\Nif you need any help with anything,
Dialogue: 0,0:15:07.27,0:15:09.18,Default,,0000,0000,0000,,you know, just give one of us a shout."
Dialogue: 0,0:15:09.47,0:15:12.55,Default,,0000,0000,0000,,But I sort of felt it wasn't\Ntaken seriously,
Dialogue: 0,0:15:12.99,0:15:17.46,Default,,0000,0000,0000,,that it, and I thought it was something,\Nthat she did need to know, you know,
Dialogue: 0,0:15:17.46,0:15:20.67,Default,,0000,0000,0000,,I thought it was something that\Nshe had needed to take note of
Dialogue: 0,0:15:20.67,0:15:26.50,Default,,0000,0000,0000,,and to be aware of and, you know,\Nas I say, I just sort of felt
Dialogue: 0,0:15:26.50,0:15:30.77,Default,,0000,0000,0000,,a bit more unsafe than if\Nhad have been given a wee bit of time
Dialogue: 0,0:15:30.77,0:15:33.17,Default,,0000,0000,0000,,cuz I sort of thought if I need\Nto go to the toilet
Dialogue: 0,0:15:33.17,0:15:36.16,Default,,0000,0000,0000,,or I need, you know, who do I say to, \NI didn't feel after that
Dialogue: 0,0:15:36.16,0:15:38.74,Default,,0000,0000,0000,,I could say to any other nurse\Nwho came in to to me:
Dialogue: 0,0:15:39.07,0:15:41.50,Default,,0000,0000,0000,,"By the way, I have a dementia diagnosis"
Dialogue: 0,0:15:41.80,0:15:43.86,Default,,0000,0000,0000,,because of the way she had treated me.
Dialogue: 0,0:15:45.12,0:15:48.74,Default,,0000,0000,0000,,S? I learned more about dementia
Dialogue: 0,0:15:51.19,0:16:02.28,Default,,0000,0000,0000,,I worked with people who were\Ntrue professionals,
Dialogue: 0,0:16:04.91,0:16:11.46,Default,,0000,0000,0000,,who were truly impressive\Nin their approaches
Dialogue: 0,0:16:14.61,0:16:30.65,Default,,0000,0000,0000,,and who helped me so much\Nto identify what I could do
Dialogue: 0,0:16:31.30,0:16:36.72,Default,,0000,0000,0000,,as opposed to all the all these things\Nthat I couldn't do.
Dialogue: 0,0:16:39.04,0:16:42.40,Default,,0000,0000,0000,,S? Notes help us to remember.
Dialogue: 0,0:16:43.23,0:16:48.14,Default,,0000,0000,0000,,Provide written information\Nusing jargon-free language
Dialogue: 0,0:16:48.14,0:16:50.67,Default,,0000,0000,0000,,to help us to understand.
Dialogue: 0,0:16:51.16,0:16:56.86,Default,,0000,0000,0000,,Help us to keep notes so that\Nwe can keep track of what is happening.
Dialogue: 0,0:16:57.56,0:17:00.68,Default,,0000,0000,0000,,S? For example when I attended a hospital,
Dialogue: 0,0:17:00.68,0:17:08.23,Default,,0000,0000,0000,,I needed to meet an individual staff\Nmember who was fairly aware of dementia
Dialogue: 0,0:17:08.61,0:17:10.57,Default,,0000,0000,0000,,and helped me support
Dialogue: 0,0:17:11.16,0:17:16.71,Default,,0000,0000,0000,,on a regular basis throughout my stay\Nespecially with regards to
Dialogue: 0,0:17:16.71,0:17:20.75,Default,,0000,0000,0000,,explaining and noting the key aspects\Nof my appointment
Dialogue: 0,0:17:20.75,0:17:24.98,Default,,0000,0000,0000,,and how to cope well in the ward itself
Dialogue: 0,0:17:29.00,0:17:33.16,Default,,0000,0000,0000,,S? So if you have someone who has dementia
Dialogue: 0,0:17:39.28,0:17:52.71,Default,,0000,0000,0000,,ensure that you are making clear\Nto the individual what is being discussed,
Dialogue: 0,0:17:54.27,0:17:58.55,Default,,0000,0000,0000,,what is being agreed,
Dialogue: 0,0:18:00.52,0:18:12.66,Default,,0000,0000,0000,,and that there is someone with them\Nthat can either take notes for them
Dialogue: 0,0:18:14.84,0:18:23.19,Default,,0000,0000,0000,,if they do not have the ability\Nto make clear
Dialogue: 0,0:18:28.48,0:18:31.78,Default,,0000,0000,0000,,any decisions that are taken,
Dialogue: 0,0:18:34.84,0:18:47.82,Default,,0000,0000,0000,,to make clear anything that has been,\Nthat has been discussed
Dialogue: 0,0:18:49.32,0:18:54.58,Default,,0000,0000,0000,,S? Environment may affect us more than you
Dialogue: 0,0:18:55.71,0:19:01.42,Default,,0000,0000,0000,,The environment we are in\Naffects us more than you.
Dialogue: 0,0:19:02.19,0:19:07.52,Default,,0000,0000,0000,,Provide a calming environment\Nand opportunities to engage
Dialogue: 0,0:19:07.52,0:19:10.82,Default,,0000,0000,0000,,in activities that mean something to us.
Dialogue: 0,0:19:12.82,0:19:20.59,Default,,0000,0000,0000,,Use person_centered tools like \N"This is me" to find out more about me,
Dialogue: 0,0:19:20.59,0:19:24.59,Default,,0000,0000,0000,,to tailor activities to meet my needs,
Dialogue: 0,0:19:25.52,0:19:30.40,Default,,0000,0000,0000,,specifically designed quiet places\Nand murals can help.
Dialogue: 0,0:19:31.54,0:19:35.91,Default,,0000,0000,0000,,S? There are also important issues\Nregarding how the building itself looks.
Dialogue: 0,0:19:36.50,0:19:43.67,Default,,0000,0000,0000,,unfamiliar surroundings, noises and\Nbusy unclear spaces can be challenging
Dialogue: 0,0:19:44.16,0:19:47.02,Default,,0000,0000,0000,,and lead the agitation and confusion.
Dialogue: 0,0:19:47.54,0:19:51.16,Default,,0000,0000,0000,,it's important for a dementia person\Nto have an individual space
Dialogue: 0,0:19:51.53,0:19:53.48,Default,,0000,0000,0000,,away from others, I think.
Dialogue: 0,0:19:54.14,0:19:57.78,Default,,0000,0000,0000,,Navigation and way finding\Nis also important
Dialogue: 0,0:19:57.78,0:20:00.91,Default,,0000,0000,0000,,and it is helpful to have\Nappropriate signs.
Dialogue: 0,0:20:01.39,0:20:04.42,Default,,0000,0000,0000,,Ideally they should be slightly large,
Dialogue: 0,0:20:04.42,0:20:10.15,Default,,0000,0000,0000,,with clear words placed\Nat face level and not too high
Dialogue: 0,0:20:10.71,0:20:14.10,Default,,0000,0000,0000,,Murals and painting can also be helpful,
Dialogue: 0,0:20:14.35,0:20:18.98,Default,,0000,0000,0000,,ideally colors that aren't too dark,\Nsuch as red and green
Dialogue: 0,0:20:20.32,0:20:27.42,Default,,0000,0000,0000,,I recently found it difficult to find\Ntight uh, toilet near my bed
Dialogue: 0,0:20:27.72,0:20:32.92,Default,,0000,0000,0000,,until the Staff member helped me find it\Nas it didn't have a sign.
