1 00:00:04,560 --> 00:00:09,960 ♪I won't lie I was terrified when the doctor said those words♪ 2 00:00:09,960 --> 00:00:16,169 ♪My feet went from beneath me could not believe what I just heard♪ 3 00:00:16,169 --> 00:00:22,005 ♪If I judged my condition from what I saw on television♪ 4 00:00:22,005 --> 00:00:25,560 ♪I'd give up♪ 5 00:00:28,345 --> 00:00:35,908 S1 944 ,000 people are estimated to be currently living with dementia in the UK 6 00:00:35,908 --> 00:00:40,959 [Music] 7 00:00:41,699 --> 00:00:48,040 Dementia killed almost double the number of women than men in 2020 8 00:00:48,040 --> 00:00:53,385 [Music] 9 00:00:53,385 --> 00:00:59,762 Dementia has been the leading cause of death in women since 2011 10 00:00:59,790 --> 00:01:04,640 [Music] 11 00:01:04,640 --> 00:01:09,370 9% of people over 65 have dementia. 12 00:01:09,370 --> 00:01:18,099 [Music] 13 00:01:18,449 --> 00:01:21,579 Dementia will impact 50% of us 14 00:01:22,079 --> 00:01:27,173 either through a personal diagnosis or by caring for someone who has it. 15 00:01:27,173 --> 00:01:35,480 [Music] 16 00:01:35,600 --> 00:01:42,705 1.6 million people will be living with dementia in the UK by 2040 17 00:01:43,074 --> 00:01:48,513 [Music] 18 00:01:48,513 --> 00:01:56,290 Dementia is the most feared health condition by 60% of people over 65. 19 00:01:56,434 --> 00:02:04,449 [Music] 20 00:02:05,880 --> 00:02:12,805 Dementia care costs in Northern Ireland are projected to increase 192% 21 00:02:12,805 --> 00:02:19,994 from 800 million in 2019 to 2.4 billion in 2040. 22 00:02:30,390 --> 00:02:35,329 Wayfinding in unfamiliar places can be more challenging 23 00:02:35,329 --> 00:02:38,091 for people living with dementia. 24 00:02:40,910 --> 00:02:46,483 Environment may affect people living with dementia more than most. 25 00:02:49,128 --> 00:02:54,640 Noisy and chaotic spaces can feel disorientating and overwhelming, 26 00:02:54,640 --> 00:02:59,405 may increase anxiety or frustration, causing changes in behaviour. 27 00:03:02,110 --> 00:03:08,360 Everyday life for people living with dementia can be exhausting 28 00:03:09,126 --> 00:03:11,040 though it may not be obvious to you. 29 00:03:11,702 --> 00:03:18,074 It takes longer for people living with dementia to process information. 30 00:03:18,074 --> 00:03:24,469 Our brains have to work harder to filter out external stimuli 31 00:03:24,911 --> 00:03:30,791 often leaving us feeling depleted, exhausted and spent. 32 00:03:31,400 --> 00:03:35,359 This makes our symptoms of dementia more evident. 33 00:03:36,290 --> 00:03:51,778 [Music] 34 00:03:51,778 --> 00:04:01,381 74,000 800 people are estimated to be living with young onset dementia 35 00:04:01,547 --> 00:04:04,281 in the UK and Ireland 36 00:04:04,530 --> 00:04:11,663 [Music] 37 00:04:11,663 --> 00:04:19,503 Young onset dementia is when symptoms of dementia start before the age of 65 38 00:04:19,740 --> 00:05:05,059 [Music] 39 00:05:06,880 --> 00:05:13,969 Dementia NI members formed a working group in 2022 40 00:05:14,749 --> 00:05:20,391 that included eight individuals living with dementia like me, 41 00:05:21,132 --> 00:05:26,791 supported by four staff members working collaboratively together: 42 00:05:27,556 --> 00:05:29,562 one from dementia NI 43 00:05:30,257 --> 00:05:37,150 and three from the Southern and Southeast Health and Social Care Trusts. 44 00:05:38,778 --> 00:05:44,770 The members of dementia NI are always looking for opportunities to engage 45 00:05:44,770 --> 00:05:50,117 with hospital and social care staff to describe what it's like 46 00:05:50,117 --> 00:05:57,125 to live with dementia and to share with them our challenges as well as ways 47 00:05:57,125 --> 00:06:03,790 we can best be supported in both clinical and hospital environments. 48 00:06:04,240 --> 00:06:12,232 However, speaking to every trust member in person is an impossible task. 49 00:06:12,914 --> 00:06:18,114 So we decided to create a documentary to help us interact 50 00:06:18,611 --> 00:06:25,240 with members of the Health and Social Care services to help bridge this gap. 51 00:06:26,747 --> 00:06:33,227 Over the course of 22 months we met regularly to decide the content 52 00:06:33,426 --> 00:06:40,194 of this film, sharing our own personal experiences across the spectrum, 53 00:06:41,180 --> 00:06:45,348 both positive and challenging experiences. 54 00:06:46,499 --> 00:06:52,215 We thought it would be beneficial to provide staff with 10 top tips 55 00:06:52,743 --> 00:06:57,303 for supporting people like us living with dementia. 56 00:06:58,004 --> 00:07:03,546 We believe these these practices can be easily implemented 57 00:07:04,120 --> 00:07:08,440 without adding an extra burden to staff 58 00:07:08,440 --> 00:07:12,829 and will lead to an improved staff-patient interaction 59 00:07:13,626 --> 00:07:19,667 and in the long run will save time; Many people have commented: 60 00:07:20,143 --> 00:07:25,149 "What is good for people living with dementia is good for everyone." 61 00:07:25,857 --> 00:07:33,079 And we the members of dementia NI are sure you will find this to be so too. 62 00:07:36,759 --> 00:07:41,809 We know you will find the following individual experiences engaging 63 00:07:42,279 --> 00:07:45,188 even if somewhat emotional at times, 64 00:07:45,511 --> 00:07:51,512 and that you will be able to put some of the practical tips into action 65 00:07:51,646 --> 00:07:55,486 [Introducing members of Dementia NI -- the producers of this training resource -- 66 00:07:55,486 --> 00:07:58,523 and their experiences within health and social care settings] 67 00:07:58,900 --> 00:08:01,749 S2 I'm Davie Michael McElhinney from County Fermanagh 68 00:08:01,749 --> 00:08:06,622 I was diagnosed with frontal temporal dementia 7 years ago 69 00:08:07,152 --> 00:08:09,280 I was aged 54. 70 00:08:09,885 --> 00:08:13,440 S3 My name is Martin Murtagh 71 00:08:14,288 --> 00:08:17,137 My dementia is Alzheimer's dementia 72 00:08:17,427 --> 00:08:21,240 S4 So my name is Peter Alexander I was born in England, Twickenham, 73 00:08:21,240 --> 00:08:24,912 so the good old rugby place. 74 00:08:24,912 --> 00:08:30,980 S5 My name is Gerard Doran, I was diagnosed with dementia when I was 61. 75 00:08:31,120 --> 00:08:33,549 S6 Yes, I'm Christopher Higgins 76 00:08:33,549 --> 00:08:37,951 and my dementia was discovered just two years ago. 77 00:08:37,951 --> 00:08:43,013 S7 Yes, my name's Allison, Allison Bachelor, I live in Dundonald 78 00:08:43,013 --> 00:08:49,091 and was diagnosed with Alzheimer's in April 2017 79 00:08:49,240 --> 00:08:53,399 S8 I'm a newly diagnosed person with dementia. 80 00:08:54,280 --> 00:08:59,868 My past knowledge of dementia was that I was a social worker in hospital 81 00:09:00,200 --> 00:09:05,409 S9 Hi, my name is Tom, Tom Heatly, and 82 00:09:06,819 --> 00:09:13,240 I have dementia, I've been diagnosed 83 00:09:13,240 --> 00:09:17,519 with dementia with Lewy bodies 84 00:09:19,259 --> 00:09:26,188 that was back about just over a year now. 85 00:09:26,640 --> 00:09:30,146 Treat us with common courtesy. 86 00:09:30,146 --> 00:09:35,549 S8 Treat us with respect, as valued, capable adults 87 00:09:36,005 --> 00:09:41,433 Be aware of your facial expression, tone of voice 88 00:09:41,433 --> 00:09:45,472 and your non-verbal communication 89 00:09:45,839 --> 00:09:52,989 And when the students came, they said: "Oh I see here this person has dementia, 90 00:09:53,443 --> 00:09:56,263 I don't know how to speak to dementia." 91 00:09:56,994 --> 00:09:59,040 And I think that is the problem. 92 00:09:59,040 --> 00:10:01,560 They think they're speaking to the dementia. 93 00:10:02,297 --> 00:10:07,754 But I always said to them: "So what if they have dementia? 94 00:10:07,754 --> 00:10:09,854 speak to the person first. 95 00:10:10,120 --> 00:10:18,320 You will hear a little bit when they reply about de the way they are affected, 96 00:10:18,793 --> 00:10:23,665 but just keep speaking to the person behind the dementia 97 00:10:23,861 --> 00:10:27,936 because it's the person you want to talk to. 98 00:10:29,440 --> 00:10:34,680 S9 Basically you talk about valuing an individual. 99 00:10:35,809 --> 00:10:43,817 In all those years that I have been a trainer in the trust, 100 00:10:46,672 --> 00:11:00,944 basic values are the primary important factor 101 00:11:01,659 --> 00:11:04,440 S4 What I would say, yes: 102 00:11:05,183 --> 00:11:11,501 if I was to write a book from a person who has dementia, 103 00:11:13,344 --> 00:11:17,632 it would be to say I'm hurting inside too. 104 00:11:18,494 --> 00:11:21,675 I might not be able to express it, 105 00:11:22,600 --> 00:11:26,139 but I'm still the same person as I was when I was younger. 106 00:11:27,606 --> 00:11:29,519 I am still that today, 107 00:11:30,399 --> 00:11:35,032 it's just that the person I am is getting locked away more and more inside me. 108 00:11:35,813 --> 00:11:37,983 So don't treat me any differently. 109 00:11:38,720 --> 00:11:40,624 I'm still the same person as I was 110 00:11:42,543 --> 00:11:45,839 even though you might have some preconceived ideas 111 00:11:46,517 --> 00:11:51,549 that because I got dementia, I'm an incontinent old person. 112 00:11:51,880 --> 00:11:55,882 but I'm not: I was diagnosed at the age of 49 113 00:11:55,882 --> 00:12:00,320 and at that time I was told that I shouldn't work anymore 114 00:12:00,734 --> 00:12:05,696 and that I shouldn't drive anymore because of my judgment being impaired. 115 00:12:07,658 --> 00:12:09,000 S8 Give us time 116 00:12:09,985 --> 00:12:13,359 We need more time to process than you. 117 00:12:13,764 --> 00:12:18,199 Allow us to respond before you move on. 118 00:12:18,901 --> 00:12:21,674 Don't bombard us with questions. 119 00:12:21,972 --> 00:12:28,381 S? We're just normal human beings with a good mind 120 00:12:28,381 --> 00:12:30,120 and just normal people. 121 00:12:30,935 --> 00:12:40,933 The dementia does bring up different problems, 122 00:12:41,416 --> 00:12:47,148 you know, such a speech: now my speech, while I'm sitting here talking to you, 123 00:12:47,755 --> 00:12:52,750 there's -- words just disappear out of my vocabulary 124 00:12:53,445 --> 00:12:57,183 and that's why you could see me struggling there a couple of wee bits 125 00:12:57,760 --> 00:13:01,000 that's because a normal conversational word 126 00:13:01,926 --> 00:13:07,953 whenever it disappears I have to fish for another word that will fit 127 00:13:07,953 --> 00:13:09,440 in the slot in this place, 128 00:13:10,298 --> 00:13:13,019 but your mind's going around like a washing machine 129 00:13:13,019 --> 00:13:16,467 and it can't pick the words out sometimes. 130 00:13:17,051 --> 00:13:21,279 S? Yeah it still sticks with me that that day I felt very rushed 131 00:13:21,279 --> 00:13:24,959 and uh it was very blunt. 132 00:13:24,959 --> 00:13:30,209 There's no easy way to deliver bad news but it was very very blunt I thought 133 00:13:30,639 --> 00:13:34,800 and we left with no information at all that Friday afternoon. 134 00:13:34,800 --> 00:13:38,944 We went out for the weekend and with absolutely nothing. 135 00:13:38,944 --> 00:13:42,076 I thought, I thought with only weeks to live after that, you know. 136 00:13:42,988 --> 00:13:45,255 So I did and I think more time would have helped 137 00:13:45,255 --> 00:13:49,176 and maybe a bit more compassion with the, from the consultant. 138 00:13:50,549 --> 00:13:53,524 S8 Don't make assumptions about us. 139 00:13:54,083 --> 00:13:58,466 Don't presume you know what we want, feel or need 140 00:13:58,914 --> 00:14:03,341 or what we might be able to understand or decide. 141 00:14:03,926 --> 00:14:06,625 Discuss us with us directly. 142 00:14:07,834 --> 00:14:13,909 Give our loved ones the "This is me" person-centered document 143 00:14:13,909 --> 00:14:17,134 to help you care for me effectively. 144 00:14:18,657 --> 00:14:22,191 S? Yeah I had gone to a local ANE (?) Department. 145 00:14:22,926 --> 00:14:25,011 This would be a few years ago now. 146 00:14:25,011 --> 00:14:30,920 And I had said to the nurse who had after gone through from triage, you know, 147 00:14:30,920 --> 00:14:33,680 been called into the back area, you know, 148 00:14:33,680 --> 00:14:36,264 to be waiting to be seen by a doctor and to have 149 00:14:36,264 --> 00:14:38,547 some sort of bloods or whatever done, 150 00:14:38,547 --> 00:14:42,480 and I had said to her that I had dementia diagnosis 151 00:14:42,830 --> 00:14:49,323 and she instantly dismissed it and told me "Just tell the doctor" and walked away. 152 00:14:50,024 --> 00:14:53,160 And I have to say that put me into a bit of a panic mode 153 00:14:53,160 --> 00:14:55,816 because I sort of thought, I didn't feel safe then, 154 00:14:56,059 --> 00:14:59,081 I sort of thought that she should have taken a wee bit of time, 155 00:14:59,081 --> 00:15:03,260 even just by saying: "Okay we've taken note of that 156 00:15:03,260 --> 00:15:07,266 but if you need us to go to the toilet or if you need any help with anything, 157 00:15:07,266 --> 00:15:09,176 you know, just give one of us a shout." 