Dialogue: 0,0:20:32.92,0:20:40.20,Default,,0000,0000,0000,,S? But the biggest thing would be\Ndisorientation and confusion, you know,
Dialogue: 0,0:20:40.20,0:20:43.94,Default,,0000,0000,0000,,of coming out of a room and knowing\Nwhich way to turn and what way to go
Dialogue: 0,0:20:43.94,0:20:48.43,Default,,0000,0000,0000,,and that's why for me signage is vital,\Nyou know, in all situations
Dialogue: 0,0:20:48.43,0:20:50.93,Default,,0000,0000,0000,,and if there's good signage\NI'm much more confident
Dialogue: 0,0:20:50.93,0:20:53.32,Default,,0000,0000,0000,,and I can live much more independently
Dialogue: 0,0:20:53.32,0:20:55.44,Default,,0000,0000,0000,,but I would describe my head
Dialogue: 0,0:20:55.44,0:20:57.28,Default,,0000,0000,0000,,as like a washing machine you know of so
Dialogue: 0,0:20:57.28,0:20:59.32,Default,,0000,0000,0000,,much G through and try
Dialogue: 0,0:20:59.32,0:21:03.40,Default,,0000,0000,0000,,to process things you know that would be
Dialogue: 0,0:21:03.40,0:21:04.76,Default,,0000,0000,0000,,the biggest
Dialogue: 0,0:21:04.76,0:21:07.60,Default,,0000,0000,0000,,challenge it's it's even more confusing
Dialogue: 0,0:21:07.60,0:21:09.28,Default,,0000,0000,0000,,cuz you're already not well you know
Dialogue: 0,0:21:09.28,0:21:10.88,Default,,0000,0000,0000,,you're already worried about what's
Dialogue: 0,0:21:10.88,0:21:13.68,Default,,0000,0000,0000,,going on why you're there uh and the
Dialogue: 0,0:21:13.68,0:21:16.68,Default,,0000,0000,0000,,noise and you know yourself anybody is
Dialogue: 0,0:21:16.68,0:21:18.64,Default,,0000,0000,0000,,sort of in an particularly in an NA
Dialogue: 0,0:21:18.64,0:21:20.36,Default,,0000,0000,0000,,Department there's so much banging and
Dialogue: 0,0:21:20.36,0:21:23.20,Default,,0000,0000,0000,,cluttering and there's noise going on
Dialogue: 0,0:21:23.20,0:21:24.80,Default,,0000,0000,0000,,either side of you in front of you
Dialogue: 0,0:21:24.80,0:21:26.60,Default,,0000,0000,0000,,behind you you know there's so many
Dialogue: 0,0:21:26.60,0:21:29.84,Default,,0000,0000,0000,,conversations going on uh you know quite
Dialogue: 0,0:21:29.84,0:21:32.00,Default,,0000,0000,0000,,often you're planted quite close to the
Dialogue: 0,0:21:32.00,0:21:34.08,Default,,0000,0000,0000,,nursery station because there's no
Dialogue: 0,0:21:34.08,0:21:36.60,Default,,0000,0000,0000,,cubicles um you know and there's all the
Dialogue: 0,0:21:36.60,0:21:38.32,Default,,0000,0000,0000,,noise and all the movements sort going
Dialogue: 0,0:21:38.32,0:21:41.24,Default,,0000,0000,0000,,on that and it it can become very very
Dialogue: 0,0:21:41.24,0:21:44.88,Default,,0000,0000,0000,,confusing and uh you know it's a hard
Dialogue: 0,0:21:44.88,0:21:46.92,Default,,0000,0000,0000,,thing to process any information and
Dialogue: 0,0:21:46.92,0:21:49.84,Default,,0000,0000,0000,,then when they come to speak to you you
Dialogue: 0,0:21:49.84,0:21:51.56,Default,,0000,0000,0000,,know there's so much noise going on
Dialogue: 0,0:21:51.56,0:21:54.16,Default,,0000,0000,0000,,there's so much backgr noise
Dialogue: 0,0:21:54.16,0:21:56.76,Default,,0000,0000,0000,,and conversations going on around you
Dialogue: 0,0:21:56.76,0:21:59.00,Default,,0000,0000,0000,,that is hard to process what actually
Dialogue: 0,0:21:59.00,0:22:01.84,Default,,0000,0000,0000,,been said to you whereas again a very
Dialogue: 0,0:22:01.84,0:22:04.00,Default,,0000,0000,0000,,simple thing would be to have somewhere
Dialogue: 0,0:22:04.00,0:22:07.08,Default,,0000,0000,0000,,that once they know you have a dementia
Dialogue: 0,0:22:07.08,0:22:09.68,Default,,0000,0000,0000,,diagnosis and to ask the person you know
Dialogue: 0,0:22:09.68,0:22:12.36,Default,,0000,0000,0000,,what can we do to help and I think most
Dialogue: 0,0:22:12.36,0:22:14.12,Default,,0000,0000,0000,,people would say if I could have a quiet
Dialogue: 0,0:22:14.12,0:22:16.20,Default,,0000,0000,0000,,room to have whenever the doctor's
Dialogue: 0,0:22:16.20,0:22:20.56,Default,,0000,0000,0000,,talking to me I think that would make a
Dialogue: 0,0:22:20.56,0:22:22.24,Default,,0000,0000,0000,,big difference you know you would sort
Dialogue: 0,0:22:22.24,0:22:24.48,Default,,0000,0000,0000,,of know that during that important time
Dialogue: 0,0:22:24.48,0:22:25.96,Default,,0000,0000,0000,,when you're meant to be able to take
Dialogue: 0,0:22:25.96,0:22:29.08,Default,,0000,0000,0000,,information in you know that they would
Dialogue: 0,0:22:29.08,0:22:31.12,Default,,0000,0000,0000,,take you somewhere that that could
Dialogue: 0,0:22:31.12,0:22:35.52,Default,,0000,0000,0000,,happen easier than it does in the busy
Dialogue: 0,0:22:35.52,0:22:36.72,Default,,0000,0000,0000,,any
Dialogue: 0,0:22:36.72,0:22:39.52,Default,,0000,0000,0000,,Department it was again with I mention
Dialogue: 0,0:22:39.52,0:22:42.40,Default,,0000,0000,0000,,in hospitals it was a new hospital
Dialogue: 0,0:22:42.40,0:22:43.96,Default,,0000,0000,0000,,absolutely
Dialogue: 0,0:22:43.96,0:22:46.44,Default,,0000,0000,0000,,beautiful like an into a very Swanky
Dialogue: 0,0:22:46.44,0:22:48.40,Default,,0000,0000,0000,,hotel but you go in there you're not
Dialogue: 0,0:22:48.40,0:22:51.32,Default,,0000,0000,0000,,coming back out there is no signage
Dialogue: 0,0:22:51.32,0:22:54.96,Default,,0000,0000,0000,,anywhere and the every Corridor looks
Dialogue: 0,0:22:54.96,0:22:57.76,Default,,0000,0000,0000,,exactly the same and you sort of have to
Dialogue: 0,0:22:57.76,0:22:59.96,Default,,0000,0000,0000,,go up in the left and go long a bit then
Dialogue: 0,0:22:59.96,0:23:01.88,Default,,0000,0000,0000,,go down and a left and go long a bit and
Dialogue: 0,0:23:01.88,0:23:05.32,Default,,0000,0000,0000,,then come back up again you know um
Dialogue: 0,0:23:05.32,0:23:08.36,Default,,0000,0000,0000,,because of the waya they intertwined and
Dialogue: 0,0:23:08.36,0:23:09.96,Default,,0000,0000,0000,,as I say you can out have a lift but
Dialogue: 0,0:23:09.96,0:23:11.84,Default,,0000,0000,0000,,there's no signage to tell you to turn
Dialogue: 0,0:23:11.84,0:23:14.76,Default,,0000,0000,0000,,left turn right or what way to go you
Dialogue: 0,0:23:14.76,0:23:18.60,Default,,0000,0000,0000,,know and that was a horrible
Dialogue: 0,0:23:18.60,0:23:21.28,Default,,0000,0000,0000,,experience well I have had the
Dialogue: 0,0:23:21.28,0:23:26.32,Default,,0000,0000,0000,,experience of um going into Hospital
Dialogue: 0,0:23:26.32,0:23:28.84,Default,,0000,0000,0000,,under an am with an ambulance J in the
Dialogue: 0,0:23:28.84,0:23:30.08,Default,,0000,0000,0000,,times of
Dialogue: 0,0:23:30.08,0:23:32.52,Default,,0000,0000,0000,,covid
Dialogue: 0,0:23:32.52,0:23:36.20,Default,,0000,0000,0000,,and the ambulance team were fantastic
Dialogue: 0,0:23:36.20,0:23:39.04,Default,,0000,0000,0000,,cuz they were aware of my challenges
Dialogue: 0,0:23:39.04,0:23:43.60,Default,,0000,0000,0000,,they thought I had a triple A um but it
Dialogue: 0,0:23:43.60,0:23:46.24,Default,,0000,0000,0000,,actually turned out to be kidney stones
Dialogue: 0,0:23:46.24,0:23:49.12,Default,,0000,0000,0000,,but when they took me into the hospital
Dialogue: 0,0:23:49.12,0:23:51.48,Default,,0000,0000,0000,,rather than just sitting
Dialogue: 0,0:23:51.48,0:23:55.12,Default,,0000,0000,0000,,there in the general area they
Dialogue: 0,0:23:55.12,0:23:58.00,Default,,0000,0000,0000,,accelerated my Passage through to being