158 00:15:09,466 --> 00:15:12,553 But I sort of felt it wasn't taken seriously, 159 00:15:12,989 --> 00:15:17,460 that it, and I thought it was something, that she did need to know, you know, 160 00:15:17,460 --> 00:15:20,668 I thought it was something that she had needed to take note of 161 00:15:20,668 --> 00:15:26,505 and to be aware of and, you know, as I say, I just sort of felt 162 00:15:26,505 --> 00:15:30,769 a bit more unsafe than if had have been given a wee bit of time 163 00:15:30,769 --> 00:15:33,170 cuz I sort of thought if I need to go to the toilet 164 00:15:33,170 --> 00:15:36,160 or I need, you know, who do I say to, I didn't feel after that 165 00:15:36,160 --> 00:15:38,737 I could say to any other nurse who came in to to me: 166 00:15:39,069 --> 00:15:41,504 "By the way, I have a dementia diagnosis" 167 00:15:41,800 --> 00:15:43,865 because of the way she had treated me. 168 00:15:45,120 --> 00:15:48,741 S? I learned more about dementia 169 00:15:51,194 --> 00:16:02,280 I worked with people who were true professionals, 170 00:16:04,907 --> 00:16:11,465 who were truly impressive in their approaches 171 00:16:14,613 --> 00:16:30,652 and who helped me so much to identify what I could do 172 00:16:31,305 --> 00:16:36,725 as opposed to all the all these things that I couldn't do. 173 00:16:39,040 --> 00:16:42,399 S? Notes help us to remember. 174 00:16:43,234 --> 00:16:48,137 Provide written information using jargon-free language 175 00:16:48,137 --> 00:16:50,668 to help us to understand. 176 00:16:51,159 --> 00:16:56,857 Help us to keep notes so that we can keep track of what is happening. 177 00:16:57,560 --> 00:17:00,680 S? For example when I attended a hospital, 178 00:17:00,680 --> 00:17:08,234 I needed to meet an individual staff member who was fairly aware of dementia 179 00:17:08,611 --> 00:17:10,574 and helped me support 180 00:17:11,155 --> 00:17:16,707 on a regular basis throughout my stay especially with regards to 181 00:17:16,707 --> 00:17:20,749 explaining and noting the key aspects of my appointment 182 00:17:20,749 --> 00:17:24,977 and how to cope well in the ward itself 183 00:17:29,000 --> 00:17:33,160 S? So if you have someone who has dementia 184 00:17:39,276 --> 00:17:52,707 ensure that you are making clear to the individual what is being discussed, 185 00:17:54,269 --> 00:17:58,546 what is being agreed, 186 00:18:00,520 --> 00:18:12,665 and that there is someone with them that can either take notes for them 187 00:18:14,836 --> 00:18:23,194 if they do not have the ability to make clear 188 00:18:28,480 --> 00:18:31,777 any decisions that are taken, 189 00:18:34,841 --> 00:18:47,819 to make clear anything that has been, that has been discussed 190 00:18:49,320 --> 00:18:54,577 S? Environment may affect us more than you 191 00:18:55,713 --> 00:19:01,422 The environment we are in affects us more than you. 192 00:19:02,189 --> 00:19:07,525 Provide a calming environment and opportunities to engage 193 00:19:07,525 --> 00:19:10,818 in activities that mean something to us. 194 00:19:12,824 --> 00:19:20,594 Use person_centered tools like "This is me" to find out more about me, 195 00:19:20,594 --> 00:19:24,590 to tailor activities to meet my needs, 196 00:19:25,520 --> 00:19:30,400 specifically designed quiet places and murals can help. 197 00:19:31,535 --> 00:19:35,907 S? There are also important issues regarding how the building itself looks. 198 00:19:36,504 --> 00:19:43,673 unfamiliar surroundings, noises and busy unclear spaces can be challenging 199 00:19:44,155 --> 00:19:47,018 and lead the agitation and confusion. 200 00:19:47,543 --> 00:19:51,162 it's important for a dementia person to have an individual space 201 00:19:51,532 --> 00:19:53,482 away from others, I think. 202 00:19:54,143 --> 00:19:57,781 Navigation and way finding is also important 203 00:19:57,781 --> 00:20:00,909 and it is helpful to have appropriate signs. 204 00:20:01,389 --> 00:20:04,423 Ideally they should be slightly large, 205 00:20:04,423 --> 00:20:10,150 with clear words placed at face level and not too high 206 00:20:10,706 --> 00:20:14,098 Murals and painting can also be helpful, 207 00:20:14,346 --> 00:20:18,983 ideally colors that aren't too dark, such as red and green 208 00:20:20,320 --> 00:20:27,423 I recently found it difficult to find tight uh, toilet near my bed 209 00:20:27,723 --> 00:20:32,921 until the Staff member helped me find it as it didn't have a sign. 210 00:20:32,921 --> 00:20:40,200 S? But the biggest thing would be disorientation and confusion, you know, 211 00:20:40,200 --> 00:20:43,945 of coming out of a room and knowing which way to turn and what way to go 212 00:20:43,945 --> 00:20:48,431 and that's why for me signage is vital, you know, in all situations 213 00:20:48,431 --> 00:20:50,934 and if there's good signage I'm much more confident 214 00:20:50,934 --> 00:20:53,320 and I can live much more independently 215 00:20:53,320 --> 00:20:55,440 but I would describe my head 216 00:20:55,440 --> 00:20:57,280 as like a washing machine you know of so 217 00:20:57,280 --> 00:20:59,320 much G through and try 218 00:20:59,320 --> 00:21:03,400 to process things you know that would be 219 00:21:03,400 --> 00:21:04,760 the biggest 220 00:21:04,760 --> 00:21:07,600 challenge it's it's even more confusing 221 00:21:07,600 --> 00:21:09,280 cuz you're already not well you know 222 00:21:09,280 --> 00:21:10,880 you're already worried about what's 223 00:21:10,880 --> 00:21:13,679 going on why you're there uh and the 224 00:21:13,679 --> 00:21:16,679 noise and you know yourself anybody is 225 00:21:16,679 --> 00:21:18,640 sort of in an particularly in an NA 226 00:21:18,640 --> 00:21:20,360 Department there's so much banging and 227 00:21:20,360 --> 00:21:23,200 cluttering and there's noise going on 228 00:21:23,200 --> 00:21:24,799 either side of you in front of you 229 00:21:24,799 --> 00:21:26,600 behind you you know there's so many 230 00:21:26,600 --> 00:21:29,840 conversations going on uh you know quite 231 00:21:29,840 --> 00:21:32,000 often you're planted quite close to the 232 00:21:32,000 --> 00:21:34,080 nursery station because there's no 233 00:21:34,080 --> 00:21:36,600 cubicles um you know and there's all the 234 00:21:36,600 --> 00:21:38,320 noise and all the movements sort going 235 00:21:38,320 --> 00:21:41,240 on that and it it can become very very 236 00:21:41,240 --> 00:21:44,880 confusing and uh you know it's a hard 237 00:21:44,880 --> 00:21:46,919 thing to process any information and 238 00:21:46,919 --> 00:21:49,840 then when they come to speak to you you 239 00:21:49,840 --> 00:21:51,559 know there's so much noise going on 240 00:21:51,559 --> 00:21:54,159 there's so much backgr noise 241 00:21:54,159 --> 00:21:56,760 and conversations going on around you 242 00:21:56,760 --> 00:21:59,000 that is hard to process what actually 243 00:21:59,000 --> 00:22:01,840 been said to you whereas again a very 244 00:22:01,840 --> 00:22:04,000 simple thing would be to have somewhere 245 00:22:04,000 --> 00:22:07,080 that once they know you have a dementia 246 00:22:07,080 --> 00:22:09,679 diagnosis and to ask the person you know 247 00:22:09,679 --> 00:22:12,360 what can we do to help and I think most 248 00:22:12,360 --> 00:22:14,120 people would say if I could have a quiet 249 00:22:14,120 --> 00:22:16,200 room to have whenever the doctor's 250 00:22:16,200 --> 00:22:20,559 talking to me I think that would make a 251 00:22:20,559 --> 00:22:22,240 big difference you know you would sort 252 00:22:22,240 --> 00:22:24,480 of know that during that important time 253 00:22:24,480 --> 00:22:25,960 when you're meant to be able to take 254 00:22:25,960 --> 00:22:29,080 information in you know that they would 255 00:22:29,080 --> 00:22:31,120 take you somewhere that that could 256 00:22:31,120 --> 00:22:35,520 happen easier than it does in the busy 257 00:22:35,520 --> 00:22:36,720 any 258 00:22:36,720 --> 00:22:39,520 Department it was again with I mention 259 00:22:39,520 --> 00:22:42,400 in hospitals it was a new hospital 260 00:22:42,400 --> 00:22:43,960 absolutely 261 00:22:43,960 --> 00:22:46,440 beautiful like an into a very Swanky 262 00:22:46,440 --> 00:22:48,400 hotel but you go in there you're not 263 00:22:48,400 --> 00:22:51,320 coming back out there is no signage 264 00:22:51,320 --> 00:22:54,960 anywhere and the every Corridor looks 265 00:22:54,960 --> 00:22:57,760 exactly the same and you sort of have to 266 00:22:57,760 --> 00:22:59,960 go up in the left and go long a bit then 267 00:22:59,960 --> 00:23:01,880 go down and a left and go long a bit and 268 00:23:01,880 --> 00:23:05,320 then come back up again you know um 269 00:23:05,320 --> 00:23:08,360 because of the waya they intertwined and 270 00:23:08,360 --> 00:23:09,960 as I say you can out have a lift but 271 00:23:09,960 --> 00:23:11,840 there's no signage to tell you to turn 272 00:23:11,840 --> 00:23:14,760 left turn right or what way to go you 273 00:23:14,760 --> 00:23:18,600 know and that was a horrible 274 00:23:18,600 --> 00:23:21,279 experience well I have had the 275 00:23:21,279 --> 00:23:26,320 experience of um going into Hospital 276 00:23:26,320 --> 00:23:28,840 under an am with an ambulance J in the 277 00:23:28,840 --> 00:23:30,080 times of 278 00:23:30,080 --> 00:23:32,520 covid 279 00:23:32,520 --> 00:23:36,200 and the ambulance team were fantastic 280 00:23:36,200 --> 00:23:39,039 cuz they were aware of my challenges 281 00:23:39,039 --> 00:23:43,600 they thought I had a triple A um but it 282 00:23:43,600 --> 00:23:46,240 actually turned out to be kidney stones 283 00:23:46,240 --> 00:23:49,120 but when they took me into the hospital 284 00:23:49,120 --> 00:23:51,480 rather than just sitting 285 00:23:51,480 --> 00:23:55,120 there in the general area they 286 00:23:55,120 --> 00:23:58,000 accelerated my Passage through to being 287 00:23:58,000 --> 00:24:01,159 on a a bed in one of the cubicles 288 00:24:01,159 --> 00:24:02,880 because they knew that with my 289 00:24:02,880 --> 00:24:07,039 behavioral variant of of of of of the 290 00:24:07,039 --> 00:24:09,880 dementia of the the FTD the frontal 291 00:24:09,880 --> 00:24:13,520 temporal dementia that my filters had 292 00:24:13,520 --> 00:24:16,919 disappeared I would say things as I felt 293 00:24:16,919 --> 00:24:20,840 about them I would swear which I 294 00:24:20,840 --> 00:24:23,559 wouldn't have done in the past but 295 00:24:23,559 --> 00:24:26,320 frustration the feeling of not being 296 00:24:26,320 --> 00:24:29,480 able to express yourself as as I once 297 00:24:29,480 --> 00:24:33,080 did these things lead to just filterless 298 00:24:33,080 --> 00:24:35,799 behaviors and it's not that you're being 299 00:24:35,799 --> 00:24:39,080 unkind or nasty to the staff it's just 300 00:24:39,080 --> 00:24:41,880 how things come across so it's important 301 00:24:41,880 --> 00:24:44,480 that the staff in that environment build 302 00:24:44,480 --> 00:24:48,240 a rapport with the patient build the 303 00:24:48,240 --> 00:24:51,360 trust and the confidence where they can 304 00:24:51,360 --> 00:24:53,600 exchange freely and 305 00:24:53,600 --> 00:24:57,320 happily and the second time I um 306 00:24:57,320 --> 00:25:00,360 developed culat my eye and I went to the 307 00:25:00,360 --> 00:25:01,960 ation first of all it was late on in the 308 00:25:01,960 --> 00:25:05,120 evening and uh he he rang the casualty 309 00:25:05,120 --> 00:25:07,919 to say expect me so they were expecting 310 00:25:07,919 --> 00:25:09,279 it and again they knew at that time I 311 00:25:09,279 --> 00:25:11,919 was living with the Mana so the uh 312 00:25:11,919 --> 00:25:14,360 consultant actually saw me and the the 313 00:25:14,360 --> 00:25:16,360 emergency department was very busy so 314 00:25:16,360 --> 00:25:18,000 she actually took me to a very quiet 315 00:25:18,000 --> 00:25:20,440 place away from the the emergency 316 00:25:20,440 --> 00:25:23,399 department and they did all all the had 317 00:25:23,399 --> 00:25:25,000 to do at that time 318 00:25:25,000 --> 00:25:27,559 and her care and even the nursing care 319 00:25:27,559 --> 00:25:30,720 was was was was first class at that time 320 00:25:30,720 --> 00:25:33,440 with really noise and and a lot of 321 00:25:33,440 --> 00:25:36,000 people yeah I find people's faces just 322 00:25:36,000 --> 00:25:39,120 blur and the noise just it really 323 00:25:39,120 --> 00:25:41,320 scrambles my brain I can't think or 324 00:25:41,320 --> 00:25:43,520 focus on anything with with noise a 325 00:25:43,520 --> 00:25:46,240 quiet place would be ideal yeah 326 00:25:46,240 --> 00:25:50,919 yeah assume we have capacity don't make 327 00:25:50,919 --> 00:25:54,240 assumptions about our level of capacity 328 00:25:54,240 --> 00:25:57,799 or ability to engage in our care 329 00:25:57,799 --> 00:26:00,159 planning and decision 330 00:26:00,159 --> 00:26:03,559 making I may not have capacity to make 331 00:26:03,559 --> 00:26:06,640 every decision but there will be some 332 00:26:06,640 --> 00:26:11,960 decisions I can still make and want to 333 00:26:11,960 --> 00:26:16,399 make don't speak to our family members 334 00:26:16,399 --> 00:26:21,200 and ignore us speak directly to us first 335 00:26:21,200 --> 00:26:24,399 and allow us to defer to our support 336 00:26:24,399 --> 00:26:28,760 person if we need to 337 00:26:28,760 --> 00:26:31,880 ask me what you 338 00:26:31,880 --> 00:26:36,640 need what sorry I would want them to ask 339 00:26:36,640 --> 00:26:38,520 me what I needed or wanted not to 340 00:26:38,520 --> 00:26:40,440 presume they know because they might 341 00:26:40,440 --> 00:26:43,480 have had somebody in earlier that day or 342 00:26:43,480 --> 00:26:45,399 the day before or the week before with 343 00:26:45,399 --> 00:26:47,080 the dementia diagnosis he needs 344 00:26:47,080 --> 00:26:49,679 something different to what I would need 345 00:26:49,679 --> 00:26:52,000 you know so I would always say you 346 00:26:52,000 --> 00:26:55,360 know treat that person as an individual 347 00:26:55,360 --> 00:26:57,840 and find out what you can do that will 348 00:26:57,840 --> 00:27:01,279 make them them more comfortable feel 349 