Dialogue: 0,0:23:58.00,0:24:01.16,Default,,0000,0000,0000,,on a a bed in one of the cubicles
Dialogue: 0,0:24:01.16,0:24:02.88,Default,,0000,0000,0000,,because they knew that with my
Dialogue: 0,0:24:02.88,0:24:07.04,Default,,0000,0000,0000,,behavioral variant of of of of of the
Dialogue: 0,0:24:07.04,0:24:09.88,Default,,0000,0000,0000,,dementia of the the FTD the frontal
Dialogue: 0,0:24:09.88,0:24:13.52,Default,,0000,0000,0000,,temporal dementia that my filters had
Dialogue: 0,0:24:13.52,0:24:16.92,Default,,0000,0000,0000,,disappeared I would say things as I felt
Dialogue: 0,0:24:16.92,0:24:20.84,Default,,0000,0000,0000,,about them I would swear which I
Dialogue: 0,0:24:20.84,0:24:23.56,Default,,0000,0000,0000,,wouldn't have done in the past but
Dialogue: 0,0:24:23.56,0:24:26.32,Default,,0000,0000,0000,,frustration the feeling of not being
Dialogue: 0,0:24:26.32,0:24:29.48,Default,,0000,0000,0000,,able to express yourself as as I once
Dialogue: 0,0:24:29.48,0:24:33.08,Default,,0000,0000,0000,,did these things lead to just filterless
Dialogue: 0,0:24:33.08,0:24:35.80,Default,,0000,0000,0000,,behaviors and it's not that you're being
Dialogue: 0,0:24:35.80,0:24:39.08,Default,,0000,0000,0000,,unkind or nasty to the staff it's just
Dialogue: 0,0:24:39.08,0:24:41.88,Default,,0000,0000,0000,,how things come across so it's important
Dialogue: 0,0:24:41.88,0:24:44.48,Default,,0000,0000,0000,,that the staff in that environment build
Dialogue: 0,0:24:44.48,0:24:48.24,Default,,0000,0000,0000,,a rapport with the patient build the
Dialogue: 0,0:24:48.24,0:24:51.36,Default,,0000,0000,0000,,trust and the confidence where they can
Dialogue: 0,0:24:51.36,0:24:53.60,Default,,0000,0000,0000,,exchange freely and
Dialogue: 0,0:24:53.60,0:24:57.32,Default,,0000,0000,0000,,happily and the second time I um
Dialogue: 0,0:24:57.32,0:25:00.36,Default,,0000,0000,0000,,developed culat my eye and I went to the
Dialogue: 0,0:25:00.36,0:25:01.96,Default,,0000,0000,0000,,ation first of all it was late on in the
Dialogue: 0,0:25:01.96,0:25:05.12,Default,,0000,0000,0000,,evening and uh he he rang the casualty
Dialogue: 0,0:25:05.12,0:25:07.92,Default,,0000,0000,0000,,to say expect me so they were expecting
Dialogue: 0,0:25:07.92,0:25:09.28,Default,,0000,0000,0000,,it and again they knew at that time I
Dialogue: 0,0:25:09.28,0:25:11.92,Default,,0000,0000,0000,,was living with the Mana so the uh
Dialogue: 0,0:25:11.92,0:25:14.36,Default,,0000,0000,0000,,consultant actually saw me and the the
Dialogue: 0,0:25:14.36,0:25:16.36,Default,,0000,0000,0000,,emergency department was very busy so
Dialogue: 0,0:25:16.36,0:25:18.00,Default,,0000,0000,0000,,she actually took me to a very quiet
Dialogue: 0,0:25:18.00,0:25:20.44,Default,,0000,0000,0000,,place away from the the emergency
Dialogue: 0,0:25:20.44,0:25:23.40,Default,,0000,0000,0000,,department and they did all all the had
Dialogue: 0,0:25:23.40,0:25:25.00,Default,,0000,0000,0000,,to do at that time
Dialogue: 0,0:25:25.00,0:25:27.56,Default,,0000,0000,0000,,and her care and even the nursing care
Dialogue: 0,0:25:27.56,0:25:30.72,Default,,0000,0000,0000,,was was was was first class at that time
Dialogue: 0,0:25:30.72,0:25:33.44,Default,,0000,0000,0000,,with really noise and and a lot of
Dialogue: 0,0:25:33.44,0:25:36.00,Default,,0000,0000,0000,,people yeah I find people's faces just
Dialogue: 0,0:25:36.00,0:25:39.12,Default,,0000,0000,0000,,blur and the noise just it really
Dialogue: 0,0:25:39.12,0:25:41.32,Default,,0000,0000,0000,,scrambles my brain I can't think or
Dialogue: 0,0:25:41.32,0:25:43.52,Default,,0000,0000,0000,,focus on anything with with noise a
Dialogue: 0,0:25:43.52,0:25:46.24,Default,,0000,0000,0000,,quiet place would be ideal yeah
Dialogue: 0,0:25:46.24,0:25:50.92,Default,,0000,0000,0000,,yeah assume we have capacity don't make
Dialogue: 0,0:25:50.92,0:25:54.24,Default,,0000,0000,0000,,assumptions about our level of capacity
Dialogue: 0,0:25:54.24,0:25:57.80,Default,,0000,0000,0000,,or ability to engage in our care
Dialogue: 0,0:25:57.80,0:26:00.16,Default,,0000,0000,0000,,planning and decision
Dialogue: 0,0:26:00.16,0:26:03.56,Default,,0000,0000,0000,,making I may not have capacity to make
Dialogue: 0,0:26:03.56,0:26:06.64,Default,,0000,0000,0000,,every decision but there will be some
Dialogue: 0,0:26:06.64,0:26:11.96,Default,,0000,0000,0000,,decisions I can still make and want to
Dialogue: 0,0:26:11.96,0:26:16.40,Default,,0000,0000,0000,,make don't speak to our family members
Dialogue: 0,0:26:16.40,0:26:21.20,Default,,0000,0000,0000,,and ignore us speak directly to us first
Dialogue: 0,0:26:21.20,0:26:24.40,Default,,0000,0000,0000,,and allow us to defer to our support
Dialogue: 0,0:26:24.40,0:26:28.76,Default,,0000,0000,0000,,person if we need to
Dialogue: 0,0:26:28.76,0:26:31.88,Default,,0000,0000,0000,,ask me what you
Dialogue: 0,0:26:31.88,0:26:36.64,Default,,0000,0000,0000,,need what sorry I would want them to ask
Dialogue: 0,0:26:36.64,0:26:38.52,Default,,0000,0000,0000,,me what I needed or wanted not to
Dialogue: 0,0:26:38.52,0:26:40.44,Default,,0000,0000,0000,,presume they know because they might
Dialogue: 0,0:26:40.44,0:26:43.48,Default,,0000,0000,0000,,have had somebody in earlier that day or
Dialogue: 0,0:26:43.48,0:26:45.40,Default,,0000,0000,0000,,the day before or the week before with
Dialogue: 0,0:26:45.40,0:26:47.08,Default,,0000,0000,0000,,the dementia diagnosis he needs
Dialogue: 0,0:26:47.08,0:26:49.68,Default,,0000,0000,0000,,something different to what I would need
Dialogue: 0,0:26:49.68,0:26:52.00,Default,,0000,0000,0000,,you know so I would always say you
Dialogue: 0,0:26:52.00,0:26:55.36,Default,,0000,0000,0000,,know treat that person as an individual
Dialogue: 0,0:26:55.36,0:26:57.84,Default,,0000,0000,0000,,and find out what you can do that will
Dialogue: 0,0:26:57.84,0:27:01.28,Default,,0000,0000,0000,,make them them more comfortable feel
Dialogue: 0,0:27:01.28,0:27:05.20,Default,,0000,0000,0000,,safer and and in the turn that will ease
Dialogue: 0,0:27:05.20,0:27:07.64,Default,,0000,0000,0000,,your workload because if the person with
Dialogue: 0,0:27:07.64,0:27:10.12,Default,,0000,0000,0000,,the dementia diagnosis feels relaxed and
Dialogue: 0,0:27:10.12,0:27:14.64,Default,,0000,0000,0000,,feels at ease they're less likely to be
Dialogue: 0,0:27:14.64,0:27:18.52,Default,,0000,0000,0000,,given hustle or be kicking off about
Dialogue: 0,0:27:18.52,0:27:21.32,Default,,0000,0000,0000,,something I'm a sitting in the outside
Dialogue: 0,0:27:21.32,0:27:24.20,Default,,0000,0000,0000,,wetting room when she asked me could it
Dialogue: 0,0:27:24.20,0:27:26.08,Default,,0000,0000,0000,,come into the room and I SP to you if
Dialogue: 0,0:27:26.08,0:27:28.00,Default,,0000,0000,0000,,you want your son to come in you can
Dialogue: 0,0:27:28.00,0:27:29.56,Default,,0000,0000,0000,,come and I says no I'll just going
Dialogue: 0,0:27:29.56,0:27:32.12,Default,,0000,0000,0000,,myself and when I went into the room she
Dialogue: 0,0:27:32.12,0:27:34.32,Default,,0000,0000,0000,,was going shook my hand and says to me
Dialogue: 0,0:27:34.32,0:27:36.76,Default,,0000,0000,0000,,Martin I'm sorry to tell you I'm not
Dialogue: 0,0:27:36.76,0:27:38.76,Default,,0000,0000,0000,,sure the exact words but you have
Dialogue: 0,0:27:38.76,0:27:40.04,Default,,0000,0000,0000,,Alzheimer's
Dialogue: 0,0:27:40.04,0:27:42.72,Default,,0000,0000,0000,,dementia well you're you're taken back
Dialogue: 0,0:27:42.72,0:27:45.48,Default,,0000,0000,0000,,you're just shock she says you want me
Dialogue: 0,0:27:45.48,0:27:49.12,Default,,0000,0000,0000,,to get your son bring him in and I I
Dialogue: 0,0:27:49.12,0:27:52.00,Default,,0000,0000,0000,,says no not definitely not to my son I
Dialogue: 0,0:27:52.00,0:27:53.84,Default,,0000,0000,0000,,get my sons together when to go home and
Dialogue: 0,0:27:53.84,0:27:55.56,Default,,0000,0000,0000,,I'll tell them when to go home I got
Dialogue: 0,0:27:55.56,0:27:57.68,Default,,0000,0000,0000,,them settled down and things I says look
Dialogue: 0,0:27:57.68,0:28:00.24,Default,,0000,0000,0000,,I feel gr I still feel the same thing
Dialogue: 0,0:28:00.24,0:28:01.96,Default,,0000,0000,0000,,I'm still your daddy I'm still the thing
Dialogue: 0,0:28:01.96,0:28:04.72,Default,,0000,0000,0000,,and I'm still get carrying on and two of
Dialogue: 0,0:28:04.72,0:28:06.36,Default,,0000,0000,0000,,my sons are two
Dialogue: 0,0:28:06.36,0:28:10.08,Default,,0000,0000,0000,,M Twins and there there we go oh God not
Dialogue: 0,0:28:10.08,0:28:11.80,Default,,0000,0000,0000,,be able to tell him anything now not
Dialogue: 0,0:28:11.80,0:28:14.28,Default,,0000,0000,0000,,keep a secret he can't keep anything but
Dialogue: 0,0:28:14.28,0:28:16.92,Default,,0000,0000,0000,,it was it was good the experience was
Dialogue: 0,0:28:16.92,0:28:21.00,Default,,0000,0000,0000,,good be aware of our details don't make
Dialogue: 0,0:28:21.00,0:28:25.16,Default,,0000,0000,0000,,us repeat our story multiple times it
Dialogue: 0,0:28:25.16,0:28:29.08,Default,,0000,0000,0000,,makes us feel like we are being tested
Dialogue: 0,0:28:29.08,0:28:32.64,Default,,0000,0000,0000,,Ed read your colleagues assessments
Dialogue: 0,0:28:32.64,0:28:36.00,Default,,0000,0000,0000,,repeating information is
Dialogue: 0,0:28:36.00,0:28:40.08,Default,,0000,0000,0000,,exhausting for us yeah again I think
Dialogue: 0,0:28:40.08,0:28:41.64,Default,,0000,0000,0000,,that's it you know the nurse comes in
Dialogue: 0,0:28:41.64,0:28:43.36,Default,,0000,0000,0000,,you see the nurse and Tre eyes you tell
Dialogue: 0,0:28:43.36,0:28:46.12,Default,,0000,0000,0000,,them the story you then see whoever you
Dialogue: 0,0:28:46.12,0:28:48.60,Default,,0000,0000,0000,,move to into the cubicles or into the
Dialogue: 0,0:28:48.60,0:28:51.08,Default,,0000,0000,0000,,back bit of the any you tell them your
Dialogue: 0,0:28:51.08,0:28:53.68,Default,,0000,0000,0000,,story the doctor then comes in or a
Dialogue: 0,0:28:53.68,0:28:56.48,Default,,0000,0000,0000,,doctor comes in and you tell them it but
Dialogue: 0,0:28:56.48,0:28:58.52,Default,,0000,0000,0000,,there may be not the particular doctor
Dialogue: 0,0:28:58.52,0:29:00.04,Default,,0000,0000,0000,,you need to see if it's something
Dialogue: 0,0:29:00.04,0:29:01.84,Default,,0000,0000,0000,,specific you're there for you know if it
Dialogue: 0,0:29:01.84,0:29:04.60,Default,,0000,0000,0000,,was for example something to do with
Dialogue: 0,0:29:04.60,0:29:06.60,Default,,0000,0000,0000,,your heart you know you would get a
Dialogue: 0,0:29:06.60,0:29:08.40,Default,,0000,0000,0000,,general doctor come in talk oh you need
Dialogue: 0,0:29:08.40,0:29:10.00,Default,,0000,0000,0000,,to you know we need to get something
Dialogue: 0,0:29:10.00,0:29:12.16,Default,,0000,0000,0000,,done from Cardiology or whatever they
Dialogue: 0,0:29:12.16,0:29:13.92,Default,,0000,0000,0000,,can die and you have to repeat the whole
Dialogue: 0,0:29:13.92,0:29:17.20,Default,,0000,0000,0000,,thing again uh and that can become quite
Dialogue: 0,0:29:17.20,0:29:18.88,Default,,0000,0000,0000,,frustrating and you sort of think you
Dialogue: 0,0:29:18.88,0:29:21.28,Default,,0000,0000,0000,,know can you not read you know can you
Dialogue: 0,0:29:21.28,0:29:23.00,Default,,0000,0000,0000,,not actually look at the notes that have
Dialogue: 0,0:29:23.00,0:29:26.56,Default,,0000,0000,0000,,been taken um 10 times beforehand uh and
Dialogue: 0,0:29:26.56,0:29:28.12,Default,,0000,0000,0000,,you s of are they're trying to trick you
Dialogue: 0,0:29:28.12,0:29:29.88,Default,,0000,0000,0000,,right here you know trying to get you to
Dialogue: 0,0:29:29.88,0:29:32.12,Default,,0000,0000,0000,,say something different to what you had
Dialogue: 0,0:29:32.12,0:29:35.32,Default,,0000,0000,0000,,said before I think it is I think it's a
Dialogue: 0,0:29:35.32,0:29:38.96,Default,,0000,0000,0000,,challenge you know because as I say by
Dialogue: 0,0:29:38.96,0:29:40.44,Default,,0000,0000,0000,,you're that stage you're already in a
Dialogue: 0,0:29:40.44,0:29:43.60,Default,,0000,0000,0000,,real state of confusion and panic
Dialogue: 0,0:29:43.60,0:29:47.88,Default,,0000,0000,0000,,and um a bit more unsettled you know so
Dialogue: 0,0:29:47.88,0:29:50.56,Default,,0000,0000,0000,,to be asked the same story over again
Dialogue: 0,0:29:50.56,0:29:52.40,Default,,0000,0000,0000,,can become very frustrating and I think
Dialogue: 0,0:29:52.40,0:29:54.48,Default,,0000,0000,0000,,at times in I think you can become a bit
Dialogue: 0,0:29:54.48,0:29:56.32,Default,,0000,0000,0000,,sharper than maybe that what you would
Dialogue: 0,0:29:56.32,0:29:59.60,Default,,0000,0000,0000,,normally be but it's because you sort of
Dialogue: 0,0:29:59.60,0:30:01.12,Default,,0000,0000,0000,,you're fed up with the length of time
Dialogue: 0,0:30:01.12,0:30:02.72,Default,,0000,0000,0000,,you sort of have sitting there probably
Dialogue: 0,0:30:02.72,0:30:04.08,Default,,0000,0000,0000,,waiting anyway and you haven't seen
Dialogue: 0,0:30:04.08,0:30:05.64,Default,,0000,0000,0000,,anybody and then the next person come
Dialogue: 0,0:30:05.64,0:30:07.24,Default,,0000,0000,0000,,say ask the exactly the same question
Dialogue: 0,0:30:07.24,0:30:10.20,Default,,0000,0000,0000,,again you s think like this has moved on
Dialogue: 0,0:30:10.20,0:30:12.40,Default,,0000,0000,0000,,nowhere you know you
Dialogue: 0,0:30:12.40,0:30:14.44,Default,,0000,0000,0000,,haven't you know you're asking me what
Dialogue: 0,0:30:14.44,0:30:16.88,Default,,0000,0000,0000,,the person asked me two hours ago but
Dialogue: 0,0:30:16.88,0:30:19.16,Default,,0000,0000,0000,,you're doing nothing different but yes I
Dialogue: 0,0:30:19.16,0:30:21.36,Default,,0000,0000,0000,,think it is a challenge you know with I
Dialogue: 0,0:30:21.36,0:30:23.44,Default,,0000,0000,0000,,think it's a challenge for anybody but I
Dialogue: 0,0:30:23.44,0:30:24.76,Default,,0000,0000,0000,,think for somebody with a dementia
Dialogue: 0,0:30:24.76,0:30:26.72,Default,,0000,0000,0000,,diagnosis yesterday is more of a
Dialogue: 0,0:30:26.72,0:30:29.52,Default,,0000,0000,0000,,challenge you use Clear
Dialogue: 0,0:30:29.52,0:30:33.80,Default,,0000,0000,0000,,language if you are going to perform an
Dialogue: 0,0:30:33.80,0:30:36.40,Default,,0000,0000,0000,,intervention talk to us
Dialogue: 0,0:30:36.40,0:30:40.44,Default,,0000,0000,0000,,beforehand and explain each step in
Dialogue: 0,0:30:40.44,0:30:44.56,Default,,0000,0000,0000,,clear words or with gestures if our
Dialogue: 0,0:30:44.56,0:30:46.72,Default,,0000,0000,0000,,understanding is very
Dialogue: 0,0:30:46.72,0:30:48.88,Default,,0000,0000,0000,,limited give us