00:27:01,279 --> 00:27:05,200 safer and and in the turn that will ease 350 00:27:05,200 --> 00:27:07,640 your workload because if the person with 351 00:27:07,640 --> 00:27:10,120 the dementia diagnosis feels relaxed and 352 00:27:10,120 --> 00:27:14,640 feels at ease they're less likely to be 353 00:27:14,640 --> 00:27:18,520 given hustle or be kicking off about 354 00:27:18,520 --> 00:27:21,320 something I'm a sitting in the outside 355 00:27:21,320 --> 00:27:24,200 wetting room when she asked me could it 356 00:27:24,200 --> 00:27:26,080 come into the room and I SP to you if 357 00:27:26,080 --> 00:27:28,000 you want your son to come in you can 358 00:27:28,000 --> 00:27:29,559 come and I says no I'll just going 359 00:27:29,559 --> 00:27:32,120 myself and when I went into the room she 360 00:27:32,120 --> 00:27:34,320 was going shook my hand and says to me 361 00:27:34,320 --> 00:27:36,760 Martin I'm sorry to tell you I'm not 362 00:27:36,760 --> 00:27:38,760 sure the exact words but you have 363 00:27:38,760 --> 00:27:40,039 Alzheimer's 364 00:27:40,039 --> 00:27:42,720 dementia well you're you're taken back 365 00:27:42,720 --> 00:27:45,480 you're just shock she says you want me 366 00:27:45,480 --> 00:27:49,120 to get your son bring him in and I I 367 00:27:49,120 --> 00:27:52,000 says no not definitely not to my son I 368 00:27:52,000 --> 00:27:53,840 get my sons together when to go home and 369 00:27:53,840 --> 00:27:55,559 I'll tell them when to go home I got 370 00:27:55,559 --> 00:27:57,679 them settled down and things I says look 371 00:27:57,679 --> 00:28:00,240 I feel gr I still feel the same thing 372 00:28:00,240 --> 00:28:01,960 I'm still your daddy I'm still the thing 373 00:28:01,960 --> 00:28:04,720 and I'm still get carrying on and two of 374 00:28:04,720 --> 00:28:06,360 my sons are two 375 00:28:06,360 --> 00:28:10,080 M Twins and there there we go oh God not 376 00:28:10,080 --> 00:28:11,799 be able to tell him anything now not 377 00:28:11,799 --> 00:28:14,279 keep a secret he can't keep anything but 378 00:28:14,279 --> 00:28:16,919 it was it was good the experience was 379 00:28:16,919 --> 00:28:21,000 good be aware of our details don't make 380 00:28:21,000 --> 00:28:25,159 us repeat our story multiple times it 381 00:28:25,159 --> 00:28:29,080 makes us feel like we are being tested 382 00:28:29,080 --> 00:28:32,640 Ed read your colleagues assessments 383 00:28:32,640 --> 00:28:36,000 repeating information is 384 00:28:36,000 --> 00:28:40,080 exhausting for us yeah again I think 385 00:28:40,080 --> 00:28:41,640 that's it you know the nurse comes in 386 00:28:41,640 --> 00:28:43,360 you see the nurse and Tre eyes you tell 387 00:28:43,360 --> 00:28:46,120 them the story you then see whoever you 388 00:28:46,120 --> 00:28:48,600 move to into the cubicles or into the 389 00:28:48,600 --> 00:28:51,080 back bit of the any you tell them your 390 00:28:51,080 --> 00:28:53,679 story the doctor then comes in or a 391 00:28:53,679 --> 00:28:56,480 doctor comes in and you tell them it but 392 00:28:56,480 --> 00:28:58,519 there may be not the particular doctor 393 00:28:58,519 --> 00:29:00,039 you need to see if it's something 394 00:29:00,039 --> 00:29:01,840 specific you're there for you know if it 395 00:29:01,840 --> 00:29:04,600 was for example something to do with 396 00:29:04,600 --> 00:29:06,600 your heart you know you would get a 397 00:29:06,600 --> 00:29:08,399 general doctor come in talk oh you need 398 00:29:08,399 --> 00:29:10,000 to you know we need to get something 399 00:29:10,000 --> 00:29:12,159 done from Cardiology or whatever they 400 00:29:12,159 --> 00:29:13,919 can die and you have to repeat the whole 401 00:29:13,919 --> 00:29:17,200 thing again uh and that can become quite 402 00:29:17,200 --> 00:29:18,880 frustrating and you sort of think you 403 00:29:18,880 --> 00:29:21,279 know can you not read you know can you 404 00:29:21,279 --> 00:29:23,000 not actually look at the notes that have 405 00:29:23,000 --> 00:29:26,559 been taken um 10 times beforehand uh and 406 00:29:26,559 --> 00:29:28,120 you s of are they're trying to trick you 407 00:29:28,120 --> 00:29:29,880 right here you know trying to get you to 408 00:29:29,880 --> 00:29:32,120 say something different to what you had 409 00:29:32,120 --> 00:29:35,320 said before I think it is I think it's a 410 00:29:35,320 --> 00:29:38,960 challenge you know because as I say by 411 00:29:38,960 --> 00:29:40,440 you're that stage you're already in a 412 00:29:40,440 --> 00:29:43,600 real state of confusion and panic 413 00:29:43,600 --> 00:29:47,880 and um a bit more unsettled you know so 414 00:29:47,880 --> 00:29:50,559 to be asked the same story over again 415 00:29:50,559 --> 00:29:52,399 can become very frustrating and I think 416 00:29:52,399 --> 00:29:54,480 at times in I think you can become a bit 417 00:29:54,480 --> 00:29:56,320 sharper than maybe that what you would 418 00:29:56,320 --> 00:29:59,600 normally be but it's because you sort of 419 00:29:59,600 --> 00:30:01,120 you're fed up with the length of time 420 00:30:01,120 --> 00:30:02,720 you sort of have sitting there probably 421 00:30:02,720 --> 00:30:04,080 waiting anyway and you haven't seen 422 00:30:04,080 --> 00:30:05,640 anybody and then the next person come 423 00:30:05,640 --> 00:30:07,240 say ask the exactly the same question 424 00:30:07,240 --> 00:30:10,200 again you s think like this has moved on 425 00:30:10,200 --> 00:30:12,399 nowhere you know you 426 00:30:12,399 --> 00:30:14,440 haven't you know you're asking me what 427 00:30:14,440 --> 00:30:16,880 the person asked me two hours ago but 428 00:30:16,880 --> 00:30:19,159 you're doing nothing different but yes I 429 00:30:19,159 --> 00:30:21,360 think it is a challenge you know with I 430 00:30:21,360 --> 00:30:23,440 think it's a challenge for anybody but I 431 00:30:23,440 --> 00:30:24,760 think for somebody with a dementia 432 00:30:24,760 --> 00:30:26,720 diagnosis yesterday is more of a 433 00:30:26,720 --> 00:30:29,519 challenge you use Clear 434 00:30:29,519 --> 00:30:33,799 language if you are going to perform an 435 00:30:33,799 --> 00:30:36,399 intervention talk to us 436 00:30:36,399 --> 00:30:40,440 beforehand and explain each step in 437 00:30:40,440 --> 00:30:44,559 clear words or with gestures if our 438 00:30:44,559 --> 00:30:46,720 understanding is very 439 00:30:46,720 --> 00:30:48,880 limited give us 440 00:30:48,880 --> 00:30:52,799 time explaining the procedure will help 441 00:30:52,799 --> 00:30:54,960 us to 442 00:30:54,960 --> 00:30:58,320 participate if I need reassurance 443 00:30:58,320 --> 00:31:01,600 reassure me I'm not saying you have to 444 00:31:01,600 --> 00:31:04,600 have dementia to understand it what I'm 445 00:31:04,600 --> 00:31:08,679 saying is what I said to students is 446 00:31:08,679 --> 00:31:12,320 take it easy at the beginning don't 447 00:31:12,320 --> 00:31:16,200 bombard them with a rapid release of 448 00:31:16,200 --> 00:31:20,480 questions and don't L link questions 449 00:31:20,480 --> 00:31:23,480 together make the subject if it is 450 00:31:23,480 --> 00:31:25,760 driving something like 451 00:31:25,760 --> 00:31:29,120 that say are you driving your 452 00:31:29,120 --> 00:31:32,639 car wait for the answer and then if they 453 00:31:32,639 --> 00:31:36,200 say no I'm not then you can discuss it 454 00:31:36,200 --> 00:31:39,440 with them but I think if you go into 455 00:31:39,440 --> 00:31:43,639 something you know it only makes them I 456 00:31:43,639 --> 00:31:46,840 can't interrupt this but I don't agree 457 00:31:46,840 --> 00:31:50,360 with her so very gently say l thank you 458 00:31:50,360 --> 00:31:54,720 very much for coming to talk to me and I 459 00:31:54,720 --> 00:31:58,559 know very little uh about how you're 460 00:31:58,559 --> 00:32:02,320 feeling at the moment so can you tell me 461 00:32:02,320 --> 00:32:06,080 how you felt when you got your diagnosis 462 00:32:06,080 --> 00:32:09,760 what went before did you think you had 463 00:32:09,760 --> 00:32:12,639 dementia and how you felt when you 464 00:32:12,639 --> 00:32:17,320 actually were told you have 465 00:32:17,320 --> 00:32:20,440 dementia makes a 466 00:32:20,440 --> 00:32:25,000 difference Health and Social Care 467 00:32:25,000 --> 00:32:30,320 staff working with any form of 468 00:32:30,519 --> 00:32:33,519 dementia 469 00:32:33,960 --> 00:32:36,720 need to 470 00:32:36,720 --> 00:32:39,399 communicate 471 00:32:39,399 --> 00:32:42,760 clearly with any 472 00:32:42,760 --> 00:32:47,159 individual with any form of 473 00:32:47,159 --> 00:32:49,639 dementia they 474 00:32:49,639 --> 00:32:55,080 need to give clear 475 00:32:56,000 --> 00:32:58,919 instructions their need 476 00:32:58,919 --> 00:33:00,159 to 477 00:33:00,159 --> 00:33:02,080 ensure that 478 00:33:02,080 --> 00:33:05,760 people with whom they are 479 00:33:05,760 --> 00:33:07,960 working 480 00:33:07,960 --> 00:33:12,360 have a clear 481 00:33:12,360 --> 00:33:14,639 understanding of 482 00:33:14,639 --> 00:33:18,360 what is being 483 00:33:19,600 --> 00:33:25,039 discussed and that they 484 00:33:25,039 --> 00:33:29,159 have made clear 485 00:33:29,159 --> 00:33:31,279 here 486 00:33:31,279 --> 00:33:36,519 exactly what is being 487 00:33:36,799 --> 00:33:41,240 shared what is being 488 00:33:41,960 --> 00:33:46,519 said maintain our confidentiality and 489 00:33:46,519 --> 00:33:51,120 dignity share information with us 490 00:33:51,120 --> 00:33:53,919 sensitively and take into 491 00:33:53,919 --> 00:33:58,639 consideration our confidentiality 492 00:33:58,720 --> 00:34:02,080 privacy and dignity are 493 00:34:02,080 --> 00:34:05,559 important we may not want other patients 494 00:34:05,559 --> 00:34:08,918 visitors to know we have 495 00:34:08,918 --> 00:34:13,838 dementia yeah within the hold of 496 00:34:13,960 --> 00:34:17,639 dementia I find myself falling apart I 497 00:34:17,639 --> 00:34:19,879 find 498 00:34:19,879 --> 00:34:22,879 myself 499 00:34:23,960 --> 00:34:29,560 unable to be the person I was 500 00:34:29,560 --> 00:34:31,919 to 501 00:34:33,079 --> 00:34:36,000 communicate the 502 00:34:36,000 --> 00:34:40,399 way I should be able to 503 00:34:43,239 --> 00:34:45,918 communicate I 504 00:34:45,918 --> 00:34:49,158 lost my 505 00:34:49,639 --> 00:34:52,719 skills I lost a lot 506 00:34:52,719 --> 00:34:56,999 of what was 507 00:34:59,960 --> 00:35:02,880 what being 508 00:35:03,119 --> 00:35:05,280 me as a 509 00:35:05,280 --> 00:35:08,280 person 510 00:35:14,200 --> 00:35:17,320 was I 511 00:35:17,320 --> 00:35:20,720 was I was 512 00:35:22,760 --> 00:35:27,160 lost well for for myself or anybody of 513 00:35:27,160 --> 00:35:30,119 the just P his like hard if I come in as 514 00:35:30,119 --> 00:35:30,920 a 515 00:35:30,920 --> 00:35:32,960 patient they don't know why I've got the 516 00:35:32,960 --> 00:35:36,680 Mana unless I tell them I've got the 517 00:35:36,960 --> 00:35:40,480 Mana don't don't have me 518 00:35:40,480 --> 00:35:43,000 to have to say that I've got the Manion 519 00:35:43,000 --> 00:35:46,200 just treat me where courtesy of of think 520 00:35:46,200 --> 00:35:49,319 most most sitting rooms in the hospital 521 00:35:49,319 --> 00:35:51,920 you know are like they're Havoc if it 522 00:35:51,920 --> 00:35:54,800 comes to a thing many of places been in 523 00:35:54,800 --> 00:35:56,640 I've turned around and says look I'm in 524 00:35:56,640 --> 00:35:58,680 the early stages of the Mana could you 525 00:35:58,680 --> 00:36:00,480 give me a we bit of time 526 00:36:00,480 --> 00:36:04,680 here and just things get mixed up for I 527 00:36:04,680 --> 00:36:07,079 think could just if my name would come 528 00:36:07,079 --> 00:36:08,720 up in that 529 00:36:08,720 --> 00:36:12,599 computer without me having to say and 530 00:36:12,599 --> 00:36:14,480 200 people or 100 people behind me 531 00:36:14,480 --> 00:36:19,720 listening he's got the Mana list he's 532 00:36:19,720 --> 00:36:22,240 different it's different just just come 533 00:36:22,240 --> 00:36:24,240 up on the computer they made away they 534 00:36:24,240 --> 00:36:25,839 know they I've got the Mana where we're 535 00:36:25,839 --> 00:36:27,240 just talking about a blue heart or 536 00:36:27,240 --> 00:36:30,560 purple or something like that and see 537 00:36:30,560 --> 00:36:32,000 what were the attitude changes that 538 00:36:32,000 --> 00:36:35,720 those change have used are have used our 539 00:36:35,720 --> 00:36:38,319 we th card or we IDE I've used to be 540 00:36:38,319 --> 00:36:42,520 smart card not the smart card uh JN card 541 00:36:42,520 --> 00:36:45,319 I've used the JN card the difference 542 00:36:45,319 --> 00:36:47,760 those things make and change people's 543 00:36:47,760 --> 00:36:50,920 attitude it's wonderful wonderful 544 00:36:50,920 --> 00:36:53,319 provide a support 545 00:36:53,319 --> 00:36:56,640 person having a designated support 546 00:36:56,640 --> 00:37:01,160 person can help to keep us calm and 547 00:37:01,160 --> 00:37:04,960 reassured one key person who supports us 548 00:37:04,960 --> 00:37:09,079 through our stay makes a huge difference 549 00:37:09,079 --> 00:37:12,359 to our Hospital experience I had to go 550 00:37:12,359 --> 00:37:14,880 and get an operation to take out a tumor 551 00:37:14,880 --> 00:37:16,920 on my 552 00:37:16,920 --> 00:37:19,680 leg and uh it was quite difficult 553 00:37:19,680 --> 00:37:21,599 because the specialist even though she 554 00:37:21,599 --> 00:37:26,160 was uh taking the the tumor out she was 555 00:37:26,160 --> 00:37:29,000 quite um a lot of words that she was 556 