Dialogue: 0,0:30:48.88,0:30:52.80,Default,,0000,0000,0000,,time explaining the procedure will help
Dialogue: 0,0:30:52.80,0:30:54.96,Default,,0000,0000,0000,,us to
Dialogue: 0,0:30:54.96,0:30:58.32,Default,,0000,0000,0000,,participate if I need reassurance
Dialogue: 0,0:30:58.32,0:31:01.60,Default,,0000,0000,0000,,reassure me I'm not saying you have to
Dialogue: 0,0:31:01.60,0:31:04.60,Default,,0000,0000,0000,,have dementia to understand it what I'm
Dialogue: 0,0:31:04.60,0:31:08.68,Default,,0000,0000,0000,,saying is what I said to students is
Dialogue: 0,0:31:08.68,0:31:12.32,Default,,0000,0000,0000,,take it easy at the beginning don't
Dialogue: 0,0:31:12.32,0:31:16.20,Default,,0000,0000,0000,,bombard them with a rapid release of
Dialogue: 0,0:31:16.20,0:31:20.48,Default,,0000,0000,0000,,questions and don't L link questions
Dialogue: 0,0:31:20.48,0:31:23.48,Default,,0000,0000,0000,,together make the subject if it is
Dialogue: 0,0:31:23.48,0:31:25.76,Default,,0000,0000,0000,,driving something like
Dialogue: 0,0:31:25.76,0:31:29.12,Default,,0000,0000,0000,,that say are you driving your
Dialogue: 0,0:31:29.12,0:31:32.64,Default,,0000,0000,0000,,car wait for the answer and then if they
Dialogue: 0,0:31:32.64,0:31:36.20,Default,,0000,0000,0000,,say no I'm not then you can discuss it
Dialogue: 0,0:31:36.20,0:31:39.44,Default,,0000,0000,0000,,with them but I think if you go into
Dialogue: 0,0:31:39.44,0:31:43.64,Default,,0000,0000,0000,,something you know it only makes them I
Dialogue: 0,0:31:43.64,0:31:46.84,Default,,0000,0000,0000,,can't interrupt this but I don't agree
Dialogue: 0,0:31:46.84,0:31:50.36,Default,,0000,0000,0000,,with her so very gently say l thank you
Dialogue: 0,0:31:50.36,0:31:54.72,Default,,0000,0000,0000,,very much for coming to talk to me and I
Dialogue: 0,0:31:54.72,0:31:58.56,Default,,0000,0000,0000,,know very little uh about how you're
Dialogue: 0,0:31:58.56,0:32:02.32,Default,,0000,0000,0000,,feeling at the moment so can you tell me
Dialogue: 0,0:32:02.32,0:32:06.08,Default,,0000,0000,0000,,how you felt when you got your diagnosis
Dialogue: 0,0:32:06.08,0:32:09.76,Default,,0000,0000,0000,,what went before did you think you had
Dialogue: 0,0:32:09.76,0:32:12.64,Default,,0000,0000,0000,,dementia and how you felt when you
Dialogue: 0,0:32:12.64,0:32:17.32,Default,,0000,0000,0000,,actually were told you have
Dialogue: 0,0:32:17.32,0:32:20.44,Default,,0000,0000,0000,,dementia makes a
Dialogue: 0,0:32:20.44,0:32:25.00,Default,,0000,0000,0000,,difference Health and Social Care
Dialogue: 0,0:32:25.00,0:32:30.32,Default,,0000,0000,0000,,staff working with any form of
Dialogue: 0,0:32:30.52,0:32:33.52,Default,,0000,0000,0000,,dementia
Dialogue: 0,0:32:33.96,0:32:36.72,Default,,0000,0000,0000,,need to
Dialogue: 0,0:32:36.72,0:32:39.40,Default,,0000,0000,0000,,communicate
Dialogue: 0,0:32:39.40,0:32:42.76,Default,,0000,0000,0000,,clearly with any
Dialogue: 0,0:32:42.76,0:32:47.16,Default,,0000,0000,0000,,individual with any form of
Dialogue: 0,0:32:47.16,0:32:49.64,Default,,0000,0000,0000,,dementia they
Dialogue: 0,0:32:49.64,0:32:55.08,Default,,0000,0000,0000,,need to give clear
Dialogue: 0,0:32:56.00,0:32:58.92,Default,,0000,0000,0000,,instructions their need
Dialogue: 0,0:32:58.92,0:33:00.16,Default,,0000,0000,0000,,to
Dialogue: 0,0:33:00.16,0:33:02.08,Default,,0000,0000,0000,,ensure that
Dialogue: 0,0:33:02.08,0:33:05.76,Default,,0000,0000,0000,,people with whom they are
Dialogue: 0,0:33:05.76,0:33:07.96,Default,,0000,0000,0000,,working
Dialogue: 0,0:33:07.96,0:33:12.36,Default,,0000,0000,0000,,have a clear
Dialogue: 0,0:33:12.36,0:33:14.64,Default,,0000,0000,0000,,understanding of
Dialogue: 0,0:33:14.64,0:33:18.36,Default,,0000,0000,0000,,what is being
Dialogue: 0,0:33:19.60,0:33:25.04,Default,,0000,0000,0000,,discussed and that they
Dialogue: 0,0:33:25.04,0:33:29.16,Default,,0000,0000,0000,,have made clear
Dialogue: 0,0:33:29.16,0:33:31.28,Default,,0000,0000,0000,,here
Dialogue: 0,0:33:31.28,0:33:36.52,Default,,0000,0000,0000,,exactly what is being
Dialogue: 0,0:33:36.80,0:33:41.24,Default,,0000,0000,0000,,shared what is being
Dialogue: 0,0:33:41.96,0:33:46.52,Default,,0000,0000,0000,,said maintain our confidentiality and
Dialogue: 0,0:33:46.52,0:33:51.12,Default,,0000,0000,0000,,dignity share information with us
Dialogue: 0,0:33:51.12,0:33:53.92,Default,,0000,0000,0000,,sensitively and take into
Dialogue: 0,0:33:53.92,0:33:58.64,Default,,0000,0000,0000,,consideration our confidentiality
Dialogue: 0,0:33:58.72,0:34:02.08,Default,,0000,0000,0000,,privacy and dignity are
Dialogue: 0,0:34:02.08,0:34:05.56,Default,,0000,0000,0000,,important we may not want other patients
Dialogue: 0,0:34:05.56,0:34:08.92,Default,,0000,0000,0000,,visitors to know we have
Dialogue: 0,0:34:08.92,0:34:13.84,Default,,0000,0000,0000,,dementia yeah within the hold of
Dialogue: 0,0:34:13.96,0:34:17.64,Default,,0000,0000,0000,,dementia I find myself falling apart I
Dialogue: 0,0:34:17.64,0:34:19.88,Default,,0000,0000,0000,,find
Dialogue: 0,0:34:19.88,0:34:22.88,Default,,0000,0000,0000,,myself
Dialogue: 0,0:34:23.96,0:34:29.56,Default,,0000,0000,0000,,unable to be the person I was
Dialogue: 0,0:34:29.56,0:34:31.92,Default,,0000,0000,0000,,to
Dialogue: 0,0:34:33.08,0:34:36.00,Default,,0000,0000,0000,,communicate the
Dialogue: 0,0:34:36.00,0:34:40.40,Default,,0000,0000,0000,,way I should be able to
Dialogue: 0,0:34:43.24,0:34:45.92,Default,,0000,0000,0000,,communicate I
Dialogue: 0,0:34:45.92,0:34:49.16,Default,,0000,0000,0000,,lost my
Dialogue: 0,0:34:49.64,0:34:52.72,Default,,0000,0000,0000,,skills I lost a lot
Dialogue: 0,0:34:52.72,0:34:56.100,Default,,0000,0000,0000,,of what was
Dialogue: 0,0:34:59.96,0:35:02.88,Default,,0000,0000,0000,,what being
Dialogue: 0,0:35:03.12,0:35:05.28,Default,,0000,0000,0000,,me as a
Dialogue: 0,0:35:05.28,0:35:08.28,Default,,0000,0000,0000,,person
Dialogue: 0,0:35:14.20,0:35:17.32,Default,,0000,0000,0000,,was I
Dialogue: 0,0:35:17.32,0:35:20.72,Default,,0000,0000,0000,,was I was
Dialogue: 0,0:35:22.76,0:35:27.16,Default,,0000,0000,0000,,lost well for for myself or anybody of
Dialogue: 0,0:35:27.16,0:35:30.12,Default,,0000,0000,0000,,the just P his like hard if I come in as
Dialogue: 0,0:35:30.12,0:35:30.92,Default,,0000,0000,0000,,a
Dialogue: 0,0:35:30.92,0:35:32.96,Default,,0000,0000,0000,,patient they don't know why I've got the
Dialogue: 0,0:35:32.96,0:35:36.68,Default,,0000,0000,0000,,Mana unless I tell them I've got the
Dialogue: 0,0:35:36.96,0:35:40.48,Default,,0000,0000,0000,,Mana don't don't have me
Dialogue: 0,0:35:40.48,0:35:43.00,Default,,0000,0000,0000,,to have to say that I've got the Manion
Dialogue: 0,0:35:43.00,0:35:46.20,Default,,0000,0000,0000,,just treat me where courtesy of of think
Dialogue: 0,0:35:46.20,0:35:49.32,Default,,0000,0000,0000,,most most sitting rooms in the hospital
Dialogue: 0,0:35:49.32,0:35:51.92,Default,,0000,0000,0000,,you know are like they're Havoc if it
Dialogue: 0,0:35:51.92,0:35:54.80,Default,,0000,0000,0000,,comes to a thing many of places been in
Dialogue: 0,0:35:54.80,0:35:56.64,Default,,0000,0000,0000,,I've turned around and says look I'm in
Dialogue: 0,0:35:56.64,0:35:58.68,Default,,0000,0000,0000,,the early stages of the Mana could you
Dialogue: 0,0:35:58.68,0:36:00.48,Default,,0000,0000,0000,,give me a we bit of time
Dialogue: 0,0:36:00.48,0:36:04.68,Default,,0000,0000,0000,,here and just things get mixed up for I
Dialogue: 0,0:36:04.68,0:36:07.08,Default,,0000,0000,0000,,think could just if my name would come
Dialogue: 0,0:36:07.08,0:36:08.72,Default,,0000,0000,0000,,up in that
Dialogue: 0,0:36:08.72,0:36:12.60,Default,,0000,0000,0000,,computer without me having to say and
Dialogue: 0,0:36:12.60,0:36:14.48,Default,,0000,0000,0000,,200 people or 100 people behind me
Dialogue: 0,0:36:14.48,0:36:19.72,Default,,0000,0000,0000,,listening he's got the Mana list he's
Dialogue: 0,0:36:19.72,0:36:22.24,Default,,0000,0000,0000,,different it's different just just come
Dialogue: 0,0:36:22.24,0:36:24.24,Default,,0000,0000,0000,,up on the computer they made away they
Dialogue: 0,0:36:24.24,0:36:25.84,Default,,0000,0000,0000,,know they I've got the Mana where we're
Dialogue: 0,0:36:25.84,0:36:27.24,Default,,0000,0000,0000,,just talking about a blue heart or
Dialogue: 0,0:36:27.24,0:36:30.56,Default,,0000,0000,0000,,purple or something like that and see
Dialogue: 0,0:36:30.56,0:36:32.00,Default,,0000,0000,0000,,what were the attitude changes that
Dialogue: 0,0:36:32.00,0:36:35.72,Default,,0000,0000,0000,,those change have used are have used our
Dialogue: 0,0:36:35.72,0:36:38.32,Default,,0000,0000,0000,,we th card or we IDE I've used to be
Dialogue: 0,0:36:38.32,0:36:42.52,Default,,0000,0000,0000,,smart card not the smart card uh JN card
Dialogue: 0,0:36:42.52,0:36:45.32,Default,,0000,0000,0000,,I've used the JN card the difference
Dialogue: 0,0:36:45.32,0:36:47.76,Default,,0000,0000,0000,,those things make and change people's
Dialogue: 0,0:36:47.76,0:36:50.92,Default,,0000,0000,0000,,attitude it's wonderful wonderful
Dialogue: 0,0:36:50.92,0:36:53.32,Default,,0000,0000,0000,,provide a support
Dialogue: 0,0:36:53.32,0:36:56.64,Default,,0000,0000,0000,,person having a designated support
Dialogue: 0,0:36:56.64,0:37:01.16,Default,,0000,0000,0000,,person can help to keep us calm and
Dialogue: 0,0:37:01.16,0:37:04.96,Default,,0000,0000,0000,,reassured one key person who supports us
Dialogue: 0,0:37:04.96,0:37:09.08,Default,,0000,0000,0000,,through our stay makes a huge difference
Dialogue: 0,0:37:09.08,0:37:12.36,Default,,0000,0000,0000,,to our Hospital experience I had to go
Dialogue: 0,0:37:12.36,0:37:14.88,Default,,0000,0000,0000,,and get an operation to take out a tumor
Dialogue: 0,0:37:14.88,0:37:16.92,Default,,0000,0000,0000,,on my
Dialogue: 0,0:37:16.92,0:37:19.68,Default,,0000,0000,0000,,leg and uh it was quite difficult
Dialogue: 0,0:37:19.68,0:37:21.60,Default,,0000,0000,0000,,because the specialist even though she
Dialogue: 0,0:37:21.60,0:37:26.16,Default,,0000,0000,0000,,was uh taking the the tumor out she was
Dialogue: 0,0:37:26.16,0:37:29.00,Default,,0000,0000,0000,,quite um a lot of words that she was
Dialogue: 0,0:37:29.00,0:37:31.08,Default,,0000,0000,0000,,using was very difficult for me to
Dialogue: 0,0:37:31.08,0:37:33.00,Default,,0000,0000,0000,,understand because they were quite
Dialogue: 0,0:37:33.00,0:37:36.92,Default,,0000,0000,0000,,Technical and she then got a a a young
Dialogue: 0,0:37:36.92,0:37:40.92,Default,,0000,0000,0000,,nurse to come in and help me because she
Dialogue: 0,0:37:40.92,0:37:44.08,Default,,0000,0000,0000,,also knocked me out for six hours she
Dialogue: 0,0:37:44.08,0:37:47.04,Default,,0000,0000,0000,,put me asleep for 6 hours where she was
Dialogue: 0,0:37:47.04,0:37:49.64,Default,,0000,0000,0000,,on a lot of things she was help the the
Dialogue: 0,0:37:49.64,0:37:52.68,Default,,0000,0000,0000,,the other lady was helping me she met me
Dialogue: 0,0:37:52.68,0:37:56.56,Default,,0000,0000,0000,,I was there for about um a full full day
Dialogue: 0,0:37:56.56,0:37:57.96,Default,,0000,0000,0000,,overnight
Dialogue: 0,0:37:57.96,0:38:01.08,Default,,0000,0000,0000,,and that young lady was a major help to
Dialogue: 0,0:38:01.08,0:38:03.56,Default,,0000,0000,0000,,me in the hospital because she helped me
Dialogue: 0,0:38:03.56,0:38:07.32,Default,,0000,0000,0000,,even write down my words she helped me
Dialogue: 0,0:38:07.32,0:38:11.60,Default,,0000,0000,0000,,even find places and she also said uh
Dialogue: 0,0:38:11.60,0:38:14.36,Default,,0000,0000,0000,,even tomorrow when you go home now that
Dialogue: 0,0:38:14.36,0:38:17.12,Default,,0000,0000,0000,,you've been operated this is what you do
Dialogue: 0,0:38:17.12,0:38:20.44,Default,,0000,0000,0000,,so even though the specialist operated
Dialogue: 0,0:38:20.44,0:38:24.04,Default,,0000,0000,0000,,me well that lady was a massive helper
Dialogue: 0,0:38:24.04,0:38:27.16,Default,,0000,0000,0000,,she made the difference and I I because
Dialogue: 0,0:38:27.16,0:38:29.48,Default,,0000,0000,0000,,I spoke to the specialist and you even
Dialogue: 0,0:38:29.48,0:38:32.32,Default,,0000,0000,0000,,use my card and said I know you're going
Dialogue: 0,0:38:32.32,0:38:35.80,Default,,0000,0000,0000,,to help me but I've got Alzheimer's and
Dialogue: 0,0:38:35.80,0:38:38.48,Default,,0000,0000,0000,,I need someone to talk to me that give
Dialogue: 0,0:38:38.48,0:38:41.32,Default,,0000,0000,0000,,me advice and um because some of the
Dialogue: 0,0:38:41.32,0:38:43.28,Default,,0000,0000,0000,,things you've said you're going to do I
Dialogue: 0,0:38:43.28,0:38:46.60,Default,,0000,0000,0000,,haven't really understood fully what's
Dialogue: 0,0:38:46.60,0:38:48.32,Default,,0000,0000,0000,,going to happen or even how I help
Dialogue: 0,0:38:48.32,0:38:51.24,Default,,0000,0000,0000,,myself so and when that other lady came
Dialogue: 0,0:38:51.24,0:38:53.68,Default,,0000,0000,0000,,in she was massively helpful to me
Dialogue: 0,0:38:53.68,0:38:55.28,Default,,0000,0000,0000,,possibly like other people with Dem
Dialogue: 0,0:38:55.28,0:38:57.64,Default,,0000,0000,0000,,Mantia I find that sometimes the
Dialogue: 0,0:38:57.64,0:38:59.76,Default,,0000,0000,0000,,difficult to understand if I haven't
Dialogue: 0,0:38:59.76,0:39:03.76,Default,,0000,0000,0000,,heard about things for a while so that
Dialogue: 0,0:39:03.76,0:39:07.44,Default,,0000,0000,0000,,other lady was a bit more explaining and
Dialogue: 0,0:39:07.44,0:39:11.24,Default,,0000,0000,0000,,also helped me make notes to write down
Dialogue: 0,0:39:11.24,0:39:13.28,Default,,0000,0000,0000,,a great understanding of what was going
Dialogue: 0,0:39:13.28,0:39:15.12,Default,,0000,0000,0000,,to happen to me and particularly how I
Dialogue: 0,0:39:15.12,0:39:17.20,Default,,0000,0000,0000,,dealt with myself the next few days when
Dialogue: 0,0:39:17.20,0:39:19.84,Default,,0000,0000,0000,,I got home having that interface between
Dialogue: 0,0:39:19.84,0:39:20.68,Default,,0000,0000,0000,,the
Dialogue: 0,0:39:20.68,0:39:24.88,Default,,0000,0000,0000,,consultant and also uh uh uh uh the
Dialogue: 0,0:39:24.88,0:39:29.64,Default,,0000,0000,0000,,patient with that specialist nurse was
Dialogue: 0,0:39:29.64,0:39:33.40,Default,,0000,0000,0000,,invaluable and that I think is something
Dialogue: 0,0:39:33.40,0:39:36.68,Default,,0000,0000,0000,,which can be really helpful to other
Dialogue: 0,0:39:36.68,0:39:39.84,Default,,0000,0000,0000,,people one thing that I would insist
Dialogue: 0,0:39:39.84,0:39:41.32,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:39:41.32,0:39:44.88,Default,,0000,0000,0000,,on would be
Dialogue: 0,0:39:44.88,0:39:48.72,Default,,0000,0000,0000,,that I