00:37:29,000 --> 00:37:31,079 using was very difficult for me to 557 00:37:31,079 --> 00:37:33,000 understand because they were quite 558 00:37:33,000 --> 00:37:36,920 Technical and she then got a a a young 559 00:37:36,920 --> 00:37:40,920 nurse to come in and help me because she 560 00:37:40,920 --> 00:37:44,079 also knocked me out for six hours she 561 00:37:44,079 --> 00:37:47,040 put me asleep for 6 hours where she was 562 00:37:47,040 --> 00:37:49,640 on a lot of things she was help the the 563 00:37:49,640 --> 00:37:52,680 the other lady was helping me she met me 564 00:37:52,680 --> 00:37:56,560 I was there for about um a full full day 565 00:37:56,560 --> 00:37:57,960 overnight 566 00:37:57,960 --> 00:38:01,079 and that young lady was a major help to 567 00:38:01,079 --> 00:38:03,560 me in the hospital because she helped me 568 00:38:03,560 --> 00:38:07,319 even write down my words she helped me 569 00:38:07,319 --> 00:38:11,599 even find places and she also said uh 570 00:38:11,599 --> 00:38:14,359 even tomorrow when you go home now that 571 00:38:14,359 --> 00:38:17,119 you've been operated this is what you do 572 00:38:17,119 --> 00:38:20,440 so even though the specialist operated 573 00:38:20,440 --> 00:38:24,040 me well that lady was a massive helper 574 00:38:24,040 --> 00:38:27,160 she made the difference and I I because 575 00:38:27,160 --> 00:38:29,480 I spoke to the specialist and you even 576 00:38:29,480 --> 00:38:32,319 use my card and said I know you're going 577 00:38:32,319 --> 00:38:35,800 to help me but I've got Alzheimer's and 578 00:38:35,800 --> 00:38:38,480 I need someone to talk to me that give 579 00:38:38,480 --> 00:38:41,319 me advice and um because some of the 580 00:38:41,319 --> 00:38:43,280 things you've said you're going to do I 581 00:38:43,280 --> 00:38:46,599 haven't really understood fully what's 582 00:38:46,599 --> 00:38:48,319 going to happen or even how I help 583 00:38:48,319 --> 00:38:51,240 myself so and when that other lady came 584 00:38:51,240 --> 00:38:53,680 in she was massively helpful to me 585 00:38:53,680 --> 00:38:55,280 possibly like other people with Dem 586 00:38:55,280 --> 00:38:57,640 Mantia I find that sometimes the 587 00:38:57,640 --> 00:38:59,760 difficult to understand if I haven't 588 00:38:59,760 --> 00:39:03,760 heard about things for a while so that 589 00:39:03,760 --> 00:39:07,440 other lady was a bit more explaining and 590 00:39:07,440 --> 00:39:11,240 also helped me make notes to write down 591 00:39:11,240 --> 00:39:13,280 a great understanding of what was going 592 00:39:13,280 --> 00:39:15,119 to happen to me and particularly how I 593 00:39:15,119 --> 00:39:17,200 dealt with myself the next few days when 594 00:39:17,200 --> 00:39:19,839 I got home having that interface between 595 00:39:19,839 --> 00:39:20,680 the 596 00:39:20,680 --> 00:39:24,880 consultant and also uh uh uh uh the 597 00:39:24,880 --> 00:39:29,640 patient with that specialist nurse was 598 00:39:29,640 --> 00:39:33,400 invaluable and that I think is something 599 00:39:33,400 --> 00:39:36,680 which can be really helpful to other 600 00:39:36,680 --> 00:39:39,840 people one thing that I would insist 601 00:39:39,840 --> 00:39:41,319 [Music] 602 00:39:41,319 --> 00:39:44,880 on would be 603 00:39:44,880 --> 00:39:48,720 that I 604 00:39:49,040 --> 00:39:52,240 had someone with 605 00:39:52,240 --> 00:39:56,680 me that I trust 606 00:39:58,480 --> 00:40:01,920 someone with me 607 00:40:03,359 --> 00:40:06,359 that 608 00:40:06,560 --> 00:40:09,200 could be 609 00:40:09,200 --> 00:40:12,200 there 610 00:40:13,800 --> 00:40:17,160 to like say I would either be taking my 611 00:40:17,160 --> 00:40:19,319 own 612 00:40:19,319 --> 00:40:23,839 notes that's another thing I'd lost my 613 00:40:23,839 --> 00:40:28,400 writing skills i' had lost I mean 614 00:40:28,400 --> 00:40:32,680 as well as losing my 615 00:40:32,680 --> 00:40:35,960 verbosity I had 616 00:40:35,960 --> 00:40:40,000 lost my ability to 617 00:40:40,040 --> 00:40:44,640 write and I have been practicing 618 00:40:45,400 --> 00:40:49,560 writing just to get myself back off to 619 00:40:49,560 --> 00:40:53,040 speed to be able 620 00:40:53,040 --> 00:40:58,160 to communicate effectively 621 00:40:59,480 --> 00:41:01,000 I've also been 622 00:41:01,000 --> 00:41:04,200 reading a 623 00:41:05,960 --> 00:41:10,079 lot to try 624 00:41:10,160 --> 00:41:15,880 and ensure that my communication 625 00:41:15,960 --> 00:41:19,319 is as it should 626 00:41:19,319 --> 00:41:24,920 be as I consider it should 627 00:41:25,839 --> 00:41:30,079 be cuz I'm a hard 628 00:41:32,359 --> 00:41:35,680 Taskmaster the following scene is based 629 00:41:35,680 --> 00:41:37,839 on our real life 630 00:41:37,839 --> 00:41:41,599 experiences of poor health care 631 00:41:41,599 --> 00:41:42,830 interactions 632 00:41:42,830 --> 00:42:01,659 [Music] 633 00:42:02,760 --> 00:42:04,800 without a clear 634 00:42:04,800 --> 00:42:08,119 introduction we may feel rushed or 635 00:42:08,119 --> 00:42:11,040 panicked unsure of what is 636 00:42:11,040 --> 00:42:13,800 happening which may unnecessarily 637 00:42:13,800 --> 00:42:15,640 increase our 638 00:42:15,640 --> 00:42:19,650 anxiety and generate unexpected 639 00:42:19,650 --> 00:42:20,839 [Music] 640 00:42:20,839 --> 00:42:24,559 reactions insufficient support with wayf 641 00:42:24,559 --> 00:42:27,760 finding could leave us disoriented ated 642 00:42:27,760 --> 00:42:28,920 and 643 00:42:28,920 --> 00:42:32,359 Confused ultimately reducing our powers 644 00:42:32,359 --> 00:42:33,440 of 645 00:42:33,440 --> 00:42:35,830 concentration for the following 646 00:42:35,830 --> 00:42:37,160 [Music] 647 00:42:37,160 --> 00:42:40,599 appointment disorganized and chaotic 648 00:42:40,599 --> 00:42:44,760 clinical space may be distracting or 649 00:42:44,760 --> 00:42:48,800 overwhelming for us reducing ability to 650 00:42:48,800 --> 00:42:51,839 focus and 651 00:42:51,839 --> 00:42:55,480 communicate not explaining procedures or 652 00:42:55,480 --> 00:42:58,359 interventions clearly in advance can 653 00:42:58,359 --> 00:43:00,920 cause us upset or 654 00:43:00,920 --> 00:43:05,880 distress especially as our dementia 655 00:43:05,960 --> 00:43:09,640 advances not explaining next steps in 656 00:43:09,640 --> 00:43:12,400 advance increases our 657 00:43:12,400 --> 00:43:15,880 anxiety and 658 00:43:17,200 --> 00:43:20,300 [Music] 659 00:43:20,760 --> 00:43:23,440 confusion uh Hazel and baby is that 660 00:43:23,440 --> 00:43:25,240 right yeah I'm 661 00:43:25,240 --> 00:43:27,960 Dr tonight 662 00:43:27,960 --> 00:43:30,720 without a clear and full 663 00:43:30,720 --> 00:43:33,760 introduction we may not realize the 664 00:43:33,760 --> 00:43:35,480 purpose of the 665 00:43:35,480 --> 00:43:38,440 appointment 