Dialogue: 0,0:39:49.04,0:39:52.24,Default,,0000,0000,0000,,had someone with
Dialogue: 0,0:39:52.24,0:39:56.68,Default,,0000,0000,0000,,me that I trust
Dialogue: 0,0:39:58.48,0:40:01.92,Default,,0000,0000,0000,,someone with me
Dialogue: 0,0:40:03.36,0:40:06.36,Default,,0000,0000,0000,,that
Dialogue: 0,0:40:06.56,0:40:09.20,Default,,0000,0000,0000,,could be
Dialogue: 0,0:40:09.20,0:40:12.20,Default,,0000,0000,0000,,there
Dialogue: 0,0:40:13.80,0:40:17.16,Default,,0000,0000,0000,,to like say I would either be taking my
Dialogue: 0,0:40:17.16,0:40:19.32,Default,,0000,0000,0000,,own
Dialogue: 0,0:40:19.32,0:40:23.84,Default,,0000,0000,0000,,notes that's another thing I'd lost my
Dialogue: 0,0:40:23.84,0:40:28.40,Default,,0000,0000,0000,,writing skills i' had lost I mean
Dialogue: 0,0:40:28.40,0:40:32.68,Default,,0000,0000,0000,,as well as losing my
Dialogue: 0,0:40:32.68,0:40:35.96,Default,,0000,0000,0000,,verbosity I had
Dialogue: 0,0:40:35.96,0:40:40.00,Default,,0000,0000,0000,,lost my ability to
Dialogue: 0,0:40:40.04,0:40:44.64,Default,,0000,0000,0000,,write and I have been practicing
Dialogue: 0,0:40:45.40,0:40:49.56,Default,,0000,0000,0000,,writing just to get myself back off to
Dialogue: 0,0:40:49.56,0:40:53.04,Default,,0000,0000,0000,,speed to be able
Dialogue: 0,0:40:53.04,0:40:58.16,Default,,0000,0000,0000,,to communicate effectively
Dialogue: 0,0:40:59.48,0:41:01.00,Default,,0000,0000,0000,,I've also been
Dialogue: 0,0:41:01.00,0:41:04.20,Default,,0000,0000,0000,,reading a
Dialogue: 0,0:41:05.96,0:41:10.08,Default,,0000,0000,0000,,lot to try
Dialogue: 0,0:41:10.16,0:41:15.88,Default,,0000,0000,0000,,and ensure that my communication
Dialogue: 0,0:41:15.96,0:41:19.32,Default,,0000,0000,0000,,is as it should
Dialogue: 0,0:41:19.32,0:41:24.92,Default,,0000,0000,0000,,be as I consider it should
Dialogue: 0,0:41:25.84,0:41:30.08,Default,,0000,0000,0000,,be cuz I'm a hard
Dialogue: 0,0:41:32.36,0:41:35.68,Default,,0000,0000,0000,,Taskmaster the following scene is based
Dialogue: 0,0:41:35.68,0:41:37.84,Default,,0000,0000,0000,,on our real life
Dialogue: 0,0:41:37.84,0:41:41.60,Default,,0000,0000,0000,,experiences of poor health care
Dialogue: 0,0:41:41.60,0:41:42.83,Default,,0000,0000,0000,,interactions
Dialogue: 0,0:41:42.83,0:42:01.66,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:42:02.76,0:42:04.80,Default,,0000,0000,0000,,without a clear
Dialogue: 0,0:42:04.80,0:42:08.12,Default,,0000,0000,0000,,introduction we may feel rushed or
Dialogue: 0,0:42:08.12,0:42:11.04,Default,,0000,0000,0000,,panicked unsure of what is
Dialogue: 0,0:42:11.04,0:42:13.80,Default,,0000,0000,0000,,happening which may unnecessarily
Dialogue: 0,0:42:13.80,0:42:15.64,Default,,0000,0000,0000,,increase our
Dialogue: 0,0:42:15.64,0:42:19.65,Default,,0000,0000,0000,,anxiety and generate unexpected
Dialogue: 0,0:42:19.65,0:42:20.84,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:42:20.84,0:42:24.56,Default,,0000,0000,0000,,reactions insufficient support with wayf
Dialogue: 0,0:42:24.56,0:42:27.76,Default,,0000,0000,0000,,finding could leave us disoriented ated
Dialogue: 0,0:42:27.76,0:42:28.92,Default,,0000,0000,0000,,and
Dialogue: 0,0:42:28.92,0:42:32.36,Default,,0000,0000,0000,,Confused ultimately reducing our powers
Dialogue: 0,0:42:32.36,0:42:33.44,Default,,0000,0000,0000,,of
Dialogue: 0,0:42:33.44,0:42:35.83,Default,,0000,0000,0000,,concentration for the following
Dialogue: 0,0:42:35.83,0:42:37.16,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:42:37.16,0:42:40.60,Default,,0000,0000,0000,,appointment disorganized and chaotic
Dialogue: 0,0:42:40.60,0:42:44.76,Default,,0000,0000,0000,,clinical space may be distracting or
Dialogue: 0,0:42:44.76,0:42:48.80,Default,,0000,0000,0000,,overwhelming for us reducing ability to
Dialogue: 0,0:42:48.80,0:42:51.84,Default,,0000,0000,0000,,focus and
Dialogue: 0,0:42:51.84,0:42:55.48,Default,,0000,0000,0000,,communicate not explaining procedures or
Dialogue: 0,0:42:55.48,0:42:58.36,Default,,0000,0000,0000,,interventions clearly in advance can
Dialogue: 0,0:42:58.36,0:43:00.92,Default,,0000,0000,0000,,cause us upset or
Dialogue: 0,0:43:00.92,0:43:05.88,Default,,0000,0000,0000,,distress especially as our dementia
Dialogue: 0,0:43:05.96,0:43:09.64,Default,,0000,0000,0000,,advances not explaining next steps in
Dialogue: 0,0:43:09.64,0:43:12.40,Default,,0000,0000,0000,,advance increases our
Dialogue: 0,0:43:12.40,0:43:15.88,Default,,0000,0000,0000,,anxiety and
Dialogue: 0,0:43:17.20,0:43:20.30,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:43:20.76,0:43:23.44,Default,,0000,0000,0000,,confusion uh Hazel and baby is that
Dialogue: 0,0:43:23.44,0:43:25.24,Default,,0000,0000,0000,,right yeah I'm
Dialogue: 0,0:43:25.24,0:43:27.96,Default,,0000,0000,0000,,Dr tonight
Dialogue: 0,0:43:27.96,0:43:30.72,Default,,0000,0000,0000,,without a clear and full
Dialogue: 0,0:43:30.72,0:43:33.76,Default,,0000,0000,0000,,introduction we may not realize the
Dialogue: 0,0:43:33.76,0:43:35.48,Default,,0000,0000,0000,,purpose of the
Dialogue: 0,0:43:35.48,0:43:38.44,Default,,0000,0000,0000,,appointment
Dialogue: 0,0:43:38.44,0:43:41.24,Default,,0000,0000,0000,,um no I'm not I'm not really seeing
Dialogue: 0,0:43:41.24,0:43:43.64,Default,,0000,0000,0000,,anything there there's no results back
Dialogue: 0,0:43:43.64,0:43:47.84,Default,,0000,0000,0000,,just yet poor positioning can hinder
Dialogue: 0,0:43:47.84,0:43:51.52,Default,,0000,0000,0000,,effective communication with
Dialogue: 0,0:43:51.52,0:43:54.52,Default,,0000,0000,0000,,us not to
Dialogue: 0,0:43:54.52,0:43:59.32,Default,,0000,0000,0000,,good we'll maybe asking as repetitive
Dialogue: 0,0:43:59.32,0:44:01.64,Default,,0000,0000,0000,,questions without
Dialogue: 0,0:44:01.64,0:44:05.56,Default,,0000,0000,0000,,context can make us feel like we are
Dialogue: 0,0:44:05.56,0:44:08.04,Default,,0000,0000,0000,,being
Dialogue: 0,0:44:08.32,0:44:12.24,Default,,0000,0000,0000,,tested speaking to a carer instead of
Dialogue: 0,0:44:12.24,0:44:16.72,Default,,0000,0000,0000,,directly to us shows a presumption about
Dialogue: 0,0:44:16.72,0:44:18.08,Default,,0000,0000,0000,,our
Dialogue: 0,0:44:18.08,0:44:21.64,Default,,0000,0000,0000,,capacity the following scene is based on
Dialogue: 0,0:44:21.64,0:44:25.60,Default,,0000,0000,0000,,our real life experiences of positive
Dialogue: 0,0:44:25.60,0:44:29.04,Default,,0000,0000,0000,,healthc care interaction
Dialogue: 0,0:44:30.37,0:44:33.24,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:44:33.24,0:44:36.48,Default,,0000,0000,0000,,thank you
Dialogue: 0,0:44:39.90,0:45:03.80,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:45:03.80,0:45:05.44,Default,,0000,0000,0000,,the consultant comes okay and I'll F
Dialogue: 0,0:45:05.44,0:45:09.68,Default,,0000,0000,0000,,this across the H yeah all
Dialogue: 0,0:45:12.04,0:45:15.36,Default,,0000,0000,0000,,right there we go like the wait the
Dialogue: 0,0:45:15.36,0:45:16.96,Default,,0000,0000,0000,,consultant will be right in through the
Dialogue: 0,0:45:16.96,0:45:21.08,Default,,0000,0000,0000,,door thank you
Dialogue: 0,0:45:28.04,0:45:30.40,Default,,0000,0000,0000,,how are you I'm Dr sville I'm one of the
Dialogue: 0,0:45:30.40,0:45:33.12,Default,,0000,0000,0000,,Consultants it's nice to meet you it's
Dialogue: 0,0:45:33.12,0:45:35.24,Default,,0000,0000,0000,,Davey is that right Dave yeah Davey I I
Dialogue: 0,0:45:35.24,0:45:37.44,Default,,0000,0000,0000,,haven't met you before um I understand
Dialogue: 0,0:45:37.44,0:45:39.04,Default,,0000,0000,0000,,that you're you're here to talk about
Dialogue: 0,0:45:39.04,0:45:40.64,Default,,0000,0000,0000,,some results that's right is that
Dialogue: 0,0:45:40.64,0:45:43.60,Default,,0000,0000,0000,,correct be okay yeah sure I I haven't
Dialogue: 0,0:45:43.60,0:45:46.16,Default,,0000,0000,0000,,been to doing too bad been keeping busy
Dialogue: 0,0:45:46.16,0:45:47.56,Default,,0000,0000,0000,,and very
Dialogue: 0,0:45:47.56,0:45:52.08,Default,,0000,0000,0000,,active so I do and uh yeah just keep
Dialogue: 0,0:45:52.08,0:45:54.36,Default,,0000,0000,0000,,keep busy okay okay how have you been
Dialogue: 0,0:45:54.36,0:45:57.12,Default,,0000,0000,0000,,sleeping recently sleep's been a bit on
Dialogue: 0,0:45:57.12,0:46:01.20,Default,,0000,0000,0000,,off um but uh I always get caught up
Dialogue: 0,0:46:01.20,0:46:03.16,Default,,0000,0000,0000,,sometimes away quite early right but uh
Dialogue: 0,0:46:03.16,0:46:05.76,Default,,0000,0000,0000,,I can get caught up the next night okay
Dialogue: 0,0:46:05.76,0:46:07.80,Default,,0000,0000,0000,,and what time would you go to bed at
Dialogue: 0,0:46:07.80,0:46:11.44,Default,,0000,0000,0000,,roughly normally try half time 11:00 um
Dialogue: 0,0:46:11.44,0:46:13.84,Default,,0000,0000,0000,,probably a bit overeen of anything right
Dialogue: 0,0:46:13.84,0:46:16.24,Default,,0000,0000,0000,,I started sweet stuff I Can't Get Enough
Dialogue: 0,0:46:16.24,0:46:19.20,Default,,0000,0000,0000,,at the whatever's uh going on you know
Dialogue: 0,0:46:19.20,0:46:21.96,Default,,0000,0000,0000,,right okay and then just about some of
Dialogue: 0,0:46:21.96,0:46:24.76,Default,,0000,0000,0000,,your medications um has anything changed
Dialogue: 0,0:46:24.76,0:46:27.44,Default,,0000,0000,0000,,recently at all no they've kept it
Dialogue: 0,0:46:27.44,0:46:30.28,Default,,0000,0000,0000,,they kept the medication as it is right
Dialogue: 0,0:46:30.28,0:46:32.00,Default,,0000,0000,0000,,we can maybe spend a bit more time
Dialogue: 0,0:46:32.00,0:46:34.24,Default,,0000,0000,0000,,looking at well really not not too bad
Dialogue: 0,0:46:34.24,0:46:36.60,Default,,0000,0000,0000,,just how how how do you see things
Dialogue: 0,0:46:36.60,0:46:40.20,Default,,0000,0000,0000,,progressing for for myself okay okay so
Dialogue: 0,0:46:40.20,0:46:42.68,Default,,0000,0000,0000,,if you've got that Rapport it makes a
Dialogue: 0,0:46:42.68,0:46:45.92,Default,,0000,0000,0000,,real difference and show appreciation
Dialogue: 0,0:46:45.92,0:46:49.76,Default,,0000,0000,0000,,cuz the staff do an amazing thing and in
Dialogue: 0,0:46:49.76,0:46:52.52,Default,,0000,0000,0000,,very difficult environment and I have to
Dialogue: 0,0:46:52.52,0:46:55.76,Default,,0000,0000,0000,,say thank you to the nursing staff and
Dialogue: 0,0:46:55.76,0:46:58.44,Default,,0000,0000,0000,,to the medics who do take such good care
Dialogue: 0,0:46:58.44,0:46:59.32,Default,,0000,0000,0000,,of
Dialogue: 0,0:46:59.32,0:47:02.40,Default,,0000,0000,0000,,us thank you for staying with us
Dialogue: 0,0:47:02.40,0:47:04.20,Default,,0000,0000,0000,,throughout this
Dialogue: 0,0:47:04.20,0:47:07.08,Default,,0000,0000,0000,,documentary we hope it has provided you
Dialogue: 0,0:47:07.08,0:47:10.12,Default,,0000,0000,0000,,with a deeper understanding of what it
Dialogue: 0,0:47:10.12,0:47:13.56,Default,,0000,0000,0000,,is like to live with dementia and has
Dialogue: 0,0:47:13.56,0:47:17.16,Default,,0000,0000,0000,,offered practical tips that you can now
Dialogue: 0,0:47:17.16,0:47:18.68,Default,,0000,0000,0000,,put into
Dialogue: 0,0:47:18.68,0:47:22.72,Default,,0000,0000,0000,,practice finally a big thank you from
Dialogue: 0,0:47:22.72,0:47:25.88,Default,,0000,0000,0000,,all the members at dementa ni for the
Dialogue: 0,0:47:25.88,0:47:27.56,Default,,0000,0000,0000,,work that you do
Dialogue: 0,0:47:27.56,0:47:30.88,Default,,0000,0000,0000,,that has a positive impact on the daily
Dialogue: 0,0:47:30.88,0:47:33.88,Default,,0000,0000,0000,,lives of real people like
Dialogue: 0,0:47:33.88,0:47:37.16,Default,,0000,0000,0000,,us matter have to assume we have
Dialogue: 0,0:47:37.16,0:47:40.48,Default,,0000,0000,0000,,capacity mhm is that the size of my
Dialogue: 0,0:47:40.48,0:47:44.36,Default,,0000,0000,0000,,bladder the size of my
Dialogue: 0,0:47:50.16,0:47:54.20,Default,,0000,0000,0000,,nose those words my feet went from
Dialogue: 0,0:47:54.20,0:47:58.84,Default,,0000,0000,0000,,beneath me could not believe what I
Dialogue: 0,0:47:59.18,0:48:00.80,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:48:00.80,0:48:03.36,Default,,0000,0000,0000,,I I
Dialogue: 0,0:48:03.36,0:48:06.72,Default,,0000,0000,0000,,saw I
Dialogue: 0,0:48:09.56,0:48:15.40,Default,,0000,0000,0000,,give it's a slippy R but I keep my feet
Dialogue: 0,0:48:15.40,0:48:19.36,Default,,0000,0000,0000,,bled I have the strength to hold the C
Dialogue: 0,0:48:19.36,0:48:21.56,Default,,0000,0000,0000,,I've been
Dialogue: 0,0:48:21.56,0:48:25.80,Default,,0000,0000,0000,,handed If I Stumble if my feet fall or
Dialogue: 0,0:48:25.80,0:48:27.68,Default,,0000,0000,0000,,if I need
Dialogue: 0,0:48:27.68,0:48:31.88,Default,,0000,0000,0000,,assistance I know the journey is long
Dialogue: 0,0:48:31.88,0:48:36.04,Default,,0000,0000,0000,,but it's so wor
Dialogue: 0,0:48:36.04,0:48:39.88,Default,,0000,0000,0000,,that my voice is mind I don't need
Dialogue: 0,0:48:39.88,0:48:43.80,Default,,0000,0000,0000,,someone to say what's on my mind though
Dialogue: 0,0:48:43.80,0:48:47.48,Default,,0000,0000,0000,,the love I have to help me is the best
Dialogue: 0,0:48:47.48,0:48:51.40,Default,,0000,0000,0000,,that you could find and I worry for my
Dialogue: 0,0:48:51.40,0:48:55.56,Default,,0000,0000,0000,,loved ones cuz the future is so wonder I
Dialogue: 0,0:48:55.56,0:48:58.72,Default,,0000,0000,0000,,stay strong
Dialogue: 0,0:49:01.52,0:49:02.20,Default,,0000,0000,0000,,it's
Dialogue: 0,0:49:02.20,0:49:06.24,Default,,0000,0000,0000,,ay but I keep
Dialogue: 0,0:49:06.40,0:49:10.36,Default,,0000,0000,0000,,my I have the strength to hold the C
Dialogue: 0,0:49:10.36,0:49:12.56,Default,,0000,0000,0000,,I've been
Dialogue: 0,0:49:12.56,0:49:17.40,Default,,0000,0000,0000,,handed If I Stumble my feet fall or if I
Dialogue: 0,0:49:17.40,0:49:21.48,Default,,0000,0000,0000,,need some assistance I know the journey
Dialogue: 0,0:49:21.48,0:49:23.04,Default,,0000,0000,0000,,long
Dialogue: 0,0:49:23.04,0:49:28.00,Default,,0000,0000,0000,,but it's the wor that distance
Dialogue: 0,0:49:28.00,0:49:33.08,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:49:35.88,0:49:39.56,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:49:39.56,0:49:41.20,Default,,0000,0000,0000,,I found my
Dialogue: 0,0:49:41.20,0:49:44.24,Default,,0000,0000,0000,,place surrounded by
Dialogue: 0,0:49:44.24,0:49:49.40,Default,,0000,0000,0000,,faces who understand
Dialogue: 0,0:49:50.04,0:49:53.20,Default,,0000,0000,0000,,me our worries and
Dialogue: 0,0:49:53.20,0:49:58.64,Default,,0000,0000,0000,,fears so disappear after
Dialogue: 0,0:49:59.14,0:50:02.08,Default,,0000,0000,0000,,[Music]
Dialogue: 0,0:50:02.08,0:50:07.56,Default,,0000,0000,0000,,Aver and a warm cup of tea