666 00:43:38,440 --> 00:43:41,240 um no I'm not I'm not really seeing 667 00:43:41,240 --> 00:43:43,640 anything there there's no results back 668 00:43:43,640 --> 00:43:47,839 just yet poor positioning can hinder 669 00:43:47,839 --> 00:43:51,520 effective communication with 670 00:43:51,520 --> 00:43:54,520 us not to 671 00:43:54,520 --> 00:43:59,319 good we'll maybe asking as repetitive 672 00:43:59,319 --> 00:44:01,640 questions without 673 00:44:01,640 --> 00:44:05,559 context can make us feel like we are 674 00:44:05,559 --> 00:44:08,040 being 675 00:44:08,319 --> 00:44:12,240 tested speaking to a carer instead of 676 00:44:12,240 --> 00:44:16,720 directly to us shows a presumption about 677 00:44:16,720 --> 00:44:18,079 our 678 00:44:18,079 --> 00:44:21,640 capacity the following scene is based on 679 00:44:21,640 --> 00:44:25,599 our real life experiences of positive 680 00:44:25,599 --> 00:44:29,040 healthc care interaction 681 00:44:30,370 --> 00:44:33,240 [Music] 682 00:44:33,240 --> 00:44:36,480 thank you 683 00:44:39,900 --> 00:45:03,800 [Music] 684 00:45:03,800 --> 00:45:05,440 the consultant comes okay and I'll F 685 00:45:05,440 --> 00:45:09,680 this across the H yeah all 686 00:45:12,040 --> 00:45:15,359 right there we go like the wait the 687 00:45:15,359 --> 00:45:16,960 consultant will be right in through the 688 00:45:16,960 --> 00:45:21,079 door thank you 689 00:45:28,040 --> 00:45:30,400 how are you I'm Dr sville I'm one of the 690 00:45:30,400 --> 00:45:33,119 Consultants it's nice to meet you it's 691 00:45:33,119 --> 00:45:35,240 Davey is that right Dave yeah Davey I I 692 00:45:35,240 --> 00:45:37,440 haven't met you before um I understand 693 00:45:37,440 --> 00:45:39,040 that you're you're here to talk about 694 00:45:39,040 --> 00:45:40,640 some results that's right is that 695 00:45:40,640 --> 00:45:43,599 correct be okay yeah sure I I haven't 696 00:45:43,599 --> 00:45:46,160 been to doing too bad been keeping busy 697 00:45:46,160 --> 00:45:47,559 and very 698 00:45:47,559 --> 00:45:52,079 active so I do and uh yeah just keep 699 00:45:52,079 --> 00:45:54,359 keep busy okay okay how have you been 700 00:45:54,359 --> 00:45:57,119 sleeping recently sleep's been a bit on 701 00:45:57,119 --> 00:46:01,200 off um but uh I always get caught up 702 00:46:01,200 --> 00:46:03,160 sometimes away quite early right but uh 703 00:46:03,160 --> 00:46:05,760 I can get caught up the next night okay 704 00:46:05,760 --> 00:46:07,800 and what time would you go to bed at 705 00:46:07,800 --> 00:46:11,440 roughly normally try half time 11:00 um 706 00:46:11,440 --> 00:46:13,839 probably a bit overeen of anything right 707 00:46:13,839 --> 00:46:16,240 I started sweet stuff I Can't Get Enough 708 00:46:16,240 --> 00:46:19,200 at the whatever's uh going on you know 709 00:46:19,200 --> 00:46:21,960 right okay and then just about some of 710 00:46:21,960 --> 00:46:24,760 your medications um has anything changed 711 00:46:24,760 --> 00:46:27,440 recently at all no they've kept it 712 00:46:27,440 --> 00:46:30,280 they kept the medication as it is right 713 00:46:30,280 --> 00:46:32,000 we can maybe spend a bit more time 714 00:46:32,000 --> 00:46:34,240 looking at well really not not too bad 715 00:46:34,240 --> 00:46:36,599 just how how how do you see things 716 00:46:36,599 --> 00:46:40,200 progressing for for myself okay okay so 717 00:46:40,200 --> 00:46:42,680 if you've got that Rapport it makes a 718 00:46:42,680 --> 00:46:45,920 real difference and show appreciation 719 00:46:45,920 --> 00:46:49,760 cuz the staff do an amazing thing and in 720 00:46:49,760 --> 00:46:52,520 very difficult environment and I have to 721 00:46:52,520 --> 00:46:55,760 say thank you to the nursing staff and 722 00:46:55,760 --> 00:46:58,440 to the medics who do take such good care 723 00:46:58,440 --> 00:46:59,319 of 724 00:46:59,319 --> 00:47:02,400 us thank you for staying with us 725 00:47:02,400 --> 00:47:04,200 throughout this 726 00:47:04,200 --> 00:47:07,079 documentary we hope it has provided you 727 00:47:07,079 --> 00:47:10,119 with a deeper understanding of what it 728 00:47:10,119 --> 00:47:13,559 is like to live with dementia and has 729 00:47:13,559 --> 00:47:17,160 offered practical tips that you can now 730 00:47:17,160 --> 00:47:18,680 put into 731 00:47:18,680 --> 00:47:22,720 practice finally a big thank you from 732 00:47:22,720 --> 00:47:25,880 all the members at dementa ni for the 733 00:47:25,880 --> 00:47:27,559 work that you do 734 00:47:27,559 --> 00:47:30,880 that has a positive impact on the daily 735 00:47:30,880 --> 00:47:33,880 lives of real people like 736 00:47:33,880 --> 00:47:37,160 us matter have to assume we have 737 00:47:37,160 --> 00:47:40,480 capacity mhm is that the size of my 738 00:47:40,480 --> 00:47:44,359 bladder the size of my 739 00:47:50,160 --> 00:47:54,200 nose those words my feet went from 740 00:47:54,200 --> 00:47:58,839 beneath me could not believe what I 741 00:47:59,180 --> 00:48:00,800 [Music] 742 00:48:00,800 --> 00:48:03,359 I I 743 00:48:03,359 --> 00:48:06,720 saw I 744 00:48:09,559 --> 00:48:15,400 give it's a slippy R but I keep my feet 745 00:48:15,400 --> 00:48:19,359 bled I have the strength to hold the C 746 00:48:19,359 --> 00:48:21,559 I've been 747 00:48:21,559 --> 00:48:25,800 handed If I Stumble if my feet fall or 748 00:48:25,800 --> 00:48:27,680 if I need 749 00:48:27,680 --> 00:48:31,880 assistance I know the journey is long 750 00:48:31,880 --> 00:48:36,040 but it's so wor 751 00:48:36,040 --> 00:48:39,880 that my voice is mind I don't need 752 00:48:39,880 --> 00:48:43,800 someone to say what's on my mind though 753 00:48:43,800 --> 00:48:47,480 the love I have to help me is the best 754 00:48:47,480 --> 00:48:51,400 that you could find and I worry for my 755 00:48:51,400 --> 00:48:55,559 loved ones cuz the future is so wonder I 756 00:48:55,559 --> 00:48:58,720 stay strong 757 00:49:01,520 --> 00:49:02,200 it's 758 00:49:02,200 --> 00:49:06,240 ay but I keep 759 00:49:06,400 --> 00:49:10,359 my I have the strength to hold the C 760 00:49:10,359 --> 00:49:12,559 I've been 761 00:49:12,559 --> 00:49:17,400 handed If I Stumble my feet fall or if I 762 00:49:17,400 --> 00:49:21,480 need some assistance I know the journey 763 00:49:21,480 --> 00:49:23,040 long 764 00:49:23,040 --> 00:49:28,000 but it's the wor that distance 765 00:49:28,000 --> 00:49:33,079 [Music] 766 00:49:35,880 --> 00:49:39,559 [Music] 767 00:49:39,559 --> 00:49:41,200 I found my 768 00:49:41,200 --> 00:49:44,240 place surrounded by 769 00:49:44,240 --> 00:49:49,400 faces who understand 770 00:49:50,040 --> 00:49:53,200 me our worries and 771 00:49:53,200 --> 00:49:58,640 fears so disappear after 772 00:49:59,140 --> 00:50:02,079 [Music] 773 00:50:02,079 --> 00:50:07,559 Aver and a warm cup of tea